1. Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson's Disease in Cali-Colombia.
- Author
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Muñoz, Beatriz E., Quintana-Peña, Valentina, Gonzalez, Maria C., Valderrama, Jaime A., Castaño-Pino, Yor Jaggy, Rincón, Domiciano, Navarro, Andrés, and Orozco, Jorge L.
- Subjects
PARKINSON'S disease diagnosis ,CAREGIVERS ,DIFFUSION of innovations ,EMPATHY ,HEALTH care teams ,INCOME ,INTERVIEWING ,RESEARCH methodology ,PARKINSON'S disease ,PATIENT education ,QUALITY of life ,QUESTIONNAIRES ,SELF-efficacy ,SURVEYS ,QUANTITATIVE research ,BURDEN of care ,HUMAN services programs ,CAREGIVER attitudes ,PATIENTS' attitudes ,DESCRIPTIVE statistics - Abstract
Introduction. Parkinson's disease (PD) is one of the most prevalent age-related neurodegenerative disorders. The progression of PD produces an important disease burden in patients due to functional impairment, which also has repercussions on caregivers. In addition, it has become a challenge for health systems, especially in developing countries, which have limited resources. Multidisciplinary teams with a community approach have proved effective in high-income countries; however, there is no reported literature in low- and middle-income countries about this kind of initiative. Objective. This paper aims to document the experience of patients, caregivers, and experts in a community approach as an innovative model in a middle-income country. Methods. A quantitative descriptive research was conducted. The selection criteria were having a PD diagnosis, attending with a caregiver to Saturdays in Motion (SIM), or being a clinical expert invited to SIM. PD patients and their caregivers answered three surveys on their points of view with respect to SIM: SIM and their quality of life (QoL) and PDQ-39 and Zarit, whereas clinical experts completed two questions related to the SIM program. Descriptive statistics were used to summarize the results of the surveys and clinical tests. Results. Forty-eight, twenty-four, and twenty-one subjects answered surveys one, two, and three, respectively. In total, four clinical experts were interviewed. 87.9% of the patients consider that SIM activities improved their QoL. The most affected areas in PDQ-39 were those related to the social area. Around 66.6% of the caregivers reported a mild burden on Zarit and think that SIM enhances the PD patient's QoL. Clinical experts highlighted the sense of community and empathy. Conclusion. Our preliminary experience shows a multidisciplinary model with a community approach which redefines the traditional relationship between patients, caregivers, and clinical experts. This aim of this initiative is that education and empowerment patients and caregivers reach a better perception of QoL. [ABSTRACT FROM AUTHOR]
- Published
- 2020
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