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Start Over Search Limiters Available in Library Collection Topic research methodology Journal developmental medicine & child neurology Region canada Publisher wiley-blackwell
4 results

1. Losing a diagnosis of cerebral palsy: a comparison of variables at 2 and 5 years.

Author

Chen, Anjellica, Dyck Holzinger, Sasha, Oskoui, Maryam, Shevell, Michael, and Canadian Cerebral Palsy Registry

Subjects
CEREBRAL palsy, CHILDREN with cerebral palsy, LOGISTIC regression analysis, MAGNETIC resonance imaging, PREMATURE labor, RESEARCH, RESEARCH methodology, ACQUISITION of data, EVALUATION research, MEDICAL cooperation, COMPARATIVE studies, RESEARCH funding, LONGITUDINAL method
Abstract

Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2020
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2. International expert recommendations of clinical features to prompt referral for diagnostic assessment of cerebral palsy.

Author

Boychuck, Zachary, Andersen, John, Bussières, André, Fehlings, Darcy, Kirton, Adam, Li, Patricia, Oskoui, Maryam, Rodriguez, Charo, Shevell, Michael, Snider, Laurie, Majnemer, Annette, and Prompt Group

Subjects
CEREBRAL palsy, MEDICAL personnel, MEDICAL care, PRIMARY care, LIKERT scale, RESEARCH, RESEARCH methodology, EVALUATION research, MEDICAL cooperation, MEDICAL protocols, COMPARATIVE studies, MEDICAL referrals, RESEARCH funding, DELPHI method
Abstract

Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2020
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3. Family-centred health care for children with cerebral palsy.

Author

Shevell, Michael, Oskoui, Maryam, Wood, Ellen, Kirton, Adam, Van Rensburg, Esias, Buckley, David, Ng, Pamela, and Majnemer, Annette

Subjects
CHILDREN with cerebral palsy, CARE of children with disabilities, MEDICAL care of children with disabilities, FAMILY medicine, MEDICAL quality control, CEREBRAL palsy, CHILD health services, COMMUNICATION, COMPARATIVE studies, HEALTH care teams, RESEARCH methodology, MEDICAL cooperation, PSYCHOLOGY of parents, PATIENT satisfaction, QUESTIONNAIRES, REHABILITATION centers, RESEARCH, RESEARCH funding, CHILDREN with disabilities, SOCIOECONOMIC factors, EVALUATION research, ACQUISITION of data, CROSS-sectional method, SEVERITY of illness index, PATIENT-centered care
Abstract

Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2019
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4. Documenting change with the Canadian Occupational Performance Measure for children with cerebral palsy.

Author

Kang, Mani, Smith, Emma, Goldsmith, Charles H, Switzer, Lauren, Rosenbaum, Peter, Wright, Frances Virginia, and Fehlings, Darcy

Subjects
CHILDREN with cerebral palsy, PERFORMANCE in children, GENERALIZED estimating equations, LONGITUDINAL method, RESEARCH, AGE distribution, RESEARCH methodology, DISABILITY evaluation, ACTIVITIES of daily living, EVALUATION research, MEDICAL cooperation, SEVERITY of illness index, SEX distribution, COMPARATIVE studies, RESEARCH funding, CEREBRAL palsy
Abstract

Aim: To assess the Canadian Occupational Performance Measure's (COPM) ability to document change over 3 years in children with cerebral palsy (CP).Method: This was a prospective study with ambulatory children with CP, aged 2 to 6 years. Caregivers set one to three COPM goals which were rescored annually over 3 years. A ceiling effect for performance goals was operationalized as a score of 8. A Wald χ2 generalized estimating equations model adjusted for age, sex, and Gross Motor Function Classification System (GMFCS) level, evaluated change over time.Results: In total, 124 children (47 [37.9%] females, 77 [62.1%] males; mean age 3y 11mo [SD 1y 1mo]; GMFCS level I [n=78, 62.9%], II [n=21, 16.9%], and III [n=25, 20.2%]) were set 345 COPM goals at baseline. By Year 3, 106 participants (85.5%) rescored 287 of the goals (83.2%). Performance scores increased between baseline mean (SD) 2.93 (0.56), Year 1 5.98 (0.58) with 34.8% at ceiling; Year 2 6.74 (0.60) 48.3% at ceiling; and Year 3 7.37 (0.60) 59.6% at ceiling (Wald χ2 [3]=607.18, p<0.001). Satisfaction scores increased between baseline 4.42 (0.59), Year 1 6.82 (0.60) with 48% at ceiling; Year 2 7.53 (0.60) with 62.2% at ceiling (Wald χ2 [3]=208.48, p<0.001); with no significant increase by Year 3 7.82 (0.62) with 66.9% at ceiling.Interpretation: COPM performance scores increased steadily over 3 years. By Year 2, a ceiling effect was seen in about half of the goals. The COPM may have utility to measure change over 3 years; periodic resetting of the descriptors of goal success are required to minimize ceiling. [ABSTRACT FROM AUTHOR]

Published
2020
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