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2. Comments on Abdo Yazbeck et al. paper: Contributory health insurance
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Hsiao, William C.
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- 2023
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3. Health geography in the time of Covid-19: Selected papers from the 19th International Medical Geography Symposium, Edinburgh, UK, July 2022
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Pearce, Jamie and Shortt, Niamh
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- 2024
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4. Comments on Abdo Yazbeck et al. paper: Contributory health insurance
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William C. Hsiao
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Health (social science) ,History and Philosophy of Science - Published
- 2023
5. Neighbourhood crime and obesity: Longitudinal evidence from Australia
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Awaworyi Churchill, Sefa and Asante, Augustine
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- 2023
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6. Divorce and physical health: A three-level meta-analysis
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Pellón-Elexpuru, Inés, Van Dijk, Rianne, Van der Valk, Inge, Martínez-Pampliega, Ana, Molleda, Asier, and Cormenzana, Susana
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- 2024
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7. Psychotic white men and bipolar black women? Racialized and gendered implications of mental health terminology
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Johnson, Amy L.
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- 2024
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8. Signs and symptoms: Adverse events associated with a sterilization device
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Leiter, Valerie
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- 2024
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9. Convalescing from SAM: The pitfalls and possibilities of caring for vulnerable children in Harare's high-density neighbourhoods.
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Brown, Tim, Datta, Kavita, Fernando, Shamiso, Kabongo, Jacqueline, Prendergast, Andrew J., and Bwakura-Dangarembizi, Mutsa
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ACUTE diseases , *QUALITATIVE research , *AT-risk people , *FOOD security , *SEVERITY of illness index , *SERVICES for caregivers , *DISCHARGE planning , *HUNGER , *CONVALESCENCE , *METROPOLITAN areas , *PSYCHOLOGY of mothers , *MALNUTRITION in children , *PSYCHOLOGY of caregivers , *SHAME , *SOCIAL stigma ,MORTALITY risk factors - Abstract
It is widely recognised that children recovering from Severe Acute Malnutrition (SAM), remain vulnerable to risk of death following hospital discharge due to a wide range of biological and social factors. In light of this heightened risk, we report here on a qualitative study which aimed to better understand the caring contexts that children recovering from SAM were recuperating in within the high density urban and suburban districts of Harare, Zimbabwe. Undertaken with the mothers and other primary caregivers of 10 children enrolled on a large observational cohort study (HOPE-SAM), this paper identifies several dimensions of the women's lives that impede their caring capabilities. Given the country's status as a global 'hunger hotspot' (FAO/WFP, 2022), it should not be surprising that food insecurity featured prominently amongst these. Beyond this, the paper highlights the women's uneven access to informal social protection, experiences that are reflective of what recent scholarship refers to as examples of 'uncaring' or 'noncaring,' as well as their responses to discourses of shame and stigma within the community and hospital settings. The paper concludes by considering what this means for understanding of, and responses to, the bodies encountered in the place of global health research and interventions. • Children recovering from SAM remain at risk of death following hospital discharge. • Caring environments are highly differentiated and shape children's recuperation. • Stigma and shame associated with malnutrition produces an uncaring environment. • Global health interventions must account for bodies in place when designing interventions. [ABSTRACT FROM AUTHOR]
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- 2024
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10. Epidemic in the time of the COVID-19 pandemic: News media framing of the MMR vaccination controversy in Serbia.
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Brujić, Marija
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MEASLES prevention , *MUMPS , *QUALITATIVE research , *MMR vaccines , *CONTENT analysis , *VACCINATION , *MASS media , *RUBELLA , *VACCINATION coverage , *ATTITUDE (Psychology) , *VACCINE hesitancy , *HEALTH promotion , *COVID-19 pandemic , *ANTI-vaccination movement - Abstract
Rising vaccine hesitancy is often related to negative vaccination media coverage. It is generally accepted that the media played a great role in spreading the MMR (measles, mumps, and rubella) childhood vaccination scare first in the UK and then worldwide. During the COVID-19 pandemic, the MMR vaccination rate dropped further in some countries. This paper examines the Serbian news media framing of the MMR vaccination controversy in the period 2019–2023 (periods of declining MMR vaccination rate, rising COVID-19 vaccine hesitancy and the 2023 measles outbreaks). Furthermore, the paper questions whether the COVID-19 pandemic influenced the MMR vaccine narrative in the newspapers. For this reason, quality content analysis of the press in combination with framing approaches (diagnostic–prognostic–motivational framing tasks and responsibility framing) were used. In total, 122 articles dealing with the MMR vaccine and measles epidemics were analysed. According to the press, the most significant cause of the declining MMR rate is anti-vaccination campaigns and conspiracy theories by the "anti-vax lobby" (diagnostic frames). The pandemic was the other significant cause for the intake drop. Achieving herd immunity through vaccine uptake is offered as the best solution (prognostic frames). Finally, MMR vaccination campaigns and penalties for non-compliant parents and vaccine refusers are proposed as calls to action (motivational frames). During this period, the press did not publish any "sensational anti-vax stories". Considering the low MMR vaccine numbers in Serbia in this period, positive media messages did not have a significant influence on improving the vaccination rate. Thus, I suggest that Serbian parents distrust vaccination information presented by the dominant news, including the advice of health experts. • Strong childhood and COVID-19 vaccine hesitancy in Serbia. • The press blames the "anti-vaxx lobby" as the main culprit for low vaccination rate. • The lack of sensational anti-vaccine stories in the press. • Lack of state responsibility for the low MMR vaccine uptake. • Vaccine scepticism as an answer to the state strategies during the pandemic. [ABSTRACT FROM AUTHOR]
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- 2024
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11. A discourse of african traditional healing tendencies with medicinal plants: An ethnobotanical study of the sukuma of Tanzania, 1922–1960s.
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Nchimbi, Hamisi Yunus and Alawi, Mikidadi Hamisi
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BIOLOGICAL evolution , *CROSS-sectional method , *OCCUPATIONAL roles , *QUALITATIVE research , *OCCUPATIONAL achievement , *AFRICAN traditional medicine , *ETHNOLOGY research , *CLIMATE change , *SOCIOECONOMIC factors , *QUANTITATIVE research , *MEDICINAL plants , *PRACTICAL politics , *PSYCHOSOCIAL factors , *HEALERS - Abstract
The use of medicinal plants in traditional healing practices is essential to Tanzanian and African health care. This paper examined the African traditional healing tendencies, particularly the Sukuma tribe of Tanzania, from 1922 to the 1960s. Several types of research challenged traditional healing tendencies' role in the health sector. They claimed that traditional healing has no scientific evidence or methodology and is inefficient. This paper comprises three objectives: the evolution of traditional healing practices among the Sukuma; the traditional healers' conceptualization and adaptation of social, economic, and ecological changes; and the challenges faced by the traditional healers. The study was conducted in Mwamapalala and Mwalushu Wards where Mwamunhu and Mwamigagani represented as sampled villages in Bariadi District. It used both qualitative and quantitative approaches that involved an interpretive, naturalistic approach to its subject matter. Archival materials were also used. The findings reveal that the traditional healers understood the nature of traditional healing in the pre-colonial period. Before colonial domination, all people in the region depended on the traditional medicines obtained from flora and fauna. Their ancestors were diviners, and few were herbalists. The paper concludes that the current healing practice in Tanzania results from the political transition from the colonial period to the independence era. Most people conceptualize that the government had neither effectively accepted the field of traditional medicine nor given the healers any support to sustain their activities. More often, traditional healers have been ignored by the government, and it has been claimed that traditional healing practices instigated violence and, therefore, threaten society. • The article explored the Traditional Healing of the Sukuma Tribe in Tanzania. • It used ethnographic design covering social-economic and environmtal changes. • Traditional healers had knowledge of medicinal herbs since pre-colonial times. • Political change from colonial to independent governments affected modern healing. • The government ignored Traditional healing, viewed it a societal peril and violent. [ABSTRACT FROM AUTHOR]
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- 2024
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12. The role of Contact-Tracing Mobile Apps in pandemic prevention: A multidisciplinary perspective on health beliefs, social, and technological factors.
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Ben Nasr, Imed, Kondrateva, Galina, Khvatova, Tatiana, and Ben Arfi, Wissal
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MOBILE apps , *DIGITAL technology , *HEALTH attitudes , *CONTACT tracing , *DESCRIPTIVE statistics , *MOTIVATION (Psychology) , *MATHEMATICAL models , *ACCEPTANCE & commitment therapy , *THEORY , *SOCIODEMOGRAPHIC factors , *COVID-19 pandemic - Abstract
During the recent COVID-19 pandemic, governments implemented mobile applications for contact tracing as a rapid and effective solution to mitigate the spread of the virus. However, these seemingly straightforward solutions did not achieve their intended objectives. In line with previous research, this paper aims to investigate the factors that influence the acceptance and usage of contact-tracing mobile apps (CTMAs) in the context of disease control. The research model in this paper integrates the Unified Theory of Acceptance and Use of Technology and the Health Belief Model (HBM). The present study involved a diverse sample of 770 French participants of all genders, ages, occupations, and regions. Critical elements from the Health Belief Model, technological factors related to the app, and social factors, including the centrality of religiosity, were assessed using well-established measurement scales. The research's findings demonstrate that several factors, such as perceived benefits and perceived severity, social influence, health motivation, and centrality of religiosity, significantly impact the intention to use a CTMA. These findings suggest that CTMAs hold promise as valuable tools for managing future epidemics. However, addressing challenges, revising implementation strategies, and potentially collaborating with specialized industry partners under regulatory frameworks are crucial. This practical insight can guide policymakers and public health officials in their decision-making. • Contact Tracing Mobile apps introduced swiftly amidst pandemic, aiming to curb virus spread. • Government communication and social influence emerge as key players for the CTMA acceptance. • Contact Tracing Mobile apps hold promise for future epidemic management. • Need to address challenges like conspiracy theories and mistrust. • Suggest revising implementation strategies and regulatory collaboration. [ABSTRACT FROM AUTHOR]
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- 2024
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13. Resistance and the regimen: The microthanatopolitics of Venezuelan antiretroviral scarcity and HIV drug adherence failures.
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Irons, Rebecca
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PATIENT compliance , *ANTIRETROVIRAL agents , *CD4 lymphocyte count , *HIV-positive persons , *HIV infections , *HIGHLY active antiretroviral therapy , *PRACTICAL politics , *DRUGS , *HEALTH promotion , *DRUG resistance , *HUMANITARIANISM - Abstract
The Venezuelan State does not provide adequate antiretroviral therapy (ART) for the population living with HIV, resulting in pharmaceutical scarcity, involuntary treatment pauses, and adherence failures. Such a situation may result in the development of resistance to certain ART drugs, meaning that Venezuelans with HIV may have their treatment options reduced for the remainder of their lives. It can take a number of years for a person to acquire late-stage HIV/AIDS and for death to occur, and so I focus on the microbiological death of CD4 cells over time – a concept I call 'microthanatopolitics'. In this paper I argue that the microthanatopolitics of ART scarcity deprives those living with HIV of future treatment options, encourages resistance to ART drugs, and ultimately may contribute towards ill health long after treatment availability changes in Venezuela. To explore this in depth, the paper draws upon 6 interviews with Venezuelan HIV activists in Venezuela (2024), supported by 40 testimonies from Venezuelan migrants living with HIV in Colombia (2021–2024), with and without known ART resistance. It will be concluded that not only is this an issue for those currently living in Venezuela, but also for migrants and the global HIV response who will suffer from the promotion and circulation of ART-resistant viral strains in the long run. This microthanatopolitics is influenced by both the current Venezuela political system as well as humanitarian aid from the Global North; an important consideration of coloniality in post-colonial Latin America. • Venezuelan politics results in drug resistance for people living with HIV. • Venezuelans living with HIV face an uncertain future of limited treatment options. • Microthanatopolitics is being enacted towards those with HIV, through ART supply. [ABSTRACT FROM AUTHOR]
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- 2024
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14. Maneuvering between cultures: The reception of hospice care in the Chinese medical community.
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Mei, Xiao and Tu, Jiong
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HEALTH attitudes , *CULTURE , *FIELDWORK (Educational method) , *ATTITUDES of medical personnel , *CONCEPTUAL structures , *HEALTH care industry , *HEALTH facilities , *HOSPICE care - Abstract
The expansion of hospice care worldwide has been received differently by medical communities in different societies. Nonetheless, existing efforts to explain how culture affects the reception of hospice care are inadequate. On the basis of fieldwork conducted in Chinese medical institutions and care facilities between 2017 and 2022, this paper draws on a theoretical framework that distinguishes between declarative culture and nondeclarative culture at the personal level to explain the discrepancies between healthcare professionals' beliefs regarding the value of hospice care and their daily healthcare practice. Moreover, this paper uses the concept of cultural scaffolding to demonstrate that the culture of hospice care and the culture of medical institutions are not separate, independent entities but rather evolve together to produce new and local forms of hospice care in the Chinese context. This analysis helps clarify the obstacles and opportunities associated with hospice care in China and contributes to existing research on the reception of hospice care worldwide. • Explains discrepancies between healthcare professionals' beliefs about hospice and daily practice. • Theoretical framework that distinguishes between declarative and nondeclarative culture. • Localized hospice care emerges as culture of hospice care and culture of medical institutions interact. • Clarifies the obstacles and opportunities faced by hospice care in China. • Contributes to existing research on the reception of hospice care worldwide. [ABSTRACT FROM AUTHOR]
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- 2024
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15. An 'all-world ageing' perspective and its wider ethics of care: An empirical illustration.
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Andrews, Gavin J. and Read, Megan
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ATTITUDES toward aging , *ENVIRONMENTAL health , *AESTHETICS , *NATURE , *GERIATRICS , *EMPIRICAL research , *INTERVIEWING , *HUMANITY , *HUMAN-animal relationships , *PLANTS , *THEMATIC analysis , *RESEARCH ethics , *LONGEVITY - Abstract
Recent commentaries have proposed 'all-world ageing' as a new perspective for social scientific ageing research. It is based on the theoretical observation that the ageing process involves all forms of entities co-ageing relationally with each other, and with their surrounds. Its disciplinary implications hence being that what we categorize as ageing in social scientific ageing research should not be limited to human bodies, and that ageing non-humans should be brought under its purview. To empirically illustrate these theoretical and disciplinary assertions, and explore their implications, the current paper reports a study of how people co-age with non-humans they interact with in their daily lives. Sixteen people aged 66–90 were interviewed, ten of them also being observed at those times. The findings show some intricate and diverse relations that involve their co-ageing with varied biological entities and nature surrounds (such as plants, domestic animals and green spaces) and varied non-biological entities and non-nature surrounds (such as materials, technologies, accommodations, organizations and infrastructures). Meanwhile, important crosscutting themes – including lifespan, function and aesthetics – emerge as objectives of care, valued and exercised in broad terms. This empirical reconnaissance shows the potential for an all-world ageing perspective to engage diverse societal challenges and inform diverse areas of practice as part of a wider ethics of care. From it, a number of important considerations and undertakings arise for future scholarship. • The paper empirically road tests an all-world ageing perspective. • The paper posits that ageing research should not be limited to ageing human bodies. • Older people are found to co-age with biological and nonbiological entities/surrounds. • Lifespan, function and aesthetics are care objectives, valued and exercised broadly. • Theoretical and empirical considerations are highlighted for future scholarship. [ABSTRACT FROM AUTHOR]
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- 2024
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16. Assessing the accuracy of self-reported health expenditure data: Evidence from two public surveys in China.
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Hao, Zhuang, Zhang, Xudong, and Wang, Yuze
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SELF-evaluation , *HOSPITAL care , *INTERVIEWING , *SIMULATION methods in education , *SURVEYS , *MEASUREMENT errors , *DATA quality , *MEDICAL care costs - Abstract
This paper utilizes Benford's law, the distribution that the first significant digit of numbers in certain datasets should follow, to assess the accuracy of self-reported health expenditure data known for measurement errors. We provide both simulation and real data evidence supporting the validity assumption that genuine health expenditure data conform to Benford's law. We then conduct a Benford analysis of health expenditure variables from two widely utilized public datasets, the China Health and Nutrition Survey and the China Family Panel Studies. Our findings show that health expenditure data in both datasets exhibit inconsistencies with Benford's law, with the former dataset tending to be less prone to reporting errors. These results remain robust while accounting for variations in survey design, recall periods, and sample sizes. Moreover, we demonstrate that data accuracy improves with a shorter time interval between hospitalization and interviews, when the data is self-reported as opposed to proxy responses, and at the household level. We find no compelling evidence that enumerators' assessments of respondents' credibility or urgency to end interviews are indicative of data accuracy. This paper contributes to literature by introducing an easy-to-implement analytical framework for scrutinizing and comparing the reporting accuracy of health expenditure data. • Applied Benford's Law to assess health expenditure data accuracy. • Detected inconsistencies with Benford's Law in two widely used datasets. • Found inpatient expenditure data to be more accurate than total expenditure. • Emphasized caution against relying on enumerators' opinions to indicate data accuracy. [ABSTRACT FROM AUTHOR]
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- 2024
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17. What does the MAIHDA method explain?
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Wilkes, Rima and Karimi, Aryan
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- 2024
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18. A bridge too far? Social network structure as a determinant of depression in later life
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Qu, Tianyao
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- 2024
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19. The impact of adult children living at home on the well-being of Spanish parents: Evidence from panel data
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Gil-Moltó, Maria José and Hole, Arne Risa
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- 2024
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20. Understanding the health decline of Americans in boomers to millennials
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Zheng, Hui, Dirlam, Jonathan, Choi, Yoonyoung, and George, Linda
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- 2023
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21. Trans depathologisation and gender identity disorder in Japan: A critical discourse analysis of medical literature, 2010–2022.
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Konishi, Yuumi
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HEALTH services accessibility , *GENDER identity , *TRANSGENDER people , *MENTAL illness , *SOCIAL factors , *DECISION making , *DIAGNOSIS , *DISCOURSE analysis , *GENDER dysphoria , *PSYCHOSOCIAL factors - Abstract
Since the depathologisation movement in 2007 to challenge the pathologisation of trans identities in Western psychiatry, significant developments have occurred, including revisions to Standards of Care and diagnostic criteria such as ICD-11's gender incongruence and DSM-5's gender dysphoria, acknowledging gender diversity as an expected part of human development. This paper argues that Japanese medical models reflect global issues but also have unique aspects shaped by cultural and linguistic nuances. Using critical discourse analysis, this paper examines how depathologisation discourses are perceived in the Japanese medical community, focusing on the term seidouitsusei-syōgai (gender identity disorder), presenting three ways in which seidouitsusei-syōgai is used: psychiatric disorder, syōgai / sikkan (impairment/disability/disorder), and diagnostic category. These uses are influenced by legal and social reforms, healthcare access and alignment with international classifications, while the medical profession's authority remains unexamined. Reflecting the structural challenges of diagnostic models in trans medicine, the interpretation of seidouitsusei-syōgai differs from the English phrase 'gender identity disorder' due to the specific connotations of syōgai in the Japanese context. By examining Japan's approach to depathologisation and medicalisation, this paper enriches the understanding of trans medicine and the impact of depathologisation discourse in Japan. • Japanese medical views on trans depathologisation through critical discourse analysis. • Focusing interpretations of seidouitsusei-syōgai(=gender identity disorder). • 3 usages, psychiatric, syōgai/sikkan and diagnostic, are influenced by social factors. • The authoritative role of the medical profession remains unexamined. • Japan sharing structural problems of diagnostic model but has specific connotations. [ABSTRACT FROM AUTHOR]
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- 2024
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22. Therapeutic management in the low-wage workplace.
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Ruppel, Emily H.
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NONPROFIT organizations , *WORK environment , *DISEASE management , *REHABILITATION of people with mental illness , *INTERVIEWING , *MINDFULNESS , *WAGES , *ETHNOLOGY , *FIELD research , *SOCIOLOGY , *PEOPLE with disabilities - Abstract
Medicalization represents an increasingly significant form of social control. Emergent evidence suggests that workplace managers take up medicalized practices and discourses to produce a compliant labor force, but this phenomenon has received limited sociological attention. This paper extends prior theories of medicalization to investigate therapeutic management in the low-wage workplace. I draw upon eight months of ethnographic fieldwork in Disability Works, a nonprofit job training program for people with mental illnesses, and interviews with other providers and advocates within this field. Disability Works harnesses therapy, psychiatry, and "softer" therapeutic practices such as mindfulness meditation, sleep hygiene, and positive affirmations to produce its workforce. This paper identifies two dimensions of therapeutic management: (1) it aims to inculcate work norms at the level of client-workers' embodied dispositions, and (2) it aims to transform structural problems into individual ones. Findings illuminate therapeutic management as an emergent workplace regime and may guide future research on its effects. • "Therapeutic management" is an emergent managerial style. • Ethnographic fieldwork and interviews illustrate practices of therapeutic management. • This style draws on therapy, psychiatry, and pseudo-therapeutic practices. • Therapeutic management aims to inculcate work norms at the dispositional level. • Therapeutic management aims to transform structural problems into individual ones. [ABSTRACT FROM AUTHOR]
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- 2024
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23. Rank, stress, and risk: A conjecture.
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Stark, Oded and Wlodarczyk, Julia
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RISK-taking behavior , *HYDROCORTISONE , *SOCIAL perception , *SOCIAL status , *PSYCHOLOGICAL stress , *SOCIAL skills , *SOCIAL classes - Abstract
A perception at the core of studies that consider the link between social rank and stress (typically measured by the so-called stress hormone cortisol) is that the link is direct. Examples of such studies are Bartolomucci (2007) , Beery and Kaufer (2015) , and Koolhaas et al. (2017). A recent and stark representation of this body of work is a study by Smith-Osborne et al. (2023) , who state that "social hierarchies directly influence stress status" (Smith-Osborne et al. p. 1537, italics added). In the present paper, we reflect on this "direct" perspective. We conjecture that the link between social rank and stress involves an intervening variable: an indirect relationship arises when the loss of rank triggers a behavioral response in the form of risk taking aimed at regaining rank, and it is the engagement in risk-taking behavior that is the cause of an elevated level of cortisol. Smith-Osborne et al., as well as others whose papers are cited by Smith-Osborne et al. and who, like Creel (2001) and Avitsur et al. (2006) , conducted comprehensive research on the association between rank (social standing) and stress, do not refer to risk taking at all. We present four strands of research that lend support to our conjecture: evidence that in response to losing rank, individuals are stressed; evidence that in response to losing rank, individuals resort to risk-taking behavior aimed at regaining their lost rank; evidence that there exists a link between engagement in risky activities or exposure to risk and elevated levels of cortisol; and an analytical perspective on incidence and intensity, namely a perspective that shows how the willingness to take risks responds to a change in rank, specifically, how a loss of rank triggers a greater willingness to take risks and how this trigger is stronger for individuals whose rank is higher. • The link between social rank and stress involves an intervening variable. • Loss of rank triggers a behavioral response in the form of risk taking. • This response is aimed at regaining rank. • Risk-taking behavior is the cause of an elevated level of cortisol. [ABSTRACT FROM AUTHOR]
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- 2024
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24. 'Kindling the fire' of NHS patient data exploitations: The care.data controversy in news media discourses.
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Vezyridis, Paraskevas
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NATIONAL health services , *SOCIAL media , *SOCIAL security , *LEADERSHIP , *PRIMARY health care , *COMMITMENT (Psychology) - Abstract
This paper explores news media discourse about care.data: an NHS England programme of work for amalgamating and sharing patient data from primary care for planning and research. It was scrapped in 2016 after three years of public outcry, delays and around 1.5 million opt-outs. I examine UK news media coverage of this programme through the 'fire object' metaphor, focusing upon the visions of purpose and value it inspired, the abrupt discontinuities, juxtapositions and transformations it performed, and the matters of concern that went unheeded. Findings suggest that, in care.data's pursuit of a societal consensus on NHS patient data exploitations, various visions for new and fluid data flows brought to presence narratives of transforming the NHS, saving lives, and growing the economy. Other realities and concerns that mattered for certain stakeholders, such as data ownership and commercialisation, public engagement and informed consent, commitment and leadership, operational capabilities, and NHS privatisation agendas, remained absent or unsettled. False dichotomies kept the controversy alive, sealing its fate. I conclude by arguing that such failed programmes can turn into phantom-like objects , haunting future patient data schemes of similar aspirations. The paper highlights the role news media can have in understanding such energetic public controversies. • Care.data was an NHS England's programme for extracting and analysing primary care data. • Care.data was scrapped in 2016 after public outcries and more than 1.5 million opt-outs. • I analyse UK news media to examine discourses around care.data's discontinuities and shifts. • Ethical concerns and design flaws empowered multiple visions to develop and compete. • Care.data arrived at an inevitable antagonistic deadlock that was hard to resolve. [ABSTRACT FROM AUTHOR]
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- 2024
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25. Multi-group data versus dual-side theory: On race contrasts and police-caused homicides
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Wilkes, Rima and Karimi, Aryan
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- 2023
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26. Stigma power in practice: Exploring the contribution of Bourdieu's theory to stigma, discrimination and health research.
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Guise, Andy
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MEDICAL care research , *HEALTH attitudes , *PROFESSIONAL practice , *VIOLENCE , *SCHOLARLY method , *SOCIAL services , *SOCIAL status , *SOCIAL skills , *CONCEPTUAL structures , *DISCRIMINATION (Sociology) , *HEALTH promotion , *SOCIAL stigma - Abstract
Stigma and discrimination are increasingly understood as shaping health, and in turn conceptualised as social processes shaped by power and structural inequities. A challenge to analysis and implementing interventions is developing theory that can integrate analysis of structure, agency and power. One theoretical framework already promoted by prominent scholars as supporting this need is Bourdieu's social practice theory. This paper explores the application to date of Bourdieu's theory on stigma, discrimination and health. The paper describes how existing health literature has used concepts of symbolic violence, fields, capitals and habitus to develop insight into stigma power. The discussion explores how this theoretical framework is though underutilised and there has been little consideration of new programmatic approaches based on this theory. Directions for future research include the need for integrated approaches to analysis, especially using habitus to explore stigma power, and addressing processes of change. Directions for conceptualising interventions address how a mismatch of field and habitus could foster change and then the role for prophets in fostering symbolic revolutions. All these potential directions must in turn be integrated within the vast scholarship on stigma. In conclusion, further application and development of Bourdieu's social practice theory could help address the theoretical challenges facing the field of stigma, discrimination and health research. • Bourdieu's theory has been widely promoted to support stigma, discrimination and health research. • Exploration of existing literature shows wide application and development. • Aspects of the theory, notably habitus, are little used. • The theory is little used in interventions; directions for future development are described. [ABSTRACT FROM AUTHOR]
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- 2024
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27. Using simulation modelling to transform hospital planning and management to address health inequalities.
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Demir, Eren, Yakutcan, Usame, and Page, Stephen
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MEDICAL care , *DECISION making , *PROBLEM solving , *SIMULATION methods in education , *HEALTH equity , *MANAGEMENT ,HOSPITAL planning - Abstract
Health inequalities are a perennial concern for policymakers and in service delivery to ensure fair and equitable access and outcomes. As health inequalities are socially influenced by employment, income, and education, this impacts healthcare services among socio-economically disadvantaged groups, making it a pertinent area for investigation in seeking to promote equitable access. Researchers widely acknowledge that health equity is a multi-faceted problem requiring approaches to understand the complexity and interconnections in hospital planning as a precursor to healthcare delivery. Operations research offers the potential to develop analytical models and frameworks to aid in complex decision-making that has both a strategic and operational function in problem-solving. This paper develops a simulation-based modelling framework (SimulEQUITY) to model the complexities in addressing health inequalities at a hospital level. The model encompasses an entire hospital operation (including inpatient, outpatient, and emergency department services) using the discrete-event simulation method to simulate the behaviour and performance of real-world systems, processes, or organisations. The paper makes a sustained contribution to knowledge by challenging the existing population-level planning approaches in healthcare that often overlook individual patient needs, especially within disadvantaged groups. By holistically modelling an entire hospital, socio-economic variations in patients' pathways are developed by incorporating individual patient attributes and variables. This innovative framework facilitates the exploration of diverse scenarios, from processes to resources and environmental factors, enabling key decision-makers to evaluate what intervention strategies to adopt as well as the likely scenarios for future patterns of healthcare inequality. The paper outlines the decision-support toolkit developed and the practical application of the SimulEQUITY model through to implementation within a hospital in the UK. This moves hospital management and strategic planning to a more dynamic position where a software-based approach, incorporating complexity, is implicit in the modelling rather than simplification and generalisation arising from the use of population-based models. [ABSTRACT FROM AUTHOR]
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- 2024
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28. Smoothness as a quality of care: An STS approach to transnational healthcare mediation.
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Hartmann, Sarah
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MEDICAL quality control , *HUMAN services programs , *SCIENCE , *MEDICAL tourism , *TRANSITIONAL care , *COMMUNICATION , *TECHNOLOGY , *FACTOR analysis - Abstract
Medical travel and transnational healthcare involve various difficulties such as the distance and disconnect between patients and healthcare providers, language barriers or logistical challenges of moving ill bodies across space. Medical travel facilitation steps in with some sort of brokerage service that contributes to overcoming or managing these difficulties and, as this paper suggests, acts to create a quality of 'smoothness'. By unpacking three salient facilitation practices, namely connecting, communicating, and coordinating, this paper conceptualises the empirically derived category of 'smoothness'. This as a disposition, outcome, and spatio-temporal manoeuvre of medical travel facilitation. Based on the way in which such practices of mediation act to create smoothness, namely in an attentive, persistent, and collective tinkering manner, this paper suggests that some practices of medical travel facilitation are productively thought not just about setting up the possibility of care transnationally, but that they are key forms of care in itself. Based on these findings, smoothness is considered to be a central but also contested quality of medical travel facilitation and brokerage in a broader sense, but as proposed here, also for care. This conclusion potentially has implications not just for the study of transnational healthcare and mediation activities, but also that of care and transnational mobilities more generally. • Medical travel facilitation creates smoothness in mediating transnational healthcare. • Conceptualising smoothness as a disposition, outcome and spatio-temporal manoeuvre. • Brokerage and an STS-take on medical travel facilitation and care. • Smoothness as a quality of medical travel facilitation, brokerage and possibly care. • Medical travel facilitation between Oman and India. [ABSTRACT FROM AUTHOR]
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- 2024
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29. Follow the citations: Tracing pathways of "race as biology" assumptions in medical algorithms in eGFR and spirometry.
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Fuentes, Agustín, Espinoza, Ulises J., and Cobbs, Virginia
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SPIROMETRY , *AFRICAN Americans , *CITATION analysis , *WHITE people , *RACE , *MEDICAL research , *EPIDERMAL growth factor receptors , *ALGORITHMS , *FRAUD in science - Abstract
Despite overwhelming evidence to the contrary, the concept of 'race' as a biological unit continues to persist in various scientific disciplines, notably in the field of medicine. This paper explores the persistence of 'race as biology' in medical research via examining select citational practices that have perpetuated this problematic concept. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. By analyzing citation threads and historical patterns, we aim to shed light on the creation and perpetuation of false scientific truths and their impact on medical research, training, and practice. We focus on two prominent examples, eGFR and Spirometry, and trace key articles' citational histories, highlighting the flawed evidence in support of racial corrections in medical assessments. The eGFR equation incorporates 'race' as a factor based on the erroneous belief that Black individuals have higher muscle mass than white individuals. Our analysis reveals that key cited sources for this belief lack robust and well-developed datasets. Similarly, Spirometry measurements incorporate racial correction factors, relying on questionable evidence dating back to the Civil War era. Citations serve as a cornerstone in scientific literature, signifying reliability and expert affirmation. They play a crucial role in shaping theoretical positions and validating data and assumed knowledge. Evaluating citation threads and key articles consistently referenced over time can reveal how falsehoods and erroneous assertions are constructed and maintained in scientific fields. This study underscores the need for critical examination of citational practices in medical research and urges a shift toward a more cautious approach when citing sources that support 'race as biology.' The paper calls for a reevaluation of pedagogical approaches and assigned readings in medical education to prioritize an anti-racist perspective in future research endeavors. • Algorithms in contemporary medicine often involve "race" as a biological variable. • We offer a review of the citation threads in eGFR and Spirometry algorithms. • Support for race as variable relies on faulty, weak, and unsupportive citations. • Medical training must attend to and use caution around "truths" about racialized bodies. [ABSTRACT FROM AUTHOR]
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- 2024
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30. Health emergencies, science contrarianism and populism: A scoping review.
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Schenkel, Marina
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GOVERNMENT policy , *PUBLIC opinion , *CITIZENSHIP , *POPULATION geography , *SYSTEMATIC reviews , *LITERATURE reviews , *RESEARCH methodology , *PRACTICAL politics , *PUBLIC health , *COVID-19 pandemic - Abstract
Populism has emerged as a central explanation employed by both media outlets and scholars for the mishandling of the COVID-19 crisis. Nonetheless, the relationship between public health and populism extends before and beyond the pandemic. This paper offers a comprehensive overview of existing evidence and theoretical conceptualisations on the intersection of populism, health emergencies, and contrarian scientific positions, drawing from a diverse range of disciplines. I conducted a scoping review of 283 original studies, analysing their analytical framework, geographic focuses, and methodological approaches. Employing quantitative text analysis, I summarised the research field into 18 common topics, organised into five coherent categories: citizen's perspective, political elites, political communication, pandemic consequences, and non-COVID-related issues. While the scholarly interest in this area has surged since the onset of the pandemic, it has predominantly concentrated on specific cases, such as Brazil and the US, often conflating different policy types. The evidence summary elucidates that populism assumes varying roles within distinct contexts, and there is no linear relationship between political populism and specific approaches to health crises and science. I further compare definitions of populism within the context of health and scientific positions. I propose that future research should employ a policy typology for health emergency responses, assessing political positions based on policy arenas. This paper contributes to the understanding of the complex interplay between political populism, contrarian scientific perspectives, and public health. • Descriptive summary of multiple disciplines and theoretical frameworks. • Research interest in this theme surged after the COVID-19 pandemic. • Geographic focus and generalisation of specific cases such as Brazil and the US. • Lack of linear and universal association between populism and health emergencies. • Adoption of a common policy typology to guide future research. [ABSTRACT FROM AUTHOR]
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- 2024
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31. Explaining depression in the language of burnout: Normative reasons for depression in place of deterministic causes.
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Shimizu, Hiroto
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DIAGNOSIS of mental depression , *PSYCHOLOGICAL burnout , *WORK environment , *CULTURE , *SOCIAL norms , *MENTAL depression , *EMPLOYEES' workload , *PSYCHOSOCIAL factors - Abstract
In recent years, there has been renewed interest in diversifying the understanding and discussion about the causes of depression to move beyond biomedical determinism—a view that biomedical factors are the ultimate cause of an individual's depression. There is increasing emphasis on diversity in how people seek to articulate the causes of depression to incorporate non-biomedical dimensions. Furthermore, the biomedical understanding of depression has been increasingly questioned due especially to emerging limitations in pharmacotherapy. These shifts encourage social analyses that explore what narratives as to the causes of depression are constructed and presented with relative plausibility in different contexts and why and how. By analysing published memoirs of individuals diagnosed with depression in Japan, this study aims to provide fresh insights into narratives around the causes of depression. It illustrates how memoirs portray depression and its perceived causes in characteristic ways in a nation that adopts Western diagnostic systems, biomedical therapeutics and other relevant technologies. I will show that 'burnout' is the dominant theme in the Japanese data, diverging from the predominantly biomedical narrative in Western societies. This burnout narrative depicts depression as the somewhat unfortunate but unsurprising result of overwork arising from individual active adaptations to structural features of the Japanese work culture. I argue that reasons, rather than causes, articulate the making of the burnout narrative by revealing the interplay between the structural and individual and ultimately enrich the understanding of depression. The paper concludes with a call for exploring the shifting relationship between illness and normalcy that the burnout narrative implies. I suggest that further studies could explore how the boundaries between normalcy and illness are enacted and re-enacted and to what avail through public discourse and through shifting diagnostic schemata in the context of different national norms and practices. • There are international differences in how depression is experienced and represented. • Biomedical explanations of depression are frequently documented in the literature. • This paper shows ways in which depression is explained in the language of burnout. • Burnout emphasises the interaction between the individual and the structural. • Distinguishing reasons from causes helps better understand burnout and depression. [ABSTRACT FROM AUTHOR]
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- 2024
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32. "If I knew you were a travesti, I wouldn't have touched you":Iatrogenic violence and trans necropolitics in Turkey.
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Atuk, Tankut
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IMMUNIZATION , *VIOLENCE , *MEDICAL care , *HIV-positive persons , *PRACTICAL politics - Abstract
Since 2007, the number of HIV diagnoses in Turkey has increased more than 600% and the AIDS-related deaths have more than doubled. Despite trans community being severely impacted by the growing epidemic, there exists a conspicuous absence of epidemiological data regarding the HIV burden of trans people. This paper examines the medical experiences of HIV-positive trans women who engage in sex work and the harmful violence they encounter at the hands of health providers. The paper emphasizes the urgent need for comprehensive interventions to address the intersecting issues of HIV risk, structural violence, and discrimination faced by HIV-positive trans sex workers, one of the most marginalized communities worldwide. To interpret better how transphobia and HIVphobia become deeply entangled in Turkish medical settings, the paper draws from the concepts of iatrogenesis , necropolitics, and immunity. By bringing together these conceptual tools with long-term ethnographic data and in-depth interviews, this paper demonstrates that trans women are treated by healthcare providers as though they are always-already infectious. The paper contends that aggressive immunitarian boundaries, erected between healthcare personnel and individuals deemed "contagious others," are central to doctors' denial of medical care and reluctance to touch, examine, or even admit trans patients, particularly when they are HIV-positive. • Social immunization lies at the core of doctors' refusal of care for trans patients. • Social immunization is central to the operation of necropolitics and iatrogenesis. • Doctors establish violent boundaries in an attempt to "protect" themselves. • Trans women are assumed to be inherently contagious by healthcare providers. • Trans communities are slowly debilitated through denial of healthcare services. [ABSTRACT FROM AUTHOR]
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- 2024
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33. Vigilance in infectious disease emergencies: Expanding the concept.
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Williams, Jane, Mayes, Christopher, Flint-Peterson, Eamon, and Degeling, Chris
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PREVENTION of infectious disease transmission , *PREVENTION of communicable diseases , *PUBLIC health surveillance , *MEDICAL emergencies , *COVID-19 pandemic , *CONCEPTS - Abstract
In their 2010 book, Lorna Weir and Eric Mykhalovskiy conceptualised the role of vigilance in unknown and emerging infectious disease threats. Theirs is a macro-level account which draws on empirical data to describe vigilance as a set of technical and political arrangements that govern collection, analysis, interpretation and communication of data as it pertains to unknown threats. In this paper we expand their work to detail a conceptual analysis of the role of vigilance at the micro-level during periods of high infectious disease threat. Our data are daily press conferences and associated non-discursive tools in New South Wales (NSW), Australia during times of heightened COVID-19 risk. This paper is a conceptual analysis that draws on theories of vigilance and related concepts to show how a key aspect of vigilance is making previously unseen threats visible or present. Communications formulated and encouraged three types of vigilance as a set of governing relations: institutional or authority-based; individual outward-facing; and individual inward-facing. We also describe the relationship between vigilance and related concepts that are used in response to anticipated public threats. Authority based vigilance involved contact tracing and policing of movement and behaviours. In individual outward facing vigilance people were asked to be alert to, analyse, and react to risk in their immediate environment. Inward facing vigilance required people to gather and react to information about their own behaviours and within their own bodies. There was a relationship between different types of vigilance; as risk increased and authority-based vigilance was less successful in containing the spread of infection, individual vigilance had a stronger role to play. This extension of vigilance at the micro-level sees some of the same unintended consequences as Weir and Mykhalovskiy describe at the global level, particularly in how burdens are inequitably distributed and experienced. • Citizens became an arm of vigilance apparatus during COVID-19 pandemic in Australia. • Vigilance was authority-based; individual outward facing; individual inward facing. • Disadvantaged populations carried higher vigilance burden. • Earlier conceptions of vigilance in infectious disease emergencies are extended. [ABSTRACT FROM AUTHOR]
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- 2024
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34. 'My doctor just called me a good girl and I died a bit inside': From everyday misogyny to obstetric violence in UK fertility and maternity services.
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von Benzon, Nadia, Hickman-Dunne, Jo, and Whittle, Rebecca
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- *
MATERNAL health services , *CHILDBIRTH , *VIOLENCE , *FERTILITY - Abstract
This paper begins with the common phrase 'good girl' as a lens through which to explore the insidious nature of patronising and paternalistic language on women's agency in obstetric care. Here we see how misogynistic language is both violence against women in its own right, and serves to create a context in which more extreme obstetric violence can be precipitated. Based on thematic analysis of discussion on Mumsnet, and on contributions to a research-focused Facebook group, this paper illustrates the complexity of recognising and refuting misogyny as a female patient as well as the damage that can occur from a cultural context in which this language is normalised. Here, words both boast a materiality through the environments they reify, and become transient and slippery, with semiotic uncertainty. • Use of misogynistic language in obstetric and fertility care is widespread. • This language may be difficult to identify and address. • Language that positions women as incompetent creates a context in which violence may occur during childbirth. • Experiences of obstetric violence are common even in the UK, amongst well-educated women. [ABSTRACT FROM AUTHOR]
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- 2024
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35. A matter of (good) faith? Understanding the interplay of power and the moral agency of managers in healthcare service reconfiguration.
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Smith, Chris Q., Williams, Iestyn, and Leggett, Will
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ETHICS , *CONFIDENCE , *HEALTH facilities , *MEDICAL care , *INTERVIEWING , *NATIONAL health services , *QUALITATIVE research , *COMMITMENT (Psychology) , *PATIENT care , *POWER (Social sciences) , *TRUST - Abstract
Previous studies of service reconfiguration in healthcare have explored the influence of power on processes and outcomes. However, in these accounts the moral agency of managers is often underemphasised. This paper draws on the theoretical tools provided by the sociology of morality to help deepen understanding of the interaction between power and moral agency in service reconfiguration in healthcare. It presents results from a qualitative study of a pan-organisational service reconfiguration in the NHS in England, involving nineteen in-depth interviews with those leading the change and the analysis of twelve programme documents. We combine concepts of the moral background and epistemic governance to interpret participants' conviction that the service change was 'the right thing to do'. The paper shows how epistemic work carried out by service change regulations shaped the moral background within which participants worked. This, in turn, channelled their moral agency – specifically their commitment to patient care – in a way that also reflected central priorities. The paper adds to sociological understandings of service reconfiguration through considering the interaction of structure, agency and power, while also developing the concept of the moral background to show how power relations can influence moral beliefs. • Managers can show strong faith in uncertain evidence for healthcare service change. • The moral background explains this in a way which considers power and moral agency. • Confidence in evidence depends on background assumption of future as predictable. • Confidence also depends on premise that finances are not open to moral evaluation. • Service change regulations carry out epistemic work on background assumptions. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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36. Pandemic influenza and gender imbalance: Mortality selection before births
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Ogasawara, Kota
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- 2022
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37. Building patient trust in health systems: A qualitative study of facework in the context of the Aboriginal and Torres Strait Islander Health Worker role in Queensland, Australia
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Topp, Stephanie M., Tully, Josslyn, Cummins, Rachel, Graham, Veronica, Yashadhana, Aryati, Elliott, Lana, and Taylor, Sean
- Published
- 2022
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38. Household overcrowding trajectories and mental well-being
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Ruiz-Tagle, Jaime and Urria, Ignacio
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- 2022
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39. Factors associated with post-traumatic growth in response to the COVID-19 pandemic: Results from a national sample of U.S. military veterans
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Na, Peter J., Tsai, Jack, Southwick, Steven M., and Pietrzak, Robert H.
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- 2021
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40. Ethical, legal, and social implications (ELSI) of virtual agents and virtual reality in healthcare.
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Rudschies, Catharina and Schneider, Ingrid
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HEALTH services accessibility , *VIRTUAL reality , *PHYSICIAN-patient relations , *ARTIFICIAL intelligence , *LEGAL liability , *DATA security , *SOCIAL case work - Abstract
Virtual agents (VAs) and immersive virtual reality (VR) applications broaden the opportunities for accessing healthcare by transposing certain processes from the analogue world into a virtual realm. While these innovations offer a number of advantages including improved access for individuals in diverse geographic locations and novel therapeutic options, their implementation raises significant ethical, social, and legal implications. Key considerations pertain to the doctor-patient relationship, privacy and data protection, justice, fairness, and equal access as well as to issues of accountability, liability, and safety. This paper conducts a comprehensive review of the existing literature to analyse the ethical, social, and legal ramifications of employing VAs and VR applications in healthcare. It examines the recommended strategies to mitigate potential adverse effects and addresses current research gaps in this domain. • Virtual agents (VA) and immersive virtual reality (VR) are explored in the healthcare sector. • The paper investigates their ethical, legal, and social implications (ELSI) on basis of a literature review. • Key considerations pertain to the doctor-patient relationship, data protection, equal access, liability, and safety. • The paper gives an overview of the recommendations made to mitigate risks. [ABSTRACT FROM AUTHOR]
- Published
- 2024
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41. A realist synthesis to develop an explanatory model of how policy instruments impact child and maternal health outcomes.
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Barnish, Maxwell S., Tan, Si Ying, Robinson, Sophie, Taeihagh, Araz, and Melendez-Torres, G.J.
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EVALUATION of medical care , *HEALTH policy , *MATERNAL-child health services , *POLICY analysis , *MATHEMATICAL models , *SYSTEMATIC reviews , *MEDICAL care , *HUMAN services programs , *CONCEPTUAL structures , *CHILD health services , *THEORY , *POLICY sciences - Abstract
Child and maternal health, a key marker of overall health system performance, is a policy priority area by the World Health Organization and the United Nations, including the Sustainable Development Goals. Previous realist work has linked child and maternal health outcomes to globalization, political tradition, and the welfare state. It is important to explore the role of other key policy-related factors. This paper presents a realist synthesis, categorising policy instruments according to the established NATO model, to develop an explanatory model of how policy instruments impact child and maternal health outcomes. A systematic literature search was conducted to identify studies assessing the relationships between policy instruments and child and maternal health outcomes. Data were analysed using a realist framework. The first stage of the realist analysis process was to generate micro-theoretical initial programme theories for use in the theory adjudication process. Proposed theories were then adjudicated iteratively to produce a set of final programme theories. From a total of 43,415 unique records, 632 records proceeded to full-text screening and 138 papers were included in the review. Evidence from 132 studies was available to address this research question. Studies were published from 1995 to 2021; 76% assessed a single country, and 81% analysed data at the ecological level. Eighty-eight initial candidate programme theories were generated. Following theory adjudication, five final programme theories were supported. According to the NATO model, these were related to treasure, organisation, authority-treasure, and treasure-organisation instrument types. This paper presents a realist synthesis to develop an explanatory model of how policy instruments impact child and maternal health outcomes from a large, systematically identified international body of evidence. Five final programme theories were supported, showing how policy instruments play an important yet context-dependent role in influencing child and maternal health outcomes. • A realist synthesis was conducted. • Assessed relationship between policy instruments and child and maternal health. • Synthesis informed by 132 unique studies. • Five final programme theories were supported. • Impact of policy instruments was context-dependent. [ABSTRACT FROM AUTHOR]
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- 2023
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42. Participation through the lens of care: Situated accountabilities in the codesign of a digital health platform for HIV care.
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Marent, Benjamin, Henwood, Flis, and Darking, Mary
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HIV infections , *DIGITAL technology , *PHYSICIAN-patient relations , *DIGITAL health , *MEDICAL technology , *RESPONSIBILITY , *DIFFUSION of innovations , *HEALTH promotion - Abstract
Participation of citizens and service users is increasingly commonplace in research, policy and technology development. Alongside this development, social scientists have become increasingly incorporated into large-scale research and innovation projects to facilitate participatory spaces. This requires reflection on the mechanisms, outcomes and, ultimately, the accountabilities of participation. In this paper, we propose the lens of care framework for approaching such reflections. We illustrate its value by using it to account for our role in establishing participatory spaces as part of a European Horizon 2020-funded research and innovation project, entitled EmERGE. We describe the codesign processes we developed and implemented with the aim of enabling heterogeneous voices, distinct experiences and multiple ideas to be articulated to inform the development and implementation of a digital platform for HIV care. We show how the lens of care framework enables us to trouble participation along prior theoretical distinctions between patients/citizens roles, invited/uninvited spaces and inclusive/scientistic voices and provides novel lines of inquiry to capture the relational and emergent processes of participation in digital health innovation. In the EmERGE project, spaces of participation were co-created within and by the community, whose members skilfully arranged the material, social and temporal set-up. Within these spaces we were able to articulate voices, deliberate knowledge and study the potentialities of technology so that initial technological inscriptions of empowerment through information-push were challenged and were, eventually, replaced by more interactive forms of clinician-patient engagement in digital HIV care. Through the lens of care , this paper aims to provide a reflective tool for researchers and practitioners who are involved in the design, implementation, and evaluation of participatory projects. • Demonstrates how participation has been troubled along three key dimensions. • Develops the lens of care framework to reflect and evaluate participatory processes. • Elaborates the codesign process to develop a digital health platform for HIV care. • Analyses the selection of actors and knowledges within participatory spaces. • Guides researchers to take responsibility for the worlds they co-construct. [ABSTRACT FROM AUTHOR]
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- 2023
- Full Text
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43. "This family and the Games are my world": Conceptualizing the British and European Transplant Games as therapeutic landscapes.
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Greig, Abbie E.
- Subjects
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AFFINITY groups , *WELL-being , *SOCIAL support , *MOTIVATION (Psychology) , *PATIENTS , *HEALTH status indicators , *PHYSICAL fitness , *MENTAL health , *QUALITATIVE research , *SPORTS events , *TRANSPLANTATION of organs, tissues, etc. , *HEALTH promotion , *ORGAN donation - Abstract
The first Transplant Games took place in 1978 in Portsmouth, England. Since then, numerous Olympic-style sporting 'Games' have been established, each aiming to increase public awareness of organ donation, demonstrate the benefits of transplantation, and encourage patient fitness. Despite this, there is limited research exploring the psycho-social and health impacts of the Games. Drawing on qualitative research conducted at the 2022 British Transplant Games and the 2022 European Transplant and Dialysis Games, this paper explores the Games through a therapeutic landscapes framework, a concept that examines the ways in which environments contribute to health and wellbeing. Building upon work that acknowledges the relational and contingent nature of health-in-place, I argue that the Games are a therapeutic landscape of social relations for transplant recipients in three ways: providing a landscape of belonging , a landscape of hope , and a landscape of motivation. Through this therapeutic landscapes perspective, the Transplant Games are presented as a peer-to-peer clinic – a care space where individuals are more actively involved in their health on a reciprocal level than in the traditional hospital clinic. In turn, this paper emphasises the crucial role of affective peer support in producing health-promoting environments. This research seeks to make a practical contribution to the wider transplant community by promoting the Games as an environment which may positively contribute to both physical and mental wellbeing. • The Transplant Games function as a therapeutic landscape for organ recipients. • They provide a peer-to-peer clinic where participants are active in their health. • The Games provide a landscape of belonging, acceptance, understanding and family. • In showing you can still lead a healthy life, the Games become a landscape of hope. • As a landscape of motivation, the Games improve both physical and mental health. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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44. The role of primary healthcare amid the COVID-19 pandemic: Evidence from the Family Health Strategy in Brazil.
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Teixeira, Adriano Dutra, Postali, Fernando Antonio Slaibe, Ferreira-Batista, Natalia Nunes, Diaz, Maria Dolores Montoya, and Moreno-Serra, Rodrigo
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- *
DEATH , *PRIMARY health care , *HUMAN beings , *GOVERNMENT agencies , *DESCRIPTIVE statistics , *CONFIDENCE intervals , *COVID-19 pandemic , *COVID-19 - Abstract
This paper investigates the role of primary healthcare in mitigating the consequences of the COVID-19 pandemic, focusing on the Brazilian Family Health Strategy (ESF) as a case study. ESF is Brazil's major primary care initiative, with prior evidence indicating its effectiveness in improving various health outcomes. The COVID-19 pandemic submitted the Brazilian healthcare system to a rigorous and unprecedented stress test, whose repercussions are still under study. Using comprehensive administrative microdata from 2016 to 2022 encompassing dimensions related to mortality, healthcare service, supply of family health teams, and vaccination coverage, our empirical strategy accounts for heterogeneous effects based on program intensity and pandemic evolution of the 5570 Brazilian municipalities. Our findings reveal that municipalities with high-intensity of ESF coverage (i.e. stronger primary care) experienced 347.93 (95% CI: 289.04, 406.81) fewer COVID-19 and cardiorespiratory deaths per million inhabitants throughout the pandemic period, compared to those in low-intensity ESF areas, despite sharing similar profiles of deaths from respiratory and cardiovascular causes. Among the channels contributing to this relative performance, high-intensity ESF municipalities were found to engage in more home-based primary care visits and health promotion activities while maintaining a similar supply of community health workers. Additionally, they achieved higher vaccination coverage, and these effects were more pronounced in areas with greater ESF presence, emphasising the importance of primary care coverage. In conclusion, our findings underscore the relevance of strong primary care in mitigating the consequences of the pandemic and addressing post-pandemic health challenges. • Study examines the Brazilian Family Health Strategy's impact on COVID-19 outcomes. • High ESF coverage areas had lower mortality rates than low-coverage areas. • Stronger primary care areas had more home visits and actions for health promotion. • Primary care was vital for effective pandemic recovery in Brazil. [ABSTRACT FROM AUTHOR]
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- 2024
- Full Text
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45. The political stakes of cancer epistemics.
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Bhangu, Shagufta, Argudo-Portal, Violeta, Araújo Neto, Luiz Alves, Cochrane, Thandeka, Denisova, Masha, and Surawy-Stepney, Nickolas
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TUMOR treatment , *TUMOR diagnosis , *HEALTH services accessibility , *EARLY detection of cancer , *ETHNOLOGY research , *POPULATION geography , *THEORY of knowledge , *PRACTICAL politics , *MEDICAL needs assessment , *MEDICAL care costs - Abstract
We demonstrate a transnationally situated dialogue as a method to bring ethnographic and historical research in Brazil, East Africa (Kenya, Tanzania and Uganda), India, Russia and Spain into conversation to show three cancer epistemics sites (research, detection, and care access) where the politics of cancer epistemics are at play. First, in the field of research, we show how certain ways of knowing, and certain questions about and interests in cancer, are privileged over others. Using examples from Spain and East Africa, we highlight how a shift towards microbiological and high-technology research has outpriced many more locally grounded research agendas, ignoring questions of industrial and capital accountability in cancer aetiology. Second, we look at ways of making cancer visible, how knowledge is mobilised in cancer detection and screening, where and for whom. We discuss the increased individualisation of risk which is reframing cancer surveillance and therapeutic agendas. Using examples from India, Spain and Brazil, we demonstrate how the epistemics of cancer detection generate discourses of blame and responsibility at the individual level and accentuate existing inequities whilst simultaneously absorbing patients and their families into complex networks of surveillance. Lastly, we examine how the epistemics of cancer implicate the very possibilities of accessing cancer care, shaping care pathways and possibilities for patients. With ethnographic examples from India, Russia and Brazil, we demonstrate how an orientation towards the individual shifts attention away from the commercialisation of healthcare and dominance of logics of profit in therapeutics. Throughout the paper, we point towards what is holding these cancer discourses together and grapple with how the politics of cancer epistemics are at play across the globe, even if they appear to be taking many different forms. Our approach highlights how practices are mirrored in the framing, implementation, detection and care of cancer with far-reaching effects. • A transnationally situated dialogue examines the global production of cancer knowledge. • Global research agendas side line industrial and capital driven carcinogenic links. • Individualisation of cancer detection obfuscates social and national inequities. • High-cost and technology driven interventions are privileged over local initiatives. • Patient perspectives on knowing and accessing cancer care are overlooked. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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46. Infrastructures of epidemic response: Mpox and everyday repair work in southwestern Nigeria.
- Author
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Schmidt-Sane, Megan, Adegoke, Olufunke, Abbas, Syed, Lawanson, Akanni O., Kunnuji, Michael, Jegede, Ayodele, and MacGregor, Hayley
- Subjects
- *
PREVENTION of communicable diseases , *PUBLIC health infrastructure , *COMMUNITY health services , *ETHNOLOGY research , *PRIMARY health care , *PANDEMIC preparedness , *MONKEYPOX , *MEDICAL emergencies , *FRONTLINE personnel , *PUBLIC health - Abstract
Mpox (formerly known as monkeypox) was declared a Public Health Emergency of International Concern (PHEIC) by the World Health Organization on 23rd July 2022, however cases of the disease have been detected in Nigeria since the 1970s and more recently since it began spreading in more urban areas of the country from 2017 onward. Nigeria has a strong track record of epidemic preparedness and response, spearheaded by the Nigeria Centre for Disease Control. Despite being somewhat separate architectures on paper, epidemic response (in particular, integrated disease surveillance and response) relies on a foundation of primary health care, which is inadequately funded not only in Nigeria, but globally. Situating mpox response within this wider landscape, we draw on ethnographic research from September 2022–March 2023 in southwestern Nigeria on lived experiences of mpox and mpox response, focusing on the perspectives of frontline health workers and community-based suspected or confirmed mpox cases. We aimed to understand how prioritization and resource constraints shape mpox response at a local level, including effects on the everyday work of frontline health workers in public health and clinical care who are left to "make do." We analyze their experiences interfacing with two intersecting infrastructures, community-based surveillance and primary health care. Health workers' improvisation and "repair work," which we detail, enables the surveillance system to function in some capacity. However, health workers must regularly contend with competing priorities and routine care that may be sidelined during an outbreak or epidemic. We argue that this reveals the limitations of a global health security agenda as it materializes at a local level and the need for strengthening primary health care for longer-term sustainability. • This ethnographic study examined mpox response in southwestern Nigeria. • Epidemic response infrastructure depends on a strong primary health care system. • Primary health care is underfunded in Nigeria. • Frontline health workers engage in repair and improvisation. • This is unsustainable without further primary health system strengthening. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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47. "Successful" ageing in later older age: A sociology of class and ageing in place.
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Gibson, Kate, Kingston, Andrew, McLellan, Emma, Robinson, Louise, and Brittain, Katie
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SOCIAL capital , *QUALITATIVE research , *INDEPENDENT living , *INTERVIEWING , *HOME environment , *DESCRIPTIVE statistics , *EXPERIENCE , *AGING , *LIFE course approach , *SOCIOLOGY , *PRACTICAL politics , *SOCIAL classes - Abstract
Supporting people to 'age in place' – to live independently at home and remain connected to the community – is an international policy priority. But the process of ageing in place is mediated in a socio-cultural context where neoliberal tropes of successful ageing reproduce a pervasive model about 'ageing well' by elevating ideals of individualised choice and self-governance. Based on two waves of qualitative interviews and interim observations, we employ a Bourdieusian logic to explore the ramifications of this context on the experiences of 46 people in later older age (80+) ageing in place in North East England. All participants enacted everyday improvisatory practices to render their homes habitable. But our participants – most of whom were located in middle-class social positions – supplemented such improvisions with a strategic disposition to plan for and actively shape their ageing-in-place futures. Our participants conveyed a distinct sense of agency over their ageing futures. Underpinning their orientations to practice was an awareness of the value attached to individually 'ageing well' and a distancing from the agedness associated with the fourth age. Our analysis demonstrates the role of capital, accrued throughout the life course, in bringing such future trajectories into effect. The central argument of this paper therefore is that the embodiment of (neoliberal) ideals of successful ageing in place requires the deployment of classed capital. In sum, contrary to the individualising narratives ubiquitous in policy pertaining to ageing well, we show the importance of classed structural moorings in this process. • Regardless of class, older adults (80+) tinker to render their homes habitable. • Bourdieusian analysis shows how class shapes (successful) ageing in place. • Focusing on middle-class experiences deepens insight into ageing inequalities. • Dispositions to plan for and actively shape ageing futures requires capital. • The individualising focus of successful ageing ideals is inherently classed. [ABSTRACT FROM AUTHOR]
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- 2024
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48. 'Managing values' in health economics modelling: Philosophical and practical considerations.
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Harvard, Stephanie and Winsberg, Eric B.
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STATISTICAL models , *SCIENCE , *PHILOSOPHY of medicine , *STAKEHOLDER analysis , *MEDICAL care costs - Abstract
Stakeholder involvement has been proposed as a key strategy for appropriately managing value-laden decisions or 'value judgments' in health economics modelling. Philosophers of science, however, conceive of stakeholder involvement in research in conflicting ways, and also propose alternative strategies for 'managing values' in science. Furthermore, all proposed strategies for managing values in science raise philosophical questions and practical challenges that are difficult to resolve. As a result, health economists who seek to appropriately inform value judgments in modelling must currently go without straightforward guidance. There is a need to further explore how health economists should manage value judgments in modelling, taking into account philosophical debates and contextual constraints. This paper discusses core proposals for managing values in science and identifies philosophical questions and practical challenges these proposals leave unresolved. It further considers how this could potentially inform processes to manage value judgments in health economics modelling, using examples from an ongoing modelling project called LEAP (Lifetime Exposures and Asthma Outcomes Projection). We conclude that all strategies to 'manage values' in health economics modelling have strengths and weaknesses, but are generally compatible with one another, suggesting that health economists may use a combination of strategies. Further research is needed to explore the effects of strategies to 'manage values' in health economics modelling. • Many strategies may help manage 'value judgments' in health economics modelling. • We critically discuss proposed strategies using a case study called the LEAP model. • Health economists may combine multiple strategies to 'manage values' in modelling. [ABSTRACT FROM AUTHOR]
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- 2024
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49. Effectiveness and cost-effectiveness of models of maternity care for women from migrant and refugee backgrounds in high-income countries: A systematic review.
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Yeshitila, Yordanos Gizachew, Gold, Lisa, Abimanyi-Ochom, Julie, Riggs, Elisha, Tolossa, Tadesse, and Le, Ha N.D.
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HEALTH literacy , *COST effectiveness , *MATERNAL health services , *PSYCHOLOGY of refugees , *CONTINUUM of care , *SYSTEMATIC reviews , *SOCIAL integration , *MIGRANT labor , *WOMEN'S health , *SOCIAL support , *PSYCHOSOCIAL factors , *COMMUNICATION barriers ,DEVELOPED countries - Abstract
Different models of care may be appropriate for various groups of women during their perinatal period, depending on their risk level, location, and accessibility of healthcare practitioners and facilities. Evaluating these models' effectiveness and cost-effectiveness is critical to allocating resources and offering sustained care to women from refugee backgrounds. This systematic review aimed to synthesize evidence on the effectiveness and cost-effectiveness of maternity care models among women from migrant and refugee backgrounds living in high-income countries. A comprehensive search of major databases for studies published in English between 2000 and 2023 was developed to identify literature using defined keywords and inclusion criteria. Two authors independently screened the search findings and the full texts of eligible studies. The quality of the included studies was appraised, and qualitative and quantitative results were synthesised narratively and presented in tabular form. The review was reported using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Forty-seven research papers from six countries were included in the review. The review highlighted the positive impact of community and stakeholders' involvement in the implementation of models of maternity care for women from migrant and refugee backgrounds. The review summarised the models of care in terms of their effectiveness in improving perinatal health outcomes and minimising medical interventions, continuum of care in maternity services, enhancing health literacy, maternity service use and navigating the healthcare system, social support, and sense of belongingness, and addressing cultural and linguistic barriers. Notably, only one study conducted a partial economic evaluation to determine the cost-effectiveness of the model. While the reviewed models demonstrated effectiveness in improving perinatal health outcomes, there was considerable variation in outcome measures and assessment tools across the models. Thus, reaching a consensus on prioritised perinatal outcomes and measurement tools is crucial. Researchers and policymakers should collaborate to enhance the quality and quantity of economic evaluations to support evidence-based decision-making. This includes thoroughly comparing costs and outcomes across various health models to determine the most efficient interventions. By emphasizing the importance of comprehensive economic evaluations, healthcare systems can better allocate resources, ultimately leading to more effective and efficient healthcare delivery. • Refugee background women often face poor perinatal outcomes and healthcare access barriers; diverse maternity care models address their needs. • The review comprehensively evaluated the effectiveness of maternity care models for migrants and refugee women. • Community and stakeholder engagement are vital for improving service use and perinatal experiences. • The review highlights a notable gap in assessing the cost-effectiveness of maternity care models for migrant and refugee background women. [ABSTRACT FROM AUTHOR]
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- 2024
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50. Transgender lives at the population level: Evidence from Danish administrative data.
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Thomsen, Morten Kjær, Andersen, Matvei, and Greve, Jane
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TRANSGENDER people , *DEMOGRAPHIC characteristics , *GENDER affirming care , *SURVEYS , *MEDICAL appointments , *COMPARATIVE studies , *PSYCHIATRIC hospitals , *PSYCHOSOCIAL factors , *EMPLOYMENT , *EDUCATIONAL attainment - Abstract
This paper provides the first rigorous account of the diverse characteristics of transgender individuals at the population level, using data from Danish population registers. We observe three transgender subpopulations within the same national setting: all who changed thier legal sex (T-Legal, n = 1,995), all who have been assigned trans-related diagnostic codes (T-ICD, n = 1,594), and those who self-identified as transgender in a representative survey (T-Survey, n = 197, weighted n = 44,958). Results show significant differences in the subpopulations' backgrounds, family, education and labour market characteristics, and healthcare use. These differences extend beyond comparisons with the general population to great variations between each of the transgender subpopulations. Individuals with legal sex changes, and particularly those with trans-related diagnostic codes, face substantial disadvantages across various outcomes. Compared to the general population and the T-Survey subpopulation, the T-Legal subpopulation and the T-ICD subpopulation have significantly higher numbers of psychiatric hospital visits, lower educational attainment, lower annual earnings, and reduced employment rates, also when controlling for background characteristics. Earnings and employment rates remained significantly lower also when controlling for educational attainment. Our results show that the strategy chosen to identify trans individuals in population data has a great impact on the characteristics observed, and that trans individuals captured by surveys do not necessarily represent all transgender individuals, including those who seek to medically or legally transition. Furthermore, our results indicate that high numbers of trans individuals observed in surveys do not necessarily correspond to high demands for gender-affirming treatments or legal sex change. Finally, we show that transgender individuals who seek gender-affirming healthcare constitute a distinct and significantly disadvantaged group, also compared to other trans subpopulations. • We identify three transgender subpopulations within the same national setting. • Subpopulations differ greatly in education, health care use, employment, and earnings. • Those with trans diagnostic codes make up the most disadvantaged subpopulation. • Those who self-identify as trans are largely similar to the general population. [ABSTRACT FROM AUTHOR]
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- 2024
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