1. Active involvement of young people with T1DM during outpatient hospital consultations: Opportunities and challenges in transitional care services.
- Author
-
Peeters, Mariëlle A.C., de Haan, Hielke G., Bal, Roland A., van Staa, AnneLoes, and Sattoe, Jane N.T.
- Subjects
- *
YOUNG adults , *TRANSITIONAL care , *MEDICAL personnel , *DISEASE management , *TYPE 1 diabetes - Abstract
Objective: Little is known about active involvement of young people (YP) with type 1 diabetes (T1DM) in transitional care. This study aims to gain insight into patient-provider interactions during outpatient hospital consultations.Methods: Semi-structured observations (n = 61) of outpatient consultations with YP with T1DM (15-25 years) treated in 12 hospitals in the Netherlands. The consultations concerned pediatric care (n = 23), adult care (n = 17), and joint consultations (n = 21). Thematic data analysis focused on whether professionals engaged in open, in-depth conversations; used motivational interviewing techniques; involved YP in shared decision-making; and addressed non-medical topics.Results: Apart from some good examples, the healthcare professionals generally had difficulty interacting adequately with YP. They paid little attention to the YP's individual attitudes and priorities regarding disease management; non-medical topics remained generally underexposed. Conversations about daily life often remained shallow, as YP's cues were not taken up. Furthermore, decisions about personal and health-related goals were often not made together.Conclusion: By adopting a more person-centered approach, professionals could empower YP to take an active role in their diabetes management.Practice Implications: Using a structured conversation model combined with a tool to encourage YP's agenda-setting and shared decision-making is recommended for more person-centered transitional care in T1DM. [ABSTRACT FROM AUTHOR]- Published
- 2022
- Full Text
- View/download PDF