186 results
Search Results
2. Transitions to adulthood from care in late 19th century England.
- Author
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Ward, Harriet
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MEDICAL care ,EMPLOYMENT ,CHILD welfare ,RESIDENTIAL care ,POVERTY - Abstract
Since the mid‐19th century, there have been concerns in England about suboptimal outcomes for care leavers. This paper draws on original data from case files of children who were admitted to the Children's Society between 1887 and 1894, and a contemporary study of outcomes for girls who had been brought up in Poor Law district schools, to explore the basis for these concerns. Widespread destitution in the community meant that many children in care were better fed, clothed and educated than their contemporaries. However, those who left the Poor Law schools were singularly ill prepared for independence, and the much vaunted training offered by the voluntary societies did not prepare children to enter occupations that would provide stable or well‐paid employment. Emerging understanding of the needs of care leavers for continuing support and protection was translated into policies and practices that continue to be relevant a hundred years later. However, factors that shaped the experiences of 19th century care leavers, such as short‐term financial considerations which led to compressed and accelerated transitions, and the principle of less eligibility, still tend to conflict with attempts to ensure that their needs are adequately met today. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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3. Enhancing community weight loss groups in a low socioeconomic status area: Application of the COM‐B model and Behaviour Change Wheel.
- Author
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Coupe, Nia, Cotterill, Sarah, and Peters, Sarah
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PREVENTION of obesity ,OBESITY & psychology ,FOOD labeling ,VEGETABLES ,MATHEMATICAL models ,MOTIVATION (Psychology) ,FOOD consumption ,COMMUNITY health services ,MEDICAL care ,COGNITION ,SOCIOECONOMIC status ,QUALITATIVE research ,FOOD portions ,HEALTH literacy ,SOCIAL classes ,WEIGHT loss ,THEORY ,HEALTH behavior ,FRUIT ,RESEARCH funding ,PATIENT education ,BEHAVIOR modification ,HEALTH promotion ,GOAL (Psychology) - Abstract
Background: Obesity rates are higher among people of lower socioeconomic status. While numerous health behaviour interventions targeting obesity exist, they are more successful at engaging higher socioeconomic status populations, leaving those in less affluent circumstances with poorer outcomes. This highlights a need for more tailored interventions. The aim of this study was to enhance an existing weight loss course for adults living in low socioeconomic communities. Methods: The Behaviour Change Wheel approach was followed to design an add‐on intervention to an existing local authority‐run weight loss group, informed by mixed‐methods research and stakeholder engagement. Results: The COM‐B analysis of qualitative data revealed that changes were required to psychological capability, physical and social opportunity and reflective motivation to enable dietary goal‐setting behaviours. The resulting SMART‐C booklet included 6 weeks of dietary goal setting, with weekly behavioural contract and review. Conclusion: This paper details the development of the theory‐ and evidence‐informed SMART‐C intervention. This is the first report of the Behaviour Change Wheel being used to design an add‐on tool to enhance existing weight loss services. The process benefitted from a further checking stage with stakeholders. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
4. What are the current and projected future cost and health‐related quality of life implications of scaling up cognitive stimulation therapy?
- Author
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Knapp, Martin, Bauer, Annette, Wittenberg, Raphael, Comas‐Herrera, Adelina, Cyhlarova, Eva, Hu, Bo, Jagger, Carol, Kingston, Andrew, Patel, Anita, Spector, Aimee, Wessel, Audrey, and Wong, Gloria
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QUALITY of life ,COGNITIVE therapy ,SERVICES for caregivers ,QUALITY-adjusted life years ,MEDICAL care costs ,MEDICAL care ,HEALTH services accessibility - Abstract
Objectives: Cognitive stimulation therapy (CST) is one of the few non‐pharmacological interventions for people living with dementia shown to be effective and cost‐effective. What are the current and future cost and health‐related quality of life implications of scaling‐up CST to eligible new cases of dementia in England? Methods/design: Data from trials were combined with microsimulation and macrosimulation modelling to project future prevalence, needs and costs. Health and social costs, unpaid care costs and quality‐adjusted life years (QALYs) were compared with and without scaling‐up of CST and follow‐on maintenance CST (MCST). Results: Scaling‐up group CST requires year‐on‐year increases in expenditure (mainly on staff), but these would be partially offset by reductions in health and care costs. Unpaid care costs would increase. Scaling‐up MCST would also require additional expenditure, but without generating savings elsewhere. There would be improvements in general cognitive functioning and health‐related quality of life, summarised in terms of QALY gains. Cost per QALY for CST alone would increase from £12,596 in 2015 to £19,573 by 2040, which is below the threshold for cost‐effectiveness used by the National Institute for Health and Care Excellence (NICE). Cost per QALY for CST and MCST combined would grow from £19,883 in 2015 to £30,906 by 2040, making it less likely to be recommended by NICE on cost‐effectiveness grounds. Conclusions: Scaling‐up CST England for people with incident dementia can improve lives in an affordable, cost‐effective manner. Adding MCST also improves health‐related quality of life, but the economic evidence is less compelling. Key points: There are few evidence‐based non‐pharmacological interventions for people living with dementia. Cognitive stimulation therapy (CST) is both effective and cost‐effective, but current availability is constrainedThis paper reports the cost and health‐related quality of life implications of scaling‐up cognitive stimulation therapy to eligible people with dementia in England over a 25 year periodScaling‐up CST would improve general cognitive functioning and health‐related quality of life, but also increase costs for health and social care services, and for family and other unpaid carers. Adding maintenance CST would also improve health‐related quality of life, with even greater cost increasesThe higher costs of scaling‐up CST to the full eligible population over a 25 year period would be considered worth paying by reference to criteria used by the National Institute for Health and Care Excellence (NICE) in England. The economic evidence for adding maintenance CST is less compelling [ABSTRACT FROM AUTHOR]
- Published
- 2022
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5. Where should people with dementia live? Using the views of service users to inform models of care.
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Forbat, Liz and Wilkinson, Heather
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PEOPLE with learning disabilities ,PEOPLE with intellectual disabilities ,DEMENTIA ,FOCUS groups ,EDUCATION of people with learning disabilities ,MEDICAL care - Abstract
Accessible summary We wanted to know what people with learning disabilities know about dementia. We asked service users what the word meant to them, if they knew anyone with dementia, and what it was like to share a house with someone who has dementia. We learnt that: • Service users can know a lot about dementia. • Living with someone with dementia can be really hard – and staff do not always have enough time for everyone else. • Services should think more about how dementia affects everyone – not just the person who has the dementia. This paper reports on research that illuminates how people with a learning disability understand dementia and indicates the implications of these understandings for developing appropriate models of care. As this new policy and practice area struggles to provide appropriate and effective models of care for people with a learning disability and dementia, an awareness of service users’ understandings of dementia leads to a number of important insights. The wider research programme from which this paper is drawn aims to identify best practice in supporting people with learning disabilities to stay in their own homes as they grow older and develop dementia. A combination of focus groups, ethnography and individual interviews were conducted at eight sites across England. Participants were people with a learning disability who had dementia, and those who have lived with someone with dementia. The findings have the potential to improve support to this population as they grow older. [ABSTRACT FROM AUTHOR]
- Published
- 2008
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6. International Cancer Nursing Congress in the United Kingdom, 4-8 September 1978.
- Author
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Smith, James P.
- Subjects
CONFERENCES & conventions ,NURSING ,NURSES ,MEDICAL care - Abstract
The article focuses on the International Cancer Nursing Congress, held from September 4-8, 1978, in London, England. The conference was sponsored by the periodical "Nursing Mirror" and the Royal Marsden Hospital. During the week, over 50 papers were delivered at the congress, which focused continually on nursing and the role of the nurse in care, particularly in the care of patients living and dying with cancer. The congress was opened by the Secretary of State for Social Services, David Ennals, MP, who also hosted a reception for the international delegates at the Savoy Hotel, London, later on the first day on behalf of Her Majesty's Government.
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- 1979
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7. Spotlight on the upcoming British Association of Critical Care Nurses conference and other clinical issues.
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Trapani, Josef and Tume, Lyvonne
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INTENSIVE care nursing ,CONVALESCENCE ,SERIAL publications ,CONFERENCES & conventions ,MEDICAL care - Abstract
An introduction is presented in which editor discusses articles in the issue on topics, the risk factors of delirium in paediatric and adult intensive care unit patients; the impact a nurse-led Focussed Ultrasound in Intensive Care; and peripheral nerve injuries in patients with COVID pneumonitis.
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- 2023
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8. Public Hospital Spending in England: Evidence from National Health Service Administrative Records.
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Kelly, Elaine, Stoye, George, and Vera-Hernández, Marcos
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MEDICAL care costs ,MEDICAL care ,MEDICAL care for older people - Abstract
Health spending per capita in England has almost doubled since 1997, yet relatively little is known about how that spending is distributed across the population. This paper uses administrative National Health Service (NHS) hospital records to examine key features of public hospital spending in England. We describe how costs vary across the life cycle, and the concentration of spending among people and over time. We find that costs per person start to increase after age 50 and escalate after age 70. Spending is highly concentrated in a small section of the population, but the degree of concentration is lower for older age groups. For those aged 25 and under, a third of all hospital spending is accounted for by 1 per cent of the population under 25 and a fifth of spending is accounted for by 1 per cent of patients under 25. For those aged 65 and over, these figures fall to 22 and 13 per cent, respectively. There is persistence in spending over time, with patients with high spending more likely to have spending in subsequent years and those with zero expenditures more likely to remain out of hospital. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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9. Troubled families: vulnerable families' experiences of multiple service use.
- Author
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Morris, Kate
- Subjects
RESOURCE allocation ,EDUCATION ,FAMILY health ,FAMILY services ,HOUSING ,INTERVIEWING ,MEDICAL care ,MEDICAL personnel ,POLICE ,RECREATION ,RESEARCH ,SOCIAL problems ,QUALITATIVE research ,DISCLOSURE ,FAMILY relations ,THEMATIC analysis ,INSTITUTIONAL cooperation ,PATIENTS' families ,FAMILY attitudes ,ECONOMICS - Abstract
ABSTRACT This paper draws on a small-scale study examining the experiences of highly vulnerable families with complex and enduring needs. The previous UK government and the current government have sought to develop policy and service initiatives that target families who present high levels of need and require high cost services. However, to date remarkably little is known about family perspectives and experiences. In this paper, family accounts of their experiences are presented and it is suggested that from these come some difficult practice questions. The family data reveal evident gaps in existing practice and challenges social work to 'think family' in new ways. The paper explores how families understand they are understood at the point of engagement, the assumptions that are made about family knowledge, and how families share and withhold information about their needs and experiences. In the discussion, the argument is made for the development of nuanced practice capable of recognizing and working with the ways highly vulnerable families 'do family', and the processes that support and inhibit professional interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2013
- Full Text
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10. THE SEARCH FOR A PROPORTIONATE CARE LAW BY FORMULA FUNDING IN THE ENGLISH NHS.
- Author
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Bevan, Gwyn
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MEDICAL care ,MEDICAL laws ,PUBLIC health - Abstract
Although the National Health Service was created to achieve equity of access to health care in 1948, over twenty years later an ‘inverse care law’ was seen to operate. The 1976 Report of the Resource Allocation Working Party laid the principles of formula funding to achieve an equitable distribution of resources, to move, over time, towards the operation of a proportionate care law. These principles have been applied ever since in England. This paper describes the context, governance and subsequent development of formulas and three persistent problems: accounting for populations, their needs and variations in the unavoidable costs of providers. The paper concludes by outlining continuing problems from the past and new challenges of formula funding in England to reduce ‘avoidable’ inequalities in health. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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11. Estimating intrapartum-related perinatal mortality rates for booked home births: when the ‘best’ available data are not good enough.
- Author
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Gyte, G., Dodwell, M., Newburn, M., Sandall, J., Macfarlane, A., and Bewley, S.
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PERINATAL death ,CHILDBIRTH at home ,MEDICAL care ,PREGNANT women ,PREGNANCY ,SAFETY - Abstract
Objective To critically appraise a recent study on the safety of home birth (Mori R, Dougherty M, Whittle M. BJOG 2008;115:554) and assess its contribution to the debate about risks and benefits of planned home birth for women at low risk of complications. Design Critical appraisal of a published paper. Setting England and Wales. Population or Sample Home births from 1994–2003 and all women giving birth in the same time period. Methods Six members of a multidisciplinary group appraised the paper independently. Comments were collated and synthesised. Main outcome measures Assessment of: overall methodology; assumptions used in estimating figures; methods used for calculations; conclusions drawn from the results and reliability and consistency of data. Results Although there were some positive aspects to the study, there were weaknesses in design and an inaccurate estimate of risk. Our evidence suggests that the conclusions drawn did not reflect the results and the methodological weaknesses found in the study rendered both the results and conclusions invalid. Conclusions On the basis of our critical appraisal, the study does not contribute to the existing evidence about the safety of home birth to inform decision-making or provision of care. The limitations could have been identified by the peer review process and the problems were compounded by an inaccurate press release. Great care needs to be taken by journals to ensure the accuracy of information before dissemination to the scientific community, clinicians and the public. These data should not have been used to inform national guidelines. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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12. Meeting ‘Valuing People’ health targets: recommendations from a research workshop.
- Author
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Mir, Ghazala
- Subjects
ADULT education workshops ,PEOPLE with learning disabilities ,MEDICAL care - Abstract
Accessible summary • This paper is about a workshop held by researchers from the University of Leeds. • The researchers looked at one area to see if people were doing things about health that the Government said they should in Valuing People. • The research found out that there is still a lot of work to do in the area to meet these targets. People came to a workshop to talk about this. They thought that: • Learning disability services should lead the way and draw up a plan about what needs to happen. • People who run health services should make sure they set targets for GPs and hospitals that fit in with the plan. • Government should make sure that the targets they set for GPs also fit in with Valuing People targets. • This research is important because it can show what helps health services improve for people with learning disabilities and what gets in the way. Research at the University of Leeds has evaluated how well changes to healthcare proposed in the Government White Paper Valuing People ( Department of Health 2001 ) were being implemented in one locality and their impact on people with learning disabilities. The project had a developmental aspect and incorporated two workshops over the course of the study to disseminate preliminary findings. These were used to help key stakeholders evaluate progress and to inform discussions about what should happen next in the fieldwork area. This paper discusses recommendations from the first research workshop at which preliminary findings from the study were presented. The workshop involved health and social care providers and managers, people with learning disabilities, voluntary and community organizations. It gives an overview of local issues relevant to the White Paper health targets and highlights those that need to be resolved before these targets can be achieved. These issues are likely to be replicated in other areas of England and Wales and have implications for leadership, strategy, the allocation of resources and structures of accountability in health and social care agencies. [ABSTRACT FROM AUTHOR]
- Published
- 2007
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13. Towards multidisciplinary assessment of older people: exploring the change process.
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Ross F, O'Tuathail C, and Stubberfield D
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MEDICAL care for older people ,MEDICAL care ,HOSPITAL wards - Abstract
AIMS AND OBJECTIVES: This paper discusses the process of change that took place in an intervention study of standardized multidisciplinary assessment guidelines implemented in a female ward for older people in a District General Hospital in South London. This study was one of nine implementation projects in the South Thames Evidence-Based Practice Project. BACKGROUND: The relationship between the worlds of research and healthcare practice is uneasy and contested and, as such, is a breeding ground for challenging questions about how evidence can be used to foment change in clinical practice. Recent literature on change highlights the importance of understanding complexity, which informed our approach and analysis. METHODS: A multifaceted approach to change that comprised evidence-based guidelines, leadership (project leader) and change management was evaluated before and after the implementation by telephone interviews with patients, a postal survey of community staff and interviews with ward staff. A diagnostic analysis of current assessment practice informed the change process. The project leader collected data on adherence. RESULTS: This paper draws on descriptive and qualitative data and addresses the links between contextual issues and the processes and pathways of change, informed by theoretical ideas from the change literature. Key themes emerged: working through others and across boundaries, managing uncertainty and unanticipated challenges. Adherence of ward staff to using the multidisciplinary assessment guidelines was high, with evidence of some dissemination to community staff at follow-up. Three years after the project finished the multidisciplinary assessment is still part of routine clinical practice. CONCLUSIONS: The analysis contributes to understanding about the nursing leadership of change within an interprofessional arena of practice. It highlights the importance of understanding the context in relation to the impact and sustainability of change and thus the utility of conducting a diagnostic analysis in the early stages of implementation. This has implications for developing approaches to change in nursing and interprofessional practice in other settings. RELEVANCE TO CLINICAL PRACTICE: Using research to change practice needs clinical leaders who are supported by the organization and have the skills to implement research evidence, manage uncertainty and build trust with a range of other professionals. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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14. Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service.
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Danvers L, Freshwater D, Cheater F, and Wilson A
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CHILD health services ,MEDICAL care ,COMMUNITY health services - Abstract
The Diana Children's Community Teams (DCCTs), a new nurse-led service funded by the Department of Health, were established to provide care in the community as an alternative to hospital for children with life-threatening/life-limiting illnesses and their families. This paper presents selected findings highlighting the professionals' experiences which formed part of the evaluation of the Diana, Princess of Wales Children's Community Service in Leicester, Leicestershire and Rutland. The Diana Service in Leicestershire attempts to encompass both parental empowerment and interagency collaboration. By working in partnership with the children and their families, the team provides an integrated and multiprofessional community-based service. This paper particularly concentrates on the perceptions and recommendations from the Diana team itself. Three independently managed Community Nursing Services existed in Leicestershire prior to the Diana teams; a Paediatric Macmillan Service, a Children's Community Nursing Service and a Respite Service. The Leicestershire DCCT integrated the three nursing services into a single team. This team has moved away from a traditional uniprofessional service structure by encompassing a wider team of multiprofessionals, including a cultural link worker, an occupational therapist, a physiotherapist, a play specialist and a team of trained counsellors, working in partnership to provide a quality service for families. * The evaluation, which used a longitudinal multimethod process analysis based on an action research framework, suggests that children with complex and life-limiting illnesses and their families benefit greatly from an effective seamless service. This paper recommends a framework of care that may be relevant to other teams of children's community services across the country. This service has been judged by the impact it has had on the families who use it and the professionals employed within it. [ABSTRACT FROM AUTHOR]
- Published
- 2003
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15. Patient Characteristics Associated With Disparities in Engagement With and Experience of COVID‐19 Remote Home Monitoring Services: A Mixed‐Methods Evaluation.
- Author
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Crellin, Nadia E., Herlitz, Lauren, Sidhu, Manbinder S., Ellins, Jo, Georghiou, Theo, Litchfield, Ian, Massou, Efthalia, Ng, Pei Li, Sherlaw‐Johnson, Chris, Tomini, Sonila M., Vindrola‐Padros, Cecilia, Walton, Holly, and Fulop, Naomi J.
- Subjects
HOME care services ,HEALTH services accessibility ,MEDICAL interpreters ,DIVERSITY & inclusion policies ,HEALTH status indicators ,INTERPROFESSIONAL relations ,INTERVIEWING ,AT-risk people ,HEALTH ,SEX distribution ,KRUSKAL-Wallis Test ,LOGISTIC regression analysis ,OXIMETRY ,MEDICAL care ,DESCRIPTIVE statistics ,MULTIVARIATE analysis ,INFORMATION resources ,SEVERITY of illness index ,MANN Whitney U Test ,TELEMEDICINE ,MEDICAL consultation ,SURVEYS ,THEMATIC analysis ,ODDS ratio ,RESEARCH methodology ,ATTITUDES of medical personnel ,STATISTICS ,CONCEPTUAL structures ,QUALITY of life ,SOCIAL networks ,HEALTH equity ,PATIENT monitoring ,MINORITIES ,SOCIAL support ,DATA analysis software ,CONFIDENCE intervals ,COVID-19 ,PATIENTS' attitudes ,CAREGIVER attitudes ,MEDICAL referrals ,EMPLOYMENT ,ACCESS to information - Abstract
Introduction: The adoption of remote healthcare methods has been accelerated by the COVID‐19 pandemic, but evidence suggests that some patients need additional support to engage remotely, potentially increasing health disparities if needs are not met. This study of COVID‐19 remote home monitoring services across England explores experiences of and engagement with the service across different patient groups. Methods: This was a mixed‐methods study with survey and interview data collected from 28 services across England between February and June 2021. Surveys were conducted with staff and patients and carers receiving the service. Interviews with staff service leads, patients and carers were conducted in 17 sites. Quantitative data were analysed using univariate and multivariate methods, and qualitative data were analysed using thematic analysis. Findings: Survey responses were received from 292 staff and 1069 patients and carers. Twenty‐three staff service leads, 59 patients and 3 carers were interviewed. Many service leads reported that they had considered inclusivity when adapting the service for their local population; strategies included widening the eligibility criteria, prioritising vulnerable groups and creating referral pathways. However, disparities were reported across patient groups in their experiences and engagement. Older patients reported the service to be less helpful (p = 0.004), were more likely to report a problem (p < 0.001) and had more difficulty in understanding information (p = 0.005). Health status (p = 0.004), ethnicity (p < 0.001), gender (p < 0.001) and employment (p = 0.007) were associated with differential engagement with monitoring, and minority ethnic groups reported more difficulty understanding service information (p = 0.001). Qualitative data found illness severity to be an important factor in the support required, and patients' living situation and social network affected whether they found the service reassuring. Conclusion: Addressing health disparities must be a key focus in the design and delivery of remote care. Services should be tailored to match the needs of their local population, encourage access through collaboration and referral pathways with other services and monitor their inclusiveness. Involving patients and staff in service design can illuminate the diversity of patients' needs and experiences of care. Patient or Public Contribution: The study team met with service user and public members of the BRACE PPI group and patient representatives from RSET in a series of workshops. Workshops informed study design, data collection tools, data interpretation and dissemination activities. Study documents (such as consent forms, topic guides, surveys and information sheets) were reviewed by PPI members; patient surveys and interview guides were piloted, and members also commented on the manuscript. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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16. Health and illness beliefs of Greek Cypriots living in London.
- Author
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Papadopoulos, Irena
- Subjects
CYPRIOTS ,DISEASES ,MEDICAL care - Abstract
Health and illness beliefs of Greek Cypriots living in London This paper describes some of the findings of a qualitative study into the health and illness beliefs of Greek Cypriots living in London. Data were collected through group and individual in-depth interviews and were analysed using the grounded theory approach of constant comparison and saturation. Two of the six themes which were identified are discussed in this paper. The findings provide the reader with important insights into Greek Cypriots' beliefs of health and illness. The paper argues that the understanding of such beliefs from a cultural perspective is vitally important for all those involved in the provision of health care to this group. [ABSTRACT FROM AUTHOR]
- Published
- 1999
- Full Text
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17. Research campaigns in the UK National Health Service: patient recruitment and questions of valuation.
- Author
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Wienroth, Matthias, Pearce, Caroline, and McKevitt, Christopher
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HEALTH policy ,CLINICAL medicine research ,HEALTH promotion ,MEDICAL care ,PATIENT participation ,SOCIAL support ,HUMAN research subjects ,PATIENT selection ,HEALTH literacy ,PATIENTS' attitudes - Abstract
The National Institute for Health Research (NIHR) aims to improve national 'health and wealth' by providing infrastructural support to enable clinical research in National Health Service settings in England and Wales. Cognisant of the consequences of studies' failure to achieve required numbers of participants, it also actively campaigns to promote patient awareness of research, and willingness to participate in trials. In this paper, we analyse recent NIHR campaigns and policies designed to encourage patients to participate in clinical research to interrogate how they are implicated in the national bioeconomy. In doing so we expand the notion of 'clinical labour' to include the work of patient recruitment and highlight an emergent obligation on patients to contribute to research processes. Whereas once patient knowledge and experience may have been devalued, here we draw on the concept of 'assetisation' (Birch 2012) to explore the emergent relationship between healthcare system and patient as research participant. We consider how patients' contribution goes beyond the provision of standardised objects of valuation so that patients themselves may be perceived as assets to, not only recipients of, the national healthcare system. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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18. Outpatient appointment non-attendance and unplanned health care for children and young people with neurological conditions: a retrospective cohort study.
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Jarvis, Stuart, Livingston, John, Childs, Anne‐Marie, Fraser, Lorna, and Childs, Anne-Marie
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CHILD care ,YOUTH ,CHILDREN'S health ,MEDICAL care ,COHORT analysis ,OUTPATIENT medical care ,COMPARATIVE studies ,EMERGENCY medical services ,HOSPITAL admission & discharge ,RESEARCH methodology ,MEDICAL appointments ,MEDICAL cooperation ,MULTIVARIATE analysis ,NEUROLOGICAL disorders ,PATIENTS ,RESEARCH ,RESEARCH funding ,EVALUATION research ,RETROSPECTIVE studies ,PATIENTS' attitudes - Abstract
Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2019
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19. What constitutes ‘good practice’ in early intervention for psychosis? Analysis of clinical guidelines.
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Corsico, Paolo, Griffin‐Doyle, Michelle, and Singh, Ilina
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MEDICAL care ,HEALTH policy ,POLICY sciences ,CODES of ethics ,PSYCHOSES ,THEMATIC analysis ,EARLY medical intervention ,THERAPEUTICS - Abstract
Background: Early Intervention in Psychosis (EIP) services have been implemented with the dual aims of preventing harmful outcomes associated with early‐onset psychosis and improving prognosis. However, concerns have been raised regarding the ethical implications of involving young people in EIP services. One way to ensure high ethical standards and promote good practice in EIP delivery is through governance of clinical practice. This study aimed to investigate the normative dimensions of good practice in EIP through examination of clinical guideline documents published in England over the past 15 years. Methods: A total of 14 clinical guidelines and relevant policy documents for EIP were retrieved and analysed using a mixed inductive and deductive thematic approach. Themes were derived from the data itself, whereas the development of broader categories was performed through a constant comparison with the scientific literature describing ethical issues in EIP. Results: Ethical touchpoints of good practice in EIP included both procedural and substantive factors, which were seen to be interdependent and mutually constitutive. These ethical touchpoints were largely implicit in the documents analysed. Procedural requirements of EIP service delivery consisted of norms and rules pertaining to EIP service structure, adherence to codes of ethics, inclusivity, patient and family centredness and appropriate treatment provision. Substantive factors consisted of moral attributes that should be cultivated by healthcare professionals working in EIP: competency, empathy, sensitivity and trustworthiness. Conclusions: We argue that, to ensure good practice in EIP, procedural and substantive ethical expectations embedded in EIP guideline documents should be made explicit in EIP service and care delivery. We suggest that the procedural and substantive factors highlighted in this paper contribute useful dimensions for the eventual evaluation of good practice in EIP services across England. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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20. Routine practice in staffed community accommodation (approved premises) in England and Wales: Quantitative benchmarking from the first year of a longitudinal study.
- Author
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Davies, Jason, O'Meara, Aisling, and O'Meara, Aisling
- Subjects
HOSPITAL patients ,CRIMINAL justice system ,CRIMINOLOGICAL research ,REFERENCE groups ,MEDICAL care ,SAFETY ,BENCHMARKING (Management) ,CORRECTIONAL institutions ,CRIMINALS ,LONGITUDINAL method ,SENSORY perception ,PERSONALITY disorders ,PRISON psychology ,CROSS-sectional method ,PSYCHOLOGICAL factors - Abstract
Background: In England and Wales, 'approved premises' offer 24-hour staffed accommodation for high-risk offenders, most of whom are returning to the community from prison. With a move towards a standardised operating model, it is essential to be able to measure outcomes.Aims: Our aim is to collate and evaluate 'benchmarks' for approved premises.Methods: A cross-sectional, descriptive design was used to establish the impact of existing practice in all four approved premises in Wales. Data on well-being, life satisfaction, attitudes to violence and problem-solving abilities were recorded with 114 male residents (of 486), and attitudes to personality disorder and personal well-being/burnout with 30 staff (of 86), in both narrative style and according to a number of scales used within criminal justice and healthcare systems. Perceptions of environmental climate were assessed with both groups. Scores were compared with those from reference groups, including prisoners and secure hospital patients. Criminological outcomes (e.g. prison recall) were obtained for all 486 men.Results: Scores on the scales used were broadly comparable with those in relevant reference groups, but some showed floor or ceiling effects. Recall rates, whether directly from the premises or after further onward movement, were about 42% overall, comparable with those reported for similar offenders elsewhere.Conclusions: This paper provides a short battery of measurements for use as benchmarks of experience and outcomes in staffed community accommodation for high-risk men. Copyright © 2017 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR]- Published
- 2018
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21. Outcomes from the workshop 'Putting Complexity to Work - Supporting the Practitioners': implications for health care.
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Beautement, Patrick and Broenner, Christine
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ATTITUDE (Psychology) ,MEDICAL care ,MEDICAL personnel ,SYSTEMS theory ,ADULT education workshops - Abstract
Rationale People working in the health sector have been looking to complexity science to help them deal with the complex phenomena they encounter in their everyday working practice. While complexity science has assisted many in the field to look at the complex issues from a different viewpoint and explained the emergence of complex phenomena, however, practicable, pragmatic approaches and techniques have not been provided. Aims and objectives In this article, actual issues and challenges that these practitioners face and the needs they expressed during a workshop called 'Putting Complexity to Work - Supporting the Practitioners' are discussed. Conclusion As the nature of complexity offers no one single ultimate solution, the paper concludes that, for operationalizing the insights received from complexity science into their day-to-day work, practitioners in health care and other domains need to address a range of challenges that are outlined in the paper. [ABSTRACT FROM AUTHOR]
- Published
- 2012
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22. A survey of tobacco dependence treatment guidelines in 31 countries.
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Raw, Martin, Regan, Susan, Rigotti, Nancy A., and McNeill, Ann
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NICOTINE addiction treatment ,HEALTH surveys ,COST effectiveness ,QUESTIONNAIRES ,SUBSTANCE abuse ,MEDICAL care ,DRUG addiction - Abstract
Aims The Framework Convention on Tobacco Control (FCTC) asks countries to develop and disseminate comprehensive evidence-based guidelines and promote adequate treatment for tobacco dependence, yet to date no summary of the content of existing guidelines exists. This paper describes the national tobacco dependence treatment guidelines of 31 countries. Design, setting, participants A questionnaire on tobacco dependence treatment guidelines was sent by e-mail to a convenience sample of contacts working in tobacco control in 31 countries in 2007. Completed questionnaires were received from respondents in all 31 countries. During the course of these enquiries we also made contact with people in 14 countries that did not have treatment guidelines and sent them a short questionnaire asking about their plans to produce guidelines. Measurements The survey instrument was a 17-item questionnaire asking the following key questions: do the guidelines recommend brief interventions, intensive behavioural support, medications; which medications; do the guidelines apply to the whole health-care system and all professionals; do they refer explicitly to the Cochrane database; are they based on another country's guidelines; are they national or more local; are they endorsed formally by government; did they undergo peer review; who funded them; where were they published; do they include evidence on cost effectiveness of treatment? Findings According to respondents, all their countries' guidelines recommended brief advice, intensive behavioural support and nicotine replacement therapy (NRT); 84% recommended bupropion; 19% recommended varenicline; and 35% recommended telephone quitlines. Nearly half (48%) included cost-effectiveness evidence. Seventy-one per cent were supported formally by their government and 65% were supported financially by the government. Most (84%) used the Cochrane reviews as a source of evidence, 84% underwent a peer review process and 55% were based on the guidelines of other countries, most often the United States and England. Conclusion Overall, the guidelines reviewed followed the evidence base closely, recommending brief interventions, intensive behavioural support and NRT, and most recommended bupropion. Varenicline was not on the market in most of the countries in this survey when their guidelines were written, illustrating the need for guidelines to be updated periodically. None recommended interventions not proven to be effective, and some recommended explicitly against specific interventions (for lack of evidence). Most were peer-reviewed, many through lengthy and rigorous procedures, and most were endorsed or supported formally by their governments. Some countries that did not have guidelines expressed a need for technical support, emphasizing the need for countries to share experience, something the FCTC process is well placed to support. [ABSTRACT FROM AUTHOR]
- Published
- 2009
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23. The development of the West Sussex institutional care neglect risk assessment tool: a reflective analysis using Mezirow’s transformative learning framework.
- Author
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Phair, Lynne
- Subjects
FRAIL elderly ,ABUSE of older people ,MEDICAL care for older people ,MEDICAL care - Abstract
The protection of vulnerable people is becoming more understood internationally, and in the UK standards of care for frail older people is now receiving appropriate attention ( CSCI 2009, The state of social care in England 2007–2008. Commission for Social Care Inspection, London ). Although many people continue to live in their own homes, even when they are very frail, many receive long term care in institutional settings, and are dependent on the standards, practices, belief systems and culture of the staff who care for them. As society becomes more intolerant of sub standard services, more adult protection investigations are being carried out to establish whether frail people are being neglected. Within West Sussex England, the multi agency safeguarding team addressed the dilemma of how to assess the risk to other residents in a formal care setting, when concerns had been raised about a small number of people who are resident in that place. The Consultant Nurse, used intuitive and craft knowledge, including examination of clinical evidence as audit data, collected as part of her practice, to examine how to assess the risk to others in formal care settings where care had been identified as neglectful for some of the residents. This paper uses the reflective framework of Mezirow transformative learning theory ( ) to examine the development of a neglect risk assessment tool and highlight the issues identified by a consultant nurse in examining concerns about poor care and neglect in formal care settings. The final section of the paper describes the new Neglect Risk Assessment Tool developed in West Sussex, England, and offers case examples illustrating its use in practice. [ABSTRACT FROM AUTHOR]
- Published
- 2009
- Full Text
- View/download PDF
24. Evaluation of the KA24 (Knowledge Access 24) service for health- and social-care staff in London and the south-east of England. Part 1: quantitative.
- Author
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Cumbers, Barbara, Urquhart, Christine, and Durbin, Jane
- Subjects
ONLINE databases ,ONLINE information services ,ELECTRONIC information resource searching ,MEDICAL care ,MENTAL health ,PRIMARY care ,ELECTRONIC directories - Abstract
Aims and objectives: This two-part paper aims to identify the main transferable lessons learned from both the quantitative and qualitative evaluations of the Knowledge Access 24 (KA24) service of online databases and selected full-text journals for health and social care staff in London and the south-east of England. The quantitative evaluation analysed usage rates and user registration with the objective of measuring uptake by previously disadvantaged staff, and to inform the subsequent qualitative survey. Methods: User and usage data were analysed by type of NHS Trust, by type of user, and by what was being used. The evaluation assessed development in user registration and usage of both databases and journals over a 2-year period. Data were aggregated and analysed both monthly and quarterly. Results: Usage levels increased, but uptake in both the mental health and primary care sectors was comparatively slow. Nurses and allied professionals used the service more than doctors. The increase in usage of full-text journals over the usage of databases was marked. Conclusions: Previously disadvantaged staff used electronic resources. A qualitative survey was needed to identify the main enablers and barriers to uptake. [ABSTRACT FROM AUTHOR]
- Published
- 2006
- Full Text
- View/download PDF
25. Nurse consultants: their characteristics and achievements.
- Author
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Woodward VA, Webb C, and Prowse M
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NURSING consultants ,CONSULTANTS ,MEDICAL consultants ,NURSES ,NURSING ,MEDICAL care ,SICK people ,NURSING research - Abstract
Aim. This paper reports one aspect of a larger study of nursing research strategies in one English region, focusing particularly on nurse consultants' characteristics and achievements in the role. Background. Nurse consultant posts have only been established in the United Kingdom since 1999 and, although much comment has appeared in the professional literature, there is very little research-based evidence of how the roles are developing. The role is intended to integrate four domains: expert practice; professional leadership and consultancy; education, training and development; and practice and service development. Design. A cross-sectional design, using a convenience sample, was adopted. Methods. Ten nurse consultants working in a variety of settings and specialties participated in in-depth, tape-recorded interviews. The data were analysed using the Framework approach. Results. Four themes were identified from the data: characteristics of the postholder, role achievement, support systems and National Health Service influences. The first two themes are discussed in this paper and the data show that the nurse consultants varied in terms of their academic background and previous experience. Not all had the recommended minimum of Master's degree level preparation and some had limited research experience. These background characteristics seemed to influence the degree to which they were able to achieve the four domains of the role, with those with lower qualifications and from a mental health background appearing to struggle most. Conclusions. New appointments to these roles should only be made when candidates possess the recommended levels of educational preparation and professional experience of change management. It is also important that there is clarity about the scope of the role, which should not include management responsibilities. On-going research is essential to evaluate how the roles develop for postholders, the extent to which they fulfil policymakers' expectations and what difference they make to patient care from a patient perspective. Relevance to clinical practice. The findings show that holders of such posts need to have appropriate previous knowledge, skills and personal characteristics, as these seem to influence their ability to integrate the four domains of the role and thus achieve the requirements of the post. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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- View/download PDF
26. Using Information on Variation in Rates of Supply to Question Professional Discretion in Public Services.
- Author
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Bevan, Gwyn, Hollinghurst, Sandra, Benton, Peter, Spark, Vicky, Sanderson, Hugh, and Franklin, Donald
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HOSPITALS ,MUNICIPAL services ,MEDICAL care ,HEALTH facilities - Abstract
Governments face a formidable combination of principal/agent problems as third party payers for professional services. Health care is an exemplar of these difficulties. This paper develops the concept of discretionary services for acute hospitals from analysis of services with high variations in admission rates. It argues that this concept offers a way of challenging professional discretion and raising new kinds of questions over volumes and quality of services supplied. It illustrates the wider applicability of this concept with two examples: legal aid, and investigation of directors for fraud following bankruptcy. [ABSTRACT FROM AUTHOR]
- Published
- 2004
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27. Medical Spending and Hospital Inpatient Care in England: An Analysis over Time.
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Aragón, María José, Chalkley, Martin, and Rice, Nigel
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MEDICAL care costs ,MEDICAL care ,INPATIENT care ,HOSPITAL care - Abstract
Health care in England is predominantly provided free at the point of service through the publicly-funded National Health Service (NHS). Total NHS expenditure, which has risen in real terms by an average of 3.7 per cent per annum since the inception of the NHS in 1948, constituted 7.9 per cent of GDP in 2012. This paper presents a summary of the trends in medical expenditure in England together with, using detailed administrative data, an analysis of the growth over 15 years of expenditure and activity in hospital inpatient health care, which represents around 20-25 per cent of all NHS expenditure. We document the coincidence of observed trends in expenditure with reported activity, morbidity and the proximity of individuals to death. We find that: (i) expenditure for both elective and emergency inpatient care broadly follows activity, so that expenditure is mostly driven by activity rather than unit costs; (ii) expenditure is concentrated in individuals with multiple diseases, so that the prevalence and identification of complex medical conditions are important drivers of expenditure; and (iii) health care activity rises substantially for individuals in the period before death, so that expenditure is driven substantially by mortality in the population. Taken together, these findings indicate that this element of health care expenditure in England has been substantially driven by the underlying morbidity and age of the population in conjunction with improving health care technology. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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28. Socio-Economic Inequalities in Health Care in England.
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Cookson, Richard, Propper, Carol, Asaria, Miqdad, and Raine, Rosalind
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MEDICAL care ,MEDICAL care costs ,PUBLIC health ,EYE examination ,VACCINATION - Abstract
This paper reviews what is known about socio-economic inequalities in health care in England, with particular attention to inequalities relative to need that may be considered unfair ('inequities'). We call inequalities of 5 per cent or less between the most and least deprived socio-economic quintile groups 'slight', inequalities of 5-15 per cent 'moderate' and inequalities of more than 15 per cent 'substantial'. Overall public health care expenditure is substantially concentrated on poorer people. At any given age, poorer people are more likely to see their family doctor, have a public outpatient appointment, visit accident and emergency, and stay in hospital for publicly-funded inpatient treatment. After allowing for current self-assessed health and morbidity, there is slight pro-rich inequity in combined public and private medical specialist visits but not in family doctor visits. There are also slight pro-rich inequities in overall indicators of clinical process quality and patient experience from public health care, substantial pro-rich inequalities in bereaved people's experiences of health and social care for recently deceased relatives, and mostly slight but occasionally substantial pro-rich inequities in the use of preventive care (for example, dental check-ups, eye tests, screening and vaccination) and a few specific treatments (for example, hip and knee replacement). Studies of population health care outcomes (for example, avoidable emergency hospitalisation) find substantial pro-rich inequality after adjusting for age and sex only. These findings are all consistent with a broad economic framework that sees health care as just one input into the production of health over the life course, alongside many other socio-economically patterned inputs including environmental factors (for example, living and working conditions), consumption (for example, diet and smoking), self-care (for example, seeking medical information) and informal care (for example, support from family and friends). [ABSTRACT FROM AUTHOR]
- Published
- 2017
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29. Characteristics of women in a prison mental health assessment unit in England and Wales (2008-2010).
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Hales, Heidi, Somers, Nadia, Reeves, Chrissy, and Bartlett, Annie
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WOMEN'S mental health ,MENTAL health services ,MENTAL health of prisoners services ,SOCIAL conditions of women ,REFORMATORIES for women ,SOCIAL conditions in England ,SOCIAL history ,MENTAL illness treatment ,PSYCHIATRIC epidemiology ,MENTAL illness ,CORRECTIONAL institutions ,PRISONERS ,MEDICAL care ,MENTAL health ,PRISON psychology ,SELF-injurious behavior ,SUICIDE ,RELATIVE medical risk ,DISEASE prevalence ,MENTAL health services administration ,PSYCHOLOGICAL factors - Abstract
Background: The high prevalence of mental disorders among women in prison is recognised worldwide. In England and Wales, successive governments and independent reports have argued that the equivalent of community care in prisons is acceptable but that some mental health assessment units (MHAUs), staffed by professional clinicians, should remain. These have not been researched.Aims: This paper aimed to explore patterns of use of a MHAU in a women's prison in England and to test the hypothesis that it was being used only, as intended--to hold women pending transfer to a health service hospital or in a bona fide crisis.Methods: Anonymised data on all women transferred to one MHAU between 1 January 2008 and 31 August 2010 were obtained from the prison files and subjected to descriptive analysis.Results: Less than a third of these women were transferred to an outside hospital; this group stayed longest in the unit. An overlapping group of 52% of the women was under a special assessment, care in custody and teamwork protocol because of suicide or serious self-harm risk. Thus, 188 (68%) admissions fulfilled national protocol criteria for MHAU admissions. Two in five women admitted were released or returned to ordinary prison locations. Nevertheless, over 80% of the women were known to external mental health services, and 64 (30%) were so unwell on arrival in prison that they were transferred directly to the MHAU. Over a third of admissions were of women admitted more than once during the 32 months of study, and this was significantly more likely after release from prison directly to the community.Conclusions: Our hypothesis was not sustained, and it seems unlikely that this prison MHAU is unique in being used outside its strict remit. A shift from studying the epidemiology of mental disorder in prisons to the epidemiology of mental health needs could benefit this vulnerable group and the wider community alike. [ABSTRACT FROM AUTHOR]- Published
- 2016
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30. Health inequalities and access to health care for adults with learning disabilities in Lincolnshire.
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Walker, Carol, Beck, Charles R., Eccles, Richard, and Weston, Chris
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ADULTS ,MEDICAL care standards ,MEDICAL care ,FOCUS groups ,HEALTH services accessibility ,MEDICAL needs assessment ,PEOPLE with intellectual disabilities ,QUESTIONNAIRES ,THEMATIC analysis ,HEALTH equity - Abstract
Accessible summary People with learning disabilities do not live as long as other people or as long as many should., Nationally, people with learning disabilities do not get as good help when they do get ill., This paper looks at work that was conducted in Lincolnshire to see how the health of people with learning disabilities compared to the rest of the population., The report recommended changes which could be made to make things better., Summary The NHS Constitution requires all NHS organisations to provide high-quality comprehensive services, based on clinical need, which do not discriminate between patients (DH 2010a). Together with its health and social care partners, the NHS also has a statutory duty of care to meet the needs of all patients with dignity and compassion. Recent evidence has revealed sharp failures in the NHS to meet these goals in relation to people with learning disabilities nationally. This article considers the well-established evidence that the latter group have worse health experiences and worse health outcomes than the population as a whole, which significantly contributes to marked inequalities both in morbidity and mortality. The public sector equality duty of the Equality Act 2010 imposes a statutory requirement on health and social care agencies to address such inequalities. This article draws on the first systematic health needs assessment ( HNA) of adults with learning disabilities in the county of Lincolnshire, established in 2011 to identify their health needs and make recommendations for improvement. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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31. The Challenge of Implementing Peer-Led Interventions in a Professionalized Health Service: A Case Study of the National Health Trainers Service in England.
- Author
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MATHERS, JONATHAN, TAYLOR, REBECCA, and PARRY, JAYNE
- Subjects
MEDICAL care ,BEHAVIOR modification ,COMMUNITY health services administration ,CONCEPTUAL structures ,HEALTH behavior ,HEALTH promotion ,INTERVIEWING ,MEDICAL needs assessment ,HEALTH policy ,NATIONAL health services ,RESEARCH funding ,HEALTH equity ,HEALTH & social status ,UNLICENSED medical personnel - Abstract
Context In 2004, the English Public Health White Paper Choosing Health introduced 'health trainers' as new members of the National Health Service (NHS) workforce. Health trainers would offer one-to-one peer-support to anyone who wished to adopt and maintain a healthier lifestyle. Choosing Health implicitly envisaged health trainers working in community settings in order to engage 'hard-to-reach' individuals and other groups who often have the poorest health but who engage the least with traditional health promotion and other NHS services. Methods During longitudinal case studies of 6 local health trainer services, we conducted in-depth interviews with key stakeholders and analyzed service activity data. Findings Rather than an unproblematic and stable implementation of community-focused services according to the vision in Choosing Health, we observed substantial shifts in the case studies' configuration and delivery as the services embedded themselves in the local NHS systems. To explain these observations, we drew on a recently proposed conceptual framework to examine and understand the adoption and diffusion of innovations in health care systems. Conclusions The health trainer services have become more 'medicalized' over time, and in doing so, the original theory underpinning the program has been threatened. The paradox is that policymakers and practitioners recognize the need to have a different service model for traditional NHS services if they want hard-to-reach populations to engage in preventive actions as a first step to redress health inequalities. The long-term sustainability of any new service model, however, depends on its aligning with the established medical system's (ie, the NHS's) characteristics. [ABSTRACT FROM AUTHOR]
- Published
- 2014
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32. Commentary on Woodward VA, Webb C & Prowse M (2005) Nurse consultants: their characteristics and achievements. Journal of Clinical Nursing 14, 845–854.
- Author
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Redfern, Sally
- Subjects
PRIMARY care ,NURSES ,CONSULTANTS ,MEDICAL care - Abstract
The article comments on the national initiative that encourages authorities to establish nurse and consultant roles throughout England and in all areas of primary care. It has cited that the initiative also identified the factor that contribute to the achievements of consultants with respect to patient care and patient's health outcomes. The achievements reported focus more on success in developing the role than on impact of the role on outcomes for patients.
- Published
- 2006
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33. Review: Transition from children's to adult services: a review of guidelines and protocols for young people with attention deficit hyperactivity disorder in England.
- Author
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Eke, Helen, Janssens, Astrid, and Ford, Tamsin
- Subjects
ATTENTION-deficit hyperactivity disorder ,CINAHL database ,ERIC (Information retrieval system) ,MEDICAL information storage & retrieval systems ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL care ,MEDICAL quality control ,MEDICAL protocols ,MEDLINE ,MENTAL health ,SYSTEMATIC reviews ,SEARCH engines - Abstract
Background: In recent years, the difficulty for young people with mental health issues who require a transition to adult services has been highlighted by several studies. In March 2018 the National Institute of Health and Care Excellence (NICE) produced detailed guidelines for the diagnosis and management of attention deficit hyperactivity disorder (ADHD), updated from previous versions in 2008 and 2016, which included general recommendations for transition to an adult service. Yet, there is limited research on transition specifically for those with ADHD. This review aims to systematically identify, review and compare guidelines, specifically focussed on transition for young adults with ADHD within England. Methods: Following the general principles for systematic reviewing as published by the University of York, 10 electronic databases were searched. Further documents were identified through searches of grey literature and additional sources. Results: Sixteen documents were included. Results indicate very limited publically accessible guidelines in England for transition of young people with ADHD. Nearly all identified documents based their recommendations for transition on the existing NICE guidelines. Neurodevelopmental conditions such as ADHD are often encompassed within one overarching health policy rather than an individual policy for each condition. Conclusions: Guidelines should be available and accessible to the public in order to inform those experiencing transition; adjusting the guidelines to local service context could also be beneficial and would adhere to the NICE recommendations. Further review could examine transition guideline policies for mental health in general to help identify and improve current practice. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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- View/download PDF
34. Individual Characteristics and Service Expenditure on Challenging Behaviour for Adults with Intellectual Disabilities.
- Author
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Hassiotis, Angela, Parkes, Charles, Jones, Lee, Fitzgerald, Brian, and Romeo, Renee
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PEOPLE with intellectual disabilities ,MENTAL illness ,BEHAVIOR ,MEDICAL care costs ,MEDICAL care ,MENTAL health services - Abstract
Background English policy argues that people with intellectual disabilities should be supported in their local communities. There is considerable evidence that this aspiration is not being achieved. This paper seeks to look at the subsection of people with intellectual disabilities who have expensive care needs because of challenging behaviour, to identify the decision-making processes that have led to current service provision and expenditure and to suggest improvements. Materials and Methods We carried out a survey within five North London boroughs to investigate the characteristics of a cohort of people with intellectual disabilities and challenging behaviour in high-cost accommodation (over £70 000/annum). Postal questionnaires and face-to-face interviews were conducted with stakeholders with intellectual disabilities and patterns of current costs were estimated from existing data provided by the commissioning authorities in the five boroughs. Results Two hundred and five individuals with intellectual disabilities and challenging behaviour were identified. They were accommodated in placements provided by 97 separate providers, both in and out-of-area. Those more likely to be placed out-of-area were younger, had multiple health problems, significant challenging behaviour and mental health problems including autistic spectrum disorders. The local community intellectual disabilities teams identified a number of difficulties in meeting the needs of those service users. Conclusions Expenditure on all placements for service users with intellectual disabilities is significant. There is a notable lack of investment in local service development. A coherent approach is required, often across service boundaries. The authors suggest a model for targeted investment aimed at supporting effective local services, and reducing the need for and expense of out-of-area placements. [ABSTRACT FROM AUTHOR]
- Published
- 2008
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35. Operational efficiency of health care in police custody suites: comparison of nursing and medical provision.
- Author
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Bond P, Kingston P, and Nevill A
- Subjects
MEDICAL care ,HEALTH practitioners ,POLICE ,NURSING - Abstract
Aim. This paper is a report of a study to examine the operational impact of a police custody nursing service on healthcare delivery in one police service in the north of England. Background. Medical practitioners, trained specifically for the role of forensic medical examiner, have traditionally provided forensic and custodial medical services. However, there is a trend for police authorities in the United Kingdom to replace forensic medical examiners with custody nurses. Restructuring health care in police custody suites to a multidisciplinary team approach is a practical response to the challenges faced by an overburdened service. However, very few evaluations of the impact of a nursing addition to forensic medical services have been published. Method. One nursing service was evaluated by comparing performance indicators over a 6-months period with retrospective data from records of the traditional forensic medical examiner service. Data were extracted from 9000 calls made by the police for medical assistance across five police stations, and analysed for response and consultation times. Five custody nurses, 20 custody officers and six forensic medical examiners were also interviewed, and the study was conducted in 2003. Findings. In comparison to the traditional service, nurses demonstrated faster response times, comparable consultation times, and were perceived by custody staff as more approachable than their medical colleagues in providing handover information. Conclusion. As nurses take on the roles previously performed by medical colleagues, so it will become increasingly important to define role boundaries and assess the impact on the quality of care of detainees. [ABSTRACT FROM AUTHOR]
- Published
- 2007
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36. Evaluation of the KA24 (Knowledge Access 24) service for health and social care staff in London and the south-east of England. Part 2: qualitative.
- Author
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Urquhart, Christine, Durbin, Jane, and Cumbers, Barbara
- Subjects
HEALTH outcome assessment ,ONLINE databases ,QUALITATIVE research ,MEDICAL care ,GOAL (Psychology) ,QUESTIONNAIRES ,DIGITAL libraries - Abstract
Aims and objectives: The aim of this two-part paper is to identify the main transferable lessons learned from both the quantitative and qualitative evaluations of the KA24 (Knowledge Access 24) service of online databases and selected full-text journals for health and social care staff in London and the south-east of England. The objectives of the qualitative evaluation were to assess the enablers and barriers to usage, and to assess the impact of the service on patient care. Methods: Telephone interviews ( n = 65) and a questionnaire survey ( n = 296) were conducted with various types of user, in various Trust settings. Some non-users were also contacted. Selection of interviewees and questionnaire recipients was not random, and aimed to cover all groups of users representatively. Results: Results show that policy goals were being delivered, with indications of changes to clinical practice, and improved clinical governance. Promotion, training and support needs to be extensive, and tailored to needs, but users are not always aware they need training. The sharing of passwords cast doubts on the reliability of some usage data. Conclusions: Digital health library services, delivered at the point of care, are changing the way some clinicians practise. A combination of qualitative and quantitative evaluation methods are needed to assess digital library services. [ABSTRACT FROM AUTHOR]
- Published
- 2006
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37. ‘I've been like a coiled spring this last week’: embodied masculinity and health.
- Author
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Robertson, Steve
- Subjects
PREVENTIVE health services ,COMMUNITY health workers ,MASCULINITY ,MEN'S health ,SOCIAL psychology ,WELL-being ,SOCIAL interaction ,MEDICAL care ,PUBLIC health - Abstract
This paper draws on research exploring lay men's and community health professionals’ attitudes towards ‘masculinity’ and ‘preventative health care’ conducted in the northwest of England. It is specifically concerned with the findings from the men's narratives that relate to male embodiment and the relevance of this to health and wellbeing. Whilst there is a burgeoning interest in the ‘sociology of the body’ it is only relatively recently that debates about embodiment have been supported by empirical research. Empirical work on male embodiment remains minimal and even less work has been done in considering the links between masculinity, embodiment and health. A series of focus groups and interviews were conducted with men that captured narratives about the lived (male) body in everyday life and its relation to health. These data allowed for greater insight into Watson's (2000 ) previous empirical work on the ‘male body schema’. Current findings presented here suggest that male bodies need to be considered as both material and representational, and that these two modes are not distinct but continually interact, with each other and with men's conceptualisations of health, to influence health practices and wider social interactions that impact on health and wellbeing. [ABSTRACT FROM AUTHOR]
- Published
- 2006
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38. Buying in specialist time or buying out generalist time for practice development.
- Author
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Carr, Susan M., Lhussier, Monique, and Wilcockson, Jane
- Subjects
- *
MEDICAL care , *PRIMARY care , *MEDICAL personnel , *HOSPICE care - Abstract
This paper is a description of two approaches to the implementation of an end of life integrated care pathway in the north east of England. It draws on an evaluation of the introduction of the pathway to explore the transference of knowledge held by the specialist palliative care team to local ownership by primary health care team members. It reports a successful practice development change and details how neighbouring primary care trusts developed two models for managing the resources of time and expertise. One opted to buy in specialist practitioner time, the other to buy out generalist time. The paper focuses on the lessons learned from these two experiences of facilitation of change. There is already a literature base detailing factors influencing successful care pathway implementation. This discussion adds another dimension to this literature in exploring how a range of success criteria is packaged in two different approaches to practice development. The resource of time is a central factor in achieving practice development success. However, buying time resource should not be seen as a panacea to overcoming practice development barriers. Other factors such as clear leadership, good education and communication are also required to provide an environment conducive to facilitating practice development. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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- View/download PDF
39. Quality criteria for patient advice and liaison services: what do patients and the public want?
- Author
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Abbott, Stephen, Meyer, Julienne, Copperman, Jeannette, Bentley, Jane, and Lanceley, Anne
- Subjects
PATIENTS ,PHYSICIAN-patient relations ,MEDICAL care ,PUBLIC health ,HEALTH - Abstract
Every NHS trust and Primary Care Trust (PCT) in England now has a Patient Advice and Liaison Service (PALS) which provides an identifiable person to whom service users can turn if they have a problem or need information while using the NHS. This paper reports data from a 2-year qualitative study of London PALS.To develop patient-centred criteria by which to assess PALS.Data were generated from qualitative interviews with 15 PALS service users and 15 members of local user/carer organizations, and from a workshop with representatives of 14 user/carer organizations (national and London-wide). Emergent findings were circulated to other user/carer organizations (n = 32) for critique and comment.Findings suggest that users and their representatives want PALS to: be responsive to the needs and wishes of individuals; be accessible to all sections of the community, including older people, ethnic minorities and groups with special needs; offer clear, accurate and comprehensive information about local health and other services; work with their NHS organization to create a more patient-centred service; collaborate effectively with other organizations; be adequately resourced.These criteria resemble the national standards for PALS compiled by the Department of Health, with the exception of the need for adequate resourcing. They also resemble previous work on users’ and carers’ criteria for service delivery. Interestingly, PALS’ lack of independence was not a major concern, though clients do need access to independent advocacy when‘insider’ trouble-shooting fails. Although an alternative to the adversarial approach of complaints is welcome, PALS, like complaints procedures, may be under-used by marginalized or demoralized service users. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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40. Nursing attitudes towards acute mental health care: development of a measurement tool.
- Author
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Baker, John A., Richards, David A., and Campbell, Malcolm
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NURSES' attitudes ,MENTAL health services ,NURSING ,SICK people ,MEDICAL care - Abstract
baker j.a., richards d.a.&campbell m. (2005) Journal of Advanced Nursing49(5), 522–529Nursing attitudes towards acute mental health care: development of a measurement toolThis paper reports the development, piloting and validation of a tool to measure attitudes for use with nursing staff working in acute mental health care units.The quality of care provided for service users in acute mental health care has come under both scrutiny and severe criticism. The attitudes of staff working in these environments have been cited as a contributory factor in poor care. No measure of attitudes specific to acute mental health has been reported.A 64-question measure was constructed and distributed to a sample of qualified and unqualified nurses drawn from seven mental health care units in the North of England. Exploratory factor analysis and a number of other statistical tests were performed to validate the questionnaire.Preliminary analysis reduced the original 64 questions to 37. Five components were retained, accounting for 42% of the variance, and the five rotated factors were identified. The resultant‘Attitudes Towards Acute Mental Health Scale’ (ATAMHS) achieved good internal reliability, with a Cronbach's alpha of 0·72.The construction and validation of the ATAMHS measure will enable improved understanding of the attitudes of nursing staff working in acute mental health care settings to occur. This measure is available for use in a clinical area of nursing in which attitude change is of fundamental importance for future development of care. [ABSTRACT FROM AUTHOR]
- Published
- 2005
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41. Health‘care’ interventions: making health inequalities worse, not better?
- Author
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Hart, Angie and Freeman, Marnie
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MEDICAL care ,PATIENT-professional relations ,EGO (Psychology) ,PSYCHOSOCIAL factors - Abstract
hart a.&freeman m. (2005) Journal of Advanced Nursing49(5), 502–512Health‘care’ interventions: making health inequalities worse, not better?The aim of this paper is to present a model, the‘Effect of the Professional Ego’, which provides a psychodynamically informed analytical framework for examining professional practice in arenas where issues of inequalities need to be addressed.There is a great deal of literature on the psychosocial aspects of inequalities in health care provision. However, the impact of intrapsychic and professional cultural elements has not been explored in this context. Moreover, the body of work which does explore these elements in relation to health care workers does not address how they might impact on health inequalities.Drawing on empirical work, we discuss ways in which intrapsychic and professional cultural elements feed into the dynamic between clients and health care professionals in a way which can subvert espoused, positive client health outcomes. Based on this discussion, we propose the Effect of the Professional Ego model, which identifies two main aspects of the professional ego– the grandiose self and self-preservation– and how they influence the professional/client dynamic.Systematic self-reflection on the part of professionals would be a valuable contribution to the development of professional practice. This applies particularly to conceptualizing the links between the actions of service providers and the adverse health of clients. [ABSTRACT FROM AUTHOR]
- Published
- 2005
- Full Text
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42. Grounded citizens’ juries: a tool for health activism?
- Author
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Kashefi, Elham and Mort, Maggie
- Subjects
PRIMARY care ,GERIATRICS ,DECISION making ,MEDICAL care ,PUBLIC health - Abstract
involving the public in decision-making has become a bureaucratic pre-occupation for every health agency in the UK. In this paper we offer an innovative approach for local participation in health decision-making through the development of a `grounded' citizens' jury. We describe the process of one such jury commissioned by a Primary Care Group in the north-west of England, which was located in an area suffering intractable health inequalities. Twelve local people aged between 17 and 70 were recruited to come together for a week to hear evidence, ask questions and debate what they felt would improve the health and well-being of people living in the area. The jury process acted effectively as a grass-roots health needs assessment and amongst other outcomes, resulted in the setting up of a community health centre run by a board consisting of members of the community (including two jurors) together with local agencies. The methodology described here contrasts with that practiced by what we term `the consultation industry', which is primarily interested in the use of fixed models to generate the public view as a standardized output, a product, developed to serve the needs of an established policy process, with little interest in effecting change. We outline four principles underpinning our approach: deliberation, integration, sustainability and accountability. We argue that citizens' juries and other consultation initiatives need to be reclaimed from that which merely serves the policy process and become `grounded', a tool for activism, in which local people are agents in the development of policies affecting their lives. [ABSTRACT FROM AUTHOR]
- Published
- 2004
- Full Text
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43. Governmentality by Network in English Primary Healthcare.
- Author
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Sheaff, Rod, Marshall, Martin, Rogers, Anne, Roland, Martin, Sibbald, Bonnie, and Pickard, Susan
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HEALTH policy ,MEDICAL care ,FAMILY medicine ,MEDICAL offices ,GENERAL practitioners ,GOVERNMENT policy - Abstract
In England, the quality of clinical work is being regulated in new ways following recent developments in “clinical governance” policy and apparent failures in the previous system of medical self-regulation. Using multiple case studies, this paper examines how these changes are affecting professional governmentality and discipline in general practice. Formal organizational structures play little role in clinical governance there. Clinical quality is managed largely through semi-formal networks, relying on medical self-surveillance. Compliance is achieved largely by discursive appeals to the legitimacy of clinical governance, but local GPs’ leaders also argue that governments might otherwise regulate medical practice more actively. As yet the effects of clinical governance activity on service delivery are slight. Professional self-regulation is replacing permissive exception management with more collegial, directive methods. [ABSTRACT FROM AUTHOR]
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- 2004
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44. Is GP Restratification Beginning in England?
- Author
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Sheaff, Rod, Smith, Keri, and Dickson, Marny
- Subjects
SOCIAL policy ,MEDICAL care ,PRIMARY care ,COMMUNITY health services ,CARING ,FAMILY medicine - Abstract
English National Health Service general practice is being restructured through the introduction of primary care groups (PCGs) and trusts (PCTs), and the personal medical services (PMS) schemes. Theories of GPs’ professional organization have to be modernized accordingly. Past theories have tended to concentrate on the occupational level rather than consider the effects of different forms of market and quasi–market on practitioners’ income and their ability to control their everyday practice. This paper extends the theory of professionalization, as an occupational group’s strategy for control over its work, to cover these matters, and thereby hypothesizes an explanation of GP responses to current changes in NHS primary health care. Case study data from four PCGs and four PMS pilots suggest that general practitioners are responding in some cases by defending enclaves of traditional general practice; in others by concentrating on clinical rather than managerial interests; and in others again by forming a new dominant coalition with NHS managers. Restratification seems to be beginning in NHS general practice although other policy developments may yet prevent it. Researchers should monitor this potentially important change as PCTs form. [ABSTRACT FROM AUTHOR]
- Published
- 2002
- Full Text
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45. Calman–Hine reassessed: a survey of cancer network development in England, 1999–2000.
- Author
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PhD, Beth Kewell BA and PhD, Ewan Ferlie BA
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CANCER ,MEDICAL care - Abstract
Abstract Rationale, aims and objectives The paper assesses preliminary national data on the development of cancer care networks in England. Methods In January 2000, a national postal survey was sent to lead clinicians at 36 cancer centres and associate centres. Respondents were asked to provide basic numerical data on the design of the network (i.e. its configuration), detailing how many units it encompassed, and whether the centre was a multiple or a single entity. Results The survey highlighted national variations in the size and configuration of networks. The survey also highlighted tentative signs of shifts in clinical practice. The results showed that consultants at cancer centres and units were engaging in two forms of collaboration across centre–unit boundaries. Type 1 involved routine multidisciplinary team (MDT) outreach from centres to units, incorporating joint planning between clinicians at cancer centres and cancer units. Type 2 collaboration involved joint planning but also promoted joint centre and unit training and continuing professional development (CPD) programmes. Conclusions In our estimation, both forms of collaboration represented early evidence of qualitative changes in medical working practices. Organizational changes within cancer services have moved swiftly since initial soundings were taken in 2000 and we update our initial commentary in the light of recent empirical data. The findings may be of wider significance to managers and health practitioners who are working towards the implementation of delivery network elsewhere in the UK National Health Service. [ABSTRACT FROM AUTHOR]
- Published
- 2002
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46. Autonomy and bureaucratic accountability in primary care: what English general practitioners say.
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Harrison, Stephen and Dowswell, George
- Subjects
PRIMARY care ,GENERAL practitioners ,MEDICAL care ,FAMILY medicine ,GOVERNMENT policy - Abstract
Clinical autonomy has long been seen as conceptually central to the analysis of the occupational status of the medical profession, though the implications for this of recent developments in health care managerialism have been disputed by theorists. In particular, the question has arisen as to whether ‘restratification’, that is, the active involvement of physicians in this process, should be construed as medical élites exerting control over the rank and file in order to protect the profession as a whole, or as an incursion from outside it. This paper uses interview data from 49 general medical practitioners in Northern England. It investigates their perceptions of how current government policies, and the new institutions and governance arrangements that they have created impact on physicians’ ability to set their own limits and to judge their own work. We found a clear acceptance by GPs of the need to discharge ‘bureaucratic accountability’, in particular to maintain records of their clinical decisions. This provides the possibility of external surveillance of medical work, and thus implies a clear reduction in autonomy over the content of medical work on the part of rank-and-file GPs, who may regret this situation but offer little resistance to it. Our findings illustrate a form of restratification; the most frequently reported immediate source of pressure to modify casenote recording was the Primary Care Group (PCG), an organisation constitutionally dominated by physicians acting in a managerial capacity. Nevertheless, the agendas of PCGs are largely driven by central government and our study thus provides further evidence of the intermediary or contingent (rather than independent) character of professional autonomy. [ABSTRACT FROM AUTHOR]
- Published
- 2002
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47. People with intellectual disabilities on probation: an initial study.
- Author
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Jonathan Mason, Paul and Glynis H. Murphy, Paul
- Subjects
MENTAL efficiency ,MEDICAL care ,PROBATION ,INTELLECT ,PUBLIC health - Abstract
The two studies in this paper aim to investigate the prevalence and characteristics of people with intellectual disabilities in the probation service in England. Study one screened the abilities of a sample of 70 probationers in one single probation service. Study two compares a sub-set of these to an equal number of control participants in order to further investigate the characteristics of those with intellectual disability on probation. Nearly 6% of service users appeared to have an intellectual disability, and 11% fell into the bottom 5% of the general population in terms of their intellectual and social functioning. We conclude that a significant minority of those in the probation service have an intellectual disability or similar needs. Copyright © 2002 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR]
- Published
- 2002
- Full Text
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48. A Nurse Practitioner-Led Farmers' Health Service: Setting Up and Evaluating a UK Project.
- Author
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Walsh, Mike
- Subjects
FARMERS ,NURSE practitioners ,MEDICAL care - Abstract
ABSTRACT The farming community in the UK have significant unmet health-care needs that have traditionally remained invisible. The project that is the subject of this paper is an attempt to improve access to health care for farmers and make their needs visible. It is based in an upland area of England and involves two nurse practitioners (NPs) and two support workers who provide health care for the farming community. The main targets of the project are farm accidents, mental health and occupational diseases. The NPs visit farms, on request, for consultations and also attend auction marts, agricultural shows and other farmers’ meetings. Evaluation is by a telephone follow-up interview with a sample of clients seen by the NP, who will be compared with a group from a similar area who do not receive the service. A farm accident survey is underway, case notes are being audited and the NPs are keeping a reflective diary as further sources of data. [ABSTRACT FROM AUTHOR]
- Published
- 2000
- Full Text
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49. How to assess pharmacogenomic tests for implementation in the NHS in England.
- Author
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Sanghvi, Sonali, Ferner, Robin E., Scourfield, Andrew, Urquhart, Robert, Amin, Sejal, Hingorani, Aroon D., and Sofat, Reecha
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LITERATURE reviews ,PHARMACOGENOMICS ,MEDLINE ,MEDICAL care ,NANOMEDICINE - Abstract
Aims: Pharmacogenomic testing has the potential to target medicines more effectively towards those who will benefit and avoid use in individuals at risk of harm. Health economies are actively considering how pharmacogenomic tests can be integrated into health care systems to improve use of medicines. However, one of the barriers to effective implementation is evaluation of the evidence including clinical usefulness, cost‐effectiveness, and operational requirements. We sought to develop a framework that could aid the implementation of pharmacogenomic testing. We take the view from the National Health Service (NHS) in England. Methods: We used a literature review using EMBASE and Medline databases to identify prospective studies of pharmacogenomic testing, focusing on clinical outcomes and implementation of pharmacogenomics. Using this search, we identified key themes relating to the implementation of pharmacogenomic tests. We used a clinical advisory group with expertise in pharmacology, pharmacogenomics, formulary evaluation, and policy implementation to review data from our literature review and the interpretation of these data. With the clinical advisory group, we prioritized themes and developed a framework to evaluate proposals to implement pharmacogenomics tests. Results: Themes that emerged from review of the literature and subsequent discussion were distilled into a 10‐point checklist that is proposed as a tool to aid evidence‐based implementation of pharmacogenomic testing into routine clinical care within the NHS. Conclusion: Our 10‐point checklist outlines a standardized approach that could be used to evaluate proposals to implement pharmacogenomic tests. We propose a national approach, taking the view of the NHS in England. Using this approach could centralize commissioning of appropriate pharmacogenomic tests, reduce inequity and duplication using regional approaches, and provide a robust and evidence‐based framework for adoption. Such an approach could also be applied to other health systems. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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50. Nursing the statistics: a demonstration study of nurse turnover and retention.
- Author
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Barry JT, Soothill KL, and Francis BJ
- Subjects
WORKFORCE planning ,NURSES ,MEDICAL care - Abstract
This paper demonstrates how a health authority can use personnel records of nurses' working histories as an effective tool in manpower planning. Suggestions are given as to how these histories might be analysed and interpreted. Methods described range from the use of simple summary statistics and graphical methods to advanced statistical modelling techniques. Data from a study by researchers at the Centre for Applied Statistics and Department of Sociology at Lancaster University are used to give examples of these approaches. A description is also given of the practical difficulties experienced when attempting to extract the appropriate data from the health authority's personnel records. [ABSTRACT FROM AUTHOR]
- Published
- 1989
- Full Text
- View/download PDF
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