46 results on '"Fang, Mei Lan"'
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2. Using creative methodology to explore LGBTQ+ love and relationship experiences across the lifespan: Developing inclusive and healthy spaces through positive intergenerational exchange
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Fang, Mei Lan, Rogowsky, Rayna, White, Rebecca, Sixsmith, Judith, McKay, Ryan, Scrutton, Pat, and Gratzke, Michael
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- 2024
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3. Community-based participatory research for ageing in the right place : developments in concepts, theory, methods, and practice to address housing inequality for older adults
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Fang, Mei Lan, Woolrych, Ryan, and McWilliams, Chris
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This thesis by publication critiques existing ageing-in-place concepts and discusses the need for a community-led, participatory approach to create effective housing solutions for older adults. It is argued that current understandings of ageing-in-place may perpetuate housing inequality through the dominant view that all older adults can live happily at home for as long as possible. Existing housing strategies developed in pursuance of ageing-in-place are limited by a lack of important theoretical and methodological insight necessary for acquiring in-depth holistic understandings of the place-based needs of older adults towards ageing well in the right place. To fully understand the experience of older adults' everyday lives as they age-in-place necessitates a collaborative research approach. Such an approach facilitates the active participation of the community and individuals directly impacted by the housing redevelopment process. This thesis introduces and discusses complexities that surround the housing development process for older adults. It consists of five published papers interlinked by an affordable housing redevelopment project in western Canada. These papers focused on: (1) a necessary progression towards ageing in the right place concepts; (2) the importance of collaborative, narrative and creative methods for developing age-friendly housing; (3) theoretical development of an intersectional place perspective; and, (4) the value of knowledge translation mechanisms to create a pathway towards real world impact. The papers present conceptual, theoretical, and methodological developments and contributions that are guided by a critical, community-based participatory research approach. They discuss the value of a community-based participatory research (CBPR) approach for the co-creation of effective place-based housing solutions for older adults. The application of CBPR principles helped shape the selection and implementation of methods as well as informed a new theoretical perspective that bridges place theories in Gerontology together with intersectional feminism.
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- 2020
4. Aging in the Right Place : Participatory and Community Mapping for Collaborative Working and Knowledge Co-Creation
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Fang, Mei Lan, Sixsmith, Judith, Canham, Sarah L., Woolrych, Ryan, and Liamputtong, Pranee, editor
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- 2022
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5. Correction: Equity in AgeTech for Ageing Well in Technology-Driven Places: The Role of Social Determinants in Designing AI-based Assistive Technologies
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Rubeis, Giovanni, Fang, Mei Lan, and Sixsmith, Andrew
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- 2022
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6. Equity in AgeTech for Ageing Well in Technology-Driven Places: The Role of Social Determinants in Designing AI-based Assistive Technologies
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Rubeis, Giovanni, Fang, Mei Lan, and Sixsmith, Andrew
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- 2022
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7. Understanding the functionality of housing-related support services through mapping methods and dialogue
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Canham, Sarah L., Fang, Mei Lan, Battersby, Lupin, and Wada, Mineko
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- 2019
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8. Defining organizational contributions to sustaining an ageing workforce: a bibliometric review
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Nagarajan, N Renuga, Wada, Mineko, Fang, Mei Lan, and Sixsmith, Andrew
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- 2019
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9. A protocol for co-creating research project lay summaries with stakeholders: guideline development for Canada’s AGE-WELL network
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Wada, Mineko, Sixsmith, Judith, Harwood, Gail, Cosco, Theodore D., Fang, Mei Lan, and Sixsmith, Andrew
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- 2020
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10. Ageing well in the right place: partnership working with older people
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Sixsmith, Judith, Fang, Mei Lan, Woolrych, Ryan, Canham, Sarah L., Battersby, Lupin, and Sixsmith, Andrew
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- 2017
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11. Place-making with older persons: Establishing sense-of-place through participatory community mapping workshops
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Fang, Mei Lan, Woolrych, Ryan, Sixsmith, Judith, Canham, Sarah, Battersby, Lupin, and Sixsmith, Andrew
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- 2016
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12. Integrating sense of place within new housing developments: a community-based participatory research approach
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Fang, Mei Lan, author, Sixsmith, Judith, author, Woolrych, Ryan, author, Canham, Sarah L., author, Battersby, Lupin, author, Ren, Tori Hui, author, and Sixsmith, Andrew, author
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- 2018
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13. Ambient Assisted Living Technologies for Aging Well: A Scoping Review
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Blackman Stephanie, Matlo Claudine, Bobrovitskiy Charisse, Waldoch Ashley, Fang Mei Lan, Jackson Piper, Mihailidis Alex, Nygård Louise, Astell Arlene, and Sixsmith Andrew
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ambient assisted living ,gerontechnology ,intelligent systems ,mild cognitive impairment ,91c99 ,Science ,Electronic computers. Computer science ,QA75.5-76.95 - Abstract
Ambient assisted living (AAL) technology is of considerable interest in supporting the independence and quality of life of older adults. As such, it is a core focus of the emerging field of gerontechnology, which considers how technological innovation can aid health and well-being in older age. For this scoping review, a comprehensive search of databases and key journals was conducted from January to April of 2013 in order to identify AAL technologies that have the potential to help deal with some of the challenges associated with aging. In particular, we focused on technologies that could potentially be used by people living with some degree of cognitive impairment, ranging from normal cognitive aging to mild cognitive impairment up to earlier stages of dementia. Options currently available and those still under development were both included in our search. Fifty-nine technologies were identified and are outlined here, along with a discussion of history of AAL from a gerontological perspective and related theoretical considerations.
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- 2016
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14. Contextual Factors for Aging Well: Creating Socially Engaging Spaces Through the Use of Deliberative Dialogues
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Canham, Sarah L, Fang, Mei Lan, Battersby, Lupin, Woolrych, Ryan, Sixsmith, Judith, Ren, Tori Hui, and Sixsmith, Andrew
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- 2018
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15. Enhancing Community Participation through Age-Friendly Ecosystems: A Rapid Realist Review.
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Sixsmith, Judith, Makita, Meiko, Menezes, Deborah, Cranwell, Marianne, Chau, Isaac, Smith, Mark, Levy, Susan, Scrutton, Pat, and Fang, Mei Lan
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- 2023
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16. Supporting intersecting cultural needs of gender and age by increasing cultural safety and humility for Housing First initiatives.
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Fang, Mei Lan, Canham, Sarah L., and Battersby, Lupin
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CULTURAL humility , *HOMELESS persons , *CULTURAL competence , *BUILT environment , *HOUSING , *SOCIAL services - Abstract
Background: To sufficiently house and support persons experiencing homelessness (PEH), deeper understandings of the cultural appropriateness and responsiveness of community resources and the service delivery system is essential. In the case of Metro Vancouver, Canada, the cultural appropriateness and responsiveness of Housing First as a service model for supporting PEH was explored. Methods: Local service providers and stakeholders (n = 52) participated in three full day service-mapping workshops to identify Housing First supports for older adults, youth, and women experiencing homelessness, as part of a municipal-wide participatory and action-oriented study. Data were analyzed using a structured framework thematic analysis approach and cultural safety and humility lenses. Results: We generated three key themes: (i) insufficient built environments create challenges across gender and age, (ii) cultural safety and humility concerns at the intersection of gender and age, and (iii) implications for a culturally-responsive Housing First implementation. Conclusions: Findings informed the development of a Culturally-Responsive Planning resource to support housing, health, and social service providers who are implementing Housing First initiatives. [ABSTRACT FROM AUTHOR]
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- 2023
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17. Rural Older Adults in Disasters: A Study of Recovery From Hurricane Michael.
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Fletcher, Patricia A., Worthen, Dreamal L., McSweeney-Feld, Mary Helen, Gibson, Allison, Seblova, Dominika, Pagán, Lisandra, Troya, M. Isabela, Fang, Mei Lan, Owusu, Brenda, Lane, Charlene, Wada, Mineko, Harrell, Erin R., and Viana, Aline
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HURRICANE Michael, 2018 ,OLDER people - Abstract
Objective: This study aims for a greater understanding of how older adults (age 65 and older) in Jackson County, Florida, are prepared for and cope with the effects of a natural disaster. Methods: A multidisciplinary, international research team developed a survey examining: (1) resources available to individuals aged 65+ in rural communities for preparing for a disaster; (2) challenges they face when experiencing a disaster; and (3) their physical, social, emotional, and financial needs when it strikes. The survey was administered with older adults (65+) in Jackson County, Florida, following Hurricane Michael in 2018. The descriptive, multivariate logistic, and linear regression analyses were performed to examine the relationship between respondents' demographic information and needs, concerns, and consequences of disaster. Results: Results indicated (n = 139) rural community-dwelling older adults rely on social support, community organizations, and trusted disaster relief agencies to prepare for and recover from disaster-related events. Conclusions: Such findings can be used to inform the development of new interventions, programs, policies, practices, and tools for emergency management and social service agencies to improve disaster preparedness and resiliency among older populations in rural communities. [ABSTRACT FROM AUTHOR]
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- 2022
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18. An Exploration of Experiences of Transdisciplinary Research in Aging and Technology
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Wada, Mineko, Grigorovich, Alisa, Fang, Mei Lan, Sixsmith, Judith, and Kontos, Pia
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Erhebungstechniken und Analysetechniken der Sozialwissenschaften ,semi-structured interviews ,Sozialwissenschaften, Soziologie ,transdisciplinarity ,communication ,barriers ,aging and technology ,Altern(n) und Technologie ,Barrieren ,Kommunikation ,Praxis ,Teamforschung ,Transdisziplinarität ,promising practices ,team science ,teilstrukturierte Interviews ,thematic analysis ,thematische Analyse ,010501 environmental sciences ,01 natural sciences ,Forschungsarten der Sozialforschung ,Methods and Techniques of Data Collection and Data Analysis, Statistical Methods, Computer Methods ,03 medical and health sciences ,0302 clinical medicine ,Research Design ,ddc:300 ,lcsh:H1-99 ,030212 general & internal medicine ,lcsh:Social sciences (General) ,Social sciences, sociology, anthropology ,0105 earth and related environmental sciences - Abstract
Transdisciplinary research (TDR) involves academics/scientists collaborating with stakeholders from diverse disciplinary and sectoral backgrounds. While TDR has been recognized as beneficial in generating innovative solutions to complex social problems, knowledge is limited about researchers' perceptions and experiences of TDR in the aging and technology field. We conducted a qualitative study to address this knowledge gap by exploring how members of a pan-Canadian research network on aging and technology perceived and experienced TDR. Thirty members participated in semi-structured interviews. Interview data were analyzed thematically. Participants identified benefits that can be gained from implementing TDR, including mutual learning, improved capacity to understand and solve problems, and community engagement and empowerment. Participants also identified challenges to implementing TDR: communication issues and conflicting priorities among team members; tensions between traditional and TDR approaches; and difficulties identifying partners and developing partnerships. In addition, contradictions between TDR principles and participants' understanding of them became apparent. Nevertheless, some participants described successful strategies for implementing transdisciplinary principles in their projects: stakeholder engagement; language and goal sharing; and open, respectful communication. We offer recommendations to support TDR in aging and technology that focus on education and reform of the culture and values that can constrain efforts to practice TDR., Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, Vol 21, No 1 (2020): Qualitative Content Analysis II
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- 2020
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19. Cross-National Perspectives on Aging and Place: Implications for Age-Friendly Cities and Communities.
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Woolrych, Ryan, Sixsmith, Judith, Duvvuru, Jamuna, Portella, Adriana, Fang, Mei Lan, Menezes, Deborah, Henderson, James, Fisher, Jenny, and Lawthom, Rebecca
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SOCIAL support ,RESEARCH methodology ,COMMUNITIES ,POPULATION geography ,INTERVIEWING ,AGING ,INTERPROFESSIONAL relations ,METROPOLITAN areas ,THEMATIC analysis ,ADULT education workshops - Abstract
Background and Objectives The age-friendly cities and communities (AFCC) agenda has led to a range of policy initiatives aimed at supporting aging in place for older people. While there is case study evidence of how people age across urban contexts, there has been little research exploring cross-national understandings of age-friendly places among older people. The objective of this article is to identify the place experiences of older people living across cities and communities in India, Brazil, and the United Kingdom and to discuss implications for the AFCC agenda. Research Design and Methods A total of 300 semistructured interviews were undertaken with older people across 9 cities and 27 communities in India, Brazil, and the United Kingdom. The data were analyzed using thematic analysis undertaken by each national team and then discussed and revised at collaborative workshops with researchers from each of the 3 country teams. Results The data capture the ways in which place is constructed from the perspective of older people drawing upon social, community, and cultural dimensions of aging across diverse urban environments. We explore how older people negotiate place in the context of their everyday life and identify the relational and interconnected ways in which place attachment, belonging, and identity are constructed. Discussion and Implications Age-friendly interventions need to attend to the changing physical, social and cultural dimensions of aging and place. Integrated place-making practices are required to support older people to age in the right place across rapidly transforming urban contexts globally. [ABSTRACT FROM AUTHOR]
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- 2022
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20. The effectiveness of interventions for reducing stigma related to substance use disorders: a systematic review
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Livingston, James D., Milne, Teresa, Fang, Mei Lan, and Amari, Erica
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- 2012
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21. A scoping review exploration of the intended and unintended consequences of eHeath on older people : a health equity impact assessment
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Fang, Mei Lan, Siden, Ellie, Korol, Anastasia, Demestihas, Marie-Anne, Sixsmith, Judith, and Sixsmith, Andrew
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ikääntyminen ,health services administration ,health care facilities, manpower, and services ,terveydenhuolto ,education ,aging and technology ,teknologia ,eHealth ,scoping review ,health equity impact assessment ,health care economics and organizations ,older adults ,ikääntyneet - Abstract
eHealth is one perceived mechanism to extend the range and reach of limited health-care resources for older adults. A decade-scoping review (2007–2017) was conducted to systematically search and synthesize evidence to understand the intended and unintended consequences of eHealth initiatives, informed by a health equity impact assessment framework. Scoping review sources included international academic and grey literature on eHealth initiatives (e.g., eHealth records, telemedicine/telecare, and mobile eHealth application) focused on the varying needs of older adults (aged 60+), particularly individuals experiencing sociocultural and economic difficulties. Findings suggest that eHealth has several potential benefits for older adults, but also the possibility of further excluding already marginalized groups, thereby exacerbating existing health disparities. Ongoing evaluation of eHealth initiatives for older adults is necessary and requires attention to unique individual-level, socioeconomic, and cultural characteristics to heighten benefits and better capture both the intended and unintended outcomes of advanced eHealth systems. peerReviewed
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- 2018
22. Perceptions of home in long-term care settings: before and after institutional relocation.
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Wada, Mineko, Canham, Sarah L., Battersby, Lupin, Sixsmith, Judith, Woolrych, Ryan, Fang, Mei Lan, and Sixsmith, Andrew
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AUTONOMY (Psychology) ,INSTITUTIONAL care ,INTERPERSONAL relations ,INTERVIEWING ,LONG-term health care ,RESEARCH methodology ,MEDICAL ethics ,NURSING home residents ,NURSING home employees ,PRIVACY ,PSYCHOLOGICAL stress ,WORK environment ,QUALITATIVE research ,RELOCATION ,FAMILY relations ,HOME environment ,PSYCHOSOCIAL factors ,THEMATIC analysis - Abstract
Although moving from institutional to home-like long-term care (LTC) settings can promote and sustain the health and wellbeing of older adults, there has been little research examining how home is perceived by older adults when moving between care settings. A qualitative study was conducted over a two-year period during the relocation of residents and staff from an institutional LTC home to a purpose-built LTC home in Western Canada. The study explored perceptions of home amongst residents, family members and staff. Accordingly, 210 semi-structured interviews were conducted at five time-points with 35 residents, 23 family members and 81 staff. Thematic analyses generated four superordinate themes that are suggestive of how to create and enhance a sense of home in LTC settings: (a) physical environment features; (b) privacy and personalisation; (c) autonomy, choice and flexibility; and (d) connectedness and togetherness. The findings reveal that the physical environment features are foundational for the emergence of social and personal meanings associated with a sense of home, and highlight the impact of care practices on the sense of home when the workplace becomes a home. In addition, tension that arises between providing care and creating a home-like environment in LTC settings is discussed. [ABSTRACT FROM AUTHOR]
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- 2020
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23. Aging gracefully across environments using technology to support wellness, engagement and long life (AGE-WELL): a national research network in technology and aging
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Sixsmith, Andrew, Mihailidis, Alex, Sixsmith, Judith, Fang, Mei Lan, and Battersby, Lupin
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- 2016
24. Exploring Privilege in the Digital Divide: Implications for Theory, Policy, and Practice.
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Fang, Mei Lan, Canham, Sarah L, Battersby, Lupin, Sixsmith, Judith, Wada, Mineko, and Sixsmith, Andrew
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ELDER care , *COMPUTER literacy , *COMPUTERS , *CONCEPTUAL structures , *INFORMATION technology , *SYSTEMATIC reviews , *INFORMATION literacy , *DIGITAL divide , *COMMUNITY support , *GOVERNMENT policy , *ACCESS to information , *OLD age - Abstract
Background and Objectives The digital revolution has resulted in innovative solutions and technologies that can support the well-being, independence, and health of seniors. Yet, the notion of the "digital divide" presents significant inequities in terms of who accesses and benefits from the digital landscape. To better understand the social and structural inequities of the digital divide, a realist synthesis was conducted to inform theoretical understandings of information and communication technologies (ICTs); to understand the practicalities of access and use inequities; to uncover practices that facilitate digital literacy and participation; and to recommend policies to mitigate the digital divide. Research Design and Methods A systematic search yielded 55 articles published between 2006 and 2016. Synthesis of existing knowledge, combined with user-experience elicited through a deliberative dialogue session with community stakeholders (n = 35), made visible a pattern of privilege that determined individual agency in ICT access and use. Results Though age is consistently centralized as the key determinant of the digital divide, our analyses, which encompassed both van Dijk's resources and appropriation theory and intersectionality, appraised this notion and revealed that age is not the sole determinant. Findings highlight the role of other factors that contribute to digital inequity among community-dwelling middle-aged (45–64) and older (65+) adults, including education, income, gender, and generational status. Discussion and Implications Informed by results of a realist synthesis that was guided by intersectional perspectives, a conceptual framework was developed outlining implications for theory, policy, and practice to address the wicked problem that is the digital divide. [ABSTRACT FROM AUTHOR]
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- 2019
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25. End-‐of-‐life care beliefs values, practices and support needs of Chinese women living in the UK: A Cultural Safety approach
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Fang, Mei Lan
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End-of-life care requires attention to mental health, religious practices and beliefs, and health care systems and supports to help individuals cope with the process of aging, coming to terms with death and dying and to help family members and loved ones cope with bereavement. To date, there is limited research examining end of life care and the needs of Chinese people in the UK. Understanding end-of-life care expectations in relation to this population is important for informing the development of new health policy and service initiatives, given that there are currently over 1 million Chinese people living in the UK. The purpose of this study is to explore the mental health, religious practices and beliefs, and services and support systems required by this community to cope with end-of-life and bereavement. In July 2011, Wai Yin Chinese Women’s Society in Manchester, UK conducted fourteen semi-structured in-depth interviews with a group of Chinese migrants (primarily women working within the margins of UK’s formal economy) to explore end-of-life care issues. The current study performed a secondary analysis of these transcripts focusing only on the stories of the eleven Chinese women. The women participants were recruited as a part of Wai Yin’s Sunshine Project, which aimed to assist Chinese migrants in improving their knowledge and understandings of their employment and immigration rights (in the UK) and to help them learn the English language. Main findings are presented in eleven broad-based themes: acculturation, culturally specific services, death and dying, Eastern practices and beliefs, gendered effects, health and health care, hereafter, language and communication, obligations versus duties and responsibilities, personal choices, and Western practices and beliefs.
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- 2013
26. Senior Services that Support Housing First in Metro Vancouver.
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Canham, Sarah L., Battersby, Lupin, Fang, Mei Lan, Wada, Mineko, Barnes, Rebecca, and Sixsmith, Andrew
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DISCRIMINATION (Sociology) ,HOMELESSNESS ,CULTURAL pluralism ,RESEARCH funding ,TRANSPORTATION ,GOVERNMENT aid ,THEMATIC analysis ,DATA analysis software ,MEDICAL coding ,DESCRIPTIVE statistics ,FIELD notes (Science) - Abstract
Housing First is a model and philosophy for housing homeless people in immediate and permanent housing. In order to implement and deliver Housing First, research is essential to understand the system of support services as they currently exist. Guided by principles of community-based participatory research, this paper presents the findings from a senior-focused deliberative dialogue workshop in Metro Vancouver, Canada. Participants (16 service providers and 1 service recipient) identified services and resources available to support seniors in maintaining housing and barriers and facilitators for accessing services. Broadly, data were organized into seven themes: (1) Housing; (2) Home support; (3) Transportation; (4) Information availability, accessibility, and navigation; (5) Cultural diversity; (6) Discrimination; and (7) Funding and financial support. Results found that affordable housing that adapts to changing health conditions, income supports, health services, homecare, transportation, and culturally appropriate and nondiscriminatory informational resources are among the supports most needed for persons as young as 50 years old to succeed under the Housing First model in Metro Vancouver. Barriers to Housing First service provision, including rigid eligibility criteria for chronically and episodically homeless, should be revised to better support the growing number of older adults who are newly entering homelessness in Metro Vancouver. [ABSTRACT FROM AUTHOR]
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- 2018
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27. From Familiar Faces to Family: Staff and Resident Relationships in Long-Term Care.
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Canham, Sarah L., Battersby, Lupin, Fang, Mei Lan, Sixsmith, Judith, Woolrych, Ryan, and Sixsmith, Andrew
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MEDICAL personnel ,ATTITUDE (Psychology) ,HEALTH facilities ,INTERVIEWING ,LONG-term health care ,PATIENT-professional relations ,NURSING care facilities ,NURSING home employees ,SENSORY perception ,THEMATIC analysis - Abstract
Objective: Long-term care (LTC) facilities are increasingly intent on creating a “homelike” atmosphere for residents. Although residential staff are integral to the construction of a home within LTC settings, their perceptions have been relatively absent from the literature. Method: Thirty-two LTC staff participants were interviewed about their experiences and perceptions of the physical environment and conceptualizations of home, and thematic analyses were conducted. Results: An overarching category—interpersonal relationships—emerged from our analyses emphasizing the importance of relationships in creating a homelike environment within institutional settings. Sub-themes that inform our understanding include the following: (a) Staff members’ perceptions of home; (b) “Their second home”: Adjustment to and familiarity in LTC; and (c) “We become family”: Relationality makes a home. Discussion: The study provides evidence to inform current policies and practices in LTC. Specifically, enough time and space should be given to residents and staff to create and maintain personal relationships to make residential care homelike. [ABSTRACT FROM AUTHOR]
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- 2017
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28. Informing Understandings of Mild Cognitive Impairment for Older Adults: Implications From a Scoping Review.
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Fang, Mei Lan, Coatta, Katherine, Badger, Melissa, Wu, Sarah, Easton, Margaret, Nygård, Louise, Astell, Arlene, and Sixsmith, Andrew
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The development of effective interventions for mild cognitive impairment (MCI) in older adults has been limited by extensive variability in the conceptualization and definition of MCI, its subtypes, and relevant diagnostic criteria within the neurocultural, pharmaceutical, and gerontological communities. A scoping review was conducted to explore the conceptual development of MCI and identify the resulting ethical, political, and technological implications for the care of older adults with MCI. A comprehensive search was conducted between January and April 2013 to identify English-language peer-reviewed articles published between 1999 and 2013. Our analysis revealed that the MCI conceptual debate remains unresolved, the response to ethical issues is contentious, the policy response is limited, and one-dimensional and technological interventions are scarce. Reflections on the conceptual, ethical, and policy responses in conjunction with the identification of the needs of older adults diagnosed with MCI highlight significant opportunities for technological interventions to effectively reposition MCI in the aging care discourse. [ABSTRACT FROM AUTHOR]
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- 2017
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29. A knowledge synthesis of culturally- and spiritually-sensitive end-of-life care: findings from a scoping review.
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Mei Lan Fang, Sixsmith, Judith, Sinclair, Shane, Horst, Glen, and Fang, Mei Lan
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TERMINAL care ,QUALITY of service ,CULTURAL pluralism ,SOCIAL support ,MINORITIES ,RELIGIOUS diversity ,TERMINAL care & psychology ,CULTURE ,DECISION making ,ETHNOPSYCHOLOGY ,FAMILIES ,POPULATION ,SPIRITUALITY ,SYSTEMATIC reviews - Abstract
Background: Multiple factors influence the end-of-life (EoL) care and experience of poor quality services by culturally- and spiritually-diverse groups. Access to EoL services e.g. health and social supports at home or in hospices is difficult for ethnic minorities compared to white European groups. A tool is required to empower patients and families to access culturally-safe care. This review was undertaken by the Canadian Virtual Hospice as a foundation for this tool.Methods: To explore attitudes, behaviours and patterns to utilization of EoL care by culturally and spiritually diverse groups and identify gaps in EoL care practice and delivery methods, a scoping review and thematic analysis of article content was conducted. Fourteen electronic databases and websites were searched between June-August 2014 to identify English-language peer-reviewed publications and grey literature (including reports and other online resources) published between 2004-2014.Results: The search identified barriers and enablers at the systems, community and personal/family levels. Primary barriers include: cultural differences between healthcare providers; persons approaching EoL and family members; under-utilization of culturally-sensitive models designed to improve EoL care; language barriers; lack of awareness of cultural and religious diversity issues; exclusion of families in the decision-making process; personal racial and religious discrimination; and lack of culturally-tailored EoL information to facilitate decision-making.Conclusions: This review highlights that most research has focused on decision-making. There were fewer studies exploring different cultural and spiritual experiences at the EoL and interventions to improve EoL care. Interventions evaluated were largely educational in nature rather than service oriented. [ABSTRACT FROM AUTHOR]- Published
- 2016
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30. Exploring traditional end-of-life beliefs, values, expectations, and practices among Chinese women living in England: Informing culturally safe care.
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MEI LAN FANG, MALCOE, LORRAINE HALINKA, SIXSMITH, JUDITH, YUEN MING WONG, LOUISE, CALLENDER, MATTHEW, Fang, Mei Lan, and Wong, Louise Yuen Ming
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TERMINAL care & psychology ,FAMILIES & psychology ,TERMINAL care ,ACCULTURATION ,FAMILIES ,GENDER identity ,HEALTH attitudes ,HOME care services ,INTERVIEWING ,LANGUAGE & languages ,SPIRITUALITY ,TRANSCULTURAL medical care ,QUALITATIVE research ,ATTITUDES toward death ,COMMUNICATION barriers ,STANDARDS - Abstract
Objective: This study explores the end-of-life (EoL) beliefs, values, practices, and expectations of a select group of harder-to-reach Chinese women living in England.Method: A cultural safety approach was undertaken to interpret 11 in-depth, semistructured interviews. Interviews were conducted in Mandarin and Cantonese. Transcripts were translated and back-translated by two researchers. Findings were analyzed using the technical analytical principles of grounded theory.Results: The key themes generated from our analysis include: acculturation; differential beliefs and norms in providing care: family versus health services; language and communication; Eastern versus Western spiritual practices and beliefs; and dying, death, and the hereafter.Significance Of Results: End-of-life discussions can be part of an arduous, painful, and uncomfortable process, particularly for migrants living on the margins of society in a new cultural setting. For some Chinese people living in the United Kingdom, end-of-life care requires attention to acculturation, particularly Western versus Eastern beliefs on religion, spirituality, burial practices, and provision of care, and the availability of culturally specific care, all of which encompass issues related to gender. Stories of a purposive sample of Chinese women were viewed through a cultural safety lens to gain a deeper understanding of how social and cultural norms and expectations, in addition to the pressures of acculturation, impact gendered roles and responsibilities. The analysis revealed variations between/within Eastern and Western culture that resulted in pronounced, and oftentimes gendered, differences in EoL care expectations. [ABSTRACT FROM AUTHOR]- Published
- 2015
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31. Experiencing 'pathologized presence and normalized absence'; understanding health related experiences and access to health care among Iraqi and Somali asylum seekers, refugees and persons without legal status.
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Mei Lan Fang, Sixsmith, Judith, Lawthom, Rebecca, Mountian, Ilana, Shahrin, Afifa, and Fang, Mei Lan
- Subjects
IRAQI refugees ,SYRIAN refugees ,HEALTH services accessibility ,REFUGEES ,OTHER (Philosophy) ,SOCIAL marginality ,LEGAL status of refugees ,FOCUS groups ,HEALTH attitudes ,MEDICAL ethics ,MEDICAL referrals ,NOMADS ,PHYSICIAN-patient relations ,PRIVACY ,PSYCHOLOGY of refugees ,TRANSLATIONS ,QUALITATIVE research ,CULTURAL competence ,PSYCHOLOGY - Abstract
Background: Asylum seekers, refugees and persons without legal status have been reported to experience a range of difficulties when accessing public services and supports in the UK. While research has identified health care barriers to equitable access such as language difficulties, it has not considered the broader social contexts of marginalization experienced through the dynamics of 'othering'. The current study explores health and health care experiences of Somali and Iraqi asylum seekers, refugees and persons without legal status, highlighting 'minoritization' processes and the 'pathologization' of difference as analytical lenses to understand the multiple layers of oppression that contribute to health inequities.Methods: For the study, qualitative methods were used to document the lived experiences of asylum seekers, refugees and persons without legal status. Thirty-five in-depth interviews and five focus groups were used to explore personal accounts, reveal shared understandings and enable social, cognitive and emotional understandings of on-going health problems and challenges when seeking treatment and care. A participatory framework was undertaken which inspired collaborative workings with local organizations that worked directly with asylum seekers, refugees and persons without legal status.Results: The analysis revealed four key themes: 1) pre-departure histories and post-arrival challenges; 2) legal status; 3) health knowledges and procedural barriers as well as 4) language and cultural competence. Confidentiality, trust, wait times and short doctor-patient consultations were emphasized as being insufficient for culturally specific communications and often translating into inadequate treatment and care. Barriers to accessing health care was associated with social disadvantage and restrictions of the broader welfare system suggesting that a re-evaluation of the asylum seeking process is required to improve the situation.Discussions: Macro- and micro-level intersections of accustomed societal beliefs, practices and norms, broad-level legislation and policy decisions, and health care and social services delivery methods have affected the health and health care experiences of forced migrants that reside in the UK. Research highlights how 'minoritization processes,' influencing the intersections between social identities, can hinder access to and delivery of health and social services to vulnerable groups. Similar findings were reported here; and the most influential mechanism directly impacting health and access to health and social services was legal status.Conclusions: Equitable health care provision requires systemic change that incorporate understandings of marginalization, 'othering' processes and the intersections between the past histories and everyday realities of asylum seekers, refugees and persons without legal status. [ABSTRACT FROM AUTHOR]- Published
- 2015
- Full Text
- View/download PDF
32. Exploring Promising Gender-Sensitive Tobacco and Alcohol Use Interventions: Results of a Scoping Review.
- Author
-
Fang, Mei Lan, Gerbrandt, Julieta, Liwander, Anna, and Pederson, Ann
- Subjects
- *
ALCOHOLISM , *HEALTH promotion , *SEX distribution , *SMOKING , *TOBACCO , *WOMEN'S health , *HEALTH equity - Abstract
This review examined the breadth of gender-sensitive tobacco and alcohol interventions that target girls and women. A comprehensive review of databases and websites was conducted in 2011/2012 for interventions that focused on girls and women health, incorporated an understanding of sex and/or gender, engaged with the determinants of women's health, and sought to reduce gender-related social and health inequities. Results of the review suggest that interventions designed with an understanding of the effect of gender roles, norms, and behaviors on women's health are limited and that much work remains to encourage practitioners to use a gender-sensitive approach when designing interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2014
- Full Text
- View/download PDF
33. Access to and waiting time for psychiatrist services in a Canadian urban area: a study in real time.
- Author
-
Goldner EM, Jones W, Fang ML, Goldner, Elliot M, Jones, Wayne, and Fang, Mei Lan
- Abstract
Objective: To obtain improved quality information regarding psychiatrist waiting times by use of a novel methodological approach in which accessibility and wait times are determined by a real-time patient referral procedure.Method: An adult male patient with depression was referred for psychiatric assessment by a family physician. Consecutive calls were made to all registered psychiatrists (n = 297) in Vancouver. A semistructured call procedure was used to collect information about the psychiatrists' availability for receipt of this and similar referrals, identify factors that affect psychiatrist accessibility, and determine the availability of cognitive-behavioural therapy (CBT).Results: Efforts were made to contact 297 psychiatrists and 230 (77%) were reached successfully. Among the 230 psychiatrists contacted, 160 (70%) indicated that they were unable to accept the referral. Although 70 (30%) indicated that they might be able to consider accepting a referral, 64 (91% of those who would consider accepting the referral) indicated that they would need to review detailed, written referral information and could not provide estimates of the length of wait times if the patient was to be accepted. Only 6 (3% of the 230 psychiatrists contacted) offered immediate appointment times and their wait times ranged from 4 to 55 days. When asked whether they could provide CBT, most (56%) psychiatrists in clinical practice answered maybe.Conclusions: Substantial barriers exist for family physicians attempting to refer patients for psychiatric referral. Consolidated efforts to improve access to psychiatric assessment are needed. [ABSTRACT FROM AUTHOR]- Published
- 2011
34. Intergenerationality in the Context of Age-Friendly Cities and Communities: Older people’s Experiences and Perspectives on Place and Community Living in the UK.
- Author
-
Sixsmith, Judith, Woolrych, Ryan, Loret, Hannah, Makita, Meiko, and Fang, Mei Lan
- Subjects
- *
OLDER people , *AGE groups , *CITIES & towns , *COMMUNITY involvement , *COMMUNITY life , *MENTORING , *AGEISM - Abstract
Intergenerational communities can be understood as communities where multiple age groups interact, feel valued, and contribute to community life in an inclusive way. However, older adults in many communities in the UK can be excluded from intergenerational mixing. The PlaceAge project undertook interviews, photo-diaries, community mapping workshops, and knowledge cafés to explore older adult experiences of and participation in their cities and communities. Three key themes were generated, showcasing intergenerationality: (1) Connectedness in place and space; (2) Feeling old in siloed communities; and (3) Play in everyday life. This research emphasizes the importance of inclusive and accessible intergenerational places and activities that foster sustainable social connections and combat ageism. It highlights the value of playfulness, skill-sharing and co-mentoring, and advocates for the importance of incorporating intergenerational opportunities into the planning and development of age-friendly cities and communities. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
35. Predicting City Transportation Vehicles Using GM(1,1) with Strengthening Buffer Operators.
- Author
-
Cui, Jie, Ma, Hong yan, Yang, Xiang yang, and Fang, Mei lan
- Abstract
The smoothness of data sequence in time series forecasting has a significant impact on predictive accuracy. How to improve the modeling accuracy of a prediction model has become a very important academic issue. According to the theory of buffer operators, on the basis of the existing research results of strengthening buffer operators, we proposed a novel model building strengthening buffer operators. The problem that there are some contradictions between quantitative analysis and qualitative analysis in pretreatment for vibration data sequences is resolved effectively. An example demonstration shows that the new strengthening buffer operators presented in this paper can remarkably enhance the precision of GM(1,1)model. [ABSTRACT FROM PUBLISHER]
- Published
- 2012
- Full Text
- View/download PDF
36. Association of Early Interventions With Birth Outcomes and Child Linear Growth in Low-Income and Middle-Income Countries: Bayesian Network Meta-analyses of Randomized Clinical Trials.
- Author
-
Park, Jay J. H., Fang, Mei Lan, Harari, Ofir, Dron, Louis, Siden, Ellie G., Majzoub, Reham, Jeziorska, Virginia, Thorlund, Kristian, Mills, Edward J., and Bhutta, Zulfiqar A.
- Published
- 2019
- Full Text
- View/download PDF
37. Smoking, pregnancy and stigma in England: Challenges of an incentivised smoking cessation programme
- Author
-
Callender, Matthew, Fang, Mei Lan, Sixsmith, Judith, and Huber, Jorg
- Subjects
HV5746 ,RG627.6.T6 ,RG940 ,R726.7
38. Incentivised smoking cessation intervention with pregnant women: findings from a pilot program in Northamptonshire, UK
- Author
-
Fang, Mei Lan, Callender, Matthew, Sixsmith, Judith, and Huber, Jorg
- Subjects
HV5746 ,RG627.6.T6 ,RG940 ,R726.7 - Abstract
Smoking is understood as the primary cause of preventable morbidity and premature death in the UK. In Northamptonshire, UK, the rate of smoking among adults was 20.9% (approximately 144,607 people) in 2011/12. Among pregnant women, compared to the national average (13.2%), the rate of smoking at time of delivery was higher in Northamptonshire (16%) in 2011/12. In terms of smoking cessation programs during pregnancy, incentivised smoking cessation schemes have been more frequently utilised when attempting to reduce rates of smoking among pregnant women. While smoking cessation interventions broadly accounted for a 6% increase in late-pregnancy abstinence rates compared to control interventions, only those that contained an incentivised component showed a significantly larger effect (RR 0.76, 95% CI 0.71 to 0.81). This paper presents preliminary findings of an incentivised smoking cessation pilot intervention in Northamptonshire which aimed to recruit 50 pregnant women who smoke and evaluate the feasibility of the incentive programme in terms of its: uptake of stop smoking services; numbers of those setting a quit date; effectiveness to reduce smoking following referral to stop smoking services (i.e. 4 weeks after quit date); effectiveness to reduce smoking status at delivery and the psychosocial outcomes of incentivised smoking cessation programs for pre- and post-natal women. This research applied a mixed quantitative and qualitative approach to assess the aggregated effectiveness of the program (through cross-sectional analysis) and understand individual-level positive and negative experiences of the program (through storytelling and in-depth interviews). We will report initial results (data collection currently underway) that will include baseline profile data and uptake of the incentive programme. It is important to note that gendered roles and experiences may make it more difficult for some women to access treatment and support for smoking cessation, given the heightened stigma surrounding smoking during pregnancy and mothers who smoke. This presentation will, therefore, also emphasize findings that report gendered influences on smoking such as partner influence, socioeconomic impact of lone-motherhood and individual, societal and structural stigma surrounding mothers that smoke.
39. Case study: co-creating NANA (Novel Assessment of Nutrition and Ageing) with older adults living at home
- Author
-
Astell, Arlene J., Adlam, Tim, Hwang, Faustina, Williams, Liz, Sixsmith, Andrew, Sixsmith, Judith, Mihailidis, Alex, and Fang, Mei Lan
- Abstract
Older people face a high risk of nutrient deficiencies and malnutrition, which increases risk of sarcopenia (loss of muscle mass and strength) and other health- related problems. Avoiding late-life malnutrition is dependent on a number of factors including physical, mental, and cognitive health. Monitoring all of these factors and the interactions between them is challenging, especially for people living at home. Dietary intake, for example, has traditionally used pen and paper recall and recording of what people eat (e.g., food log, food diary), which relies heavily on memory. In addition, gold standard measures of cognition are designed for one-off assessment, administered by a trained clinician or researcher. Developing an accessible tool that older people can use at home on a daily basis to monitor what they eat and drink, their mood, cognition, and physical activity could reassure them how they are doing and provide early detection of emerging problems.
- Published
- 2021
40. Co-production methods in health research
- Author
-
Deborah I. Fels, Arlene Astell, Sixsmith, Andrew, Sixsmith, Judith, Mihailidis, Alex, and Fang, Mei Lan
- Subjects
Service (business) ,Knowledge management ,Health innovation ,business.industry ,media_common.quotation_subject ,Participatory design ,Production (economics) ,Business ,Creativity ,Productivity ,media_common ,Interactive Learning ,User-centered design - Abstract
Successful health innovation requires more than the creation of a new treatment, service, or technology. It also involves gaining an understanding of the needs of the intended recipients or users of the innovation and the environment in which the innovation is going to be introduced. Innovating with the intended users or recipi- ents of new health products is crucial for maximizing the chances of adoption and uptake of new ideas and technologies. Such co-production requires careful planning and facilitation to ensure productive partnerships and involvement of all parties affected by the health innovation. This chapter contains key ideas to help research- ers co-produce health innovations with intended recipients or users of new products or services:\ud • Prerequisites for co-production.\ud • Determining appropriate user-centered methods.\ud • Collecting and analyzing the data.\ud • Integrating results into design.
- Published
- 2021
41. Co-creating inclusive spaces and places: Towards an intergenerational and age-friendly living ecosystem.
- Author
-
Fang ML, Sixsmith J, Hamilton-Pryde A, Rogowsky R, Scrutton P, Pengelly R, Woolrych R, and Creaney R
- Subjects
- United States, Humans, Child, Preschool, Child, Adolescent, Young Adult, Adult, Middle Aged, Aged, Aged, 80 and over, Aging, Ecosystem, COVID-19 epidemiology
- Abstract
Introduction: Evolving aging societies, ongoing digitalisation and circumstances of COVID-19 are changing living conditions for growing older. There is an increased urgency to view public health with a focus on integrating people of all ages into the matrix of opportunities afforded in their communities. This study initiates the conceptualization of an intergenerational, age-friendly living ecosystem (AFLE) to enhance public health planning., Methodology: A participatory study was conducted using a multi-methods approach. Six virtual co-creation sessions ( n = 35-50 participants), alongside a mainly open-ended INTERGEN survey designed specifically for this study ( n = 130) were conducted to conceptualize multilevel ideas for building intergenerational age-friendly places using Bronfenbrenner's ecological systems model. At the height of COVID-19, virtual applications (Zoom, Moodboard) and case studies, creative methods (drawing, photography, storytelling and spotlight sessions) were applied to engage academic and non-academic participants between ages 5 - 80+ years, across eight countries. Sessions were video-recorded with visual themes captured by a graphic facilitator. The survey covered issues of multigenerational interactions; intergenerational and age-friendly place features; place safety; and necessary stakeholders required for creating intergenerational and age-friendly places. Data were reflexively analyzed using a team approach to thematic analysis., Results: Findings present both the thematic analysis of Virtual Co-creation Camps (VCCs) and the INTERGEN survey results. These findings are addressed in three overarching categories that highlight the necessary characteristics of AFLEs as suggested by the VCC participants and survey respondents: (i) Sensory factors: feeling and emotion as starting points for physical design; (ii) Physical and digital factors in designing AFLE spaces and places; and (iii) Socio-cultural factors: tackling ageism and exclusion as part of the solution., Discussion: The analysis resulted in a pathway toward enhanced understandings on how multi-generations can better interact with fluctuating organizational domains (industry, voluntary, academic and public sectors) in urban and rural settings to facilitate intergenerational connectivity. Through processes of co-creation, an AFLE proof of concept and roadmap for public health planning was developed to support and provide opportunities for people as they age to reap the socioeconomic benefits of their local and virtual communities and help them become well integrated, valued and contributory members of society., Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest., (Copyright © 2023 Fang, Sixsmith, Hamilton-Pryde, Rogowsky, Scrutton, Pengelly, Woolrych and Creaney.)
- Published
- 2023
- Full Text
- View/download PDF
42. Future of digital health and community care: Exploring intended positive impacts and unintended negative consequences of COVID-19.
- Author
-
Fang ML, Walker M, Wong KLY, Sixsmith J, Remund L, and Sixsmith A
- Subjects
- British Columbia, Humans, Pandemics, United Kingdom, COVID-19
- Abstract
Response to COVID-19 has both intentionally and unintentionally progressed the digitization of health and community care, which can be viewed as a human rights issue considering that access to health and community care is a human right. In this article, we reviewed two cases of digitization of health and community care during the pandemic; one in Scotland, United Kingdom and another in British Columbia, Canada. An integrated analysis revealed that digitization of health and community care has intended positive and unintended negative consequences. Based on the analysis, we suggest five areas of improvement for equity in care: building on the momentum of technology advantages; education and digital literacy; information management and security; development of policy and regulatory frameworks; and the future of digital health and community care. This article sheds light on how health practitioners and leaders can work to enhance equity in care experiences amid the changing digital landscape.
- Published
- 2022
- Full Text
- View/download PDF
43. Rural Older Adults in Disasters: A Study of Recovery From Hurricane Michael.
- Author
-
Fletcher PA, Worthen DL, McSweeney-Feld MH, Gibson A, Seblova D, Pagán L, Troya MI, Fang ML, Owusu B, Lane C, Wada M, Harrell ER, and Viana A
- Abstract
Objective: This study aims for a greater understanding of how older adults (age 65 and older) in Jackson County, Florida, are prepared for and cope with the effects of a natural disaster., Methods: A multidisciplinary, international research team developed a survey examining: (1) resources available to individuals aged 65+ in rural communities for preparing for a disaster; (2) challenges they face when experiencing a disaster; and (3) their physical, social, emotional, and financial needs when it strikes. The survey was administered with older adults (65+) in Jackson County, Florida, following Hurricane Michael in 2018. The descriptive, multivariate logistic, and linear regression analyses were performed to examine the relationship between respondents' demographic information and needs, concerns, and consequences of disaster., Results: Results indicated (n = 139) rural community-dwelling older adults rely on social support, community organizations, and trusted disaster relief agencies to prepare for and recover from disaster-related events., Conclusions: Such findings can be used to inform the development of new interventions, programs, policies, practices, and tools for emergency management and social service agencies to improve disaster preparedness and resiliency among older populations in rural communities.
- Published
- 2021
- Full Text
- View/download PDF
44. A knowledge synthesis of culturally- and spiritually-sensitive end-of-life care: findings from a scoping review.
- Author
-
Fang ML, Sixsmith J, Sinclair S, and Horst G
- Subjects
- Canada, Family ethnology, Humans, Racial Groups ethnology, Racial Groups psychology, Social Support, Cultural Characteristics, Decision Making, Ethnicity psychology, Spirituality, Terminal Care methods, Terminal Care psychology
- Abstract
Background: Multiple factors influence the end-of-life (EoL) care and experience of poor quality services by culturally- and spiritually-diverse groups. Access to EoL services e.g. health and social supports at home or in hospices is difficult for ethnic minorities compared to white European groups. A tool is required to empower patients and families to access culturally-safe care. This review was undertaken by the Canadian Virtual Hospice as a foundation for this tool., Methods: To explore attitudes, behaviours and patterns to utilization of EoL care by culturally and spiritually diverse groups and identify gaps in EoL care practice and delivery methods, a scoping review and thematic analysis of article content was conducted. Fourteen electronic databases and websites were searched between June-August 2014 to identify English-language peer-reviewed publications and grey literature (including reports and other online resources) published between 2004-2014., Results: The search identified barriers and enablers at the systems, community and personal/family levels. Primary barriers include: cultural differences between healthcare providers; persons approaching EoL and family members; under-utilization of culturally-sensitive models designed to improve EoL care; language barriers; lack of awareness of cultural and religious diversity issues; exclusion of families in the decision-making process; personal racial and religious discrimination; and lack of culturally-tailored EoL information to facilitate decision-making., Conclusions: This review highlights that most research has focused on decision-making. There were fewer studies exploring different cultural and spiritual experiences at the EoL and interventions to improve EoL care. Interventions evaluated were largely educational in nature rather than service oriented.
- Published
- 2016
- Full Text
- View/download PDF
45. Exploring traditional end-of-life beliefs, values, expectations, and practices among Chinese women living in England: Informing culturally safe care.
- Author
-
Fang ML, Malcoe LH, Sixsmith J, Wong LY, and Callender M
- Subjects
- Acculturation, Adult, China ethnology, Communication Barriers, Culturally Competent Care methods, England, Family psychology, Female, Gender Identity, Humans, Interviews as Topic, Language, Middle Aged, Qualitative Research, Spirituality, Terminal Care standards, Attitude to Death ethnology, Attitude to Health ethnology, Culturally Competent Care standards, Family ethnology, Home Care Services statistics & numerical data, Terminal Care psychology
- Abstract
Objective: This study explores the end-of-life (EoL) beliefs, values, practices, and expectations of a select group of harder-to-reach Chinese women living in England., Method: A cultural safety approach was undertaken to interpret 11 in-depth, semistructured interviews. Interviews were conducted in Mandarin and Cantonese. Transcripts were translated and back-translated by two researchers. Findings were analyzed using the technical analytical principles of grounded theory., Results: The key themes generated from our analysis include: acculturation; differential beliefs and norms in providing care: family versus health services; language and communication; Eastern versus Western spiritual practices and beliefs; and dying, death, and the hereafter., Significance of Results: End-of-life discussions can be part of an arduous, painful, and uncomfortable process, particularly for migrants living on the margins of society in a new cultural setting. For some Chinese people living in the United Kingdom, end-of-life care requires attention to acculturation, particularly Western versus Eastern beliefs on religion, spirituality, burial practices, and provision of care, and the availability of culturally specific care, all of which encompass issues related to gender. Stories of a purposive sample of Chinese women were viewed through a cultural safety lens to gain a deeper understanding of how social and cultural norms and expectations, in addition to the pressures of acculturation, impact gendered roles and responsibilities. The analysis revealed variations between/within Eastern and Western culture that resulted in pronounced, and oftentimes gendered, differences in EoL care expectations.
- Published
- 2015
- Full Text
- View/download PDF
46. Experiencing 'pathologized presence and normalized absence'; understanding health related experiences and access to health care among Iraqi and Somali asylum seekers, refugees and persons without legal status.
- Author
-
Fang ML, Sixsmith J, Lawthom R, Mountian I, and Shahrin A
- Subjects
- Confidentiality, Cultural Competency, Female, Focus Groups, Health Knowledge, Attitudes, Practice, Humans, Iraq ethnology, Male, Middle Aged, Physician-Patient Relations, Qualitative Research, Referral and Consultation, Somalia ethnology, Translating, Waiting Lists, Health Services Accessibility, Refugees legislation & jurisprudence, Refugees psychology, Transients and Migrants legislation & jurisprudence, Transients and Migrants psychology
- Abstract
Background: Asylum seekers, refugees and persons without legal status have been reported to experience a range of difficulties when accessing public services and supports in the UK. While research has identified health care barriers to equitable access such as language difficulties, it has not considered the broader social contexts of marginalization experienced through the dynamics of 'othering'. The current study explores health and health care experiences of Somali and Iraqi asylum seekers, refugees and persons without legal status, highlighting 'minoritization' processes and the 'pathologization' of difference as analytical lenses to understand the multiple layers of oppression that contribute to health inequities., Methods: For the study, qualitative methods were used to document the lived experiences of asylum seekers, refugees and persons without legal status. Thirty-five in-depth interviews and five focus groups were used to explore personal accounts, reveal shared understandings and enable social, cognitive and emotional understandings of on-going health problems and challenges when seeking treatment and care. A participatory framework was undertaken which inspired collaborative workings with local organizations that worked directly with asylum seekers, refugees and persons without legal status., Results: The analysis revealed four key themes: 1) pre-departure histories and post-arrival challenges; 2) legal status; 3) health knowledges and procedural barriers as well as 4) language and cultural competence. Confidentiality, trust, wait times and short doctor-patient consultations were emphasized as being insufficient for culturally specific communications and often translating into inadequate treatment and care. Barriers to accessing health care was associated with social disadvantage and restrictions of the broader welfare system suggesting that a re-evaluation of the asylum seeking process is required to improve the situation., Discussions: Macro- and micro-level intersections of accustomed societal beliefs, practices and norms, broad-level legislation and policy decisions, and health care and social services delivery methods have affected the health and health care experiences of forced migrants that reside in the UK. Research highlights how 'minoritization processes,' influencing the intersections between social identities, can hinder access to and delivery of health and social services to vulnerable groups. Similar findings were reported here; and the most influential mechanism directly impacting health and access to health and social services was legal status., Conclusions: Equitable health care provision requires systemic change that incorporate understandings of marginalization, 'othering' processes and the intersections between the past histories and everyday realities of asylum seekers, refugees and persons without legal status.
- Published
- 2015
- Full Text
- View/download PDF
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