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Your search keyword '"Merker, Vanessa L"' showing total 6 results
Start Over Author "Merker, Vanessa L" Journal american journal of medical genetics part a
6 results on '"Merker, Vanessa L"'

1. Views on the impact of the COVID‐19 pandemic on health in people with Down syndrome from diverse backgrounds

Author

Santoro, Stephanie L., primary, Baker, Sandra, additional, Blake, Jasmine M., additional, Cabrera, Maria J., additional, Caughman, Kelli, additional, Chung, Jeanhee, additional, Cullen, Sarah, additional, Gallagher, Maureen, additional, Haugen, Kelsey, additional, Hoke‐Chandler, Roxanne, additional, Krell, Kavita, additional, Maina, Julius, additional, McLuckie, Diana, additional, Merker, Vanessa L., additional, Michael, Carie, additional, O'Neill, Kate, additional, Peña, Angeles, additional, Pless, Albert, additional, Royal, Dina, additional, Slape, Michelle, additional, Spinazzi, Noemi Alice, additional, Torres, Amy, additional, Torres, Carlos G., additional, and Skotko, Brian G., additional

Published
2023
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3. Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey

Author

Wolters, Pamela L., primary, Reda, Stephanie, additional, Martin, Staci, additional, Al Ghriwati, Nour, additional, Baker, Melissa, additional, Berg, Dale, additional, Erickson, Gregg, additional, Franklin, Barbara, additional, Merker, Vanessa L., additional, Oberlander, Beverly, additional, Reeve, Stephanie, additional, Rohl, Claas, additional, Rosser, Tena, additional, Toledo‐Tamula, Mary Anne, additional, and Vranceanu, Ana‐Maria, additional

Published
2021
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6. Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey.

Author

Wolters PL, Reda S, Martin S, Al Ghriwati N, Baker M, Berg D, Erickson G, Franklin B, Merker VL, Oberlander B, Reeve S, Rohl C, Rosser T, Toledo-Tamula MA, and Vranceanu AM

Subjects
Adolescent, Adult, Aged, Aged, 80 and over, Anxiety physiopathology, COVID-19 epidemiology, Europe epidemiology, Female, Humans, Male, Middle Aged, Neurofibromatoses physiopathology, SARS-CoV-2 pathogenicity, Surveys and Questionnaires, United States epidemiology, Anxiety psychology, COVID-19 psychology, Mental Health statistics & numerical data, Neurofibromatoses psychology, Stress, Psychological physiopathology, Telemedicine statistics & numerical data
Abstract

The coronavirus pandemic increased anxiety and stress and prevented access to health care worldwide; it is unclear how COVID-19 affected adults with a multisystem genetic disorder such as neurofibromatosis (NF). An anonymous online survey was distributed through an international registry and foundations to adults with NF (June-August 2020) to assess the impact of the pandemic on mental health and NF health care. Six hundred and thirteen adults (18-81 years; M = 45.7) with NF1 (77.8%), NF2 (14.2%), and schwannomatosis (7.8%) provided complete responses. Respondents rated moderate-to-high amounts of worry about the impact of COVID-19 on their emotional (46.3%) and physical health (46.7%), and 54.8% endorsed moderate-to-high pandemic-related stress. Adults with diagnosed/suspected mental health disorders or moderate-to-severe NF symptom impact as well as females endorsed higher COVID-19 stress (ps < 0.01). Less than half who missed a doctor's appointment for their NF care (43.4%) used telehealth. Of these, 33.3% and 46.2% reported that telehealth met their needs to a moderate or high degree, respectively. Results indicated that subgroups of adults with NF experience higher COVID-19-related worries and stress and may need additional support. Furthermore, telehealth is under-utilized and could help NF providers connect with patients, although improved delivery and patient training may facilitate expanded use of these services., (© 2021 Wiley Periodicals LLC. This article has been contributed to by US Government employees and their work is in the public domain in the USA.)

Published
2022
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