807 results
Search Results
2. Beyond validation: getting wearable activity trackers into cardiovascular care-a discussion paper.
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Straiton N, Moons P, Verstrael A, Liu M, and Winter MM
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- Humans, Exercise, Male, Female, Cardiovascular Diseases therapy, Fitness Trackers standards, Wearable Electronic Devices
- Abstract
This paper addresses the challenge of integrating wearable activity trackers (WATs) into cardiovascular disease care. Despite evidence supporting the use of trackers for monitoring and promoting physical activity, implementation challenges persist in clinical settings. The paper emphasizes the lack of systematic, evidence-based implementation approaches for integrating trackers. It underscores the urgent need for stakeholder collaboration between clinicians, patients, implementation scientists, researchers, health and technology partners, and the use of proven implementation science methodologies. This is crucial for bridging the gap and ensuring effective translation of WATs into cardiovascular care, meeting the increasing demand from patients and clinicians., Competing Interests: Conflict of interest: none declared., (© The Author(s) 2024. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.)
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- 2024
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3. Digital and technological solutions in cardiovascular nursing and perspectives for a smooth digital shift: A discussion paper.
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Conte G, Magon A, and Caruso R
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Digital and technological solutions (DTS) in cardiovascular nursing are profoundly transforming the landscape of patient care by integrating advanced data-driven approaches. DTS help to enhance patient outcomes and streamline clinical workflows, supporting the shift of the traditional roles of healthcare providers and patients towards more engaged and collaborative care processes. This article presents a perspective in this regard. The adoption of DTS, including mobile health applications and wearable devices, enables continuous monitoring and management of patient health, fostering significant improvements in cardiovascular health management. However, the rapid incorporation of such technologies presents various challenges, such as robust data standardization, the development of digital literacy among healthcare professionals, and addressing privacy and security concerns. Effective integration of DTS into nursing practice demands structured clinical curricula that equip nurses with essential technological skills and a deep understanding of ethical considerations. Theoretical frameworks should guide the systematic implementation and integration of digital tools, ensuring comprehensive consideration of the complexities involved in digital transformations in healthcare., (© The Author(s) 2024. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.)
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- 2024
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4. Correction to: Beyond validation: getting wearable activity trackers into cardiovascular care—a discussion paper
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- 2024
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5. Heartbeat: celebrating the most cited papers 2020.
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Klompstra L and Jaarsma T
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- 2021
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6. HeartBeat: Celebrating our top reviewers and the papers with the best altmetrics scores and most downloads.
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Klompstra L and Jaarsma T
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- 2021
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7. Response to: Reporting the results of a clinical trial across multiple papers, does it matter?
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Gómez-Marcos MA and García-Ortiz L
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- 2021
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8. Reporting the results of a clinical trial across multiple papers, does it matter?
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Gray R, Mackay B, Waters A, and Brown E
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- 2021
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9. Heartbeat: celebrating the most cited papers 2020
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Tiny Jaarsma and Leonie Klompstra
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Advanced and Specialized Nursing ,Medical–Surgical Nursing ,Heartbeat ,business.industry ,Medicine ,Cardiology and Cardiovascular Medicine ,business ,Classics - Published
- 2021
10. HeartBeat: Top papers EJCN in 2019!
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And Tiny Jaarsma BLK
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- 2020
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11. Reporting the results of a clinical trial across multiple papers, does it matter?
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Bridgina Mackay, Amanda Waters, Ellie Brown, and Richard Gray
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Advanced and Specialized Nursing ,Clinical trial ,Medical–Surgical Nursing ,medicine.medical_specialty ,business.industry ,Family medicine ,Medicine ,Cardiology and Cardiovascular Medicine ,business - Published
- 2021
12. Response to: Reporting the results of a clinical trial across multiple papers, does it matter?
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Manuel A. Gómez-Marcos and Luis García-Ortiz
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Advanced and Specialized Nursing ,Clinical trial ,Medical–Surgical Nursing ,medicine.medical_specialty ,business.industry ,Physical therapy ,medicine ,Cardiology and Cardiovascular Medicine ,business - Published
- 2021
13. HeartBeat: Top papers EJCN in 2019!
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Leonie Klompstra And Tiny Jaarsma
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Advanced and Specialized Nursing ,Medical–Surgical Nursing ,Heartbeat ,business.industry ,Physical activity ,Medicine ,Physical health ,Computer vision ,Symptom onset ,Artificial intelligence ,Cardiology and Cardiovascular Medicine ,business ,Personal Integrity - Published
- 2020
14. From new kid on the block to leading journal: a review and reflection on the first 20 years of the European Journal of Cardiovascular Nursing.
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Fredericks, Suzanne, Bulck, Liesbet Van, Ski, Chantal, Skibelund, Anne Kathrine, and Sanders, Julie
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ALLIED health associations ,PUBLISHING ,SERIAL publications ,ORGANIZATIONAL change ,CARDIOVASCULAR disease nursing ,AUTHORSHIP - Abstract
Background This year marks the 20th birthday of the European Journal of Cardiovascular Nursing (EJCN). The official journal of the Association of Cardiovascular Nursing and Allied Professionals, is now recognized as one of the leading nursing and allied professional journals. Aims This article reflects on the developments and impact of the journal over its 20-year lifespan. Methods and results We present a descriptive account of the journal from inception (2002) until present day (2021), using data provided by the EJCN editorial office and extracted from published and available information. In the last 20 years, the EJCN has published 20 volumes, 106 issues, and 1320 papers from 79 countries. The volume and quality of papers has been consistently increasing, culminating in a 2020 impact factor of 3.908, the highest in its history, ranking second for nursing science. Papers are predominantly patient focused with a range of research methods that cover an extensive range of cardiovascular conditions. Authors who contributed to the first issue continued their contribution; 293 articles in total. Conclusion The EJCN has evolved into a leading journal of cardiovascular care. As the journal enters its next era, with a new Editor-in-Chief, it is appropriate to have reflected on the phenomenal contribution of the outgoing Editor-in-Chief, and the editorial team, over the last 20 years. [ABSTRACT FROM AUTHOR]
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- 2022
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15. Conceptual models used by nurses working in coronary care units--a discussion paper.
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Timmins F
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- Coronary Care Units organization & administration, Critical Pathways, Empathy, Europe, Evidence-Based Medicine, Health Services Needs and Demand, Humans, Nurse's Role psychology, Nursing Staff, Hospital education, Nursing Staff, Hospital organization & administration, Patient Care Planning organization & administration, Professional Autonomy, Self Care, Self Efficacy, United States, Workload, Attitude of Health Personnel, Critical Care organization & administration, Heart Diseases nursing, Models, Nursing, Nursing Evaluation Research organization & administration, Nursing Staff, Hospital psychology
- Abstract
In the UK, Europe and the USA conceptual models of nursing are features of many undergraduate nursing curricula [Alligood MR. The nature of knowledge needed for nursing practice. In Alligood MR, Marriner-Tomey A, editors. Nursing theory utilisation and application. London: Mosby, 2002, Tierney AJ. Nursing models extant or extinct? J Adv Nurs 1998;8(1):77-85] and commonly used in practice. However, UK nurses in practice continue to be dissatisfied with conceptual model use [Griffiths P. An investigation into the description of patients' problems by nurses using two different needs-based nursing models. J Adv Nurs 1998;28(5):969-977, Mason C. Guide to practice or 'load of rubbish'? The influence of care plans on nursing practice in five clinical areas in Northern Ireland. J Adv Nurs 1999;29(2):380-387, Murphy K, Cooney A, Casey D, Connor M, O'Connor J., Dineen B. The Roper, Logan and Tierney Model: perceptions and operationalization of the model in psychiatric nursing within one health board in Ireland. J Adv Nurs 2000;31(6):1333-1341]. An association with increased paperwork and documentation together with a belief that these abstract concepts do not quite fit with the practice setting has resulted in a generalised apathy towards their use in some areas [Timmins F. Critical care nursing in the 21st Century. Intensive Crit Care Nurs 2002;18:118-127]. In an era of concerns about both cost and quality, together with an increased impetus towards multi-professional working patterns and role expansion, alternative models of care, such as critical pathways and care pathways are gaining increased favour in the clinical setting [Johnson S, editor. Pathways of care. Oxford; Blackwell Science 1997]. The aim of this paper is to consider whether or not the traditional conceptual models of nursing are apt for today's practicing coronary care nurse. Specific questions to be addressed are: what is the research evidence that informs conceptual model use in coronary care and what are the conceptual models that commonly inform contemporary practice in coronary care nursing? Suggested ways forward for conceptual model use within nursing are also proposed.
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- 2006
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16. Gender equity in medical publications: nurses have smashed the glass ceiling.
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Feral-Pierssens, Anne-Laure, Avondo, Aurélie, De Stefano, Carla, Deltour, Sandrine, and Lapostolle, Frédéric
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PUBLISHING ,GENDER inequality - Abstract
Introduction: Gender equity has become a major concern in many professional fields. The rate of women as authors has to be interpreted according to the rate of women in the related professions. In this perspective, studying nurses' population should be of particular interest since, worldwide, nurses are mostly women. Then, our aim was to study gender disparity in nurses' publications. Methods: We selected the three main journals dedicated to nurse publications: International Journal of Nursing Studies, Journal of Nursing Scholarship, and European Journal of Cardiovascular Nursing. We included 20 recent consecutive papers from each journal. For each paper, the number of authors, their gender, and rank were recorded. Primary endpoint: overall rate of women as authors. Secondary endpoints: rate of women as first, last, second, and third authors. Results: Sixty papers including 322 authors were analysed. Overall rate of women authors: 74%. Overall rate of women as first author: 82%. Overall rate of women as last author: 72%. Overall rate of women as second and third authors: respectively, 80% and 70%. Conclusion: Almost three-quarters of the authors in these main scientific journals of nursing studies were female. This rate is lower than the gender rate in the nursing profession. [ABSTRACT FROM AUTHOR]
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- 2021
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17. Person-centred care: looking back, looking forward
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Inger Ekman, Patricia Olaya Contreras, and Zahra Ebrahimi
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Sweden ,Advanced and Specialized Nursing ,business.industry ,Steering committee ,030204 cardiovascular system & hematology ,Patient-centered care ,Self Care ,Clinical Practice ,03 medical and health sciences ,Medical–Surgical Nursing ,0302 clinical medicine ,Nursing ,Research centre ,Patient-Centered Care ,Surveys and Questionnaires ,Humans ,Medicine ,Position paper ,030212 general & internal medicine ,Cardiology and Cardiovascular Medicine ,business - Abstract
An interdisciplinary group of clinical and non-clinical academics in Sweden created a research centre for the study of person-centred care (PCC) in long-term illness: the University of Gothenburg Centre for Person-Centred Care (GPCC). The GPCC steering committee formulated a position paper with three ‘simple routines’ to initiate, implement, and safeguard PCC in daily clinical practice. The EJCN accepted this position paper for publication in 2011. This brief review seeks to present how PCC, as defined in the position paper, has been used in research and published in EJCN during the past 5 years (2016–20). Clinical implications and future research in PCC are also suggested.
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- 2021
18. Strategies for improving diversity, equity, and inclusion in cardiovascular research: a primer.
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Prichard, Roslyn, Maneze, Della, Straiton, Nicola, Inglis, Sally C, and McDonagh, Julee
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PATIENT selection , *CARDIOVASCULAR diseases , *DIVERSITY & inclusion policies , *DATA analysis , *INTERPROFESSIONAL relations , *STATISTICAL sampling , *HUMAN research subjects , *MEDICAL research , *RESEARCH methodology , *ACQUISITION of data , *BUDGET , *PATIENT participation - Abstract
This paper aims to empower cardiovascular (CV) researchers by promoting diversity, equity, and inclusion (DE&I) principles throughout the research cycle. It defines DE&I and introduces practical strategies for implementation in recruitment, retention, and team dynamics within CV research. Evidence-based approaches supporting underrepresented populations' participation are outlined for each research phase. Emphasizing the significance of inclusive research environments, the paper offers guidance and resources. We invite CV researchers to actively embrace DE&I principles, enhancing research relevance and addressing longstanding CV health disparities. [ABSTRACT FROM AUTHOR]
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- 2024
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19. Factors affecting women's participation in cardiovascular research: a scoping review.
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Matthews, Stacey, Cook, Samantha, Clayton, Tim, Murray, Sarah, Wynne, Rochelle, and Sanders, Julie
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MEDICAL information storage & retrieval systems , *WOMEN , *CARDIOVASCULAR diseases , *HEALTH status indicators , *SEX distribution , *CINAHL database , *SYSTEMATIC reviews , *MEDLINE , *MEDICAL research , *LITERATURE reviews , *PATIENT participation - Abstract
Aims Women are underrepresented in cardiovascular trials. We sought to explore the proportional representation of women in contemporary cardiovascular research and the factors (barriers and enablers) that affect their participation in cardiovascular studies. Methods and results Multiple electronic databases were searched between January 2011 and September 2021 to identify papers that defined underrepresentation of women in cardiovascular research and/or reported sex-based differences in participating in cardiovascular research and/or barriers for women to participate in cardiovascular research. Data extraction was undertaken independently by two authors using a standardised data collection form. Results were summarised using descriptive statistics and narrative synthesis as appropriate. From 548 identified papers, 10 papers were included. Of those, four were conducted prospectively and six were retrospective studies. Five of the retrospective studies involved secondary analysis of trial data including over 780 trials in over 1.1 million participants. Overall, women were reported to be underrepresented in heart failure, coronary disease, myocardial infarction, and arrhythmia trials, compared to men. Barriers to participation included lack of information and understanding of the research, trial-related procedures, the perceived health status of the participant, and patient-specific factors including travel, childcare availability, and cost. A significantly higher likelihood of research participation was reported by women following a patient educational intervention. Conclusion This review has highlighted the underrepresentation of women in a range of cardiovascular trials. Several barriers to women's participation in cardiovascular studies were identified. Researchers could mitigate against these in future trial planning and delivery to increase women's participation in cardiovascular research. Registration The protocol was published on the public Open Science Framework platform on 13th August 2021 (no registration reference provided) and can be accessed at https://osf.io/ny4fd/. [ABSTRACT FROM AUTHOR]
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- 2024
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20. Delivering healthcare remotely to cardiovascular patients during COVID-19: A rapid review of the evidence.
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Neubeck, Lis, Hansen, Tina, Jaarsma, Tiny, Klompstra, Leonie, and Gallagher, Robyn
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CARDIOVASCULAR disease diagnosis ,CINAHL database ,HEALTH services accessibility ,LABOR supply ,MEDICAL consultation ,MEDLINE ,ONLINE information services ,QUARANTINE ,SOCIAL isolation ,TELEMEDICINE ,SYSTEMATIC reviews ,HEALTH insurance reimbursement ,COVID-19 - Abstract
Background: Although attention is focused on addressing the acute situation created by the COVID-19 illness, it is imperative to continue our efforts to prevent cardiovascular morbidity and mortality, particularly during a period of prolonged social isolation which may limit physical activity, adversely affect mental health and reduce access to usual care. One option may be to deliver healthcare interventions remotely through digital healthcare solutions. Therefore, the aim of this paper is to bring together the evidence for remote healthcare during a quarantine situation period to support people living with cardiovascular disease during COVID-19 isolation. Methods: The PubMed, CINAHL and Google Scholar were searched using telehealth OR digital health OR mHealth OR eHealth OR mobile apps AND COVID-19 OR quarantine search terms. We also searched for literature relating to cardiovascular disease AND quarantine. Results: The literature search identified 45 potentially relevant publications, out of which nine articles were included. Three overarching themes emerged from this review: (1) preparing the workforce and ensuring reimbursement for remote healthcare, (2) supporting mental and physical health and (3) supporting usual care. Conclusion: To support people living with cardiovascular disease during COVID-19 isolation and to mitigate the effects of quarantine and adverse effect on mental and physical well-being, we should offer remote healthcare and provide access to their usual care. [ABSTRACT FROM AUTHOR]
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- 2020
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21. Factors influencing health-related quality of life of patients with a left ventricular assist device: a systematic review and thematic synthesis.
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Levelink, Michael and Brütt, Anna Levke
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MENTAL health ,QUALITY of life ,ONLINE information services ,PSYCHOLOGY information storage & retrieval systems ,CINAHL database ,COMPUTER software ,SOCIAL support ,SYSTEMATIC reviews ,SELF-perception ,EVALUATION ,GROUNDED theory ,HEART assist devices ,HEALTH outcome assessment ,NARRATIVES ,QUALITATIVE research ,SOCIAL context ,MEDLINE ,THEMATIC analysis ,EMOTIONS ,DATA analysis software ,HEART failure ,HEALTH self-care - Abstract
Aims Left ventricular assist devices (LVADs) are increasingly being used in the treatment of advanced heart failure. Left ventricular assist device patients frequently report improvements in health-related quality of life (HRQOL) post-implantation. However, HRQOL varies over time and between patients, which can be explained by patient-related and environmental factors, as individual studies suggest. This review aims to synthesize qualitative evidence on factors influencing HRQOL of LVAD patients. Methods and results We systematically searched the databases PubMed, Scopus, PsycINFO, and CINAHL for qualitative studies on factors influencing HRQOL of patients with continuous flow LVADs. The included papers were synthesized using a thematic synthesis. The results were validated in discussion with a patient and practical implications were jointly developed. We included 11 papers and developed 7 themes that represent influencing factors for HRQOL of LVAD patients: disease experiences , emotional reactivity , heart failure and mechanical circulatory support symptoms , medical care , self-care , self-concept, and social environment. Conclusion The identified themes highlight influencing factors on HRQOL. These help to explain variation in patient outcomes and to better consider the individual situation in rehabilitation. Based on the results, four strategies are proposed for promoting psychosocial outcomes: facilitate self-care, ensure social support, offer psychosocial support, and manage patient expectations. [ABSTRACT FROM AUTHOR]
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- 2021
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22. Spontaneous coronary artery dissection: a systematic review of physical and psychosocial recovery following discharge from hospital.
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Neubeck, Lis, McHale, Sheona, Ross, Mark, MacGillivray, Steve, Galbraith, Mary, and Hanson, Coral
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ARTERIAL dissections ,CARDIOVASCULAR diseases risk factors ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL information storage & retrieval systems ,CONVALESCENCE ,SYSTEMATIC reviews ,HEALTH outcome assessment ,PHYSICAL activity ,RISK assessment ,CORONARY artery disease ,CARDIAC rehabilitation ,CHEST pain ,QUALITY assurance ,DESCRIPTIVE statistics ,RESEARCH funding ,MEDLINE - Abstract
Background Spontaneous coronary artery dissection (SCAD) is increasingly recognized as an important cause of myocardial infarction, particularly among women. Spontaneous coronary artery dissection survivors may not know what physical activity is safe and effective, and there may be a psychosocial burden of living with a SCAD diagnosis. Objectives This review aimed to determine the evidence regarding physical activity, cardiovascular risk factors, or associated factors, and the psychosocial impact of SCAD for SCAD survivors after hospital discharge. Design A systematic review was completed in accordance with PRISMA guidelines. Data Sources We searched Medline, Embase, CinAHL, PsychInfo, and Google Scholar until November 2021. Eligibility criteria for study selection Outcomes of interest were physical activity participation levels, cardiovascular risk factors and associated risk factors, and psychosocial recovery from SCAD. We included any study (qualitative or quantitative) that reported data pertinent to understanding the impact of SCAD on physical activity and psychosocial aspects of recovery. We also included papers that reported cardiovascular risk or associated risk factors where studies reported outcomes of SCAD survivors. We excluded papers that only provided information on in-hospital management. Any reports that were non-empirical were excluded. Results The review included 28 studies. These used a range of methods. None were randomized controlled trials. There were 4167 SCAD participants although some were sourced from the same SCAD registries, so they may not be unique. They were mainly female (n = 3897, 93.5%, range = 57.7–100%), with mean age 48.0 ± 9.8 years at index event. Participants mostly came from the USA, Canada, or The Netherlands. We found very limited evidence for cardiorespiratory fitness improvements following cardiac rehabilitation (CR). Existing CR was not tailored to SCAD specific needs and SCAD survivors lacked guidance about appropriate physical activity. Some participants had high levels of psychosocial distress. Spontaneous coronary artery dissection survivors highlighted the need for tailored support that included family members. Many SCAD survivors have traditional risk factors including hypertension, hyperlipidaemia, and overweight/obesity. Chest pain following SCAD is common. Conclusion There is an urgent need to develop physical and psychological recovery programmes for SCAD survivors and test effectiveness via randomized controlled trials. Psychosocial support is particularly required, given the high burden of psychosocial issues. Data registration Prospero CRD42021254798. [ABSTRACT FROM AUTHOR]
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- 2022
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23. A systematic review and meta-synthesis of the qualitative literature exploring the experiences and quality of life of survivors of a cardiac arrest.
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Haydon, Gunilla, van der Riet, Pamela, and Inder, Kerry
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ADAPTABILITY (Personality) ,ANXIETY ,CARDIAC arrest ,CARDIOPULMONARY resuscitation ,EMOTIONS ,HEALTH ,LIFE skills ,NEAR-death experiences ,QUALITY of life ,SYSTEMATIC reviews ,QUALITATIVE research ,BIBLIOGRAPHIC databases ,META-synthesis - Abstract
Background: Survival following cardiac arrest and subsequent cardiopulmonary resuscitation (CPR) is increasing worldwide, mainly due to greater awareness of the symptoms of cardiac events and an increased attention to CPR training. Although patient outcomes remain unpredictable and quantitative studies suggest that the overall quality of life (QOL) is acceptable, it is valuable to synthesise qualitative studies exploring these phenomena in depth, providing a deeper knowledge of survivors’ experiences and QOL. Aims: To critically appraise and synthesise the qualitative literature on survivors’ experiences of a cardiac arrest and CPR with the aim of identifying common themes that can inform clinical pathways and thereby improve survivor outcomes and QOL. Methods: A systematic review and meta-synthesis of the qualitative literature, using Thomas and Harden’s framework, and confined to peer-reviewed papers published from 2000 to 2015, which were identified through database searches of EBSCO, OVID and ProQuest. Results: The search produced 204 papers, and of these, seven relevant papers were identified for review. Data extraction included setting, participants, research design, data collection, analysis and themes. Five qualitative themes were identified and were the subject of this meta-synthesis: multitude of contrasting feelings; disruption in the continuum of time; new reality and psychological challenges; changed body with new limitations; and confrontation with death. Conclusion: This review provides insights into the experiences of survivors’ QOL after CPR. Increased knowledge can improve person-centred care in the immediate and forthcoming care after the event, both in terms of planning for discharge and in the future care of people who survive a cardiac arrest. [ABSTRACT FROM AUTHOR]
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- 2017
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24. Spatial methods for measuring access to health care.
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Beks, Hannah, Wood, Sarah M, Clark, Robyn A, and Vincent, Versace L
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HEALTH services accessibility ,HUMAN rights ,NURSING ,HEALTH service areas ,LABOR supply ,SPACE perception ,MEDICAL needs assessment - Abstract
Access to health care is a universal human right and key indicator of health system performance. Spatial access encompasses geographic factors mediating with the accessibility and availability of health services. Equity of health service access is a global issue, which includes access to the specialized nursing workforce. Nursing research applying spatial methods is in its infancy. Given the use of spatial methods in health research is a rapidly developing field, it is timely to provide guidance to inspire greater application in cardiovascular research. Therefore, the objective of this methods paper is to provide an overview of spatial analysis methods to measure the accessibility and availability of health services, when to consider applying spatial methods, and steps to consider for application in cardiovascular nursing research. Central Illustration: Central Illustration [ABSTRACT FROM AUTHOR]
- Published
- 2023
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25. Nurses as adverse drug reaction reporting advocates.
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Schjøtt, Jan, Pettersen, Trond R, Andreassen, Lillan Mo, and Bjånes, Tormod K
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NURSING education ,OCCUPATIONAL roles ,NURSING ,PHARMACOLOGY ,CARDIOVASCULAR agents ,HUMAN services programs ,NURSES ,AGING ,SUPPORT groups ,DRUG side effects ,COMMITMENT (Psychology) ,COMORBIDITY ,PATIENT safety - Abstract
Adverse drug reactions (ADRs) is a challenge in modern healthcare, particularly given the increasing complexity of drug therapy, an ageing population, rising multimorbidity, and a high patient turnover. The core activity of detecting potential ADRs over the last half century has been spontaneous reporting systems. A recent Norwegian regulation commits healthcare professionals other than physicians and dentists to report serious ADRs. In this discussion paper, we share our preliminary experience with a training programme using nurses as ADR advocates to stimulate ADR reporting among the clinical staff in a hospital department. Central Illustration: Central Illustration Nurses as adverse drug reaction (ADR) reporting advocates participating in pharmacovigilance (PV) at the Department of Heart Disease, Haukeland University Hospital, Bergen, Norway. The department is a 'lighthouse' (inspiring other departments) in PV in the hospital, and cooperates with the drug committee and the regional PV centre. Commitment is achieved through the department manager and the medical director in the hospital. In addition, a new national regulation commits healthcare professionals other than physicians and dentists to report serious ADRs. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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26. Impact of a heart failure nurse practitioner service on rehospitalizations, emergency presentations, and survival in patients hospitalized with acute heart failure.
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Driscoll, Andrea, Meagher, Sharon, Kennedy, Rhoda, Hare, David L., Johnson, Douglas F., Asker, Kristina, Farouque, Omar, Romaniuk, Helena, and Orellana, Liliana
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MEDICAL quality control ,HYPERTENSION ,NURSING ,HOSPITAL emergency services ,SCIENTIFIC observation ,CARDIAC nursing ,PATIENT readmissions ,RETROSPECTIVE studies ,ACQUISITION of data ,HYPERCHOLESTEREMIA ,MEDICAL care use ,CARDIOVASCULAR nurses ,COMPARATIVE studies ,RANDOMIZED controlled trials ,MEDICAL records ,RESEARCH funding ,HEART failure treatment ,HEART failure ,ACUTE diseases ,LONGITUDINAL method ,SYMPTOMS - Abstract
Aims Heart failure nurse practitioners (HF NPs) are an emerging component of the heart failure (HF) specialist workforce but their impact in an inpatient setting is untested. The aim of this paper is to explore the impact of an inpatient HF NP service on 12- month all-cause rehospitalizations, emergency department (ED) presentations, and mortality in patients hospitalized with HF compared with usual hospital care. Methods and results Retrospective, two-group comparative design involving patients (n= 408) admitted via ED with acute HF to a metropolitan quaternary hospital between January 2013 and August 2017. Doubly robust estimation with augmented inverse probability weighting (DR-AIPW) was used to account for the non-random allocation of patients to usual hospital care or the HF NP service in addition to usual in-hospital care. Among 408 patients (186 usual care and 222 HF NP service) admitted with acute HF, the mean age was 76.5 [standard deviation (SD) 12.0] years and 56.4% (n=230) were male. After IPW adjustment, patients seen by the HF NP service had a lower risk of 12-month rehospitalization (61.3 vs. 78.3% usual care; difference -16.9%, 95% CI: -26.4%, -6.6%) and ED presentations (12.6 vs. 22.0%; difference -9.4%, 95% CI: -17.3%, -1.4%) with no difference in 6- or 12-month mortality. The HF NP service improved referrals to a home visiting programme that was available to HF patients (64.4 vs. 45.4%; difference 19%, 95% CI: 8.8%, 28.8%). Conclusion Additional support by an inpatient HF NP service has the potential to significantly reduce rehospitalizations and ED presentations over 12 months. Further evidence from a multicentre randomized control trial is warranted. [ABSTRACT FROM AUTHOR]
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- 2023
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27. Person-centred care: looking back, looking forward.
- Author
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Ekman, Inger, Ebrahimi, Zahra, and Contreras, Patricia Olaya
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PREVENTION of chronic diseases ,PATIENT-centered care ,HUMAN services programs ,MEDICAL protocols ,HEALTH care teams ,COMMUNICATION ,PATIENT-professional relations ,LISTENING ,PATIENT safety - Abstract
An interdisciplinary group of clinical and non-clinical academics in Sweden created a research centre for the study of person-centred care (PCC) in long-term illness: the University of Gothenburg Centre for Person-Centred Care (GPCC). The GPCC steering committee formulated a position paper with three 'simple routines' to initiate, implement, and safeguard PCC in daily clinical practice. The EJCN accepted this position paper for publication in 2011. This brief review seeks to present how PCC, as defined in the position paper, has been used in research and published in EJCN during the past 5 years (2016-20). Clinical implications and future research in PCC are also suggested. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
28. Predictors of cognitive dysfunction after cardiac surgery: a systematic review.
- Author
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Bowden, Tracey, Hurt, Catherine S, Sanders, Julie, and Aitken, Leanne M
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COGNITION disorders ,CARDIAC surgery ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,PREOPERATIVE period ,SYSTEMATIC reviews ,SURGICAL complications ,SURGERY ,PATIENTS ,RISK assessment ,RESEARCH funding - Abstract
Aims Postoperative cognitive dysfunction (POCD) is often experienced by cardiac surgery patients; however, it is not known if some groups of patients experience this more frequently or severely than others. The aim of this systematic review was to identify preoperative and postoperative predictors of cognitive dysfunction in adults following cardiac surgery. Methods and results Eight bibliographic databases were searched (January 2005 to March 2021) in relation to cardiac surgery and cognition. Studies including adult patients who had undergone open cardiac surgery and using a validated measurement of cognitive function were included. Full-text review for inclusion, quality assessment, and data extraction were undertaken independently by two authors. A total of 2870 papers were identified, of which 36 papers met the inclusion criteria and were included in the review. The majority were prospective observational studies [ n = 28 (75.7%)]. In total, 61 independent predictors (45 preoperative and 16 postoperative) were identified as significant in at least one study; advancing age and education level appear important. Age has emerged as the most common predictor of cognitive outcome. Conclusion Although a number of predictors of POCD have been identified, they have inconsistently been reported as significantly affecting cognitive outcome. Consistent with previous research, our findings indicate that older patients and those with lower educational levels should be prioritized when developing and trialling interventions to improve cognitive function. These findings are less than surprising if we consider the methodological shortcomings of included studies. It is evident that further high-quality research exploring predictors of POCD is required. Registration This review was registered on Prospero, CRD42020167037 [ABSTRACT FROM AUTHOR]
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- 2022
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29. Patient decision aids for aortic stenosis and chronic coronary artery disease: a systematic review and meta-analysis.
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Harris, Emma, Benham, Alex, Stephenson, John, Conway, Dwayne, Chong, Aun-Yeong, Curtis, Helen, and Astin, Felicity
- Subjects
- *
AORTIC stenosis treatment , *PATIENT education , *MEDICAL information storage & retrieval systems , *HEALTH literacy , *DECISION making , *META-analysis , *DESCRIPTIVE statistics , *SYSTEMATIC reviews , *MEDLINE , *HEART valve prosthesis implantation , *MEDICAL databases , *PERCUTANEOUS coronary intervention , *CORONARY artery disease , *QUALITY assurance , *CONFIDENCE intervals , *PSYCHOLOGY information storage & retrieval systems - Abstract
Aims Shared decision-making is recommended for patients considering treatment options for severe aortic stenosis (AS) and chronic coronary artery disease (CAD). This review aims to systematically identify and assess patient decision aids (PtDAs) for chronic CAD and AS and evaluate the international evidence on their effectiveness for improving the quality of decision-making. Methods and results Five databases (Cochrane, CINAHL, Embase, MEDLINE, and PsycInfo), clinical trial registers, and 30 PtDA repositories/websites were searched from 2006 to March 2023. Screening, data extraction, and quality assessments were completed independently by multiple reviewers. Meta-analyses were conducted using Stata statistical software. Eleven AS and 10 CAD PtDAs were identified; seven were less than 5 years old. Over half of the PtDAs were web based and the remainder paper based. One AS and two CAD PtDAs fully/partially achieved international PtDA quality criteria. Ten studies were included in the review; four reported on the development/evaluation of AS PtDAs and six on CAD PtDAs. Most studies were conducted in the USA with White, well-educated, English-speaking participants. No studies fulfilled all quality criteria for reporting PtDA development and evaluation. Meta-analyses found that PtDAs significantly increased patient knowledge compared with 'usual care' (mean difference: 0.620; 95% confidence interval 0.396–0.845, P < 0.001) but did not change decisional conflict. Conclusion Patients who use PtDAs when considering treatments for AS or chronic CAD are likely to be better informed than those who do not. Existing PtDAs may not meet the needs of people with low health literacy levels as they are rarely involved in their development. Registration PROSPERO: CRD42021264700. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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30. Transcribing in the digital age: qualitative research practice utilizing intelligent speech recognition technology.
- Author
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Eftekhari, Helen
- Subjects
- *
AUTOMATIC speech recognition , *DIGITAL technology , *DOCUMENTATION , *COST control , *DATA security , *COMPARATIVE grammar , *TRANSLATIONS , *INTERVIEWING , *ALGORITHMS , *TIME ,RESEARCH evaluation - Abstract
The digital revolution provides many opportunities for researchers to develop and evolve data collection methods. A key process in qualitative research data collection is the transcription of interviews, focus groups or fieldwork notes. Transcription is the process of converting audio, video or notes into accessible written format for qualitative data analysis. Transcribing can be time intensive, costly and laborious with decisions and methods of transcribing requiring transparency. The development of intelligent speech recognition technology can change how qualitative data is transcribed. This methods paper describes audio data transcribing, current challenges, opportunities and implications in using intelligent speech recognition technology for transcribing. An application of this methodology is presented. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
31. The impact of the COVID-19 pandemic on recovery from cardiac surgery: 1-year outcomes.
- Author
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Sanders, Julie, Bueser, Teofila, Beaumont, Emma, Dodd, Matthew, Murray, Sarah E, Owens, Gareth, Berry, Alan, Hyde, Edward, Clayton, Tim, and Oo, Aung Ye
- Subjects
CARDIAC surgery ,MEDICAL quality control ,PREOPERATIVE care ,SCIENTIFIC observation ,SOCIAL support ,CONFIDENCE intervals ,CONVALESCENCE ,POSTOPERATIVE care ,RETROSPECTIVE studies ,ACQUISITION of data ,TREATMENT effectiveness ,COMPARATIVE studies ,QUESTIONNAIRES ,DESCRIPTIVE statistics ,MENTAL depression ,MEDICAL records ,ANXIETY ,COVID-19 pandemic ,LONGITUDINAL method ,EVALUATION - Abstract
Aims The outbreak of COVID-19 was potentially stressful for everyone and possibly heightened in those having surgery. We sought to explore the impact of the pandemic on recovery from cardiac surgery. Methods and results A prospective observational study of 196 patients who were ≥18years old undergoing cardiac surgery between March 23 and July 4, 2020 (UK lockdown) was conducted. Those too unwell or unable to give consent/complete the questionnaires were excluded. Participants completed (on paper or electronically) the impact of event [Impact of Events Scale-revised (IES-R)] (distress related to COVID-19), depression [Centre for Epidemiological Studies Depression Scale (CES-D)], and EQ-5D-5L [(quality of life, health-related quality of life (HRQoL)] questionnaires at baseline, 1 week after hospital discharge, and 6 weeks, 6 months and 1 year post-surgery. Questionnaire completion was >75.0% at all timepoints, except at 1 week (67.3%). Most participants were male [147 (75.0%)], white British [156 (79.6%)] with an average age 63.4years. No patients had COVID-19. IES-R sand CES-D were above average at baseline (indicating higher levels of anxiety and depression) decreasing over time. HRQoL pre-surgery was high, reducing at 1 week but increasing to almost pre-operative levels at 6 weeks and exceeding pre-operative levels at 6 months and 1 year. IES-R and CES-D scores were consistently higher in women and younger patients with women also having poorer HRQoL up to 1-year after surgery. Conclusions High levels of distress were observed in patients undergoing cardiac surgery during the COVID-19 pandemic with women and younger participants particularly affected. Psychological support pre- and post-operatively in further crises or traumatic times should be considered to aid recovery. Registration Clinicaltrials.gov ID:NCT04366167. [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
32. Survival analysis 101: an easy start guide to analysing time-to-event data.
- Author
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Denfeld, Quin E, Burger, Debora, and Lee, Christopher S
- Subjects
LOG-rank test ,RISK assessment ,SURVIVAL analysis (Biometry) ,NURSING research ,KAPLAN-Meier estimator ,CARDIOVASCULAR disease nursing ,STATISTICAL models ,HEART failure ,NURSING assessment ,PROPORTIONAL hazards models - Abstract
Survival analysis, also called time-to-event analysis, is a common approach to handling event data in cardiovascular nursing and health-related research. Survival analysis is used to describe, explain, and/or predict the occurrence and timing of events. There is a specific language used and methods designed to handle the unique nature of event data. In this methods paper, we provide an 'easy start guide' to using survival analysis by (i) providing a step-by-step guide and (ii) applying the steps with example data. Specifically, we analyse cardiovascular event data over 6 months in a sample of patients with heart failure. [ABSTRACT FROM AUTHOR]
- Published
- 2023
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- View/download PDF
33. Response to letter to the editor on: Interpreting the effectiveness of cognitive behavioural therapy (CBT) and self-management strategies in heart failure patients for improving sleep', in response to the article—'coping, symptoms, and insomnia among people with heart failure during the COVID-19 pandemic.'
- Author
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Redeker, Nancy S, O'Connell, Meghan, and Conley, Samantha
- Subjects
BEHAVIOR therapy ,SLEEP disorders ,TREATMENT effectiveness ,SLEEP ,PSYCHOLOGICAL adaptation ,INSOMNIA ,HEART failure ,HEALTH self-care ,COGNITIVE therapy ,PSYCHOLOGICAL stress ,DISEASE complications - Abstract
The article focuses on responding to comments regarding a previous study on cognitive behavioral therapy and self-management strategies for improving sleep in heart failure patients, and explains the absence of symptom clusters in a report due to sample size constraints.
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- 2023
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- View/download PDF
34. Meeting support needs for informal caregivers of people with heart failure: a rapid review.
- Author
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Carleton-Eagleton, Katherine, Walker, Iain, Freene, Nicole, and Gibson, Diane
- Subjects
SERVICES for caregivers ,WELL-being ,SELF-management (Psychology) ,BURDEN of care ,MENTAL depression ,QUALITY of life ,NEEDS assessment ,EMOTIONS ,ANXIETY ,HEART failure ,MEDICAL research - Abstract
Aims To explore whether a support-based intervention for informal caregivers of people with heart failure changes their psychosocial and emotional wellbeing. Background Successful self-management of heart failure includes addressing the psychosocial and emotional wellbeing needs of informal caregivers. However, there is limited evidence of how caregivers are supported in this way. Methods and results A rapid review was conducted searching four electronic databases with restrictions to dates January 1996 - September 2019. Specific inclusion and exclusion criteria were applied, and the first author reviewed articles based on title, abstract and then full text, before articles were assessed for conclusions and outcomes. Six studies met the criteria for review. The key caregiver outcomes were burden, depression/anxiety, and quality of life. Significant reductions in caregiver burden were demonstrated in the three studies that measured this outcome. There were mixed results for the outcome measures of depression/anxiety, as well as quality of life, with some interventions demonstrating either significant reductions in depression or anxiety scores, or increases in quality of life scores. Conclusion With only six studies included in this rapid review, it is not possible to make any definitive conclusions regarding the success, or otherwise, of interventions for caregivers of people with heart failure to improve their psychosocial and emotional wellbeing. Whilst some papers would tend to suggest that such interventions can reduce caregiver burden, there is a need to interrogate further interventions in this area to fill the current gap in the literature. [ABSTRACT FROM AUTHOR]
- Published
- 2021
- Full Text
- View/download PDF
35. Patient journey mapping: emerging methods for understanding and improving patient experiences of health systems and services.
- Author
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Bulto, Lemma N, Davies, Ellen, Kelly, Janet, and Hendriks, Jeroen M
- Subjects
- *
HEALTH services accessibility , *INTERPROFESSIONAL relations , *DATA analysis , *MEDICAL care , *WORK design , *PATIENT-centered care , *CONTENT mining , *TECHNOLOGY , *PATIENT satisfaction , *QUALITY assurance , *HEALTH outcome assessment , *STAKEHOLDER analysis , *PATIENTS' attitudes , *MEDICAL referrals - Abstract
Patient journey mapping is an emerging field of research that uses various methods to map and report evidence relating to patient experiences and interactions with healthcare providers, services, and systems. This research often involves the development of visual, narrative, and descriptive maps or tables, which describe patient journeys and transitions into, through, and out of health services. This methods corner paper presents an overview of how patient journey mapping has been conducted within the health sector, providing cardiovascular examples. It introduces six key steps for conducting patient journey mapping and describes the opportunities and benefits of using patient journey mapping and future implications of using this approach. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
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36. Incorporating reproductive system history data into cardiovascular nursing research to advance women's health.
- Author
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Davis, Mary Roberts, Hiatt, Shirin O, Gupta, Nandita, Dieckmann, Nathan F, Hansen, Lissi, and Denfeld, Quin E
- Subjects
- *
RISK assessment , *MEDICAL history taking , *CARDIOVASCULAR diseases , *REPRODUCTIVE health , *DATABASE management , *HEALTH , *QUESTIONNAIRES , *INFORMATION resources , *CARDIOVASCULAR diseases risk factors , *NURSING research , *CONTENT mining , *ELECTRONIC health records , *MEDICAL records , *ACQUISITION of data , *WOMEN'S health - Abstract
The lack of sex-specific variables, such as reproductive system history (RSH), in cardiovascular research studies is a missed opportunity to address the cardiovascular disease (CVD) burden, especially among women who face sex-specific risks of developing CVD. Collecting RSH data from women enrolled in research studies is an important step towards improving women's cardiovascular health. In this paper, we describe two approaches to collecting RSH in CVD research: extracting RSH from the medical record and participant self-report of RSH. We provide specific examples from our own research and address common data management and statistical analysis problems when dealing with RSH data in research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
37. The science of clinical quality registries.
- Author
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Parker, Kirsten J, Hickman, Louise D, and Ferguson, Caleb
- Subjects
REPORTING of diseases ,MEDICAL care ,BENCHMARKING (Management) ,DATABASE management ,QUALITY assurance ,DATA security ,QUALITY control ,MEDICAL informatics - Abstract
Clinical quality registries can be a transformational tool to improve healthcare delivery. Clinical registries with an incorporated quality emphasis identify evidence-practice gaps, inform quality improvement, and provide foundational research data to examine and improve health-related outcomes. For registries to create an impact it is essential that clinicians and researchers understand historical context, importance, advantages, and key criticisms. This methodological paper highlights the skills and capabilities required to build and maintain a robust clinical quality registry. This includes key measures to ensure data security, quality control, ongoing operational components, and benchmarking of care outcomes. Graphical Abstract [ABSTRACT FROM AUTHOR]
- Published
- 2023
- Full Text
- View/download PDF
38. Designing and conducting qualitative research across countries and cultures: challenges for inclusiveness and rigour.
- Author
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Cuoco, Angela, Arcadi, Paola, Figura, Maria Chiara, Piervisani, Loredana, Alvaro, Rosaria, Vellone, Ercole, and Durante, Angela
- Subjects
CULTURE ,EXPERIMENTAL design ,HUMAN research subjects ,PARTICIPANT-researcher relationships ,LINGUISTICS ,PATIENT selection ,CULTURAL pluralism ,QUALITATIVE research ,CONTENT mining ,CULTURAL prejudices ,DATA analysis ,DATA analysis software ,CULTURAL awareness - Abstract
Qualitative research is fundamental to understanding the nature and complexity of human phenomena. While cultural and psychometric validations exist for quantitative tools, the same cannot be said of qualitative ones. There are other many challenges when conducting a multinational qualitative study, which includes different cultural and linguistic 'biases'. This paper presents some key issues that researchers may encounter when designing and developing multinational and multicultural qualitative studies, and also provides some strategies to overcome difficulties and ensure rigour. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
39. Now you see it! Using wearable cameras to gain insights into the lived experience of cardiovascular conditions.
- Author
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Nourse, Rebecca, Cartledge, Susie, Tegegne, Teketo, Gurrin, Cathal, and Maddison, Ralph
- Subjects
CARDIOVASCULAR disease prevention ,PRIVACY ,DIGITAL image processing ,SELF-management (Psychology) ,WEARABLE technology ,ACTIVITIES of daily living ,EXPERIENCE ,CONTENT mining ,HUMAN services programs ,PHOTOGRAPHY ,COST analysis ,AUTOMATION ,MEDICAL ethics ,MEDICAL research ,HEART failure ,NURSING interventions - Abstract
Wearable cameras offer an innovative way to discover new insights into the lived experience of people with cardiovascular conditions. Wearable cameras can be used alone or supplement more traditional research methods, such as interviews and participant observations. This paper provides an overview of the benefits of using wearable cameras for data collection and outlines some key considerations for researchers and clinicians interested in this method. We provide a case study describing a study design using wearable cameras and how the data were used. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
40. Preoperative risk assessment tools for morbidity after cardiac surgery: a systematic review.
- Author
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Sanders, Julie, Makariou, Nicole, Tocock, Adam, Magboo, Rosalie, Thomas, Ashley, and Aitken, Leanne M
- Subjects
DISEASE risk factors ,SURGICAL complication risk factors ,CARDIAC surgery ,CINAHL database ,MEDICAL databases ,MEDICAL information storage & retrieval systems ,PREOPERATIVE period ,SYSTEMATIC reviews ,RISK assessment ,MEDLINE - Abstract
Background Postoperative morbidity places considerable burden on health and resources. Thus, strategies to identify, predict, and reduce postoperative morbidity are needed. Aims To identify and explore existing preoperative risk assessment tools for morbidity after cardiac surgery. Methods Electronic databases (including MEDLINE, CINAHL, and Embase) were searched to December 2020 for preoperative risk assessment models for morbidity after adult cardiac surgery. Models exploring one isolated postoperative morbidity and those in patients having heart transplantation or congenital surgery were excluded. Data extraction and quality assessments were undertaken by two authors. Results From 2251 identified papers, 22 models were found. The majority (54.5%) were developed in the USA or Canada, defined morbidity outcome within the in-hospital period (90.9%), and focused on major morbidity. Considerable variation in morbidity definition was identified, with morbidity incidence between 4.3% and 52%. The majority (45.5%) defined morbidity and mortality separately but combined them to develop one model, while seven studies (33.3%) constructed a morbidity-specific model. Models contained between 5 and 50 variables. Commonly included variables were age, emergency surgery, left ventricular dysfunction, and reoperation/previous cardiac surgery, although definition differences across studies were observed. All models demonstrated at least reasonable discriminatory power [area under the receiver operating curve (0.61–0.82)]. Conclusion Despite the methodological heterogeneity across models, all demonstrated at least reasonable discriminatory power and could be implemented depending on local preferences. Future strategies to identify, predict, and reduce morbidity after cardiac surgery should consider the ageing population and those with minor and/or multiple complex morbidities. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
41. experience of patients with an implantable cardioverter-defibrillator: a systematic review and meta-synthesis of qualitative studies.
- Author
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Barisone, Michela, Hayter, Mark, Ghirotto, Luca, Catania, Gianluca, Zanini, Milko, Molin, Alberto Dal, Sasso, Loredana, and Bagnasco, Annamaria
- Subjects
META-synthesis ,ONLINE information services ,CINAHL database ,PSYCHOLOGY information storage & retrieval systems ,SYSTEMATIC reviews ,IMPLANTABLE cardioverter-defibrillators ,FEAR ,SHOCK (Pathology) ,PATIENTS' attitudes ,EXPERIENCE ,SEX distribution ,FAMILY roles ,CARDIAC arrest ,QUALITY of life ,DESCRIPTIVE statistics ,MEDLINE ,THEMATIC analysis ,INFORMATION needs ,HEART failure - Abstract
Background The indication for implantable cardioverter-defibrillators (ICDs) to prevent sudden death is now consolidated. However, there is no unanimous agreement on how patients experience certain aspects of their lives after an ICD implant. Various clinical studies have evaluated the impact of ICDs on patient mortality, survival, and their beneficial effects. Given the growing number of qualitative studies, a synthesis of qualitative evidence became desirable. Aims To explore and synthesize the results of qualitative studies addressing the experiences of patients with an ICD. Methods We employed a systematic review and meta-synthesis. PubMed, CINAHL, and PsycINFO were systematically searched to identify qualitative studies published between January 2005 and October 2020, which investigate the experience of patients living with an ICD. Selected studies were assessed for quality by two reviewers independently. Results A total of 24 papers were selected. Six themes emerged: fear and insecurity, the need for information, new impacts on life, living with ICD shocks, gender differences, and the role of the family. These results could help clinicians and researchers to develop new strategies and interventions to improve the quality of life in these patients. Conclusion This meta-synthesis underlines the difficulties experienced by patients with ICD implants. Despite the advanced therapeutic management programmes for this type of intervention, it is necessary to adopt and implement the current post-discharge care plans, where the family's involvement is essential to help patients adapt to their new lifestyle. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
42. Understanding the family care dyad: A comparison of two multilevel models.
- Author
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Lyons, Karen S and Lee, Christopher S
- Subjects
CARDIOVASCULAR diseases ,CAREGIVERS ,CONFIDENCE ,FAMILY medicine ,HEART failure ,MEDICAL research ,HEALTH self-care ,STATISTICAL models - Abstract
Although there has been increasing attention on a dyadic perspective of illness, contemporary dyadic research methods are still rarely utilized in cardiovascular disease. The focus of this paper is to describe the advantages of two types of multilevel dyadic models (the matched pairs model and the lesser known incongruence model). Data exemplars in a sample of heart failure family dyads are used to illustrate the distinct advantages of these two related multilevel dyadic models with particular emphasis on alignment with research questions. The more commonly known matched pairs model examines separate outcomes for each member of the dyad, controlling for the interdependent nature of the data. By re-parameterizing this model into a univariate dyadic outcomes model, researchers can address distinct, and sometimes more appropriate, research questions (e.g. incongruent appraisals of the illness experience). This paper promotes greater application of these methods in cardiovascular research to further understanding of the dyadic experience and more appropriately target interventions. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
43. Takotsubo syndrome: voices to be heard.
- Author
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Curragh, Caron, Rein, Melanie, and Green, Gill
- Subjects
AGE distribution ,DIAGNOSTIC errors ,PSYCHOLOGY of cardiac patients ,PATIENT satisfaction ,PROFESSIONS ,SEX distribution ,TAKOTSUBO cardiomyopathy - Abstract
This paper is written from the perspective of patients who have been diagnosed with takotsubo syndrome. It seeks to understand why these patients may feel dissatisfied with the care they receive. We consider four factors: (a) takotsubo syndrome is a relatively new condition and the knowledge base about treatment is limited and not widely disseminated among clinicians; (b) the age and gender profile of the patient group; (c) the implications of the categorisation of takotsubo syndrome as 'broken heart syndrome' and the over-emphasis of it as a 'psychosomatic' condition; (d) concern that patients with takotsubo syndrome might be labelled as over-emotional, especially if they do not recover quickly. We argue that these factors contribute to patients with takotsubo syndrome feeling poorly served. [ABSTRACT FROM AUTHOR]
- Published
- 2020
- Full Text
- View/download PDF
44. Health economics in nursing research: what you need to know to include economic evaluation methodology in your research.
- Author
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Bulamu, Norma B, Kaambwa, Billingsley, Beks, Hannah, Versace, Vincent L, and Clark, Robyn A
- Subjects
- *
MEDICAL quality control , *EVALUATION of medical care , *MEDICAL care costs , *COST benefit analysis , *MEDICAL care use , *NURSING research , *COST analysis , *COST effectiveness , *DECISION making , *ECONOMICS - Abstract
Due to limited resources and constant, ever-changing healthcare challenges, health economics is essential to support healthcare decisions while improving health outcomes. Economic evaluation methodology facilitates informed decision-making related to the efficient allocation of resources while positively impacting clinical practice. In this paper, we provide an overview of economic evaluation methods and a real-world example applying one method of economic evaluation (cost-utility analysis) in nursing research. [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
45. Kinematic parameters related to functional capacity, fatigue, and breathlessness during the 6-min walk test in older adults with heart failure with preserved ejection fraction.
- Author
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Fuentes-Abolafio, Iván José, Trinidad-Fernández, Manuel, Ricci, Michele, Roldán-Jiménez, Cristina, Gómez-Huelgas, Ricardo, Arjona-Caballero, José María, Escriche-Escuder, Adrián, Bernal-López, María Rosa, Pérez-Belmonte, Luis Miguel, and Cuesta-Vargas, Antonio Ignacio
- Subjects
- *
EXERCISE tests , *STATISTICS , *VENTRICULAR ejection fraction , *SAMPLE size (Statistics) , *CONFIDENCE intervals , *FUNCTIONAL status , *CROSS-sectional method , *STERNUM , *MULTIPLE regression analysis , *GAIT in humans , *WEARABLE technology , *OXYGEN saturation , *DYSPNEA , *PEARSON correlation (Statistics) , *FUNCTIONAL assessment , *T-test (Statistics) , *WALKING , *HEART beat , *DESCRIPTIVE statistics , *DIAGNOSIS , *RESEARCH funding , *FATIGUE (Physiology) , *DATA analysis software , *HEART failure , *KINEMATICS , *OLD age - Abstract
Aims: This paper aims to assess kinematic parameters related to functional capacity, fatigue, and breathlessness during the 6-min walk test (6MWT) in patients with heart failure with preserved ejection fraction (HFpEF). Methods and results: A cross-sectional study was conducted in which adults 70 years or older with HFpEF were voluntarily recruited between April 2019 and March 2020. An inertial sensor was placed at the L3–L4 level and another on the sternum to assess kinematic parameters. The 6MWT was divided into two 3-min phases. Leg fatigue and breathlessness, assessed by the Borg scale, the heart rate (HR), and the oxygen saturation (SpO2), were measured at the beginning and the end of the 6MWT. The difference in kinematic parameters between the 6MWT two 3-min phases was also calculated. Bivariate Pearson correlations and subsequent multivariate linear regression analysis were performed. Seventy older adults with HFpEF (mean = 80.74 years old) were included. Kinematic parameters explained 81.00% of the functional capacity, 45.50% of the leg fatigue and 66.10% of the breathlessness variance. Moreover, kinematic parameters could explain 30.90% of the SpO2 variance at the end of the 6MWT. Kinematic parameters also explained 33.10% of the SpO2 difference between the beginning and end of 6MWT. Kinematic parameters explained neither the HR variance at the end of 6MWT nor the HR difference between the beginning and end. Conclusion: Gait kinematics from L3-L4 and sternum explain a part of the variance in subjective outcomes, assessed by the Borg scale, and objective outcomes such as functional capacity and SpO2. The kinematic assessment allows clinicians to quantify fatigue and breathlessness through objective parameters related to the patient's functional capacity. Registration: ClinicalTrials.gov NCT03909919. Graphical Abstract [ABSTRACT FROM AUTHOR]
- Published
- 2024
- Full Text
- View/download PDF
46. Using item response theory to develop and refine patient-reported outcome measures.
- Author
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Nguyen, Tam H, Lee, Christopher S, and Kim, Miyong T
- Subjects
EXPERIMENTAL design ,COMPUTER software ,RESEARCH evaluation ,RESEARCH methodology ,MATHEMATICAL models ,CALIBRATION ,HEALTH outcome assessment ,ACCURACY ,PARADIGMS (Social sciences) ,THEORY ,DECISION making ,PROBABILITY theory - Abstract
There is a long tradition of incorporating patient-reported outcomes (PROs) into nursing research and practice. Classical Test Theory (CTT) has been the traditional approach used to develop and refine PROs. Item response theory (IRT) offers promise for addressing measurement problems that have been difficult to solve using CTT. This paper presents foundational concepts in IRT to illustrate how it can be used to improve the development and refinement of PRO measures, with emphasis on interpreting key IRT parameters. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
47. Do coping strategies really affect cardiovascular events? The Isfahan cohort study of adults in Eastern Mediterranean Regional Office.
- Author
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Roohafza, Hamidreza, Askari, Mozhde, Nouri, Fatemeh, Talaei, Mohammad, Sarrafzadegan, Nizal, and Sadeghi, Masoumeh
- Subjects
MEDITERRANEAN peoples ,LIFESTYLES ,STATISTICAL significance ,HUMAN research subjects ,NOSOLOGY ,CONFIDENCE intervals ,MAJOR adverse cardiovascular events ,CARDIOVASCULAR diseases ,REGRESSION analysis ,MANN Whitney U Test ,INFORMED consent (Medical law) ,T-test (Statistics) ,QUESTIONNAIRES ,STRESS management ,DESCRIPTIVE statistics ,RESEARCH funding ,PSYCHOLOGICAL adaptation ,STATISTICAL sampling ,SOCIODEMOGRAPHIC factors ,DATA analysis software ,ODDS ratio ,LONGITUDINAL method ,PROPORTIONAL hazards models - Abstract
Aims Psychological factors are among the most suspected indicators which may cause atherosclerosis. Coping strategies modifying psychological stress may be significantly associated with health outcomes. However, little is known about the influence of adaptive and maladaptive coping strategies on major adverse cardiovascular disease (CVD) events. The purpose of this study is to examine this idea among a sample of adults. Design: cohort study. Methods and results The Isfahan cohort study (ICS) is a longitudinal population-based, prospective study. Participants ( N = 6323 individuals aged 35 years or greater at baseline) were selected by multistage random sampling with 6-year intervals (i.e. 2001: 6323 individuals, 2007: 3296 individuals, and 2013: 1706 individuals). Adaptive and maladaptive coping strategies were evaluated by a multicomponent self-administered stress management paper-based questionnaire. All CVD events were confirmed by a blinded panel of experts and a marginal cox regression model was used to model the survival data. Adaptive coping strategies could be protective against CVD events with hazard ratios (95% confidence interval) [0.97 (0.95–0.99)] and maladaptive coping strategies seem to be a risk factor, 1.02 (1.01–1.04) in the whole population. Individuals younger than 60 showed similar results, with 0.96 (0.93–0.98) and 1.04 (1.01–1.07) for adaptive and maladaptive coping strategies, respectively. However, these findings were not replicated among seniors older than age 60. Conclusion Based on our results, coping strategies have an important role in cardiovascular events, particularly among young adults. According to the results, informing patients about adaptive stress management may promote primary prevention of CVD events. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
48. Are digital citizen panels an innovative, deliberative approach to cardiovascular research?
- Author
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Siira, Elin and Wolf, Axel
- Subjects
CARDIOVASCULAR disease prevention ,HEALTH policy ,HEALTH services accessibility ,SOCIAL determinants of health ,PATIENT participation ,CLINICAL medicine research ,MEDICAL care ,HEALTH outcome assessment ,HEALTH ,INFORMATION resources ,POPULATION health ,HEALTH planning - Abstract
Online citizen panels are an innovative way to collect information about populations. They can help explain social determinants of health while involving citizens in research, allowing researchers to help the community, and advance cardiovascular research. This paper discusses the advantages and disadvantages of collecting information via online citizen panels and assesses these panels' potential in cardiovascular research. To exemplify such panels' use, we discuss a case study that utilized the Swedish Citizen Panel. [ABSTRACT FROM AUTHOR]
- Published
- 2022
- Full Text
- View/download PDF
49. Questionable research practices, careerism, and advocacy: why we must prioritize research quality over its quantity, impact, reach, and results.
- Author
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Clark, Alexander M and Thompson, David R
- Subjects
VOCATIONAL guidance ,SERIAL publications ,MOTIVATION (Psychology) ,CARDIOVASCULAR diseases ,RESEARCH ethics ,CONSUMER activism ,QUALITY assurance ,MEDICAL research ,AUTHORSHIP - Abstract
The article focuses on the prevalence of questionable research practices (QRPs), the negative effects they have on the public's trust in research, and the cultural pressures that incentivize the practices. Topic include understanding the nature of QRPs and the pressures researchers face to prioritize research quantity and career advancement over quality; and the pressure to prioritize research impact, reach, and quantity over quality is often a significant contributor to QRPs.
- Published
- 2023
- Full Text
- View/download PDF
50. The effects of statins on mood: a review of the literature.
- Author
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While, Alison and Keen, Louise
- Subjects
STATINS (Cardiovascular agents) ,CINAHL database ,MEDICAL databases ,COGNITION disorders ,AFFECT (Psychology) ,SYSTEMATIC reviews ,AFFECTIVE disorders ,MENTAL depression ,QUALITY assurance ,DESCRIPTIVE statistics ,MEDLINE ,ANXIETY ,FATIGUE (Physiology) ,ANGER - Abstract
Aim: To investigate the association between hydroxymethylglutaryl coenzyme A reductase inhibitors (statins) and mood disturbance. Background: The confirmation that high serum cholesterol levels increase the risk of coronary heart disease has resulted in statins becoming the most widely prescribed drugs in the treatment of hypercholesterolaemia. However, a positive relationship between low serum cholesterol levels and increased non-illness mortality from accidents and suicide has been reported. Method: Eight papers reporting the effect of statins on one or more of six mood states: depression, anxiety, anger, hostility, fatigue, confusion and vigour in adults older than 18 years were identified from a search of Cinahl, Medline and Cochrane electronic databases. The review focused on studies where the outcome of interest was self-reported mood disturbance as non-illness mortality is problematic. Key findings: Three papers reported some evidence of a positive association with depression, whilst another reported a decreased incidence of depression and the remainder reported no association. Of the six papers which studied anxiety, only one reported a statistically significant decrease in the incidence of anxiety. Two out of six papers reported increased aggression with statin usage, with one study further indicating a stronger effect with lypophylic statins. In contrast one paper reported an outcome of decreased hostility. Conclusion: This review found conflicting evidence of a relationship between statins and mood. Further research is recommended in particular with older, female and lower socioeconomic samples. However, nurses should be alert to the risk and ready to intervene in cases of mood disturbance. [ABSTRACT FROM AUTHOR]
- Published
- 2012
- Full Text
- View/download PDF
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