15 results on '"Aline Gubrium"'
Search Results
2. Mind the Gaps: The Need for Inclusion of Male-Identified Voices in Adolescent Sexual and Reproductive Health
- Author
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Elizabeth Salerno Valdez, Luis Valdez, Eddie Gorry, Jazmine Chan, Saharra Dixon, Tiarra Fisher, Alya Simoun, Mira Weil, Camille Collins-Lovell, Justine Egan, and Aline Gubrium
- Subjects
Medicine - Abstract
Adolescent sexual and reproductive health (ASRH) inequities are well documented for historically excluded youth (i.e., youth of color, LGBTQIA+ youth, youth with disabilities, recently im/migrated youth) living in the U.S. Northeast. However, the lived experience of male-identifying young people from historically excluded backgrounds in ASRH remains largely unexamined. The purpose of this paper is to present findings related to male-identified perspectives on social constructions of sexuality, sexual and reproductive health, and sexuality education. A research team composed of two local youth-serving organizations, eight youth researchers, and university researchers, used Youth Participatory Action Research (YPAR) methods to examine how structural violence contributes to inequitable ASRH outcomes for historically excluded youth. Photovoice and community mapping were used as YPAR methods. We also completed individual interviews on the same topic with the youth and with 17 key stakeholders that either provide services to youth or are emerging adult service recipients. Community-driven data reveal two major themes around the silencing of male-identified voices in ASRH: lack of culture-centered and gender-expansive approaches for ASRH, and the subsequent toll of sexism and (cis)gendered social and educational norms on young people. Our findings highlight that sexuality education, cisgender hetero culture, and social norms have put the onus of responsibility on people identifying as women for sexual and reproductive health. An unintended consequence of that is that young people identifying as men may feel powerless and uninformed around their own SRH. Our findings illustrate the importance of using culture-centered and gender-transformative approaches to ASRH to address inequity.
- Published
- 2023
- Full Text
- View/download PDF
3. Uncovering Historical Legacies to Contextualize Health Inequities in Puerto Rican Men: An Expansion of the Minority Stress Model
- Author
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Luis A. Valdez, Anna Mullany, Marielena Barbieri, and Aline Gubrium
- Subjects
Latino health ,men's health ,minority stress ,health inequity ,thematic analysis ,Sociology (General) ,HM401-1281 - Abstract
BackgroundLow/no-income Latino men are disproportionately burdened by chronic disease morbidity and mortality, which is often compounded by persistent exposure to stress. Chronic stress is a key mediating factor in pathways linking macro-level socio-structural forces to micro-level behavioral factors with negative health outcomes. Being that Latinxs continue to be one of the fastest growing populations in the U.S., it is imperative to better understand the roots of stress pathways and explore multi-level interventions.MethodsThis study presents qualitative findings from in-depth interviews with Puerto Rican men (95%) living in Springfield, Massachusetts. We utilized the Minority Stress Model (MSM) first posited by Ilan Meyers, as a framework to understand stress and stress processes amongst Puerto Rican men. We mapped our data onto Meyers' MSM, which allowed us to find diverging themes and identify areas for expansion.ResultsAs expected, participants reported stress rooted in experiences of racism and prejudice, expectations of rejection, English-language acquisition, family relationships, insecure housing, precarious employment, and lack of resources. Nevertheless, the MSM did not account for the historical contexts that, as our findings indicate, are used to filter and understand their experiences with everyday stressors. Participants described and linked histories of colonial violence and movement and migration to their stress and community wellbeing.DiscussionFindings suggest the need to expand the current MSM and our conceptualization of the stress process to include historical understandings when contextualizing present-day stress and future interventions. We propose an expanded heuristic model that delineates the impact of distinctive historical trajectories that aid in interpreting racial health disparities amongst minoritized populations. Future multi-level interventions should give weight to highlighting history and how this impacts the present, in this case including the culpability of U.S. policy regarding Puerto Rico and the adverse health effects for Puerto Rican men on the mainland.
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- 2022
- Full Text
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4. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Aline Gubrium, Denise Leckenby, Megan Ward Harvey, Bess H. Marcus, Milagros C. Rosal, and Lisa Chasan-Taber
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Process evaluation ,Researchers’ perspective ,Hispanic ,Postpartum ,Qualitative ,Lifestyle intervention ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. Methods A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mamá and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Results Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Conclusions Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. Trial registration NCT01679210. Registered 5 September 2012; NCT01868230. Registered 4 June 2013.
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- 2019
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5. Shifting to Virtual CBPR Protocols in the Time of Corona Virus/COVID-19
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Elizabeth Salerno Valdez and Aline Gubrium
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Social sciences (General) ,H1-99 - Abstract
COVID-19 has upended community based participatory research (CBPR) projects across the United States and globally. COVID-19 disproportionately impacts historically disenfranchised communities and communities of color, the very communities that CBPR is meant to engage, elevate, and support. In-person activities that help develop rapport and research protocols, build capacity, conduct collaborative data collection and analysis, disseminate findings to the community, and engage in sustainability planning are an impossible practice during the COVID-19 pandemic. The purpose of this article is to describe the challenges and facilitators of shifting to a virtual/online CBPR protocol with a Massachusetts community disproportionately affected by COVID19, as a means to keep them engaged in the research process and to elevate their experiences, perspectives, and voices during this critical time. We include insights about how to facilitate recruitment and compensate community members, form a community advisory board (CAB), hold CAB meetings, and transition participatory qualitative data collection, analysis, and dissemination to a virtual/online framework.
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- 2020
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6. Participatory Action Research to Explore the Role of Structural Violence on Marginalized and Racialized Young Parents
- Author
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Elizabeth Valdez, Jazmine Chan, Saharra Dixon, Gray Davidson Carroll, Thupten Phuntsog, Elizabeth Delorme, Justine Egan, and Aline Gubrium
- Abstract
Structural inequities influence young parents' access to health care, housing, transportation, social support, education, and income. The current study adds to the extant literature by providing data directly obtained in collaboration with young parents to understand how structural violence affects the health and well-being of their families, ultimately resulting in community-driven policy recommendations developed in collaboration with the state health department. We engaged a diverse sample of young people--considered as community researchers in the project--including Black, Latinx, and/or LGBTQ+ pregnant and parenting young parents in a participatory action research (PAR) project in the spring of 2022 to explore their health and material needs while living in Springfield, Massachusetts. Together with young parents, we used participatory arts-based methods to conduct community and identity building, define research questions and photo prompts, conduct data collection (photos), engage in group thematic analysis, and take action at the state policy level. We also conducted individual semi-structured life-history interviews with the young parents. Participatory community-led findings indicate an urgent need for systemic change to increase access to safe and affordable housing; living-wage jobs; safe, high-quality, and affordable child care; and to bolster social support and disabilities services for young parents and their families. This participatory study funded by a state health department demonstrates that participatory community-driven data can have the power to mobilize community members and policy makers for social change if prioritized at the state and local levels. Additional practice-based implications include prioritizing participatory mentorship programs intended to aid young parents in navigating the complex systems that are vital to their survival.
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- 2024
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7. Outreach Strategies to Recruit Low-Income African American Men to Participate in Health Promotion Programs and Research: Lessons From the Men of Color Health Awareness (MOCHA) Project
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Louis F Graham DrPH, Lamont Scott, Erus Lopeyok, Henry Douglas, Aline Gubrium PhD, and David Buchanan DrPH
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Medicine - Abstract
African American men continue to bear a disproportionate share of the burden of disease. Engaging these men in health research and health promotion programs—especially lower-income, African American men who are vulnerable to chronic disease conditions such as obesity and heart disease—has historically proven quite difficult for researchers and public health practitioners. The few effective outreach strategies identified in the literature to date are largely limited to recruiting through hospital clinics, churches, and barbershops. The Men of Color Health Awareness (MOCHA) project is a grassroots, community-driven initiative that has developed a number of innovative outreach strategies. After describing these strategies, we present data on the demographic and health characteristics of the population reached using these methods, which indicate that MOCHA has been highly effective in reaching this population of men.
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- 2018
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8. The cascade of social determinants in producing chronic disease in low-income African-American men
- Author
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David Buchanan, Aline Gubrium, Lamont Scott, and Henry Douglas
- Subjects
health disparities ,african-american ,men’s health ,cultural competency ,Medicine (General) ,R5-920 - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
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- 2018
- Full Text
- View/download PDF
9. Perspectives of health educators and interviewers in a randomized controlled trial of a postpartum diabetes prevention program for Latinas: a qualitative assessment
- Author
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Milagros C. Rosal, Denise Leckenby, Aline Gubrium, Bess H. Marcus, Lisa Chasan-Taber, and Megan W Harvey
- Subjects
Adult ,Postnatal Care ,Lifestyle intervention ,medicine.medical_specialty ,Hispanic ,Health informatics ,Process evaluation ,law.invention ,Health administration ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Latina ,Randomized controlled trial ,law ,Pregnancy ,Postpartum ,Intervention (counseling) ,medicine ,Humans ,030212 general & internal medicine ,Randomised controlled trial ,business.industry ,030503 health policy & services ,Health Policy ,Nursing research ,Public health ,Health Educators ,lcsh:Public aspects of medicine ,Behavior change ,lcsh:RA1-1270 ,Hispanic or Latino ,Focus Groups ,Researchers’ perspective ,Focus group ,3. Good health ,Diabetes, Gestational ,Diabetes Mellitus, Type 2 ,Evaluation Studies as Topic ,Family medicine ,Female ,0305 other medical science ,business ,Qualitative ,Risk Reduction Behavior ,Research Article - Abstract
Lifestyle interventions regularly rely on study staff to implement the intervention and collect outcomes data directly from study participants. This study describes the experiences of project staff in two randomized controlled trials of a postpartum lifestyle intervention to reduce risk factors for type 2 diabetes in Latinas. Latinas are the fastest growing minority group in the U.S. and have the highest rates of type 2 diabetes after a diagnosis of gestational diabetes mellitus. The challenges of implementing lifestyle interventions for postpartum women have been poorly documented. A qualitative focus group was conducted with eight staff members (five health educators and three health interviewers) involved in Proyecto Mama and Estudio Parto. The discussion was audio recorded, transcribed, and coded in NVivo. Focus group topics included: 1) participant recruitment, 2) participant retention, 3) implementation of the lifestyle intervention, 4) assessment of behavior change, 5) overall challenges and rewarding aspects of the trial, and 6) recommended changes for future trials. Key themes emerged regarding enabling factors and barriers to implementing a lifestyle intervention in postpartum Latinas. Enabling factors included: a) the staff’s belief in the importance of the intervention, b) opportunities associated with the longitudinal nature of the trial, c) belief that the staff could empower participants to make behavior change, d) benefits of flexible intervention sessions, and e) connection with participants due to shared cultural backgrounds. Barriers included: a) participant stressors: home, food, and financial insecurity, b) low health literacy, c) issues related to recent immigration to the continental U.S., d) handling participant resistance to behavior change, e) involvement of family members in assessment visits, f) limitations of the assessment tools, and g) time limitations. Findings highlight the challenging contexts that many study participants face, and shed light on the potentially influential role of health educators and interviewers in intervention implementation and data collection. Specific recommendations are made for strategies to improve adherence to diabetes prevention programs in postpartum underserved and minority populations in this challenging, transitional period of life. NCT01679210 . Registered 5 September 2012; NCT01868230 . Registered 4 June 2013.
- Published
- 2019
- Full Text
- View/download PDF
10. Precarious Work, Health, and African-American Men: A Qualitative Study on Perceptions and Experiences
- Author
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Anna Mullany, Luis A. Valdez, Aline Gubrium, and David Buchanan
- Subjects
Employment ,Male ,Economic growth ,Health Policy ,media_common.quotation_subject ,Precarious Employment ,Neoliberalism ,Article ,United States ,Black or African American ,In depth interviews ,Work (electrical) ,Political science ,Perception ,Income ,African american men ,Precarious work ,Humans ,Qualitative Research ,media_common ,Qualitative research - Abstract
Precarious work has steadily grown in the United States since the rise of neoliberal policies. The continued expansion of this type of work has led to precarious employment as a recognized category within social determinants of health work and to a growing literature within public health research. African-American men are disproportionately vulnerable to precarious work, which in turn contributes to adverse health effects. Nevertheless, African-American men’s experiences of employment and the perceived impact on their well-being remain underexplored. This study was part of the formative exploratory phase of a 5-year community-based participatory research project to examine the biopsychosocial determinants of stress among low/no-income, African-American men. Through thematic analysis of 42 semi-structured interviews, 3 themes emerged: ( a) occupational hazards and health, ( b) internalization of neoliberal ideology, and ( c) constraints of structural factors. Neoliberal economic policies cause material deprivation and exacerbate systemic injustices that disproportionately affect communities of color. The accompanying neoliberal ideology of personal responsibility shapes men’s perceptions of success and failure. Public health research must continue to push against health promotion practices that predominantly focus on individual behavior. Rather than exploring only the granularities of individual behaviors, health problems must be examined through prolonged historical, political, economic, and social disenfranchisement.
- Published
- 2020
11. The cascade of social determinants in producing chronic disease in low-income African-American men
- Author
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Lamont Scott, David Buchanan, Aline Gubrium, and Henry Douglas
- Subjects
Adult ,Male ,Social Determinants of Health ,men’s health ,media_common.quotation_subject ,Developmental psychology ,03 medical and health sciences ,cultural competency ,0302 clinical medicine ,Cynicism ,Empirical Studies ,Humans ,030212 general & internal medicine ,Social determinants of health ,Poverty ,Qualitative Research ,media_common ,Aged ,African-American ,Hierarchy ,lcsh:R5-920 ,030505 public health ,Health Policy ,1. No poverty ,Health Status Disparities ,Middle Aged ,Health equity ,United States ,Black or African American ,Issues, ethics and legal aspects ,Chronic disease ,Attitude ,Unemployment ,Chronic Disease ,Income ,Fundamentals and skills ,Health disparities ,0305 other medical science ,Psychology ,lcsh:Medicine (General) ,Gerontology ,Cultural competence - Abstract
Purpose: There is a dearth of effective, evidence-based programs to reduce chronic disease in low-income African-American men. We report on the results of formative research in the National Institutes of Health (NIH)-funded MOCHA Moving Forward project on factors identified by the participants to drive health disparities. Methods: Based on individual interviews with 42 middle-aged (40–65 years), low-income African-American men, three themes emerged. Results: First, the results indicate a hierarchy in the perceived relative influence of different factors, with poverty and unemployment perceived to have the most powerful affects. Second, results show that factors in different domains do not operate as discrete independent influences, but rather, interact synergistically. Finally, the findings show how perceived social structural constraints have produced deep cynicism about the future, with notably divergent reactions, producing a sense that there is almost nothing an individual can do, or paradoxically, a greater the sense of personal responsibility. Conclusion: The implications of addressing the cascade of social determinants to reduce chronic disease in African-American men are discussed.
- Published
- 2018
12. Participatory Visual and Digital Methods
- Author
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Aline Gubrium, Krista Harper, Aline Gubrium, and Krista Harper
- Subjects
- Visual anthropology--Methodology, Visual sociology--Methodology, Video recording in ethnology, Motion pictures in ethnology, Digital media, Ethnology--Research, SOCIAL SCIENCE / Methodology, SOCIAL SCIENCE / Research, SOCIAL SCIENCE / Anthropology / Cultural
- Abstract
Gubrium and Harper describe how visual and digital methodologies can contribute to a participatory, public-engaged ethnography. These methods can change the traditional relationship between academic researchers and the community, building one that is more accessible, inclusive, and visually appealing, and one that encourages community members to reflect and engage in issues in their own communities. The authors describe how to use photovoice, film and video, digital storytelling, GIS, digital archives and exhibits in participatory contexts, and include numerous case studies demonstrating their utility around the world.
- Published
- 2016
13. Participatory Visual and Digital Research in Action
- Author
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Aline Gubrium, Krista Harper, Marty Otañez, Aline Gubrium, Krista Harper, and Marty Otañez
- Subjects
- Motion pictures in ethnology--Case studies, Research, Ethnology, Visual anthropology--Case studies, Visual sociology--Case studies, Video recording in ethnology--Case studies
- Abstract
This collection of original articles, a companion to the authors'Participatory Visual and Digital Methods, illustrates how innovative visual and digital research techniques are being used in various field projects in health care, environmental policy, urban planning, education and youth development, and heritage management settings. These methodologies produce rich visual and narrative data guided by participant interests and priorities, key tools for collaborative work. The 16 chapters-include digital storytelling, PhotoVoice, community-based filmmaking, participatory mapping and GIS, and participatory digital archival research;-provide a portfolio of model research projects for researchers who wish to collaborate on community-based studies;-will appeal to an audience across social science, heritage, health, education, and social service fields.An open-access companion website will allow readers to view the research products presented in each contributor's chapter.
- Published
- 2015
14. Realizing reproductive health equity needs more than Long-Acting Reversible Contraception (LARC)
- Author
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Sonya Borrero, Gretchen Sisson, Diana Romero, Aline Gubrium, Zakiya Luna, Katrina Kimport, Dorothy E. Roberts, Jessica Fields, Kristin Luker, Christine Dehlendorf, Jenny A. Higgins, Laura Mamo, Arline T. Geronimus, Anu Manchikanti Gomez, Emily S. Mann, and Lisa H. Harris
- Subjects
Gerontology ,medicine.medical_specialty ,Population ,Long-acting reversible contraception ,Intrauterine device ,03 medical and health sciences ,0302 clinical medicine ,Pregnancy ,Reproductive rights ,medicine ,AJPH Perspectives ,Humans ,030212 general & internal medicine ,Sociology ,Healthcare Disparities ,education ,Reproductive health ,education.field_of_study ,030219 obstetrics & reproductive medicine ,business.industry ,Public health ,Public Health, Environmental and Occupational Health ,Equity (finance) ,Reproductive Health ,Family planning ,Family medicine ,Female ,business - Abstract
In a recent Editors Choice column in the American Journal of Public Health Northridge and Coupey1 advocate the increased use of long-acting reversible contraception (LARC) specifically the intrauterine device and the implant as a means to achieve reproductive health equity. They reference the American Academy of Pediatrics recommendation which states that these methods should be considered "first-line contraceptive choices" for adolescents and young adults.2 (Am J Public Health. Published online ahead of print November 12 2015: e1-e2. doi:10.2105/AJPH.2015.302900).
- Published
- 2016
- Full Text
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15. Strategic Authenticity and Voice: New Ways of Seeing and Being Seen as Young Mothers through Digital Storytelling
- Author
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Aline Gubrium, Elizabeth L. Krause, and Kasey Jernigan
- Subjects
Health (social science) ,Digital storytelling ,Sociology and Political Science ,business.industry ,Public relations ,Social constructionism ,Social justice ,Structural violence ,Article ,Gender Studies ,Embodied cognition ,Meaning-making ,Road map ,Psychology ,business ,Social psychology ,Storytelling - Abstract
This paper presents the Ford Foundation-funded Hear Our Stories: Diasporic Youth for Sexual Rights and Justice project, which explores the subjective experience of structural violence and the ways young parenting Latinas embody and respond to these experiences. We prioritize uprooted young parenting Latinas, whose material conditions and cultural worlds have placed them in tenuous positions, both socially constructed and experientially embodied. Existing programs and policies focused on these women fail to use relevant local knowledge and rarely involve them in messaging efforts. This paper offers a practical road map for rendering relevant and modifying notions of voice as a form of knowledge with the potential to disrupt authoritative knowledge. We present the context and method behind the four digital storytelling workshops that served as a venue for transforming assumptions about young parenting women and producing novel understandings of teen pregnancy and parenting. We end by suggesting an intervention for what we call “strategic authenticity” as it plays out in storytelling, meaning making, and voice, and implications for policy concerned with social justice and equity.
- Published
- 2014
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