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2. SAGES White Paper on the importance of diversity in surgical leadership: creating the fundamentals of leadership development (FLD) curriculum.
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Shao, Jenny M., Bingener, Juliane, Alimi, Yewande, Puri, Ruchir, McHugh, Kim, Gomez-Garibello, Carlos, Shim, Joon K., Collins, Courtney, Sylla, Patricia, and Qureshi, Alia P.
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CURRICULUM evaluation , *NONPROFIT organizations , *DIVERSITY & inclusion policies , *PHILOSOPHY of education , *MEETINGS , *RESEARCH funding , *LEADERSHIP , *WORK environment , *MEDICAL care , *NEGOTIATION , *CONFLICT (Psychology) , *QUESTIONNAIRES , *LEARNING , *GOAL (Psychology) , *PROBLEM solving , *TEACHING methods , *OPERATIVE surgery , *SURVEYS , *PROFESSIONS , *CURRICULUM planning , *PROBLEM-based learning , *COMMUNICATION , *ONLINE education , *CONCEPTUAL structures , *MEDICAL practice , *HEALTH care teams , *PROFESSIONAL competence , *GROUP process , *COMMITTEES - Abstract
Background: The Society of American Gastrointestinal and Endoscopic Surgeons (SAGES) has long recognized and championed increasing diversity within the surgical workplace. SAGES initiated the Fundamentals of Leadership Development (FLD) Curriculum to address these needs and to provide surgeon leaders with the necessary tools and skills to promote diversity, equity, and inclusion (DEI) in surgical practice. In 2019, the American College of Surgeons issued a request for anti-racism initiatives which lead to the partnering of the two societies. The primary goal of FLD was to create the first surgeon-focused leadership curriculum dedicated to DEI. The rationale/development of this curriculum and its evaluation/feedback methods are detailed in this White Paper. Methods: The FLD curriculum was developed by a multidisciplinary task force that included surgeons, education experts, and diversity consultants. The curriculum development followed the Analysis, Design, Development, Implementation and Evaluation (ADDIE) instructional design model and utilized a problem-based learning approach. Competencies were identified, and specific learning objectives and assessments were developed. The implementation of the curriculum was designed to be completed in short intervals (virtual and in-person). Post-course surveys used the Kirkpatrick's model to evaluate the curriculum and provide valuable feedback. Results: The curriculum consisted of interactive online modules, an online discussion forum, and small group interactive sessions focused in three key areas: (1) increasing pipeline of underrepresented individuals in surgical leadership, (2) healthcare equity, and (3) conflict negotiation. By focusing on positive action items and utilizing a problem-solving approach, the curriculum aimed to provide a framework for surgical leaders to make meaningful changes in their institutions and organizations. Conclusion: The FLD curriculum is a novel leadership curriculum that provided surgeon leaders with the knowledge and tools to improve diversity in three areas: pipeline improvement, healthcare equity, and conflict negotiation. Future directions include using pilot course feedback to enhance curricular effectiveness and delivery. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Freehand drawing activity: a comparison between tablet-finger vs paper&crayon throughout time.
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Paule Ruiz, MPuerto, Sánchez Santillán, Miguel, and Pérez-Pérez, Juan Ramón
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MOBILE apps , *MOTOR ability , *PORTABLE computers , *GRAPHIC arts , *PHYSIOLOGICAL adaptation , *DATA analysis , *RESEARCH funding , *DRAWING , *CLINICAL trials , *INTERVIEWING , *DESCRIPTIVE statistics , *CHI-squared test , *CREATIVE ability , *TEACHERS , *ONLINE education , *COLLEGE teacher attitudes , *ANALYSIS of variance , *STATISTICS , *COMPARATIVE studies , *VISUAL perception , *DATA analysis software , *CHILDREN - Abstract
The apps for drawing are present in our children's life. Nevertheless, little is known about the impact of mobile technology on the freehand drawing educational activity. There are few works which are contextualised within short periods of time, with teachers who are not theirs and, in some cases, outside the children's classroom. In this paper, we are focussed on the use of technology on freehand drawing activity. Thus, we have compared the graphics produced by 4- and 5-year-old children with paper&crayon in comparison with those with tablet-finger. Children made the drawings during a planned free-drawing activity, in their ordinary classrooms, with their teachers and during five sessions. Assessment of drawings has evidenced tablet feasibility for making graphics. Nevertheless, with the passing of time, quality of graphics (tablet-finger vs paper&crayons), are nearly matched, demonstrating the low impact level technology has on this activity. In addition, if drawings are analysed specifically according to ages, results have shown that both groups have to develop adaptation strategies of visual perceptual skills and fine motor skills for the touch screen in order to obtain the same quality in the drawings made on both support types. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Dissemination effect of data papers on scientific datasets.
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Jiao, Hong, Qiu, Yuhong, Ma, Xiaowei, and Yang, Bo
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PROFESSIONAL peer review , *PUBLISHING , *ONLINE information services , *SERIAL publications , *NATURAL language processing , *CONTENT mining , *CITATION analysis , *INFORMATION resources , *RESEARCH funding , *MEDLINE , *MEDICAL research - Abstract
Open data as an integral part of the open science movement enhances the openness and sharing of scientific datasets. Nevertheless, the normative utilization of data journals, data papers, scientific datasets, and data citations necessitates further research. This study aims to investigate the citation practices associated with data papers and to explore the role of data papers in disseminating scientific datasets. Dataset accession numbers from NCBI databases were employed to analyze the prevalence of data citations for data papers from PubMed Central. A dataset citation practice identification rule was subsequently established. The findings indicate a consistent growth in the number of biomedical data journals published in recent years, with data papers gaining attention and recognition as both publications and data sources. Although the use of data papers as citation sources for data remains relatively rare, there has been a steady increase in data paper citations for data utilization through formal data citations. Furthermore, the increasing proportion of datasets reported in data papers that are employed for analytical purposes highlights the distinct value of data papers in facilitating the dissemination and reuse of datasets to support novel research. [ABSTRACT FROM AUTHOR]
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- 2024
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5. From plagiarism to scientific paper mills: a profile of retracted articles within the SciELO Brazil collection.
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Santos-d'Amorim, Karen, Wang, Ting, Lund, Brady, and Macedo Dos Santos, Raimundo Nonato
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DATABASES , *CORRUPTION , *PUBLISHING , *PLAGIARISM , *SERIAL publications , *MANUFACTURING industries , *BIBLIOGRAPHIC databases , *BIBLIOMETRICS , *ORGANIZATIONAL behavior , *BIBLIOGRAPHY , *FRAUD , *ELECTRONIC publishing , *CITATION analysis , *BIBLIOGRAPHICAL citations , *RESEARCH funding , *MEDICAL literature - Abstract
This paper investigates retracted articles indexed in the Scientific Electronic Library Online (SciELO) Brazil, using bibliometric techniques to identify the characteristics of these retractions and relevant citation trends. All records of retracted articles from the first record in October 2004 to April 2022 were included. Sixty-seven retractions and 870 citations pre- and post-retraction were analyzed. Results indicate a change of scenario that began in 2015, with recurrences of retracted articles allegedly produced by paper mills. The prevalence of retractions derived from professional misconduct in health research and the frequency of post-retraction citations in health sciences raise concerns in the chain of stakeholders, public health, and scientific development. [ABSTRACT FROM AUTHOR]
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- 2024
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6. The association between research funding status and clinical research papers’ citation impact in Japan: A cross-sectional bibliometric study
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Fumito Morisawa, Yuji Nishizaki, Patrick Devos, Naotake Yanagisawa, Kotone Matsuyama, Yasuhiro Homma, Rieko Ueda, Miwa Sekine, Hiroyuki Daida, Tohru Minamino, and Shoji Sanada
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clinical research ,research funding ,citation impact ,SIGAPS ,category normalized citation impact ,bibliometrics ,Medicine (General) ,R5-920 - Abstract
IntroductionStudies have not sufficiently clarified the differences in citation impact between funded and non-funded clinical research papers. Hence, this study seeks to evaluate the relation between research funding status and clinical research papers’ citation impact in different research fields using multiple evaluation indices.MethodsIn this cross-sectional bibliometric study, clinical research papers published by core clinical research hospitals in Japan were compared retrospectively in terms of times cited (TC), category normalized citation impact (CNCI), citation percentile (CP), journal impact factor (JIF), the Software to Identify, Manage, and Analyze Scientific Publications (SIGAPS) category, and whether they were the funded clinical research. The association between research funding status or the SIGAPS category and CNCI ≥ 2 was analyzed using logistic regression analysis.Results11 core clinical research hospitals published 553 clinical research papers, of which 120 were non-funded and 433 were funded (public institution-funded and industry-funded). The study found that funded clinical research papers (public institution-funded and industry-funded) had significantly higher TC, CNCI, CP, and JIF than non-funded ones [TC: 8 (3–17) vs. 14 (8–31), p < 0.001; CNCI: 0.53 (0.19–0.97) vs. 0.87 (0.45–1.85), p < 0.001; CP: 51.9 (24.48–70.42) vs. 66.7 (40.53–88.01), p < 0.001; JIF: 2.59 (1.90–3.84) vs. 2.93 (2.09–4.20) p = 0.008], while the proportion of A or B rank clinical research papers of the SIGAPS category was not significantly different between the two groups (30.0 vs. 34.9%, p = 0.318). In the logistic regression analysis, having a CNCI ≥ 2 was significantly associated with research funding (public institution-funded and industry-funded) and publication in A or B rank journals of the SIGAPS category [research funding: Estimate 2.169, 95% confidence interval (CI) 1.153–4.083, p = 0.016; SIGAPS category A/B: Estimate 6.126, 95% CI 3.889–9.651, p < 0.001].ConclusionAnalysis via multiple indicators including CNCI and the SIGAPS category, which allows for a comparison of the papers’ citation impact in different research fields, found a positive relation between research funding status and the citation impact of clinical research papers.
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- 2022
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7. Validation of the Electronic Compassion Competence Scale: Paper-and-Pencil versus Web-Based Questionnaires.
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Hyoung Eun Chang, Youngjin Lee, and Sunyoung Jung
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STATISTICS ,EXPERIMENTAL design ,RESEARCH evaluation ,STATISTICAL reliability ,RESEARCH methodology evaluation ,CROSS-sectional method ,RESEARCH methodology ,COMPASSION ,RANDOMIZED controlled trials ,PEARSON correlation (Statistics) ,CLINICAL competence ,QUESTIONNAIRES ,RESEARCH funding ,INTRACLASS correlation ,DESCRIPTIVE statistics ,STATISTICAL sampling ,CROSSOVER trials ,NURSING students ,DATA analysis software - Abstract
Purpose: This study aimed to determine the validity and reliability of the electronic Compassion Competence Scale (e-CCS). Methods: A cross-sectional, randomized, two-period crossover design was used. Nursing students from four South Korean universities were surveyed between June 2017 and April 2018. The participants were randomly assigned to one of three groups-paper/paper, electronic/electronic, and paper/electronic or electronic/paper-and a test-retest procedure was implemented. The reliability and validity of the e-CCS were evaluated using linear weighted kappa coefficients and intraclass correlation coefficients (ICCs). Internal consistency reliability was verified using linear weighted kappa coefficients and ICCs. Pearson's correlation coefficients between the initial test and retest scores were all statistically significant. Results: The newly developed e-CCS was found to have good reliability and validity. We suggest that future research should increase sample heterogeneity by recruiting diverse age groups, nurses working in different nursing fields, and students from multiple colleges. Conclusion: This electronic instrument will help determine the differences in the level of compassion competence and devise interventions to improve compassion competence in nurses and nursing students. Further studies on enhancing compassion competence among nurses and nursing students may rely on the use of this electronic format. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Comparison between digital and paper urine color to assess hydration status.
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Sekiguchi, Yasuki, Martin, David G., Yoshihara, Ayami, and Casa, Douglas J.
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HYDRATION ,STATISTICS ,HEAT ,RESEARCH evaluation ,URINE ,SPECIFIC gravity ,OXYGEN consumption ,COMPARATIVE studies ,DEHYDRATION ,DESCRIPTIVE statistics ,RESEARCH funding ,URINALYSIS ,DATA analysis ,OSMOLAR concentration ,STATISTICAL correlation ,DIGITAL diagnostic imaging ,COLOR ,PORTABLE computers - Abstract
Purpose: The purpose of this study was to investigate associations between digital urine color and paper urine color with other urine indices to assess hydration status. Methods: Twelve male subjects (mean ± standard deviation; age, 26 ± 8 years; body mass, 57.8 ± 5.3 kg; height, 177.5 ± 8.9 cm; VO
2max , 57.8 ± 5.8 ml·kg−1 ·min−1 ) performed four exercise trials in the heat. Before and following exercise trials, subjects provide urine samples. Urine samples were measured using a digital urine color chart on a portable device screen. Urine samples were also assessed with urine specific gravity (USG), urine osmolality (UOsmo), and a validated paper urine color chart. Results: There were extremely large associations found between digital urine color and paper urine color (r = 0.926, p < 0.001). Correlation coefficients showing associations with USG and UOsmo were similar between digital urine color (USG, r = 0.695, p < 0.001; UOsmo, r = 0.555, p < 0.001) and paper urine color (USG, r = 0.713, p < 0.001; UOsmo, r = 0.570, p < 0.001). Bland–Altman analysis indicated that no proportional bias was observed between digital and paper urine colors (bias, − 0.148; SD of bias, 0.492; 95% LOA, − 1.11, 0.817; p = 0.094). Conclusions: Strong associations were found between digital and paper urine colors with no proportional bias. Furthermore, the degree of associations with USG and UOsmo was similar between digital and paper urine color. These results indicate that digital urine color is a useful tool to assess hydration status and this method could be used as an alternative method to using paper urine color. [ABSTRACT FROM AUTHOR]- Published
- 2023
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9. funding and research trends in library and information science of NSSFC: Comparison of awards and papers.
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Xiang, Jianqin and Wang, Haiyan
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INFORMATION science ,LIBRARY science ,LIBRARY research ,RESEARCH funding ,MEDICAL informatics - Abstract
Subject to various restrictive requirements on project application and completion, funded projects are often affected by funding policies for the selection of research objects. This study explored the impact of scientific research funding policies on the funding and research by comparing the topic distribution of awards and papers. A total of 1,870 awards and 16,491 papers of the National Social Science Foundation of China (NSSFC) in library and information science (LIS) were collected from a Chinese research project database. According to the results, the growth rate of awards on most topics is higher than that of papers, while the growth rate of papers on the relevant topics to users, technology, and metrology is higher than that of awards. It was found out in the study that the topics funded by NSSFC were imbalanced. NSSFC provides much more funding to traditional topics rather than emerging topics. As indicated by the funding provided to the projects on traditional topics for research on a large number of papers on emerging topics, however, the innovation and diversity of academic research have yet to be restricted. This study demonstrated that the effect of funding policies on the research topics in LIS is significant. Topic suggestions and funding structure of NSSFC have more impacts on award topics than on paper topics. The influence of NSSFC-recommended topics on paper topics is declining year by year. Additionally, awards with high funding intensity are more susceptible to topic suggestions. [ABSTRACT FROM AUTHOR]
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- 2022
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10. The co‐design of an online support programme with and for informal carers of people with heart failure: A methodological paper.
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Allemann, Hanna, Andréasson, Frida, Hanson, Elizabeth, Magnusson, Lennart, Jaarsma, Tiny, Thylén, Ingela, and Strömberg, Anna
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SERVICES for caregivers , *CAREGIVER attitudes , *RESEARCH , *FOCUS groups , *INTERNET , *MEDICAL care , *INTERVIEWING , *HUMAN services programs , *PSYCHOLOGY of caregivers , *RESEARCH funding , *NEEDS assessment , *CONTENT analysis , *HEART failure , *INFORMATION technology - Abstract
Aim: To describe the co‐designing process of an online support programme with and for informal carers of people with heart failure. Design: A co‐design process built on core concepts and ideas embedded in co‐design methodology. Data sources: Our co‐design process included three phases involving 32 informal caregivers and 25 content creators; (1) Identification of topics and content through literature searches, focus group interviews and user group sessions; (2) Development of the online support programme and; (3) Refinement and finalization which included testing a paper prototype followed by testing the online version and testing and approval of the final version of the support programme. Outcomes: The co‐design process resulted in a support programme consisting of 15 different modules relevant to informal carers, delivered on a National Health Portal. Conclusion: Co‐design is an explorative process where researchers need to balance a range of potentially conflicting factors and to ensure that the end users are genuinely included in the process. Relevance to clinical practice: Emphasizing equal involvement of end users (e.g. carers or patients) in the design and development of healthcare interventions aligns with contemporary ideas of person‐centred care and provides a valuable learning opportunity for those involved. Furthermore, a co‐designed online support programme has the capacity to be both accessible and meet end users' information and support needs, thereby optimizing their self‐care abilities. Additionally, an online support programme provides the opportunity to address current challenges regarding scarce resources and the lack of healthcare personnel. Reporting methods: Consolidated criteria for reporting qualitative research (COREQ). Patient or public contribution: Both informal carers and content creators were involved in developing the support programme. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial.
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Bolzani, Anna, Kupf, Sophie, Hodiamont, Farina, Burner-Fritsch, Isabel, Bausewein, Claudia, and Ramsenthaler, Christina
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RESEARCH , *CONFIDENCE intervals , *ANALYSIS of variance , *RESEARCH methodology evaluation , *AGE distribution , *RESEARCH methodology , *HEALTH outcome assessment , *COMPARATIVE studies , *RANDOMIZED controlled trials , *DESCRIPTIVE statistics , *INTRACLASS correlation , *RESEARCH funding , *CROSSOVER trials , *STATISTICAL sampling , *STATISTICAL correlation , *PALLIATIVE treatment , *EVALUATION ,RESEARCH evaluation - Abstract
Background: The Integrated Palliative Care Outcome Scale (IPOS) validly and reliably measures symptoms and concerns of those receiving palliative care. Aim: To determine the equivalence of the paper version with an electronic version of the IPOS (eIPOS). Design: Multicentre randomised crossover trial (NCT03879668) with a within-subject comparison of the two modes (washout period 30 min). Setting/Participants: Convenience sample of specialist inpatient and palliative home care patients aged over 18 years with cancer and non-cancer conditions was recruited. Scores were compared using intraclass correlation coefficients (ICC), Bland-Altman plots and via a mixed-effects analysis of variance. Results: Fifty patients were randomised to complete paper-electronic (n = 24) and electronic-paper (n = 26) IPOS with median age 69 years (range 24–95), 56% male, 16% non-cancer. The ICCs showed very high concordance for the total score (ICC 0.99, 95% CI 0.98–1.00), lowest ICCs being observed for symptoms 'Appetite loss' and 'Drowsiness' (ICC 0.95, 95% CI 0.92–0.97). Nine of seventeen items had ICCs above 0.98, as did all subscales. No statistically significant mode, order, age, and interaction effects were observed for IPOS total score and subscales, except for 'Communication' (Fmode = 5.9, p = 0.019). Fifty-eight percent preferred the electronic version. In the group 75+ years, 53% preferred the paper version. Only three entries in the free-text main problems differed between the versions. Conclusion: The very high equivalence in scores and free text between the IPOS and the eIPOS demonstrates that eIPOS is feasible and reliable in an older palliative population. [ABSTRACT FROM AUTHOR]
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- 2023
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12. Classifying papers into subfields using Abstracts, Titles, Keywords and KeyWords Plus through pattern detection and optimization procedures: An application in Physics.
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Pech, Gerson, Delgado, Catarina, and Sorella, Silvio Paolo
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ABSTRACTING ,DATABASES ,PHYSICS ,ELECTRONIC journals ,BIBLIOGRAPHY ,ACADEMIC achievement ,INTELLECT ,RESEARCH funding ,BIBLIOGRAPHICAL citations ,INFORMATION science ,DATA analysis software ,POLICY sciences ,INFORMATION technology - Abstract
Classifying papers according to the fields of knowledge is critical to clearly understand the dynamics of scientific (sub)fields, their leading questions, and trends. Most studies rely on journal categories defined by popular databases such as WoS or Scopus, but some experts find that those categories may not correctly map the existing subfields nor identify the subfield of a specific article. This study addresses the classification problem using data from each paper (Abstract, Title, Keywords, and the KeyWords Plus) and the help of experts to identify the existing subfields and journals exclusive of each subfield. These "exclusive journals" are critical to obtain, through a pattern detection procedure that uses machine learning techniques (from software NVivo), a list of the frequent terms that are specific to each subfield. With that list of terms and with the help of optimization procedures, we can identify to which subfield each paper most likely belongs. This study can contribute to support scientific policy‐makers, funding, and research institutions—via more accurate academic performance evaluations—, to support editors in their tasks to redefine the scopes of journals, and to support popular databases in their processes of refining categories. [ABSTRACT FROM AUTHOR]
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- 2022
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13. Adherence to mHealth and Paper-Based Versions of Lifestyle-Integrated Functional Exercise: A Secondary Analysis of Data From the PreventIT Feasibility Randomized Controlled Trial.
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Yang, Yang, Boulton, Elisabeth, Taraldsen, Kristin, Mikolaizak, A. Stefanie, Pijnnaples, Mirjam, and Todd, Chris
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EVALUATION of human services programs ,SELF-evaluation ,HOME care services ,MEDICAL care ,PHYSICAL fitness ,PHYSIOLOGICAL adaptation ,COMPARATIVE studies ,PHYSICAL activity ,HEALTH behavior ,DESCRIPTIVE statistics ,QUALITY of life ,RESEARCH funding ,PATIENT compliance ,TECHNOLOGY ,TELEMEDICINE ,EXERCISE therapy ,BEHAVIOR modification ,SECONDARY analysis ,OLD age - Abstract
The European Commission Horizon 2020 project—PreventIT—evaluated two approaches to delivering Lifestyle-Integrated Functional Exercise (LiFE) programs for maintaining older adults' physical function: the paper-based adapted LiFE and mobile health device delivered enhanced LiFE. A self-reported method was used to measure users' monthly adherence over 12 months. This analysis aimed to explore young seniors' adherence patterns between enhanced LiFE and adapted LiFE groups. Results showed that adherence level decreased with time in both groups. The enhanced LiFE group had slightly higher adherence than the adapted LiFE group during most of the 12 months. However, the overall adherence levels were not significantly different during either intervention or follow-up periods. Monthly self-reported adherence measurement can help to understand users' adherence comprehensively. The comparable adherence levels between both groups indicate mobile health could be an alternative to delivering home-based physical activity for young seniors. However, this feasibility study was not powered to detect differences between groups. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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14. Association of asthma exacerbations with paper mulberry (Broussenetia papyrifera) pollen in Islamabad: An observational study.
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Yusuf, Osman M., Rextin, Aimal T., Ahmed, Bakhtawar, Aman, Rubina, Anjum, Tanveer, Mustafa, Saqib, Nasim, Mehwish, Yusuf, Shahida O., Chun Lin, Zahra, Summan, Pinnock, Hillary, and Schwarze, Jürgen
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PILOT projects ,ASTHMA ,POLLEN ,RETROSPECTIVE studies ,DISEASE incidence ,MANN Whitney U Test ,RISK assessment ,NEBULIZERS & vaporizers ,ENVIRONMENTALLY induced diseases ,PEARSON correlation (Statistics) ,RESEARCH funding ,DESCRIPTIVE statistics ,CHI-squared test ,PLANT extracts ,EXPIRATORY flow ,DATA analysis software ,DISEASE exacerbation - Abstract
Background Although the role of airborne plant pollen in causing allergic rhinitis has been established, the association of concentrations of paper mulberry (Broussenetia papyrifera) pollens in the air and incidence of asthma exacerbations has not, despite an observed increase in the number of asthma patients attending physician clinics and hospital Accident and Emergency (A&E) Departments during the paper mulberry pollen season. We aimed to assess the association between paper mulberry pollen concentrations (typically peaking in March each year) and asthma exacerbations in the city of Islamabad. Methods We used three approaches to investigate the correlation of paper mulberry pollen concentration with asthma exacerbations: A retrospective analysis of historical records (2000-2019) of asthma exacerbations of patients from the Allergy and Asthma Institute, Pakistan (n = 284), an analysis of daily nebulisations in patients attending the A&E Department of the Pakistan Institute of Medical Sciences (March 2020 to July 2021), a prospective peak expiratory flow rate (PEFR) diary from participants (n = 40) with or without asthma and with or without paper mulberry sensitisation. We examined associations between pollen data and asthma exacerbations using Pearson correlation. Results We found a strong positive correlation between mean paper mulberry pollen counts and clinical records of asthma exacerbations in patients sensitised to paper mulberry (Pearson correlation coefficient (r) = 0.86; P < 0.001), but not in non-sensitised patients (r = 0.32; P = 0.3). There was a moderate positive correlation between monthly nebulisation counts and pollen counts (r = 0.56; P = 0.03), and a strong negative correlation between percent predicted PEFR and pollen counts in sensitised asthma patients (r = -0.72, P < 0.001). However, these correlations were of low magnitude in the non-sensitised asthma (r = -0.16; P < 0.001) and sensitised non-asthma (r = -0.28; P < 0.001) groups. Conclusions Our three approaches to analysis all showed an association between high paper mulberry pollen concentration in Islamabad and asthma exacerbations. Predicting pollen peaks could enable alerts and mobilise strategies to proactively manage these peaks of asthma exacerbations. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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15. Egocentric cocitation networks and scientific papers destinies.
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Milard, Béatrice and Pitarch, Yoann
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SERIAL publications , *RESEARCH methodology , *BIBLIOGRAPHIC databases , *SOCIAL network analysis , *INTERVIEWING , *FISHER exact test , *CITATION analysis , *PEARSON correlation (Statistics) , *T-test (Statistics) , *CHI-squared test , *RESEARCH funding , *PERIODICAL articles , *IMPACT factor (Citation analysis) - Abstract
To what extent is the destiny of a scientific paper shaped by the cocitation network in which it is involved? What are the social contexts that can explain these structuring? Using bibliometric data, interviews with researchers, and social network analysis, this article proposes a typology based on egocentric cocitation networks that displays a quadruple structuring (before and after publication): polarization, clusterization, atomization, and attrition. It shows that the academic capital of the authors and the intellectual resources of their research are key factors of these destinies, as are the social relations between the authors concerned. The circumstances of the publishing are also correlated with the structuring of the egocentric cocitation networks, showing how socially embedded they are. Finally, the article discusses the contribution of these original networks to the analyze of scientific production and its dynamics. [ABSTRACT FROM AUTHOR]
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- 2023
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16. The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy.
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Barton, Catherine, Buckley, John, Samia, Pauline, Williams, Fiona, Taylor, Suzan R., and Lindoewood, Rachel
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PILOT projects , *STATISTICS , *ANALYSIS of variance , *POSTURAL balance , *RESEARCH methodology , *CHILDREN with cerebral palsy , *INTERVIEWING , *POVERTY areas , *FUNCTIONAL assessment , *T-test (Statistics) , *ASSISTIVE technology , *RESEARCH funding , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *STATISTICAL sampling , *DISABILITY chairs , *DATA analysis software , *DATA analysis , *FRIEDMAN test (Statistics) - Abstract
Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children's and families' lives. A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the children and families included the Family Impact Assistive Technology Scale for Adaptive Seating (FIATS-AS); the Child Engagement in Daily Life (CEDL) questionnaire; and a qualitative assessment from diary/log and semi-structured interviews. Ten children (median 3 years, range 9 months to 7 years). Baseline to follow-up median (IQR) FIATS-AS were: 22.7 (9.3) and 30.3 (10.2), respectively (p=.002). Similarly mean (SD) CEDL scores for "frequency" changed from 30.5 (13.2) to 42.08 (5.96) (p=.021) and children's enjoyment scores from 2.23 (0.93) to 2.91 (0.79) (p=.019). CEDL questionnaire for self-care was not discriminatory; seven families scored zero at both baseline and 6 months. Qualitative interviews revealed three key findings; that APT improved functional ability, involvement/interaction in daily-life situations, and a reduced family burden of care. APT devices used in Kenyan children with non-ambulant CP had a meaningful positive effect on both the children's and their families' lives. Assistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries. APT is a low cost and sustainable solution to make seating and standing devices for disabled children in Kenya. The regular use of a postural support device enhanced the children's motor skills, ability to function and participate in everyday activities, reduced the burden of care for the families and promoted the children's social interaction. The postural support devices were highly valued and utilised by the children and families in this study. [ABSTRACT FROM AUTHOR]
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- 2022
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17. Wellbeing Outcomes and Risk and Protective Factors for Parents with Migrant and Refugee Backgrounds from the Middle East in the First 1000 Days: A Systematic Review.
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Winter, Amelia Kate, Due, Clemence, and Ziersch, Anna
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MENTAL illness risk factors ,MENTAL illness prevention ,ANXIETY prevention ,PREVENTION of mental depression ,RISK assessment ,MEDICAL information storage & retrieval systems ,EMIGRATION & immigration ,HEALTH services accessibility ,INFANT development ,HEALTH attitudes ,HEALTH status indicators ,RESEARCH funding ,PSYCHOLOGICAL distress ,MATERNAL health services ,PSYCHOLOGY of refugees ,MOTHERS ,CHILD health services ,PARENT attitudes ,POSTPARTUM depression ,HELP-seeking behavior ,DESCRIPTIVE statistics ,DISEASE prevalence ,LONELINESS ,PARENTING ,FAMILY roles ,FAMILIES ,PREGNANCY outcomes ,POPULATION geography ,EXPERIENCE ,SYSTEMATIC reviews ,MEDLINE ,THEMATIC analysis ,MIGRANT labor ,CHILD development ,PATIENT-professional relations ,PSYCHOLOGY of parents ,ONLINE information services ,SOCIAL support ,PATIENT satisfaction ,PSYCHOSOCIAL factors ,WELL-being ,PSYCHOLOGY information storage & retrieval systems ,MENTAL depression ,SOCIAL isolation ,COMMUNICATION barriers ,COVID-19 pandemic ,PREGNANCY - Abstract
The First 1000 Days (the period from conception to a child's second birthday) is an important developmental period. However, little is known about experiences of parents with refugee and migrant backgrounds during this period. A systematic review was conducted according to PRISMA guidelines. Publications were identified through searches of the Embase, PsycINFO, PubMed, and Scopus databases, critically appraised, and synthesised using thematic analysis. A total of 35 papers met inclusion criteria. Depressive symptomatology was consistently higher than global averages, however maternal depression conceptualisations differed across studies. Several papers reported changes in relationship dynamics as a result of having a baby post-migration. Consistent relationships were found between social and health support and wellbeing. Conceptualisations of wellbeing may differ among migrant families. Limited understanding of health services and relationships with health providers may impede help-seeking. Several research gaps were identified, particularly in relation to the wellbeing of fathers, and of parents of children over 12 months old. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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18. Research on Funding Agencies in the Field of Mechatronics in Global Scenario.
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Hulloli, Praveen B.
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MECHATRONICS ,RESEARCH funding - Abstract
The present study aims to bring out the contributions, funding and un-funding publications in the field of Mechatronics in global scenario. The study focuses on country-wise distribution, funding and un-funding in the field of Mechatronics paper publications, type of documents, top funding agencies and top funding journals. Compared to other subjects of science and technology the field of Mechatronics has seen considerably less number of papers being published. Statistics shows that approximately 1% of publications are done in the world as compared to 30 to 35 percent in other fields. The total number of published papers in the said field is3,359 with 46,043 citations. USA shares the highest portion with a total of 413 (12.27%) published papers and 7,157 (15.55%) citations, India stands twenty-fifth with total paper publications of 53 (1.58%) and 693 (1.51%) citations during a period of 20 years from 2001 to 2020. Out of 3,359 papers with 46,034 citations, 1,446 (43.05%) papers with 17,972 (39.04%) citations received funding and the remaining 1,913 (56.95%) papers with 28,062 (60.96%) citations received un-funding. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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19. Slowed canonical progress in large fields of science.
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Chu, Johan S. G. and Evans, James A.
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PREDICTION theory ,RESEARCH funding - Abstract
In many academic fields, the number of papers published each year has increased significantly over time. Policy measures aim to increase the quantity of scientists, research funding, and scientific output, which is measured by the number of papers produced. These quantitative metrics determine the career trajectories of scholars and evaluations of academic departments, institutions, and nations. Whether and how these increases in the numbers of scientists and papers translate into advances in knowledge is unclear, however. Here, we first lay out a theoretical argument for why too many papers published each year in a field can lead to stagnation rather than advance. The deluge of new papers may deprive reviewers and readers the cognitive slack required to fully recognize and understand novel ideas. Competition among many new ideas may prevent the gradual accumulation of focused attention on a promising new idea. Then, we show data supporting the predictions of this theory. When the number of papers published per year in a scientific field grows large, citations flow disproportionately to already well-cited papers; the list of most-cited papers ossifies; new papers are unlikely to ever become highly cited, and when they do, it is not through a gradual, cumulative process of attention gathering; and newly published papers become unlikely to disrupt existing work. These findings suggest that the progress of large scientific fields may be slowed, trapped in existing canon. Policy measures shifting how scientific work is produced, disseminated, consumed, and rewarded may be called for to push fields into new, more fertile areas of study. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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20. Physiotherapist and participant perspectives from a randomized-controlled trial of physiotherapist-supported online vs. paper-based exercise programs for people with moderate to severe multiple sclerosis.
- Author
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Knox, Katherine B., Nickel, Darren, Donkers, Sarah J., and Paul, Lorna
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MULTIPLE sclerosis , *WORK , *RESEARCH methodology , *INTERVIEWING , *PATIENTS' attitudes , *SEVERITY of illness index , *EXPERIENCE , *TREATMENT effectiveness , *EXPERIENTIAL learning , *DESCRIPTIVE statistics , *RESEARCH funding , *PHYSICAL therapists' attitudes , *TELEMEDICINE , *EXERCISE therapy - Abstract
There is a gap in research on how best to support exercise in moderate to severe MS. The objective of this study is to share perspectives of people living with MS and physiotherapists on their experiences in a randomized clinical trial of online physiotherapy vs. an active comparator. Semi-structured exit interviews were conducted with volunteer participants from the online and comparator arms of the trial, and focus groups were held with study physiotherapists. Transcripts were analyzed using reflexive thematic analysis. Perspectives from participants with MS yielded three themes: usability of their program, utility of their program, and motivation to participate. Visual and dexterity impairments limited the usability of the online program. Having an opportunity "to be pushed" was valued by participants in both trial arms. Motivation to exercise was variable, and participants desired periodic face-to-face contact with their physiotherapists. Perspectives from trial physiotherapists yielded similar and complementary findings concerning usability and utility. Participants with MS and physiotherapists found the online physiotherapy platform useful for supporting exercise, yet they identified some limitations. As the appeal of online platforms has increased since the pandemic, it will be important to consider the needs of people with moderate to severe MS. NCT03039400. People with moderate-to-severe MS and physiotherapists involved in a clinical trial found online physiotherapy useful for supporting exercise. Physiotherapists and participants using the online program desired improved platform accommodations for people living with MS with visual and dexterity impairments. Physiotherapists and people living with MS from both the online exercise program and comparator groups perceived a need for more face-to-face contact and opportunities to build therapeutic alliance. Perspectives from prescribing physiotherapists and people living with MS about supporting exercise online may have practice implications during and post-pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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21. The representation of argumentation in scientific papers: A comparative analysis of two research areas.
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Wang, Xiaoguang, Song, Ningyuan, Zhou, Huimin, and Cheng, Hanghang
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SEMANTICS , *LIBRARY science , *PSYCHOLOGY , *COMPARATIVE grammar , *COMPARATIVE studies , *THEORY , *INTELLECT , *RESEARCH funding , *ONTOLOGIES (Information retrieval) , *LITERATURE reviews , *MEDICAL research - Abstract
Scientific papers are essential manifestations of evolving scientific knowledge, and arguments are an important avenue to communicate research results. This study aims to understand how the argumentation process is represented in scientific papers, which is important for knowledge representation, discovery, and retrieval. First, based on fundamental argument theory and scientific discourse ontologies, a coding schema, including 17 categories was constructed. Thereafter, annotation experiments were conducted with 40 scientific articles randomly selected from two different research areas (library and information science and biomedical sciences). Statistical analysis and the sequential pattern mining method were then employed; the ratio of different argumentation units and evidence types were calculated, the argumentation semantics of figures and tables analyzed, and the argumentation structures extracted. A correlation analysis between argumentation and rhetorical structures was also performed to further reveal how argumentation was represented within scientific discourses. The results indicated a difference in the proportion of the argumentation units in the two types of scientific papers, as well as a similar linear construction with differences in the specific argument structures of each knowledge domain and a clear correlation between argumentation and rhetorical structure. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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22. "More than just giving them a piece of paper": Interviews with Primary Care on Social Needs Referrals to Community-Based Organizations.
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Beidler, Laura B., Razon, Na'amah, Lang, Hannah, and Fraze, Taressa K.
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QUALITATIVE research , *RESEARCH funding , *MEDICAL care , *PRIMARY health care , *PSYCHOLOGICAL tests , *MEDICAL referrals , *SOCIAL participation - Abstract
Background: Primary care practices are responding to calls to incorporate patients' social risk factors, such as housing, food, and economic insecurity, into clinical care. Healthcare likely relies on the expertise and resources of community-based organizations to improve patients' social conditions, yet little is known about the referral process.Objective: To characterize referrals to community-based organizations by primary care practices.Design: Qualitative study using semi-structured interviews with healthcare administrators responsible for social care efforts in their organization.Participants: Administrators at 50 diverse US healthcare organizations with efforts to address patients' social risks.Main Measures: Approaches used in primary care to implement social needs referral to community-based organizations.Results: Interviewed administrators reported that social needs referrals were an essential element in their social care activities. Administrators described the ideal referral programs as placing limited burden on care teams, providing patients with customized referrals, and facilitating closed-loop referrals. We identified three key challenges organizations experience when trying to implement the ideal referrals program: (1) developing and maintaining resources lists; (2) aligning referrals with patient needs; and (3) measuring the efficacy of referrals. Collectively, these challenges led to organizations relying on staff to manually develop and update resource lists and, in most cases, provide patients with generic referrals. Administrators not only hoped that referral platforms may help overcome some of these barriers, but also reported implementation challenges with platforms including inconsistent buy-in and use across staff; integration with electronic health records; management and prioritization of resources; and alignment with other organizations in their market.Conclusion and Relevance: Referrals to community-based organizations were used in primary care to improve patients' social conditions, but despite strong motivations, interviewees reported challenges providing tailored and up-to-date information to patients. [ABSTRACT FROM AUTHOR]- Published
- 2022
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23. Bibliometric Studies of Most-Cited Medical Papers: A Bibliometric Analysis.
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Kashani, Masoud Motalebi, Homavandi, Hoda, and Batooli, Zahra
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MEDICAL literature -- History & criticism , *BIBLIOMETRICS , *SERIAL publications , *RETROSPECTIVE studies , *ACQUISITION of data , *CITATION analysis , *MEDICAL records , *DESCRIPTIVE statistics , *RESEARCH funding , *CONTENT analysis , *MEDICAL research - Abstract
Aims: The purpose of this study is the analysis of bibliometric studies of the medical most-cited papers. Materials and Methods: This applied and the scientometric study was conducted using retrospective bibliometric analysis methods. AScopus search was conducted and 883 articles were retrieved. After reviewing the titles and abstracts, 432 articles related to the purpose of this research were identified. Items such as year, journal, country, and institution were considered. Medical subject heading and NLM were applied for the subject categorization of articles. Given the dynamics of subject areas over time, only the content of 117 articles published in 2020 and 2021 were analyzed. These 117 articles have been reviewed with 11,700 most-cited articles. By reviewing 117 articles, the most productive journal, country, and institute in producing 11,700 articles were identified. Results: The findings have shown a significant number of these publications review 100 most-cited articles in the field of medicine. Articles pertaining to the Nervous System, Musculoskeletal System, Dentistry, Radiology, and Cardiovascular System are the most numerous among the publications. Conclusion: The results of this study allow readers to know the most productive countries, institutions, and journals of various subject areas, as well as the most influential fields and research trends in that subject area. The results of this study also identify subject areas for which the characteristics of their core articles have not yet been explored to plan future research. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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24. A framework for nurses working in partnership with substitute decision‐makers for people living with advanced dementia: A discursive paper.
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Cresp, Sarah Jane, Lee, Susan Fiona, and Moss, Cheryle
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MEDICAL quality control , *CAREGIVERS , *NURSING , *MOTIVATION (Psychology) , *MEDICAL care , *CONCEPTUAL structures , *DEMENTIA patients , *DEMENTIA , *INTERPROFESSIONAL relations , *NURSES , *QUALITY of life , *DECISION making , *RESEARCH funding , *DECISION making in clinical medicine , *EMOTIONS , *PSYCHOLOGICAL stress , *TRUST - Abstract
Aim: To describe and discuss clinical strategies for nurses working in partnership with substitute decision‐makers for people living with advanced dementia. Background: By providing person‐centred care to patients living with advanced dementia, nurses are positioned to work in partnership with substitute decision‐makers who make healthcare decisions related to advanced care. Because the experience of being substitute decision‐makers is complex and stressful, nurses need skillsets for working in partnership with substitute decision‐makers. Design: In this discursive paper, an innovative framework for working in partnership with substitute decision‐makers is proposed. Method: Evidence‐based findings from a systematic review provided five domain foci for the partnership framework. In each domain, two clinical strategies were discursively proposed. Clinical strategies were hypothesised from research findings and insights from the authors' nursing experiences. Then, topical literature was searched, and findings were used to support the discursively argued strategies. Discussion: To deal with complexities and reduce stress for substitute decision‐makers, an innovative Nurse–Substitute Decision‐Maker Partnership Framework for use in the context of advanced dementia is proposed and discussed. The partnership framework consists of five domains: Building trust, Exploring emotions, Translating quality of life, Encouraging proactivity and Negotiating families. Within these domains, ten strategies to support the practices of clinical nurses to work in partnership with substitute decision‐makers are discussed. Relevance to Clinical Practice: In the framework, the ten clinical nursing strategies are designed to provide targeted care to substitute decision‐makers in areas that are known to cause complexity and stress to them. The Nurse–Substitute Decision‐Maker Partnership Framework has been designed to improve nurse–substitute decision‐maker partnerships and reduce the stress experienced by substitute decision‐makers as they work through the complexities associated with advanced dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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25. Information structures in sociology research papers: Modeling cause–effect and comparison relations in research objective and result statements1.
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Cheng, Wei‐Ning and Khoo, Christopher S. G.
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PUBLISHING , *SEMANTICS , *ABSTRACTING , *SOCIOLOGY , *INFORMATION resources management , *RESEARCH funding , *AUTHORSHIP , *MEDICAL research , *CONCEPTS - Abstract
When writing a research paper, the author has to select information to include in the paper to support various arguments. The information has to be organized and synthesized into a coherent whole through relationships and information structures. There is hardly any research on the information structure of research papers, and how information structure supports rhetorical and argument structures. Thus, this study is focused on information organization in the Abstract and Introduction sections of sociology research papers, analyzing the information structure of research objective, question, hypothesis, and result statements. The study is limited to research papers reporting research that investigated cause–effect relations between two concepts. Two semantic frames were developed to specify the types of information associated with cause–effect and comparison relations, and used as coding schemes to annotate the text for different information types. Six link patterns between the two frames were identified—showing how comparisons are used to support the claim that the cause‐effect relation is valid. This study demonstrated how semantic frames can be incorporated in discourse analysis to identify deep structures underlying the argument structure. The results carry implications for the knowledge representation of academic research in knowledge graphs, for semantic relation extraction, and teaching of academic writing. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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26. FoxO1 knockdown inhibits RANKL‐induced osteoclastogenesis by blocking NLRP3 inflammasome activation.
- Author
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Wang, Zhanqi, Luo, Wenxin, Zhang, Guorui, Li, Haiyun, Zhou, Feng, Wang, Dongyang, Feng, Xuan, Xiong, Yi, and Wu, Yingying
- Subjects
NF-kappa B ,BIOLOGICAL models ,PAPER chromatography ,RESEARCH funding ,CARRIER proteins ,BONE growth ,POLYMERASE chain reaction ,ENZYME-linked immunosorbent assay ,TRANSCRIPTION factors ,CELLULAR signal transduction ,FLUORESCENT antibody technique ,MICE ,STATE-Trait Anxiety Inventory ,GENES ,OSTEOCLASTS ,ANIMAL experimentation ,WESTERN immunoblotting ,GENETIC techniques ,PERIODONTITIS ,SIGNAL peptides ,MEMBRANE proteins ,TUMOR necrosis factors ,SEQUENCE analysis ,PHENOTYPES - Abstract
Objectives: This study aimed to elucidate the connection between osteoclastic forkhead transcription factor O1 (FoxO1) and periodontitis and explore the underlying mechanism by which FoxO1 knockdown regulates osteoclast formation. Materials and Methods: A conventional ligature‐induced periodontitis model was constructed to reveal the alterations in the proportion of osteoclastic FoxO1 in periodontitis via immunofluorescence staining. Additionally, RNA sequencing (RNA‐seq) was performed to explore the underlying mechanisms of FoxO1 knockdown‐mediated osteoclastogenesis, followed by western blotting, quantitative polymerase chain reaction, and enzyme‐linked immunosorbent assay. Results: FoxO1+ osteoclasts were enriched in the alveolar bone in experimental periodontitis. Moreover, FoxO1 knockdown led to impaired osteoclastogenesis with low expression of osteoclast differentiation‐related genes, accompanied by an insufficient osteoclast maturation phenotype. Mechanistically, RNA‐seq revealed that the nuclear factor kappa B (NF‐κB) and nucleotide‐binding oligomerization domain‐like receptor family pyrin domain containing 3 (NLRP3) inflammasome signaling pathways were inhibited in FoxO1‐knockdown osteoclasts. Consistent with this, MCC950, an effective inhibitor of the NLRP3 inflammasome, substantially attenuated osteoclast formation. Conclusions: FoxO1 knockdown contributed to the inhibition of osteoclastogenesis by effectively suppressing NF‐κB signaling and NLRP3 inflammasome activation. This prospective study reveals the role of FoxO1 in mediating osteoclastogenesis and provides a viable therapeutic target for periodontitis treatment. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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27. A Validity Study of the Digitized Version of the Rapid Automatized Naming Test.
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Kim, Sohyun An, Gotlieb, Rebecca, Rhinehart, Laura V., Pedroza, Veronica, and Wolf, Maryanne
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DIGITAL technology ,READING ,RESEARCH funding ,PHONOLOGICAL awareness ,READABILITY (Literary style) ,DYSLEXIA ,RESEARCH methodology evaluation ,DESCRIPTIVE statistics ,WORD processing ,COMPARATIVE studies - Abstract
Rapid automatized naming (RAN) is a powerful predictor of reading fluency, and many digitized dyslexia screeners include RAN as an essential component. However, the validity of digitized RAN has not been established. Using a sample of 174 second-graders, this study tested (1) the comparability between paper and digitized versions of RAN and (2) the validity of the digitized version. We found that paper and digital versions were highly correlated, and such correlation was consistent across students' reading levels. Further, the digital RAN predicted children's word reading proficiency as well as the paper version. Moreover, the constructs measured by paper and digital versions of RAN were comparable. We conclude that the digitized RAN is a valid alternative to the traditional paper version for this age group. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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28. 'On paper, you're normal': narratives of unseen health needs among women who have had children removed from their care.
- Author
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Grant, Claire, Powell, Claire, Philip, Georgia, Blackburn, Ruth, Lacey, Rebecca, and Woodman, Jenny
- Subjects
PSYCHOLOGY of mothers ,ATTITUDE (Psychology) ,FAMILY separation policy, 2018-2021 ,INTERVIEWING ,GROUP identity ,HEALTH status indicators ,EXPERIENCE ,RESEARCH funding ,NEEDS assessment ,FAMILY relations ,MOTHER-child relationship ,MEDICAL needs assessment - Abstract
Background Mothers who have children removed from their care often have complex needs. These women have poor health outcomes and are dying earlier than their peers from preventable and amenable causes. Yet there is little known about how health care services might mitigate these risks. This study aimed to listen to the voices of women who had children removed from their care to understand their experiences of health and healthcare. Methods We used a narrative approach to collect and analyse interview data with six mothers who had experienced child removal in England. Each participant was asked to reflect on their life and main health challenges. Results Three narrative subplots were developed to consolidate experiences of unmet health need: (i) 'on paper you're normal': narratives of complex need, (ii) 'in my family, everyone had issues': narratives of whole family need and (iii) 'I'm still mummy, no matter where they are': narratives of maternal identity and health. Conclusions Findings highlight limitations within current systems of support, including a culture of distrust and women falling between the gaps of services. Women's narratives illustrate opportunities for health intervention, especially immediately following child removal. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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29. Using qualitative study designs to understand treatment burden and capacity for self-care among patients with HIV/NCD multimorbidity in South Africa: A methods paper.
- Author
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van Pinxteren, Myrna, Mbokazi, Nonzuzo, Murphy, Katherine, Mair, Frances S, May, Carl, and Levitt, Naomi S
- Subjects
NON-communicable diseases ,EVALUATION of medical care ,RESEARCH ,MIDDLE-income countries ,RESEARCH methodology ,BURDEN of care ,DISEASES ,POPULATION geography ,INTERVIEWING ,QUALITATIVE research ,COMPARATIVE studies ,CONCEPTUAL structures ,LOW-income countries ,EPIDEMICS ,EMPLOYEES' workload ,DECISION making ,RESEARCH funding ,THEMATIC analysis ,HEALTH self-care ,HIV - Abstract
Background: Low- and middle-income countries (LMICs), including South Africa, are currently experiencing multiple epidemics: HIV and the rising burden of non-communicable diseases (NCDs), leading to different patterns of multimorbidity (the occurrence of two or more chronic conditions) than experienced in high income settings. These adversely affect health outcomes, increase patients' perceived burden of treatment, and impact the workload of self-management. This paper outlines the methods used in a qualitative study exploring burden of treatment among people living with HIV/NCD multimorbidity in South Africa. Methods: We undertook a comparative qualitative study to examine the interaction between individuals' treatment burden (self-management workload) and their capacity to take on this workload, using the dual lenses of Burden of Treatment Theory (BoTT) and Cumulative Complexity Model (CuCoM) to aid conceptualisation of the data. We interviewed 30 people with multimorbidity and 16 carers in rural Eastern Cape and urban Cape Town between February-April 2021. Data was analysed through framework analysis. Findings: This paper discusses the methodological procedures considered when conducting qualitative research among people with multimorbidity in low-income settings in South Africa. We highlight the decisions made when developing the research design, recruiting participants, and selecting field-sites. We also explore data analysis processes and reflect on the positionality of the research project and researchers. Conclusion: This paper illustrates the decision-making processes conducting this qualitative research and may be helpful in informing future research aiming to qualitatively investigate treatment burden among patients in LMICs. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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30. How Green Finance Affects Sustainability: A PRISMA-Compliant Systematic Literature Review.
- Author
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Dhiman, Komal and Kumar, Ashok
- Subjects
CARBON emissions ,ECONOMIC expansion ,RESEARCH funding ,SUSTAINABILITY ,FINANCIAL research - Abstract
Green financing is able to reduce carbon dioxide emissions and support long-term economic growth. The paper presents a systematic literature review, evaluating the research on green finance and sustainability from 2005 to 2023. To perform this review, PRISMA technique was followed. A total of 51 papers selected from Web of Science (WOS) and Scopus were reviewed, and the results show that China is a global pioneer in this area, and research on this concept has been gaining momentum. The findings indicate that publications on the direct effect of green finance on sustainability are available in large number, as compared to those on indirect effect. [ABSTRACT FROM AUTHOR]
- Published
- 2024
31. Non-fungible tokens (NFTs) in healthcare: a thematic analysis and research agenda.
- Author
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Sibanda, Khulekani, Ndayizigamiye, Patrick, and Twinomurinzi, Hossana
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DATA security ,PERSONAL property ,MEDICAL informatics ,DATABASE management ,RESEARCH funding ,DIGITAL health ,RESEARCH evaluation ,PRIVACY ,MEDICAL supplies ,SUPPLY chains ,DATA analytics ,BLOCKCHAINS ,THEMATIC analysis ,SYSTEMATIC reviews ,PRIORITY (Philosophy) ,COMMUNICATION ,INFORMATION retrieval ,HEALTH information systems ,MEDICAL ethics ,ACCESS to information - Abstract
Introduction: In the big data era, where corporations commodify health data, non-fungible tokens (NFTs) present a transformative avenue for patient empowerment and control. NFTs are unique digital assets on the blockchain, representing ownership of digital objects, including health data. By minting their data as NFTs, patients can track access, monetize its use, and build secure, private health information systems. However, research on NFTs in healthcare is in its infancy, warranting a comprehensive review. Methods: This study conducted a systematic literature review and thematic analysis of NFTs in healthcare to identify use cases, design models, and key challenges. Five multidisciplinary research databases (Scopus, Web of Science, Google Scholar, IEEE Explore, Elsevier Science Direct) were searched. The approach involved four stages: paper collection, inclusion/exclusion criteria application, screening, full-text reading, and quality assessment. A classification and coding framework was employed. Thematic analysis followed six steps: data familiarization, initial code generation, theme searching, theme review, theme definition/naming, and report production. Results: Analysis of 19 selected papers revealed three primary use cases: patientcentric data management, supply chain management for data provenance, and digital twin development. Notably, most solutions were prototypes or frameworks without real-world implementations. Four overarching themes emerged: data governance (ownership, tracking, privacy), data monetization (commercialization, incentivization, sharing), data protection, and data storage. The focus lies on user-controlled, private, and secure health data solutions. Additionally, data commodification is explored, with mechanisms proposed to incentivize data maintenance and sharing. NFTs are also suggested for tracking medical products in supply chains, ensuring data integrity and provenance. Ethereum and similar platforms dominate NFT minting, while compact NFT storage options are being explored for faster data access. Conclusion: NFTs offer significant potential for secure, traceable, decentralized healthcare data exchange systems. However, challenges exist, including dependence on blockchain, interoperability issues, and associated costs. The review identified research gaps, such as developing dual ownership models and data pricing strategies. Building an open standard for interoperability and adoption is crucial. The scalability, security, and privacy of NFT-backed healthcare applications require further investigation. Thus, this study proposes a research agenda for adopting NFTs in healthcare, focusing on governance, storage models, and perceptions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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32. A systematic review of contaminants in donor human milk.
- Author
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Thayagabalu, Sionika, Cacho, Nicole, Sullivan, Sandra, Smulian, John, Louis‐Jacques, Adetola, Bourgeois, Marie, Chen, Henian, Weerasuriya, Wasana, and Lemas, Dominick J.
- Subjects
MEDICAL information storage & retrieval systems ,CRITICALLY ill ,PATIENTS ,FOOD consumption ,RESEARCH funding ,BREAST milk banks ,CINAHL database ,BREAST milk ,STAPHYLOCOCCUS aureus ,FOOD contamination ,SYSTEMATIC reviews ,MEDLINE ,BACTERIAL contamination ,ONLINE information services ,COMPARATIVE studies ,CHILDREN - Abstract
Donor human milk (DHM) from a milk bank is the recommended feeding method for preterm infants when the mother's own milk (MOM) is not available. Despite this recommendation, information on the possible contamination of donor human milk and its impact on infant health outcomes is poorly characterised. The aim of this systematic review is to assess contaminants present in DHM samples that preterm and critically ill infants consume. The data sources used include PubMed, EMBASE, CINAHL and Web of Science. A search of the data sources targeting DHM and its potential contaminants yielded 426 publications. Two reviewers (S. T. and D. L.) conducted title/abstract screening through Covidence software, and predetermined inclusion/exclusion criteria yielded 26 manuscripts. Contaminant types (bacterial, chemical, fungal, viral) and study details (e.g., type of bacteria identified, study setting) were extracted from each included study during full‐text review. Primary contaminants in donor human milk included bacterial species and environmental pollutants. We found that bacterial contaminants were identified in 100% of the papers in which bacterial contamination was sought (16 papers) and 61.5% of the full data set (26 papers), with the most frequently identified genera being Staphylococcus (e.g., Staphylococcus aureus and coagulase‐negative Staphylococcus) and Bacillus (e.g., Bacillus cereus). Chemical pollutants were discovered in 100% of the papers in which chemical contamination was sought (eight papers) and 30.8% of the full data set (26 papers). The most frequently identified chemical pollutants included perfluoroalkyl substances (six papers), toxic metal (one paper) and caffeine (one paper). Viral and fungal contamination were identified in one paper each. Our results highlight the importance of establishing standardisation in assessing DHM contamination and future studies are needed to clarify the impact of DHM contaminants on health outcomes. Key messages: Research regarding chemical contamination in donor human milk (DHM) is limited and needs to be studied further to draw appropriate conclusions on reducing potential risks for infants.Parents/guardians should be educated on the availability of DHM as a supplemental feeding option and made aware of the current research in the field.DHM use requires further standardisation both within the United States and abroad. This standardisation should ensure that risks are not overemphasised and DHM is a cost‐effective, accessible resource as a short‐term intervention when used appropriately as part of optimal lactation and breastfeeding support. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
33. Approaches to the identification and management of depression in people living with chronic kidney disease: A scoping review of 860 papers.
- Author
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Pearce, Christina J., Hall, Natalie, Hudson, Joanna L., Farrington, Ken, Tucker, Madeleine J. Ryan, Wellsted, David, Jones, Julia, Sharma, Shivani, Norton, Sam, Ormandy, Paula, Palmer, Nick, Quinnell, Anthony, Fitzgerald, Lauren, Griffiths, Sophie, and Chilcot, Joseph
- Subjects
CHRONIC kidney failure complications ,DIAGNOSIS of mental depression ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,SELF-evaluation ,MEDICAL screening ,PSYCHOLOGICAL tests ,MENTAL depression ,RESEARCH funding ,LITERATURE reviews ,MEDLINE ,DISEASE management ,COGNITIVE therapy ,ADULTS - Abstract
Background: Depression is prevalent across the spectrum of Chronic Kidney Disease and associated with poorer outcomes. There is limited evidence regarding the most effective interventions and care pathways for depression in Chronic Kidney Disease. Objectives: To investigate how depression is identified and managed in adults with Chronic Kidney Disease. Design: Scoping review. Methods: Systematic search of eight databases with pre‐defined inclusion criteria. Data relevant to the identification and/or management of depression in adults with Chronic Kidney Disease were extracted. Results: Of 2147 articles identified, 860 were included. Depression was most identified using self‐report screening tools (n = 716 studies, 85.3%), with versions of the Beck Depression Inventory (n = 283, 33.7%) being the most common. A total of 123 studies included data on the management of depression, with nonpharmacological interventions being more frequently studied (n = 55, 45%). Cognitive Behavioural Therapy (n = 15) was the most common nonpharmacological intervention, which was found to have a significant effect on depressive symptoms compared to controls (n = 10). However, how such approaches could be implemented as part of routine care was not clear. There was limited evidence for antidepressants use in people with Chronic Kidney Disease albeit in a limited number of studies. Conclusions: Depression is commonly identified using validated screening tools albeit differences exist in reporting practices. Evidence regarding the management of depression is mixed and requires better‐quality trials of both pharmacological and nonpharmacological approaches. Understanding which clinical care pathways are used and their evidence, may help facilitate the development of kidney care specific guidelines for the identification and management of depression. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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34. Comparing a Computerized Digit Symbol Test to a Pen-and-Paper Classic.
- Author
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Pratt, Danielle N, Luther, Lauren, Kinney, Kyle S, Osborne, Kenneth Juston, Corlett, Philip R, Powers, Albert R, Woods, Scott W, Gold, James M, Schiffman, Jason, Ellman, Lauren M, Strauss, Gregory P, Walker, Elaine F, Zinbarg, Richard, Waltz, James A, Silverstein, Steven M, and Mittal, Vijay A
- Subjects
RESEARCH funding ,MENTAL illness - Abstract
Background and Hypothesis Processing speed dysfunction is a core feature of psychosis and predictive of conversion in individuals at clinical high risk (CHR) for psychosis. Although traditionally measured with pen-and-paper tasks, computerized digit symbol tasks are needed to meet the increasing demand for remote assessments. Therefore we: (1) assessed the relationship between traditional and computerized processing speed measurements; (2) compared effect sizes of impairment for progressive and persistent subgroups of CHR individuals on these tasks; and (3) explored causes contributing to task performance differences. Study Design Participants included 92 CHR individuals and 60 healthy controls who completed clinical interviews, the Brief Assessment of Cognition in Schizophrenia Symbol Coding test, the computerized TestMyBrain Digit Symbol Matching Test, a finger-tapping task, and a self-reported motor abilities measure. Correlations, Hedges' g, and linear models were utilized, respectively, to achieve the above aims. Study Results Task performance was strongly correlated (r = 0.505). A similar degree of impairment was seen between progressive (g = −0.541) and persistent (g = −0.417) groups on the paper version. The computerized task uniquely identified impairment for progressive individuals (g = −477), as the persistent group performed similarly to controls (g = −0.184). Motor abilities were related to the computerized version, but the paper version was more related to symptoms and psychosis risk level. Conclusions The paper symbol coding task measures impairment throughout the CHR state, while the computerized version only identifies impairment in those with worsening symptomatology. These results may be reflective of sensitivity differences, an artifact of existing subgroups, or evidence of mechanistic differences. [ABSTRACT FROM AUTHOR]
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- 2023
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35. Information structures in sociology research papers: Modeling cause–effect and comparison relations in research objective and result statements1.
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Cheng, Wei‐Ning and Khoo, Christopher S. G.
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PUBLISHING ,SEMANTICS ,ABSTRACTING ,SOCIOLOGY ,INFORMATION resources management ,RESEARCH funding ,AUTHORSHIP ,MEDICAL research ,CONCEPTS - Abstract
When writing a research paper, the author has to select information to include in the paper to support various arguments. The information has to be organized and synthesized into a coherent whole through relationships and information structures. There is hardly any research on the information structure of research papers, and how information structure supports rhetorical and argument structures. Thus, this study is focused on information organization in the Abstract and Introduction sections of sociology research papers, analyzing the information structure of research objective, question, hypothesis, and result statements. The study is limited to research papers reporting research that investigated cause–effect relations between two concepts. Two semantic frames were developed to specify the types of information associated with cause–effect and comparison relations, and used as coding schemes to annotate the text for different information types. Six link patterns between the two frames were identified—showing how comparisons are used to support the claim that the cause‐effect relation is valid. This study demonstrated how semantic frames can be incorporated in discourse analysis to identify deep structures underlying the argument structure. The results carry implications for the knowledge representation of academic research in knowledge graphs, for semantic relation extraction, and teaching of academic writing. [ABSTRACT FROM AUTHOR]
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- 2021
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36. How the current non‐significant effects of person‐centred care on nurses' outcomes could be abated by the WE‐CARE roadmap enablers: A discursive paper.
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Van Diepen, Cornelia, Fors, Andreas, Bertilsson, Monica, Axelsson, Malin, Ekman, Inger, and Hensing, Gunnel
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EVALUATION of medical care ,MEDICAL quality control ,NURSES' attitudes ,PATIENT-centered care ,JOB satisfaction ,QUALITY assurance ,LABOR incentives ,RESEARCH funding ,PAY for performance ,INFORMATION technology ,BEHAVIOR modification - Abstract
Aim: To describe the non‐significant results in nurses' outcomes after the implementation of person‐centred care (PCC) and discuss if and how enablers of the WE‐CARE roadmap for implementing PCC could abate the non‐significant results. Design: In this paper, an innovative framework of enablers in the WE‐CARE Roadmap is explained in relation to increased PCC and nurses' job satisfaction. Method: Findings from a scoping review and published material provided how PCC and nurses' outcomes connect. The WE‐CARE roadmap entails five enablers: Information technology, Quality measures, Infrastructure, Incentive systems and contracting strategies. Results: The WE‐CARE roadmap was described and each enabler in the WE‐CARE roadmap is discussed concerning PCC and the nurses' job satisfaction. Thus far, the effects of PCC on nurses' outcomes have been non‐significant. The WE‐CARE roadmap enablers can be implemented to ensure an increased PCC implementation and higher nurses' job satisfaction. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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37. Quantifying scientific breakthroughs by a novel disruption indicator based on knowledge entities.
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Wang, Shiyun, Ma, Yaxue, Mao, Jin, Bai, Yun, Liang, Zhentao, and Li, Gang
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KNOWLEDGE management ,RESEARCH ,SUBJECT headings ,BIBLIOGRAPHIC databases ,REGRESSION analysis ,CITATION analysis ,INFORMATION science ,RESEARCH funding ,MEDLINE ,EMPIRICAL research - Abstract
Compared to previous studies that generally detect scientific breakthroughs based on citation patterns, this article proposes a knowledge entity‐based disruption indicator by quantifying the change of knowledge directly created and inspired by scientific breakthroughs to their evolutionary trajectories. Two groups of analytic units, including MeSH terms and their co‐occurrences, are employed independently by the indicator to measure the change of knowledge. The effectiveness of the proposed indicators was evaluated against the four datasets of scientific breakthroughs derived from four recognition trials. In terms of identifying scientific breakthroughs, the proposed disruption indicator based on MeSH co‐occurrences outperforms that based on MeSH terms and three earlier citation‐based disruption indicators. It is also shown that in our indicator, measuring the change of knowledge inspired by the focal paper in its evolutionary trajectory is a larger contributor than measuring the change created by the focal paper. Our study not only offers empirical insights into conceptual understanding of scientific breakthroughs but also provides practical disruption indicator for scientists and science management agencies searching for valuable research. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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- View/download PDF
38. Improving our understanding of open access: how it relates to funding, internationality of research and scientific leadership.
- Author
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Bordons, María, González-Albo, Borja, and Moreno-Solano, Luz
- Abstract
As open publication has become a goal in scholarly communication, interest in how it relates to other features of the research process has grown. This paper focuses on the relationship between funding and open access (OA) in the Spanish National Research Council's Web of Science publications in three scientific fields with different research practices, namely, Biology & Biomedicine (BIOL), Humanities & Social Sciences (HSS) and Materials Science (MATE). Firstly, the three fields are characterised in relation to OA practices (OA status and OA routes) and acknowledged funding (funding status and funding origin). Secondly, the relationship between OA and funding is explored, and the role of additional influential factors, such as the internationality of research and national/foreign leadership of papers, is unravelled through logistic regression. BIOL shows a higher OA share (66%) than do the other two fields (around 33%). Funded research shows higher OA rates than unfunded research in the experimental fields, but not in HSS, where it is related to a shift towards more publications with article-processing charges. The internationality of research, measured through international collaboration or foreign funding, increases OA, albeit with differences across fields. Foreign-funded papers are more likely to be led by foreign researchers in all three fields, but a foreign first author increases the chances of OA publication in HSS only, perhaps because Spanish leaders in this field have not internalised the importance of OA. The research's policy implications are reviewed. [ABSTRACT FROM AUTHOR]
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- 2023
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39. The impact of geographic inequality in federal research funding: A comparative longitudinal study of research and scholarly outputs in EPSCoR versus non-EPSCoR states.
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Mohammadi, Ehsan, Olejniczak, Anthony J., Walker, George E., and Nagarkatti, Prakash
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LONGITUDINAL method ,RESEARCH funding ,COMPARATIVE studies ,CONFERENCE papers ,UNIVERSITY faculty ,COUNTING ,MATHEMATICS conferences - Abstract
Some states in the U.S. have traditionally received less federal research funding than other states. The National Science Foundation (NSF) created a program in 1979, called the Experimental Program to Stimulate Competitive Research (EPSCoR) to enhance the research competitiveness in such states. While the geographic disparity in federal research funding is well known, the overall impact of federal funding on the research performance of EPSCoR and non-EPSCoR has not been previously studied. In the current study, we compared the combined research productivity of Ph.D. granting institutions in EPSCoR versus the non-EPSCoR states to better understand the scientific impact of federal investments in sponsored research across all states. The research outputs we measured included journal articles, books, conference papers, patents, and citation count in academic literature. Unsurprisingly, results indicated that the non-EPSCoR states received significantly more federal research funding than their EPSCoR counterparts, which correlated with a higher number of faculty members in the non-EPSCoR versus EPSCoR states. Also, in the overall research productivity expressed on a per capita, the non-EPSCoR states fared better than EPSCoR states. However, when the research output was measured based on per $1M investment of federal research funding, EPSCoR states performed significantly better than the non-EPSCoR states in many research productivity indicators, with the notable exception of patents. Together, this study found preliminary evidence that EPSCoR states achieved a high degree of research productivity despite receiving significantly fewer federal research dollars. The limitations and next steps of this study are also discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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40. Demography's Changing Intellectual Landscape: A Bibliometric Analysis of the Leading Anglophone Journals, 1950-2020.
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Merli, M. Giovanna, Moody, James, Verdery, Ashton, and Yacoub, Mark
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ENGLISH language ,SOCIOLOGY ,SERIAL publications ,BIBLIOMETRICS ,NATURAL language processing ,SOCIAL network analysis ,PUBLIC health ,INTELLECTUAL property ,RESEARCH funding ,DEMOGRAPHY ,POPULATION health ,SCIENCE - Abstract
Much of what we know about the intellectual landscape of anglophone demography comes from two sources: subjective narratives authored by leaders in the field, whose reviews and observations are derived from their research experience and field-specific knowledge; and professional histories covering the field's foundational controversies, which tend to focus on individuals, institutions, and influence. Here we use bibliographic information from allarticles published in the three leading journals of anglophone demography--Demography, Population Studies, and Population and Development Review--to survey the changing contours of anglophone demography's key research areas over the past 70 years. We characterize the field of demography by applying a two-pronged, data-grounded approach from the sociology of science. The first uses natural language processing that lets the substance of the field emerge from the contents of publication records and applies social network analyses to identify groups of papers that talk about the same thing. The second uses bibliometric tools to capture the "conversations" of demography with other disciplines. Our goals are to (1) identify the primary topics of demography since the discipline first gained prominence as an organized field; (2) assess changes in the field's intellectual cohesion and the topical areas that have grown or shrunk; and (3) examine how demographers place their work in relationship to other disciplines, the visibility and influence of demographic research in the broader scientific literature, and the cross-disciplinary translational reach of demographic research. Results provide a dynamic view of the field's scientific development in the second half of the twentieth century and the first two decades of the twenty-first century. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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41. Identifying Key Components of Paper-Based and Technology-Based Home Assessment Tools Using a Narrative Literature Review.
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Mihandoust, Sahar, Joshi, Rutali, Joseph, Anjali, Madathil, Kapil Chalil, Dye, Cheryl J., Machry, Herminia, and Wilson, Julia
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HOME environment ,CINAHL database ,ONLINE information services ,SYSTEMATIC reviews ,RESEARCH funding ,ACCIDENTAL falls ,TECHNOLOGY ,MEDLINE ,TELEMEDICINE - Abstract
The built environment of an older person's home can reduce or promote the possibility of a fall or other injury. A user-friendly tool can help the residents to evaluate their home environment within the context of their specific functional and mobility challenges, so that needed modifications can be identified and completed before an event causing injury occurs. The increasing use of telehealth and other digital technologies has paved the way for technology-based person-initiated home assessments that may allow people to evaluate and improve their homes proactively. The purpose of this literature review was to systematically analyze existing published paper- and technology-based home assessment tools to understand the structure and key characteristics of existing tools and to understand the limitations in existing home assessment tools. This review identified and compared 24 studies based on structure, content, and implementation. While a vast variety of tools and methods currently exist for conducting in-home or remote home assessment for older adults, there is a lack of a comprehensive and user-friendly technology-based tool that older adults can use to conduct an environmental assessment of their home in relation to their functional abilities, such that modifications may be identified that can prevent falls and other injuries. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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42. Lack of transparent reporting of trial monitoring approaches in randomised controlled trials: A systematic review of contemporary protocol papers.
- Author
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Shao-Fan Hsieh, Yorke-Edwards, Victoria, Murray, Macey L., Diaz-Montana, Carlos, Love, Sharon B., and Sydes, Matthew R.
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ONLINE information services ,RESEARCH protocols ,CONFIDENCE intervals ,SYSTEMATIC reviews ,RANDOMIZED controlled trials ,RESEARCH funding ,DESCRIPTIVE statistics ,MEDLINE ,STANDARDS ,EVALUATION - Abstract
Background: Monitoring is essential to ensure patient safety and data integrity in clinical trials as per Good Clinical Practice. The Standard Protocol Items: Recommendations for Interventional Trials Statement and its checklist guides authors to include monitoring in their protocols. We investigated how well monitoring was reported in published 'protocol papers' for contemporary randomised controlled trials. Methods: A systematic search was conducted in PubMed to identify eligible protocol papers published in selected journals between 1 January 2020 and 31 May 2020. Protocol papers were classified by whether they reported monitoring and, if so, by the details of monitoring. Data were summarised descriptively. Results: Of 811 protocol papers for randomised controlled trials, 386 (48%; 95% CI: 44%-51%) explicitly reported some monitoring information. Of these, 20% (77/386) reported monitoring information consistent with an on-site monitoring approach, and 39% (152/386) with central monitoring, 26% (101/386) with a mixed approach, while 14% (54/386) did not provide sufficient information to specify an approach. Only 8% (30/386) of randomised controlled trials reported complete details about all of scope, frequency and organisation of monitoring; frequency of monitoring was the least reported. However, 6% (25/386) of papers used the term 'audit' to describe 'monitoring'. Discussion: Monitoring information was reported in only approximately half of the protocol papers. Suboptimal reporting of monitoring hinders the clinical community from having the full information on which to judge the validity of a trial and jeopardises the value of protocol papers and the credibility of the trial itself. Greater efforts are needed to promote the transparent reporting of monitoring to journal editors and authors. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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43. Digitalizing the Clinical Research Informed Consent Process: Assessing the Participant Experience in Comparison With Traditional Paper-Based Methods.
- Author
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Buckley, Michael T., O'Shea, Molly R., Kundu, Sangeeta, Lipitz-Snyderman, Allison, Kuperman, Gilad, Shah, Suken, Iasonos, Alexia, Houston, Collette, Terzulli, Stephanie L., Lengfellner, Joseph M., and Sabbatini, Paul
- Subjects
SELF advocacy ,HUMAN research subjects ,CLINICAL trials ,ACADEMIC medical centers ,CLINICAL medicine research ,QUANTITATIVE research ,INFORMED consent (Medical law) ,EXPERIENCE ,COMPARATIVE studies ,SURVEYS ,QUALITATIVE research ,SOCIOECONOMIC factors ,QUALITY assurance ,SCALE analysis (Psychology) ,RESEARCH funding ,ELIGIBILITY (Social aspects) ,CHI-squared test ,DESCRIPTIVE statistics ,ELECTRONIC health records ,MEDICAL informatics ,SOCIODEMOGRAPHIC factors ,COVID-19 pandemic ,TELEMEDICINE - Abstract
PURPOSE Consent processes are critical for clinical care and research and may benefit from incorporating digital strategies. We compared an electronic informed consent (eIC) option to paper consent across four outcomes: (1) technology burden, (2) protocol comprehension, (3) participant agency (ability to self-advocate), and (4) completion of required document fields. METHODS We assessed participant experience with eIC processes compared with traditional paper-based consenting using surveys and compared completeness of required fields, over 3 years (2019-2021). Participants who consented to a clinical trial at a large academic cancer center via paper or eIC were invited to either pre-COVID-19 pandemic survey 1 (technology burden) or intrapandemic survey 2 (comprehension and agency). Consent document completeness was assessed via electronic health records. RESULTS On survey 1, 83% of participants (n = 777) indicated eIC was easy or very easy to use; discomfort with technology overall was not correlated with discomfort using eIC. For survey 2, eIC (n = 262) and paper consenters (n = 193) had similar comprehension scores. All participants responded favorably to at least five of six agency statements; however, eIC generated a higher proportion of positive free-text comments (P < .05), with themes such as thoroughness of the discussion and consenter professionalism. eIC use yielded no completeness errors across 235 consents versus 6.4% for paper (P < .001). CONCLUSION Our findings suggest that eIC when compared with paper (1) did not increase technology burden, (2) supported comparable comprehension, (3) upheld key elements of participant agency, and (4) increased completion of mandatory consent fields. The results support a broader call for organizations to offer eIC for clinical research discussions to enhance the overall participant experience and increase the completeness of the consent process. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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44. What and when to debrief: a scoping review examining interprofessional clinical debriefing.
- Author
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Paxino, Julia, Szabo, Rebecca A., Marshall, Stuart, Story, David, and Molloy, Elizabeth
- Subjects
INTERDISCIPLINARY education ,TERMS & phrases ,INTERPROFESSIONAL relations ,RESEARCH funding ,CINAHL database ,DESCRIPTIVE statistics ,SIMULATION methods in education ,SYSTEMATIC reviews ,MEDLINE ,LITERATURE reviews ,CONCEPTUAL structures ,ONLINE information services ,POSTOPERATIVE period ,ERIC (Information retrieval system) ,PSYCHOLOGY information storage & retrieval systems - Abstract
Introduction Clinical debriefing (CD) improves teamwork and patient care. It is implemented across a range of clinical contexts, but delivery and structure are variable. Furthermore, terminology to describe CD is also inconsistent and often ambiguous. This variability and the lack of clear terminology obstructs understanding and normalisation in practice. This review seeks to examine the contextual factors relating to different CD approaches with the aim to differentiate them to align with the needs of different clinical contexts. Methods Articles describing CD were extracted from Medline, CINAHL, ERIC, PubMed, PsychINFO and Academic Search Complete. Empirical studies describing CD that involved two or more professions were eligible for inclusion. Included papers were charted and analysed using the Who-What-When-Where-Why-How model to examine contextual factors which were then used to develop categories of CD. Factors relating to what prompted debriefing and when debriefing occurred were used to differentiate CD approaches. Results Forty- six papers were identified. CD was identified as either prompted or routine, and within these overarching categories debriefing was further differentiated by the timing of the debrief. Prompted CD was either immediate or delayed and routine CD was postoperative or end of shift. Some contextual factors were unique to each category while others were relatively heterogeneous. These categories help clarify the alignment between the context and the intention of CD. Conclusions The proposed categories offer a practical way to examine and discuss CD which may inform decisions about implementation. By differentiating CD according to relevant contextual factors, these categories may reduce confusion which currently hinders discourse and implementation. The findings from this review promote context-specific language and a shift away from conceptions of CD that embody a one-size-fits-all approach. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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45. Importance of public‐private partnerships for nutrition support research: An ASPEN Position Paper.
- Author
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Mueller, Charles, Jonnalagadda, Satya, Torres, Krysmaru Araujo, Blackmer, Allison, Cetnarowski, Wes, Chen, Yimin, Citty, Sandra Wolfe, Dye, Elizabeth, Hubbard, Van S., Kumbhat, Seema, Ottery, Faith, Russell, Mary E., Sacks, Gordon S, and Turner, Justine
- Subjects
PUBLIC-private sector cooperation ,NUTRITION ,ENTERAL feeding ,TASK forces ,TREATMENT effectiveness ,PARENTERAL feeding ,TUBE feeding - Abstract
Parenteral and enteral nutrition support are key components of care for various medical and physiological conditions in infants, children, and adults. Nutrition support practices have advanced over time, driven by the goals of safe and sufficient delivery of needed nutrients and improved patient outcomes. These advances have been, and continue to be, dependent on research and development studies. Such studies address aspects of enteral and parenteral nutrition support: formulations, delivery devices, health outcomes, cost‐effectiveness, and related metabolism. The studies are supported by public funding from the government and by private funding from foundations and from the nutrition support industry. To build public trust in nutrition support research findings, it is important to underscore ethical research conduct and reporting of results for all studies, including those with industry sponsors. In 2019, American Society for Parenteral and Enteral Nutrition's (ASPEN's) Board of Directors established a task force to ensure integrity in nutrition support research that is done as collaborative partnerships between the public (government and individuals) and private groups (foundations, academia, and industry). In this ASPEN Position Paper, the Task Force presents principles of ethical research to guide administrators, researchers, and funders. The Task Force identifies ways to curtail bias and to minimize actual or perceived conflict of interests, as related to funding sources and research conduct. Notably, this paper includes a Position Statement to describe the Task Force's guidance on Public‐Private Partnerships for research and funding. This paper has been approved by the ASPEN Board of Directors. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
46. On the Reliability of Funding Acknowledgements as Research Data: Evidence from Astronomy.
- Subjects
RESEARCH funding ,BIBLIOGRAPHIC databases ,ASTRONOMY ,SCIENTOMETRICS ,QUESTIONNAIRES - Abstract
Online bibliographic databases have enabled new research through which bibliographic records are analyzed as data about science. Within these records, the acknowledgements sections of papers are often used to draw conclusions about funding support for published research. While acknowledgements and funding statements can be informative for research and policy development, this poster adds to a body of literature that highlights limitations of funding data for scientometric and policy research, using evidence gathered from a questionnaire of authors of astronomy journal articles. The study shows that only 71.4% of a sample of authors of papers tied to NSF grants through acknowledgements reported in the survey that NSF funded the research presented in the respective papers. A brief analysis of the questionnaire followed by recommendations and considerations for further research are presented. The discrepancy in reporting appears to indicate that funding streams can be fluid and not always apparent to authors, overall raising the question of what sorts of research should be addressed with funding statements, where conceptually tying a paper directly to a grant is not straightforward. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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47. Differences in Nonresponse Bias and Victimization Reports Across Self-Administered Web-Based and Paper-and-Pencil Versions of a Campus Climate Survey.
- Author
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Hayes, Brittany E. and O'Neal, Eryn Nicole
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PSYCHOLOGICAL abuse ,COLLEGE students ,RAPE ,SELF-evaluation ,INDEPENDENT variables ,SOCIAL stigma ,BINGE drinking ,SURVEYS ,PSYCHOLOGY of crime victims ,INTIMATE partner violence ,MATHEMATICAL variables ,T-test (Statistics) ,UNIVERSITIES & colleges ,SEX crimes ,SCALE analysis (Psychology) ,CHI-squared test ,DESCRIPTIVE statistics ,RESEARCH funding ,RESEARCH bias ,SOCIAL attitudes ,STATISTICAL sampling ,LOGISTIC regression analysis ,BULLYING ,EVALUATION - Abstract
Using a standardized campus climate survey that was disseminated across three modes of administration (N = 5,137), this study assesses the nonresponse bias of two web-based versions to a self-administered paper-and-pencil version conducted at a Southeastern 4-year university. Significant differences emerged across all three modes of administration and victimization measures (bullying, sexual assault, rape, emotional abuse, and intimate partner violence [IPV]). Respondents were more likely to report victimization in the web-based surveys administered to online-only classes and via mass email compared to the paper survey. Policy implications, especially as it relates to survey administration, are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
48. Towards a partnership of teachers and intelligent learning technology: A systematic literature review of model‐based learning analytics.
- Author
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Ley, Tobias, Tammets, Kairit, Pishtari, Gerti, Chejara, Pankaj, Kasepalu, Reet, Khalil, Mohammad, Saar, Merike, Tuvi, Iiris, Väljataga, Terje, and Wasson, Barbara
- Subjects
TEACHING methods ,COMPUTER assisted instruction ,SYSTEMATIC reviews ,LEARNING strategies ,COMPARATIVE studies ,INTERPROFESSIONAL relations ,TEACHERS ,STUDENTS ,DECISION making ,EDUCATIONAL technology ,INTELLECT ,DESCRIPTIVE statistics ,RESEARCH funding - Abstract
Background: With increased use of artificial intelligence in the classroom, there is now a need to better understand the complementarity of intelligent learning technology and teachers to produce effective instruction. Objective: The paper reviews the current research on intelligent learning technology designed to make models of student learning and instruction transparent to teachers, an area we call model‐based learning analytics. We intended to gain an insight into the coupling between the knowledge models that underpin the intelligent system and the knowledge used by teachers in their classroom decision making. Methods: Using a systematic literature review methodology, we first identified 42 papers, mainly from the domain of intelligent tutoring systems and learning analytics dashboards that conformed to our selection criteria. We then qualitatively analysed the context in which the systems were applied, models they used and benefits reported for teachers and learners. Results and Conclusions: A majority of papers used either domain or learner models, suggesting that instructional decisions are mostly left to teachers. Compared to previous reviews, our set of papers appeared to have a stronger focus on providing teachers with theory‐driven insights and instructional decisions. This suggests that model‐based learning analytics can address some of the shortcomings of the field, like meaningfulness and actionability of learning analytics tools. However, impact in the classroom still needs further research, as in half of the cases the reported benefits were not backed with evidence. Future research should focus on the dynamic interaction between teachers and technology and how learning analytics has an impact on learning and decision making by teachers and students. We offer a taxonomy of knowledge models that can serve as a starting point for designing such interaction. Lay Description: What is currently known: Current learning analytics solutions are often not perceived helpful by teachers What this paper adds: Model‐based learning analytics seeks to make these systems more transparent and actionableOur review shows there is good potential that systems designed in this way would have greater impact on classroom teaching Implications for practitioners: Pedagogical‐psychological models should be an integral part of intelligent learning systems designsWe offer a taxonomy of such models and current good practices of their use as a starting point [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
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49. Addressing schoolteacher food and nutrition-related health and wellbeing: a scoping review of the food and nutrition constructs used across current research.
- Author
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Jakstas, Tammie, Follong, Berit, Bucher, Tamara, Miller, Andrew, Shrewsbury, Vanessa A., and Collins, Clare E.
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WELL-being ,FOOD habits ,NUTRITIONAL assessment ,SYSTEMATIC reviews ,PSYCHOLOGY of teachers ,HEALTH status indicators ,MENTAL health ,HEALTH literacy ,RESEARCH funding ,DESCRIPTIVE statistics ,QUESTIONNAIRES ,LITERATURE reviews ,THEMATIC analysis - Abstract
Background: Teachers form a large and essential workforce globally. Their wellbeing impacts personal health-related outcomes with flow on effects for the health, and wellbeing of their students. However, food and nutrition (FN) interventions that include teachers, typically neglect the impact of personal FN factors on a teachers' ability to achieve optimal nutrition-related health and wellbeing, and successfully fulfil their professional FN roles as health promoters, gate keepers, educators', and role models. The aim of this review was to scope FN constructs that have been studied internationally regarding teacher FN-related health and wellbeing. Methods: Six databases were searched, and papers extracted in June/July 2021. Eligibility criteria guided by the population, concept, context mnemonic included studies published after 2000, in English language, with an aspect of personal FN-related health and wellbeing, among in-service (practising) and pre-service (training), primary, and secondary teachers. Screening studies for inclusion was completed by two independent researchers with data extraction piloted with the same reviewers and completed by lead author, along with complete descriptive and thematic analysis. Results: Ten thousand six hundred seventy-seven unique articles were identified with 368 eligible for full text review and 105 included in final extraction and analysis. Sixty-nine descriptive studies were included, followed by 35 intervention studies, with the main data collection method used to assess both personal and professional FN constructs being questionnaires (n = 99 papers), with nutrition knowledge and dietary assessment among the most commonly assessed. Conclusion: FN constructs are used within interventions and studies that include teachers, with diversity in constructs included and how these terms are defined. The evidence from this scoping review can be used to inform data collection and evaluation in future epidemiological and interventional research that addresses teacher FN-related health and wellbeing. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
50. It soon became clear – insights into technology and participation
- Author
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Travnicek, Cornelia, Stoll, Daniela, Reichinger, Andreas, and Rix, Jonathan
- Published
- 2022
- Full Text
- View/download PDF
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