113 results on '"James, Tyler G."'
Search Results
2. A Behavioral Economic Examination of Sexual Behaviors in the Era of Pre-exposure Prophylaxis via Explanatory Sequential Mixed Methods
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Gebru, Nioud Mulugeta, James, Tyler G., Ahn, Seungjun, Cheong, JeeWon, Berry, Meredith S., Cook, Robert L., and Leeman, Robert F.
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- 2024
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3. Frontline Providers’ and Patients’ Perspectives on Improving Diagnostic Safety in the Emergency Department: A Qualitative Study
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Mangus, Courtney W., James, Tyler G., Parker, Sarah J., Duffy, Elizabeth, Chandanabhumma, P. Paul, Cassady, Caitlin M., Bellolio, Fernanda, Pasupathy, Kalyan S., Manojlovich, Milisa, Singh, Hardeep, and Mahajan, Prashant
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- 2024
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4. Reframing Our Health Care System for Patients with Hearing Loss
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McKee, Michael, James, Tyler G., Helm, Kaila V. T., Marzolf, Brianna, Chung, Dana H., Williams, John, and Zazove, Philip
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Purpose: Nearly 20% of U.S. Americans report a hearing loss, yet our current health care system is poorly designed and equipped to effectively care for these individuals. Individuals with hearing loss report communication breakdowns, inaccessible health information, reduced awareness and training by health care providers, and decreased satisfaction while struggling with inadequate health literacy. These all contribute to health inequities and increased health care expenditures and inefficiencies. It is time to reframe the health care system for these individuals using existing models of best practices and accessibility to mitigate inequities and improve quality of care. Method: A review of system-, clinic-, provider-, and patient-level barriers, along with existing and suggested efforts to improve care for individuals with hearing loss, are presented. Results: These strategies include improving screening and identification of hearing loss, adopting universal design and inclusion principles, implementing effective communication approaches, leveraging assistive technologies and training, and diversifying a team to better care for patients with hearing loss. Patients should also be encouraged to seek social support and resources from hearing loss organizations while leveraging technologies to help facilitate communication. Conclusions: The strategies described introduce actionable steps that can be made at the system, clinic, provider, and patient levels. With implementation of these steps, significant progress can be made to more proactively meet the needs of patients with hearing loss.
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- 2022
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5. Parents' and professionals' perspectives on school-based maltreatment prevention education for children with intellectual and developmental disabilities
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Bődi, Csenge B., Ortega, Diana P., Hawkins, LouAnne B., James, Tyler G., and Bright, Melissa A.
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- 2023
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6. A software feature for mixed methods analysis: The MAXQDA Interactive Quote Matrix
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Guetterman, Timothy C. and James, Tyler G.
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- 2023
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7. Reframing Our Health Care System for Patients With Hearing Loss
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McKee, Michael, James, Tyler G., Helm, Kaila V.T., Marzolf, Brianna, Chung, Dana H., Williams, John, and Zazove, Philip
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Best practices -- Usage ,Health care disparities -- Management ,Hearing loss -- Care and treatment ,Medical care -- Quality management ,Company business management ,Health - Abstract
Purpose: Nearly 20% of U.S. Americans report a hearing loss, yet our current health care system is poorly designed and equipped to effectively care for these individuals. Individuals with hearing loss report communication breakdowns, inaccessible health information, reduced awareness and training by health care providers, and decreased satisfaction while struggling with inadequate health literacy. These all contribute to health inequities and increased health care expenditures and inefficiencies. It is time to reframe the health care system for these individuals using existing models of best practices and accessibility to mitigate inequities and improve quality of care. Method: A review of system-, clinic-, provider-, and patient-level barriers, along with existing and suggested efforts to improve care for individuals with hearing loss, are presented. Results: These strategies include improving screening and identification of hearing loss, adopting universal design and inclusion principles, implementing effective communication approaches, leveraging assistive technologies and training, and diversifying a team to better care for patients with hearing loss. Patients should also be encouraged to seek social support and resources from hearing loss organizations while leveraging technologies to help facilitate communication. Conclusions: The strategies described introduce actionable steps that can be made at the system, clinic, provider, and patient levels. With implementation of these steps, significant progress can be made to more proactively meet the needs of patients with hearing loss. Presentation Video: https://doi.org/10.23641/asha.21215843, The adverse effects of hearing loss are profound and varied, affecting one's ability to perform independent activities of daily living, as well as their quality of life (Gopinath et al., [...]
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- 2022
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8. Healthcare communication access among deaf and hard-of-hearing people during pregnancy
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James, Tyler G., Panko, Tiffany, Smith, Lauren D., Helm, Kaila V.T., Katz, Gabrielle R., Caballero, Madeline E., Cooley, Margarita M., Mitra, Monika, and McKee, Michael M.
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- 2023
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9. Psychometric properties of the 21-item Depression, Anxiety, and Stress Scale (DASS-21) among Malaysians during COVID-19: a methodological study
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Thiyagarajan, Arulmani, James, Tyler G., and Marzo, Roy Rillera
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- 2022
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10. Evaluation of a Student-Led Community-Based Veterinary Clinic for Disabled Low-Income Clients: A Case Study of the University of Florida PAWS Program.
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Otero, Devon K., James, Tyler G., and Stone, Amy E.
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- 2024
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11. Qualitative Thematic Analysis in a Mixed Methods Study: Guidelines and Considerations for Integration.
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DeJonckheere, Melissa, Vaughn, Lisa M., James, Tyler G., and Schondelmeyer, Amanda C.
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Qualitative thematic analysis is a commonly used and widely applicable form of qualitative analysis, though it can be challenging to implement. Due to its use across research questions, qualitative traditions, and fields, thematic analysis is also prevalent in mixed methods studies. Despite its widespread use, the term "thematic analysis" is often confused and not always well described in empirical studies. In addition, there is limited guidance on how to use thematic analysis within the context of mixed methods research to ensure rigorous study design and mixed methods integration. Therefore, the purpose of this paper is to describe the definitions, use, and variations of thematic analysis and explore how integration and mixed methods validity may be impacted in mixed methods studies. [ABSTRACT FROM AUTHOR]
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- 2024
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12. Health Insurance Literacy and Health Service Utilization among College Students
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James, Tyler G., Sullivan, Meagan K., Dumeny, Leanne, Lindsey, Katherine, Cheong, JeeWon, and Nicolette, Guy
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Objective: Health literacy and health insurance literacy affect healthcare utilization. The purpose of this study was to determine the relation between health insurance knowledge, self-efficacy, and student healthcare utilization in the past year. Participants: A random sample of 1,450 respondents, over the age of 18, attending a public university in the southeastern United States completed a survey in March 2017. Methods: A model was constructed to test the effect of health insurance self-efficacy on the relation between knowledge and healthcare utilization in the past year. Results: Health insurance knowledge (M = 5.8, range 0-10) and self-efficacy (M = 2.48, range 1-4) were low. Self-efficacy was a significant moderator when explaining healthcare utilization in the past year. Conclusions: College students have low knowledge and self-efficacy regarding health insurance. These findings can be used for developing policies and self-efficacy-based health education programs that may increase student healthcare utilization.
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- 2020
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13. Systematically Collected Information at Encounters with HIV-Positive Students: A Review of 10 Years of Electronic Medical Records
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Ball, Jacob D., Fe Agana, Denny, Waugh, Sheldon, Wang, Kai, James, Tyler G., and Nicolette, Guy
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Objective: The objective of this study was to examine clinical and epidemiological information collected by Student Health Center (SHC) providers on HIV-positive students, and benchmark this information against Infectious Disease Society of America guidelines. Participants: Students who utilized the SHC and had an ICD-9 code indicating positive HIV status between 2005 and 2015 (3 = 7). Methods: In June 2016, we accessed the free-form provider notes of the SHC's electronic medical records to identify specific, recorded epidemiological and clinical information. Results: Seven unique students sought care at the SHC during the study period. Current sexual risk taking and other known behavioral risk factors were absent from all records, along with CD4 count and viral load. ART status was only available for one patient, and he was not on ART. The information collected failed to meet IDSA benchmarks. Conclusion: Clinically- and epidemiologically-relevant information is not systematically collected from HIV-positive students at SHCs.
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- 2020
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14. Interdisciplinary Collaborations Required : Teaching Health Educators Infectious Disease Dynamics
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James, Tyler G. and Lippi, Catherine A.
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- 2020
15. HIV Knowledge Mediates the Relationship between HIV Testing History and Stigma in College Students
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James, Tyler G. and Ryan, Sadie J.
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Objective: HIV-related stigma is one of the strongest barriers to prevention and treatment. HIV prevalence in U.S. college students is estimated around 0.02%, but is thought to be drastically underreported. We examined the influence of HIV knowledge on the relationship between HIV testing history and stigma in college students. Participants: A random sample of 2343 students, over the age of 18, attending a large university in the southeastern United States completed the survey in January 2016. Methods: A mediation model was constructed in regression framework to explore the relationship between HIV testing history, knowledge, and stigma. Results: HIV testing history was associated with higher knowledge scores (a path: B = 4.08, p < 0.001) and higher knowledge scores were associated with lower stigma (b path: B = 0.01, p < 0.001). These results suggest that HIV knowledge partially mediates the relation between HIV testing history and stigma in college students. Conclusions: HIV testing history may decrease stigma by increasing knowledge. Results can be used to inform college health promotion practice on developing programs and services.
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- 2018
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16. W26 - Measuring Cannabis Reinforcement Among Young Adults: A Mixed Methods Examination
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Gebru, Neo, James, Tyler G., Foxx, Ricarda, Castro, Michelle, and Yurasek, Ali
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- 2024
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17. Sexual Risk Behavior and Sexually Transmitted Infections Among College Students With Disabilities
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Argenyi, Michael S. and James, Tyler G.
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- 2021
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18. Self-Reported Accommodation Needs for Patients with Disabilities in Primary Care.
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Buning, Grayson E., James, Tyler G., Richards, Blair, and McKee, Michael M.
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- 2024
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19. Integrating Transformative Considerations and Quantitative Results Through a Participant Selection Joint Display in Explanatory Sequential Mixed Methods Studies.
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James, Tyler G., DeJonckheere, Melissa, and Guetterman, Timothy C.
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Integrating philosophical or paradigmatic dimensions in mixed methods research studies facilitates the development of stronger meta-inferences. The transformative paradigm and the explanatory sequential mixed methods design share a focus on developing sampling criteria, but with different priorities. This article contributes to the field of mixed methods research by presenting a method of integrating transformative sampling considerations in explanatory sequential designs through a participant selection joint display. The approach presented addresses concerns regarding transparency of research decisions in mixed methods studies, while providing a method of centering the transformative paradigm in mixed methods integration procedures. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Cesarean birth and adverse birth outcomes among sub-populations of deaf and hard-of-hearing people
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James, Tyler G., McKee, Kimberly S., Moore Simas, Tiffany A., Smith, Lauren D., McKee, Michael M., and Mitra, Monika
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- 2024
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21. Emergency department patient‐centred care perspectives from deaf and hard‐of‐hearing patients.
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James, Tyler G., Sullivan, Meagan K., McKee, Michael M., Rotoli, Jason, Maruca, David, Stachowiak, Rosemarie, Cheong, JeeWon, and Varnes, Julia R.
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LENGTH of stay in hospitals , *EVALUATION of medical care , *HOSPITAL emergency services , *DEAFNESS , *RESEARCH methodology , *PATIENT-centered care , *INTERVIEWING , *QUALITATIVE research , *HEARING disorders , *COMMUNICATION , *DECISION making , *RESEARCH funding , *PEOPLE with disabilities , *SOCIAL skills , *THEMATIC analysis , *EMERGENCY medicine - Abstract
Background: Deaf and hard‐of‐hearing (DHH) patients are a priority population for emergency medicine health services research. DHH patients are at higher risk than non‐DHH patients of using the emergency department (ED), have longer lengths of stay in the ED and report poor patient–provider communication. This qualitative study aimed to describe ED care‐seeking and patient‐centred care perspectives among DHH patients. Methods: This qualitative study is the second phase of a mixed‐methods study. The goal of this study was to further explain quantitative findings related to ED outcomes among DHH and non‐DHH patients. We conducted semistructured interviews with 4 DHH American Sign Language (ASL)‐users and 6 DHH English speakers from North Central Florida. Interviews were transcribed and analysed using a descriptive qualitative approach. Results: Two themes were developed: (1) DHH patients engage in a complex decision‐making process to determine ED utilization and (2) patient‐centred ED care differs between DHH ASL‐users and DHH English speakers. The first theme describes the social‐behavioural processes through which DHH patients assess their need to use the ED. The second theme focuses on the social environment within the ED: patients feeling stereotyped, involvement in the care process, pain communication, receipt of accommodations and discharge processes. Conclusions: This study underscores the importance of better understanding, and intervening in, DHH patient ED care‐seeking and care delivery to improve patient outcomes. Like other studies, this study also finds that DHH patients are not a monolithic group and language status is an equity‐relevant indicator. We also discuss recommendations for emergency medicine. Patient or Public Contribution: This study convened a community advisory group made up of four DHH people to assist in developing research questions, data collection tools and validation of the analysis and interpretation of data. Community advisory group members who were interested in co‐authorship are listed in the byline, with others in the acknowledgements. In addition, several academic‐based co‐authors are also deaf or hard of hearing. [ABSTRACT FROM AUTHOR]
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- 2023
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22. Sexual risk factors and HIV testing intention among at-risk college students who have never been tested
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James, Tyler G., Cheong, JeeWon, and Ryan, Sadie J.
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- 2019
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23. "There is No Communication": A Qualitative Examination of Deaf Signers' Experiences With Advance Care Planning.
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Cerilli, Caroline, Katz, Gabrielle, Volandes, Angelo E., Davis, Aretha Delight, Paasche-Orlow, Michael K., James, Tyler G., and McKee, Michael M.
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ADVANCE directives (Medical care) ,AMERICAN Sign Language ,SIGN language ,FACILITATED communication ,DEAF people ,HEALTH equity - Abstract
Objective(s): Deaf American Sign Language (ASL) users are subject to health care disparities resulting from communication and language barriers. Currently, few resources on advance care planning and end-of-life care exist in ASL. This study explores Deaf ASL users' perceptions and experiences with end-of-life care and advance care planning. Methods: Semi-structured 1:1 interviews with Deaf signers were translated, and transcribed into English by a bilingual researcher. Investigators inductively coded transcripts and identified themes of barriers, facilitators, knowledge, and sources of information regarding end-of-life care. Participants' knowledge of advance care planning and completion of advance care planning documents were evaluated using a brief assessment. Results: Eleven Deaf ASL users participated in the study with two deaf interviewers. Participants reported barriers to end-of-life care including poor provider communication, inaccessible sources, and inadequate provision of accommodations, leading to patient distrust. Participants' understanding of advance care planning was facilitated by accessible forms of communication and their social networks, such as family, friends, and Deaf peers. Participants primarily gained information on end-of-life care from first-hand familial experience, peers, and media. Participants' mean advance care planning knowledge was 4.6 out of 15 (SD = 2.6). Conclusions: Deaf ASL users face scarce accessible resources around end-of-life care, lowering their ability to understand and proceed with advance care planning. Implementation of ASL accessible advance care planning educational tools in health care settings is needed. [ABSTRACT FROM AUTHOR]
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- 2023
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24. Inadequate Funding Impacts State DeafBlind Projects in the United States.
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James, Tyler G.
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SPECIAL education , *CHILD development , *CHILDREN with disabilities , *HUMAN services programs , *DEAF-blind disorders , *ENDOWMENTS , *NEEDS assessment , *INFORMATION needs - Abstract
The article comments on the impact of inadequate funding on state DeafBlind projects in the U.S. Information is provided about DeafBlind program funds established under the Individuals with Disabilities in Education Act (IDEA) and costs of operation. It raises concern about underreported number of DeafBlind children and prevalence of DeafBlind youth who have multiple disabilities. It points out unmet service and educational needs and limited funding that reduce DeafBlind assistance.
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- 2023
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25. Competency Focused Versus Philosophically Grounded Health Promotion Practice: Impacts on Innovation and Addressing Health Inequities.
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James, Tyler G., Sullivan, Meagan K., Henderson, Heather, and Varnes, Julia R.
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HEALTH promotion , *HEALTH equity , *TECHNOLOGICAL innovations , *PUBLIC health education , *JOB analysis , *HEALTH education teachers - Abstract
The professionalization of the fields of health education and health promotion has largely coincided with the completion of job task analysis conducted by major organizations in the field (e.g., the National Commission for Health Education Credentialing, Society for Public Health Education). The process through which these job task analyses and skill-based competencies are implemented in professional preparation programs poses a risk to stifle advancement and innovation in health education and promotion. In this perspective, we discuss Competency Focused Practice (the current state of the field) to a goal of Philosophically Grounded Practice. We provide comparisons of the implications of these two schools of thought with respect to ethics, social determinants of health, and practical methods in health education and promotion. [ABSTRACT FROM AUTHOR]
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- 2022
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26. Spotlighting Disability in a Major Electronic Health Record: Michigan Medicine’s Disability and Accommodations Tab.
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Halkides, Heather, James, Tyler G., McKee, Michael M., Meade, Michelle A., Moran, Christa, and Park, Sophia
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ELECTRONIC health records ,PATIENT-centered care ,FOSTER home care ,CIVIL rights lawsuits - Abstract
People with disabilities represent the largest minority group in the United States and a priority population for health services research. Despite federal civil rights law, people with disabilities face inaccessible health care environments that fail to accommodate their disability. We present Michigan Medicine’s Disability and Accommodations Tab. This patient-facing questionnaire and shared data field in the electronic health record enables the collection and reporting of patient disability-related accommodations. The Disability Tab seeks to address provider- and clinic staff–reported barriers to providing accommodations and fosters an opportunity to redesign health care to meet the needs of people with disabilities. [ABSTRACT FROM AUTHOR]
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- 2022
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27. HIV-Related Stigma Moderates the Relation Between Perceived Susceptibility and HIV Testing Intention Among Heterosexual (but Not Sexual Minority) College Students.
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Berger, Alyssa, James, Tyler G., and Ryan, Sadie J.
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DIAGNOSIS of HIV infections , *HIV infection risk factors , *HETEROSEXUALS , *PSYCHOLOGY of college students , *ATTITUDE (Psychology) , *SOCIAL stigma , *RISK assessment , *RISK perception , *HEALTH literacy , *COMPARATIVE studies , *PSYCHOSOCIAL factors , *SEXUAL minorities , *HEALTH behavior , *HEALTH attitudes , *INTENTION , *STUDENT attitudes , *PATH analysis (Statistics) ,HIV infections & psychology - Abstract
HIV-related stigma remains a considerable barrier to engaging at-risk populations in HIV testing and prevention programs. We assessed the moderating role of HIV-related stigma on the relation between perceived susceptibility to HIV and HIV testing intention among college students. We hypothesized that the moderating role of HIV-related stigma would be differential between heterosexual and sexual minority college students. We administered a survey focused on HIV-related knowledge, attitudes, and behaviors in spring 2016 (N = 2,159). We used multigroup path analysis to analyze the hypothesized moderation. HIV-related stigma moderated the relation between perceived susceptibility and testing intention for heterosexual but not sexual minority college students. Specifically, higher HIV-related stigma decreased the association between perceived susceptibility and testing intention. These results demonstrate the importance of priority population segmentation for HIV testing campaigns. [ABSTRACT FROM AUTHOR]
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- 2022
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28. Emergency department condition acuity, length of stay, and revisits among deaf and hard‐of‐hearing patients: A retrospective chart review.
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James, Tyler G., Miller, M. David, McKee, Michael M., Sullivan, Meagan K., Rotoli, Jason, Pearson, Thomas A., Mahmoudi, Elham, Varnes, Julia R., and Cheong, Jee Won
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LENGTH of stay in hospitals ,MEDICAL quality control ,PAIN ,HOSPITAL emergency services ,ACADEMIC medical centers ,HEALTH services accessibility ,CONFIDENCE intervals ,DEAFNESS ,PATIENT readmissions ,RETROSPECTIVE studies ,SIGN language ,ACQUISITION of data ,MEDICAL care use ,PEARSON correlation (Statistics) ,DISABILITIES ,QUESTIONNAIRES ,MEDICAL records ,DESCRIPTIVE statistics ,PEOPLE with disabilities ,STATISTICAL models ,STATISTICAL sampling ,ODDS ratio - Abstract
Objective: Deaf and hard‐of‐hearing (DHH) patients are understudied in emergency medicine health services research. Theory and limited evidence suggest that DHH patients are at higher risk of emergency department (ED) utilization and poorer quality of care. This study assessed ED condition acuity, length of stay (LOS), and acute ED revisits among DHH patients. We hypothesized that DHH patients would experience poorer ED care outcomes. Methods: We conducted a retrospective chart review of a single health care system using data from a large academic medical center in the southeast United States. Data were received from the medical center's data office, and we sampled patients and encounters from between June 2011 and April 2020. We compared DHH American Sign Language (ASL) users (n = 108), DHH English speakers (n = 358), and non‐DHH English speakers (n = 302). We used multilevel modeling to assess the differences among patient segments in outcomes related to ED use and care. Results: As hypothesized, DHH ASL users had longer ED LOS than non‐DHH English speakers, on average 30 min longer. Differences in ED condition acuity, measured through Emergency Severity Index and triage pain scale, were not statistically significant. DHH English speakers represented a majority (61%) of acute ED revisit encounters. Conclusions: Our study identified that DHH ASL users have longer ED LOS than non‐DHH English speakers. Additional research is needed to further explain the association between DHH status and ED care outcomes (including ED LOS and acute revisit), which may be used to identify intervention targets to improve health equity. [ABSTRACT FROM AUTHOR]
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- 2022
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29. Communication Access In Mental Health And Substance Use Treatment Facilities For Deaf American Sign Language Users.
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James, Tyler G., Argenyi, Michael S., Guardino, Donna L., McKee, Michael M., Wilson, Jaime A. B., Sullivan, Meagan K., Schwartzman, Eiryn Griest, and Anderson, Melissa L.
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SUBSTANCE abuse treatment , *MENTAL illness treatment , *HEALTH services accessibility , *HEALTH services administration , *DEAFNESS , *SIGN language , *REGULATORY approval , *COMMUNICATION , *CHI-squared test , *DESCRIPTIVE statistics , *PATIENT-professional relations , *GOVERNMENT aid , *DATA analysis software , *HEALTH facility translating services , *PSYCHIATRIC hospitals , *SECONDARY analysis ,PATIENT Protection & Affordable Care Act - Abstract
Deaf and hard of hearing (DHH) American Sign Language users experience significant mental health-related disparities compared with non-DHH English speakers. Yet there is little empirical evidence documenting this priority population's communication access in mental health and substance use treatment facilities. This study measured mental health and substance use treatment facilities' noncompliance to Section 1557 of the Affordable Care Act (ACA), which requires health care facilities receiving government funds to provide effective communication access, such as a sign language interpreter, to DHH patients. Using nationally representative data from the Substance Abuse and Mental Health Services Administration, we found that 41 percent of mental health facilities and 59 percent of substance use treatment facilities receiving public funds reported not providing services in sign language in 2019 and were thus noncompliant with the ACA's mandate to provide accessible communication to DHH patients. We mapped these data to display state-level noncompliance, and we make detailed recommendations at the policy, facility, and provider levels. These include monitoring noncompliance among government-funded facilities, expanding state-by-state mental health licensure reciprocity and telehealth policies to improve access to American Sign Language-fluent mental health professionals and addiction counselors, establishing systematic processes to collect information on disability-related accommodation needs, and increasing the workforce of DHH American Sign Language-Ouent providers. [ABSTRACT FROM AUTHOR]
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- 2022
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30. Improving Representation of People With Disabilities in Health Education.
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James, Tyler G., Sullivan, Meagan K., and Varnes, Julia R.
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HEALTH education , *PEOPLE with disabilities , *PAY for performance , *MEDICAL personnel , *ADULTS , *PROFESSIONAL associations , *HEALTH of minorities - Abstract
Over the past two decades, there has been increasing recognition of the importance and merits of increasing representation of historically underrepresented minorities in the health professions. However, people with disabilities are less discussed in these efforts. More than one in four of U.S. adults have a disability; yet it seems that these individuals are less represented in the field of health education. This commentary discusses the merits of increasing representation of people with disabilities in the health education/promotion profession and calls for preparation programs and professional organizations to reduce systemic barriers and facilitate increased representation. [ABSTRACT FROM AUTHOR]
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- 2022
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31. Community-Engaged Needs Assessment of Deaf American Sign Language Users in Florida, 2018.
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James, Tyler G., McKee, Michael M., Sullivan, Meagan K., Ashton, Glenna, Hardy, Stephen J., Santiago, Yary, Phillips, David G., and Cheong, JeeWon
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RISK-taking behavior , *HEALTH services accessibility , *ENGLISH language , *DEAFNESS , *COMMUNITY health services , *SIGN language , *MENTAL health , *BINGE drinking , *PATIENTS' attitudes , *MEDICAL care research , *MEDICAL care use , *HEALTH behavior , *DISEASE prevalence , *DESCRIPTIVE statistics , *MENTAL depression , *NEEDS assessment , *PEOPLE with disabilities , *MEDICAL needs assessment - Abstract
Objectives: Deaf American Sign Language (ASL) users comprise a linguistic and cultural minority group that is understudied and underserved in health education and health care research. We examined differences in health risk behaviors, concerns, and access to health care among Deaf ASL users and hearing English speakers living in Florida. Methods: We applied community-engaged research methods to develop and administer the first linguistically accessible and contextually tailored community health needs assessment to Deaf ASL users living in Florida. Deaf ASL users (n = 92) were recruited during a 3-month period in summer 2018 and compared with a subset of data on hearing English speakers from the 2018 Florida Behavioral Risk Factor Surveillance System (n = 12 589). We explored prevalence and adjusted odds of health behavior, including substance use and health care use. Results: Mental health was the top health concern among Deaf participants; 15.5% of participants screened as likely having a depressive disorder. Deaf people were 1.8 times more likely than hearing people to engage in binge drinking during the past month. In addition, 37.2% of participants reported being denied an interpreter in a medical facility in the past 12 months. Conclusion: This study highlights the need to work with Deaf ASL users to develop context-specific health education and health promotion activities tailored to their linguistic and cultural needs and ensure that they receive accessible health care and health education. [ABSTRACT FROM AUTHOR]
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- 2022
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32. Ableism and Contours of the Attitudinal Environment as Identified by Adults with Long-Term Physical Disabilities: A Qualitative Study.
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Reber, Lisa, Kreschmer, Jodi M., James, Tyler G., Junior, Jaime D., DeShong, Gina L., Parker, Shan, and Meade, Michelle A.
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- 2022
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33. "They're Not Willing To Accommodate Deaf patients": Communication Experiences of Deaf American Sign Language Users in the Emergency Department.
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James, Tyler G., Coady, Kyle A., Stacciarini, Jeanne-Marie R., McKee, Michael M., Phillips, David G., Maruca, David, and Cheong, JeeWon
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DEAFNESS & psychology , *MEDICAL consultation , *HOSPITAL emergency services , *HEALTH services accessibility , *COMMUNICATION barriers , *RESEARCH methodology , *SIGN language , *INTERVIEWING , *PATIENTS' attitudes , *QUALITATIVE research , *HEALTH literacy , *QUESTIONNAIRES , *COMMUNICATION , *HEALTH , *INFORMATION resources , *RESEARCH funding , *JUDGMENT sampling , *THEMATIC analysis , *HEALTH facility translating services , *CULTURAL awareness , *TELEMEDICINE ,PSYCHOLOGY of People with disabilities - Abstract
Deaf people who use American Sign Language (ASL) are more likely to use the emergency department (ED) than their hearing English-speaking counterparts and are also at higher risk of receiving inaccessible communication. The purpose of this study is to explore the ED communication experience of Deaf patients. A descriptive qualitative study was performed by interviewing 11 Deaf people who had used the ED in the past 2 years. Applying a descriptive thematic analysis, we developed five themes: (1) requesting communication access can be stressful, frustrating, and time-consuming; (2) perspectives and experiences with Video Remote Interpreting (VRI); (3) expectations, benefits, and drawbacks of using on-site ASL interpreters; (4) written and oral communication provides insufficient information to Deaf patients; and (5) ED staff and providers lack cultural sensitivity and awareness towards Deaf patients. Findings are discussed with respect to medical and interpreting ethics to improve ED communication for Deaf patients. [ABSTRACT FROM AUTHOR]
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- 2022
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34. Promoting health equity for deaf patients through the electronic health record.
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James, Tyler G, Sullivan, Meagan K, Butler, Joshua D, and McKee, Michael M
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Language status can be conceptualized as an equity-relevant variable, particularly for non-English-speaking populations. Deaf and hard-of-hearing (DHH) individuals who use American Sign Language (ASL) to communicate comprise one such group and are understudied in health services research. DHH individuals are at high-risk of receiving lower-quality care due to ineffective patient-provider communication. This perspective outlines barriers to health equity research serving DHH ASL-users due to systems developed by large-scale informatics networks (eg, the Patient-Centered Clinical Outcomes Research Network), and institutional policies on self-serve cohort discovery tools. We list potential to help adequate capture of language status of DHH ASL-users to promote health equity for this population. [ABSTRACT FROM AUTHOR]
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- 2022
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35. Psychometric Evaluation of a 10-Item Health Insurance Knowledge Scale.
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James, Tyler G., David Miller, M., Nicolette, Guy, and Cheong, JeeWon
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COLLEGE students ,CONFIDENCE intervals ,PSYCHOMETRICS ,HEALTH literacy ,SURVEYS ,HEALTH insurance ,CHI-squared test ,DESCRIPTIVE statistics ,DATA analysis software - Abstract
Background: College students are a priority population for health insurance literacy interventions. Yet, there are few psychometric studies on measuring health insurance knowledge – a core construct of health insurance literacy. Methods: We administered a health insurance survey to 2,250 college students. We applied Classical Test Theory and Item Response Theory methods to estimate psychometric properties of the Kaiser Family Foundation's 10-item health insurance knowledge quiz. Results: The scale is unidimensional, and a two-parameter logistic model best fit the data. IRT estimates indicated varying item discriminations (a range: 0.717–2.578) and difficulties (b range: −0.913–1.790). Precision of measurement was maximized for students half a standard deviation below the mean (θ = −0.686) health insurance knowledge ability. Conclusions: This scale can be used to identify gaps in health insurance knowledge among college students and be applied in clinical and community health education practice. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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36. Inclusion of People With Disabilities in Community Health Needs Assessments in Florida, United States.
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Roberts, Logan S. and James, Tyler G.
- Abstract
Community health needs assessments (CHNAs) play a crucial role in identifying health needs of communities. Yet, unique health needs of people with disabilities (PWDs) are often underrecognized in public health practice. In 2010, the Patient Protection and Affordable Care Act (ACA) required the implementation of standardized data collection guidelines, including disability status, among federal agencies. The extent to which guidance from ACA and the U.S. Centers for Disease Control and Prevention has impacted disability inclusion in CHNAs is unknown. This study used a content analysis approach to review CHNAs conducted by local health councils and the top 11 nonprofit hospitals in Florida (
n = 77). We coded CHNAs based on mentioning disability in CHNA reports, involving disability-related stakeholders, and incorporating data on disability indicators. Findings indicate that PWDs are widely not included in CHNAs in Florida, emphasizing the need for equitable representation and comprehensive understanding of PWDs in community health planning. [ABSTRACT FROM AUTHOR]- Published
- 2024
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37. Systematically collected information at encounters with HIV-positive students: A review of 10 years of electronic medical records.
- Author
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Ball, Jacob D., Fe Agana, Denny, Waugh, Sheldon, Wang, Kai, James, Tyler G., and Nicolette, Guy
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DIAGNOSIS of HIV infections ,HIV prevention ,HIV infection epidemiology ,BENCHMARKING (Management) ,COLLEGE students ,MEDICAL protocols ,MEDICAL records ,NOSOLOGY ,RISK-taking behavior ,ANTIRETROVIRAL agents ,ELECTRONIC health records ,ATTITUDES toward sex ,CD4 lymphocyte count ,STUDENT health services ,ACQUISITION of data methodology - Abstract
Objective: The objective of this study was to examine clinical and epidemiological information collected by Student Health Center (SHC) providers on HIV-positive students, and benchmark this information against Infectious Disease Society of America guidelines. Participants: Students who utilized the SHC and had an ICD-9 code indicating positive HIV status between 2005 and 2015 (3 = 7). Methods: In June 2016, we accessed the free-form provider notes of the SHC's electronic medical records to identify specific, recorded epidemiological and clinical information. Results: Seven unique students sought care at the SHC during the study period. Current sexual risk taking and other known behavioral risk factors were absent from all records, along with CD4 count and viral load. ART status was only available for one patient, and he was not on ART. The information collected failed to meet IDSA benchmarks. Conclusion: Clinically- and epidemiologically-relevant information is not systematically collected from HIV-positive students at SHCs. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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38. Suicidal Behaviors and Help-Seeking Attitudes Among Deaf and Hard-of-Hearing College Students.
- Author
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Fox, Meghan L., James, Tyler G., and Barnett, Steven L.
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- *
SUICIDAL behavior , *COLLEGE students , *HELP-seeking behavior , *DEAF people , *HEARING impaired , *SUICIDAL ideation , *HEARING , *RESEARCH , *ATTITUDE (Psychology) , *RESEARCH methodology , *MEDICAL cooperation , *EVALUATION research , *COMPARATIVE studies , *UNIVERSITIES & colleges , *STUDENTS , *RESEARCH funding - Abstract
Objective: The objective of this study was to examine the prevalence of suicidal ideation, suicide attempts, and help-seeking attitudes among D/HH and hearing college students.Method: A total of 500,860 students completed the ACHA-NCHA-IIb (Fall 2011-Spring 2015). Survey administration and sampling methods differed across institutions. We randomly selected hearing students to have a 1:1 ratio of D/HH and hearing students (analytic N = 12,056). The mean age was 20.3 years, and the sample was predominantly white (68%) and female (65%). Multinomial and binary logistic regressions determined the relation between hearing status, suicide ideation and attempt, and help-seeking.Results: D/HH college students were more likely than hearing college students to have seriously considered suicide or attempted suicide in their lifetime. [Correction added on November 26, 2019, after first online publication: The phrase "but not in the past year" was deleted in the previous sentence.] In adjusted analyses, D/HH college students were more likely than hearing college students to have attempted suicide in the past year (OR 2.42, 95% CI 1.85, 3.17). There were no differences between D/HH and hearing groups in help-seeking attitudes.Conclusions: Findings from this national data set indicate that D/HH college students are more likely to consider or attempt suicide. These results underscore the need for focused suicide risk prevention interventions with this population. [ABSTRACT FROM AUTHOR]- Published
- 2020
- Full Text
- View/download PDF
39. Preresolution Drinking Problem Severity Profiles Associated with Stable Moderation Outcomes of Natural Recovery Attempts.
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Tucker, Jalie A., Cheong, JeeWon, James, Tyler G., Jung, Soyeon, and Chandler, Susan D.
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DISEASE relapse ,CONVALESCENCE ,COST control ,DRINKING behavior ,ALCOHOL drinking ,LONGITUDINAL method ,PSYCHOLOGY ,RESEARCH funding ,LOGISTIC regression analysis ,MEMBERSHIP ,BINGE drinking ,ALCOHOL-induced disorders ,DESCRIPTIVE statistics - Abstract
Background: Higher problem severity contraindicates moderation drinking in treatment samples, but has not been well investigated in natural recovery samples with more prevalent moderation outcomes, nor have single studies assessed multiple severity indicators. Therefore, we integrated 5 prospective studies of recent natural recovery attempts to identify multi‐indicator profiles that distinguished moderation from abstinence or unstable resolution involving relapse. The study evaluated whether moderation was distinguished by a generalized lower severity profile or whether more complex profiles better differentiated outcomes. Methods: Community‐dwelling problem drinkers in the southeastern United States (N = 616, 67% male, 65% white, mean age = 46.5 years) enrolled soon after stopping alcohol misuse without treatment were followed prospectively for a year. Outcome predictors assessed at enrollment included preresolution drinking practices, alcohol‐related problems, alcohol dependence, and a behavioral economic measure of the reward value of drinking based on preresolution spending on alcohol versus saving for the future. Results: Latent profile analysis of severity indicators supported a 4‐profile solution: (i) global low risk on all indicators, (ii) global high risk on all indicators, (iii) high risk limited to drinking practices only, and (iv) high risk limited to alcohol dependence and alcohol‐related problems only. Outcomes differed by profile membership (p < 0.01). Multinomial logistic regression analyses showed that the global low risk and heavy drinking risk only profiles were associated with stable moderation during the 1‐year follow‐up. The high dependence and alcohol problems risk profile was associated with both abstinence and relapse during the follow‐up (ps < 0.05). Conclusions: Consistent with prior research, moderation was associated with lower alcohol dependence, problems, and reward value. Participants who simply drank heavily and did not have elevated risk on other indicators also had a higher probability of moderation. Results support using multidimensional severity indicators that encompass functional variables in addition to drinking practices to predict outcomes. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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40. Health insurance literacy and health service utilization among college students.
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James, Tyler G., Sullivan, Meagan K., Dumeny, Leanne, Lindsey, Katherine, Cheong, JeeWon, and Nicolette, Guy
- Subjects
- *
PSYCHOLOGY of college students , *HEALTH insurance , *MEDICAL care use , *STATISTICAL sampling , *SELF-efficacy , *SURVEYS , *UNIVERSITIES & colleges , *HEALTH literacy - Abstract
Objective: Health literacy and health insurance literacy affect healthcare utilization. The purpose of this study was to determine the relation between health insurance knowledge, self-efficacy, and student healthcare utilization in the past year. Participants: A random sample of 1,450 respondents, over the age of 18, attending a public university in the southeastern United States completed a survey in March 2017. Methods: A model was constructed to test the effect of health insurance self-efficacy on the relation between knowledge and healthcare utilization in the past year. Results: Health insurance knowledge (M = 5.8, range 0–10) and self-efficacy (M = 2.48, range 1–4) were low. Self-efficacy was a significant moderator when explaining healthcare utilization in the past year. Conclusions: College students have low knowledge and self-efficacy regarding health insurance. These findings can be used for developing policies and self-efficacy-based health education programs that may increase student healthcare utilization. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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41. Sexual Risk Factors and Human Immunodeficiency Virus Testing Intention Among At-Risk College Students Who Have Never Been Tested.
- Author
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James, Tyler G., Cheong, JeeWon, and Ryan, Sadie J.
- Abstract
Survey data from a university in the southeast United States were used to estimate the relation between sexual risk factors, perceived susceptibility, and human immunodeficiency virus testing intention among sexually active college students who had never been tested. Sexual risk factors, but not knowledge, were indirectly related to increased human immunodeficiency virus testing intention through perceived susceptibility. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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42. HIV knowledge mediates the relationship between HIV testing history and stigma in college students.
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James, Tyler G. and Ryan, Sadie J.
- Subjects
- *
DIAGNOSIS of HIV infections , *PSYCHOLOGY of college students , *CONCEPTUAL structures , *HEALTH promotion , *REGRESSION analysis , *SOCIAL stigma , *HUMAN services programs , *HEALTH literacy - Abstract
Objective: HIV-related stigma is one of the strongest barriers to prevention and treatment. HIV prevalence in U.S. college students is estimated around 0.02%, but is thought to be drastically underreported. We examined the influence of HIV knowledge on the relationship between HIV testing history and stigma in college students. Participants: A random sample of 2343 students, over the age of 18, attending a large university in the southeastern United States completed the survey in January 2016. Methods: A mediation model was constructed in regression framework to explore the relationship between HIV testing history, knowledge, and stigma. Results: HIV testing history was associated with higher knowledge scores (a path: B = 4.08, p <.001) and higher knowledge scores were associated with lower stigma (b path: B =.01, p <.001). These results suggest that HIV knowledge partially mediates the relation between HIV testing history and stigma in college students. Conclusions: HIV testing history may decrease stigma by increasing knowledge. Results can be used to inform college health promotion practice on developing programs and services. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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43. Technological Tools to Improve Communication in Patients With Hearing Loss.
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James, Tyler G. and McKee, Michael M.
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- *
HEARING , *LONELINESS , *HEARING disorders , *AUDIOLOGISTS , *OLDER people - Abstract
Hearing loss screening needs improvement to identify which patients with hearing loss may benefit from hearing technologies, including PSAPs. Editorial The risk of hearing loss increases as the population ages, with approximately 23 million adults aged 70 years or older (63%) in the US having diminished speech perception.[1] Although hearing loss is common in elderly people, management is largely ineffective due to several factors: poor screening, high cost of hearing aids, vanity, hearing loss stigma, and inadequate training of health care practitioners. [Extracted from the article]
- Published
- 2022
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44. Spatiotemporal Variation in Environmental Vibrio cholerae in an Estuary in Southern Coastal Ecuador.
- Author
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Ryan, Sadie J., Stewart-Ibarra, Anna M., Ordóñez-Enireb, Eunice, Chu, Winnie, Finkelstein, Julia L., King, Christine A., Escobar, Luis E., Lupone, Christina, Heras, Froilan, Tauzer, Erica, Waggoner, Egan, James, Tyler G., Cárdenas, Washington B., and Polhemus, Mark
- Published
- 2018
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45. Conceptual Model of Emergency Department Utilization among Deaf and Hard-of-Hearing Patients: A Critical Review.
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James, Tyler G., Varnes, Julia R., Sullivan, Meagan K., Cheong, JeeWon, Pearson, Thomas A., Yurasek, Ali M., Miller, M. David, and McKee, Michael M.
- Published
- 2021
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- View/download PDF
46. The International Classification of Functioning, Disability and Health (ICF) core sets for deafblindness, part II of the systematic review: linking data to the ICF categories.
- Author
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Jaiswal A, Paramasivam A, Budhiraja S, Santhakumaran P, Gravel C, Martin J, Ogedengbe TO, James TG, Kennedy B, Tang D, Tran Y, Colson-Osborne H, Minhas R, Granberg S, and Wittich W
- Abstract
Introduction: Deafblindness, a health condition with varying combinations of hearing and vision impairment, affects functioning and social participation. In 2001, the World Health Organization (WHO) introduced the International Classification of Functioning, Disability, and Health (ICF) to examine human health and functioning. To use the ICF in clinical practice, smaller categories of ICF codes, referred to as Core Sets, were developed for specific health conditions. However, no ICF Core Set exists for deafblindness. As part of an ICF Core Set development, this paper examines the existing literature from an ICF perspective and links relevant data to the ICF categories., Evidence Acquisition: The systematic review followed the Preferred Reporting Items for Systematic Review and Meta-Analyses (PRISMA). Articles were selected from eight scientific databases, three journals, and Google Scholar. The research team linked outcome measures and qualitative studies to ICF codes using ICF linking rules. For each measure/qualitative study's final code list, they included each code only once after eliminating any duplicates. Subsequently, a frequency analysis was conducted, and ICF categories identified in at least five studies were included in the candidate categories list., Evidence Synthesis: 147 articles met the eligibility criteria. Most studies were from Europe (N.=70) and North America (N.=41). 316 categories were identified in at least five studies that belong to one of four ICF components. This includes 112 categories in the body function component, 3 categories in body structure, 163 in activities and participation, and 38 in environmental factors. Additionally, 21 personal factors relating to demographics were identified. The most frequent category was listening (category d115) at 82.31%, followed by range of emotions (category b1522) at 78.91%, hearing function (category b230) at 68.03%, and assistive products and technology for communication (category e1251) at 63.27%., Conclusions: As the second part of the first four studies in developing ICF Core Sets for deafblindness, this review described the ICF categories relevant to the functioning of individuals with deafblindness. These categories inform the development of the Core Sets on deafblindness from the researcher's perspective. The final Core Sets will guide clinical practice, programs, and policies for individuals with deafblindness.
- Published
- 2024
- Full Text
- View/download PDF
47. Measuring Cannabis Reinforcement among Young Adults: A Mixed Methods Examination.
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Gebru NM, James TG, Foxx R, Castro M, and Yurasek AM
- Abstract
Introduction: Increasing reinforcement received from cannabis-free activities, relative to reinforcement from cannabis-related activities, is one way to reduce harmful cannabis use. Thus, accurate measurement of cannabis reinforcement is important. Using convergent mixed methods, we developed the Adolescent Reinforcement Survey Schedule-Cannabis Use Version (ARSS-CUV). ARSS-CUV, adapted from the alcohol use version, measures cannabis reinforcement by asking individuals how frequently they engaged in, and how much they enjoyed, different activities when using and not using cannabis., Method: Young adults ( N = 65; M
age = 20.4 years [ SD = 1.8]) completed measures of cannabis use, the ARSS-CUV, and provided feedback on included activities, via focus groups. Following Standards for Educational and Psychological Testing framework, this study examined evidence of measurement validity based on item content., Results: Quantitative findings revealed that peer interactions were the most reinforcing activities, whereas activities related to family were least reinforcing. Qualitative findings indicated some confusion with question wording. Participants also indicated the importance of environmental context when using cannabis and noted who they use cannabis with may be more important than the activity they are doing. Changes were made to survey flow and response choices after participant feedback., Conclusions: ARSS-CUV includes revisions in activities solicited and response format. The revised ARSS-CUV provides opportunities to advance measurement of an important construct (i.e., reinforcement) in the study of cannabis use. Psychometric properties of the ARSS-CUV across different populations and contexts of use (e.g., polysubstance use) should be examined., Competing Interests: All authors report no conflicts of interest., (© 2023 Authors et al.)- Published
- 2024
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48. Model Clinic to Increase Preventive Screenings Among Patients With Physical Disabilities: Protocol for a Mixed Methods Intervention Pilot Study.
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Palazzolo B, Carbone L, James TG, Heizelman R, Sen A, Mahmoudi E, and McKee M
- Abstract
Background: People with physical disabilities often experience premature multimorbidity and adverse health events. A tailored primary care approach for this vulnerable population that also accounts for social and functional risk factors could promote healthier aging and more equitable health care., Objective: This project will evaluate the implementation of a health program designed for people with physical disabilities. The proposed evaluation result is to generate the first best-practice protocol focused specifically on developing primary care to help reduce preventable causes of morbidity and improve functioning among people with physical disabilities., Methods: We will design and implement a pilot health program for people with physical disabilities at a primary care clinic within Michigan Medicine. The health program for people with physical disabilities will be an integrated intervention involving a tailored best practice alert designed to prompt family medicine providers to screen and monitor for common, preventable health conditions. The program will also collect social and functional status information to determine the patient's need for further care coordination and support. Adult participants from this clinic with identified physical disabilities will be targeted for potential enrollment. To create a quasi-experimental setting, a separate departmental clinic will serve as a control site for comparison purposes. A quantitative analysis to estimate the treatment effect of implementing this health program will be conducted using a difference-in-differences approach. Outcomes of interest will include the use of preventative services (eg, hemoglobin A
1c for diabetes screening), social work assistance, and emergency and hospital services. These data will be extracted from electronic health records. Time-invariant covariates, particularly sociodemographic covariates, will be included in the models. A qualitative analysis of patient and health care provider interviews will also be completed to assess the effect of the health program. Patient Health Questionnaire-9 and Generalized Anxiety Disorder 7-item scores will be assessed to both screen for depression and anxiety as well as explore program impacts related to addressing health and functioning needs related to physical disabilities in a primary care setting. These will be summarized through descriptive analyses., Results: This study was funded in September 2018, data collection started in September 2021, and data collection is expected to be concluded in September 2023., Conclusions: This study is a mixed methods evaluation of the effectiveness of an integrated health program designed for people with physical disabilities, based on a quasi-experimental comparison between an intervention and a control clinic site. The intervention will be considered successful if it leads to improvements in greater use of screening and monitoring for preventable health conditions, increased social worker referrals to assist with health and functioning needs, and improvements in emergency and hospital-based services. The findings will help inform best practices for people with physical disabilities in a primary care setting., International Registered Report Identifier (irrid): DERR1-10.2196/50105., (©Beatrice Palazzolo, Loretta Carbone, Tyler G James, Robert Heizelman, Ananda Sen, Elham Mahmoudi, Michael McKee. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 25.10.2023.)- Published
- 2023
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49. The International Classification of Functioning, Disability and Health Core Set for deafblindness. Part I: a systematic review of outcome measures.
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Paramasivam A, Jaiswal A, Budhiraja S, Holzhey P, Santhakumaran P, Ogedengbe T, Martin J, DAS S, Côté S, Hassid R, James TG, Kennedy B, Tang D, Tran Y, Colson-Osborne H, Li Chen Che M, Minhas R, Granberg S, and Wittich W
- Subjects
- Humans, International Classification of Functioning, Disability and Health, Outcome Assessment, Health Care, World Health Organization, Disability Evaluation, Activities of Daily Living, Deaf-Blind Disorders, Disabled Persons
- Abstract
Introduction: The International Classification of Functioning, Disability, and Health (ICF), developed by the World Health Organization, is a classification framework that focuses on the health and functioning of people with disabilities. As part of an ICF Core Set development, four studies need to be conducted, one of which is a systematic review. This study presents part 1 of the systematic review that aims to describe the outcome measures identified in the literature related to functioning in individuals with deafblindness., Evidence Acquisition: The research team screened articles from eight scientific databases, three journals, and Google Scholar (March 2011 to September 2022). Articles were included if they studied individuals with deafblindness aged 18 and older. Studies that examined genetics or laboratory experiments involving animals were excluded. Data were extracted into a logbook with key descriptors such as study location and design, age of study population, and instruments/outcome measures used, which were further categorized into one of the following types: 1) standardized; 2) patient-reported measures, standardized (PT-S); 3) patient-reported measures, not standardized (PT-not S); 4) health professional, reported measures, standardized (HP-S); 5) Technical measures; 6) other measures (parent-reported standardized and laboratory measures)., Evidence Synthesis: The review included 147 studies, of which most were conducted in Europe (47.6%) and North America (27.9%). Of the 314 identified outcome measures, 57 were Standardized, 59 were Patient Reported-Standardized (PT-S), 178 were patient reported non-standardized (PT-Not S) variables, 11 were health professional reported, standardized, five were technical, and four were classified as other measures., Conclusions: Most instruments measured functioning in daily activities and the mental health of individuals with deafblindness. Three deafblind-specific instruments were identified in this study, highlighting the need for more deafblind-specific instruments to be developed and utilized in research.
- Published
- 2023
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- View/download PDF
50. Evaluation of a Student-Led Community-Based Veterinary Clinic for Disabled Low-Income Clients: A Case Study of the University of Florida PAWS Program.
- Author
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Otero DK, James TG, and Stone AE
- Abstract
People with disabilities experiencing low socioeconomic position are priority populations when considering access to veterinary care. In this population, intersectional inequities lead to adverse health outcomes for both those individuals and the companion animals they care for. Community-based veterinary clinics provide an opportunity to target these inequities from a culturally sensitive lens, intending to improve human and animal outcomes. We conducted a process evaluation of a student-led community-based clinic for this population to better understand client satisfaction, assess learning outcomes among veterinary students, and improve program delivery and services. During academic year 2020-2021, the monthly clinics had 162 appointments in total with a median 15 DVM candidates volunteering at each clinic. Clients and volunteers responded to survey questionnaires designed to elicit information about their experiences with the clinic, including open-ended questions for further elucidation of measurable indicators of client-, patient-, and student-level impact. Clients attributed enrollment in the clinic with improved quality-of-life and reduction of financial burden; the program saved clients approximately $2,050 per pet during the evaluation year. Furthermore, the clinic widely facilitated completion of the college's core Primary Care and Dentistry learning outcomes. Beyond curriculum-standard learning objectives, students also reported positive attitude changes and increased readiness to provide care to people with disabilities and people experiencing low socioeconomic position. The results of this evaluation have significant implications for both veterinary and public health pedagogy. Especially, they highlight the significance of community health practice in veterinary trainee education.
- Published
- 2023
- Full Text
- View/download PDF
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