1. Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers
- Author
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Jessica Mozersky, Tristan McIntosh, Heidi A. Walsh, Meredith V. Parsons, Melody Goodman, and James M. DuBois
- Subjects
Adult ,Male ,Computer and Information Sciences ,Biomedical Research ,Science Policy ,Science ,Social Sciences ,Surveys ,Research and Analysis Methods ,Trust ,Computer Software ,Access to Information ,Psychological Attitudes ,Surveys and Questionnaires ,Medicine and Health Sciences ,Psychology ,Humans ,Public and Occupational Health ,Qualitative Research ,Multidisciplinary ,Survey Research ,Information Dissemination ,Data Collection ,Biology and Life Sciences ,Software Engineering ,Qualitative Studies ,Middle Aged ,Research Personnel ,United States ,Data Accuracy ,National Institutes of Health (U.S.) ,Research Design ,Anthropology ,Engineering and Technology ,Medicine ,Female ,Public Health ,Research Article - Abstract
Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.
- Published
- 2021