1. Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature
- Author
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Michaela Dellenmark-Blom, Gundela Holmdahl, Agneta Nordenskjöld, and Sofia Sjöström
- Subjects
Adult ,Male ,Pediatrics ,medicine.medical_specialty ,Epispadias ,Adolescent ,MEDLINE ,Urinary incontinence ,Affect (psychology) ,03 medical and health sciences ,Young Adult ,0302 clinical medicine ,Quality of life ,030225 pediatrics ,medicine ,Humans ,In patient ,Child ,Aged ,business.industry ,Bladder Exstrophy ,Middle Aged ,Review article ,Sexual Dysfunction, Physiological ,medicine.anatomical_structure ,Sexual dysfunction ,Urinary Incontinence ,030220 oncology & carcinogenesis ,Child, Preschool ,Infertility ,Pediatrics, Perinatology and Child Health ,Quality of Life ,Abdomen ,Surgery ,Female ,Self Report ,medicine.symptom ,business - Abstract
The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015–2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.
- Published
- 2020