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Copyright of Revista Brasileira de Estudos Politicos is the property of Universidade Federal de Minas Gerais (Revista Brasileira de Estudos Politicos) and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Copyright of Comunicação e Sociedade is the property of Universidade do Minho, Centro de Estudos de Comunicacao e Sociedade and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

The paper focus on rare diseases as a challenge to the Welfare State, particularly for the effectiveness of the right to health protection; a situation derived from the scientific uncertainty, intensifying the budgetary restrictions, but which can improve thanks to technological progress, specifically big data (studies). In order to find some legal remedy, the work deeps in the application of the notion of human dignity as a pillar of the human rights and all the public intervention in the Society; an option that seems conceptually clearer in Spain than in the European Union legal system. Particularly, given the framework of competences applicable in matters of public health and the controversial nature of the notion of human dignity. Finally, it is verified that the use of this notion is not fully supported by Spanish jurisprudence either. [ABSTRACT FROM AUTHOR]

This paper represents the initial phase of a larger project being developed by the "Media, communication policy and democracy in the European Union" research group, which is currently working on the study "Communication policies, SVOD platforms and values education for minors in the single digital market (2020-2022)". We wish to pursue in this study that, beyond technological considerations, it is necessary to expand the scope of child protection by establishing mutual collaboration between regulators, distributors and video on demand services, as well as consumers and parents' organisations, in an effort to further enhance cooperation and mutual understanding (European Regulators Group for Audiovisual Media Services, 2017b, p. 75). It is for this reason that we believe that the academic sphere can also be invited into this wide-ranging discussion on child protection to contribute reflections on a key aspect: audiovisual and media education, an essential pillar of protection in addition to filters, external limits, and electronic labelling. We thus uphold a vision that not only considers the "digital stuff" but also highlights the need for "ethos stuff" (Goggin, 2008, p.89). In this respect, we have considered it essential a literature review on the concept of media literacy. Secondly, our qualitative methodology involves an analysis of the instructions issued by the European Union and their implementation in Spain. In this stage, we have conducted desk research based on a narrative analysis of the documents and programs of different institutions in order to chart the evolution of the question in recent years, at a time when the digital environment has changed more quickly than ever before. This same type of analysis is also conducted on the initiatives of European and Spanish companies to determine whether they are implementing child protection strategies. [ABSTRACT FROM AUTHOR]