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1. Declining oral intake towards the end of life: how to talk about it? A qualitative study.

Author

Clark, Jean

Subjects
*RESPIRATORY aspiration, *APPETITE, *COMMUNICATION, *DEATH, *DRINKING (Physiology), *FAMILIES, *HEALTH care teams, *INGESTION, *INTERVIEWING, *RESEARCH methodology, *MEDICAL personnel, *PATIENT-professional relations, *ORAL hygiene, *NURSES, *NURSING specialties, *PALLIATIVE treatment, *PATIENT safety, *PHYSICIANS, *PLEASURE, *PRACTICAL nurses, *PROGNOSIS, *RESEARCH funding, *TERMINALLY ill, *HOSPICE nurses, *QUALITATIVE research, *PROFESSIONAL practice, *SECONDARY analysis, *THEMATIC analysis, *DISEASE progression, *PATIENTS' families, *DATA analysis software, *WORK experience (Employment), *PREVENTION
Abstract

Background: Decreasing oral intake is common towards the end of life and a potential source of distress and concern for patients, relatives, whānau and clinicians. This paper provides insight to inform practice regarding clinicians' perceptions, practices, responses and communication with patients and their companions regarding declining oral intake towards the end of life. Methods: In this qualitative study ten specialist palliative care staff participated in semi-structured interviews. Qualitative thematic analysis was used to analyse the data. Findings: Three themes were identified: declining oral intake was a natural part of the dying process; responding empathetically; and clinicians described specific aims and ways regarding communication. Conclusion: Insight into clinicians' endeavours to manage declining oral intake and support the wellbeing of patients, families, and whānau can inform practice. However the perspectives of family, whānau and health professionals continue to show significant variation regarding the communication given and received around declining oral intake towards the end of life. [ABSTRACT FROM AUTHOR]

Published
2017
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2. Exploring Māori cancer patients', their families', community and hospice views of hospice care.

Author

Slater, Tania, Matheson, Anna, Davies, Cheryl, Earp, Ria, Gellatly, Kate, Holdaway, Maureen, and Ellison-Loschmann, Lis

Subjects
CANCER patient psychology, CONTINUUM of care, CULTURE, HEALTH services accessibility, HOSPICE care, PATIENT aftercare, INTERVIEWING, RESEARCH methodology, MEDICAL quality control, NURSING specialties, RESEARCH, RESEARCH funding, HOSPICE nurses, THEMATIC analysis, CROSS-sectional method, DATA analysis software, MAORI (New Zealand people), PATIENTS' attitudes, MEDICAL coding, FAMILY attitudes, PSYCHOLOGY
Abstract

Background: Despite poor cancer survival statistics, Māori do not readily access hospice services. This study aims to explore how hospice services respond to Māori by investigating the different influences and interactions between three perspectives of hospice care. Method: The authors conducted a Māori-centred, cross-sectional qualitative study by undertaking semi-structured interviews with hospice patients and whānau (families) (n=8), hospice representatives (n=4), and representatives from three Māori health provider organisations (n=5). Conclusions: The study found that negative perceptions of hospice are being changed by hospices' relationships with other organisations and positive stories from whānau. Involvement from whānau, continuity of care and after-hours care with a greater Māori workforce and a further emphasis on culturally safe care are critical for this work to gain momentum. Findings can be of use to further develop quality of care indicators that reflect the perspectives of patients and whānau, and those who provide their care. [ABSTRACT FROM AUTHOR]

Published
2015
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