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2. SAGES White Paper on the importance of diversity in surgical leadership: creating the fundamentals of leadership development (FLD) curriculum.
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Shao, Jenny M., Bingener, Juliane, Alimi, Yewande, Puri, Ruchir, McHugh, Kim, Gomez-Garibello, Carlos, Shim, Joon K., Collins, Courtney, Sylla, Patricia, and Qureshi, Alia P.
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CURRICULUM evaluation , *NONPROFIT organizations , *DIVERSITY & inclusion policies , *PHILOSOPHY of education , *MEETINGS , *RESEARCH funding , *LEADERSHIP , *WORK environment , *MEDICAL care , *NEGOTIATION , *CONFLICT (Psychology) , *QUESTIONNAIRES , *LEARNING , *GOAL (Psychology) , *PROBLEM solving , *TEACHING methods , *OPERATIVE surgery , *SURVEYS , *PROFESSIONS , *CURRICULUM planning , *PROBLEM-based learning , *COMMUNICATION , *ONLINE education , *CONCEPTUAL structures , *MEDICAL practice , *HEALTH care teams , *PROFESSIONAL competence , *GROUP process , *COMMITTEES - Abstract
Background: The Society of American Gastrointestinal and Endoscopic Surgeons (SAGES) has long recognized and championed increasing diversity within the surgical workplace. SAGES initiated the Fundamentals of Leadership Development (FLD) Curriculum to address these needs and to provide surgeon leaders with the necessary tools and skills to promote diversity, equity, and inclusion (DEI) in surgical practice. In 2019, the American College of Surgeons issued a request for anti-racism initiatives which lead to the partnering of the two societies. The primary goal of FLD was to create the first surgeon-focused leadership curriculum dedicated to DEI. The rationale/development of this curriculum and its evaluation/feedback methods are detailed in this White Paper. Methods: The FLD curriculum was developed by a multidisciplinary task force that included surgeons, education experts, and diversity consultants. The curriculum development followed the Analysis, Design, Development, Implementation and Evaluation (ADDIE) instructional design model and utilized a problem-based learning approach. Competencies were identified, and specific learning objectives and assessments were developed. The implementation of the curriculum was designed to be completed in short intervals (virtual and in-person). Post-course surveys used the Kirkpatrick's model to evaluate the curriculum and provide valuable feedback. Results: The curriculum consisted of interactive online modules, an online discussion forum, and small group interactive sessions focused in three key areas: (1) increasing pipeline of underrepresented individuals in surgical leadership, (2) healthcare equity, and (3) conflict negotiation. By focusing on positive action items and utilizing a problem-solving approach, the curriculum aimed to provide a framework for surgical leaders to make meaningful changes in their institutions and organizations. Conclusion: The FLD curriculum is a novel leadership curriculum that provided surgeon leaders with the knowledge and tools to improve diversity in three areas: pipeline improvement, healthcare equity, and conflict negotiation. Future directions include using pilot course feedback to enhance curricular effectiveness and delivery. [ABSTRACT FROM AUTHOR]
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- 2024
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3. Freehand drawing activity: a comparison between tablet-finger vs paper&crayon throughout time.
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Paule Ruiz, MPuerto, Sánchez Santillán, Miguel, and Pérez-Pérez, Juan Ramón
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MOBILE apps , *MOTOR ability , *PORTABLE computers , *GRAPHIC arts , *PHYSIOLOGICAL adaptation , *DATA analysis , *RESEARCH funding , *DRAWING , *CLINICAL trials , *INTERVIEWING , *DESCRIPTIVE statistics , *CHI-squared test , *CREATIVE ability , *TEACHERS , *ONLINE education , *COLLEGE teacher attitudes , *ANALYSIS of variance , *STATISTICS , *COMPARATIVE studies , *VISUAL perception , *DATA analysis software , *CHILDREN - Abstract
The apps for drawing are present in our children's life. Nevertheless, little is known about the impact of mobile technology on the freehand drawing educational activity. There are few works which are contextualised within short periods of time, with teachers who are not theirs and, in some cases, outside the children's classroom. In this paper, we are focussed on the use of technology on freehand drawing activity. Thus, we have compared the graphics produced by 4- and 5-year-old children with paper&crayon in comparison with those with tablet-finger. Children made the drawings during a planned free-drawing activity, in their ordinary classrooms, with their teachers and during five sessions. Assessment of drawings has evidenced tablet feasibility for making graphics. Nevertheless, with the passing of time, quality of graphics (tablet-finger vs paper&crayons), are nearly matched, demonstrating the low impact level technology has on this activity. In addition, if drawings are analysed specifically according to ages, results have shown that both groups have to develop adaptation strategies of visual perceptual skills and fine motor skills for the touch screen in order to obtain the same quality in the drawings made on both support types. [ABSTRACT FROM AUTHOR]
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- 2024
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4. Dissemination effect of data papers on scientific datasets.
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Jiao, Hong, Qiu, Yuhong, Ma, Xiaowei, and Yang, Bo
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PROFESSIONAL peer review , *PUBLISHING , *ONLINE information services , *SERIAL publications , *NATURAL language processing , *CONTENT mining , *CITATION analysis , *INFORMATION resources , *RESEARCH funding , *MEDLINE , *MEDICAL research - Abstract
Open data as an integral part of the open science movement enhances the openness and sharing of scientific datasets. Nevertheless, the normative utilization of data journals, data papers, scientific datasets, and data citations necessitates further research. This study aims to investigate the citation practices associated with data papers and to explore the role of data papers in disseminating scientific datasets. Dataset accession numbers from NCBI databases were employed to analyze the prevalence of data citations for data papers from PubMed Central. A dataset citation practice identification rule was subsequently established. The findings indicate a consistent growth in the number of biomedical data journals published in recent years, with data papers gaining attention and recognition as both publications and data sources. Although the use of data papers as citation sources for data remains relatively rare, there has been a steady increase in data paper citations for data utilization through formal data citations. Furthermore, the increasing proportion of datasets reported in data papers that are employed for analytical purposes highlights the distinct value of data papers in facilitating the dissemination and reuse of datasets to support novel research. [ABSTRACT FROM AUTHOR]
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- 2024
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5. From plagiarism to scientific paper mills: a profile of retracted articles within the SciELO Brazil collection.
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Santos-d'Amorim, Karen, Wang, Ting, Lund, Brady, and Macedo Dos Santos, Raimundo Nonato
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DATABASES , *CORRUPTION , *PUBLISHING , *PLAGIARISM , *SERIAL publications , *MANUFACTURING industries , *BIBLIOGRAPHIC databases , *BIBLIOMETRICS , *ORGANIZATIONAL behavior , *BIBLIOGRAPHY , *FRAUD , *ELECTRONIC publishing , *CITATION analysis , *BIBLIOGRAPHICAL citations , *RESEARCH funding , *MEDICAL literature - Abstract
This paper investigates retracted articles indexed in the Scientific Electronic Library Online (SciELO) Brazil, using bibliometric techniques to identify the characteristics of these retractions and relevant citation trends. All records of retracted articles from the first record in October 2004 to April 2022 were included. Sixty-seven retractions and 870 citations pre- and post-retraction were analyzed. Results indicate a change of scenario that began in 2015, with recurrences of retracted articles allegedly produced by paper mills. The prevalence of retractions derived from professional misconduct in health research and the frequency of post-retraction citations in health sciences raise concerns in the chain of stakeholders, public health, and scientific development. [ABSTRACT FROM AUTHOR]
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- 2024
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6. The association between research funding status and clinical research papers’ citation impact in Japan: A cross-sectional bibliometric study
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Fumito Morisawa, Yuji Nishizaki, Patrick Devos, Naotake Yanagisawa, Kotone Matsuyama, Yasuhiro Homma, Rieko Ueda, Miwa Sekine, Hiroyuki Daida, Tohru Minamino, and Shoji Sanada
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clinical research ,research funding ,citation impact ,SIGAPS ,category normalized citation impact ,bibliometrics ,Medicine (General) ,R5-920 - Abstract
IntroductionStudies have not sufficiently clarified the differences in citation impact between funded and non-funded clinical research papers. Hence, this study seeks to evaluate the relation between research funding status and clinical research papers’ citation impact in different research fields using multiple evaluation indices.MethodsIn this cross-sectional bibliometric study, clinical research papers published by core clinical research hospitals in Japan were compared retrospectively in terms of times cited (TC), category normalized citation impact (CNCI), citation percentile (CP), journal impact factor (JIF), the Software to Identify, Manage, and Analyze Scientific Publications (SIGAPS) category, and whether they were the funded clinical research. The association between research funding status or the SIGAPS category and CNCI ≥ 2 was analyzed using logistic regression analysis.Results11 core clinical research hospitals published 553 clinical research papers, of which 120 were non-funded and 433 were funded (public institution-funded and industry-funded). The study found that funded clinical research papers (public institution-funded and industry-funded) had significantly higher TC, CNCI, CP, and JIF than non-funded ones [TC: 8 (3–17) vs. 14 (8–31), p < 0.001; CNCI: 0.53 (0.19–0.97) vs. 0.87 (0.45–1.85), p < 0.001; CP: 51.9 (24.48–70.42) vs. 66.7 (40.53–88.01), p < 0.001; JIF: 2.59 (1.90–3.84) vs. 2.93 (2.09–4.20) p = 0.008], while the proportion of A or B rank clinical research papers of the SIGAPS category was not significantly different between the two groups (30.0 vs. 34.9%, p = 0.318). In the logistic regression analysis, having a CNCI ≥ 2 was significantly associated with research funding (public institution-funded and industry-funded) and publication in A or B rank journals of the SIGAPS category [research funding: Estimate 2.169, 95% confidence interval (CI) 1.153–4.083, p = 0.016; SIGAPS category A/B: Estimate 6.126, 95% CI 3.889–9.651, p < 0.001].ConclusionAnalysis via multiple indicators including CNCI and the SIGAPS category, which allows for a comparison of the papers’ citation impact in different research fields, found a positive relation between research funding status and the citation impact of clinical research papers.
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- 2022
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7. The co‐design of an online support programme with and for informal carers of people with heart failure: A methodological paper.
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Allemann, Hanna, Andréasson, Frida, Hanson, Elizabeth, Magnusson, Lennart, Jaarsma, Tiny, Thylén, Ingela, and Strömberg, Anna
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SERVICES for caregivers , *CAREGIVER attitudes , *RESEARCH , *FOCUS groups , *INTERNET , *MEDICAL care , *INTERVIEWING , *HUMAN services programs , *PSYCHOLOGY of caregivers , *RESEARCH funding , *NEEDS assessment , *CONTENT analysis , *HEART failure , *INFORMATION technology - Abstract
Aim: To describe the co‐designing process of an online support programme with and for informal carers of people with heart failure. Design: A co‐design process built on core concepts and ideas embedded in co‐design methodology. Data sources: Our co‐design process included three phases involving 32 informal caregivers and 25 content creators; (1) Identification of topics and content through literature searches, focus group interviews and user group sessions; (2) Development of the online support programme and; (3) Refinement and finalization which included testing a paper prototype followed by testing the online version and testing and approval of the final version of the support programme. Outcomes: The co‐design process resulted in a support programme consisting of 15 different modules relevant to informal carers, delivered on a National Health Portal. Conclusion: Co‐design is an explorative process where researchers need to balance a range of potentially conflicting factors and to ensure that the end users are genuinely included in the process. Relevance to clinical practice: Emphasizing equal involvement of end users (e.g. carers or patients) in the design and development of healthcare interventions aligns with contemporary ideas of person‐centred care and provides a valuable learning opportunity for those involved. Furthermore, a co‐designed online support programme has the capacity to be both accessible and meet end users' information and support needs, thereby optimizing their self‐care abilities. Additionally, an online support programme provides the opportunity to address current challenges regarding scarce resources and the lack of healthcare personnel. Reporting methods: Consolidated criteria for reporting qualitative research (COREQ). Patient or public contribution: Both informal carers and content creators were involved in developing the support programme. [ABSTRACT FROM AUTHOR]
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- 2023
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8. Research impact of general and funded papers : A citation analysis of two ACM international conference proceeding series
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Cheng-Che Shen, Ya-Han Hu, Wei-Chao Lin, Chih-Fong Tsai, and Shih-Wen Ke
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- 2016
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9. Comparison between digital and paper urine color to assess hydration status.
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Sekiguchi, Yasuki, Martin, David G., Yoshihara, Ayami, and Casa, Douglas J.
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HYDRATION , *STATISTICS , *HEAT , *URINE , *SPECIFIC gravity , *OXYGEN consumption , *COMPARATIVE studies , *DEHYDRATION , *DESCRIPTIVE statistics , *RESEARCH funding , *URINALYSIS , *DATA analysis , *OSMOLAR concentration , *STATISTICAL correlation , *DIGITAL diagnostic imaging , *COLOR , *PORTABLE computers ,RESEARCH evaluation - Abstract
Purpose: The purpose of this study was to investigate associations between digital urine color and paper urine color with other urine indices to assess hydration status. Methods: Twelve male subjects (mean ± standard deviation; age, 26 ± 8 years; body mass, 57.8 ± 5.3 kg; height, 177.5 ± 8.9 cm; VO2max, 57.8 ± 5.8 ml·kg−1·min−1) performed four exercise trials in the heat. Before and following exercise trials, subjects provide urine samples. Urine samples were measured using a digital urine color chart on a portable device screen. Urine samples were also assessed with urine specific gravity (USG), urine osmolality (UOsmo), and a validated paper urine color chart. Results: There were extremely large associations found between digital urine color and paper urine color (r = 0.926, p < 0.001). Correlation coefficients showing associations with USG and UOsmo were similar between digital urine color (USG, r = 0.695, p < 0.001; UOsmo, r = 0.555, p < 0.001) and paper urine color (USG, r = 0.713, p < 0.001; UOsmo, r = 0.570, p < 0.001). Bland–Altman analysis indicated that no proportional bias was observed between digital and paper urine colors (bias, − 0.148; SD of bias, 0.492; 95% LOA, − 1.11, 0.817; p = 0.094). Conclusions: Strong associations were found between digital and paper urine colors with no proportional bias. Furthermore, the degree of associations with USG and UOsmo was similar between digital and paper urine color. These results indicate that digital urine color is a useful tool to assess hydration status and this method could be used as an alternative method to using paper urine color. [ABSTRACT FROM AUTHOR]
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- 2023
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10. Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial.
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Bolzani, Anna, Kupf, Sophie, Hodiamont, Farina, Burner-Fritsch, Isabel, Bausewein, Claudia, and Ramsenthaler, Christina
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RESEARCH , *CONFIDENCE intervals , *ANALYSIS of variance , *RESEARCH methodology evaluation , *AGE distribution , *RESEARCH methodology , *HEALTH outcome assessment , *COMPARATIVE studies , *RANDOMIZED controlled trials , *DESCRIPTIVE statistics , *INTRACLASS correlation , *RESEARCH funding , *CROSSOVER trials , *STATISTICAL sampling , *STATISTICAL correlation , *PALLIATIVE treatment , *EVALUATION ,RESEARCH evaluation - Abstract
Background: The Integrated Palliative Care Outcome Scale (IPOS) validly and reliably measures symptoms and concerns of those receiving palliative care. Aim: To determine the equivalence of the paper version with an electronic version of the IPOS (eIPOS). Design: Multicentre randomised crossover trial (NCT03879668) with a within-subject comparison of the two modes (washout period 30 min). Setting/Participants: Convenience sample of specialist inpatient and palliative home care patients aged over 18 years with cancer and non-cancer conditions was recruited. Scores were compared using intraclass correlation coefficients (ICC), Bland-Altman plots and via a mixed-effects analysis of variance. Results: Fifty patients were randomised to complete paper-electronic (n = 24) and electronic-paper (n = 26) IPOS with median age 69 years (range 24–95), 56% male, 16% non-cancer. The ICCs showed very high concordance for the total score (ICC 0.99, 95% CI 0.98–1.00), lowest ICCs being observed for symptoms 'Appetite loss' and 'Drowsiness' (ICC 0.95, 95% CI 0.92–0.97). Nine of seventeen items had ICCs above 0.98, as did all subscales. No statistically significant mode, order, age, and interaction effects were observed for IPOS total score and subscales, except for 'Communication' (Fmode = 5.9, p = 0.019). Fifty-eight percent preferred the electronic version. In the group 75+ years, 53% preferred the paper version. Only three entries in the free-text main problems differed between the versions. Conclusion: The very high equivalence in scores and free text between the IPOS and the eIPOS demonstrates that eIPOS is feasible and reliable in an older palliative population. [ABSTRACT FROM AUTHOR]
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- 2023
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11. Egocentric cocitation networks and scientific papers destinies.
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Milard, Béatrice and Pitarch, Yoann
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SERIAL publications , *RESEARCH methodology , *BIBLIOGRAPHIC databases , *SOCIAL network analysis , *INTERVIEWING , *FISHER exact test , *CITATION analysis , *PEARSON correlation (Statistics) , *T-test (Statistics) , *CHI-squared test , *RESEARCH funding , *PERIODICAL articles , *IMPACT factor (Citation analysis) - Abstract
To what extent is the destiny of a scientific paper shaped by the cocitation network in which it is involved? What are the social contexts that can explain these structuring? Using bibliometric data, interviews with researchers, and social network analysis, this article proposes a typology based on egocentric cocitation networks that displays a quadruple structuring (before and after publication): polarization, clusterization, atomization, and attrition. It shows that the academic capital of the authors and the intellectual resources of their research are key factors of these destinies, as are the social relations between the authors concerned. The circumstances of the publishing are also correlated with the structuring of the egocentric cocitation networks, showing how socially embedded they are. Finally, the article discusses the contribution of these original networks to the analyze of scientific production and its dynamics. [ABSTRACT FROM AUTHOR]
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- 2023
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12. Classifying papers into subfields using Abstracts, Titles, Keywords and KeyWords Plus through pattern detection and optimization procedures: An application in Physics.
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Pech, Gerson, Delgado, Catarina, and Sorella, Silvio Paolo
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ABSTRACTING , *DATABASES , *PHYSICS , *ELECTRONIC journals , *BIBLIOGRAPHY , *ACADEMIC achievement , *INTELLECT , *RESEARCH funding , *BIBLIOGRAPHICAL citations , *INFORMATION science , *DATA analysis software , *POLICY sciences , *INFORMATION technology - Abstract
Classifying papers according to the fields of knowledge is critical to clearly understand the dynamics of scientific (sub)fields, their leading questions, and trends. Most studies rely on journal categories defined by popular databases such as WoS or Scopus, but some experts find that those categories may not correctly map the existing subfields nor identify the subfield of a specific article. This study addresses the classification problem using data from each paper (Abstract, Title, Keywords, and the KeyWords Plus) and the help of experts to identify the existing subfields and journals exclusive of each subfield. These "exclusive journals" are critical to obtain, through a pattern detection procedure that uses machine learning techniques (from software NVivo), a list of the frequent terms that are specific to each subfield. With that list of terms and with the help of optimization procedures, we can identify to which subfield each paper most likely belongs. This study can contribute to support scientific policy‐makers, funding, and research institutions—via more accurate academic performance evaluations—, to support editors in their tasks to redefine the scopes of journals, and to support popular databases in their processes of refining categories. [ABSTRACT FROM AUTHOR]
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- 2022
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13. The efficacy of appropriate paper-based technology for Kenyan children with cerebral palsy.
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Barton, Catherine, Buckley, John, Samia, Pauline, Williams, Fiona, Taylor, Suzan R., and Lindoewood, Rachel
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PILOT projects , *STATISTICS , *ANALYSIS of variance , *POSTURAL balance , *RESEARCH methodology , *CHILDREN with cerebral palsy , *INTERVIEWING , *POVERTY areas , *FUNCTIONAL assessment , *T-test (Statistics) , *ASSISTIVE technology , *RESEARCH funding , *QUESTIONNAIRES , *DESCRIPTIVE statistics , *STATISTICAL sampling , *DISABILITY chairs , *DATA analysis software , *DATA analysis , *FRIEDMAN test (Statistics) - Abstract
Appropriate paper-based technology (APT) is used to provide postural support for children with cerebral palsy (CP) in low-resourced settings. This pilot study aimed to evaluate the impact of APT on the children's and families' lives. A convenience sample of children with CP and their families participated. Inclusion was based on the Gross Motor Function Classification System levels IV and V. APT seating or standing frames were provided for six months. A mixed methods impact of APT devices on the children and families included the Family Impact Assistive Technology Scale for Adaptive Seating (FIATS-AS); the Child Engagement in Daily Life (CEDL) questionnaire; and a qualitative assessment from diary/log and semi-structured interviews. Ten children (median 3 years, range 9 months to 7 years). Baseline to follow-up median (IQR) FIATS-AS were: 22.7 (9.3) and 30.3 (10.2), respectively (p=.002). Similarly mean (SD) CEDL scores for "frequency" changed from 30.5 (13.2) to 42.08 (5.96) (p=.021) and children's enjoyment scores from 2.23 (0.93) to 2.91 (0.79) (p=.019). CEDL questionnaire for self-care was not discriminatory; seven families scored zero at both baseline and 6 months. Qualitative interviews revealed three key findings; that APT improved functional ability, involvement/interaction in daily-life situations, and a reduced family burden of care. APT devices used in Kenyan children with non-ambulant CP had a meaningful positive effect on both the children's and their families' lives. Assistive devices are often unobtainable for children with cerebral palsy (CP) in low-income countries. APT is a low cost and sustainable solution to make seating and standing devices for disabled children in Kenya. The regular use of a postural support device enhanced the children's motor skills, ability to function and participate in everyday activities, reduced the burden of care for the families and promoted the children's social interaction. The postural support devices were highly valued and utilised by the children and families in this study. [ABSTRACT FROM AUTHOR]
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- 2022
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14. Feedback-guided exercises performed on a tablet touchscreen improve return to work, function, strength and healthcare usage more than an exercise program prescribed on paper for people with wrist, hand or finger injuries: a randomised trial.
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Blanquero, Jesús, Cortés-Vega, María-Dolores, Rodríguez-Sánchez-Laulhé, Pablo, Corrales-Serra, Berta-Pilar, Gómez-Patricio, Elena, Díaz-Matas, Noemi, and Suero-Pineda, Alejandro
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COMPARATIVE studies ,COMPUTER input-output equipment ,CONFIDENCE intervals ,EMPLOYEES ,EMPLOYMENT reentry ,EXERCISE therapy ,FINGER injuries ,BONE fractures ,HAND injuries ,HOME care services ,WORK-related injuries ,LIFE skills ,MEDICAL care ,MUSCLE strength ,PORTABLE computers ,QUESTIONNAIRES ,REHABILITATION ,RESEARCH funding ,STATISTICAL sampling ,SELF-evaluation ,SOFT tissue injuries ,TELEMEDICINE ,THERAPEUTICS ,WRIST injuries ,RANDOMIZED controlled trials ,TREATMENT effectiveness ,MOBILE apps ,DATA analysis software ,DESCRIPTIVE statistics - Abstract
In people with bone and soft tissue injuries of the wrist, hand and/or fingers, do feedback-guided exercises performed on a tablet touchscreen hasten return to work, reduce healthcare usage and improve clinical recovery more than a home exercise program prescribed on paper? Randomised, parallel-group trial with concealed allocation, assessor blinding and intention-to-treat analysis. Seventy-four workers with limited functional ability due to bone and soft tissue injuries of the wrist, hand and/or fingers. Participants in the experimental and control groups received the same in-patient physiotherapy and occupational therapy. Participants in the experimental group received a home exercise program using the ReHand tablet application, which guides exercises performed on a tablet touchscreen with feedback, monitoring and progression. Participants in the control group were prescribed an evidence-based home exercise program on paper. The primary outcome was the time taken to return to work. Secondary outcomes included: healthcare usage (number of clinical appointments); and functional ability, pain intensity, and grip and pinch strength 2 and 4 weeks after randomisation. Compared with the control group, the experimental group: returned to work sooner (MD –18 days, 95% CI –33 to –3); required fewer physiotherapy sessions (MD –7.4, 95% CI –13.1 to –1.6), rehabilitation consultations (MD –1.9, 95% CI –3.6 to 0.3) and plastic surgery consultations (MD –3.6, 95% CI –6.3 to –0.9); and had better short-term recovery of functional ability and pinch strength. In people with bone and soft-tissue injuries of the wrist, hand and/or fingers, prescribing a feedback-guided home exercise program using a tablet-based application instead of a conventional program on paper hastened return to work and improved the short-term recovery of functional ability and pinch strength, while reducing the number of required healthcare appointments. ACTRN12619000344190 [ABSTRACT FROM AUTHOR]
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- 2020
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15. Australian midwifery student's perceptions of the benefits and challenges associated with completing a portfolio of evidence for initial registration: Paper based and ePortfolios.
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Gray, Michelle, Downer, Terri, and Capper, Tanya
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CONTENT analysis ,EXPERIENCE ,EXPERIMENTAL design ,FOCUS groups ,HEALTH occupations students ,INTERVIEWING ,RECORDING & registration ,RESEARCH methodology ,MIDWIVES ,RESEARCH funding ,STUDENTS ,STUDENT attitudes ,MIDWIFERY ,EMPLOYMENT portfolios ,THEMATIC analysis - Abstract
Portfolios are used in midwifery education to provide students with a central place to store their accumulative evidence of clinical experience for initial registration in Australia. Portfolio formats can be paper-based or electronic. Anecdotal discussion between midwifery students in Queensland debated the best format to document the requirements for the Australian Nursing and Midwifery Accreditation Council (ANMAC) standard 8.11. Midwifery students using paper-based portfolios envisioned that an ePortfolio would be streamline, simple, safe to use, and able to be used anywhere with WIFI, while some students using an ePortfolio expressed a desire to have a paper-based portfolio as a hard copy. This situation called for evidence of a comparison to resolve the debate. The aim of this study was to investigate midwifery students' experiences of the benefits and challenges between paper-based and ePortfolios when compiling evidence to meet the requirements for initial registration as a midwife in Australia (ANMAC, 2014). • Each type of portfolio had challenges and benefits. • Portfolio completion is time consuming, and stressful due to the need for verification of evidence. • Students require early and regular feedback on portfolio development. • National standards are required for consistency in documentation across universities. [ABSTRACT FROM AUTHOR]
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- 2019
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16. Physiotherapist and participant perspectives from a randomized-controlled trial of physiotherapist-supported online vs. paper-based exercise programs for people with moderate to severe multiple sclerosis.
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Knox, Katherine B., Nickel, Darren, Donkers, Sarah J., and Paul, Lorna
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MULTIPLE sclerosis , *WORK , *RESEARCH methodology , *INTERVIEWING , *PATIENTS' attitudes , *SEVERITY of illness index , *EXPERIENCE , *TREATMENT effectiveness , *EXPERIENTIAL learning , *DESCRIPTIVE statistics , *RESEARCH funding , *PHYSICAL therapists' attitudes , *TELEMEDICINE , *EXERCISE therapy - Abstract
There is a gap in research on how best to support exercise in moderate to severe MS. The objective of this study is to share perspectives of people living with MS and physiotherapists on their experiences in a randomized clinical trial of online physiotherapy vs. an active comparator. Semi-structured exit interviews were conducted with volunteer participants from the online and comparator arms of the trial, and focus groups were held with study physiotherapists. Transcripts were analyzed using reflexive thematic analysis. Perspectives from participants with MS yielded three themes: usability of their program, utility of their program, and motivation to participate. Visual and dexterity impairments limited the usability of the online program. Having an opportunity "to be pushed" was valued by participants in both trial arms. Motivation to exercise was variable, and participants desired periodic face-to-face contact with their physiotherapists. Perspectives from trial physiotherapists yielded similar and complementary findings concerning usability and utility. Participants with MS and physiotherapists found the online physiotherapy platform useful for supporting exercise, yet they identified some limitations. As the appeal of online platforms has increased since the pandemic, it will be important to consider the needs of people with moderate to severe MS. NCT03039400. People with moderate-to-severe MS and physiotherapists involved in a clinical trial found online physiotherapy useful for supporting exercise. Physiotherapists and participants using the online program desired improved platform accommodations for people living with MS with visual and dexterity impairments. Physiotherapists and people living with MS from both the online exercise program and comparator groups perceived a need for more face-to-face contact and opportunities to build therapeutic alliance. Perspectives from prescribing physiotherapists and people living with MS about supporting exercise online may have practice implications during and post-pandemic. [ABSTRACT FROM AUTHOR]
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- 2023
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17. Adherence to mHealth and Paper-Based Versions of Lifestyle-Integrated Functional Exercise: A Secondary Analysis of Data From the PreventIT Feasibility Randomized Controlled Trial.
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Yang, Yang, Boulton, Elisabeth, Taraldsen, Kristin, Mikolaizak, A. Stefanie, Pijnnaples, Mirjam, and Todd, Chris
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EVALUATION of human services programs ,SELF-evaluation ,HOME care services ,MEDICAL care ,PHYSICAL fitness ,PHYSIOLOGICAL adaptation ,COMPARATIVE studies ,PHYSICAL activity ,HEALTH behavior ,DESCRIPTIVE statistics ,QUALITY of life ,RESEARCH funding ,PATIENT compliance ,TECHNOLOGY ,TELEMEDICINE ,EXERCISE therapy ,BEHAVIOR modification ,SECONDARY analysis ,OLD age - Abstract
The European Commission Horizon 2020 project—PreventIT—evaluated two approaches to delivering Lifestyle-Integrated Functional Exercise (LiFE) programs for maintaining older adults' physical function: the paper-based adapted LiFE and mobile health device delivered enhanced LiFE. A self-reported method was used to measure users' monthly adherence over 12 months. This analysis aimed to explore young seniors' adherence patterns between enhanced LiFE and adapted LiFE groups. Results showed that adherence level decreased with time in both groups. The enhanced LiFE group had slightly higher adherence than the adapted LiFE group during most of the 12 months. However, the overall adherence levels were not significantly different during either intervention or follow-up periods. Monthly self-reported adherence measurement can help to understand users' adherence comprehensively. The comparable adherence levels between both groups indicate mobile health could be an alternative to delivering home-based physical activity for young seniors. However, this feasibility study was not powered to detect differences between groups. [ABSTRACT FROM AUTHOR]
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- 2023
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18. An umbrella review of systematic reviews of the evidence of a causal relationship between periodontal disease and adverse pregnancy outcomes: A position paper from the Canadian Dental Hygienists Association.
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Lavigne, Salme E. and Forrest, Jane L.
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PERIODONTAL disease treatment ,ATTRIBUTION (Social psychology) ,CINAHL database ,MEDICAL databases ,INFORMATION storage & retrieval systems ,MEDLINE ,ORAL hygiene ,ONLINE information services ,PERIODONTAL disease ,PREGNANCY complications ,RESEARCH funding ,RISK assessment ,SYSTEMATIC reviews ,DISEASE complications ,DISEASE risk factors ,PREGNANCY - Abstract
Copyright of Canadian Journal of Dental Hygiene is the property of Canadian Dental Hygienists Association and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2020
19. An umbrella review of systematic reviews of the evidence of a causal relationship between periodontal disease and cardiovascular diseases: Position paper from the Canadian Dental Hygienists Association.
- Author
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Lavigne, Salme E. and Forrest, Jane L.
- Subjects
PERIODONTAL disease treatment ,CARDIOVASCULAR diseases ,CARDIOVASCULAR diseases risk factors ,CAUSALITY (Physics) ,CINAHL database ,INFORMATION storage & retrieval systems ,MEDICAL databases ,MEDLINE ,ONLINE information services ,PERIODONTAL disease ,RESEARCH funding ,SYSTEMATIC reviews ,CLINICAL trial registries - Abstract
Copyright of Canadian Journal of Dental Hygiene is the property of Canadian Dental Hygienists Association and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
- Published
- 2020
20. funding and research trends in library and information science of NSSFC: Comparison of awards and papers.
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Xiang, Jianqin and Wang, Haiyan
- Subjects
- *
INFORMATION science , *LIBRARY science , *LIBRARY research , *RESEARCH funding , *MEDICAL informatics - Abstract
Subject to various restrictive requirements on project application and completion, funded projects are often affected by funding policies for the selection of research objects. This study explored the impact of scientific research funding policies on the funding and research by comparing the topic distribution of awards and papers. A total of 1,870 awards and 16,491 papers of the National Social Science Foundation of China (NSSFC) in library and information science (LIS) were collected from a Chinese research project database. According to the results, the growth rate of awards on most topics is higher than that of papers, while the growth rate of papers on the relevant topics to users, technology, and metrology is higher than that of awards. It was found out in the study that the topics funded by NSSFC were imbalanced. NSSFC provides much more funding to traditional topics rather than emerging topics. As indicated by the funding provided to the projects on traditional topics for research on a large number of papers on emerging topics, however, the innovation and diversity of academic research have yet to be restricted. This study demonstrated that the effect of funding policies on the research topics in LIS is significant. Topic suggestions and funding structure of NSSFC have more impacts on award topics than on paper topics. The influence of NSSFC-recommended topics on paper topics is declining year by year. Additionally, awards with high funding intensity are more susceptible to topic suggestions. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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21. The representation of argumentation in scientific papers: A comparative analysis of two research areas.
- Author
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Wang, Xiaoguang, Song, Ningyuan, Zhou, Huimin, and Cheng, Hanghang
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- *
SEMANTICS , *LIBRARY science , *PSYCHOLOGY , *COMPARATIVE grammar , *COMPARATIVE studies , *THEORY , *INTELLECT , *RESEARCH funding , *ONTOLOGIES (Information retrieval) , *LITERATURE reviews , *MEDICAL research - Abstract
Scientific papers are essential manifestations of evolving scientific knowledge, and arguments are an important avenue to communicate research results. This study aims to understand how the argumentation process is represented in scientific papers, which is important for knowledge representation, discovery, and retrieval. First, based on fundamental argument theory and scientific discourse ontologies, a coding schema, including 17 categories was constructed. Thereafter, annotation experiments were conducted with 40 scientific articles randomly selected from two different research areas (library and information science and biomedical sciences). Statistical analysis and the sequential pattern mining method were then employed; the ratio of different argumentation units and evidence types were calculated, the argumentation semantics of figures and tables analyzed, and the argumentation structures extracted. A correlation analysis between argumentation and rhetorical structures was also performed to further reveal how argumentation was represented within scientific discourses. The results indicated a difference in the proportion of the argumentation units in the two types of scientific papers, as well as a similar linear construction with differences in the specific argument structures of each knowledge domain and a clear correlation between argumentation and rhetorical structure. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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22. "More than just giving them a piece of paper": Interviews with Primary Care on Social Needs Referrals to Community-Based Organizations.
- Author
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Beidler, Laura B., Razon, Na'amah, Lang, Hannah, and Fraze, Taressa K.
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QUALITATIVE research , *RESEARCH funding , *MEDICAL care , *PRIMARY health care , *PSYCHOLOGICAL tests , *MEDICAL referrals , *SOCIAL participation - Abstract
Background: Primary care practices are responding to calls to incorporate patients' social risk factors, such as housing, food, and economic insecurity, into clinical care. Healthcare likely relies on the expertise and resources of community-based organizations to improve patients' social conditions, yet little is known about the referral process.Objective: To characterize referrals to community-based organizations by primary care practices.Design: Qualitative study using semi-structured interviews with healthcare administrators responsible for social care efforts in their organization.Participants: Administrators at 50 diverse US healthcare organizations with efforts to address patients' social risks.Main Measures: Approaches used in primary care to implement social needs referral to community-based organizations.Results: Interviewed administrators reported that social needs referrals were an essential element in their social care activities. Administrators described the ideal referral programs as placing limited burden on care teams, providing patients with customized referrals, and facilitating closed-loop referrals. We identified three key challenges organizations experience when trying to implement the ideal referrals program: (1) developing and maintaining resources lists; (2) aligning referrals with patient needs; and (3) measuring the efficacy of referrals. Collectively, these challenges led to organizations relying on staff to manually develop and update resource lists and, in most cases, provide patients with generic referrals. Administrators not only hoped that referral platforms may help overcome some of these barriers, but also reported implementation challenges with platforms including inconsistent buy-in and use across staff; integration with electronic health records; management and prioritization of resources; and alignment with other organizations in their market.Conclusion and Relevance: Referrals to community-based organizations were used in primary care to improve patients' social conditions, but despite strong motivations, interviewees reported challenges providing tailored and up-to-date information to patients. [ABSTRACT FROM AUTHOR]- Published
- 2022
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23. A framework for nurses working in partnership with substitute decision‐makers for people living with advanced dementia: A discursive paper.
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Cresp, Sarah Jane, Lee, Susan Fiona, and Moss, Cheryle
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MEDICAL quality control , *CAREGIVERS , *NURSING , *MOTIVATION (Psychology) , *MEDICAL care , *CONCEPTUAL structures , *DEMENTIA patients , *DEMENTIA , *INTERPROFESSIONAL relations , *NURSES , *QUALITY of life , *DECISION making , *RESEARCH funding , *DECISION making in clinical medicine , *EMOTIONS , *PSYCHOLOGICAL stress , *TRUST - Abstract
Aim: To describe and discuss clinical strategies for nurses working in partnership with substitute decision‐makers for people living with advanced dementia. Background: By providing person‐centred care to patients living with advanced dementia, nurses are positioned to work in partnership with substitute decision‐makers who make healthcare decisions related to advanced care. Because the experience of being substitute decision‐makers is complex and stressful, nurses need skillsets for working in partnership with substitute decision‐makers. Design: In this discursive paper, an innovative framework for working in partnership with substitute decision‐makers is proposed. Method: Evidence‐based findings from a systematic review provided five domain foci for the partnership framework. In each domain, two clinical strategies were discursively proposed. Clinical strategies were hypothesised from research findings and insights from the authors' nursing experiences. Then, topical literature was searched, and findings were used to support the discursively argued strategies. Discussion: To deal with complexities and reduce stress for substitute decision‐makers, an innovative Nurse–Substitute Decision‐Maker Partnership Framework for use in the context of advanced dementia is proposed and discussed. The partnership framework consists of five domains: Building trust, Exploring emotions, Translating quality of life, Encouraging proactivity and Negotiating families. Within these domains, ten strategies to support the practices of clinical nurses to work in partnership with substitute decision‐makers are discussed. Relevance to Clinical Practice: In the framework, the ten clinical nursing strategies are designed to provide targeted care to substitute decision‐makers in areas that are known to cause complexity and stress to them. The Nurse–Substitute Decision‐Maker Partnership Framework has been designed to improve nurse–substitute decision‐maker partnerships and reduce the stress experienced by substitute decision‐makers as they work through the complexities associated with advanced dementia. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
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24. Bibliometric Studies of Most-Cited Medical Papers: A Bibliometric Analysis.
- Author
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Kashani, Masoud Motalebi, Homavandi, Hoda, and Batooli, Zahra
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MEDICAL literature -- History & criticism , *BIBLIOMETRICS , *SERIAL publications , *RETROSPECTIVE studies , *ACQUISITION of data , *CITATION analysis , *MEDICAL records , *DESCRIPTIVE statistics , *RESEARCH funding , *CONTENT analysis , *MEDICAL research - Abstract
Aims: The purpose of this study is the analysis of bibliometric studies of the medical most-cited papers. Materials and Methods: This applied and the scientometric study was conducted using retrospective bibliometric analysis methods. AScopus search was conducted and 883 articles were retrieved. After reviewing the titles and abstracts, 432 articles related to the purpose of this research were identified. Items such as year, journal, country, and institution were considered. Medical subject heading and NLM were applied for the subject categorization of articles. Given the dynamics of subject areas over time, only the content of 117 articles published in 2020 and 2021 were analyzed. These 117 articles have been reviewed with 11,700 most-cited articles. By reviewing 117 articles, the most productive journal, country, and institute in producing 11,700 articles were identified. Results: The findings have shown a significant number of these publications review 100 most-cited articles in the field of medicine. Articles pertaining to the Nervous System, Musculoskeletal System, Dentistry, Radiology, and Cardiovascular System are the most numerous among the publications. Conclusion: The results of this study allow readers to know the most productive countries, institutions, and journals of various subject areas, as well as the most influential fields and research trends in that subject area. The results of this study also identify subject areas for which the characteristics of their core articles have not yet been explored to plan future research. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
25. Cognitive remediation for schizophrenia: An expert working group white paper on core techniques.
- Author
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Bowie, Christopher R., Bell, Morris D., Fiszdon, Joanna M., Johannesen, Jason K., Lindenmayer, Jean-Pierre, McGurk, Susan R., Medalia, Alice A., Penadés, Rafael, Saperstein, Alice M., Twamley, Elizabeth W., Ueland, Torill, and Wykes, Til
- Subjects
- *
SCHIZOPHRENIA , *PAPER products , *TREATMENT programs , *CLINICAL trials , *MEDICAL protocols , *RESEARCH funding - Abstract
Cognitive remediation is now widely recognized as an effective treatment for cognitive deficits in schizophrenia. Its effects are meaningful, durable, and related to improvements in everyday functional outcomes. As with many therapies, the evolution of cognitive remediation has resulted in treatment programs that use a variety of specific techniques, yet share common core principles. This paper is the product of a cognitive remediation expert working group consensus meeting to identify core features of the treatment and produce recommendations for its design, conduct, reporting, and implementation. Four techniques were identified as core features of cognitive remediation: facilitation by a therapist, cognitive exercise, procedures to develop problem-solving strategies, and procedures to facilitate transfer to real world functioning. Treatment techniques within each of these core features are presented to facilitate decisions for clinical trials and implementation in clinical settings. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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26. Information structures in sociology research papers: Modeling cause–effect and comparison relations in research objective and result statements1.
- Author
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Cheng, Wei‐Ning and Khoo, Christopher S. G.
- Subjects
- *
PUBLISHING , *SEMANTICS , *ABSTRACTING , *SOCIOLOGY , *INFORMATION resources management , *RESEARCH funding , *AUTHORSHIP , *MEDICAL research , *CONCEPTS - Abstract
When writing a research paper, the author has to select information to include in the paper to support various arguments. The information has to be organized and synthesized into a coherent whole through relationships and information structures. There is hardly any research on the information structure of research papers, and how information structure supports rhetorical and argument structures. Thus, this study is focused on information organization in the Abstract and Introduction sections of sociology research papers, analyzing the information structure of research objective, question, hypothesis, and result statements. The study is limited to research papers reporting research that investigated cause–effect relations between two concepts. Two semantic frames were developed to specify the types of information associated with cause–effect and comparison relations, and used as coding schemes to annotate the text for different information types. Six link patterns between the two frames were identified—showing how comparisons are used to support the claim that the cause‐effect relation is valid. This study demonstrated how semantic frames can be incorporated in discourse analysis to identify deep structures underlying the argument structure. The results carry implications for the knowledge representation of academic research in knowledge graphs, for semantic relation extraction, and teaching of academic writing. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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- View/download PDF
27. Trends in high‐impact papers in nursing research published from 2008 to 2018: A web of science‐based bibliometric analysis.
- Author
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Zhu, Ruifang, Wang, Yaping, Wu, Rui, Meng, Xin, Han, Shifan, and Duan, Zhiguang
- Subjects
- *
BIBLIOMETRICS , *COMPUTER software , *INTERPROFESSIONAL relations , *NURSING research , *PUBLISHING , *RESEARCH funding , *BIBLIOGRAPHIC databases , *PERIODICAL articles , *CITATION analysis , *IMPACT factor (Citation analysis) , *DESCRIPTIVE statistics - Abstract
Objective: To assess the overall trends in the development and citation impact of high‐impact papers in nursing research worldwide to gain insight into the focus areas of nursing research. Background: Bibliometric method is proved to be effective in analysing the papers' characteristics, and it gained considerable interest from the scientific community in recent years. An analysis of the characteristics and intrinsic patterns of high‐impact papers in nursing research will provide an objective reflection of the research hot spots. Nursing managers can pointedly increase funding amount and strengthen research cooperation in order to put the scientific results into management practice. Methods: Bibliometric methods and visualization software were used to comprehensively analyse high‐impact papers in nursing research in terms of development trends, countries/regions, distribution of subject areas, research institutes, collaborative networks and subject terms. Results: There were 6,886 papers between 2008 and 2018. The number of papers increased from 528 in 2008 to 723 in 2015, and then remained above 600 in 2016 and 2017. These papers were mainly distributed in nursing, oncology, paediatrics, gynaecology, teaching and education, and cardiac and cardiovascular systems and were cited by 128,845 papers that came from 89 Web of Science subject areas. Papers in nursing research accounted for the largest share of these citations. The top five countries in the world in terms of the number of high‐impact papers were the United States, Australia, the United Kingdom, Canada and Sweden. The research institutions with the highest number of high‐impact papers worldwide were the University of California System, the University of Pennsylvania, the University of North Carolina, the University of London and the University of Technology Sydney. In this data set, it was shown that research collaborative circles have been formed in the United States, Australia, Canada and Europe; the subject‐term analysis indicated that 'women' and 'students' have always been high‐interest populations for high‐impact papers and that cancer is still one of the greatest threats to human health. Furthermore, the subject terms of high‐impact papers in nursing research have gradually evolved from 'disease' and 'therapy' to 'symptoms'. Conclusion: In recent years, the number of high‐impact papers published each year in nursing research has grown over time. Nursing has been shown to be a highly specialized subject, and the majority of its high‐impact papers have been published by research institutions. Although cross‐regional collaborations are beginning to emerge, there is much room for improvement in this regard. Finally, women, students, cancer and symptomatic care are the current focus areas in nursing research. Implications for Nursing Management: This study informs nursing managers within the nursing research field about subject areas, collaborative networks and hot topics. It is beneficial to pay attention to studies, manage scientific outputs, allocate resources, seek cooperation and improve the work efficiency of scientific research management. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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28. Differences in Nonresponse Bias and Victimization Reports Across Self-Administered Web-Based and Paper-and-Pencil Versions of a Campus Climate Survey.
- Author
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Hayes, Brittany E. and O'Neal, Eryn Nicole
- Subjects
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PSYCHOLOGICAL abuse , *COLLEGE students , *RAPE , *SELF-evaluation , *INDEPENDENT variables , *SOCIAL stigma , *BINGE drinking , *SURVEYS , *PSYCHOLOGY of crime victims , *INTIMATE partner violence , *MATHEMATICAL variables , *T-test (Statistics) , *UNIVERSITIES & colleges , *SEX crimes , *SCALE analysis (Psychology) , *CHI-squared test , *DESCRIPTIVE statistics , *RESEARCH funding , *RESEARCH bias , *SOCIAL attitudes , *STATISTICAL sampling , *LOGISTIC regression analysis , *BULLYING , *EVALUATION - Abstract
Using a standardized campus climate survey that was disseminated across three modes of administration (N = 5,137), this study assesses the nonresponse bias of two web-based versions to a self-administered paper-and-pencil version conducted at a Southeastern 4-year university. Significant differences emerged across all three modes of administration and victimization measures (bullying, sexual assault, rape, emotional abuse, and intimate partner violence [IPV]). Respondents were more likely to report victimization in the web-based surveys administered to online-only classes and via mass email compared to the paper survey. Policy implications, especially as it relates to survey administration, are discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
29. From paper-based towards post-digital scholarly publishing: an analysis of an ideological dilemma and its consequences.
- Author
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Saarti, Jarmo and Tuominen, Kimmo
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DILEMMA ,BUSINESS models ,RESEARCH funding ,SCHOLARLY publishing ,SCIENCE publishing - Abstract
Introduction. Even though the current publishing model is based on digital dissemination, it still utilizes some of the basic principles of printed culture. Recently a policy emphasis towards open access has been set for publicly funded research. This paper reports on a study of the practices, business models and values linked with scholarly publishing. Method. Conceptual analysis was conducted, drawing on literature on scholarly publishing policies, practices, values and economies, with an emphasis on the structures and conflicts between license-based and open publishing models. Results. Scholarly interests of sharing collide with commercial interests of generating profits. In the digital era, the scientific community might have a third economically viable alternative. This third way is based on what the authors call post-digital scholarly publishing. Conclusion. Science should aim at as complete openness as possible. Scholarly activities advance best when the whole scientific community has access to both publications and research data. What seems to stand in the way of scientific sharing is the global publishing industry in its present form. In the future, post-digital scholarly publishing might provide a means for finding an economically viable way between sharing economy and commercial interests. [ABSTRACT FROM AUTHOR]
- Published
- 2017
30. 'On paper, you're normal': narratives of unseen health needs among women who have had children removed from their care.
- Author
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Grant, Claire, Powell, Claire, Philip, Georgia, Blackburn, Ruth, Lacey, Rebecca, and Woodman, Jenny
- Subjects
PSYCHOLOGY of mothers ,ATTITUDE (Psychology) ,FAMILY separation policy, 2018-2021 ,INTERVIEWING ,GROUP identity ,HEALTH status indicators ,EXPERIENCE ,RESEARCH funding ,NEEDS assessment ,FAMILY relations ,MOTHER-child relationship ,MEDICAL needs assessment - Abstract
Background Mothers who have children removed from their care often have complex needs. These women have poor health outcomes and are dying earlier than their peers from preventable and amenable causes. Yet there is little known about how health care services might mitigate these risks. This study aimed to listen to the voices of women who had children removed from their care to understand their experiences of health and healthcare. Methods We used a narrative approach to collect and analyse interview data with six mothers who had experienced child removal in England. Each participant was asked to reflect on their life and main health challenges. Results Three narrative subplots were developed to consolidate experiences of unmet health need: (i) 'on paper you're normal': narratives of complex need, (ii) 'in my family, everyone had issues': narratives of whole family need and (iii) 'I'm still mummy, no matter where they are': narratives of maternal identity and health. Conclusions Findings highlight limitations within current systems of support, including a culture of distrust and women falling between the gaps of services. Women's narratives illustrate opportunities for health intervention, especially immediately following child removal. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
31. Usability and Emotions of Mental Health Assessment Tools: Comparing Mobile App and Paper-and-Pencil Modalities.
- Author
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Liu, Yang S., Hankey, Jeffrey, Lou, Nigel Mantou, Chokka, Pratap, and Harley, Jason M.
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- *
COMPETENCY assessment (Law) , *STATISTICS , *ANALYSIS of variance , *MOBILE apps , *USER interfaces , *MULTIVARIATE analysis , *COMPARATIVE studies , *SEX distribution , *QUESTIONNAIRES , *RESEARCH funding , *ANALYSIS of covariance , *DESCRIPTIVE statistics , *EMOTIONS , *DATA analysis , *TELEMEDICINE - Abstract
Users' experiences in mental health assessment are multifaceted, including their emotional experiences. Yet, studies of mobile apps for psychiatric assessment have centered on diagnostic accuracy and perceived usability, with little consideration of the impact of user emotional experiences. In this study, we focused on users' perceived usability and emotions and compared the user experience of a paper-and-pencil and an app-based collection of mental health screening questionnaires: EarlyDetect. The System Usability Scale (SUS) and modality-directed emotion questionnaires were administered using paper-and-pencil or iPad. Modality was assigned pseudo-randomly on patients' first visit at a referral-based mental health clinic. We found that patients assigned to the iPad app reported a significantly higher SUS score than patients assigned to paper-and-pencil, qualified by a modality-by-gender interaction where modality effects were significant for men but not for women. Moreover, enjoyment was positively linked to perceived usability, whereas boredom, frustration, and anxiety were negatively linked to usability. Our findings illustrate the added value of studying user experience applied to psychiatric assessments, where both emotions and gender-specific user experience should be taken into consideration. We further discuss the implications for psychiatric assessments via app versus traditional data collection. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
32. Validation of the Electronic Compassion Competence Scale: Paper-and-Pencil versus Web-Based Questionnaires.
- Author
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Hyoung Eun Chang, Youngjin Lee, and Sunyoung Jung
- Subjects
STATISTICS ,EXPERIMENTAL design ,RESEARCH evaluation ,STATISTICAL reliability ,RESEARCH methodology evaluation ,CROSS-sectional method ,RESEARCH methodology ,COMPASSION ,RANDOMIZED controlled trials ,PEARSON correlation (Statistics) ,CLINICAL competence ,QUESTIONNAIRES ,RESEARCH funding ,INTRACLASS correlation ,DESCRIPTIVE statistics ,STATISTICAL sampling ,CROSSOVER trials ,NURSING students ,DATA analysis software - Abstract
Purpose: This study aimed to determine the validity and reliability of the electronic Compassion Competence Scale (e-CCS). Methods: A cross-sectional, randomized, two-period crossover design was used. Nursing students from four South Korean universities were surveyed between June 2017 and April 2018. The participants were randomly assigned to one of three groups-paper/paper, electronic/electronic, and paper/electronic or electronic/paper-and a test-retest procedure was implemented. The reliability and validity of the e-CCS were evaluated using linear weighted kappa coefficients and intraclass correlation coefficients (ICCs). Internal consistency reliability was verified using linear weighted kappa coefficients and ICCs. Pearson's correlation coefficients between the initial test and retest scores were all statistically significant. Results: The newly developed e-CCS was found to have good reliability and validity. We suggest that future research should increase sample heterogeneity by recruiting diverse age groups, nurses working in different nursing fields, and students from multiple colleges. Conclusion: This electronic instrument will help determine the differences in the level of compassion competence and devise interventions to improve compassion competence in nurses and nursing students. Further studies on enhancing compassion competence among nurses and nursing students may rely on the use of this electronic format. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
33. Approaches to the identification and management of depression in people living with chronic kidney disease: A scoping review of 860 papers.
- Author
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Pearce, Christina J., Hall, Natalie, Hudson, Joanna L., Farrington, Ken, Tucker, Madeleine J. Ryan, Wellsted, David, Jones, Julia, Sharma, Shivani, Norton, Sam, Ormandy, Paula, Palmer, Nick, Quinnell, Anthony, Fitzgerald, Lauren, Griffiths, Sophie, and Chilcot, Joseph
- Subjects
CHRONIC kidney failure complications ,DIAGNOSIS of mental depression ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,SYSTEMATIC reviews ,SELF-evaluation ,MEDICAL screening ,PSYCHOLOGICAL tests ,MENTAL depression ,RESEARCH funding ,LITERATURE reviews ,MEDLINE ,DISEASE management ,COGNITIVE therapy ,ADULTS - Abstract
Background: Depression is prevalent across the spectrum of Chronic Kidney Disease and associated with poorer outcomes. There is limited evidence regarding the most effective interventions and care pathways for depression in Chronic Kidney Disease. Objectives: To investigate how depression is identified and managed in adults with Chronic Kidney Disease. Design: Scoping review. Methods: Systematic search of eight databases with pre‐defined inclusion criteria. Data relevant to the identification and/or management of depression in adults with Chronic Kidney Disease were extracted. Results: Of 2147 articles identified, 860 were included. Depression was most identified using self‐report screening tools (n = 716 studies, 85.3%), with versions of the Beck Depression Inventory (n = 283, 33.7%) being the most common. A total of 123 studies included data on the management of depression, with nonpharmacological interventions being more frequently studied (n = 55, 45%). Cognitive Behavioural Therapy (n = 15) was the most common nonpharmacological intervention, which was found to have a significant effect on depressive symptoms compared to controls (n = 10). However, how such approaches could be implemented as part of routine care was not clear. There was limited evidence for antidepressants use in people with Chronic Kidney Disease albeit in a limited number of studies. Conclusions: Depression is commonly identified using validated screening tools albeit differences exist in reporting practices. Evidence regarding the management of depression is mixed and requires better‐quality trials of both pharmacological and nonpharmacological approaches. Understanding which clinical care pathways are used and their evidence, may help facilitate the development of kidney care specific guidelines for the identification and management of depression. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
34. New Coagulation Modifiers Study Results from Monash University Described (Rapid, Hand-held Paper Diagnostic for Measuring Fibrinogen Concentration In Blood)
- Subjects
Physical fitness -- Measurement -- Research ,Fibrin -- Measurement -- Research ,Fibrinogen -- Measurement -- Research ,Mortality ,Finance ,Research funding ,Editors ,Health ,Monash University - Abstract
2020 MAR 21 (NewsRx) -- By a News Reporter-Staff News Editor at Obesity, Fitness & Wellness Week -- Investigators publish new report on Drugs and Therapies - Coagulation Modifiers. According [...]
- Published
- 2020
35. New Biopharmaceuticals Study Results Reported from Uppsala University (Nanocellulose-based Nanoporous Filter Paper for Virus Removal Filtration of Human Intravenous Immunoglobulin)
- Subjects
Physical fitness -- Health aspects ,Intravenous immunoglobulins -- Health aspects ,Biopharmaceuticals -- Health aspects ,Immunoglobulins ,AIDS (Disease) ,Research funding ,Autoimmune diseases ,Editors ,Bridges (Structures) ,Diseases ,Immunodeficiency ,Health ,Uppsala University - Abstract
2020 FEB 15 (NewsRx) -- By a News Reporter-Staff News Editor at Obesity, Fitness & Wellness Week -- Current study results on Biotechnology - Biopharmaceuticals have been published. According to [...]
- Published
- 2020
36. Nurses' health beliefs about paper face masks in Japan, Australia and China: a qualitative descriptive study.
- Author
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Omura, M., Stone, T.E., Petrini, M.A., and Cao, R.
- Subjects
- *
PREVENTION of infectious disease transmission , *PREVENTION of communicable diseases , *CONTENT analysis , *CULTURE , *HEALTH attitudes , *RESEARCH methodology , *HEALTH policy , *NURSES' attitudes , *RESEARCH funding , *STATISTICAL sampling , *QUALITATIVE research , *SECONDARY analysis , *DESCRIPTIVE statistics , *COVID-19 - Abstract
Aim: To explore the health beliefs of clinical and academic nurses from Japan, Australia and China regarding wearing paper masks to protect themselves and others, and to identify differences in participants' health beliefs regarding masks. Background: The correct use of face masks and consensus among health professionals across the globe is essential for containing pandemics, and nurses need to act according to policy to protect themselves, educate the public and preserve resources for frontline health workers. Paper masks are worn by health professionals and the general public to avoid the transmission of respiratory infections, such as COVID‐19, but there appear to be differences in health beliefs of nurses within and between countries regarding these. Methods: This qualitative descriptive study used content analysis with a framework approach. Findings: There were major differences in nurse participants' beliefs between and within countries, including how nurses use paper masks and their understanding of their efficacy. In addition, there were cultural differences in the way that nurses use masks in their daily lives and nursing practice contexts. Conclusion: Nurses from different working environments, countries and areas of practice hold a variety of health beliefs about mask wearing at the personal and professional level. Implications for nursing policy and health policy: The COVID‐19 pandemic has sparked much discussion about the critical importance of masks for the safety of health professionals, and there has been considerable discussion and disagreement about health policies regarding mask use by the general public. Improper use of masks may have a role in creating mask shortages or transmitting infections. An evidence‐based global policy on mask use for respiratory illnesses for health professionals, including nurses, and the general public needs to be adopted and supported by a wide‐reaching education campaign. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
37. Fast growth of the number of proceedings papers in atypical fields in the Czech Republic is a likely consequence of the national performance-based research funding system.
- Author
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Vanecek, Jiri and Pecha, Ondrej
- Subjects
- *
RESEARCH funding , *SOCIAL belonging , *PERIODICAL articles , *ADAPTABILITY (Personality) - Abstract
This article compares the growth rates of Web of Science indexed research publications in 11 European countries from 2000 to 2015. The growth of publication output in the Czech Republic was very fast: the annual production increased more than threefold. However, the number of articles increased only 2.6-fold, whereas the number of proceedings papers increased eightfold. During 2013–15 almost one-third of the papers published by researchers based in the Czech Republic were proceedings papers, a much higher share than in any other benchmark country. Such a high share is undesirable, because proceedings papers are generally much less often cited than journal articles. The growth of the number of proceedings papers is fastest in 17 fields belonging to the social sciences which usually do not hold proceedings papers in high regard. Our analysis shows that this undesirable development started after the introduction of national performance-based research funding system (PRFS) in the Czech Republic. Hence, the effort made to publish proceedings papers seems to reflect an optimization strategy in the light of the PRFS. In the Czech PRFS, proceedings papers have been rewarded point values similar to articles in refereed journals and a large portion of the institutional funding is allocated according to the evaluation results. As a consequence of very fast growth of proceedings papers in the social sciences, the university institutional funding in these fields has grown faster than in other fields. In conclusion, the fast growth of proceedings papers represents an adaptive behavior to the context of the PRFS. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
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38. Data objects and documenting scientific processes: An analysis of data events in biodiversity data papers.
- Author
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Li, Kai, Greenberg, Jane, and Dunic, Jillian
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BIOTIC communities , *CONTENT analysis , *DATABASE management , *DOCUMENTATION , *MEDICAL research , *RESEARCH funding , *ELECTRONIC publications - Abstract
The data paper, an emerging scholarly genre, describes research data sets and is intended to bridge the gap between the publication of research data and scientific articles. Research examining how data papers report data events, such as data transactions and manipulations, is limited. The research reported on in this article addresses this limitation and investigated how data events are inscribed in data papers. A content analysis was conducted examining the full texts of 82 data papers, drawn from the curated list of data papers connected to the Global Biodiversity Information Facility. Data events recorded for each paper were organized into a set of 17 categories. Many of these categories are described together in the same sentence, which indicates the messiness of data events in the laboratory space. The findings challenge the degrees to which data papers are a distinct genre compared to research articles and they describe data‐centric research processes in a through way. This article also discusses how our results could inform a better data publication ecosystem in the future. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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39. Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper.
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Karlsson, Katarina, Galvin, Kathleen, and Darcy, Laura
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CONCEPTUAL structures , *HUMANISM , *INTERVIEWING , *MEDICAL care , *RESEARCH funding , *THERAPEUTICS , *DEHUMANIZATION - Abstract
Purpose: Children's perspectives in the context of health service delivery have historically been seen as unimportant. They have been viewed as unintelligent, unable to effectively share or tell of their experiences or fully participate in their care, potentially resulting in a sense of dehumanisation. Method: The present paper illustrates children's experiences when undergoing medical procedures, using application of the eight dimensions of humanised care theoretical framework. Results: Findings from six published papers were reflectively interrogated to identify implicit findings related to the dimensions of humanised care. These implicit findings show ways of caring for childrenwhichcan lead to enhanced human sensitivity in care or conversely where the dimensions of being human are obscured to greater or lesser degrees and can result in forms of dehumanisation. Conclusions: Inadvertent dehumanising features of practice can be mediated by encouraging the inclusion of children's own lifeworld perspective and make room for their voices in both care and research. In this way the present well documented power imbalance could be addressed. Adding the value of the theoretical framework highlights areas of need for young children to be cared for as human beings. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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40. Leaving Paper Behind: Improving Healthcare Navigation by Latino Immigrant Parents Through Video-Based Education.
- Author
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Valenzuela-Araujo, Doris, Godage, Sashini K., Quintanilla, Kassandra, Dominguez Cortez, Jose, Polk, Sarah, and DeCamp, Lisa Ross
- Subjects
- *
IMMIGRANTS , *PARENT attitudes , *HEALTH education , *ACADEMIC medical centers , *HISPANIC Americans , *CROSS-sectional method , *PATIENT-centered care , *HEALTH literacy , *T-test (Statistics) , *RESEARCH funding , *DESCRIPTIVE statistics , *VIDEO recording , *PARENTS , *EDUCATIONAL attainment - Abstract
System barriers to effective healthcare engagement and navigation contribute to healthcare disparities among Latino children with immigrant parents in the US. We evaluated a nine-minute educational video supporting healthcare navigation and engagement skills of Spanish-speaking Latino parents of infants. Participants viewed the video at their child's 2-month well-visit, completed a pre-and post-video knowledge evaluation, and answered open-ended questions on video style. A paired t test was used to examine differences in knowledge and open-ended responses were coded using an iterative, consensus-based process. Of the 79 participants, 63.3% had an education level below high school diploma/GED and 84.8% were at risk for limited health literacy. There was a significant gain in healthcare navigation and engagement knowledge after watching the video (p < 0.001). Parents expressed that the video was interesting and provided useful information. Parents valued the knowledge gained and preferred videos over written materials for receiving culturally and linguistically tailored health education. [ABSTRACT FROM AUTHOR]
- Published
- 2021
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41. Paper Tape Prevents Foot Blisters: A Randomized Prevention Trial Assessing Paper Tape in Endurance Distances II (Pre-TAPED II).
- Author
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Lipman, Grant S., Sharp, Louis J., Christensen, Mark, Phillips, Caleb, DiTullio, Alexandra, Dalton, Andrew, Ng, Pearlly, Shangkuan, Jennifer, Shea, Katherine, and Krabak, Brian J.
- Subjects
- *
BLISTERS , *RUNNING injuries , *ADHESIVE tape , *ANALYSIS of variance , *CHI-squared test , *CLINICAL trials , *CONFIDENCE intervals , *FOOT , *MEDICAL cooperation , *PROBABILITY theory , *RESEARCH , *RESEARCH funding , *STATISTICAL hypothesis testing , *T-test (Statistics) , *LOGISTIC regression analysis , *SAMPLE size (Statistics) , *STATISTICAL power analysis , *MULTIPLE regression analysis , *RANDOMIZED controlled trials , *LONG-distance running , *DESCRIPTIVE statistics , *ODDS ratio , *PREVENTION - Abstract
Objective: To determine whether paper tape prevents foot blisters in multistage ultramarathon runners. Design: Multisite prospective randomized trial. Setting: The 2014 250-km (155-mile) 6-stage RacingThePlanet ultramarathons in Jordan, Gobi, Madagascar, and Atacama Deserts. Participants: One hundred twenty-eight participants were enrolled: 19 (15%) from the Jordan, 35 (27%) from Gobi, 21 (16%) from Madagascar, and 53 (41%) from the Atacama Desert. The mean age was 39.3 years (22-63) and body mass index was 24.2 kg/m² (17.4-35.1), with 31 (22.5%) females. Interventions: Paper tape was applied to a randomly selected foot before the race, either to participants' blister-prone areas or randomly selected location if there was no blister history, with untaped areas of the same foot used as the control. Main Outcome Measures: Development of a blister anywhere on the study foot. Results: One hundred six (83%) participants developed 117 blisters, with treatment success in 98 (77%) runners. Paper tape reduced blisters by 40% (P< 0.01, 95% confidence interval, 28-52) with a number needed to treat of 1.31. Most of the study participants had 1 blister (78%), with most common locations on the toes (n = 58, 50%) and heel (n = 27, 23%), with 94 (80%) blisters occurring by the end of stage 2. Treatment success was associated with earlier stages [odds ratio (OR), 74.9, P < 0.01] and time spent running (OR, 0.66, P = 0.01). Conclusion: Paper tape was found to prevent both the incidence and frequency of foot blisters in runners. [ABSTRACT FROM AUTHOR]
- Published
- 2016
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42. New Findings from University of British Columbia in the Area of Telomere Reported (Aerobic exercise lengthens telomeres and reduces stress in family caregivers: A randomized controlled trial - Curt Richter Award Paper 2018)
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Physical fitness -- Reports ,Caregivers -- Reports ,Stress management -- Reports ,Exercise -- Reports ,Telomeres -- Reports ,Stress (Psychology) -- Reports ,Obesity ,Chromosomes ,Research funding ,Family ,Editors ,Genetic research ,Health ,University of British Columbia -- Reports - Abstract
2018 DEC 15 (NewsRx) -- By a News Reporter-Staff News Editor at Obesity, Fitness & Wellness Week -- New research on Chromosome Structures - Telomere is the subject of a [...]
- Published
- 2018
43. The impact of geographic inequality in federal research funding: A comparative longitudinal study of research and scholarly outputs in EPSCoR versus non-EPSCoR states.
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Mohammadi, Ehsan, Olejniczak, Anthony J., Walker, George E., and Nagarkatti, Prakash
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LONGITUDINAL method ,RESEARCH funding ,COMPARATIVE studies ,CONFERENCE papers ,UNIVERSITY faculty ,COUNTING ,MATHEMATICS conferences - Abstract
Some states in the U.S. have traditionally received less federal research funding than other states. The National Science Foundation (NSF) created a program in 1979, called the Experimental Program to Stimulate Competitive Research (EPSCoR) to enhance the research competitiveness in such states. While the geographic disparity in federal research funding is well known, the overall impact of federal funding on the research performance of EPSCoR and non-EPSCoR has not been previously studied. In the current study, we compared the combined research productivity of Ph.D. granting institutions in EPSCoR versus the non-EPSCoR states to better understand the scientific impact of federal investments in sponsored research across all states. The research outputs we measured included journal articles, books, conference papers, patents, and citation count in academic literature. Unsurprisingly, results indicated that the non-EPSCoR states received significantly more federal research funding than their EPSCoR counterparts, which correlated with a higher number of faculty members in the non-EPSCoR versus EPSCoR states. Also, in the overall research productivity expressed on a per capita, the non-EPSCoR states fared better than EPSCoR states. However, when the research output was measured based on per $1M investment of federal research funding, EPSCoR states performed significantly better than the non-EPSCoR states in many research productivity indicators, with the notable exception of patents. Together, this study found preliminary evidence that EPSCoR states achieved a high degree of research productivity despite receiving significantly fewer federal research dollars. The limitations and next steps of this study are also discussed. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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44. Using qualitative study designs to understand treatment burden and capacity for self-care among patients with HIV/NCD multimorbidity in South Africa: A methods paper.
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van Pinxteren, Myrna, Mbokazi, Nonzuzo, Murphy, Katherine, Mair, Frances S, May, Carl, and Levitt, Naomi S
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NON-communicable diseases ,EVALUATION of medical care ,RESEARCH ,MIDDLE-income countries ,RESEARCH methodology ,BURDEN of care ,DISEASES ,POPULATION geography ,INTERVIEWING ,QUALITATIVE research ,COMPARATIVE studies ,CONCEPTUAL structures ,LOW-income countries ,EPIDEMICS ,EMPLOYEES' workload ,DECISION making ,RESEARCH funding ,THEMATIC analysis ,HEALTH self-care ,HIV - Abstract
Background: Low- and middle-income countries (LMICs), including South Africa, are currently experiencing multiple epidemics: HIV and the rising burden of non-communicable diseases (NCDs), leading to different patterns of multimorbidity (the occurrence of two or more chronic conditions) than experienced in high income settings. These adversely affect health outcomes, increase patients' perceived burden of treatment, and impact the workload of self-management. This paper outlines the methods used in a qualitative study exploring burden of treatment among people living with HIV/NCD multimorbidity in South Africa. Methods: We undertook a comparative qualitative study to examine the interaction between individuals' treatment burden (self-management workload) and their capacity to take on this workload, using the dual lenses of Burden of Treatment Theory (BoTT) and Cumulative Complexity Model (CuCoM) to aid conceptualisation of the data. We interviewed 30 people with multimorbidity and 16 carers in rural Eastern Cape and urban Cape Town between February-April 2021. Data was analysed through framework analysis. Findings: This paper discusses the methodological procedures considered when conducting qualitative research among people with multimorbidity in low-income settings in South Africa. We highlight the decisions made when developing the research design, recruiting participants, and selecting field-sites. We also explore data analysis processes and reflect on the positionality of the research project and researchers. Conclusion: This paper illustrates the decision-making processes conducting this qualitative research and may be helpful in informing future research aiming to qualitatively investigate treatment burden among patients in LMICs. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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45. Lack of transparent reporting of trial monitoring approaches in randomised controlled trials: A systematic review of contemporary protocol papers.
- Author
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Shao-Fan Hsieh, Yorke-Edwards, Victoria, Murray, Macey L., Diaz-Montana, Carlos, Love, Sharon B., and Sydes, Matthew R.
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ONLINE information services ,RESEARCH protocols ,CONFIDENCE intervals ,SYSTEMATIC reviews ,RANDOMIZED controlled trials ,RESEARCH funding ,DESCRIPTIVE statistics ,MEDLINE ,STANDARDS ,EVALUATION - Abstract
Background: Monitoring is essential to ensure patient safety and data integrity in clinical trials as per Good Clinical Practice. The Standard Protocol Items: Recommendations for Interventional Trials Statement and its checklist guides authors to include monitoring in their protocols. We investigated how well monitoring was reported in published 'protocol papers' for contemporary randomised controlled trials. Methods: A systematic search was conducted in PubMed to identify eligible protocol papers published in selected journals between 1 January 2020 and 31 May 2020. Protocol papers were classified by whether they reported monitoring and, if so, by the details of monitoring. Data were summarised descriptively. Results: Of 811 protocol papers for randomised controlled trials, 386 (48%; 95% CI: 44%-51%) explicitly reported some monitoring information. Of these, 20% (77/386) reported monitoring information consistent with an on-site monitoring approach, and 39% (152/386) with central monitoring, 26% (101/386) with a mixed approach, while 14% (54/386) did not provide sufficient information to specify an approach. Only 8% (30/386) of randomised controlled trials reported complete details about all of scope, frequency and organisation of monitoring; frequency of monitoring was the least reported. However, 6% (25/386) of papers used the term 'audit' to describe 'monitoring'. Discussion: Monitoring information was reported in only approximately half of the protocol papers. Suboptimal reporting of monitoring hinders the clinical community from having the full information on which to judge the validity of a trial and jeopardises the value of protocol papers and the credibility of the trial itself. Greater efforts are needed to promote the transparent reporting of monitoring to journal editors and authors. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
46. Digitalizing the Clinical Research Informed Consent Process: Assessing the Participant Experience in Comparison With Traditional Paper-Based Methods.
- Author
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Buckley, Michael T., O'Shea, Molly R., Kundu, Sangeeta, Lipitz-Snyderman, Allison, Kuperman, Gilad, Shah, Suken, Iasonos, Alexia, Houston, Collette, Terzulli, Stephanie L., Lengfellner, Joseph M., and Sabbatini, Paul
- Subjects
SELF advocacy ,HUMAN research subjects ,CLINICAL trials ,ACADEMIC medical centers ,CLINICAL medicine research ,QUANTITATIVE research ,INFORMED consent (Medical law) ,EXPERIENCE ,COMPARATIVE studies ,SURVEYS ,QUALITATIVE research ,SOCIOECONOMIC factors ,QUALITY assurance ,SCALE analysis (Psychology) ,RESEARCH funding ,ELIGIBILITY (Social aspects) ,CHI-squared test ,DESCRIPTIVE statistics ,ELECTRONIC health records ,MEDICAL informatics ,SOCIODEMOGRAPHIC factors ,COVID-19 pandemic ,TELEMEDICINE - Abstract
PURPOSE Consent processes are critical for clinical care and research and may benefit from incorporating digital strategies. We compared an electronic informed consent (eIC) option to paper consent across four outcomes: (1) technology burden, (2) protocol comprehension, (3) participant agency (ability to self-advocate), and (4) completion of required document fields. METHODS We assessed participant experience with eIC processes compared with traditional paper-based consenting using surveys and compared completeness of required fields, over 3 years (2019-2021). Participants who consented to a clinical trial at a large academic cancer center via paper or eIC were invited to either pre-COVID-19 pandemic survey 1 (technology burden) or intrapandemic survey 2 (comprehension and agency). Consent document completeness was assessed via electronic health records. RESULTS On survey 1, 83% of participants (n = 777) indicated eIC was easy or very easy to use; discomfort with technology overall was not correlated with discomfort using eIC. For survey 2, eIC (n = 262) and paper consenters (n = 193) had similar comprehension scores. All participants responded favorably to at least five of six agency statements; however, eIC generated a higher proportion of positive free-text comments (P < .05), with themes such as thoroughness of the discussion and consenter professionalism. eIC use yielded no completeness errors across 235 consents versus 6.4% for paper (P < .001). CONCLUSION Our findings suggest that eIC when compared with paper (1) did not increase technology burden, (2) supported comparable comprehension, (3) upheld key elements of participant agency, and (4) increased completion of mandatory consent fields. The results support a broader call for organizations to offer eIC for clinical research discussions to enhance the overall participant experience and increase the completeness of the consent process. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
47. Most UK scientists who publish extremely highly-cited papers do not secure funding from major public and charity funders: A descriptive analysis.
- Author
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Stavropoulou, Charitini, Somai, Melek, and Ioannidis, John P. A.
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HEALTH funding , *PUBLIC health , *UNIVERSITIES & colleges , *MEDICAL sciences - Abstract
The UK is one of the largest funders of health research in the world, but little is known about how health funding is spent. Our study explores whether major UK public and charitable health research funders support the research of UK-based scientists producing the most highly-cited research. To address this question, we searched for UK-based authors of peer-reviewed papers that were published between January 2006 and February 2018 and received over 1000 citations in Scopus. We explored whether these authors have held a grant from the National Institute for Health Research (NIHR), the Medical Research Council (MRC) and the Wellcome Trust and compared the results with UK-based researchers who serve currently on the boards of these bodies. From the 1,370 papers relevant to medical, biomedical, life and health sciences with more than 1000 citations in the period examined, we identified 223 individuals from a UK institution at the time of publication who were either first/last or single authors. Of those, 164 are still in UK academic institutions, while 59 are not currently in UK academia (have left the country, are retired, or work in other sectors). Of the 164 individuals, only 59 (36%; 95% CI: 29–43%) currently hold an active grant from one of the three funders. Only 79 (48%; 95% CI: 41–56%) have held an active grant from any of the three funders between 2006–2017. Conversely, 457 of the 664 board members of MRC, Wellcome Trust, and NIHR (69%; 95% CI: 65–72%) have held an active grant in the same period by any of these funders. Only 7 out of 655 board members (1.1%) were first, last or single authors of an extremely highly-cited paper. There are many reasons why the majority of the most influential UK authors do not hold a grant from the country’s major public and charitable funding bodies. Nevertheless, the results are worrisome and subscribe to similar patterns shown in the US. We discuss possible implications and suggest ways forward. [ABSTRACT FROM AUTHOR]
- Published
- 2019
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48. The first impression of conference papers: Does it matter in predicting future citations?
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Lee, Danielle H. and Brusilovsky, Peter
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ATTENTION , *COMMUNICATION , *CONFERENCES & conventions , *STATISTICAL correlation , *INFORMATION resources management , *INFORMATION science , *PUBLISHING , *REGRESSION analysis , *RESEARCH funding , *MATHEMATICAL variables , *SOCIAL media , *CITATION analysis , *DESCRIPTIVE statistics - Abstract
This article explores the factors influencing the future citations of conference papers. We concentrated on the explanatory power of early attention on conference papers for citations collected from Google Scholar and Scopus. The early attention data includes users' online activities in a conference support system: CN3. Bookmarks from the bibliographic management system, Citeulike, were used as a collateral source of early attention. To examine the chronological contributions of 13 factors on citations, a multiple sequential regression analysis was conducted for three timepoints of the publication cycle—paper submission, time of conferences, and months after conferences. Our results illustrate that online readers' early attention of Citeulike bookmarks were found to have the most influence on the future impact of the conference papers. The early attention records from CN3 made noteworthy improvements to explaining both the Google and Scopus citations as well. We also found that the type of papers the number of papers presented at a conference, and the best article award records were significant factors influencing future citations. However, the magnitude of the effects made by online readers' early attention from both sources appears to be larger than these three traditional factors. [ABSTRACT FROM AUTHOR]
- Published
- 2019
- Full Text
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49. Documentation of psychotropic pro re nata medication administration: An evaluation of electronic health records compared with paper charts and verbal reports.
- Author
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Martin, Krystle, Ham, Elke, and Hilton, N. Zoe
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CHI-squared test , *CLINICAL competence , *COMPARATIVE studies , *DOCUMENTATION , *FISHER exact test , *INTERVIEWING , *LONGITUDINAL method , *RESEARCH methodology , *NURSING records , *PSYCHIATRIC drugs , *REPORT writing , *RESEARCH funding , *MATHEMATICAL variables , *ANXIETY disorders , *DATA analysis software , *ELECTRONIC health records , *DESCRIPTIVE statistics - Abstract
Aims and objectives: To describe the documentation of pro re nata (PRN) medication for anxiety and to compare documentation at two hospitals providing similar psychiatric services, one that used paper charts and another that used an electronic health record (EHR). We also assessed congruence between nursing documentation and verbal reports from staff about the PRN administration process. Background: The ability to accurately document patients’ symptoms and the care given is considered a core competency of the nursing profession (Wilkinson, Nursing process and critical thinking, Saddle River, 2007); however, researchers have found poor concordance between nursing notes and verbal reports or observations of events (e.g., Marinis et al., 2010, J Clin Nurs, 19, 1544–1552) and considerable information missing (e.g., Marinis et al., 2010, J Clin Nurs, 19, 1544–1552). Additionally, the administration of PRN medication has consistently been noted to be poorly documented (e.g., Baker et al., 2008, J Clin Nurs, 17, 1122–1131). Design: The project was a mixed‐method, two‐phase study that collected data from two sites. Methods: In phase 1, nursing documentation of PRN medication administrations was reviewed in patient charts; phase 2 included verbal reports from staff about this practice. Results: Nurses using EHR documented more information than those using paper charts, including the reason for PRN administration, who initiated the administration, and effectiveness. There were some differences between written and verbal reports, including whether potential side effects were explained to patients prior to PRN administration. Conclusions: We continue the calls for attention to be paid to improving the quality of nursing documentation. Our results support the shift to using EHR, yet not relying on this method completely to ensure comprehensiveness of documentation. Relevance to clinical practice: Efforts to address the quality of documentation, particularly for PRN administration, are needed. This could be made through training, using structured report templates and by switching to electronic databases. [ABSTRACT FROM AUTHOR]
- Published
- 2018
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50. Evaluation of the informatician perspective: determining types of research papers preferred by clinicians.
- Author
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Boshu Ru, Xiaoyan Wang, Lixia Yao, Ru, Boshu, Wang, Xiaoyan, and Yao, Lixia
- Subjects
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RESEARCH papers (Students) , *EVIDENCE-based medicine , *MEDICAL subject headings , *MEDICAL informatics , *RECOMMENDER systems , *CONSUMER preferences , *BIBLIOGRAPHICAL citations , *BIBLIOGRAPHY , *DECISION making , *MEDICAL research , *MEDLINE , *RESEARCH funding , *SUBJECT headings - Abstract
Background: To deliver evidence-based medicine, clinicians often reference resources that are useful to their respective medical practices. Owing to their busy schedules, however, clinicians typically find it challenging to locate these relevant resources out of the rapidly growing number of journals and articles currently being published. The literature-recommender system may provide a possible solution to this issue if the individual needs of clinicians can be identified and applied.Methods: We thus collected from the CiteULike website a sample of 96 clinicians and 6,221 scientific articles that they read. We examined the journal distributions, publication types, reading times, and geographic locations. We then compared the distributions of MeSH terms associated with these articles with those of randomly sampled MEDLINE articles using two-sample Z-test and multiple comparison correction, in order to identify the important topics relevant to clinicians.Results: We determined that the sampled clinicians followed the latest literature in a timely manner and read papers that are considered landmarks in medical research history. They preferred to read scientific discoveries from human experiments instead of molecular-, cellular- or animal-model-based experiments. Furthermore, the country of publication may impact reading preferences, particularly for clinicians from Egypt, India, Norway, Senegal, and South Africa.Conclusion: These findings provide useful guidance for developing personalized literature-recommender systems for clinicians. [ABSTRACT FROM AUTHOR]- Published
- 2017
- Full Text
- View/download PDF
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