1. Caught in a Loop with Advance Care Planning and Advance Directives: How to Move Forward?
- Author
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Periyakoil, Vyjeyanthi S, von Gunten, Charles F, Arnold, Robert, Hickman, Susan, Morrison, Sean, and Sudore, Rebecca
- Subjects
Health Services and Systems ,Health Sciences ,Pain Research ,Management of diseases and conditions ,7.2 End of life care ,Generic health relevance ,Good Health and Well Being ,AAA Domain ,Advance Care Planning ,Advance Directives ,Hospitals ,Humans ,Palliative Care ,advance care planning ,advance directives ,clinician ,patient communication ,models of care ,palliative care ,clinician/patient communication ,Clinical Sciences ,Nursing ,Public Health and Health Services ,Gerontology ,Health services and systems - Abstract
Completion of an advance care planning (ACP) process and/or an advance directive should result in patients receiving the care they desire at the end of life. However, three decades of research have shown that is just not the case. ACP has been a front runner in developing the science within palliative care. Some positive outcomes such as lowering levels of surrogate grief may be associated with ACP. Yet, it does not appear that further ACP research will ensure that seriously ill patients will get goal-concordant care. An unfortunate consequence of palliative care research and advocacy so far is the misguided notion of many hospital systems trying to solve their palliative care problems by only implementing an ACP initiative. At best, ACP is but one tool in the collective palliative care toolbox. New tools are needed. Given that we have finite resources, future research should focus more on tools to improve symptom management, better models of care, and systems that will ensure goal-concordant care that meet the needs of the population that the health care system is designed to meet.
- Published
- 2022