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Your search keyword '"Laura Hornby"' showing total 8 results
Start Over Author "Laura Hornby" Journal canadian journal of anesthesia/journal canadien d'anesthesie
8 results on '"Laura Hornby"'

6. Une définition cérébrale du décès et des critères pour sa détermination après l’arrêt de la circulation ou de la fonction neurologique au Canada : des lignes directrices de pratique clinique 2023

Author

Sam D. Shemie, Lindsay C. Wilson, Laura Hornby, John Basmaji, Andrew J. Baker, Cécile M. Bensimon, Jennifer A. Chandler, Michaël Chassé, Rosanne Dawson, Sonny Dhanani, Owen T. Mooney, Aimee J. Sarti, Christy Simpson, Jeanne Teitelbaum, Sylvia Torrance, J. Gordon Boyd, Joanne Brennan, Heather Brewster, Robert Carignan, Kirk J. Dawe, Christopher J. Doig, Kennedy Elliott-Pohl, Teneille E. Gofton, Michael Hartwick, Andrew Healey, Kimia Honarmand, Karen Hornby, George Isac, Aly Kanji, Joann Kawchuk, Jennifer A. Klowak, Andreas H. Kramer, Julie Kromm, Allana E. LeBlanc, Katarina Lee-Ameduri, Laurie A. Lee, Murdoch Leeies, Ariane Lewis, Alex Manara, Shauna Matheson, Nicole K. A. McKinnon, Nicholas Murphy, Joel Neves Briard, Thaddeus M. Pope, Mypinder S. Sekhon, Jai Jai S. Shanker, Gurmeet Singh, Jeffrey Singh, Marat Slessarev, Karim Soliman, Stephanie Sutherland, Matthew J. Weiss, Randi Zlotnik Shaul, Lionel S. Zuckier, David J. Zorko, and Bram Rochwerg

Subjects
Anesthesiology and Pain Medicine, General Medicine
Published
2023

8. Engaging family partners in deceased organ donation research—a reflection on one team’s experience

Author

Sonny Dhanani, Marie-Chantal Fortin, Heather Talbot, Laura Hornby, and Amanda van Beinum

Subjects
Medical education, Data collection, business.industry, Critically ill, 030503 health policy & services, Patient engagement, General Medicine, Emotional stress, 03 medical and health sciences, 0302 clinical medicine, Anesthesiology and Pain Medicine, Anesthesia, General partnership, Medicine, Narrative, 030212 general & internal medicine, Organ donation, Family engagement, 0305 other medical science, business
Abstract

Clinical researchers are now encouraged to include patient partners in all research projects. Nevertheless, published accounts of patient engagement in complex research projects, such as those involving critically ill and dying patients, are lacking. Whether this absence is due to the relatively new emergence of patient engagement research methods or fundamental challenges regarding family engagement in challenging research contexts is unclear. We describe our experiences with forming a researcher-family partnership in a deceased organ donation research project involving the prospective observation of potential and actual deceased organ donors dying in the intensive care unit. We used the Guidance for Reporting Involvement of Patients and the Public evidence-based, consensus-informed reporting guidelines to organize our narrative. We were able to initiate and sustain a research consultant relationship with the mother of a deceased organ donor for over two years. Challenges faced included: constraints on money and time, communication preferences, and the emotional stress of participating in difficult conversations. Positive outcomes included: improvement of data collection tools, new opportunities for access to research populations, and motivation to include family partnership in future grant proposals. Family engagement in deceased organ donation research is feasible and contributes positively to study progress and outcomes. Patient and family engagement in challenging research contexts may require special attention to the emotional challenges of participation. We hope that our experience will encourage clinical researchers working in deceased organ donation and similarly complex domains to consider including patient partners in their projects.

Published
2019

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