1. Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study.
- Author
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Quinn, Claire, McCarthy, Sandra, Devins, Mary, O'Reilly, Maeve, Twomey, Marie, and Ling, Julie
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CAREGIVERS , *CLINICAL medicine research , *CONSENSUS (Social sciences) , *CONTENT analysis , *CONTINUUM of care , *DELPHI method , *FAMILIES , *HOME nursing , *INTERVIEWING , *SERVICES for caregivers , *MEDICAL care , *MEDICAL needs assessment , *MEDICAL care research , *HEALTH policy , *NEEDS assessment , *NURSING research , *NURSING specialties , *PALLIATIVE treatment , *PERSONNEL management , *PRIORITY (Philosophy) , *RESEARCH funding , *SCALE analysis (Psychology) , *STATISTICS , *SURVEYS , *TERMINALLY ill , *EVIDENCE-based medicine , *ADVANCE directives (Medical care) , *HOSPICE nurses , *PROFESSIONAL practice , *JUDGMENT sampling , *DATA analysis , *DATA analysis software , *DESCRIPTIVE statistics , *CHILDREN ,RESEARCH evaluation - Abstract
This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving the quality of life of children living with, or dying from, a life-limiting condition. Ideally, support for children requiring palliative care begins at the time of diagnosis, which for many children with life-limiting conditions can be from birth. There is a notable overlap between the needs of children requiring palliative care and those with disabilities and other complex care needs, resulting in care being provided by a range of voluntary and statutory agencies. As a new specialty, there is a need to develop an evidence-based approach to providing children's palliative care. In order to do this in a systematic way, identification of the research priorities in children's palliative care within Ireland is required. [ABSTRACT FROM AUTHOR]
- Published
- 2017
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