1. Caregiver Burden in Adult Solid Organ Transplantation
- Author
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Deng, Lisa X, Sharma, Arjun, Gedallovich, Seren M, Tandon, Puneeta, Hansen, Lissi, and Lai, Jennifer C
- Subjects
Biomedical and Clinical Sciences ,Clinical Sciences ,Immunology ,Clinical Research ,Behavioral and Social Science ,Transplantation ,Good Health and Well Being ,Humans ,Adult ,Caregiver Burden ,Activities of Daily Living ,Caregivers ,Organ Transplantation ,Quality of Life ,Medical and Health Sciences ,Surgery ,Clinical sciences - Abstract
The informal caregiver plays a critical role in supporting patients with various end-stage diseases throughout the solid organ transplantation journey. Caregiver responsibilities include assistance with activities of daily living, medication management, implementation of highly specialized treatments, transportation to appointments and treatments, and health care coordination and navigation. The demanding nature of these tasks has profound impacts across multiple domains of the caregiver's life: physical, psychological, financial, logistical, and social. Few interventions targeting caregiver burden have been empirically evaluated, with the majority focused on education or mindfulness-based stress reduction techniques. Further research is urgently needed to develop and evaluate interventions to improve caregiver burden and outcomes for the patient-caregiver dyad.
- Published
- 2023