Descriptor: "registres" / Journal: revue de medecine interne - Searchworks@Jio Institute Digital Library Search Results

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Start Over Descriptor "registres" Journal revue de medecine interne

Author: Moulis, Guillaume, Michel, Marc, Bonnotte, Bernard, and Godeau, Bertrand
Subjects: *THROMBOCYTOPENIA, *AUTOIMMUNE diseases, *HEMOLYSIS & hemolysins, *DRUGS, *HEALTH insurance
Abstract: The CARMEN-France registry is a prospective, multicenter registry in France including adult patients with a new diagnosis of immune thrombocytopenia or of autoimmune immune hemolytic anemia (2402 patients included in December 31, 2023). The recording of clinical, biological and treatment data allows detailed epidemiological and pharmacoepidemiological real-world studies. This review summarizes the CARMEN-France registry protocol, gives examples of studies conducted in the registry, and indicates future directions such as inclusion of patient reported outcomes, linkage with the French national health insurance database and linkage with other registries in Europe. [ABSTRACT FROM AUTHOR]
Published: 2024
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Author: Aymé S
Subjects: Cohort Studies, Europe, Humans, Legislation, Medical, Rare Diseases etiology, Computer Security legislation & jurisprudence, Law Enforcement, Rare Diseases epidemiology, Registries standards
Published: 2018
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