1. I heard it on the radio: supporting Pacific family carers through the development of culturally appropriate resources, a descriptive qualitative study.
- Author
-
Williams, Lisa, Dewes, Ofanaite, and Gott, Merryn
- Subjects
SERVICES for caregivers ,CULTURE ,CAREGIVER attitudes ,FOCUS groups ,SPIRITUALITY ,RESEARCH methodology ,FAMILIES ,COMMUNITIES ,HUMANITY ,QUALITATIVE research ,HUMAN services programs ,CONCEPTUAL structures ,CULTURAL competence ,ACTION research ,NEED (Psychology) ,NEEDS assessment ,THEMATIC analysis ,MUSIC ,PALLIATIVE treatment ,SPIRITUAL care (Medical care) ,VIDEO recording - Abstract
New public health approaches to palliative care highlight the role of communities in care, yet there is little evidence of studies on community-led initiatives in the palliative care context. Therefore, the aim of this study, which took place in Auckland, New Zealand, was to (1) explore Pacific family carers' views on what they need to feel supported as they care for older family members at the end of life and (2) to devise a resource that reflects their views that may be used to raise community awareness about these needs. This was achieved using a Participatory Action Research (PAR) framework in which a focus group was carried out and a work group formed to implement the focus group's recommendations that were informed by a thematic analysis of the focus group data. The analysis resulted in the foregrounding of four themes, with the focus of this paper being on the 4th theme, the centrality of spirituality for a group of Pacific caregivers. This emphasis was chosen due to it being an underexplored topic in the palliative care literature. Co-creating resources based on research with community members allows for the development of tailored approaches of significance to that community, in this instance, a music video. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF