8 results on '"McKibben, Laurie"'
Search Results
2. Determining the informational needs of family caregivers of people with learning disabilities who require palliative care : a qualitative study
- Author
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McKibben, Laurie, Brazil, Kevin, McLaughlin, Doris, and Hudson, Peter
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610 - Abstract
Increased life expectancy has given rise to a greater number of people at risk of developing advanced, progressive diseases that require palliative care. The population requiring palliative care will include people with learning disabilities, who are also living longer. People with learning disabilities are often cared for by a family member. International research literature reports inadequate support of family caregivers and demonstrates caregiving in learning disability is a long continuum before end of life. A wide scope of informational need is thought to exist for family caregivers of people with learning disabilities who require palliative care, however, there is a paucity of research to evidence their specific information needs. This study aimed to determine the informational needs of family caregivers of people with learning disabilities who require palliative care, with logic model development providing a visual representation of these needs and how they could be met. A qualitative, exploratory design was implemented. Semi-structured interviews were conducted with a purposive sample of family caregivers (n=10), and six focus groups were composed of purposefully sampled Health and Social Care professionals (n=28), from across the province of Northern Ireland. Following consultations with an expert advisory group, findings informed the co-design of a logic model reflecting the information needs reported and how family caregivers can be best supported in having their information needs met. Findings revealed four themes from family caregiver interviews: 'Changing and diverse nature of information need', 'Consistent communication and joint working', 'Navigating care across settings' and 'Evolution and components of the caring role.' Three themes evolved from focus groups with Health and Social Care professionals which were: 'Information needs at the interface of services', 'Interplay of services across settings' and 'Decision making dilemmas.' Family caregivers reported multiple information needs, which were changeable over the disease trajectory and remained into the bereavement period. Services played an integral role in enabling access to the right information at the right time. Conclusively the most reported information needs surrounded educational information on the disease and palliative care, and information relating to financial assistance. Other reported information needs applied to practical support and respite. Information needs surrounding psychosocial support were cited by some, however these were not considered a priority. Family caregivers of this population require consistency and continuity, with recommendations for co-ordinators or link staff, who can provide information on a personalised, one to one basis. An increased number of people with learning disabilities will be in receipt of services from primary care and acute services, due to their palliative diagnosis; this research shows a lack of preparedness and training amongst staff who appear to require more knowledge and skill to deal with this area of practice. This increases the strain on the family caregiver, and increases the level of information and support that they will require.
- Published
- 2018
3. Challenges for palliative care day services: a focus group study
- Author
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Hasson, Felicity, Jordan, Joanne, McKibben, Laurie, Graham-Wisener, Lisa, Finucane, Anne, Armour, Kathy, Zafar, Shazia, Hewison, Alistair, Brazil, Kevin, and Kernohan, W. George
- Published
- 2021
- Full Text
- View/download PDF
4. Exploring the costs, consequences and efficiency of three types of palliative care day services in the UK: a pragmatic before-and-after descriptive cohort study
- Author
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Mitchell, Paul Mark, Coast, Joanna, Myring, Gareth, Ricciardi, Federico, Vickerstaff, Victoria, Jones, Louise, Zafar, Shazia, Cudmore, Sarah, Jordan, Joanne, McKibben, Laurie, Graham-Wisener, Lisa, Finucane, Anne M., Hewison, Alistair, Haraldsdottir, Erna, Brazil, Kevin, and Kernohan, W. George
- Published
- 2020
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- View/download PDF
5. Determining the informational needs of family caregivers of people with intellectual disability who require palliative care: A qualitative study.
- Author
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McKibben, Laurie, Brazil, Kevin, McLaughlin, Dorry, and Hudson, Peter
- Subjects
RESEARCH ,CAREGIVERS ,NURSING specialties ,RESEARCH methodology ,MEDICAL cooperation ,EVALUATION research ,QUALITATIVE research ,COMPARATIVE studies ,HOSPICE nurses ,PEOPLE with intellectual disabilities ,PALLIATIVE treatment - Abstract
Objectives: People with intellectual disabilities are living longer, and many require palliative care. There is a lack of evidence regarding information needs which may exist for their family caregivers. This study aimed to determine the informational needs of family caregivers of people with intellectual disabilities who require palliative care.Methods: A qualitative, exploratory design was underpinned by the Transactional Model of Stress and Coping and the Transformative Paradigm. The study involved five Health and Social Care (HSC) Trusts and two Hospices in one region of the United Kingdom. Family caregivers (n = 10) participated in individual interviews. HSC professionals' (n = 28) perceptions of informational needs were explored within focus groups (n = 6).Results: Family caregivers reported information needs chiefly concerning the disease, financial entitlements, and practical support which could change over the disease trajectory. Findings evidence the expertise of long-term family caregivers, prior to the end of life. Palliative care and intellectual disability teams acknowledged their role to work in partnership and facilitate access to information. Recommendations were mapped onto a co-designed logic model.Significance Of Results: New insights into the specific informational needs of this family caregiving population. A co-designed logic model presents these needs and how they may be addressed. Central co-ordinators have been advocated for these caregivers. This model could have international applicability for similar family carers, supporting people with other disabilities or cognitive impairment, and should be further explored. [ABSTRACT FROM AUTHOR]- Published
- 2021
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- View/download PDF
6. Exploring the value of reflexivity in learning disability research.
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McKibben, Laurie
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CAREGIVERS , *EXPERIMENTAL design , *LEARNING disabilities , *RESEARCH methodology , *MEDICAL research , *QUALITATIVE research , *REFLEXIVITY - Abstract
Qualitative research is conducted using methods such as one-to-one interviews and focus groups, and incorporates an element of subjectivity. In learning disability research, this subjectivity could be considered a positive attribute, enabling researchers to consider context, emotions and observations when interpreting data. Reflexivity can be used by researchers to manage their thoughts, feelings and preconceptions when undertaking research in emotive contexts. It has also been identified that providing evidence of reflexivity increases the trustworthiness and rigour of qualitative research. In this article the author presents a personal account of how using reflexivity enhanced research they were conducting and improved the rigour of its conduct and reporting. The article also details the role of reflexivity in learning disability practice and makes recommendations for how this could be implemented. [ABSTRACT FROM AUTHOR]
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- 2019
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7. Informational needs of family caregivers of people with intellectual disability who require palliative care: a two-phase integrative review of the literature.
- Author
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McKibben, Laurie, Brazil, Kevin, Hudson, Peter, and McLaughlin, Dorry
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CAREGIVERS , *CINAHL database , *FAMILIES , *HEALTH services accessibility , *INFORMATION storage & retrieval systems , *MEDICAL databases , *PSYCHOLOGY information storage & retrieval systems , *INTERPROFESSIONAL relations , *MEDLINE , *PEOPLE with intellectual disabilities , *ONLINE information services , *PALLIATIVE treatment , *SYSTEMATIC reviews , *ACCESS to information , *INFORMATION needs - Abstract
Background: People with intellectual disabilities are living longer, with increasingly complex needs and their family caregivers may have a broad scope of unmet needs. Aims: To identify the most common needs of family caregivers, to identify gaps in the literature, and distinguish the information needs of family caregivers of people with intellectual disabilities who require palliative care. Methods: This two phase literature review used five electronic databases (CINAHL, PsycINFO, Medline, Cochrane and Pubmed). Phase 1 involved a review of systematic reviews of the needs of family caregivers across healthcare settings. Phase 2 explored the commonly reported information needs from phase 1, in relation to family caregivers of people with intellectual disability who require palliative care. There was no research explicit to the information needs of these family caregivers. Findings: This review reveals potential information needs which may exist, guided by the palliative caregiving literature; alluding to information needs surrounding the disease, finances, and psychological or practical support. Conclusion: It is surmised that a greater scope of informational need exists for this population and further research is pertinent for international healthcare settings. [ABSTRACT FROM AUTHOR]
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- 2019
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8. Conflict management: importance and implications.
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McKibben, Laurie
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CONFLICT management , *MEDICAL communication , *SOCIOLOGY of work , *CHANGE management , *RESPECT , *COMMUNICATION , *LEADERSHIP , *MEDICAL care , *NURSING services administration , *ORGANIZATIONAL change , *PATIENTS , *PROBLEM solving - Abstract
Conflict is a consistent and unavoidable issue within healthcare teams. Despite training of nurse leaders and managers around areas of conflict resolution, the problem of staff relations, stress, sickness and retention remain. Conflict arises from issues with interpersonal relationships, change and poor leadership. New members of staff entering an already established healthcare team should be supported and integrated, to encourage mutual role respect between all team members and establish positive working relationships, in order to maximise patient care. This paper explores the concept of conflict, the importance of addressing causes of conflict, effective management, and the relevance of positive approaches to conflict resolution. Good leadership, nurturing positive team dynamics and communication, encourages shared problem solving and acceptance of change. Furthermore mutual respect fosters a more positive working environment for those in healthcare teams. As conflict has direct implications for patients, positive resolution is essential, to promote safe and effective delivery of care, whilst encouraging therapeutic relationships between colleagues and managers. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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