120 results
Search Results
2. Health geography in the time of Covid-19: Selected papers from the 19th International Medical Geography Symposium, Edinburgh, UK, July 2022
- Author
-
Pearce, Jamie and Shortt, Niamh
- Published
- 2024
- Full Text
- View/download PDF
3. Divorce and physical health: A three-level meta-analysis
- Author
-
Pellón-Elexpuru, Inés, Van Dijk, Rianne, Van der Valk, Inge, Martínez-Pampliega, Ana, Molleda, Asier, and Cormenzana, Susana
- Published
- 2024
- Full Text
- View/download PDF
4. Psychotic white men and bipolar black women? Racialized and gendered implications of mental health terminology
- Author
-
Johnson, Amy L.
- Published
- 2024
- Full Text
- View/download PDF
5. Signs and symptoms: Adverse events associated with a sterilization device
- Author
-
Leiter, Valerie
- Published
- 2024
- Full Text
- View/download PDF
6. Convalescing from SAM: The pitfalls and possibilities of caring for vulnerable children in Harare's high-density neighbourhoods.
- Author
-
Brown, Tim, Datta, Kavita, Fernando, Shamiso, Kabongo, Jacqueline, Prendergast, Andrew J., and Bwakura-Dangarembizi, Mutsa
- Subjects
- *
ACUTE diseases , *QUALITATIVE research , *AT-risk people , *FOOD security , *SEVERITY of illness index , *SERVICES for caregivers , *DISCHARGE planning , *HUNGER , *CONVALESCENCE , *METROPOLITAN areas , *PSYCHOLOGY of mothers , *MALNUTRITION in children , *PSYCHOLOGY of caregivers , *SHAME , *SOCIAL stigma ,MORTALITY risk factors - Abstract
It is widely recognised that children recovering from Severe Acute Malnutrition (SAM), remain vulnerable to risk of death following hospital discharge due to a wide range of biological and social factors. In light of this heightened risk, we report here on a qualitative study which aimed to better understand the caring contexts that children recovering from SAM were recuperating in within the high density urban and suburban districts of Harare, Zimbabwe. Undertaken with the mothers and other primary caregivers of 10 children enrolled on a large observational cohort study (HOPE-SAM), this paper identifies several dimensions of the women's lives that impede their caring capabilities. Given the country's status as a global 'hunger hotspot' (FAO/WFP, 2022), it should not be surprising that food insecurity featured prominently amongst these. Beyond this, the paper highlights the women's uneven access to informal social protection, experiences that are reflective of what recent scholarship refers to as examples of 'uncaring' or 'noncaring,' as well as their responses to discourses of shame and stigma within the community and hospital settings. The paper concludes by considering what this means for understanding of, and responses to, the bodies encountered in the place of global health research and interventions. • Children recovering from SAM remain at risk of death following hospital discharge. • Caring environments are highly differentiated and shape children's recuperation. • Stigma and shame associated with malnutrition produces an uncaring environment. • Global health interventions must account for bodies in place when designing interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
7. Epidemic in the time of the COVID-19 pandemic: News media framing of the MMR vaccination controversy in Serbia.
- Author
-
Brujić, Marija
- Subjects
- *
MEASLES prevention , *MUMPS , *QUALITATIVE research , *MMR vaccines , *CONTENT analysis , *VACCINATION , *MASS media , *RUBELLA , *VACCINATION coverage , *ATTITUDE (Psychology) , *VACCINE hesitancy , *HEALTH promotion , *COVID-19 pandemic , *ANTI-vaccination movement - Abstract
Rising vaccine hesitancy is often related to negative vaccination media coverage. It is generally accepted that the media played a great role in spreading the MMR (measles, mumps, and rubella) childhood vaccination scare first in the UK and then worldwide. During the COVID-19 pandemic, the MMR vaccination rate dropped further in some countries. This paper examines the Serbian news media framing of the MMR vaccination controversy in the period 2019–2023 (periods of declining MMR vaccination rate, rising COVID-19 vaccine hesitancy and the 2023 measles outbreaks). Furthermore, the paper questions whether the COVID-19 pandemic influenced the MMR vaccine narrative in the newspapers. For this reason, quality content analysis of the press in combination with framing approaches (diagnostic–prognostic–motivational framing tasks and responsibility framing) were used. In total, 122 articles dealing with the MMR vaccine and measles epidemics were analysed. According to the press, the most significant cause of the declining MMR rate is anti-vaccination campaigns and conspiracy theories by the "anti-vax lobby" (diagnostic frames). The pandemic was the other significant cause for the intake drop. Achieving herd immunity through vaccine uptake is offered as the best solution (prognostic frames). Finally, MMR vaccination campaigns and penalties for non-compliant parents and vaccine refusers are proposed as calls to action (motivational frames). During this period, the press did not publish any "sensational anti-vax stories". Considering the low MMR vaccine numbers in Serbia in this period, positive media messages did not have a significant influence on improving the vaccination rate. Thus, I suggest that Serbian parents distrust vaccination information presented by the dominant news, including the advice of health experts. • Strong childhood and COVID-19 vaccine hesitancy in Serbia. • The press blames the "anti-vaxx lobby" as the main culprit for low vaccination rate. • The lack of sensational anti-vaccine stories in the press. • Lack of state responsibility for the low MMR vaccine uptake. • Vaccine scepticism as an answer to the state strategies during the pandemic. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
8. A discourse of african traditional healing tendencies with medicinal plants: An ethnobotanical study of the sukuma of Tanzania, 1922–1960s.
- Author
-
Nchimbi, Hamisi Yunus and Alawi, Mikidadi Hamisi
- Subjects
- *
BIOLOGICAL evolution , *CROSS-sectional method , *OCCUPATIONAL roles , *QUALITATIVE research , *OCCUPATIONAL achievement , *AFRICAN traditional medicine , *ETHNOLOGY research , *CLIMATE change , *SOCIOECONOMIC factors , *QUANTITATIVE research , *MEDICINAL plants , *PRACTICAL politics , *PSYCHOSOCIAL factors , *HEALERS - Abstract
The use of medicinal plants in traditional healing practices is essential to Tanzanian and African health care. This paper examined the African traditional healing tendencies, particularly the Sukuma tribe of Tanzania, from 1922 to the 1960s. Several types of research challenged traditional healing tendencies' role in the health sector. They claimed that traditional healing has no scientific evidence or methodology and is inefficient. This paper comprises three objectives: the evolution of traditional healing practices among the Sukuma; the traditional healers' conceptualization and adaptation of social, economic, and ecological changes; and the challenges faced by the traditional healers. The study was conducted in Mwamapalala and Mwalushu Wards where Mwamunhu and Mwamigagani represented as sampled villages in Bariadi District. It used both qualitative and quantitative approaches that involved an interpretive, naturalistic approach to its subject matter. Archival materials were also used. The findings reveal that the traditional healers understood the nature of traditional healing in the pre-colonial period. Before colonial domination, all people in the region depended on the traditional medicines obtained from flora and fauna. Their ancestors were diviners, and few were herbalists. The paper concludes that the current healing practice in Tanzania results from the political transition from the colonial period to the independence era. Most people conceptualize that the government had neither effectively accepted the field of traditional medicine nor given the healers any support to sustain their activities. More often, traditional healers have been ignored by the government, and it has been claimed that traditional healing practices instigated violence and, therefore, threaten society. • The article explored the Traditional Healing of the Sukuma Tribe in Tanzania. • It used ethnographic design covering social-economic and environmtal changes. • Traditional healers had knowledge of medicinal herbs since pre-colonial times. • Political change from colonial to independent governments affected modern healing. • The government ignored Traditional healing, viewed it a societal peril and violent. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
9. The role of Contact-Tracing Mobile Apps in pandemic prevention: A multidisciplinary perspective on health beliefs, social, and technological factors.
- Author
-
Ben Nasr, Imed, Kondrateva, Galina, Khvatova, Tatiana, and Ben Arfi, Wissal
- Subjects
- *
MOBILE apps , *DIGITAL technology , *HEALTH attitudes , *CONTACT tracing , *DESCRIPTIVE statistics , *MOTIVATION (Psychology) , *MATHEMATICAL models , *ACCEPTANCE & commitment therapy , *THEORY , *SOCIODEMOGRAPHIC factors , *COVID-19 pandemic - Abstract
During the recent COVID-19 pandemic, governments implemented mobile applications for contact tracing as a rapid and effective solution to mitigate the spread of the virus. However, these seemingly straightforward solutions did not achieve their intended objectives. In line with previous research, this paper aims to investigate the factors that influence the acceptance and usage of contact-tracing mobile apps (CTMAs) in the context of disease control. The research model in this paper integrates the Unified Theory of Acceptance and Use of Technology and the Health Belief Model (HBM). The present study involved a diverse sample of 770 French participants of all genders, ages, occupations, and regions. Critical elements from the Health Belief Model, technological factors related to the app, and social factors, including the centrality of religiosity, were assessed using well-established measurement scales. The research's findings demonstrate that several factors, such as perceived benefits and perceived severity, social influence, health motivation, and centrality of religiosity, significantly impact the intention to use a CTMA. These findings suggest that CTMAs hold promise as valuable tools for managing future epidemics. However, addressing challenges, revising implementation strategies, and potentially collaborating with specialized industry partners under regulatory frameworks are crucial. This practical insight can guide policymakers and public health officials in their decision-making. • Contact Tracing Mobile apps introduced swiftly amidst pandemic, aiming to curb virus spread. • Government communication and social influence emerge as key players for the CTMA acceptance. • Contact Tracing Mobile apps hold promise for future epidemic management. • Need to address challenges like conspiracy theories and mistrust. • Suggest revising implementation strategies and regulatory collaboration. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
10. Resistance and the regimen: The microthanatopolitics of Venezuelan antiretroviral scarcity and HIV drug adherence failures.
- Author
-
Irons, Rebecca
- Subjects
- *
PATIENT compliance , *ANTIRETROVIRAL agents , *CD4 lymphocyte count , *HIV-positive persons , *HIV infections , *HIGHLY active antiretroviral therapy , *PRACTICAL politics , *DRUGS , *HEALTH promotion , *DRUG resistance , *HUMANITARIANISM - Abstract
The Venezuelan State does not provide adequate antiretroviral therapy (ART) for the population living with HIV, resulting in pharmaceutical scarcity, involuntary treatment pauses, and adherence failures. Such a situation may result in the development of resistance to certain ART drugs, meaning that Venezuelans with HIV may have their treatment options reduced for the remainder of their lives. It can take a number of years for a person to acquire late-stage HIV/AIDS and for death to occur, and so I focus on the microbiological death of CD4 cells over time – a concept I call 'microthanatopolitics'. In this paper I argue that the microthanatopolitics of ART scarcity deprives those living with HIV of future treatment options, encourages resistance to ART drugs, and ultimately may contribute towards ill health long after treatment availability changes in Venezuela. To explore this in depth, the paper draws upon 6 interviews with Venezuelan HIV activists in Venezuela (2024), supported by 40 testimonies from Venezuelan migrants living with HIV in Colombia (2021–2024), with and without known ART resistance. It will be concluded that not only is this an issue for those currently living in Venezuela, but also for migrants and the global HIV response who will suffer from the promotion and circulation of ART-resistant viral strains in the long run. This microthanatopolitics is influenced by both the current Venezuela political system as well as humanitarian aid from the Global North; an important consideration of coloniality in post-colonial Latin America. • Venezuelan politics results in drug resistance for people living with HIV. • Venezuelans living with HIV face an uncertain future of limited treatment options. • Microthanatopolitics is being enacted towards those with HIV, through ART supply. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
11. Maneuvering between cultures: The reception of hospice care in the Chinese medical community.
- Author
-
Mei, Xiao and Tu, Jiong
- Subjects
- *
HEALTH attitudes , *CULTURE , *FIELDWORK (Educational method) , *ATTITUDES of medical personnel , *CONCEPTUAL structures , *HEALTH care industry , *HEALTH facilities , *HOSPICE care - Abstract
The expansion of hospice care worldwide has been received differently by medical communities in different societies. Nonetheless, existing efforts to explain how culture affects the reception of hospice care are inadequate. On the basis of fieldwork conducted in Chinese medical institutions and care facilities between 2017 and 2022, this paper draws on a theoretical framework that distinguishes between declarative culture and nondeclarative culture at the personal level to explain the discrepancies between healthcare professionals' beliefs regarding the value of hospice care and their daily healthcare practice. Moreover, this paper uses the concept of cultural scaffolding to demonstrate that the culture of hospice care and the culture of medical institutions are not separate, independent entities but rather evolve together to produce new and local forms of hospice care in the Chinese context. This analysis helps clarify the obstacles and opportunities associated with hospice care in China and contributes to existing research on the reception of hospice care worldwide. • Explains discrepancies between healthcare professionals' beliefs about hospice and daily practice. • Theoretical framework that distinguishes between declarative and nondeclarative culture. • Localized hospice care emerges as culture of hospice care and culture of medical institutions interact. • Clarifies the obstacles and opportunities faced by hospice care in China. • Contributes to existing research on the reception of hospice care worldwide. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
12. An 'all-world ageing' perspective and its wider ethics of care: An empirical illustration.
- Author
-
Andrews, Gavin J. and Read, Megan
- Subjects
- *
ATTITUDES toward aging , *ENVIRONMENTAL health , *AESTHETICS , *NATURE , *GERIATRICS , *EMPIRICAL research , *INTERVIEWING , *HUMANITY , *HUMAN-animal relationships , *PLANTS , *THEMATIC analysis , *RESEARCH ethics , *LONGEVITY - Abstract
Recent commentaries have proposed 'all-world ageing' as a new perspective for social scientific ageing research. It is based on the theoretical observation that the ageing process involves all forms of entities co-ageing relationally with each other, and with their surrounds. Its disciplinary implications hence being that what we categorize as ageing in social scientific ageing research should not be limited to human bodies, and that ageing non-humans should be brought under its purview. To empirically illustrate these theoretical and disciplinary assertions, and explore their implications, the current paper reports a study of how people co-age with non-humans they interact with in their daily lives. Sixteen people aged 66–90 were interviewed, ten of them also being observed at those times. The findings show some intricate and diverse relations that involve their co-ageing with varied biological entities and nature surrounds (such as plants, domestic animals and green spaces) and varied non-biological entities and non-nature surrounds (such as materials, technologies, accommodations, organizations and infrastructures). Meanwhile, important crosscutting themes – including lifespan, function and aesthetics – emerge as objectives of care, valued and exercised in broad terms. This empirical reconnaissance shows the potential for an all-world ageing perspective to engage diverse societal challenges and inform diverse areas of practice as part of a wider ethics of care. From it, a number of important considerations and undertakings arise for future scholarship. • The paper empirically road tests an all-world ageing perspective. • The paper posits that ageing research should not be limited to ageing human bodies. • Older people are found to co-age with biological and nonbiological entities/surrounds. • Lifespan, function and aesthetics are care objectives, valued and exercised broadly. • Theoretical and empirical considerations are highlighted for future scholarship. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
13. Assessing the accuracy of self-reported health expenditure data: Evidence from two public surveys in China.
- Author
-
Hao, Zhuang, Zhang, Xudong, and Wang, Yuze
- Subjects
- *
SELF-evaluation , *HOSPITAL care , *INTERVIEWING , *SIMULATION methods in education , *SURVEYS , *MEASUREMENT errors , *DATA quality , *MEDICAL care costs - Abstract
This paper utilizes Benford's law, the distribution that the first significant digit of numbers in certain datasets should follow, to assess the accuracy of self-reported health expenditure data known for measurement errors. We provide both simulation and real data evidence supporting the validity assumption that genuine health expenditure data conform to Benford's law. We then conduct a Benford analysis of health expenditure variables from two widely utilized public datasets, the China Health and Nutrition Survey and the China Family Panel Studies. Our findings show that health expenditure data in both datasets exhibit inconsistencies with Benford's law, with the former dataset tending to be less prone to reporting errors. These results remain robust while accounting for variations in survey design, recall periods, and sample sizes. Moreover, we demonstrate that data accuracy improves with a shorter time interval between hospitalization and interviews, when the data is self-reported as opposed to proxy responses, and at the household level. We find no compelling evidence that enumerators' assessments of respondents' credibility or urgency to end interviews are indicative of data accuracy. This paper contributes to literature by introducing an easy-to-implement analytical framework for scrutinizing and comparing the reporting accuracy of health expenditure data. • Applied Benford's Law to assess health expenditure data accuracy. • Detected inconsistencies with Benford's Law in two widely used datasets. • Found inpatient expenditure data to be more accurate than total expenditure. • Emphasized caution against relying on enumerators' opinions to indicate data accuracy. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
14. What does the MAIHDA method explain?
- Author
-
Wilkes, Rima and Karimi, Aryan
- Published
- 2024
- Full Text
- View/download PDF
15. A bridge too far? Social network structure as a determinant of depression in later life
- Author
-
Qu, Tianyao
- Published
- 2024
- Full Text
- View/download PDF
16. The impact of adult children living at home on the well-being of Spanish parents: Evidence from panel data
- Author
-
Gil-Moltó, Maria José and Hole, Arne Risa
- Published
- 2024
- Full Text
- View/download PDF
17. Trans depathologisation and gender identity disorder in Japan: A critical discourse analysis of medical literature, 2010–2022.
- Author
-
Konishi, Yuumi
- Subjects
- *
HEALTH services accessibility , *GENDER identity , *TRANSGENDER people , *MENTAL illness , *SOCIAL factors , *DECISION making , *DIAGNOSIS , *DISCOURSE analysis , *GENDER dysphoria , *PSYCHOSOCIAL factors - Abstract
Since the depathologisation movement in 2007 to challenge the pathologisation of trans identities in Western psychiatry, significant developments have occurred, including revisions to Standards of Care and diagnostic criteria such as ICD-11's gender incongruence and DSM-5's gender dysphoria, acknowledging gender diversity as an expected part of human development. This paper argues that Japanese medical models reflect global issues but also have unique aspects shaped by cultural and linguistic nuances. Using critical discourse analysis, this paper examines how depathologisation discourses are perceived in the Japanese medical community, focusing on the term seidouitsusei-syōgai (gender identity disorder), presenting three ways in which seidouitsusei-syōgai is used: psychiatric disorder, syōgai / sikkan (impairment/disability/disorder), and diagnostic category. These uses are influenced by legal and social reforms, healthcare access and alignment with international classifications, while the medical profession's authority remains unexamined. Reflecting the structural challenges of diagnostic models in trans medicine, the interpretation of seidouitsusei-syōgai differs from the English phrase 'gender identity disorder' due to the specific connotations of syōgai in the Japanese context. By examining Japan's approach to depathologisation and medicalisation, this paper enriches the understanding of trans medicine and the impact of depathologisation discourse in Japan. • Japanese medical views on trans depathologisation through critical discourse analysis. • Focusing interpretations of seidouitsusei-syōgai(=gender identity disorder). • 3 usages, psychiatric, syōgai/sikkan and diagnostic, are influenced by social factors. • The authoritative role of the medical profession remains unexamined. • Japan sharing structural problems of diagnostic model but has specific connotations. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
18. Therapeutic management in the low-wage workplace.
- Author
-
Ruppel, Emily H.
- Subjects
- *
NONPROFIT organizations , *WORK environment , *DISEASE management , *REHABILITATION of people with mental illness , *INTERVIEWING , *MINDFULNESS , *WAGES , *ETHNOLOGY , *FIELD research , *SOCIOLOGY , *PEOPLE with disabilities - Abstract
Medicalization represents an increasingly significant form of social control. Emergent evidence suggests that workplace managers take up medicalized practices and discourses to produce a compliant labor force, but this phenomenon has received limited sociological attention. This paper extends prior theories of medicalization to investigate therapeutic management in the low-wage workplace. I draw upon eight months of ethnographic fieldwork in Disability Works, a nonprofit job training program for people with mental illnesses, and interviews with other providers and advocates within this field. Disability Works harnesses therapy, psychiatry, and "softer" therapeutic practices such as mindfulness meditation, sleep hygiene, and positive affirmations to produce its workforce. This paper identifies two dimensions of therapeutic management: (1) it aims to inculcate work norms at the level of client-workers' embodied dispositions, and (2) it aims to transform structural problems into individual ones. Findings illuminate therapeutic management as an emergent workplace regime and may guide future research on its effects. • "Therapeutic management" is an emergent managerial style. • Ethnographic fieldwork and interviews illustrate practices of therapeutic management. • This style draws on therapy, psychiatry, and pseudo-therapeutic practices. • Therapeutic management aims to inculcate work norms at the dispositional level. • Therapeutic management aims to transform structural problems into individual ones. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
19. Rank, stress, and risk: A conjecture.
- Author
-
Stark, Oded and Wlodarczyk, Julia
- Subjects
- *
RISK-taking behavior , *HYDROCORTISONE , *SOCIAL perception , *SOCIAL status , *PSYCHOLOGICAL stress , *SOCIAL skills , *SOCIAL classes - Abstract
A perception at the core of studies that consider the link between social rank and stress (typically measured by the so-called stress hormone cortisol) is that the link is direct. Examples of such studies are Bartolomucci (2007) , Beery and Kaufer (2015) , and Koolhaas et al. (2017). A recent and stark representation of this body of work is a study by Smith-Osborne et al. (2023) , who state that "social hierarchies directly influence stress status" (Smith-Osborne et al. p. 1537, italics added). In the present paper, we reflect on this "direct" perspective. We conjecture that the link between social rank and stress involves an intervening variable: an indirect relationship arises when the loss of rank triggers a behavioral response in the form of risk taking aimed at regaining rank, and it is the engagement in risk-taking behavior that is the cause of an elevated level of cortisol. Smith-Osborne et al., as well as others whose papers are cited by Smith-Osborne et al. and who, like Creel (2001) and Avitsur et al. (2006) , conducted comprehensive research on the association between rank (social standing) and stress, do not refer to risk taking at all. We present four strands of research that lend support to our conjecture: evidence that in response to losing rank, individuals are stressed; evidence that in response to losing rank, individuals resort to risk-taking behavior aimed at regaining their lost rank; evidence that there exists a link between engagement in risky activities or exposure to risk and elevated levels of cortisol; and an analytical perspective on incidence and intensity, namely a perspective that shows how the willingness to take risks responds to a change in rank, specifically, how a loss of rank triggers a greater willingness to take risks and how this trigger is stronger for individuals whose rank is higher. • The link between social rank and stress involves an intervening variable. • Loss of rank triggers a behavioral response in the form of risk taking. • This response is aimed at regaining rank. • Risk-taking behavior is the cause of an elevated level of cortisol. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
20. 'Kindling the fire' of NHS patient data exploitations: The care.data controversy in news media discourses.
- Author
-
Vezyridis, Paraskevas
- Subjects
- *
NATIONAL health services , *SOCIAL media , *SOCIAL security , *LEADERSHIP , *PRIMARY health care , *COMMITMENT (Psychology) - Abstract
This paper explores news media discourse about care.data: an NHS England programme of work for amalgamating and sharing patient data from primary care for planning and research. It was scrapped in 2016 after three years of public outcry, delays and around 1.5 million opt-outs. I examine UK news media coverage of this programme through the 'fire object' metaphor, focusing upon the visions of purpose and value it inspired, the abrupt discontinuities, juxtapositions and transformations it performed, and the matters of concern that went unheeded. Findings suggest that, in care.data's pursuit of a societal consensus on NHS patient data exploitations, various visions for new and fluid data flows brought to presence narratives of transforming the NHS, saving lives, and growing the economy. Other realities and concerns that mattered for certain stakeholders, such as data ownership and commercialisation, public engagement and informed consent, commitment and leadership, operational capabilities, and NHS privatisation agendas, remained absent or unsettled. False dichotomies kept the controversy alive, sealing its fate. I conclude by arguing that such failed programmes can turn into phantom-like objects , haunting future patient data schemes of similar aspirations. The paper highlights the role news media can have in understanding such energetic public controversies. • Care.data was an NHS England's programme for extracting and analysing primary care data. • Care.data was scrapped in 2016 after public outcries and more than 1.5 million opt-outs. • I analyse UK news media to examine discourses around care.data's discontinuities and shifts. • Ethical concerns and design flaws empowered multiple visions to develop and compete. • Care.data arrived at an inevitable antagonistic deadlock that was hard to resolve. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
21. Stigma power in practice: Exploring the contribution of Bourdieu's theory to stigma, discrimination and health research.
- Author
-
Guise, Andy
- Subjects
- *
MEDICAL care research , *HEALTH attitudes , *PROFESSIONAL practice , *VIOLENCE , *SCHOLARLY method , *SOCIAL services , *SOCIAL status , *SOCIAL skills , *CONCEPTUAL structures , *DISCRIMINATION (Sociology) , *HEALTH promotion , *SOCIAL stigma - Abstract
Stigma and discrimination are increasingly understood as shaping health, and in turn conceptualised as social processes shaped by power and structural inequities. A challenge to analysis and implementing interventions is developing theory that can integrate analysis of structure, agency and power. One theoretical framework already promoted by prominent scholars as supporting this need is Bourdieu's social practice theory. This paper explores the application to date of Bourdieu's theory on stigma, discrimination and health. The paper describes how existing health literature has used concepts of symbolic violence, fields, capitals and habitus to develop insight into stigma power. The discussion explores how this theoretical framework is though underutilised and there has been little consideration of new programmatic approaches based on this theory. Directions for future research include the need for integrated approaches to analysis, especially using habitus to explore stigma power, and addressing processes of change. Directions for conceptualising interventions address how a mismatch of field and habitus could foster change and then the role for prophets in fostering symbolic revolutions. All these potential directions must in turn be integrated within the vast scholarship on stigma. In conclusion, further application and development of Bourdieu's social practice theory could help address the theoretical challenges facing the field of stigma, discrimination and health research. • Bourdieu's theory has been widely promoted to support stigma, discrimination and health research. • Exploration of existing literature shows wide application and development. • Aspects of the theory, notably habitus, are little used. • The theory is little used in interventions; directions for future development are described. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
22. Using simulation modelling to transform hospital planning and management to address health inequalities.
- Author
-
Demir, Eren, Yakutcan, Usame, and Page, Stephen
- Subjects
- *
MEDICAL care , *DECISION making , *PROBLEM solving , *SIMULATION methods in education , *HEALTH equity , *MANAGEMENT ,HOSPITAL planning - Abstract
Health inequalities are a perennial concern for policymakers and in service delivery to ensure fair and equitable access and outcomes. As health inequalities are socially influenced by employment, income, and education, this impacts healthcare services among socio-economically disadvantaged groups, making it a pertinent area for investigation in seeking to promote equitable access. Researchers widely acknowledge that health equity is a multi-faceted problem requiring approaches to understand the complexity and interconnections in hospital planning as a precursor to healthcare delivery. Operations research offers the potential to develop analytical models and frameworks to aid in complex decision-making that has both a strategic and operational function in problem-solving. This paper develops a simulation-based modelling framework (SimulEQUITY) to model the complexities in addressing health inequalities at a hospital level. The model encompasses an entire hospital operation (including inpatient, outpatient, and emergency department services) using the discrete-event simulation method to simulate the behaviour and performance of real-world systems, processes, or organisations. The paper makes a sustained contribution to knowledge by challenging the existing population-level planning approaches in healthcare that often overlook individual patient needs, especially within disadvantaged groups. By holistically modelling an entire hospital, socio-economic variations in patients' pathways are developed by incorporating individual patient attributes and variables. This innovative framework facilitates the exploration of diverse scenarios, from processes to resources and environmental factors, enabling key decision-makers to evaluate what intervention strategies to adopt as well as the likely scenarios for future patterns of healthcare inequality. The paper outlines the decision-support toolkit developed and the practical application of the SimulEQUITY model through to implementation within a hospital in the UK. This moves hospital management and strategic planning to a more dynamic position where a software-based approach, incorporating complexity, is implicit in the modelling rather than simplification and generalisation arising from the use of population-based models. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
23. Smoothness as a quality of care: An STS approach to transnational healthcare mediation.
- Author
-
Hartmann, Sarah
- Subjects
- *
MEDICAL quality control , *HUMAN services programs , *SCIENCE , *MEDICAL tourism , *TRANSITIONAL care , *COMMUNICATION , *TECHNOLOGY , *FACTOR analysis - Abstract
Medical travel and transnational healthcare involve various difficulties such as the distance and disconnect between patients and healthcare providers, language barriers or logistical challenges of moving ill bodies across space. Medical travel facilitation steps in with some sort of brokerage service that contributes to overcoming or managing these difficulties and, as this paper suggests, acts to create a quality of 'smoothness'. By unpacking three salient facilitation practices, namely connecting, communicating, and coordinating, this paper conceptualises the empirically derived category of 'smoothness'. This as a disposition, outcome, and spatio-temporal manoeuvre of medical travel facilitation. Based on the way in which such practices of mediation act to create smoothness, namely in an attentive, persistent, and collective tinkering manner, this paper suggests that some practices of medical travel facilitation are productively thought not just about setting up the possibility of care transnationally, but that they are key forms of care in itself. Based on these findings, smoothness is considered to be a central but also contested quality of medical travel facilitation and brokerage in a broader sense, but as proposed here, also for care. This conclusion potentially has implications not just for the study of transnational healthcare and mediation activities, but also that of care and transnational mobilities more generally. • Medical travel facilitation creates smoothness in mediating transnational healthcare. • Conceptualising smoothness as a disposition, outcome and spatio-temporal manoeuvre. • Brokerage and an STS-take on medical travel facilitation and care. • Smoothness as a quality of medical travel facilitation, brokerage and possibly care. • Medical travel facilitation between Oman and India. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
24. Follow the citations: Tracing pathways of "race as biology" assumptions in medical algorithms in eGFR and spirometry.
- Author
-
Fuentes, Agustín, Espinoza, Ulises J., and Cobbs, Virginia
- Subjects
- *
SPIROMETRY , *AFRICAN Americans , *CITATION analysis , *WHITE people , *RACE , *MEDICAL research , *EPIDERMAL growth factor receptors , *ALGORITHMS , *FRAUD in science - Abstract
Despite overwhelming evidence to the contrary, the concept of 'race' as a biological unit continues to persist in various scientific disciplines, notably in the field of medicine. This paper explores the persistence of 'race as biology' in medical research via examining select citational practices that have perpetuated this problematic concept. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. By analyzing citation threads and historical patterns, we aim to shed light on the creation and perpetuation of false scientific truths and their impact on medical research, training, and practice. We focus on two prominent examples, eGFR and Spirometry, and trace key articles' citational histories, highlighting the flawed evidence in support of racial corrections in medical assessments. The eGFR equation incorporates 'race' as a factor based on the erroneous belief that Black individuals have higher muscle mass than white individuals. Our analysis reveals that key cited sources for this belief lack robust and well-developed datasets. Similarly, Spirometry measurements incorporate racial correction factors, relying on questionable evidence dating back to the Civil War era. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. They play a crucial role in shaping theoretical positions and validating data and assumed knowledge. Evaluating citation threads and key articles consistently referenced over time can reveal how falsehoods and erroneous assertions are constructed and maintained in scientific fields. This study underscores the need for critical examination of citational practices in medical research and urges a shift toward a more cautious approach when citing sources that support 'race as biology.' The paper calls for a reevaluation of pedagogical approaches and assigned readings in medical education to prioritize an anti-racist perspective in future research endeavors. • Algorithms in contemporary medicine often involve "race" as a biological variable. • We offer a review of the citation threads in eGFR and Spirometry algorithms. • Support for race as variable relies on faulty, weak, and unsupportive citations. • Medical training must attend to and use caution around "truths" about racialized bodies. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
25. Health emergencies, science contrarianism and populism: A scoping review.
- Author
-
Schenkel, Marina
- Subjects
- *
GOVERNMENT policy , *PUBLIC opinion , *CITIZENSHIP , *POPULATION geography , *SYSTEMATIC reviews , *LITERATURE reviews , *RESEARCH methodology , *PRACTICAL politics , *PUBLIC health , *COVID-19 pandemic - Abstract
Populism has emerged as a central explanation employed by both media outlets and scholars for the mishandling of the COVID-19 crisis. Nonetheless, the relationship between public health and populism extends before and beyond the pandemic. This paper offers a comprehensive overview of existing evidence and theoretical conceptualisations on the intersection of populism, health emergencies, and contrarian scientific positions, drawing from a diverse range of disciplines. I conducted a scoping review of 283 original studies, analysing their analytical framework, geographic focuses, and methodological approaches. Employing quantitative text analysis, I summarised the research field into 18 common topics, organised into five coherent categories: citizen's perspective, political elites, political communication, pandemic consequences, and non-COVID-related issues. While the scholarly interest in this area has surged since the onset of the pandemic, it has predominantly concentrated on specific cases, such as Brazil and the US, often conflating different policy types. The evidence summary elucidates that populism assumes varying roles within distinct contexts, and there is no linear relationship between political populism and specific approaches to health crises and science. I further compare definitions of populism within the context of health and scientific positions. I propose that future research should employ a policy typology for health emergency responses, assessing political positions based on policy arenas. This paper contributes to the understanding of the complex interplay between political populism, contrarian scientific perspectives, and public health. • Descriptive summary of multiple disciplines and theoretical frameworks. • Research interest in this theme surged after the COVID-19 pandemic. • Geographic focus and generalisation of specific cases such as Brazil and the US. • Lack of linear and universal association between populism and health emergencies. • Adoption of a common policy typology to guide future research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
26. Explaining depression in the language of burnout: Normative reasons for depression in place of deterministic causes.
- Author
-
Shimizu, Hiroto
- Subjects
- *
DIAGNOSIS of mental depression , *PSYCHOLOGICAL burnout , *WORK environment , *CULTURE , *SOCIAL norms , *MENTAL depression , *EMPLOYEES' workload , *PSYCHOSOCIAL factors - Abstract
In recent years, there has been renewed interest in diversifying the understanding and discussion about the causes of depression to move beyond biomedical determinism—a view that biomedical factors are the ultimate cause of an individual's depression. There is increasing emphasis on diversity in how people seek to articulate the causes of depression to incorporate non-biomedical dimensions. Furthermore, the biomedical understanding of depression has been increasingly questioned due especially to emerging limitations in pharmacotherapy. These shifts encourage social analyses that explore what narratives as to the causes of depression are constructed and presented with relative plausibility in different contexts and why and how. By analysing published memoirs of individuals diagnosed with depression in Japan, this study aims to provide fresh insights into narratives around the causes of depression. It illustrates how memoirs portray depression and its perceived causes in characteristic ways in a nation that adopts Western diagnostic systems, biomedical therapeutics and other relevant technologies. I will show that 'burnout' is the dominant theme in the Japanese data, diverging from the predominantly biomedical narrative in Western societies. This burnout narrative depicts depression as the somewhat unfortunate but unsurprising result of overwork arising from individual active adaptations to structural features of the Japanese work culture. I argue that reasons, rather than causes, articulate the making of the burnout narrative by revealing the interplay between the structural and individual and ultimately enrich the understanding of depression. The paper concludes with a call for exploring the shifting relationship between illness and normalcy that the burnout narrative implies. I suggest that further studies could explore how the boundaries between normalcy and illness are enacted and re-enacted and to what avail through public discourse and through shifting diagnostic schemata in the context of different national norms and practices. • There are international differences in how depression is experienced and represented. • Biomedical explanations of depression are frequently documented in the literature. • This paper shows ways in which depression is explained in the language of burnout. • Burnout emphasises the interaction between the individual and the structural. • Distinguishing reasons from causes helps better understand burnout and depression. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
27. "If I knew you were a travesti, I wouldn't have touched you":Iatrogenic violence and trans necropolitics in Turkey.
- Author
-
Atuk, Tankut
- Subjects
- *
IMMUNIZATION , *VIOLENCE , *MEDICAL care , *HIV-positive persons , *PRACTICAL politics - Abstract
Since 2007, the number of HIV diagnoses in Turkey has increased more than 600% and the AIDS-related deaths have more than doubled. Despite trans community being severely impacted by the growing epidemic, there exists a conspicuous absence of epidemiological data regarding the HIV burden of trans people. This paper examines the medical experiences of HIV-positive trans women who engage in sex work and the harmful violence they encounter at the hands of health providers. The paper emphasizes the urgent need for comprehensive interventions to address the intersecting issues of HIV risk, structural violence, and discrimination faced by HIV-positive trans sex workers, one of the most marginalized communities worldwide. To interpret better how transphobia and HIVphobia become deeply entangled in Turkish medical settings, the paper draws from the concepts of iatrogenesis , necropolitics, and immunity. By bringing together these conceptual tools with long-term ethnographic data and in-depth interviews, this paper demonstrates that trans women are treated by healthcare providers as though they are always-already infectious. The paper contends that aggressive immunitarian boundaries, erected between healthcare personnel and individuals deemed "contagious others," are central to doctors' denial of medical care and reluctance to touch, examine, or even admit trans patients, particularly when they are HIV-positive. • Social immunization lies at the core of doctors' refusal of care for trans patients. • Social immunization is central to the operation of necropolitics and iatrogenesis. • Doctors establish violent boundaries in an attempt to "protect" themselves. • Trans women are assumed to be inherently contagious by healthcare providers. • Trans communities are slowly debilitated through denial of healthcare services. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
28. Vigilance in infectious disease emergencies: Expanding the concept.
- Author
-
Williams, Jane, Mayes, Christopher, Flint-Peterson, Eamon, and Degeling, Chris
- Subjects
- *
PREVENTION of infectious disease transmission , *PREVENTION of communicable diseases , *PUBLIC health surveillance , *MEDICAL emergencies , *COVID-19 pandemic , *CONCEPTS - Abstract
In their 2010 book, Lorna Weir and Eric Mykhalovskiy conceptualised the role of vigilance in unknown and emerging infectious disease threats. Theirs is a macro-level account which draws on empirical data to describe vigilance as a set of technical and political arrangements that govern collection, analysis, interpretation and communication of data as it pertains to unknown threats. In this paper we expand their work to detail a conceptual analysis of the role of vigilance at the micro-level during periods of high infectious disease threat. Our data are daily press conferences and associated non-discursive tools in New South Wales (NSW), Australia during times of heightened COVID-19 risk. This paper is a conceptual analysis that draws on theories of vigilance and related concepts to show how a key aspect of vigilance is making previously unseen threats visible or present. Communications formulated and encouraged three types of vigilance as a set of governing relations: institutional or authority-based; individual outward-facing; and individual inward-facing. We also describe the relationship between vigilance and related concepts that are used in response to anticipated public threats. Authority based vigilance involved contact tracing and policing of movement and behaviours. In individual outward facing vigilance people were asked to be alert to, analyse, and react to risk in their immediate environment. Inward facing vigilance required people to gather and react to information about their own behaviours and within their own bodies. There was a relationship between different types of vigilance; as risk increased and authority-based vigilance was less successful in containing the spread of infection, individual vigilance had a stronger role to play. This extension of vigilance at the micro-level sees some of the same unintended consequences as Weir and Mykhalovskiy describe at the global level, particularly in how burdens are inequitably distributed and experienced. • Citizens became an arm of vigilance apparatus during COVID-19 pandemic in Australia. • Vigilance was authority-based; individual outward facing; individual inward facing. • Disadvantaged populations carried higher vigilance burden. • Earlier conceptions of vigilance in infectious disease emergencies are extended. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
29. 'My doctor just called me a good girl and I died a bit inside': From everyday misogyny to obstetric violence in UK fertility and maternity services.
- Author
-
von Benzon, Nadia, Hickman-Dunne, Jo, and Whittle, Rebecca
- Subjects
- *
MATERNAL health services , *CHILDBIRTH , *VIOLENCE , *FERTILITY - Abstract
This paper begins with the common phrase 'good girl' as a lens through which to explore the insidious nature of patronising and paternalistic language on women's agency in obstetric care. Here we see how misogynistic language is both violence against women in its own right, and serves to create a context in which more extreme obstetric violence can be precipitated. Based on thematic analysis of discussion on Mumsnet, and on contributions to a research-focused Facebook group, this paper illustrates the complexity of recognising and refuting misogyny as a female patient as well as the damage that can occur from a cultural context in which this language is normalised. Here, words both boast a materiality through the environments they reify, and become transient and slippery, with semiotic uncertainty. • Use of misogynistic language in obstetric and fertility care is widespread. • This language may be difficult to identify and address. • Language that positions women as incompetent creates a context in which violence may occur during childbirth. • Experiences of obstetric violence are common even in the UK, amongst well-educated women. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
30. A matter of (good) faith? Understanding the interplay of power and the moral agency of managers in healthcare service reconfiguration.
- Author
-
Smith, Chris Q., Williams, Iestyn, and Leggett, Will
- Subjects
- *
ETHICS , *CONFIDENCE , *HEALTH facilities , *MEDICAL care , *INTERVIEWING , *NATIONAL health services , *QUALITATIVE research , *COMMITMENT (Psychology) , *PATIENT care , *POWER (Social sciences) , *TRUST - Abstract
Previous studies of service reconfiguration in healthcare have explored the influence of power on processes and outcomes. However, in these accounts the moral agency of managers is often underemphasised. This paper draws on the theoretical tools provided by the sociology of morality to help deepen understanding of the interaction between power and moral agency in service reconfiguration in healthcare. It presents results from a qualitative study of a pan-organisational service reconfiguration in the NHS in England, involving nineteen in-depth interviews with those leading the change and the analysis of twelve programme documents. We combine concepts of the moral background and epistemic governance to interpret participants' conviction that the service change was 'the right thing to do'. The paper shows how epistemic work carried out by service change regulations shaped the moral background within which participants worked. This, in turn, channelled their moral agency – specifically their commitment to patient care – in a way that also reflected central priorities. The paper adds to sociological understandings of service reconfiguration through considering the interaction of structure, agency and power, while also developing the concept of the moral background to show how power relations can influence moral beliefs. • Managers can show strong faith in uncertain evidence for healthcare service change. • The moral background explains this in a way which considers power and moral agency. • Confidence in evidence depends on background assumption of future as predictable. • Confidence also depends on premise that finances are not open to moral evaluation. • Service change regulations carry out epistemic work on background assumptions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
31. Ethical, legal, and social implications (ELSI) of virtual agents and virtual reality in healthcare.
- Author
-
Rudschies, Catharina and Schneider, Ingrid
- Subjects
- *
HEALTH services accessibility , *VIRTUAL reality , *PHYSICIAN-patient relations , *ARTIFICIAL intelligence , *LEGAL liability , *DATA security , *SOCIAL case work - Abstract
Virtual agents (VAs) and immersive virtual reality (VR) applications broaden the opportunities for accessing healthcare by transposing certain processes from the analogue world into a virtual realm. While these innovations offer a number of advantages including improved access for individuals in diverse geographic locations and novel therapeutic options, their implementation raises significant ethical, social, and legal implications. Key considerations pertain to the doctor-patient relationship, privacy and data protection, justice, fairness, and equal access as well as to issues of accountability, liability, and safety. This paper conducts a comprehensive review of the existing literature to analyse the ethical, social, and legal ramifications of employing VAs and VR applications in healthcare. It examines the recommended strategies to mitigate potential adverse effects and addresses current research gaps in this domain. • Virtual agents (VA) and immersive virtual reality (VR) are explored in the healthcare sector. • The paper investigates their ethical, legal, and social implications (ELSI) on basis of a literature review. • Key considerations pertain to the doctor-patient relationship, data protection, equal access, liability, and safety. • The paper gives an overview of the recommendations made to mitigate risks. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
32. The role of primary healthcare amid the COVID-19 pandemic: Evidence from the Family Health Strategy in Brazil.
- Author
-
Teixeira, Adriano Dutra, Postali, Fernando Antonio Slaibe, Ferreira-Batista, Natalia Nunes, Diaz, Maria Dolores Montoya, and Moreno-Serra, Rodrigo
- Subjects
- *
DEATH , *PRIMARY health care , *HUMAN beings , *GOVERNMENT agencies , *DESCRIPTIVE statistics , *CONFIDENCE intervals , *COVID-19 pandemic , *COVID-19 - Abstract
This paper investigates the role of primary healthcare in mitigating the consequences of the COVID-19 pandemic, focusing on the Brazilian Family Health Strategy (ESF) as a case study. ESF is Brazil's major primary care initiative, with prior evidence indicating its effectiveness in improving various health outcomes. The COVID-19 pandemic submitted the Brazilian healthcare system to a rigorous and unprecedented stress test, whose repercussions are still under study. Using comprehensive administrative microdata from 2016 to 2022 encompassing dimensions related to mortality, healthcare service, supply of family health teams, and vaccination coverage, our empirical strategy accounts for heterogeneous effects based on program intensity and pandemic evolution of the 5570 Brazilian municipalities. Our findings reveal that municipalities with high-intensity of ESF coverage (i.e. stronger primary care) experienced 347.93 (95% CI: 289.04, 406.81) fewer COVID-19 and cardiorespiratory deaths per million inhabitants throughout the pandemic period, compared to those in low-intensity ESF areas, despite sharing similar profiles of deaths from respiratory and cardiovascular causes. Among the channels contributing to this relative performance, high-intensity ESF municipalities were found to engage in more home-based primary care visits and health promotion activities while maintaining a similar supply of community health workers. Additionally, they achieved higher vaccination coverage, and these effects were more pronounced in areas with greater ESF presence, emphasising the importance of primary care coverage. In conclusion, our findings underscore the relevance of strong primary care in mitigating the consequences of the pandemic and addressing post-pandemic health challenges. • Study examines the Brazilian Family Health Strategy's impact on COVID-19 outcomes. • High ESF coverage areas had lower mortality rates than low-coverage areas. • Stronger primary care areas had more home visits and actions for health promotion. • Primary care was vital for effective pandemic recovery in Brazil. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
33. The political stakes of cancer epistemics.
- Author
-
Bhangu, Shagufta, Argudo-Portal, Violeta, Araújo Neto, Luiz Alves, Cochrane, Thandeka, Denisova, Masha, and Surawy-Stepney, Nickolas
- Subjects
- *
TUMOR treatment , *TUMOR diagnosis , *HEALTH services accessibility , *EARLY detection of cancer , *ETHNOLOGY research , *POPULATION geography , *THEORY of knowledge , *PRACTICAL politics , *MEDICAL needs assessment , *MEDICAL care costs - Abstract
We demonstrate a transnationally situated dialogue as a method to bring ethnographic and historical research in Brazil, East Africa (Kenya, Tanzania and Uganda), India, Russia and Spain into conversation to show three cancer epistemics sites (research, detection, and care access) where the politics of cancer epistemics are at play. First, in the field of research, we show how certain ways of knowing, and certain questions about and interests in cancer, are privileged over others. Using examples from Spain and East Africa, we highlight how a shift towards microbiological and high-technology research has outpriced many more locally grounded research agendas, ignoring questions of industrial and capital accountability in cancer aetiology. Second, we look at ways of making cancer visible, how knowledge is mobilised in cancer detection and screening, where and for whom. We discuss the increased individualisation of risk which is reframing cancer surveillance and therapeutic agendas. Using examples from India, Spain and Brazil, we demonstrate how the epistemics of cancer detection generate discourses of blame and responsibility at the individual level and accentuate existing inequities whilst simultaneously absorbing patients and their families into complex networks of surveillance. Lastly, we examine how the epistemics of cancer implicate the very possibilities of accessing cancer care, shaping care pathways and possibilities for patients. With ethnographic examples from India, Russia and Brazil, we demonstrate how an orientation towards the individual shifts attention away from the commercialisation of healthcare and dominance of logics of profit in therapeutics. Throughout the paper, we point towards what is holding these cancer discourses together and grapple with how the politics of cancer epistemics are at play across the globe, even if they appear to be taking many different forms. Our approach highlights how practices are mirrored in the framing, implementation, detection and care of cancer with far-reaching effects. • A transnationally situated dialogue examines the global production of cancer knowledge. • Global research agendas side line industrial and capital driven carcinogenic links. • Individualisation of cancer detection obfuscates social and national inequities. • High-cost and technology driven interventions are privileged over local initiatives. • Patient perspectives on knowing and accessing cancer care are overlooked. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
34. Infrastructures of epidemic response: Mpox and everyday repair work in southwestern Nigeria.
- Author
-
Schmidt-Sane, Megan, Adegoke, Olufunke, Abbas, Syed, Lawanson, Akanni O., Kunnuji, Michael, Jegede, Ayodele, and MacGregor, Hayley
- Subjects
- *
PREVENTION of communicable diseases , *PUBLIC health infrastructure , *COMMUNITY health services , *ETHNOLOGY research , *PRIMARY health care , *PANDEMIC preparedness , *MONKEYPOX , *MEDICAL emergencies , *FRONTLINE personnel , *PUBLIC health - Abstract
Mpox (formerly known as monkeypox) was declared a Public Health Emergency of International Concern (PHEIC) by the World Health Organization on 23rd July 2022, however cases of the disease have been detected in Nigeria since the 1970s and more recently since it began spreading in more urban areas of the country from 2017 onward. Nigeria has a strong track record of epidemic preparedness and response, spearheaded by the Nigeria Centre for Disease Control. Despite being somewhat separate architectures on paper, epidemic response (in particular, integrated disease surveillance and response) relies on a foundation of primary health care, which is inadequately funded not only in Nigeria, but globally. Situating mpox response within this wider landscape, we draw on ethnographic research from September 2022–March 2023 in southwestern Nigeria on lived experiences of mpox and mpox response, focusing on the perspectives of frontline health workers and community-based suspected or confirmed mpox cases. We aimed to understand how prioritization and resource constraints shape mpox response at a local level, including effects on the everyday work of frontline health workers in public health and clinical care who are left to "make do." We analyze their experiences interfacing with two intersecting infrastructures, community-based surveillance and primary health care. Health workers' improvisation and "repair work," which we detail, enables the surveillance system to function in some capacity. However, health workers must regularly contend with competing priorities and routine care that may be sidelined during an outbreak or epidemic. We argue that this reveals the limitations of a global health security agenda as it materializes at a local level and the need for strengthening primary health care for longer-term sustainability. • This ethnographic study examined mpox response in southwestern Nigeria. • Epidemic response infrastructure depends on a strong primary health care system. • Primary health care is underfunded in Nigeria. • Frontline health workers engage in repair and improvisation. • This is unsustainable without further primary health system strengthening. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
35. "Successful" ageing in later older age: A sociology of class and ageing in place.
- Author
-
Gibson, Kate, Kingston, Andrew, McLellan, Emma, Robinson, Louise, and Brittain, Katie
- Subjects
- *
SOCIAL capital , *QUALITATIVE research , *INDEPENDENT living , *INTERVIEWING , *HOME environment , *DESCRIPTIVE statistics , *EXPERIENCE , *AGING , *LIFE course approach , *SOCIOLOGY , *PRACTICAL politics , *SOCIAL classes - Abstract
Supporting people to 'age in place' – to live independently at home and remain connected to the community – is an international policy priority. But the process of ageing in place is mediated in a socio-cultural context where neoliberal tropes of successful ageing reproduce a pervasive model about 'ageing well' by elevating ideals of individualised choice and self-governance. Based on two waves of qualitative interviews and interim observations, we employ a Bourdieusian logic to explore the ramifications of this context on the experiences of 46 people in later older age (80+) ageing in place in North East England. All participants enacted everyday improvisatory practices to render their homes habitable. But our participants – most of whom were located in middle-class social positions – supplemented such improvisions with a strategic disposition to plan for and actively shape their ageing-in-place futures. Our participants conveyed a distinct sense of agency over their ageing futures. Underpinning their orientations to practice was an awareness of the value attached to individually 'ageing well' and a distancing from the agedness associated with the fourth age. Our analysis demonstrates the role of capital, accrued throughout the life course, in bringing such future trajectories into effect. The central argument of this paper therefore is that the embodiment of (neoliberal) ideals of successful ageing in place requires the deployment of classed capital. In sum, contrary to the individualising narratives ubiquitous in policy pertaining to ageing well, we show the importance of classed structural moorings in this process. • Regardless of class, older adults (80+) tinker to render their homes habitable. • Bourdieusian analysis shows how class shapes (successful) ageing in place. • Focusing on middle-class experiences deepens insight into ageing inequalities. • Dispositions to plan for and actively shape ageing futures requires capital. • The individualising focus of successful ageing ideals is inherently classed. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
36. 'Managing values' in health economics modelling: Philosophical and practical considerations.
- Author
-
Harvard, Stephanie and Winsberg, Eric B.
- Subjects
- *
STATISTICAL models , *SCIENCE , *PHILOSOPHY of medicine , *STAKEHOLDER analysis , *MEDICAL care costs - Abstract
Stakeholder involvement has been proposed as a key strategy for appropriately managing value-laden decisions or 'value judgments' in health economics modelling. Philosophers of science, however, conceive of stakeholder involvement in research in conflicting ways, and also propose alternative strategies for 'managing values' in science. Furthermore, all proposed strategies for managing values in science raise philosophical questions and practical challenges that are difficult to resolve. As a result, health economists who seek to appropriately inform value judgments in modelling must currently go without straightforward guidance. There is a need to further explore how health economists should manage value judgments in modelling, taking into account philosophical debates and contextual constraints. This paper discusses core proposals for managing values in science and identifies philosophical questions and practical challenges these proposals leave unresolved. It further considers how this could potentially inform processes to manage value judgments in health economics modelling, using examples from an ongoing modelling project called LEAP (Lifetime Exposures and Asthma Outcomes Projection). We conclude that all strategies to 'manage values' in health economics modelling have strengths and weaknesses, but are generally compatible with one another, suggesting that health economists may use a combination of strategies. Further research is needed to explore the effects of strategies to 'manage values' in health economics modelling. • Many strategies may help manage 'value judgments' in health economics modelling. • We critically discuss proposed strategies using a case study called the LEAP model. • Health economists may combine multiple strategies to 'manage values' in modelling. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
37. Effectiveness and cost-effectiveness of models of maternity care for women from migrant and refugee backgrounds in high-income countries: A systematic review.
- Author
-
Yeshitila, Yordanos Gizachew, Gold, Lisa, Abimanyi-Ochom, Julie, Riggs, Elisha, Tolossa, Tadesse, and Le, Ha N.D.
- Subjects
- *
HEALTH literacy , *COST effectiveness , *MATERNAL health services , *PSYCHOLOGY of refugees , *CONTINUUM of care , *SYSTEMATIC reviews , *SOCIAL integration , *MIGRANT labor , *WOMEN'S health , *SOCIAL support , *PSYCHOSOCIAL factors , *COMMUNICATION barriers ,DEVELOPED countries - Abstract
Different models of care may be appropriate for various groups of women during their perinatal period, depending on their risk level, location, and accessibility of healthcare practitioners and facilities. Evaluating these models' effectiveness and cost-effectiveness is critical to allocating resources and offering sustained care to women from refugee backgrounds. This systematic review aimed to synthesize evidence on the effectiveness and cost-effectiveness of maternity care models among women from migrant and refugee backgrounds living in high-income countries. A comprehensive search of major databases for studies published in English between 2000 and 2023 was developed to identify literature using defined keywords and inclusion criteria. Two authors independently screened the search findings and the full texts of eligible studies. The quality of the included studies was appraised, and qualitative and quantitative results were synthesised narratively and presented in tabular form. The review was reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Forty-seven research papers from six countries were included in the review. The review highlighted the positive impact of community and stakeholders' involvement in the implementation of models of maternity care for women from migrant and refugee backgrounds. The review summarised the models of care in terms of their effectiveness in improving perinatal health outcomes and minimising medical interventions, continuum of care in maternity services, enhancing health literacy, maternity service use and navigating the healthcare system, social support, and sense of belongingness, and addressing cultural and linguistic barriers. Notably, only one study conducted a partial economic evaluation to determine the cost-effectiveness of the model. While the reviewed models demonstrated effectiveness in improving perinatal health outcomes, there was considerable variation in outcome measures and assessment tools across the models. Thus, reaching a consensus on prioritised perinatal outcomes and measurement tools is crucial. Researchers and policymakers should collaborate to enhance the quality and quantity of economic evaluations to support evidence-based decision-making. This includes thoroughly comparing costs and outcomes across various health models to determine the most efficient interventions. By emphasizing the importance of comprehensive economic evaluations, healthcare systems can better allocate resources, ultimately leading to more effective and efficient healthcare delivery. • Refugee background women often face poor perinatal outcomes and healthcare access barriers; diverse maternity care models address their needs. • The review comprehensively evaluated the effectiveness of maternity care models for migrants and refugee women. • Community and stakeholder engagement are vital for improving service use and perinatal experiences. • The review highlights a notable gap in assessing the cost-effectiveness of maternity care models for migrant and refugee background women. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
38. Transgender lives at the population level: Evidence from Danish administrative data.
- Author
-
Thomsen, Morten Kjær, Andersen, Matvei, and Greve, Jane
- Subjects
- *
TRANSGENDER people , *DEMOGRAPHIC characteristics , *GENDER affirming care , *SURVEYS , *MEDICAL appointments , *COMPARATIVE studies , *PSYCHIATRIC hospitals , *PSYCHOSOCIAL factors , *EMPLOYMENT , *EDUCATIONAL attainment - Abstract
This paper provides the first rigorous account of the diverse characteristics of transgender individuals at the population level, using data from Danish population registers. We observe three transgender subpopulations within the same national setting: all who changed thier legal sex (T-Legal, n = 1,995), all who have been assigned trans-related diagnostic codes (T-ICD, n = 1,594), and those who self-identified as transgender in a representative survey (T-Survey, n = 197, weighted n = 44,958). Results show significant differences in the subpopulations' backgrounds, family, education and labour market characteristics, and healthcare use. These differences extend beyond comparisons with the general population to great variations between each of the transgender subpopulations. Individuals with legal sex changes, and particularly those with trans-related diagnostic codes, face substantial disadvantages across various outcomes. Compared to the general population and the T-Survey subpopulation, the T-Legal subpopulation and the T-ICD subpopulation have significantly higher numbers of psychiatric hospital visits, lower educational attainment, lower annual earnings, and reduced employment rates, also when controlling for background characteristics. Earnings and employment rates remained significantly lower also when controlling for educational attainment. Our results show that the strategy chosen to identify trans individuals in population data has a great impact on the characteristics observed, and that trans individuals captured by surveys do not necessarily represent all transgender individuals, including those who seek to medically or legally transition. Furthermore, our results indicate that high numbers of trans individuals observed in surveys do not necessarily correspond to high demands for gender-affirming treatments or legal sex change. Finally, we show that transgender individuals who seek gender-affirming healthcare constitute a distinct and significantly disadvantaged group, also compared to other trans subpopulations. • We identify three transgender subpopulations within the same national setting. • Subpopulations differ greatly in education, health care use, employment, and earnings. • Those with trans diagnostic codes make up the most disadvantaged subpopulation. • Those who self-identify as trans are largely similar to the general population. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
39. A longitudinal analysis of the effects of COVID-19 on tourists' health risk perceptions.
- Author
-
Carballo, Rita R., León, Carmelo J., and Carballo, María M.
- Subjects
- *
TOURISM -- Psychological aspects , *RISK assessment , *HEALTH attitudes , *TRAVEL hygiene , *TRAVEL , *STRUCTURAL equation modeling , *QUANTITATIVE research , *STAY-at-home orders , *ATTITUDE (Psychology) , *LONGITUDINAL method , *SURVEYS , *INTERNATIONAL relations , *PRE-tests & post-tests , *INTENTION , *HEALTH behavior , *CONCEPTUAL structures , *RISK perception , *COMPARATIVE studies , *COVID-19 pandemic , *COVID-19 - Abstract
The COVID-19 pandemic provoked a large impact on tourism because of the enforcement of harsh travel restrictions and the increased global health risks caused by international mobility. This paper utilizes a longitudinal analysis to tests the impact of COVID-19 on tourists' health risk perceptions, and their relationships with destination image perception and visiting intentions. Tourists are surveyed at two different points of time, before and after the COVID-19 pandemic. Multi-group structural equation modeling is utilized for the comparison of the relationships at the two points of time. The results show that the negative influence of health risk perceptions on destination image perception and visiting intentions are significantly larger after the COVID-19 pandemic while there are no significant differences in the impact of destination image perception on visiting intentions. Thus, not only are tourists more sensitive to health risk perceptions after COVID-19, but this higher sensitivity has larger impacts both on their perceptions of destination image and on the behavioural implication. The results have useful implications in terms of the need to dedicate more efforts for the management of health conditions of destinations after COVID-19. • Presents a framework for conceptualizing and assessing health risk perceptions in tourism destinations in two scenarios, pre and post-pandemic. • Longitudinal appraisal of the impact of the pandemic on health risk perceptions. • Quantitatively testing the effects of the pandemic on health risk perception and health-related behavior. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
40. The role of administrative categories in the globalisation of a psychiatric concept: Case studies of autism in Japan.
- Author
-
Shinomiya, Sawako
- Subjects
- *
AUTISM , *HEALTH policy , *INTERVIEWING , *MENTAL illness , *THEMATIC analysis , *PHYSICIAN practice patterns , *ASPERGER'S syndrome , *SOCIAL support , *CASE studies , *HEALTH promotion , *HISTORY - Abstract
This paper explores how what I call 'administrative categories' have been adopted by the Japanese government and experts in autism support and what roles these categories have played in local settings. Since support practices for children and adults with autism began in the 1950s in Japan, the Japanese government and people engaging in autism support have used Japanese-specific administrative categories, instead of relying on a medical concept of autism, such as 'severe moving disabilities' (SMD), 'emotional disturbance', and 'extremely disruptive behavioural disorders' (EDBD). To understand the emergence of these three autism-related administrative categories in Japan, historical materials published from the 1950s to the 1990s by Japanese authors (doctors, psychologists, teachers, educationalists, welfare workers, government officials, and parents) and interview data with 19 leading experts of autism in Japan were collected and analysed thematically. The analysis revealed that the governmental ministries aimed to focus on establishing administrative support by avoiding engaging in aetiological debates among doctors, and to describe the political agenda more vividly. Administrative categories filled the gap between local interests and international medical concepts, enabling the concept of autism to be rooted in Japan's administrative systems. Three roles of administrative categories were identified: i) separation from medicine, ii) describing local problems, and iii) claimsmaking to wider actors and the public. I concluded that looking purely at medical and specifically diagnostic concepts limits our understanding of the formation of practices regarding disabilities, and thus more focus should be placed on categorisation practices outside of medicine. In addition, to the literature on the globalisation of Euro-American psychiatric concepts, this study contributes to our knowledge of a form of locality that has not been central in the exploration of the influence of globalisation on local settings and the relationships between the local and the global. • Focuses on 'administrative categories' of autism used by Japanese government and experts. • Describes the history of three autism-related administrative categories in Japan. • Shows how an international medical concept interacts with local systems. • Identifies roles of administrative categories that international medical concept cannot play. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
41. Polio, public health memories and temporal dissonance of re-emerging infectious diseases in the global north.
- Author
-
Kasstan-Dabush, Ben, Flores, Stephen A., Easton, Delia, Bhatt, Achal, Saliba, Vanessa, and Chantler, Tracey
- Subjects
- *
COMMUNICABLE diseases , *SOCIAL sciences , *IMMUNIZATION , *INTERVIEWING , *AT-risk people , *GOVERNMENT agencies , *COMMUNITIES , *COGNITIVE dissonance , *WORLD health , *EPIDEMICS , *RESEARCH methodology , *POLIO , *PUBLIC health , *INFECTIOUS disease transmission , *COVID-19 pandemic - Abstract
Social science research on polio has been centred in the global south, where countries that remain endemic or vulnerable to outbreaks are located. However, closely-related strains of poliovirus were detected in the sewage systems of several New York State counties and London boroughs in 2022. These detections constituted the first encounters with polio in the United States and United Kingdom for a generation – for both public health agencies and publics alike. This paper takes the transnational spread of poliovirus in 2022 as an opportunity to critique how public health memories of twentieth-century polio epidemics were mobilised to encourage vaccine uptake among groups considered vulnerable to transmission, notably Orthodox Jewish families. The study integrates data collected in London and New York as part of academic engagement with health protection responses to the spread of polio. Methods in both settings involved ethnographic research, and a total of 59 in-depth semi-structured interviews with public health professionals, healthcare providers, and Orthodox Jewish community partners and residents. Analysis of results demonstrate that narratives of epidemiological progress were deployed in public health responses in London and New York, often through references to sugar cubes, iron lungs, and timelines that narrate the impact of routine childhood immunisations. While memories of polio were deployed in both settings to provoke an urgency to vaccinate, vulnerable publics instead considered the more recent legacy of the COVID-19 pandemic when deciding whether to trust recommendations and responses. Critical attention to memory places analysis on the divergences between institutional (public health agencies) and peopled (publics) responses to disease events. Responses to re-emerging infectious disease outbreaks engender a temporal dissonance when historical narratives are evoked in ways that contrast with the contemporary dilemmas of people and parents. • Memories of past polio outbreaks were deployed to encourage vaccination in 2022. • Vulnerable publics were instead concerned with the legacy of Covid-19 mis/management. • Memory provokes diverging concerns for public health agencies and communities. • Learning from community experiences of outbreaks may inform engagement strategies. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
42. The emotional ambiguities of healthcare professionals' platform experiences.
- Author
-
Moretti, Veronica and Pronzato, Riccardo
- Subjects
- *
DIGITAL technology , *MEDICAL personnel , *QUALITATIVE research , *WORK environment , *INTERVIEWING , *DIGITAL health , *EMOTIONS , *DESCRIPTIVE statistics , *JOB stress , *RESEARCH methodology , *COMPUTER literacy , *CLINICAL competence , *GROUNDED theory , *PSYCHOSOCIAL factors - Abstract
This paper investigates how healthcare professionals experience digital platforms in their work practices and how these relationships enable forms of emotional labour and contribute to shaping their emotional health. Methodologically, the contribution draws on audio-diaries kept by 15 healthcare professionals and a final semi-structured interview conducted with the same informants. The research material was analysed using open and axial coding techniques, in a grounded theory fashion. Findings provides meaningful insights to the literature on the emotional labour of healthcare professionals, as well as to studies on digital health and labour. Specifically, we show that participants associate different and even contrasting reflections and emotional states with their relationships with digital platforms. Thus, there is not exclusively one trajectory that can explain the implications of media uses, as different and potentially conflicting emotions coexist within the same experience. Given this scenario, we argue that it can be fruitful to use the lens of 'ambiguity' to scrutinise the ambivalences and tensions characterising platform experiences, and how emotional labour in healthcare intertwines with technological developments. Moreover, we advocate for the development of critical digital literacy skills among healthcare professionals. • We contribute to literature on digital health and emotional labour. • We show the emotional ambivalences in healthcare professionals' platform experiences. • We argue for the merits of using the concept of 'ambiguity'. • We advocate for critical digital literacy among healthcare professionals. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
43. Young people returning to alcohol and other drug services as incremental treatment.
- Author
-
MacLean, Sarah J., Caluzzi, Gabriel, Ferry, Mark, Bruun, Andrew, Sundbery, Jacqui, Skattebol, Jennifer, Neale, Joanne, and Bryant, Joanne
- Subjects
- *
ALCOHOLISM treatment , *SUBSTANCE abuse treatment , *QUALITATIVE research , *INTERVIEWING , *TREATMENT effectiveness , *DESCRIPTIVE statistics , *LONGITUDINAL method , *PATIENT participation , *WELL-being , *ADOLESCENCE - Abstract
Young people who attend intensive alcohol and other drug (AoD) treatment commonly do so more than once. This paper aims to understand precipitators, enablers and barriers to young people's re-engagement in programs. Data come from a longitudinal qualitative study involving three waves of interviews with Australian young people recruited while attending intensive AoD programs (n = 38 at wave 1). We found that young people's ambitions for what they might achieve with a new stay and capacity to benefit from programs, evolved. Skills learnt in earlier stays or changed life circumstances often helped them achieve better outcomes subsequently. Ongoing contact with an AoD worker was the most important enabler to service re-engagement. Across the span of a year, we saw most young people in our study sample develop a stronger sense of wellbeing and control over substance use. While researchers tend to focus on evaluating outcomes associated with single stays at specific programs, young people think about their trajectories towards managing substance use and their lives as occurring more holistically, supported by engagements with a range of services. We argue that the notion of incremental treatment is useful in depicting the synergistic effects of service engagement over time. • Young people affected by substance use often attend many programs. • Participants who returned to services reported new goals and changed circumstances. • AoD treatment effects build as young people learn and engage with services. • The medical term 'incremental treatment' is useful in depicting this. • Outcomes should be measured through service system engagement over time. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
44. Persistency of catastrophic out-of-pocket health expenditures: Measurement with evidence from three African countries - Malawi, Tanzania, and Uganda.
- Author
-
Garcia-Diaz, Rocio, Prasad Sapkota, Vishnu, and Flores, Gabriela
- Subjects
- *
HOSPITAL care , *CATASTROPHIC illness , *DESCRIPTIVE statistics , *RURAL conditions , *BUDGET , *MEDICAL care costs , *REGRESSION analysis , *EDUCATIONAL attainment - Abstract
Catastrophic out-of-pocket health expenditure (CHE) remain high in Sub-Saharan Africa and may not conform to the sporadic random pattern of acute illnesses that shapes insurance arrangements intended to avoid the risk of financial loss. The persistency of CHE remains a largely unexplored issue due to the lack of relevant methods and scarcity of panel data. This paper addresses the first shortcoming by presenting three different approaches to incorporating the timeframes into the analysis, considering dynamics between two periods, average over time and the recurrence of CHE incidence. Through the application of the complementary approaches, we identify (i) those at risk of persistent CHE in the short-term; (ii) those facing transient versus persistent CHE in the long-term; and (iii) those facing multiple CHE spells. The methods are applied to different definitions of CHE using panel data from three sub-Saharan countries: Malawi (3 waves: 2010, 2013, and 2016) with 4983 observations; Tanzania (3 waves: 2008, 2010, and 2012) with 8715 observations; and Uganda (5 waves: 2009, 2010, 2011, 2013, and 2015) with 6475 observations. All datasets are balanced panels. Additionally, we employ empirical strategies to identify the underlying factors contributing to these persistent and relatively high OOP. Across the three countries, we find that at least 27% of the people facing CHE in one period, because they spent more than 5% of their household budget on health out-of-pocket, will face it again in the next period. The lower-bound risk for those spending more than 10% of their household budget is 9% and for those spending more than 25% of their household capacity to pay is 13%. Between 11% and 45% of the population incurred CHE at least twice during the observation period when using the 5% budget definition of CHE. The double recurrence rate ranges between 7% and 13% when using the 25% capacity-to-pay definition and between 3% and 20% when using the 10% budgetshare definition. Between 22% and 32% of the population experienced chronic CHE at the 5% of the budgetshare definition (6%–10% at the 10% of the budgetshare definition of CHE; 2%–11% at 25% of capacity-to-pay). Our panel regression analysis consistently highlights the susceptibility of certain groups to face persistence CHE, notably those residing in rural areas, individuals with lower levels of education, the elderly, and those who have undergone hospitalizations. • We propose to assess persistent catastrophic health expenses via risk exposure, average changes and recurrence. • At least 27% facing catastrophic health expenses in Malawi, Uganda, and Tanzania will face it again. • Elderly, female heads, and health shocks increase catastrophic health expense persistence. • Longitudinal insights identify enduring financial vulnerabilities due to out-of-pocket health spending. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
45. 'Like going to get a facial': Heterotopic spaces and gendered aesthetics of commercial Australian reproductive clinics.
- Author
-
Sassano, Angie and Mayes, Christopher
- Subjects
- *
SOCIAL media , *AESTHETICS , *QUALITATIVE research , *SCHOLARSHIPS , *DESCRIPTIVE statistics , *HUMAN reproductive technology , *ADVERTISING , *HUMAN reproduction , *HOSPITAL wards , *PATIENTS' attitudes - Abstract
The ethical effect of aesthetics is underexplored in literatures on healthcare, especially reproductive services. Healthcare aesthetics play a particular role in influencing patient choice, and in so doing, mediates who is – and is not – welcomed into certain medical spaces. This is particularly pertinent in the context of assisted reproductive clinics, which are often seeking competitive advantage in a market where patients purportedly have a choice amongst providers, and where providers have the capital to invest in clinic design and social media presence to attract patients. Interrogating aesthetic and spatial dimensions of reproductive clinics is especially critical in uncovering gendered, class, and racial assumptions of reproductive futures. As such, ethical inquiry would benefit from examining the aesthetic qualities of ART and its implications on the reproduction of commercialized, gendered, and racialized health settings. In this paper, we draw on reflections made by participants about aesthetics during qualitative interviews on commercial influences on ART services. We expand on these initial reflections by engaging with feminist literature on the image in reproductive ethics and broader scholarship regarding health environments. In doing so, we examine the normative assumptions and effects held within clinic aesthetics to discuss the construction and influence of 'pink' reproductive spaces. • Commercial ART clinics adopt 'pink aesthetics' of female empowerment and choice. • Aesthetics can trouble patriarchal medicine but commodify feminist justice. • Social media and advertising are critical to cultivating gendered aesthetics. • Pink aesthetics reinforces personal responsibility over reproductive futures. • The pink aesthetic constitutes reproductive imaginaries and subjectivities. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
46. "Whatever is bad goes back to the woman": The gendered blame game of sickle cell disease in Malawi and Uganda.
- Author
-
Svege, Sarah, Rujumba, Joseph, Robberstad, Bjarne, and Lange, Siri
- Subjects
- *
PARENTS , *SICKLE cell anemia , *FOCUS groups , *HEALTH status indicators , *SEX distribution , *CAREGIVERS , *PSYCHOLOGY of mothers , *FATHERS , *GENETIC mutation , *GENETICS - Abstract
Mothers are commonly blamed for the ill-health of their children, and this is well documented in research. However, few studies have considered gendered patterns of blame for hereditary conditions caused by mutations from both parents through dual, shared genetic inheritance. This paper explores the 'gendering' of blame in the context of an inherited blood disorder known as sickle cell disease. The findings are drawn from 18 focus group discussions with 117 caregivers of children with sickle cell disease in Malawi and Uganda. Although one mutation from each parent is required for the disease to develop, low awareness about their status as healthy carriers of a sickle cell trait complicated the caregivers' recognition and acceptance of their genetic link to the child's condition. This study demonstrates how fathers and other members of the paternal side of the child's family would deflect blame from their own lineage by directing sole 'genetic responsibility' for the child's disease towards mothers. We discuss the implications of gendered blame on household dynamics and healthcare-seeking for children with sickle cell disease in this setting. • Sickle cell disease develops if the child inherits one mutation from each parent. • Low awareness about sickle cell disease led to gendered blame-shifting. • Mothers were attributed sole genetic responsibility for the child's condition. • Invisible inheritance through healthy carriers may cause gendered patterns of blame. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
47. A relational approach to youth healthcare: Examining young people's, parents' and clinicians' experiences in the context of variations in sex characteristics.
- Author
-
Roen, Katrina, Lundberg, Tove, and Joy, Eileen
- Subjects
- *
HEALTH services accessibility , *PATIENTS' families , *MEDICAL personnel , *TRANSGENDER people , *INTERVIEWING , *PARENT-child relationships , *PARENT attitudes , *ATTITUDES of medical personnel , *RESEARCH methodology , *PATIENT-professional relations , *PSYCHOSOCIAL factors , *DEPENDENCY (Psychology) , *PATIENTS' attitudes , *PATIENT participation - Abstract
According to popular understandings, children grow from a state of dependence to eventually become independent adults. Interdependence helps to disrupt the in/dependence binary and is a useful concept for making sense of the experiences young people with variations in sex characteristics in relation to healthcare. This study used semi-structured interviews with 32 health professionals, 33 caregivers and 12 young people recruited in the UK and Sweden. The analysis is guided by the questions: (1) how do young people, carers and health professionals position themselves in the adult/young person relationship in the context of healthcare? (2) how is the (in/ter)dependence of young people imagined when young people, carers and health professionals talk about healthcare? Our analysis shows how carers and health professionals might support dominant understandings about young people growing towards independence while providing little opportunity for young people's agency and voice. Interviews with young people gave clear examples of their negotiating relational ways of being, seeking agency in the context of healthcare and not simply becoming independent of adults. This analysis also draws attention to the ways young people might be silenced within healthcare contexts. The present paper is based on secondary analysis of data from the SENS. It works with concepts of relationality and interdependence to draw out the possibilities of voice and agency for young people with variations in sex characteristics in healthcare contexts. • Youth with variations in sex characteristics are sometimes silenced in the clinic. • There is sometimes too little room for youth agency in healthcare. • A relational approach could improve the healthcare experiences of young people. • Working towards interdependence, not simply independence, can support youth. • It is important to value knowledge that is based on intersex lived experience. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
48. "It's All Just F*cking Impossible:" The influence of Taylor Swift on fans' body image, disordered eating, and rejection of diet culture.
- Author
-
Pope, Lizzy and Rose, Kelsey L.
- Subjects
- *
SOCIAL media , *QUALITATIVE research , *PREJUDICES , *BODY weight , *BODY image , *EATING disorders , *THEMATIC analysis , *FOOD habits , *ROLE models , *IMPLICIT bias , *ATTITUDES toward obesity , *DIET , *SOCIAL stigma - Abstract
Taylor Swift is arguably one of the most popular and influential celebrities. Of particular interest is her power as a role model for millions of fans across the world. Swift has spoken openly about different cultural issues, including her struggles with disordered eating and diet culture. Thus, the purpose of this paper was to explore whether Swift's disclosures of her own eating and body image struggles influenced her fans. Over 200 TikTok and Reddit posts related to Swift and eating disorders or body image, as well as their associated comments, were qualitatively coded to examine relevant themes. Key themes included: 1) Swift as a role model for disordered eating recovery; 2) use of or identification with specific Swift songs to illustrate struggles with eating or body image; 3) continued objectification of Swift's body; and 4) conflicted reaction to a scene in Swift's video for 'Anti-Hero' that depicted the word 'fat' on a scale. Overall, Swift's disclosures of her own eating/body image struggles positively influenced her fans' relationships with their eating behaviors and body image. This analysis illustrates the positive influence celebrities can have while also highlighting the limitations of personal disclosures to impact understanding of systemic issues like anti-fat bias. • Taylor Swift is a positive role model for users. • Swift content positively impacted fans' disordered relationships to food and body. • Swift content can reduce stigma of eating disorders and contribute to recovery. • In contrast, themes of objectification and anti-fat bias were present. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
49. Addressing health workforce shortages as a precursor to attaining universal health coverage: A comparative policy analysis of Nigeria and Ghana.
- Author
-
Chukwu, Otuto Amarauche and Essue, Beverley
- Subjects
- *
MEDICAL personnel , *INCOME , *AUTONOMY (Psychology) , *HEALTH policy , *SOCIOECONOMIC factors , *POPULATION geography , *LABOR demand , *UNIVERSAL healthcare , *QUALITY assurance , *ECONOMIC aspects of diseases , *VOCATIONAL guidance - Abstract
There is a critical shortage of health professionals globally which is affecting the possibility of attaining universal health coverage. Developing countries in sub-Saharan Africa such as Ghana and Nigeria are disproportionately affected and the shortfall in health professionals is envisaged to worsen over the next decade. Countries have responded differently in addressing this shortage. To understand the differing response to the same policy issue in two countries that share similar characteristics in terms of geolocation, socioeconomic indices and disease burden, this paper offers a comparative policy analysis of the two countries using the 3-I framework and punctuated equilibrium theory as comparative policy analysis tools. The analysis identified the ideas, interests, and institutions at play and how they have led to different policy outcomes in both countries. The analysis also shows the interaction between subsystems, policy images and policy venues and how this interaction led to policy change, in the case of Ghana and lag in the case of Nigeria. Our findings show four critical areas in addressing health workforce shortages in both countries – a general approach to addressing the issue, welfare and remuneration, workforce autonomy and career progression, and financing for workforce improvement. For Ghana, there has been significant policy change including implementing strategies for increasing the production of health professionals and addressing remuneration and welfare issues. For Nigeria, there has been seems to be a lag in policy change. While the findings show that Ghana's approach has seemingly put them on a good path toward universal health coverage, applying any lessons should, however, be contextual, considering other country-level and health systems factors that are relevant to addressing health workforce shortages. • African countries bear the disproportionate burden of global health worker shortage. • Different countries in the region have had different policy responses to the issue. • Ghana's response has been strategic, positive, and leading them towards UHC. • Nigeria has witnessed policy stagnancy, encumbered by health systems politics. • To achieve UHC, health worker shortages need strategic context-based policy solutions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
50. Disparity by caste and tribe: Understanding women's empowerment and health outcomes in India.
- Author
-
Mal, Piyasa and Saikia, Nandita
- Subjects
- *
ANEMIA prevention , *STATISTICAL models , *SELF-efficacy , *DELIVERY (Obstetrics) , *AUTONOMY (Psychology) , *MULTIPLE regression analysis , *QUESTIONNAIRES , *HYGIENE , *DECISION making , *RACE , *SOCIAL attitudes , *INTERSECTIONALITY , *WOMEN'S health , *HEALTH equity , *NUTRITION services , *MENSTRUATION , *FACTOR analysis , *SOCIAL classes , *GENDER-based violence - Abstract
Women's empowerment status varies greatly in India according to caste, class, ethnicity and region. This paper aims to investigate the caste/tribe disparity in women's empowerment by region, the main correlates of each domain of empowerment, and the association of women's empowerment with nutritional and health care access outcomes, specifically anaemia, menstrual hygiene, and institutional delivery. Using National Family Health Survey-5 (2019–2021) data, we have created a modified survey-based women's empowerment index (SWPER) using principal component analysis with Oblique varimax rotation. The first four components are interpreted as an attitude to violence, freedom of movement, decision-making power and social independence. Several multivariate regression models were used to understand the factor associated with empowerment and the association of women's empowerment with different health outcomes. The results indicate that women from the forward castes are the most empowered in most domains except decision-making. However, after controlling other background variables, the forward castes women are found to be the most empowered in attitude to violence, whereas Scheduled Castes and Scheduled Tribes women were found to be the most empowered women in decision-making. With regards to social independence, deprived castes women are more empowered than the forward castes women. The likelihood of empowerment in social independence domain increases with increasing wealth. There are wide regional variations in empowerment level between different social groups. Caste/tribe identity plays a significant role in determining health outcomes in India. Among all empowerment domains, social independence emerges as the most significant associated factor with improved health across all caste/tribe groups. The path to women's empowerment in India must recognize the intersectionality of caste/tribe identities, and address regional disparities. Social independence emerges as a critical determinant across all caste/tribe groups for improving health. Measures should be taken to empower women through the underlying factors of social independence. • This study uses SWPER index to assess women empowerment within India's caste/tribe. • Forward caste women are most empowered in all domains except decision-making. • Scheduled Tribe women from Northeast India are most empowered in decision-making. • Social independence empowerment domain is crucial for improving women's health. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.