Search

Much of the knowledge and information needed for enabling high-quality clinical research is stored in free-text format. Natural language processing (NLP) has been used to extract information from these sources at scale for several decades. This paper aims to present a comprehensive review of clinical NLP for the past 15 years in the UK to identify the community, depict its evolution, analyse methodologies and applications, and identify the main barriers. We collect a dataset of clinical NLP projects (n = 94; £ = 41.97 m) funded by UK funders or the European Union's funding programmes. Additionally, we extract details on 9 funders, 137 organisations, 139 persons and 431 research papers. Networks are created from timestamped data interlinking all entities, and network analysis is subsequently applied to generate insights. 431 publications are identified as part of a literature review, of which 107 are eligible for final analysis. Results show, not surprisingly, clinical NLP in the UK has increased substantially in the last 15 years: the total budget in the period of 2019–2022 was 80 times that of 2007–2010. However, the effort is required to deepen areas such as disease (sub-)phenotyping and broaden application domains. There is also a need to improve links between academia and industry and enable deployments in real-world settings for the realisation of clinical NLP's great potential in care delivery. The major barriers include research and development access to hospital data, lack of capable computational resources in the right places, the scarcity of labelled data and barriers to sharing of pretrained models. [ABSTRACT FROM AUTHOR]

This paper investigates the inherent inaccuracy in the estimation of various extreme response variables (RVs) for different sea defence structures using joint exceedance curve approaches in common use around the UK. Utilising stochastically generated nearshore datasets that include extreme wave and sea-level conditions determined at regular intervals around the English coastline as part of a previous study, and asset information from the Environment Agency's Asset Information Management System database, this paper assesses 592 sea defence structures and their associated extreme response using different joint exceedance curve approaches when compared against the RV approach. This paper highlights that extreme RVs are often underestimated when using a joint exceedance curve approach, which in many cases can be significant. This suggests that the performance of many sea defence structures are incorrectly estimated. As a consequence, joint exceedance curve approaches may under-design sea defence structures to a greater level than previously indicated, or significantly underestimate extreme RVs when assessing the performance of existing structures. [ABSTRACT FROM AUTHOR]

Communicating and engaging with children is a foundational component of child care social work practice, but all too frequently, in the wake of serious incidents, it is the focus of criticism. Drawing on findings from a large‐scale ESRC‐funded research project conducted in the four U.K. nations, this paper explores, through a psychosocial analytic lens, how social workers anticipate, enact and reflect on their encounters with both children and their families. Close analysis of what social workers said about their practice alongside what they were observed to do in practice revealed perceptions, patterns and processes of communication that, first, minimize emotions and the complexity of the professional task and second, overly privilege verbal interaction. Drawing on Sennett's (2012) ideas this paper offers a reconceptualisation of this professional task, from a communicative to a co‐operative one. It affords and creates a space in which social workers can develop more attuned communicative practices that include rituals, gestures and the minimal use of force. The theoretical insights and evidence‐informed practice recommendations arising from this research have conceptual significance for the social work discipline and practical significance for the child care social work profession, across national and international contexts. [ABSTRACT FROM AUTHOR]

Purpose The purpose of this paper is to describe the development of a digital tool in an English county striving towards a vision of integrated information that is used to underpin an increasingly integrated future of health and social care delivery.Design/methodology/approach It discusses the policy context nationally, the origins and implementation of the initiative, the authors’ experiences and viewpoint highlighting key challenges and learning, as well as examples of new work undertaken.Findings In all, 12 health and care organisations have participated in this project. The ability for local commissioners and providers of services to now understand “flow” both between and within services at a granular level is unique. Costs are modest, and the opportunities for refining and better targeting as well as validating services are significant, thus demonstrating a return on investment. Key learning includes how organisational development was equally as important as the implementation of innovative new software, that change management from grass roots to strategic leaders is vital, and that the whole system is greater than the sum of its otherwise in-silo parts.Practical implications Data linkage initiatives, whether local, regional or national in scale, need to be programme managed. A robust governance and accountability framework must be in place to realise the benefits of such as a solution, and IT infrastructure is paramount.Social implications Organisational development, collaborative as well as distributed leadership, and managing a change in culture towards health and care information is critical in order to create a supportive environment that fosters learning across organisational boundaries.Originality/value This paper draws on the recent experience of achieving large-scale data integration across the boundaries of health and social care, to help plan and commission services more effectively. This rich, multi-agency intelligence has already begun to change the way in which the system considers service planning, and learning from this county’s approach may assist others considering similar initiatives. [ABSTRACT FROM AUTHOR]

Purpose – The purpose of this paper is to describe a "scientometric" analysis of a sample of research output in Physics taken from the institutional repository of the University of Strathclyde ("Strathprints"). The documents in this sample were authored over the period 2000-2005 but were deposited in the repository during the period from publication up to 2007. The paper aims to analyse these data bibliometrically. Design/methodology/approach – Use was more of open access logs for Strathprints which describe the number of downloads per document, revealing how many countries cite and download each document, and analysing the factors that influence the number of citations and downloads per document. The documents retrieved in Strathprints are described by a variety of indicators delineating levels of activity, collaboration and visibility, which in turn are analysed in order to discern patterns characteristic of the repository. Findings – The number of documents in this open access repository has increased during the period under consideration, as has the number of authors, centres and countries per document. In terms of institutional origin, unsurprisingly Scottish institutions occupy first or final position in 94 per cent of the total documents. Documents published in 2000 (the earliest documents in the repository) are the most cited. There is a positive correlation between the number of citations and downloads and the number of distinct countries that cite and download. The most cited and downloaded types of documents are articles; post-prints are the most downloaded type of publication. There is no relationship between the journals with the highest average of citations per document in web of science (WoS) and those with the highest number of citations in Strathprints. Originality/value – Institutional respositories (IRs) are a relatively new phenomenon in the digital library world. Not much in depth analysis of IR statistics has been undertaken to date, so this study is an important attempt to contribute to this new area of research. [ABSTRACT FROM AUTHOR]

Background: Educating doctors is expensive and poor performance by future graduates can literally cost lives. Whilst the practice of medicine is highly evidence based, medical education is much less so. Research on medical school selection, undergraduate progression, Fitness to Practise (FtP) and postgraduate careers has been hampered across the globe by the challenges of uniting the data required. This paper describes the creation, structure and access arrangements for the first UK-wide attempt to do so. Overview: A collaborative approach has created a research database commencing with all entrants to UK medical schools in 2007 and 2008 (UKMED Phase 1). Here the content is outlined, governance arrangements considered, system access explained, and the potential implications of this new resource discussed. The data currently include achievements prior to medical school entry, admissions tests, graduation point information and also all subsequent data collected by the General Medical Council, including FtP, career progression, annual National Training Survey (NTS) responses, career choice and postgraduate exam performance data. UKMED has grown since the pilot phase with additional datasets; all subsequent years of students/trainees and stronger governance processes. The inclusion of future cohorts and additional information such as admissions scores or bespoke surveys or assessments is now being piloted. Thus, for instance, new scrutiny can be applied to selection techniques and the effectiveness of educational interventions. Data are available free of charge for approved studies from suitable research groups worldwide. Conclusion: It is anticipated that UKMED will continue on a rolling basis. This has the potential to radically change the volume and types of research that can be envisaged and, therefore, to improve standards, facilitate workforce planning and support the regulation of medical education and training. This paper aspires to encourage proposals to utilise this exciting resource. [ABSTRACT FROM AUTHOR]

Purpose – It is clear that libraries consider the use of data to inform decision making a top priority in the next five years. JISC's considerable work on activity data has highlighted the lack of tools and services for libraries to exploit this data. The purpose of this paper is to explore the potential of a shared analytics service for UK academic libraries and introduce the JISC Library Analytics and Metrics Project. The project aims to help libraries effectively management collections and services as well as delivering pre-emptive indicators and “actionable insights” to help identify new trends, personalise services and improve efficiencies, economies and effectiveness (student attainment and satisfaction and institutional reputation, for example). The project builds on the Library Impact Data Project at the University of Huddersfield and the work of the Copac Activity Data and Collections Management tools. The paper will deliver a case study of the project, its progress to date, the challenges of such an approach and the implications the service has for academic libraries. Design/methodology/approach – The paper will be a case study of the project and its institutional partners and early adopters work to date and explore both the technical and cultural challenges of the work as well as its implications for the role of the library within the institution and the services it provides. Specifically the case study will comprise of the following aspects: a brief history of the work and the context of library analytics services in the UK (and internationally). A description of the approach adopted by the project, and the vision and goals of the project. Exploration of the challenges associated with the project. Outline of the implications of the project and the resultant service. Findings – This paper will report on the initial findings of the project, which will run from January to December 2013. In particular it will consider the issues surfaced through the close engagement with the academic library community (through the projects community advisory and planning group) and the institutional early adopters around data gathering and analysis. Practical implications – Data accumulated in one context has the potential to inform decisions and interventions elsewhere. While there are a number of recognised and well-understood use cases for library analytics these tend to revolve around usage and collection management. Yet, the potential of a shared analytics service is in uncovering those links and indicators across diverse data sets. The paper will consider a number of practical impacts: performance – benchmarking, student attainment and research productivity; design – fine tuning services, personalised support; trends – research landscape, student marketplace, utilisation of resources. The case study will explore these practical implications for libraries and what they mean for the future of the library within the academy. Originality/value – The paper will present a case study of a unique service that currently fills an important gap within the library analytics space. The paper will focus on the services potential to transform both the way the library works and how it is perceived by its users, as well as its role and relationship within the broader institution. [ABSTRACT FROM AUTHOR]

This paper offers an illustrative example to demonstrate one way of combining qualitative methods. The context for the study was a UK inpatient psychiatric hospital. Data set one was collected from weekly ward rounds where inpatient staff met with autistic patients to review medication, listen to patient concerns and make plans or adjustments in light of this. Data set two was reflective discursive interviews with patients and staff. The research objective was to critically consider the potential reasons for discrepancies in dissatisfaction reports from patients in the interviews, compared to relative compliance exhibited by patients in the ward rounds. Utilising a video‐reflexive design and critical discursive psychology approach, both data sets were analysed together. It is possible to simultaneously analyse two different data sets, one naturally occurring and one researcher generated because of the epistemological congruence in the overall design. We have presented an argument for the benefits of mixing two qualitative methods, thereby extending the mixed‐methods evidence base beyond the traditional discussions of quantitative and qualitative paradigms. [ABSTRACT FROM AUTHOR]

Aim(s) A discussion paper on the United Kingdom ( UK) National Health Service ( NHS) market reforms. Background NHS market reforms reliance on management science methods introduced a fundamental shift in measuring care for commissioning. Evaluation A number of key reports are discussed in relation to NHS market reforms and management science. Key issues NHS market reforms were influenced through a close alliance between policy makers, the department of health, free market think tanks and management consultancies. The timing of reforms coincided with reports on NHS failings and the evolution of measurement methods to focus on finance. Conclusions The balance in favour of measurement practises is of concern. Management science methods are criticised in the Francis Report yet promoted as the solution to some of the key findings; why may be explained by the close alliance. Implications for Nursing Management A return to principles of management involving consensus, trust and involvement to promote quality care and use management science methods to this end. [ABSTRACT FROM AUTHOR]

This paper examines the central place of the list and the associated concept of an identifier within the scaffolding of contemporary institutional order. These terms are deliberately chosen to make strange and help unpack the constitutive capacity of information systems and information technology within and between contemporary organizations. We draw upon the substantial body of work by John Searle to help understand the place of lists and identifiers in the constitution of institutional order. To enable us to ground our discussion of the potentiality and problematic associated with lists we describe a number of significant instances of list-making, situated particularly around the use of identifiers to refer to people, places, and products. The theorization developed allows us to better explain not only the significance imbued within lists and identifiers but the key part they play in form-ing the institutional order. We also hint at the role such symbolic artifacts play within breakdowns in institutional order. [ABSTRACT FROM AUTHOR]

Technological and organisational advances have increased the potential for remote access and proactive monitoring of the infrastructure in various domains and sectors – water and sewage, oil and gas and transport. Intelligent Infrastructure (II) is an architecture that potentially enables the generation of timely and relevant information about the state of any type of infrastructure asset, providing a basis for reliable decision-making. This paper reports an exploratory study to understand the concepts and human factors associated with II in the railway, largely drawing from structured interviews with key industry decision-makers and attachment to pilot projects. Outputs from the study include a data-processing framework defining the key human factors at different levels of the data structure within a railway II system and a system-level representation. The framework and other study findings will form a basis for human factors contributions to systems design elements such as information interfaces and role specifications. Practitioner Summary:The framework reported in this paper can become the basis for human factors guidance of engineers, developers and business analysts in developing appropriate levels of information display, automation and decision aid into rail II. Guidance will be aimed at the different functions and activities within multi-layered, multi-agent control. [ABSTRACT FROM AUTHOR]

The paper reports on the results of the project 'Evaluating the usage and impact of e-journals in the UK'. Using deep log analysis techniques, we evaluated the use of the Oxford Journals database in regard to life sciences, economics and history by 10 major UK research institutions. The aim of the study was to investigate researchers' digital behaviour, and to ascertain whether it varied by subjects and disciplines, or in relation to the institutions. The findings revealed significant subject and institutional differences. Life scientists were the biggest users. Economists made the greatest use of abstracts. Historians proved to be the most active searchers. Research intensive universities were characterized by high volume use and short session times, light sessions, and sessions which utilized few of the search functions available. Open access journals featured strongly in the ranked lists of life sciences and history; and Google was an extremely popular means of accessing journal content, especially so in the case of historians. [ABSTRACT FROM AUTHOR]

This paper discusses the issues and technical constraints that faced Shelter in their desire to extract intelligence from their donor database. Different options are discussed briefly, along with the rationale for deciding to develop an offline datamart. The paper also presents an explanation of the shortcomings of conventional relational database systems in relation to their use for data analysis, examines the difference between different types of offline data stores and explains the benefits achievable from the datamart solution. A description of Shelter's actual experience of designing, developing and using the datamart provides insights into the technical and other issues encountered, and demonstrates the effectiveness of the datamart as a fundraising tool. [ABSTRACT FROM AUTHOR]

Development of a clearer understanding of the causes and consequences of environmental change is an important issue globally. The consequent demand for objective, reliable and up-to-date environmental information has led to the establishment of long-term integrated environmental monitoring programmes, including the UK's Environmental Change Network (ECN). Databases form the core information resource for such programmes. The UK Environmental Change Network Data Centre manages data on behalf of ECN (as well as other related UK integrated environmental monitoring networks) and provides a robust and integrated system of information management. This paper describes how data are captured – through standardised protocols and data entry systems – as well more recent approaches such as wireless sensors. Data are managed centrally through a database and GIS. Quality control is built in at all levels of the system. Data are then made accessible through a variety of data access methods – through bespoke web interfaces, as well as third-party data portals. This paper describes the informatics approach of the ECN Data Centre which aims to develop a seamless system of data capture, management and data access interfaces to support research. [ABSTRACT FROM AUTHOR]

The purpose of this paper is to explore the value to librarians of seeing research data management as a ‘wicked’ problem. Wicked problems are unique, complex problems which are defined differently by different stakeholders making them particularly intractable. Data from 26 semi-structured in-depth telephone interviews with librarians was analysed to see how far their perceptions of research data management aligned with the 16 features of a wicked problem identified from the literature. To a large extent research data management is perceived to be wicked, though over time good practices may emerge to help to ‘tame’ the problem. How interviewees thought research data management should be approached reflected this realisation. The generic value of the concept of wicked problems is considered and some first thoughts about how the curriculum for new entrants to the profession can prepare them for such problems are presented. [ABSTRACT FROM AUTHOR]

Background/aims: Clinical trial oversight is central to the safety of participants and production of robust data. The United Kingdom Medical Research Council originally set out an oversight structure comprising three committees in 1998. The first committee, led by the trial team, is hands-on with trial conduct/operations ('Trial Management Group') and essential. The second committee (Data Monitoring Committee), usually completely independent of the trial, reviews accumulating trial evidence and is used by most later phase trials. The Independent Data Monitoring Committee makes recommendations to the third oversight committee. The third committee, ('Trial Steering Committee'), facilitates in-depth interactions of independent and non-independent trial members and gives broader oversight (blinded to comparative analysis). We investigated the roles and functioning of the third oversight committee with multiple research methods. We reflect upon these findings to standardise the committee's remit and operation and to potentially increase its usage. Methods: We utilised findings from our recent published suite of research on the third oversight committee to inform guideline revision. In brief, we conducted a survey of 38 United Kingdom–registered Clinical Trials Units, reviewed a cohort of 264 published trials, observed 8 third oversight committee meetings and interviewed 52 trialists. We convened an expert panel to discuss third oversight committees. Subsequently, we interviewed nine patient/lay third committee members and eight committee Chairs. Results: In the survey, most Clinical Trials Units required a third committee for all their trials (27/38, 71%) with independent members (ranging from 1 to 6). In the survey and interviews, the independence of the third committee was valued to make unbiased consideration of Independent Data Monitoring Committee recommendations and to advise on trial progress, protocol changes and recruitment issues in conjunction with the trial leadership. The third committee also advised funders and sponsors about trial continuation and represented patients and the public by including lay members. Of the cohort of 264 published trials, 144 reported a 'steering' committee (55%), but the independence of these members was not described so these may have been internal Trial Management Groups. Around two thirds of papers (60%) reported having an Independent Data Monitoring Committee and 26.9% neither a steering nor an Independent Data Monitoring Committee. However, before revising the third committee charter (Terms of Reference), greater standardisation is needed around defining member independence, composition, primacy of decision-making, interactions with other committees and the lifespan. Conclusion: A third oversight committee has benefits for trial oversight and conduct, and a revised charter will facilitate greater standardisation and wider adoption. [ABSTRACT FROM AUTHOR]

Background:Biobanking is the process of storing high quality human biospecimens alongside linked clinical data, for research purposes. The aim is to identify novel biomarkers with prognostic or diagnostic significance. However, the challenges implicit in the collection and storage of human tissue for research have curtailed the impact of this technique to date.Aim:This paper aims to summarise the challenges faced by biobanking within the ENT specialty in the UK, and to present protocols used for the routine collection, freezing and storage of tissue specimens at the Royal National Throat, Nose and Ear Hospital. These protocols could be used to guide other ENT departments (in the UK and worldwide) wishing to initiate the routine collection and storage of tissue samples. Their publication could also help to establish basic standards and ensure consistency in ENT tissue storage.Methods:Interviews conducted with industry experts, and a literature review of ‘best practice’ in biobanking.Conclusion:The ENT specialty must stay abreast of progress in human tissue research in order to ensure the best possible management of its patients. Our protocol for the routine banking of ENT tissue at the Royal National Throat, Nose and Ear Hospital could be used as a template for other ENT departments (in the UK and worldwide) to encourage widespread implementation of high quality tissue banking. [ABSTRACT FROM PUBLISHER]

The collection of perinatal data within Queensland, A ustralia, has traditionally been achieved via a paper form completed by midwives after each birth. Recently, with an increase in the use of e-health systems in healthcare, perinatal data collection has migrated to an online system. It is suggested that this move from paper to an ehealth platform has resulted in improvement to error rates, completion levels, timeliness of data transfer from healthcare institutions to the perinatal data collection and subsequent publication of data items. Worldwide, perinatal data are collected utilising a variety of methods, but essentially data are used for similar purposes: to monitor outcome patterns within obstetrics and midwifery. T his paper discusses current practice in relation to perinatal data collection worldwide and within Australia, with a specific focus on Queensland, highlights relevant issues for midwives, and points to the need for further research into the efficient use of an e-health platform for perinatal data collection. [ABSTRACT FROM AUTHOR]

Abstract: Automatic Vehicle Location (AVL) Systems are being introduced increasingly in many major cities around the world to improve the efficiency of our road-based passenger transport systems. Satellite-based location and communication systems, particularly the Global Positioning System (GPS) have been the platform for AVL systems which are now supporting real-time passenger information (RTPI), fleet management and operations (FMOs) and public transport priorities (PTPs), to name three key applications. The process of real-time on-board bus location can result in a substantial database where the progress of the bus is stored typically on a second-by-second basis. This is necessary for the primary real-time applications such as those listed above (e.g. RTPI, FMO and PTP). In addition, it is clear that such data could have an array of ‘secondary’ purposes, including use off-line for improving scheduling efficiency and for automatic performance monitoring, thus reducing or removing the need for manual on-street surveys. This paper looks at these and other innovative uses of AVL data for public transport, taking the recent iBus system in London as a current example of a modern AVL/GPS application in a capital city. It describes the data architecture and management in iBus and then illustrates two further examples of secondary data use – dwell time estimation and bus performance analysis. The paper concludes with a discussion of some key data management issues, including data quantity and quality, before drawing conclusions. [Copyright &y& Elsevier]

The article discusses the developments and other issues in the British Cartographic Society and the Ordnance Survey. It states that in order to build cartography's standing as a key player in both database design and data visualization, members should first begin by defining the society and its contributions to the success of the Ordnance Survey. It also states that for cartographers at Ordnance Survey to maintain their current renaissance, they must embrace emerging technologies and be proactive in researching opportunities in the field.

This paper investigates the impact of the Internet upon the UK second-hand and antiquarian book trade. Questionnaires were sent to all 681 UK members of the industry's largest and most prominent association (PBFA) and 355 responses were received. To ensure depth as well as breadth of knowledge, in-depth interviews were also conducted with ten companies. The results showed that, overall, e-commerce presents an opportunity rather than a threat to this traditional retailing sector. Pre-existing database management and distribution skills made the industry well suited to Internet trading. The number of companies trading on-line was five times greater than the UK industry average and the booksellers were highly satisfied with the results. Not only did 90 per cent of survey respondents with Web sites consider that their aims in setting them up had been met in whole or in part, but 20 per cent of respondents derived more than 30 per cent of their sales from Internet trading. Moreover, 68 per cent of on-line respondents stated that in their opinion their Web sites had resulted in overall business profits increasing. Predicted threats posed by the Internet such as reduced prices and margins, causing offence to existing customers and distribution system difficulties presented risks but could not outweigh the benefits of Internet trading. [ABSTRACT FROM AUTHOR]

Background: The range and scope of electronic health record (EHR) data assets in the UK has recently increased, which has been mainly in response to the COVID-19 pandemic. Summarising and comparing the large primary care resources will help researchers to choose the data resources most suited to their needs. Aim: To describe the current landscape of UK EHR databases and considerations of access and use of these resources relevant to researchers. Design & setting: Narrative review of EHR databases in the UK. Method: Information was collected from the Health Data Research Innovation Gateway, publicly available websites and other published data, and from key informants. The eligibility criteria were population-based open-access databases sampling EHRs across the whole population of one or more countries in the UK. Published database characteristics were extracted and summarised, and these were corroborated with resource providers. Results were synthesised narratively. Results: Nine large national primary care EHR data resources were identified and summarised. These resources are enhanced by linkage to other administrative data to a varying extent. Resources are mainly intended to support observational research, although some can support experimental studies. There is considerable overlap of populations covered. While all resources are accessible to bona fide researchers, access mechanisms, costs, timescales, and other considerations vary across databases. Conclusion: Researchers are currently able to access primary care EHR data from several sources. Choice of data resource is likely to be driven by project needs and access considerations. The landscape of data resources based on primary care EHRs in the UK continues to evolve. [ABSTRACT FROM AUTHOR]

This article argues that navigating the formalized, regulated and institutionalized data sharing landscape is challenging for researchers tasked with making qualitative data available for re-use. Archiving empirical material has progressively become a requirement enshrined in the policies of UK research institutions. Yet, how qualitative researchers feature – as data (co)creators and curators – within a process governed largely by quantitative data management strategies remains undocumented. Using examples from the ESRC Timescapes initiative, this article argues that to advance ethical practice in qualitative secondary analysis (QSA), data sharing policies and practices need to be re-framed to respect, value and care for the particularities of qualitative data and the emotional, intellectual and temporal investments made by qualitative researchers working in an increasingly pressurized Higher Education (HE) environment. Accordingly, ideas from the ethics of care literature are employed to propose areas where 'habits of care', attuned to the needs of qualitative researchers and data, can be fostered. [ABSTRACT FROM AUTHOR]

This research note reports on five online workshops by an international team of scholars, the authors, with shared interests in drug (mis)use. The workshops comprise a novel form of collective international qualitative secondary analysis (iQSA) exploring the possibilities for, and value of, qualitative data reuse across international contexts. These preparatory workshops comprise the preliminary stages of a longer programme of methodological development of iQSA, and we used them to identify what challenges there may be for translating evidence across international contexts, what strategies might be best placed to support or facilitate analytical engagement in this direction, and if possible, what empirical value such exchange might have. We discuss how working across international contexts involved the authors in new 'translational' work to address the challenges of establishing and sharing meaning. Such 'translation' entailed a modest degree of empirical engagement, namely, the casing of empirical examples from our datasets that supported an articulation of our various research studies, a collective interrogation of how, why and which such cases could be used for best translational effect and a collective reflexive engagement with how these cases generated new and novel questions that in turn re-engaged us with our own data in new ways. Descriptions of our datasets, therefore, emerged as multifaceted assemblages of 'expertise' and comprised the evidential bases for new empirical insights, research questions and directions. [ABSTRACT FROM AUTHOR]

In 2018, an NHS Trust (UK) implemented an innovative Nursing System Framework (NSF). The NSF formalized a two‐year strategy, which provided teams with clear aims and measurable objectives to deliver care. Failures of coordination of nursing services are well‐recognized threats to the quality, safety and sustainability of care provision. Aim: To evaluate the efficacy of introducing a NSF in an NHS Trust, using nursing sensitive indicators and pre‐selected mortality, data outcome measures. Design: A before and after implementation, observational study. Methods: 105,437 admissions were extracted at an admission record level. Data was extracted from 1st September 2018 through to the 31st August 2019. Results: Using SQUIRE guidelines to report the study, insufficient evidence was found to reject a null hypothesis with a chi‐squared test of association between in‐hospital death and the NSF intervention period, with a p‐value of.091. However, trends were seen in the data, which suggested a positive association. Conclusion: The NSF is a complex intervention, which provides direction for improvements but requires further research to understand the benefits for nurses, Midwives, Health Visitors and patients. [ABSTRACT FROM AUTHOR]

Institutional repositories (IRs) are important research management tools that can give increased visibility to the institution’s scholarly outputs. Although statistics were previously available through the various repository interfaces, without an agreed standard it was not possible to measure usage across a range of IRs accurately. IRUS-UK is a national aggregation service, containing details of all content downloaded from participating IRs in the United Kingdom. Through collecting raw usage data and processing them into item-level usage statistics IRUS-UK provides comparable and authoritative standards-based data and also acts as an intermediary between UK repositories and other agencies. [ABSTRACT FROM PUBLISHER]

The article reports on the lessons to be learned from the development of Great Britain's massive spatio-temporal dataset--the Ordnance Survey MasterMap. Great Britain is home to an astonishingly fine-grained, 440-million-feature spatio-temporal dataset owned and operated by the Ordnance Survey. The article offers a glimpse into the organizational and data-management challenges that all countries may someday face as their spatio-temporal repositories gradually approach the impressive breadth and depth of Great Britain's.

Data collected by a lymphoedema service can be valuable to demonstrate the type of patients referred to a service and the complexity of its workload. Similar data collected across a range of services can paint a broader picture and be used to illustrate staffing and resource requirements. The feasibility of using a standardised tool for the collection of a minimum set of data by lymphoedema services was tested by the London Lymphoedema Community of Practice over a 1-month period. The project highlighted that a minimum data set tool was feasible and suggested areas for further consideration in the data collected. [ABSTRACT FROM AUTHOR]

INTRODUCTION: Recent reports of in-flight, hypoxia-like events have prompted concern that aircraft life support systems (LSS) may not always provide effective altitude protection. An analysis was undertaken of hypoxia-like incidents reported in a UK front-line combat aircraft. METHODS: A search of the UK Aviation Safety Information Management System database identified all Typhoon Defense Air Safety Occurrence Reports (DASORs) notifying in-flight symptoms over the decade 2008--2017. Qualitative analysis focused on the event narrative, altitude profile, timeline, symptom description, sortie characteristics, LSS function, postflight engineering investigation, and training implications. The plausibility and likelihood of hypobaric hypoxia were assessed, and the probable cause of symptoms ascribed. RESULTS: There were 18 DASORs with notified symptoms of suspected in-flight hypoxia, 13 in solo pilots and 5 reports of symptoms affecting 7 of 10 aircrew in 2-seat aircraft. Two cases of probable hypoxia comprised one oxygen bottle failure and one mask-off cabin depressurization. In one report, hypoxia was assessed as plausible but unlikely, following birdstrike with failure of cabin pressurization during climb. Symptoms were explained by hyperventilation in 13 cases (65%) and twice by minor constitutional upset. Suspected hypoxia was managed by immediate selection of emergency oxygen and expedited descent in 10 of 18 occurrences (56%). CONCLUSIONS: Only 2 cases of probable hypoxia have been reported in over 150,000 Typhoon flying hours. The Typhoon LSS has provided effective altitude protection including during cases of cabin depressurization. Symptom occurrences in Typhoon are idiosyncratic and unrelated; hyperventilation probably accounts for two-thirds of reports. [ABSTRACT FROM AUTHOR]

Background Variable consent rates threaten the validity of linked datasets. One modifiable element is the interviewer–respondent relationship. We examine interviewer attitudes to consent to linkage and the effect on respondent consent. Methods Subjects were 27 380 respondents from the Wave 1 Understanding Society (US) survey in Great Britain and 449 interviewers who completed the US Interviewer Survey. Two types of consent were considered: (i) whether the interviewer would hypothetically agree to having their data linked if he/she was an US respondent and (ii) whether the respondent consented to have their data linked. Factors influencing the interviewer's propensity to link data were examined using logistic regression. The association between interviewer consent and respondent consent to health record linkage was assessed using multi-level logistic regression models. Results The interviewer's propensity to consent to data linkage was strongly positively associated with its perceived usefulness: those that found it somewhat useful were 57% less likely to consent [adjusted odds ratio (AOR) 0.43, 95% CI: 0.22–0.82] compared to those who thought it was very useful. Positive beliefs about data security and their ability to understand the data linkage information were also associated. Respondents were 17% less likely to consent when interviewed by an interviewer who would not consent to record linkage (AOR 0.83, 95% CI: 0.71–0.97). Conclusions The interviewer's propensity to consent was influenced by their beliefs about data linkage, which in turn influenced respondent consent. We recommend using interviewer training to emphasize the usefulness of data linkage and the measures around data security. [ABSTRACT FROM AUTHOR]

International social security systems increasingly place work-related conditions on individuals claiming out-of-work benefits, and enforce requirements through the use of benefit sanctions. The literature on the impacts of benefit sanctions considers both labour market and wider social effects, which this study contributes to through a focus on mental health. It considers the period of Coalition government (2010–15) in the UK, which imposed a comparatively high number of benefit sanctions and increased their severity through the Welfare Reform Act 2012. A longitudinal dataset is constructed using quarterly local authority-level data on Jobseeker's Allowance (JSA) sanctions and antidepressant prescriptions in England. Results from fixed effects analyses indicate that, in the post-reform period, every 10 additional sanctions are associated with 4.57 additional antidepressant prescribing items (95% CI: 2.14 to 6.99), which translates to approximately one additional person receiving treatment. Importantly, this finding indicates that sanctions are associated with both adverse mental health impacts and wider public expenditure implications, which motivates further investigation at the individual-level. In addition, punitive sanctions form a core part of the new Universal Credit (UC) and so the results suggest the need to reassess the use of sanctions within the contemporary social security system. [ABSTRACT FROM AUTHOR]

It is well accepted that the museum sector has a longstanding problem with data collection and management. This article begins by exploring problems with gaining access to data, poor archiving and coverage, and the absence of data. We then explain how the Mapping Museums research team set out to remedy the lack of longitudinal data on the UK museum sector in the period between 1960 and 2020. Initially we collated and supplemented existing information on UK museums but it was impossible to fill some gaps or resolve some inconsistencies in the data. Here we discuss how we designed a database that was sensitive to the patchiness of the material, and that could model uncertain and absent data in computational terms. To close, we briefly comment on how our data enables research on museum history and on how the problems with data collection in the sector might be remedied in the longer term. [ABSTRACT FROM AUTHOR]

Qualitative researchers are increasingly reanalyzing and synthesizing data sets from different studies, and this method has now been used across trials to inform trial methodology and delivery. Despite this work, however, limited guidance exists about how this method should be employed. This article details an example in which interview data collected during three primary care depression trials were brought together to explore trial participants' study and treatment journeys. It details the process involved and the decisions made. It also presents findings from this synthesis to illustrate how this method can be used to inform the development of future trials and complex interventions, through raising questions about how researchers currently define and design treatment arms and indicating what factors may improve or hinder participants' engagement with their allocated treatment. [ABSTRACT FROM AUTHOR]

Aim to compare the validity of data submitted from a UK level 1 trauma centre to the National Hip Fracture Database (NHFD) before and after the introduction of an electronic health record system (EHRS). Patients and methods a total of 3224 records were reviewed from July 2009 to July 2017. 2,133 were submitted between July 2009 and October 2014 and 1,091 between October 2014 and July 2017, representing data submitted before and after the introduction of the EHRS, respectively. Data submitted to the NHFD were scrutinised against locally held data. Results use of an EHRS was associated with significant reductions in NHFD errors. The operation coding error rate fell significantly from 23.2% (494/2133) to 7.6% (83/1091); P < 0.001. Prior to EHRS introduction, of the 109 deaths recorded in the NHFD, 64 (59%) were incorrect. In the EHRS dataset, all the 112 recorded deaths were correct (P < 0.001). There was no significant difference in the error rate for fracture coding. In the EHRS dataset, after controlling for sample month, entries utilising an operation note template with mandatory fields relevant to NHFD data were more likely to be error free than those not using the template (OR 2.69; 95% CI 1.92–3.78). Conclusion this study highlights a potential benefit of EHR systems, which offer automated data collection for auditing purposes. However, errors in data submitted to the NHFD remain, particularly in cases where an NHFD-specific operation note template is not used. Clinician engagement with new technologies is vital to avoid human error and ensure database integrity. [ABSTRACT FROM AUTHOR]

Background: Comprehensive wound assessments demonstrate better patient outcomes. Digital photography is a useful adjunct, aiding assessment and reducing the risk of overtreatment. Aim: This study compared the quality of digital photographs uploaded directly to the electronic patient record (EPR) with those uploaded via a database by non-specialist nurses as part of the development of a standard operating procedure in two cardiothoracic centres. Methods: Two specialist surveillance nurses retrospectively audited 1,837 wound photographs: 1,713 uploaded to the EPR via a database and 124 uploaded directly to the EPR. Image quality was determined by: 1) function, including clarity and documentation of appropriate clinical details alongside the image; and 2) format, including size, rotation and focus. Both function and format needed to be satisfactory to meet quality criteria. Results: Only 52% (65/124) of photos uploaded directly to the EPR were of sufficient quality versus 99% (1,702/1,713) of photos uploaded via a database. There was a significant difference in the quality of images managed using the two methods (p<0.0001). Conclusion: Findings suggest that, in practice, a database should be recommended to ensure quality control as it reduces the risk of error and facilitates reporting on wound types, care and resources. [ABSTRACT FROM AUTHOR]

This article reports an international study of research data management (RDM) activities, services, and capabilities in higher education libraries. It presents the results of a survey covering higher education libraries in Australia, Canada, Germany, Ireland, the Netherlands, New Zealand, and the UK. The results indicate that libraries have provided leadership in RDM, particularly in advocacy and policy development. Service development is still limited, focused especially on advisory and consultancy services (such as data management planning support and data-related training), rather than technical services (such as provision of a data catalog, and curation of active data). Data curation skills development is underway in libraries, but skills and capabilities are not consistently in place and remain a concern. Other major challenges include resourcing, working with other support services, and achieving "buy in" from researchers and senior managers. Results are compared with previous studies in order to assess trends and relative maturity levels. The range of RDM activities explored in this study are positioned on a "landscape maturity model," which reflects current and planned research data services and practice in academic libraries, representing a "snapshot" of current developments and a baseline for future research. [ABSTRACT FROM AUTHOR]

The author discusses the benefits, potential, and analysis of Big Data in health care services. The author defines Big Data as the dangers of information overload, in which he mentions the combination of drug data with different information from varying sources. He features the book "Disruptive Possibilities: How Big Data Changes Everything," by Jeff Needham and mentions that the author defines the technology as a type of super computing for commercial enterprises in monitoring pandemics.

ABSTRACT Background Unplanned extubations in PICU are used as a measure of quality in clinical governance strategies. While many factors, such as sedation or unit activity, impact negatively on unplanned extubations, high nurse-patient ratios reduce adverse patient events and improve patient safety. However, optimal nurse-patient ratios and the impact of the level of nursing expertise on the quality of care are unknown. Aim The study aimed to examine the impact of PICU nursing expertise on the unplanned extubations of children. Design Audit and analysis of existing adverse event patient and nurse workforce data. Method This single-centre study examined unplanned extubations at a mixed general and cardiac tertiary PICU in the UK. Routinely collected data from nursing and adverse incident databases were examined. The dataset included over 74,477 nurse allocations between August 2006 and April 2011. Unplanned extubations were the adverse event of interest. Results A total of 78 unplanned extubations occurred between April 2006 and April 2011. The majority of unplanned extubations occurred when patients were looked after by junior nurses. The seniority of the nurse in-charge and the qualifications of the patient's nurse were not related to unplanned extubations. However, more unplanned extubations occurred at times of higher patient occupancy. Conclusions Nursing expertise and nurse-patient ratios were not related to unplanned extubations in this study. Further research is needed to explore the non-workforce factors such as the securing of endotracheal tubes, sedation levels and unit activity and their relationship with adverse events. Relevance to Clinical Practice In paediatric intensive care units where nurse-patient ratios are high, further investigation is needed to establish what impact non-workforce factors have on unplanned extubations. [ABSTRACT FROM AUTHOR]

The combination of growing demand for long-term care and higher expectations of care staff needs to be set in the context of long-standing concerns about the sustainability of recruitment and retention of front-line staff in the United Kingdom. Organisational and work environment factors are associated with vacancy levels and turnover rates. The aim of the current analysis was to investigate changes in turnover and vacancy rates over time experienced by a sample of social care employers in England. Taking a follow-up approach offers potentially more accurate estimates of changes in turnover and vacancy rates, and enables the identification of any different organisational characteristics which may be linked to reductions in these elements over time. The study constructed a panel of 2964 care providers (employers) using 18 separate data sets from the National Minimum Data Set for Social Care during 2008-2010. The findings indicate slight reductions in vacancy rates but the presence of enduring, high turnover rates among direct care workers over the study period. However, the experience of individual employers varied, with home-care providers experiencing significantly higher turnover rates than other parts of the sector. These findings raise questions around the quality and motivations of new recruits and methods of reducing specific vacancy levels. At a time of increased emphasis on care at home, it is worthwhile examining why care homes appear to have greater stability of staff and fewer vacancies than home-care agencies. [ABSTRACT FROM AUTHOR]

Conclusions of research articles depend on bodies of data that cannot be included in articles themselves. To share this data is important for reasons of both transparency and reuse. Science, Technology, and Medicine journals have a role in facilitating sharing, but by what mechanism is not yet clear. The Journal Research Data (JoRD) Project was a JISC (Joint Information Systems Committee)-funded feasibility study on the potential for a central service on journal research data policies. The objectives of the study included identifying the current state of journal data sharing policies and investigating stakeholders' views and practices. The project confirmed that a large percentage of journals have no data sharing policy and that there are inconsistencies between those that are traceable. This state leaves authors unsure of whether they should share article related data and where and how to deposit those data. In the absence of a consolidated infrastructure to share data easily, a model journal data sharing policy was developed by comparing quantitative information from analyzing existing journal data policies with qualitative data collected from stakeholders. This article summarizes and outlines the process by which the model was developed and presents the model journal data sharing policy. [ABSTRACT FROM AUTHOR]

Objectives The purpose of this review was to uncover areas of competence which may lead to a baseline of skills for health librarians. A baseline could inform personal development plans for health librarians, criteria for job descriptions and curriculum for library and information science ( LIS) courses. Methods This research outlines existing competencies for librarians working in health care as defined by library associations, recent job descriptions and a mapping review of the library and information science literature. This is performed in the context of librarians working in the Irish health system with examples of practice drawn from the Irish experience. Results Ten areas of competence were found to be common to three of five library associations, which were also common to recent job descriptions. The literature reveals an ever changing working environment for librarians working in health with opportunities for new and evolving roles. Conclusions The challenge for librarians moving into these roles will be to stay relevant and to keep skills updated in a rapidly moving health and information environment. [ABSTRACT FROM AUTHOR]