1. Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda.
- Author
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Betancourt T, Smith Fawzi MC, Stevenson A, Kanyanganzi F, Kirk C, Ng L, Mushashi C, Bizimana JI, Beardslee W, Raviola G, Smith S, Kayiteshonga Y, and Binagwaho A
- Subjects
- Acquired Immunodeficiency Syndrome diagnosis, Adolescent, Child, Community-Based Participatory Research methods, Female, Humans, Male, Mental Health statistics & numerical data, Rwanda, Socioeconomic Factors, Suicide statistics & numerical data, Acquired Immunodeficiency Syndrome epidemiology, Community-Based Participatory Research ethics, Vulnerable Populations
- Abstract
A "risk of harm" protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10-17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2% were deemed "risk of harm." The most prevalent presenting problem was non-fatal suicidal behavior (91% of risk of harm cases), with 36% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a "risk of harm" protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants' safety in research among vulnerable populations.
- Published
- 2016
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