1. Community-driven health research in the Torres Strait.
- Author
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Wapau, Hylda, Kris, Ella, Roeder, Luisa, and McDonald, Malcolm
- Subjects
EDUCATION of Torres Strait Islanders ,CULTURE ,RESEARCH ,RESEARCH protocols ,RESEARCH methodology ,COMMUNITY support ,CURRICULUM ,ACQUISITION of data ,MEDICAL care research ,PRIMARY health care ,RESEARCH ethics ,DATA analysis ,ENDOWMENTS ,MEDICAL care of indigenous peoples ,ADULT education workshops - Abstract
Background: In July 2018, participants at a Waiben (Thursday Island) conference declared that it was time for a locally driven research agenda for the Torres Strait and Queensland Northern Peninsula Area. For decades, they felt exploited by outside researchers. They identified a lack of respect and consultation, with few benefits for their people. Methods: In response, the Australian Institute of Tropical Health and Medicine (Waiben Campus‐Ngulaigau Mudh) invited a consultative group of elders and senior health providers to develop a research program based on local cultural and health needs. The aim was to promote research skills through a learn-by-doing approach. Four workshops were conducted over 2019. Key financial and in-kind support was provided by the Australian Institute of Tropical Health and Medicine, Hot North, and Queensland Health's Torres and Cape Hospital and Health Service. Results: The first workshop attracted 24 people; none had previous research experience. The workshop format evolved over 2019, mainly guided by the participants. Overall, feedback was positive, and participant research proposals remain in various stages of development. Conclusions: Although suspended during the COVID-19 pandemic, this is a long-term investment in community-driven research that seeks to translate health benefits to the people. This model may apply to other communities, especially in rural and remote Australia. Warning: This article contains the names and/or images of deceased Aboriginal and Torres Strait Islander peoples. Research had a bad name in the Torres Strait. People felt exploited by outside researchers over decades with few benefits for the people. A consultative group of elders and senior health providers developed a research agenda focused on local cultural and health needs, based on a learn-by-doing approach. Participants created their research proposals during four workshops. The program was interrupted by COVID-19 restrictions but should resume in 2022. The model may apply to other Australian rural and remote communities. [ABSTRACT FROM AUTHOR]
- Published
- 2022
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