1. Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors
- Author
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Amy J. Walker, Abby R. Rosenberg, Ellen H. Zahlis, Yuting Lin, and Frances Marcus Lewis
- Subjects
Male ,Parents ,Adolescent ,media_common.quotation_subject ,Adolescent cancer ,MEDLINE ,Coding (therapy) ,Survivorship ,Article ,Grounded theory ,Developmental psychology ,03 medical and health sciences ,0302 clinical medicine ,Cancer Survivors ,Neoplasms ,Survivorship curve ,Activities of Daily Living ,Humans ,Medicine ,media_common ,030504 nursing ,Oncology (nursing) ,business.industry ,humanities ,Cancer treatment ,Oncology ,Feeling ,030220 oncology & carcinogenesis ,Quality of Life ,Abandonment (emotional) ,Female ,0305 other medical science ,business ,Stress, Psychological - Abstract
Background Despite knowing the potential medical consequences of cancer treatment, little is known about how adolescents cognitively and emotionally frame, process, and manage in the early survivorship period. Objective The specific aims were to describe the worries, perceived challenges, and ways of dealing with these issues for adolescent cancer survivors in the early period of survivorship. Methods Twenty-nine adolescent survivors (12-18 years) completed a semistructured interview. Inductive coding methods adapted from grounded theory were used to analyze the data. Results Seven domains and 18 categories organized the adolescent's experience with early posttreatment survivorship. The domains included getting back to school; relationships with parents, siblings, friends; feeling changed by the experience; and concerns about relapse. Conclusions This study contributes to our understanding of survivors' relationships with parents, siblings, and friends and survivors' models of the illness. Future studies are needed to understand how parents can help adolescents assume greater responsibility for their care, to understand what it is like for friends to have a peer with cancer and what behaviors by healthcare providers contribute to feelings of abandonment later in survivorship, and to better understand adolescent survivors' models of the illness and survivorship. Implications for practice Study results suggest that nurses are in an ideal position to begin and to continue discussions with adolescent survivors about the adolescent's view of medical follow- up, its purpose and importance, and ways in which the adolescent can begin, early on, to engage in planning their own health during survivorship.
- Published
- 2018
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