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1. Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy.

Author

Propp, Roni, McAdam, Laura, Davis, Aileen M, Salbach, Nancy M, Weir, Shannon, Encisa, Clarissa, and Narayanan, Unni G

Subjects
DUCHENNE muscular dystrophy, MUSCULAR dystrophy in children, HEALTH status indicators, QUALITY of life, PSYCHOMETRICS, DIAGNOSIS of Duchenne muscular dystrophy, TREATMENT of Duchenne muscular dystrophy, CAREGIVERS, COMPARATIVE studies, INTERVIEWING, RESEARCH methodology, MEDICAL cooperation, MEDICAL personnel, PARENTS, PSYCHOLOGY of children with disabilities, QUESTIONNAIRES, RESEARCH, RESEARCH funding, CHILDREN with disabilities, EVALUATION research
Abstract

Copyright of Developmental Medicine & Child Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)

Published
2019
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2. myTREEHOUSE Self-Concept Assessment: preliminary psychometric analysis of a new self-concept assessment for children with cerebral palsy.

Author

Cheong, Sau Kuan, Lang, Cathryne P, Hemphill, Sheryl A, and Johnston, Leanne M

Subjects
CEREBRAL palsy, MOVEMENT disorders in children, SELF-perception, TEST validity, BODY movement, COMPARATIVE studies, INTERVIEWING, RESEARCH methodology, MEDICAL cooperation, PATIENT satisfaction, PSYCHOLOGICAL tests, PSYCHOMETRICS, RESEARCH, RESEARCH evaluation, EVALUATION research, DIAGNOSIS, PSYCHOLOGY
Abstract

Aim: To evaluate the preliminary validity and reliability of the myTREEHOUSE Self-Concept Assessment for children with cerebral palsy (CP) aged 8 to 12 years.Method: The myTREEHOUSE Self-Concept Assessment includes 26 items divided into eight domains, assessed across three Performance Perspectives (Personal, Social, and Perceived) and an additional Importance Rating. Face and content validity was assessed by semi-structured interviews with seven expert professionals regarding the assessment construct, content, and clinical utility. Reliability was assessed with 50 children aged 8 to 12 years with CP (29 males, 21 females; mean age 10y 2mo; Gross Motor Function Classification System [GMFCS] level I=35, II=8, III=5, IV=1; mean Wechsler Intelligence Scale for Children - Fourth Edition [WISC-IV]=104), whose data was used to calculate internal consistency of the scale, and a subset of 35 children (20 males, 15 females; mean age 10y 5mo; GMFCS level I=26, II=4, III=4, IV=1; mean WISC-IV=103) who participated in test-retest reliability within 14 to 28 days.Results: Face and content validity was supported by positive expert feedback, with only minor adjustments suggested to clarify the wording of some items. After these amendments, strong internal consistency (Cronbach's α 0.84-0.91) and moderate to good test-retest reliability (intraclass correlation coefficient 0.64-0.75) was found for each component.Interpretation: The myTREEHOUSE Self-Concept Assessment is a valid and reliable assessment of self-concept for children with CP aged 8 to 12 years. [ABSTRACT FROM AUTHOR]

Published
2017
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