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Your search keyword '"Snell, Karoliina"' showing total 5 results
Start Over Author "Snell, Karoliina" Journal european journal of human genetics
5 results on '"Snell, Karoliina"'

2. Erratum

Author

Gaskell, George, Gottweis, Herbert, Starkbaum, Johannes, Gerber, Monica M., Broerse, Jacqueline, Gottweis, Ursula, Hobbs, Abbi, Helén, Ilpo, Pashou, Maria, Snell, Karoliina, and Soulier, Alexandra

Published
2013

5. Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Author

Gaskell, George, Gottweis, Herbert, Starkbaum, Johannes, Gerber, Monica M, Broerse, Jacqueline, Gottweis, Ursula, Hobbs, Abbi, Helén, Ilpo, Paschou, Maria, Snell, Karoliina, and Soulier, Alexandra

Subjects
BIOBANKS, DATA security, EUROPEAN integration, PUBLIC opinion
Abstract

This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people's engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level. [ABSTRACT FROM AUTHOR]

Published
2013
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