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Caring for persons with multiple and profound disabilities, family members are exposed to a special burden and challenges. The aim of this study was to investigate the subjective burden of caring relatives of people with severe disabilities and the effects of caring on their subjective well-being. In particular, the aim was to find out whether, and to what extent, caregiving burden is compatible with the experience of well-being or not. The research study sample consisted of 549 »informal« caregivers, of which 292 were caregivers of people with disabilities and 257 were caregivers of people without disabilities. The results of the study showed the higher and lower levels of burden and well-being, respectively, of family caregivers of people with severe disabilities, compared to family caregivers of people without disabilities. The terms »burden« and »wellbeing « are usually treated as separate concepts in related studies of family caregivers. In this study, burden is also examined and analyzed in relation to feelings of well-being. The results show that family caregivers may be burdened, but at the same time experience equally high levels of satisfaction. Finally, the joint assessment of the dimensions of strain and well-being that coexist in the experience of family caregivers enables the identification of personal and social resources that can be incorporated into interventions targeting family caregivers. [ABSTRACT FROM AUTHOR]

Background: Parents of children with profound intellectual and multiple disability (PIMD), who use Augmentative and Alternative Communication (AAC), implemented AAC interventions at home already prior to the COVID-19 pandemic (Deliberato & Manzini, 2012). With respect to the implementation process for these options, they reported various challenges (McNaughton et al., 2008). Aims: The study investigates the goals that parents of children with PIMD set and pursue for their children under pandemic conditions and the ways in which practitioners support the parents in the pursuit of these goals. Methods: In a Reflexive Grounded Theory approach, five interviews with parents of children with complex disabilities were conducted by (video) telephone. Results: In AAC implementation at home, the parents' main goal is to enable their children to pursue their own intentions. To support parents in the implementation of AAC at home, professionals use digital communication tools and prepared forms of AAC. Conclusions: To implement AAC, conditions of the use and transfer of AAC, but also the support of the parents should be reflected in designing AAC interventions at home. [ABSTRACT FROM AUTHOR]

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Copyright of HeilberufeSCIENCE is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

The article discusses Palliative wound care in practice, which includes relatives are the most important companions and closest confidants of the seriously ill and dying patients. It provides suggestions for caregivers on how to work together with relatives in the palliative care situation can succeed, but it is also helpful guide for loved ones during this difficult time.

A review of an article called "Daily life for young adults who care for a person with mental illness: a qualitative study," on a study of the efficacy of counseling young caretakers of mentally ill people over the internet originally published in the October 2011 issue of the "Journal of Psychiatric and Mental Health Nursing" is presented.