1. P13 - Effects of patient education interventions for parents of children with long-term conditions: Presenter(s): Una Stenberg, Frambu Resource Centre for Rare Disorders, Norway.
- Author
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Bergerød, Inger Johanne, Bossy, Dagmara, Haugstvedt, Karen Therese Sulheim, Fredriksen, Kari, and Vågan, Andrè
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CHILDREN with disabilities , *PATIENT education , *PARENTING education , *HEALTH literacy , *EDUCATION of children with disabilities , *PSYCHOLOGICAL distress , *QUALITY of life , *PARENTAL influences - Abstract
This scoping review aims to give a comprehensive and systematic overview of published evaluations and the potential impact of patient education interventions for parents with children and adolescents who are living with long-term conditions and/or disabilities. Relevant literature published between 2010 and 2020 has been comprehensively reviewed, with attention to variations in study design, intervention and parent/child characteristics. Arksey and O'Malley's framework (2005) for scoping studies guided the review process, and thematic analysis was undertaken to synthesize extracted data. Of 12 570 titles identified, 32 studies were included in this scoping review. In total, 1612 parents participated in the interventions. All the interventions were group-based, and aimed at increasing parents' quality of life, self-efficacy and health literacy. Parents'?reported benefits in the quantitative studies included reduced levels of stress, anxiety and depression, improved empowerment and health-related knowledge. The participation alone seemed to have positive influence on parents' levels of distress in addition to their ability to cope with the situation. By sharing experiences, parents learned from each other and gained new insight on how they could manage their situation and role as a parent. Results: from qualitative studies complemented the reported benefits with additional three themes: 1) increased awareness and self-understanding, 2) mutual understanding and accept, 3) a new beginning. Study results validate previous Findings: from other research and suggests that different types of group-based patient education interventions have a positive impact on parents with children who are living with different long-term conditions and/or disabilities. This review highlights the need for further research and evaluation to develop a comprehensive approach to evaluate group-based patient education programs tailored at parents of children with long-term conditions and/or disabilities. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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