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The nation-wide Danish Registry of Childhood Diabetes and associated biological bank were established in 1996. All children diagnosed with insulin-dependent diabetes mellitus (IDDM) under the age of 15 years are included. In the period 1996-2004 the incidence of IDDM in childhood and adolescence (0-15 years) has increased by 3.5% per year and was 25.7/100.000 in 2004. The average measured glycosylated haemoglobin (HbA1c) value has decreased over the period and was 8.4% in 2005. A registry of type 1 diabetes with a high degree of completeness is feasible, provides useful information about the quality of patient care and is a valuable resource for research.

In 1996 The Danish Childhood Diabetes Register (DIA-REG B&U) was established. Data are validated yearly against The National Discharge Register (NDR). In the first seven years, 1509 cases were found either in the DSBD or in the NDR. Four percent did not have diabetes. Two percent had another code than DE10. In 5.2% cases, the first registration dates in NDR were a half year or more after onset of diabetes. In addition, there were 29 cases only found in the DSBD. In conclusion, the sensitivity and specificity is high in the NDR, but there is some misclassification and the first admission dates are not equal to the date of disease onset. Thus, studies of diabetes in childhood should be based on a validated register such as the DIA-REG B&U.