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Start Over Author "Wooton S" Journal cardiology in the young
2 results on '"Wooton S"'

1. The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States - CORRIGENDUM.

Author

Alsaied T, Allen KY, Anderson JB, Anixt JS, Brown DW, Cetta F, Cordina R, D'udekem Y, Didier M, Ginde S, Di Maria MV, Eversole M, Goldberg D, Goldstein BH, Hoffmann E, Kovacs AH, Lannon C, Lihn S, Lubert AM, Marino BS, Mullen E, Pickles D, Rathod RH, Rychik J, Tweddell JS, Wooton S, Wright G, Younoszai A, Glenn T, Wilmoth A, and Schumacher K

Published
2020
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2. The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States.

Author

Alsaied T, Allen KY, Anderson JB, Anixt JS, Brown DW, Cetta F, Cordina R, D'udekem Y, Didier M, Ginde S, Di Maria MV, Eversole M, Goldberg D, Goldstein BH, Hoffmann E, Kovacs AH, Lannon C, Lihn S, Lubert AM, Marino BS, Mullen E, Pickles D, Rathod RH, Rychik J, Tweddell JS, Wooton S, Wright G, Younoszai A, Glenn T, Wilmoth A, and Schumacher K

Subjects
Adult, Child, Humans, Longevity, Quality of Life, Registries, United States epidemiology, Fontan Procedure, Heart Defects, Congenital epidemiology, Heart Defects, Congenital surgery
Abstract

The Fontan Outcomes Network was created to improve outcomes for children and adults with single ventricle CHD living with Fontan circulation. The network mission is to optimise longevity and quality of life by improving physical health, neurodevelopmental outcomes, resilience, and emotional health for these individuals and their families. This manuscript describes the systematic design of this new learning health network, including the initial steps in development of a national, lifespan registry, and pilot testing of data collection forms at 10 congenital heart centres.

Published
2020
Full Text
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