1. Patients' information-seeking activity is associated with treatment compliance in inflammatory bowel disease patients
- Author
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Pittet Valérie, Rogler Gerhard, Mottet Christian, Froehlich Florian, Michetti Pierre, de Saussure Philippe, Burnand Bernard, Vader John-Paul, Swiss IBD Cohort Study Group, University of Zurich, and Pittet, Valérie
- Subjects
Adult ,Male ,medicine.medical_specialty ,General Practice ,Information Seeking Behavior ,610 Medicine & health ,Disease ,Inflammatory bowel disease ,Medication Adherence ,Young Adult ,Treatment compliance ,Surveys and Questionnaires ,Internal medicine ,Humans ,Medicine ,2715 Gastroenterology ,Crohn's disease ,business.industry ,Information seeking ,Gastroenterology ,Odds ratio ,Middle Aged ,Inflammatory Bowel Diseases ,medicine.disease ,Ulcerative colitis ,3. Good health ,Cross-Sectional Studies ,10219 Clinic for Gastroenterology and Hepatology ,10036 Medical Clinic ,Physical therapy ,Female ,business ,Switzerland ,Cohort study - Abstract
BACKGROUND Despite the chronic and relapsing nature of inflammatory bowel diseases (IBD) at least 30 to 45 of the patients are noncompliant to treatment. IBD patients often seek information about their disease. AIM To examine the association between information seeking activity and treatment compliance among IBD patients. To compare information sources and concerns between compliant and noncompliant patients. METHODS We used data from the Swiss IBD cohort study and from a qualitative survey conducted to assess information sources and concerns. Crude and adjusted odds ratios (OR) for noncompliance were calculated. Differences in the proportions of information sources and concerns were compared between compliant and noncompliant patients. RESULTS A total of 512 patients were included. About 18 (n = 99) of patients were reported to be noncompliant to drug treatment and two thirds (n = 353) were information seekers. The OR for noncompliance among information seekers was 2.44 (95CI: 1.34 4.41) after adjustment for confounders and major risk factors. General practitioners were 15.2 more often consulted (p = 0.019) among compliant patients as were books and television (+13.1; p = 0.048) whereas no difference in proportions was observed for sources such as internet or gastroenterologists. Information on tips for disease management were 14.2 more often sought among noncompliant patients (p = 0.028). No difference was observed for concerns on research and development on IBD or therapies. CONCLUSION In Switzerland IBD patients noncompliant to treatment were more often seeking disease related information than compliant patients. Daily management of symptoms and disease seemed to be an important concern of those patients.
- Published
- 2014
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