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Symptom Control at the End of Life Abstract. Patients with advanced disease suffer from multiple physical and psychological symptoms. These include pain, weakness, lack of energy, weight loss, breathlessness, nausea and vomiting, constipation, and depression. In the dying phase, death rattle, delirium and terminal agitation may be additional problems. Palliative care focusses on alleviating these symptoms, taking into account the physical, psychological, social and spiritual dimension. Main principles of symptom control in palliative care are 1) considering differential diagnoses of the causes of the symptom to be able to treat potentially reversible causes, 2) using preventive measures and 3) symptomatic treatment - on its own or in combination with causal therapy. The following should be noted regarding pharmacological treatment: In case of permanent symptoms, the drugs have to be given at fixed times, in accordance with their duration of action, to achieve a constant blood level. In addition to this regular drug administration, prn medication should be prescribed, e. g., for pain, breathlessness, and nausea. If oral administration is not possible, drugs can be administered intravenously, subcutaneously or transdermally via patches. Non-pharmacological measures can be used additionally or primarily for symptom control. This paper presents important aspects of symptom control for pain, breathlessness, nausea and vomiting, constipation, and depression as well as for symptoms in the dying phase. It concludes by adding a few words on sedation in palliative care as a measure of last resort.

Sedation in palliative care, also called "palliative sedation", is an important treatment option for patients who experience unbearable suffering from treatment-refractory symptoms at the end of life. The aim is to reduce this suffering as far as possible by reduction of the patient's consciousness. Good communication between all people involved is crucial for these clinically and ethically challenging situations. This article presents definitions of key terms and of different types of sedation. It then describes the process of sedation step by step: 0. Pre-emptive discussion of the option of sedation (in the context of advance care planning); 1. indication and decision making; 2. information and informed consent; 3. documentation when starting sedation; 4. start of sedation; 5. monitoring and adaption of sedation; 6. medical and nursing care and documentation during sedation; 7. care and processes after the death of the patient (if applicable)., Competing Interests: Die Autorinnen/Autoren geben an, dass kein Interessenkonflikt besteht., (Thieme. All rights reserved.)

Background: Patient and public participation in health research is of increasing social importance. The participation of citizens (patients, their next or interested parties) is not yet structurally anchored in Germany. This manuscript aims to present and to discuss first experiences with patient and public involvement in two palliative care centers., Methods: In two centers, a general patient and public involvement committee (Erlangen) and a project-associated patient and public involvement group (Munich) were founded. Strategies for recruitment of potential members (public lectures, personal contact, information on the website, leaflets) were developed and applied. Sociodemographic data and motivations were assessed using survey and personal communication. 18 months after foundation citizens were asked to give feedback on participation during personal meetings., Results: The 20 members of the PPI committee (14 female) are between 52 and 86 years old in Erlangen. The PPI group in Munich has 7 members (5 female). Motivations to contribute are, for example, gratefulness for the care of a relative or the wish to share occupational competencies for a good purpose. Voluntary participation took place by consulting the research teams. Consultation was, among others, performed in joint sessions with brainstorming, moderated group discussions, piloting and commenting interview guides, texts or website content. Participation improved the quality of study material and data assessment instruments. Citizens appreciated that they were able to gain new information and meet people from different fields. They partly wished there was a more detailed preparation and debriefing after joint meetings. The research teams did not quantify the considerable staff and time expenses., Discussion: The recruitment strategies used have proved successful, and the experiences so far indicate a positive impact of PPI on research in the field of palliative care. Research is needed to evaluate the resources required and the effect of PPI in palliative care. On a structural level, discussion of PPI as one specification of voluntary engagement in palliative care, centralized provision of general information on PPI in palliative care and the possibilities of exchange between PPI groups and researchers of different facilities, should take place., Conclusion: There is a need for networking and exchange among researchers and citizens of different project groups with experience in PPI. An institutionalized provision of expertise would pave the way for PPI in palliative research., (Copyright © 2020. Published by Elsevier GmbH.)

Background and Research Question: Discussions with seriously ill patients are part of physicians' tasks. These discussions are very demanding with respect to communication skills. In this paper we present the concept of an obligatory postgraduate course for physicians on breaking bad news and the results of the course evaluation., Research Participants and Methods: Physicians of 4 German hospitals in which the module was offered as an obligatory inhouse course. An interventional study without control group was carried out in which a questionnaire (closed-ended questions and Likert scales as well as open-ended questions) was distributed before and immediately after the course., Results: 186 physicians (response rate: 88.6 %) participated in the study. 102 respondents (54.8 %) had broken bad news more than five times per month. 75 physicians (40.3 %) indicated that they had never participated in a teaching module on this topic prior to the course. Discussions about the end of life and disclosure about recurrence of the disease were rated most frequently as very difficult communication situations. Compared with the beginning of the course the respondents rated their communication skills significantly better at the end of the course. The course's relevance for clinical practice, teaching methods and the organisation of the course were rated positively., Conclusion: The feedback of the participants indicates the practical relevance of professional training on difficult communication situations such as breaking bad news. The improved rating of communication skills may be interpreted as a positive effect of the course. In our view, observational studies as well as interprofessional teaching modules contribute to improved professional communication with patients about diagnosis, prognosis and treatment options., (© Georg Thieme Verlag KG Stuttgart · New York.)