1. Research with families facing cancer: The challenges of accrual and retention
- Author
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Ann Schafenacker, Trace Kershaw, Laurel R. S. Phillips, Laurel L. Northouse, Darlene W. Mood, and Tansey Rosset
- Subjects
Male ,Research design ,Gerontology ,medicine.medical_specialty ,Patient Dropouts ,Referral ,Accrual ,Eligibility Determination ,Nursing Methodology Research ,Cancer Care Facilities ,law.invention ,Randomized controlled trial ,Quality of life ,law ,Humans ,Multicenter Studies as Topic ,Medicine ,Family ,Longitudinal Studies ,Referral and Consultation ,General Nursing ,Randomized Controlled Trials as Topic ,Motivation ,business.industry ,Data Collection ,Patient Selection ,Prostatic Neoplasms ,Middle Aged ,Retention rate ,Clinical trial ,Research Design ,Family medicine ,Quality of Life ,Female ,business ,Attitude to Health - Abstract
The purposes of this article are: (a) to describe and analyze the accrual and retention patterns in a longitudinal randomized clinical trial with prostate cancer patients and their partners, and (b) to discuss strategies that were used to overcome challenges in conducting this family-based study. Initially, 429 dyads were referred to the study. Of these, 166 were not enrolled due to refusal (n ¼ 120) or ineligibility (n ¼ 46), 21 of whom did not meet one or more of the inclusion criteria, and 25 of whom could not be reached within the 2-month window of eligibility. Of the 383 eligible dyads, 263 dyads were enrolled (enrollment rate of 68.7%). Accrual and retention patterns differed by research site, referral procedures, and phase of prostate cancer. The retention rate was very good with the majority of dyads (n ¼ 218) completing all three follow-up assessments at 4, 8, and 12 months (82.9%). 2006 Wiley Periodicals, Inc. Res Nurs Health 29:199-211, 2006
- Published
- 2006
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