1. Identification of Research Priorities for Inflammatory Bowel Disease Nursing in Europe: a Nurses-European Crohn's and Colitis Organisation Delphi Survey
- Author
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Christine Norton, Karen Kemp, Dawn Farrell, Lars-Petter Jelsness-Jørgensen, Lesley Dibley, Palle Bager, and Wladyslawa Czuber-Dochan
- Subjects
Adult ,Male ,medicine.medical_specialty ,Delphi Technique ,Alternative medicine ,Delphi method ,Psychological intervention ,Delphi ,Nurse's Role ,03 medical and health sciences ,0302 clinical medicine ,Patient satisfaction ,Quality of life (healthcare) ,Nursing ,Crohn Disease ,inflammatory bowel disease ,Surveys and Questionnaires ,Journal Article ,medicine ,Humans ,030212 general & internal medicine ,IBD nursing ,Fatigue ,Self-management ,business.industry ,Nursing research ,Gastroenterology ,General Medicine ,Middle Aged ,Europe ,Self Care ,Nursing Research ,research priorities ,Patient Satisfaction ,Scale (social sciences) ,Critical Pathways ,Quality of Life ,030211 gastroenterology & hepatology ,Colitis, Ulcerative ,Female ,business ,Fecal Incontinence - Abstract
Background:\ud Robust research evidence should inform clinical practice of inflammatory bowel disease (IBD) specialist nurses, but such research is currently very limited. With no current agreement on research priorities for IBD nursing, this survey aimed to establish topics to guide future IBD nursing research across Europe.\ud \ud Method:\ud An online modified Delphi survey with nurse and allied health professional members of the Nurses European Crohn’s and Colitis Organisation (n=303) was conducted. In round one, participants proposed topics for research. In round two, research topics were rated on a 1-9 scale and subsequently synthesised to create composite research questions. In round, three participants selected their top five research questions, rating these on a 1-5 scale.\ud \ud Results:\ud Eighty-eight, 90, and 58 non-medical professionals, predominantly nurses, responded to rounds one, two and three respectively, representing 13 European countries. In round one, 173 potential research topics were suggested. In rounds two and three, responders voted for and prioritised 125 and 44 questions respectively. Round three votes were weighted (rank of 1 = score of 5), reflecting rank order. The top five research priorities were: interventions to improve self-management of IBD; interventions for symptoms of frequency, urgency and incontinence; the role of the IBD nurse in improving patient outcomes and quality of life; interventions to improve IBD fatigue; and care pathways to optimise clinical outcomes and patient satisfaction.\ud \ud Conclusion:\ud The prioritised list of topics gives clear direction for future IBD nursing research. Conducting this research has potential to improve clinical practice and patient-reported outcomes.
- Published
- 2016
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