1. Feasibility of a school reintegration programme for children with acute lymphoblastic leukaemia.
- Author
-
Annett RD and Erickson SJ
- Subjects
- Adolescent, Adult, Child, Child, Preschool, Consumer Behavior, Feasibility Studies, Female, Humans, Male, Parents psychology, Precursor Cell Lymphoblastic Leukemia-Lymphoma psychology, Program Evaluation, Quality of Life, Social Support, Surveys and Questionnaires, Mainstreaming, Education organization & administration, Precursor Cell Lymphoblastic Leukemia-Lymphoma rehabilitation, Schools
- Abstract
Despite children with acute lymphoblastic leukaemia missing a significant amount of school, little empirical literature guides the optimal content, setting and timing of a school reintegration programme. We examined the feasibility of a 4-month school reintegration intervention by: (1) developing collaboration with a community-based advocacy organisation; (2) developing intervention modules and observable end points; and (3) determining how the study achieved recruitment expectations. Eight families with children aged 6-12 years diagnosed with acute lymphoblastic leukaemia and parents were enrolled in the study. An experienced advocate implemented a series of eight modules over a 4-month period (twice per month) with the families. Participants completed pre-post measures. Successful collaboration with the advocacy organisation and the development of an intervention module series were achieved. Recruitment aims proved more difficult: enrolment was extended when recruitment for the original 1- to 6-month post-diagnosis window proved difficult. The advocate was able to complete between three and seven of the modules (mean = 5.2, standard deviation = 1.5). Families preferred clinic-based intervention. Challenges faced and lessons learned include: (1) advocacy organisations may be useful resources for school reintegration interventions; (2) school reintegration interventions must be flexibly applied; and (3) measurement end points constructed to gauge programme effectiveness.
- Published
- 2009
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