1. Interventions to address burden among family caregivers of persons aging with TBI: A scoping review
- Author
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Carolina Bottari, Carrie Anne Marshall, Deirdre R. Dawson, Melissa Hansen, Erica Lenton, Karl Zabjek, Heather Colquhoun, and Emily Nalder
- Subjects
Gerontology ,030506 rehabilitation ,Scope (project management) ,Family caregivers ,Neuroscience (miscellaneous) ,Psychological intervention ,03 medical and health sciences ,0302 clinical medicine ,Caregivers ,Cost of Illness ,Brain Injuries, Traumatic ,Developmental and Educational Psychology ,Humans ,Disabled Persons ,Neurology (clinical) ,0305 other medical science ,Psychology ,030217 neurology & neurosurgery - Abstract
To capture the scope of literature exploring interventions for caregivers of aging persons with TBI.A scoping review of peer reviewed literature was conducted in two phases. Phase I: Searching seven databases, two independent raters screened articles using a set of predetermined criteria. Included articles were reviewed, and categorized according to common themes. Phase II: Five stakeholders were engaged in a consultation. A content analysis was performed by extracting statements from each interview using an inductive strategy, and organizing each into themes.A total of 11 articles were included in the final analysis. Inter-rater reliability was assessed at both the title and abstract search [98.8% agreement; k = 0.3425 (95% CI, .246 to .439), p .05]; and the full-text review [83% agreement; k = 0.542 (95% CI, 0.340 to 0.745), p .05] phases. Seven articles identified potential interventions, and four identified and evaluated an intervention. Interventions targeted subjective burden (n = 4) and objective burden (n = 4), with caregiver knowledge and skill development (n = 3) classified as a sub-category of objective burden. Stakeholders overwhelmingly emphasized the need for interventions to reduce objective burden.Included articles were primarily composed of levels six and seven evidence, suggesting that this literature is in an early stage of development. Future research should emphasize the development and evaluation of interventions to reduce objective burden.
- Published
- 2018