1. Care in subsequent pregnancies following stillbirth: an international survey of parents
- Author
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Paul Cassidy, Mechthild M. Gross, Tracey A Mills, Frances M. Boyle, Jillian Cassidy, Philippa Middleton, Alexander E. P. Heazell, Vicki Flenady, J. Ruidiaz, Karin Pettersson, Robert M. Silver, José M. Belizán, C. Storey, Aleena M. Wojcieszek, Dimitrios Siassakos, David Ellwood, Claudia Ravaldi, Alfredo Vannacci, Jan Jaap H. M. Erwich, Margaret M. Murphy, Lynn Farrales, Susannah Hopkins Leisher, and Reproductive Origins of Adult Health and Disease (ROAHD)
- Subjects
Male ,Parents ,genetic structures ,Epidemiology ,Collaborative Care ,Medicina Clínica ,0302 clinical medicine ,Recurrence ,Surveys and Questionnaires ,Psychology ,030212 general & internal medicine ,media_common ,RISK ,OUTCOMES ,030219 obstetrics & reproductive medicine ,Obstetrics ,DEATH ,Obstetrics and Gynecology ,Gestational age ,Prenatal Care ,Middle Aged ,RECURRENT STILLBIRTH ,Stillbirth ,management ,psychosocial/psychology ,recurrence ,stillbirth ,subsequent pregnancy ,EXPERIENCES ,Management ,FOS: Psychology ,Female ,Medicina Critica y de Emergencia ,Worry ,Developed country ,Psychosocial ,Adult ,COUNTRIES ,medicine.medical_specialty ,CIENCIAS MÉDICAS Y DE LA SALUD ,media_common.quotation_subject ,education ,Young Adult ,03 medical and health sciences ,Subsequent pregnancy ,medicine ,Humans ,Developing Countries ,EXPECTATIONS ,METAANALYSIS ,Quality of Health Care ,Internet ,Pregnancy ,Descriptive statistics ,business.industry ,Developed Countries ,618: Geburtsmedizin und Hebammenarbeit ,medicine.disease ,Psychosocial/psychology ,Family medicine ,UNEXPLAINED STILLBIRTH ,business - Abstract
OBJECTIVE: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth. DESIGN: Multi-language web-based survey. SETTING: International. POPULATION: A total of 2716 parents, from 40 high- and middle-income countries. METHODS: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth. MAIN OUTCOME MEASURES: Frequency of additional care, and perceptions of quality, respectful care. RESULTS: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making. CONCLUSIONS: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed. Fil: Wojcieszek, A.M.. The University Of Queensland; Australia Fil: Boyle, F.M.. The University Of Queensland; Australia Fil: Belizan, Jose. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina. International Stillbirth Alliance; Reino Unido. Instituto de Eficacia Clínica y Política de Salud; Argentina Fil: Cassidy, J. International Stillbirth Alliance; Reino Unido. Umamanita; España Fil: Cassidy, P. International Stillbirth Alliance; Reino Unido. Umamanita; España Fil: Erwich, J.J.H.M.. International Stillbirth Alliance; Reino Unido. University of Groningen; Países Bajos Fil: Farrales, L. International Stillbirth Alliance; Reino Unido. University of British Columbia; Canadá. Research and Support Society; Canadá Fil: Gross, MM. International Stillbirth Alliance; Reino Unido. Hannover Medical School; Alemania. Universitat Zurich; Suiza Fil: Heazell, A.E.P. International Stillbirth Alliance; Reino Unido. University of Manchester; Reino Unido. Manchester Academic Health Science Centre; Reino Unido Fil: Leisher, S.H.. International Stillbirth Alliance; Reino Unido. The University Of Queensland; Australia Fil: Mills, T. University of Manchester; Reino Unido Fil: Murphy, M. International Stillbirth Alliance; Reino Unido. University College Cork; Irlanda Fil: Pettersson, K. International Stillbirth Alliance; Reino Unido. Karolinska University; Suecia Fil: Ravaldi, C. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia Fil: Ruidiaz, J. International Stillbirth Alliance; Reino Unido. Era en Abril; Argentina Fil: Siassakos, D. International Stillbirth Alliance; Reino Unido. University of Bristol; Reino Unido Fil: Silver, R.M.. International Stillbirth Alliance; Reino Unido. University of Utah; Estados Unidos Fil: Storey, C. International Stillbirth Alliance; Reino Unido Fil: Vannacci, A. International Stillbirth Alliance; Reino Unido. Ciao Lapo Onlus; Italia. University of Florence; Italia Fil: Middleton, P. International Stillbirth Alliance; Reino Unido. South Australian Health and Medical Research Institute; Australia Fil: Ellwood, D. International Stillbirth Alliance; Reino Unido. Griffith University and Gold Coast University ; Australia Fil: Flenady, V. International Stillbirth Alliance; Reino Unido. University of Queensland; Australia
- Published
- 2016
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