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Accessible summary We wanted to know what people with learning disabilities know about dementia. We asked service users what the word meant to them, if they knew anyone with dementia, and what it was like to share a house with someone who has dementia. We learnt that: • Service users can know a lot about dementia. • Living with someone with dementia can be really hard – and staff do not always have enough time for everyone else. • Services should think more about how dementia affects everyone – not just the person who has the dementia. This paper reports on research that illuminates how people with a learning disability understand dementia and indicates the implications of these understandings for developing appropriate models of care. As this new policy and practice area struggles to provide appropriate and effective models of care for people with a learning disability and dementia, an awareness of service users’ understandings of dementia leads to a number of important insights. The wider research programme from which this paper is drawn aims to identify best practice in supporting people with learning disabilities to stay in their own homes as they grow older and develop dementia. A combination of focus groups, ethnography and individual interviews were conducted at eight sites across England. Participants were people with a learning disability who had dementia, and those who have lived with someone with dementia. The findings have the potential to improve support to this population as they grow older. [ABSTRACT FROM AUTHOR]

Accessible summary • This article is about Emma's experience of living with learning difficulties. • Emma expresses a lot of anger, and talks about feelings of loss. • This article is interesting to people with learning disabilities because they can see if their experience is like Emma's in any way. This paper presents Emma's story: her experience of living with learning difficulties. The emerging themes of loss, blame and anger are discussed. [ABSTRACT FROM AUTHOR]

Summary The present paper gives an overview of some of the modular day courses offered and, in some cases, developed by tutors at a former hospital school providing education to adults with severe learning disabilities. The aims of the courses were cognitive and personal development, as well as aesthetic and spiritual enrichment. Art history was offered as an activity within the Open University ‘Learning Disability - Working as Equal People’ course, and the students' responses to paintings were deep and remarkable. In a play-writing course, tutors acted as ‘writing hands’ and the resultant plays were given a rehearsed reading. Some poetry was also produced. [ABSTRACT FROM AUTHOR]