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Like the first edition, this is a seminal textbook for the advanced practice nursing care of the seriously ill and dying. This comprehensive work addresses all aspects of palliative care including physical, psychological, social, and spiritual needs. It brings to the forefront current issues of health equity, managing through crisis, and meeting the needs of diverse populations. Each chapter contains case examples and a strong evidence base to support the highest quality of care. The text is written by leaders in the field and includes authors who have pioneered the role of the advanced practice nurse in palliative care. This volume offers advanced practice content and practical resources for clinical practice across all settings of care and encompassing all ages, from pediatrics to geriatrics. This newly revised edition has been reorganized to meet the needs of the APRN according to role delineation and practice issues. It offers foundation information on leadership, practice, and the various roles of the APRN as an administrator, educator, policy advocate, and researcher. The various settings of APRN work includes acute care settings (clinical care unit, intensive care unit, and emergency department), clinic (specialty care, primary care, and palliative care), community, rehabilitation, residential facilities, and telehealth. This edition also gives particular attention to special populations, including chapters on health disparities, economic disadvantages for urban dwellers, members of the LGBTQ+ community, Veterans, and Survivorship. There are sections wholly devoted to pediatric care, end of life communication, and the ethics APRNs have to navigate on a daily basis. Written by current APRNs for fellow APRNs, this text provides practical resources for clinical practice across a variety of topics.

In the tradition of Atul Gawande's Being Mortal, this compassionate work helps individuals develop a more accepting view of dying while teaching them what to expect and how to navigate the healthcare system at the end of life.In elderhood, the health care system has a narrow view of how to provide care. It focuses on extending a patient's life at all costs, with an over-reliance on machines and procedures, instead of caring holistically for the person. Accordingly, many of us will likely spend our final weeks in long-term care facilities or an ICU. Dying at home, peacefully, and surrounded by family is almost impossible in our world--and our fear of death is a major contributor to this impossibility. Fittingly, the central idea of this book is that in old age, or when facing a terminal diagnosis, it is more important to understand your life rather than to extend it. While this may seem simple, its implications are profound.A natural death means accepting that, at some point, we are old enough or sick enough to die. In our cynical and overly clinical age, it is difficult to reflect on the meaning of one's life, but that kind of honest introspection is exactly what we need. Accordingly, The Journey's End seeks to help people manage their healthcare, their expectations, and their decisions in the final phase of life.

Hospice and palliative care professionals are experts at caring for individuals and families experiencing serious or life-limiting illnesses. Not everyone feels safe seeking out their expertise, however: LGBTQIA+ people may be deterred from seeking support because of barriers—both overt and subtle—that hospice and palliative care programs and professionals erect through their policies and practices. This book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care. It equips both new and experienced hospice and palliative care professionals with the knowledge they need to ensure that all people receive high-quality care.Kimberly D. Acquaviva surveys fundamental concepts and the latest clinical developments, integrating relatable anecdotes and poignant personal reflections. She discusses her own experience caring for her wife, Kathy, who was diagnosed with ovarian cancer in 2019. Unable to find a local hospice with an LGBTQIA-inclusive nondiscrimination statement, let alone one whose staff had been trained to provide nondiscriminatory care to LGBTQIA+ people, Kathy died at home six months later without hospice care.Acquaviva offers clear, actionable strategies for palliative care and hospice physicians, physician associates, advanced-practice registered nurses, registered nurses, social workers, counselors, chaplains, and others. She also emphasizes how incorporating LGBTQIA-inclusive practices can transform work with every person receiving care. Anchored in the evidence and written in plain language, this book is the definitive guide for hospice and palliative care professionals seeking to deliver exceptional care to all the patients and families they serve.

Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients'homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond clichés about'dying with dignity.'It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and'falling through the cracks,'which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks. This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals'and families'experiences right up to the close of life.

Hospice and Palliative Care for Companion Animals A thoroughly updated and expanded new edition of the only book providing comprehensive treatment of hospice and palliative care in veterinary medicine Animals with life-limiting illnesses deserve compassionate, thoughtful, end-of-life care. Their caregivers and families, faced with the loss of a beloved companion, deserve empathy, support, and education, to guide them through an emotionally wrenching period and provide their companion animals with the highest possible quality of life. In recent years, the ethics of care and service to sick and dying animals and their caregivers has been the subject of considerable attention. Hospice and Palliative Care for Companion Animals, 2nd Edition provides a thorough update to the first and only complete guide to this field of service, its foundations, and its applications. It addresses the needs of pets, caregivers, and veterinary professionals alike, including fundamental ethical and emotional principles as well as detailed discussion of specific illnesses and life-limiting conditions. The expanded second edition incorporates cutting-edge research into animal behavior and cognition to enrich the reader's understanding of companion animals'emotional needs and their experience of illness and death. Hospice and Palliative Care for Companion Animals, 2nd Edition readers will also find: Existing chapters expanded to incorporate new research and practical experience New chapters discussing factors underlying the decision to euthanize, the potential role of ethology in palliative care, and more A companion website with educational handouts for use in veterinary practices Hospice and Palliative Care for Companion Animals is an indispensable resource for caregivers and veterinary professionals alike.

The new edition of this acclaimed book comprehensively updates its timely advocacy of the need for good quality palliative care, today more necessary than ever. Rooted in the social history of the care of the elderly and terminally ill, Modern Hospice Design: The Architecture of Palliative and Social Care takes cognisance of the new conditions of social care in the 21st century, principally in the UK, Europe and North America. It does so with regard to the development of new building types, but also in response to new philosophies of palliative care and the status of the elderly and the dying. Benefitting from a clearer methodological approach and conceptual framework, the expanded book allows a broad section of readers to navigate the text more easily. At its core is a public discussion of a philosophy of design for providing care for the elderly and the vulnerable, taking the importance of architectural aesthetics, the use of quality materials, the porousness of design to the wider world, and the integration of indoor and outdoor spaces as part of the overall care environment. In doing so it advocates care settings that, in the words of Maggie Jencks whose life and ideas inspired the Maggie's Centres, ‘rise to the occasion'. Including new chapters and new in-depth case studies, complete will full colour illustrations, this book is for architects and interior designers and their students, healthcare professionals, social care providers, estate and facility managers, hospital administrators and Healthcare Trust Boards.

Die Kinder- und Jugendhospizarbeit hat sich seit ihrer Begründung Anfang der 1990-er Jahre stetig weiterentwickelt und ist zu einer wichtigen Säule des Unterstützungssystems für Kinder, Jugendliche und junge Erwachsene mit lebensverkürzender Erkrankung sowie ihrer An- und Zugehörigen geworden. Ausgehend von den individuellen Bedürfnissen der Familien und ihrem Erfahrungswissen als Expert•innen in eigener Sache, getragen von dem Engagement und Fachwissen der haupt- und ehrenamtlich Mitarbeitenden, bietet die Kinder- und Jugendhospizarbeit heute ein vielfältiges Angebot der Begleitung, Beratung und Unterstützung. 30 Jahre an der Seite der Familien, unzählige Begegnungen und Begleitungen, fachliche Diskussionen in regionalen sowie überregionalen Bezügen, neue Orte der Begleitung und Versorgung, die Weiterentwicklung von Inhalten und Konzepten, Bildungsarbeit sowie gesundheits- und sozialpolitisches Engagement – alle Aktivitäten eint stets die grundlegende Motivation, gute Kinder- und Jugendhospizarbeit für junge Menschen mit lebensverkürzender Erkrankung und ihre Familien zu ermöglichen. Das vorliegende Handbuch der Kinder- und Jugendhospizarbeit ist Etappenziel und Meilenstein zugleich. Es vereint als Standardwerk das Erfahrungswissen von betroffenen Familien sowie das Fachwissen von Expert•innen. Mit Beschreibung der Grundlagen sowie der Praxis der Kinder- und Jugendhospizarbeit anhand ihrer drei wesentlichen Handlungsfelder – Ambulant – Stationär – Bildung – gewährt das Handbuch – aus verschiedenen Perspektiven – einen ersten sowie einmaligen Überblick der Vergangenheit und Gegenwart der Kinder- und Jugendhospizarbeit in Deutschland. Darüber hinaus werden Perspektiven und Themen aufgezeigt, die für eine erfolgreiche Zukunft gemeinsam zu gestalten sind.

Gain the understanding you need to provide compassionate, end-of-life pet care. Animal Hospice and Palliative Medicine for the House Call Veterinarian provides an all-in-one guide to the skills and challenges related to this growing area of veterinary care. From setting up your business and performing your first in-home consultation to managing pain, performing in-home euthanasia, and providing grief support to the family, this book walks you through each step of care. Written by Dr. Lynn Hendrix, a leading expert and researcher in veterinary palliative medicine, this practical resource shows how to improve the quality of care for pets in the final stages of life. - Comprehensive coverage addresses the essential topics of palliative care, hospice, and euthanasia. - Key topics range from setting up a mobile business, in-home consultations to pain management, euthanasia, physical support for the pet, and much more. - Information on the diseases commonly seen at the end of life includes disease progression and trajectories. - Single-source review covers animal end-of-life care and consulting, specifically through mobile veterinary services. - 100 full-color clinical photos depict the concepts and procedures of animal palliative care. - Practical insights are provided in the areas of family grief support, compassion fatigue, managing difficult home visits, and dispelling the myths of animal hospice and euthanasia. - Author Lynn Hendrix is an expert veterinarian with than a decade of experience in the field of Veterinary Palliative Medicine and is also the owner/founder of Beloved Pet Mobile Vet, a company providing in-home animal hospice and euthanasia.

An examination of the contemporary medicalization of death and dying that calls us to acknowledge death's existential and emotional realities.Death is a natural, inevitable, and deeply human process, and yet Western medicine tends to view it as a medical failure. In their zeal to prevent death, physicians and hospitals often set patients and their families on a seemingly unstoppable trajectory toward medical interventions that may actually increase suffering at the end of life. This volume in the MIT Press Essential Knowledge series examines the medicalization of death and dying and proposes a different approach—one that acknowledges death's existential and emotional realities.The authors—one an academic who teaches and studies end-of-life care, and the other a physician trained in hospice and palliative care—offer an account of Western-style death and dying that is informed by both research and personal experience. They examine the medical profession's attitude toward death as a biological dysfunction that needs fixing; describe the hospice movement, as well as movements for palliative care and aid in dying, and why they failed to influence mainstream medicine; consider our reluctance to have end-of-life conversations; and investigate the commodification of medicine and the business of dying. To help patients die in accordance with their values, they say, those who care for the dying should focus less on delaying death by any means possible and more on being present with the dying on their journey.

A unique volume reflecting the state of the art in hospice nursing, Nursing in Hospice and Terminal Care addresses the special concerns of nurses--the primary professional caregivers in a hospice--in caring for terminally ill patients and in comforting their families. Experts highlight the major components of hospice nursing and address the enormous need for research that will help hospice nurses improve the quality of nursing care they are able to provide. Each valuable chapter is presented from a scientific base and offers practical applicability to nursing in various health care settings.

Neben Medizin und Pflege spielt die Soziale Arbeit bei der Begleitung von Patient•innen und ihren Familien die wichtigste Rolle im multiprofessionellen Palliative Care Team. Dieses Handbuch bietet eine umfassende Darstellung der Bedeutung, Aufgabe und Wirkung Sozialer Arbeit im Bereich von Hospizarbeit und Palliativversorgung. Es gibt den aktuellen wissenschaftlichen Kenntnisstand wieder, geht auf die unterschiedlichen Tätigkeitsfelder, Methoden und Interventionsmöglichkeiten der Sozialen Arbeit ein und bietet darüber hinaus zahlreiche praxisrelevante Informationen. Dies macht das Werk unverzichtbar für Studierende der Sozialen Arbeit und zugleich für alle im Hospiz- und Palliativbereich Tätigen.

In a heartbeat, you or someone you love may be rapidly transformed from a life of health and wellness to one of critical illness. Over the past four decades, Ronald Kotler, M.D., has treated patients who have become critically ill. He has seen patients recover and go on to lead long, healthy lives. He has also treated patients who did not survive. In this medical memoir, Dr. Kotler takes readers to the frontlines of caring for critically ill patients who are “breathless”—having trouble breathing. Dr. Kotler shares compelling stories of patients who were near death or who were facing the end-of-life. He takes readers behind the scenes as he describes the importance of compassion in the care for these patients. Dr. Kotler's inspiring stories will educate readers as well as salute doctors, nurses, and other healthcare professionals who make up the American healthcare system.

This book explores the experiences of Muslims in the United States as they interact with the health care system during serious illness and end-of-life care. It shifts'actively dying'from a medical phrase used to describe patients who are expected to pass away soon or who exhibit signs of impending death, to a theoretical framework to analyze how end-of-life care, particularly within a hospital, shapes the ways that patients, families, and providers understand Islam and think of themselves as Muslim. Using the dying body as the main object of analysis, the volume shows that religious identities of Muslim patients, loved ones, and caregivers are not only created when living, but also through the physical process of dying and through death.Based on ethnographic and qualitative research carried out mainly in the Washington, D.C. region, this volume will be of interest to scholars in anthropology, sociology, public health, gerontology, and religious studies.

Seit dem Beginn der Hospizbewegung hat das Ehrenamt in der Sterbebegleitung eine zentrale Bedeutung. Michaela Fink und Oliver Schultz beleuchten die vielfältigen Ansätze der Sterbebegleitung, ebenso wie die Herausforderungen der Gewinnung und Bindung Ehrenamtlicher vor dem Hintergrund krisenhafter gesellschaftlicher Entwicklungen. Einen besonderen Fokus legen sie dabei auf Bereiche informeller ehrenamtlicher Sterbebegleitung, die z.B. in Wohlfahrtsverbänden sichtbar werden. Angesichts des Generationenproblems in der Hospizbegleitung eröffnen diese bisher wenig beachteten Bereiche neue Perspektiven.

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections.'Foundations of Care'describes core issues, the foundations on which paediatric palliative care is based.'Child and Family Care'looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family.'Symptom Care'focuses on the uses of medication, specific symptoms, and their management. Finally,'Delivery of Care'examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at'Decision Making'and'Perinatal Care', and a new section highlighting the emerging importance of'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Provides comprehensive, current information for addressing the physical, psychological, and spiritual needs of hospice patients and their familiesSubstantially updated and expanded, the second edition of this quick-access reference for hospice nurses continues to deliver the most current information on the clinical and administrative duties of the hospice nurse. It encompasses important regulatory changes and milestones, providing timely information on cultural issues, special communication considerations, and hospice care's enduring growth.This resource provides new content on levels of care, assessment and symptom management, and occupational stress, burnout, and self-care. New treatment guidelines and algorithms are included, as are updates on quality measures, the reimbursement schedule, compliance initiatives, and electronic documentation with specific examples.An indispensable clinical resource, the book is a valuable reference for nurses who are seeking to specialize in hospice, those who work in long-term care settings, post-acute care settings, acute care setting, and those who are seeking to enhance their knowledge of end-of-life care within other specialties.New to the Second Edition:Includes new regulatory changes/milestones, such as The National Quality Forum New Priorities for Action 2019Provides updated information about levels of care, particularly the Last 7 Days rule from MedicareCovers the use of cannabis, non-pharmacological pain management interventions, care of the dying patient, and post-mortem careNew chapters are included on the hospice nurse's role as case manager, patient discharge, religious and cultural influences on end-of-life care, pain assessment and interventions, wound care, care of the dying patient, and post-mortem care.Key Features:Reflects key competencies for the hospice nurse as designated by the Hospice and Palliative Nurses AssociationDelineates clinical and administrative responsibilities of the hospice nurseSimplifies complex information such as Medicare regulations and complianceProvides screening tools for depression, anxiety, and wound riskIncludes the Palliative Performance Scale and the Karnofsky Performance ScaleServes as a concise study resource for certification

Die Untersuchung über Aufgaben pädagogischer Fachkräfte in Hospizen sowie die Interaktion zwischen Pädagogen und Sterbenden, leistet einen wichtigen Beitrag, um die Bedeutung pädagogischen Handelns auch am Lebensende zu veranschaulichen. Auf Basis mehrerer Interviews wird gezeigt, dass die Pädagogen wertvolle Arbeit leisten können, insbesondere dann, wenn sie den Menschen bei der fürsorglichen, gestalterischen und geselligen Begleitung im Sterbeprozess immer auch als selbstbestimmtes, lernfähiges und freies Individuum anerkennen.

“A work of literature: beautifully written, meticulously structured and heart-rending.” Observer What if you knew from the beginning how your relationship was going to end? When Jill Hopper first met Arif, they were living in a shared house on the island of Osney in the River Thames. Surrounded by willow trees, birds and reflections, it was an idyllic home. But no sooner had they begun to fall in love than Arif was given the news that he had only a few months to live. Everyone told Jill to walk away, but she was already in too deep. Years later, Jill rediscovers Arif's parting gift – an African seedpod – and finally sets out to trace the elusive patterns that shaped their relationship. The Mahogany Pod is a tender and vital account of what it means to live, and love, fully.

Si les équipes interdisciplinaires appréhendent différemment le réel des malades en soins palliatifs, elles convergent vers un objectif commun : la nécessité d'accompagner de façon expérimentée la période particulière de la fin de vie. Cet aide-mémoire rend compte de cette diversité et expose de façon didactique et exhaustive :- les repères de base ;- les pratiques spécifiques ;- des expériences cliniques.Cet ouvrage explique les pratiques spécifiques aux soins palliatifs.

Los temas que se presentan en este texto confluyen en los conflictos bioéticos y jurídicos en escenarios como: decisiones críticas en escenario de emergencias, cuidados paliativos, demencia, eutanasia y suicidio asistido, los estados alterados de conciencia, y justicia sanitaria en torno al trasplante de órganos y tejidos. El trabajo conjunto de estudiantes y profesores ha logrado cristalizar una serie de temas que abordan, tanto elementos médicos, como variables culturales, morales y jurídicas en torno a los tópicos planteados, con el propósito de ofrecer los elementos necesarios para abordar la complejidad de cada uno de estos temas, en los que el cine ha sido empleado como recurso didáctico que articula el proceso de argumentación en cada caso. Esperamos que este texto pueda servir a estudiantes de medicina, médicos, profesionales de la salud y a todos aquellos interesados en la deliberación sobre problemas bioéticos, ya que estos trascienden los intereses profesionales pues, cada vez más, impactan en nuestras sociedades y cotidianidad.

There have been impressive improvements in the diagnosis and treatment of cancer in recent decades. In economically advantaged countries with well-developed healthcare systems over 50% of all cancer patients achieve long term survival and are probably cured. Not only has survival improved radically for cancer patients but also there has been an increasing focus on the quality of patient's lives, on improving the patient experience of care and on developing effective support for the very many cancer survivors. Despite the progress in cancer treatment, unfortunately a substantial number of cancer patients will still ultimately die of their disease. For many this will follow periods of successful treatment which results in good remissions and good quality of life. Helping patients to make the right choices about their care towards the end of their lives is one of the greatest and most challenging responsibilities of all healthcare professionals. Legal change on the provision of assisted dying by healthcare professionals has occurred in a substantial number of jurisdictions. This work brings together contributions on end of life choices from experienced professionals from oncology disciplines, palliative care, law, nurses and professions allied to medicine. The goals are: • To better inform cancer care professionals and the wider community about developments in choices in end of life care for cancer patients internationally. • To better answer questions from patients and respond to requests from patients, including questions about and requests for assisted dying in countries where it is legal to do so. • To have a balanced and well informed dialogue about choices available to patients without developing a formal policy position on change in law. • To provide a basis of information for future educational activities.

Das Sterben wird längst nicht mehr verdrängt und verschwiegen, es gehört vielmehr zu den ausgiebig erörterten Themen unserer Zeit. Viele Debatten ranken sich um Sterbehilfe und um die Frage, was einen guten Tod ausmacht. Dabei scheinen wir uns bemerkenswert einig zu sein, dass gut stirbt, wer bis zuletzt er oder sie selbst bleibt. Wir wünschen uns, so die These dieses Buches, unseren »eigenen Tod«: ein Lebensende, wie es uns entspricht, ein authentisches Sterben. Dieses Ideal leitet in unterschiedlicher Weise die Palliativversorgung und die Sterbehilfebewegung an. Doch Nina Streeck zeigt, dass sich das, was so erstrebenswert klingt, als anspruchsvoll entpuppt. Die Idee des »eigenen Todes« droht sich in ihr Gegenteil zu verkehren: in einen Zwang zum authentischen Sterben.

End-of-life care, within critical care, continues to be a controversial topic. Patients who arrive in critical care units tend to suffer from an extensive range of diseases/injuries, and almost always in critical life-threatening condition or after high-risk surgery. This compilation examines issues that are particularly salient to end-of-life care for people living in poverty, particularly homeless individuals. This is a unique perspective in the examination and discussion of end-of-life issues. An out-of-hospital death and dying trend has occurred in most developed countries in recent years, with less than 50% of deaths taking place in acute care hospitals. As such, the authors stress the importance pf recognizing where deaths are occurring, as well as what death in every location means for the dying person.

Narrative medicine, an interdisciplinary field that brings together the studies of literature and medicine, offers both a way of understanding patient identity and a method for developing a clinician's responsiveness to patients. While recognizing the value of narrative medicine in clinical encounters, including the ethical aspects of patient discourse, Tara Flanagan examines the limits of narrative practices for patients with cognitive and verbal deficits. In Narrative Medicine in Hospice Care: Identity, Practice, and Ethics through the Lens of Paul Ricoeur, Flanagan contends that the models of selfhood and care found in the work of Ricoeur can offer a framework for clinicians and caregivers regardless of the verbal and cognitive capabilities of a patient at the end of life. In particular, Ricoeur's concept of patient identity connects with the narrative method of life review in hospice and offers an opportunity to address the religious and spiritual dimensions of the patient experience.

A Dignity Rises, One Common Hero After Another Evelyn Amdur, a hospice social worker, began to write these stories midway through her career, collaborating with her daughter, Shelley, a respected teacher of meditation in the Chicago area. Many traditional cultures have a custom of ‘death songs,'which rest on the idea that at one's last moment, one somehow sums up the essence of one's life in a phrase or a song. These are truly American death songs. Unlike the austere poetry of the Japanese, which catch the evanescence of life in an image, both beautiful and stark, or the glorious courage of the warriors of the Great Plains, summing up their lives up in a final burst of ecstatic joy, here in language almost artless, in the simplicity of lives much like our own, a dignity rises, one common hero after another. Woven into these stories are instructions on how to die well—or at least, as well as we can—not only in what spirit we face death itself, but also through instructions on what is necessary to prepare our families, to ready our estates, and to manage all the players who may be involved in our deaths. Finally, these stories also teach others who hold the same responsibilities that Evelyn herself had, be they social services, medical staff, caregivers or families—how to offer the dying as much grace as she did. I've only met Evelyn Amdur through the pages of this book. She seems like a character from the old days, when people connected personally, with genuine care and love. She knew, intuitively, what others needed to hear, understanding their moral dilemmas. A multi-talented and gifted being, perhaps what stands out most for me was her genius at common sense. Particularly at the end of our lives, she's what we wish for and rarely receive. This is a book for social workers, to be sure, but beyond that, for all of us. Most of all, it is a message from a remarkable woman on how to face our final days, and also how to care for those who walk that road before us. Ondrea Levine, Author: The Life I Took Birth For

This is a unique resource to improve this difficult and highly sensitive area of communication, ideal for both individual use and by groups or in teaching. It offers a visual, interactive training experience, linking with supportive care frameworks. It is accompanied bya DVD which contains filmed scenes illustrating a range of challenging dialogues between health workers and a patient and his family through the journey of his terminal illness. Accompanying booklet highlights communication issues with suggested exercises, reflection points and advice. It is available as individual-use-only product for self-reflective learning, or institutional-use product for tutored learning, both priced to give excellent value.

Behavioral Intervention Research in Hospice and Palliative Care: Building an Evidence Base sets forth research considerations and guidelines to build evidence-based interventions to improve end-of-life care. It is an in-depth introduction to implementation research and showcases how a clinical need is identified to inform an intervention. The book extensively examines the various phases of intervention research, including design, implementation, evaluation, dissemination and translation. The book focuses on methodological, ethical and practical issues. The science behind the quality of hospice and palliative care lags behind that of traditional medical practice, despite the continuous growth of palliative care interdisciplinary teams. Researching, developing and testing strategies is essential to advancing the effectiveness and value of this care. - Informs readers how to conduct intervention research toward identifying best care - Advises readers on design, implementation and evaluation of research - Provides step-by-step templates to develop an intervention study - Includes mock protocols from successful intervention trials - Synthesizes lessons learned by established intervention researchers in hospice and palliative care

Au quotidien, les professionnels de la santé ont à convaincre différentes personnes ou communautés – qu'il s'agisse de patients, de collègues, de supérieurs ou de partenaires – de la pertinence de leurs points de vue. Cet ouvrage explique à ces professionnels les principes de la rhétorique et diverses stratégies argumentatives, tout en soulignant les avantages de les utiliser dans le cadre de leur pratique. Parfois considérée comme l'art de persuader ou d'écrire avec style, la rhétorique est ici envisagée comme l'art d'argumenter pour convaincre par l'usage de la logique (logos), le recours aux émotions (pathos) et une réflexion éthique sur le rôle de l'orateur (ethos). Cette seconde édition de l'ABC de l'argumentation a été entièrement revue. Alors que les éléments théoriques de la première partie de l'ouvrage sont demeurés sensiblement les mêmes que ceux de la première édition, les éléments pratiques de la deuxième partie ont été, pour leur part, significativement bonifiés. Les auteures ont notamment développé de nouveaux exemples pour présenter certains arguments de la méthode I-DÉ-A-L-E. Trois nouveaux chapitres enrichissent également cette nouvelle édition, qui offre un plus grand nombre d'outils aux professionnels de la santé pour soutenir leurs revendications. Ceux-ci s'articulent autour du thème de l'advocacy et illustrent la manière dont les principes rhétoriques et les stratégies argumentatives peuvent être mis au service de la défense des droits, des besoins ou des intérêts des patients et des professionnels, de la promotion des emplois en santé ainsi que de l'amélioration des soins et des services dans ce milieu. Ce livre se veut un incontournable dans l'enseignement de l'argumentation en santé et dans d'autres domaines. Il entend aussi outiller toute personne qui souhaite convaincre, car les principes et stratégies qu'il propose s'appliquent à toute situation d'argumentation.

Das Handbuch für die Praxis zeigt Fachkräften der Behindertenhilfe praktische Lösungen auf und welche Unterstützung und Hilfe für Menschen mit Behinderung am Lebensende möglich, gewünscht und passend ist. Der weit gefasste Hilfebegriff umfasst Hintergrundinfos ebenso wie Hinweise zur sensiblen, persönlichen Betreuung und Hilfestellung für kleine Andachten. Konkrete Hinweise, was bei Tod, Nachlassregelung und Bestattung zu tun ist, ergänzen die vielschichtige Text- und Materialsammlung.

?El enfoque budista sobre la muerte puede ser de gran beneficio para todo tipo de personas, sean cuales sean sus orígenes o creencias. Lo demuestran cuatro décadas de trabajo de Joan Halifax con las personas que están muriendo y con sus cuidadores. Basado en las enseñanzas budistas tradicionales, su trabajo es una fuente de sabiduría para aquellos que tienen la tarea de cuidar a una persona que está muriendo, lo mismo que para quienes se enfrentan a su propia muerte o para los que desean explorar y contemplar el poder transformador del proceso de morir. Las enseñanzas de Joan Halifax muestran cómo desplegar y entrar en contacto con nuestra fortaleza interior y cómo podemos ayudar a otros que están sufriendo a hacer lo mismo.The Buddhist focus on death can be of great benefit to all kinds of people, regardless of their origins or beliefs. Based on traditional Buddhist teachings, Joan Halifax's book is aimed at anyone caring for a dying person, confronting their own death, or wishing to explore and contemplate the transformative power of the process of death.

The guide to facilitate much needed conversation and provide resources for grief management and palliative care.When her own mother died, Margaret Rice realised how completely unprepared she and her family had been for the experience of companioning a loved one who is dying. So she decided to go in search of the information she couldn't find when she most needed it and write the book herself - a novice's guide to death.We live in a period of intense death denial. But what if we were to smash that taboo and ask questions we want answered, like how do we know when someone is close to dying, and how do we best care for them? What actually happens to our body when we die? How do we work with medical experts? How do we deal with the non-medical issues that will come up, such as wills, finances and even social media passwords? Is morphine used to nudge death along or is this just a myth? Where do questions about euthanasia fit in with personal, lived experience?Margaret Rice lifts the lid on the taboos that surround death, sharing practical information and compassionate advice from multiple sources to break down boundaries and offer better choices of care to suit individual needs. This is a book to help the dying and their carers feel less isolated, and help us all face death better.

This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike.The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed bythe authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach.The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.

The International Handbook of Art Therapy in Palliative and Bereavement Care offers a multicultural and international perspective on how art therapy can be of help to individuals, groups, families, communities, and nations facing death and dying as well as grief and loss.Over 50 art therapists from around the world write about the transforming power of art therapy in the lives of those facing terminal illness, dementia, loss, and grief. They offer practical descriptions and techniques for working with adults and children to guide professionals, including those new to using art therapy and creative approaches in end-of-life care services. This international handbook is essential reading for arts therapists, social workers, medical personnel, faith leaders, and psychologists interested in a collaborative and accessible approach to working with patients and families affected by loss.

This practical guide summarizes the principles of working with dying patients and their families as influenced by the commoner world religions and secular philosophies. It also outlines the main legal requirements to be followed by those who care for the dying following the death of the patient.The first part of the book provides a reflective introduction to the general influences of world religions on matters to do with dying, death and grief. It considers the sometimes conflicting relationships between ethics, religion, culture and personal philosophies and how these differences impact on individual cases of dying, death and loss. The second part describes the general customs and beliefs of the major religions that are encountered in hospitals, hospices, care homes and home care settings. It also includes discussion of non-religious spirituality, humanism, agnosticism and atheism. The final part outlines key socio-legal aspects of death across the UK.Death, Religion and Law provides key knowledge, discussion and reflection for dealing with the diversity of the everyday care of dying and death in different religious, secular and cultural contexts. It is an important reference for practitioners working with dying patients, their families and the bereaved.

Etwa 5 bis 30 Prozent der Patienten auf der Intensivstation versterben unter palliativen Maßnahmen. Das zeigt die Notwendigkeit der Integration von Palliative Care im intensivmedizinischen Bereich auf. Das Buch führt erstmalig die Gemeinsamkeiten der Intensiv- und Palliativpflege praxisorientiert zusammen und etabliert das neue Verständnis von Palliative Critical Care (PCC). Allgemeine Kapitel beschäftigen sich mit dem Sterben an sich und dem heutigen Stand von Critical Care und Palliative Care. Des Weiteren werden wichtigen Themen zur ethischen Entscheidungsfindung und die Kongruenz bzw. Divergenz von Critical Care und Palliative Care diskutiert. Konkrete pflegerische Handlungen zur Linderung von häufigen Symptomen werden ebenso vorgestellt wie der psychosoziale Umgang mit Angehörigen sowie Sterbebegleitung unter den eingeschränkten Rahmenbedingungen auf der Intensivstation. Das Buch richtet sich in erster Linie an Pflegefachkräfte aus dem Intensiv- und Palliativbereich und möchte für diese Zielgruppen einen wichtigen Beitrag zur Sensibilisierung für Problemlagen von Patienten am Lebensende auf Intensivstationen leisten.

The medicalization of death is a challenge for all the world's religious and cultural traditions. Death's meaning has been reduced to a diagnosis, a problem, rather than a mystery for humans to ponder. How have religious traditions responded? What resources do they bring to a discussion of death's contemporary dilemmas? This book offers a range of creative and contextual responses from a variety of religious and cultural traditions. It features 14 essays from scholars of different religious and philosophical traditions, who spoke as part of a recent lecture and dialogue series of Drake University's The Comparison Project. The scholars represent ethnologists, medical ethicists, historians, philosophers, and theologians--all facing up to questions of truth and value in the light of the urgent need to move past a strictly medicalized vision.This volume serves as the second publication of The Comparison Project, an innovative new approach to the philosophy of religion housed at Drake University. The Comparison Project organizes a biennial series of scholar lectures, practitioner dialogues, and comparative panels about core, cross-cultural topics in the philosophy of religion. The Comparison Project stands apart from traditional, theistic approaches to the philosophy of religion in its commitment to religious inclusivity. It is the future of the philosophy of religion in a diverse, global world.

Integrating two decades of hospice care and social science research, this heartfelt book offers practical lessons on the transformative possibilities of end-of-life caregiving. Contemplative Caregiving is an indispensable guide for end-of-life caregivers and for anyone seeking to transform experiences of caregiving and grief. Rather than leading to burnout and despair, caring for those who are suffering and dying can enrich our lives with meaning and further our own spiritual growth and resilience. Whether you are caring for a loved one with cancer or dementia, grieving a sudden traumatic loss, or even serving time in prison, Contemplative Caregiving offers encouragement for showing up to the fullness of life in whatever those circumstances may be. Healing, compassion, and spiritual growth are available to us all, in this lifetime, right now. Baugher's unique style of integrating social scientific research on caregiving and grief with teachings from Buddhist, contemplative Christian, and other wisdom traditions illuminates how we each can transform experiences of loss and suffering into a path of compassion. Contemplative Caregiving weaves together powerful stories from interviews with diverse hospice caregivers—Vietnam veterans, nurses, housewives, Catholic nuns, those convicted of murder—with the author's own journey toward wholeness in the face of grief and traumatic loss, including the murder of his own mother. Through rich storytelling, teachings on compassion, and skillful contemplative exercises, Baugher invites you to join him in exploring the healing power of contemplative caregiving.

Hospice and Palliative Medicine and Supportive Care Flashcards is a comprehensive, evidence-based book of flashcards for clinicians caring for patients who require hospice and palliative care and supportive care. Written in a clinical scenario/vignette, question and answer format by experts with first-hand experience in the field, the flashcards are highly readable and serve as a source of fast answers to clinical questions in the field. A total of 300 flashcards are organized into chapters by symptom/disease and provide readers with up-to-date information that follow the core curriculum of American Board of Hospice and Palliative Medicine for ease of use and rapid review for exams. This book will equip care professionals with key concepts related to the assessment and management of palliative care, making it an ideal point-of-care quick reference material for physicians, nurse practitioners, fellows, residents, and students.

Hospice care is available to patients and families dealing with terminal illness. People often do not avail themselves of hospice care because they don't understand what it entails. Many wait until their last few days to request this extraordinary comfort care instead of using the full six months available to them through Medicare and other insurance options. Demystifying Hospice describes through stories good news about end-of-life issues. Written from the perspective of a licensed social worker with experience in public and private hospitals, hospice, and the American Cancer Society, these first-hand accounts of patients, family members, hospice workers and others will lift spirits, touch hearts, and illustrate the advantages of hospice care. These are real-life examples of personalized comfort care, offered by an interdisciplinary team, where ever the patient lives. Each story addresses some aspect of helping families through the caregiving and grieving process, which are part-and-parcel of a serious illness, and offers comfort and understanding to readers who may be going through similar experiences. This book describes hope, healing, and support through difficult times.

Susanne Fleckinger beleuchtet das Verhältnis zwischen haupt- und ehrenamtlich Tätigen in Hospizarbeit und Palliative Care. Hierzu befragt sie die beteiligten Akteure und geht der Frage nach, welche Bedeutung dem Ehrenamt in den unterschiedlichen Versorgungsbereichen zukommt. Im Ergebnis wird deutlich, dass sich Haupt- und Ehrenamt zwar durchaus ergänzen, zugleich aber grundsätzlich unterschiedlichen Handlungslogiken folgen. Eine gelingende Zusammenarbeit scheint vor allem dann möglich, wenn diese zum Gegenstand der kontinuierlichen Aushandlung der Sorgepraxis in der konkreten Einrichtung gemacht wird. Dafür allerdings ist es notwendig, dass der Zusammenarbeit von Ehrenamt und Hauptamt mehr Raum im Rahmen der Aus- und Weiterbildung eingeräumt wird​

What can nurses do to support those receiving palliative care?How do you ensure clear communication and maintain patients'and families'preferences?Palliative Care Nursing is essential reading for nursing students, professional nurses and other health and social care professionals providing supportive and palliative care to those with advanced illness or who are towards the end of life. This third edition of the acclaimed textbook has been extensively revised and examines important research studies, key debates around care and strategies to advance palliative care nursing.In four sections, the book covers key elements of nursing practice towards the end of life:• Defining the palliative care patient• Providing palliative nursing care• Caring around the time of death• Challenging issues in palliative care nursingLeading authors address contemporary issues and explore how to provide high quality person-centred palliative care, encouraging application to practice through exercises and case studies. Chapters completely reworked or new for this edition include those on communication, living with uncertainty, bereavement care, the costs of caring, nurses'decision-making and capacity, and palliative care worldwide.The clarity of evidence presented and coverage of a diverse range of topics make this the foundational textbook for all studying palliative care at pre-registration level, postgraduate level or as part of CPD study.With a foreword by last edition editor, Professor Sheila Payne, Lancaster University, UK.‘I welcome this third edition of Palliative Care Nursing and congratulations to the new team who have provided us with a dynamic and innovative development of a core text for palliative nursing practice. As the largest workforce in palliative care, and given the changing face of clinical practice for nurses, including increased educational opportunity and expanding roles and responsibilities, this book is timely in its focus on critical issues which frame and scope the reality of palliative care and the nursing contribution to that discipline. The learning exercises, in particular, offer tools for educators and clinicians to reflect on practice and understand new ways of knowing in palliative care. It will be an excellent resource for nursing, both in the UK and Ireland and to the wider international audience, having drawn on the breadth of global nursing expertise to bring this book together'. Philip Larkin, Professor of Clinical Nursing (Palliative Care), University College Dublin and Our Lady's Hospice and Care Services, Dublin, Ireland; President, European Association for Palliative Care‘This is a book of substance that captures the current status of palliative nursing, including the values and research evidence that underpin it. The changing nature of palliative nursing as an evidence-based specialism is balanced with practical skills and insights from experts, and also considers the needs of those working with, or concerned about, the dying person's well-being.It covers a range of challenging issues as well as drawing on the wisdom of those who actually undertake this work on a daily basis. I hope that students and practitioners from all disciplines will find this a useful resource to understand the art and craft of good palliative nursing'.Professor Daniel Kelly, Fellow of the Royal College of Nursing and Royal College of Nursing Chair of Nursing Research, Cardiff University, UK

Providing guidance and advice on the challenging art of listening, this book responds directly to the expressed learning needs of hospice and palliative care volunteers regarding their communication skills in end-of-life care.Listening can be mentally, physically, and spiritually exhausting, often highlighted in books about hospice and palliative care but never taking the spotlight. This accessible companion provides hospice and palliative care workers with a variety of helpful insights and suggestions drawn from a solid base of current theoretical concepts and clinical research.With personal reflections on being listened to, the guide includes strategies for becoming a more effective listener, as well as exploring the challenges of listening, the need for self-care and spiritual and ethical considerations. By expanding their own capacity for empathy, compassion and understanding the wider narrative of illness, hospice and palliative care volunteers will become even better listeners in their essential roles.

'La regola in apparenza più semplice e sensata da seguire, per un medico, è “lottare sempre”, cercare sempre qualcosa di più da fare … Ma lottare non significa necessariamente fare di più. Significa fare la cosa giusta per il paziente, anche se non è sempre chiaro che cosa sia giusto.'Atul Gawande È vero che la morte è diventata tabù, che la società moderna la nega e la nasconde più di quelle premoderne, condannando all'isolamento chi sta per lasciare questo mondo? Ed è forse per questo che i medici mentono al malato, e gli nascondono le cattive notizie sulla sua salute? È vero che la medicina moderna è rivolta solo al prolungamento della vita e all'ostinazione terapeutica, mentre trascura le esigenze e le sofferenze dei malati terminali? Che cosa è stato fatto per contrastare questa tendenza? Perché sono nate e a cosa servono le cure palliative? Come, dove e con chi si passa oggi l'ultima fase della vita? Nel decifrare la complessa mappa del fine vita il libro mette a confronto i cambiamenti avvenuti in Italia con quelli degli altri paesi occidentali.

In this far-ranging textbook on palliative and end of life care, John Costello and a team of palliative care specialists take a patient-centred approach. Discussing palliative and end of life care across a range of diseases and illnesses, each chapter includes real-life case studies that focus on both the patient experience and the experiences of the family members of service users. Original in its approach to palliative and end of life care, Adult Palliative Care focuses on a range of non-cancer conditions. Thoughtfully balancing theory with practice, and interprofessional in its scope, Adult Palliative Care would benefit any health professional dealing with or working in the field of palliative and end of life care.

A NEW YORK TIMES BOOK CRITICS'TOP 10 BOOK OF THE YEAR “In its loving, fierce specificity, this book on how to die is also a blessedly saccharine-free guide for how to live” (The New York Times).Former NEA fellow and Pushcart Prize-winning writer Sallie Tisdale offers a lyrical, thought-provoking, yet practical perspective on death and dying in Advice for Future Corpses (and Those Who Love Them). Informed by her many years working as a nurse, with more than a decade in palliative care, Tisdale provides a frank, direct, and compassionate meditation on the inevitable. From the sublime (the faint sound of Mozart as you take your last breath) to the ridiculous (lessons on how to close the sagging jaw of a corpse), Tisdale leads us through the peaks and troughs of death with a calm, wise, and humorous hand. Advice for Future Corpses is more than a how-to manual or a spiritual bible: it is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions, and literature around the world. Tisdale explores all the heartbreaking, beautiful, terrifying, confusing, absurd, and even joyful experiences that accompany the work of dying, including: A Good Death: What does it mean to die “a good death”? Can there be more than one kind of good death? What can I do to make my death, or the deaths of my loved ones, good? Communication: What to say and not to say, what to ask, and when, from the dying, loved ones, doctors, and more. Last Months, Weeks, Days, and Hours: What you might expect, physically and emotionally, including the limitations, freedoms, pain, and joy of this unique time. Bodies: What happens to a body after death? What options are available to me after my death, and how do I choose—and make sure my wishes are followed? Grief: “Grief is the story that must be told over and over...Grief is the breath after the last one.” Beautifully written and compulsively readable, Advice for Future Corpses offers the resources and reassurance that we all need for planning the ends of our lives, and is essential reading for future corpses everywhere. “Sallie Tisdale's elegantly understated new book pretends to be a user's guide when in fact it's a profound meditation” (David Shields, bestselling author of Reality Hunger).

An updated edition of the most respected book on hospice care—for both patients and caregivers. This warm and informative resource on hospice and other end-of-life care options now gets an update. It receives a new preface and revised guidance on elders who need more long-term care and support, recommendations on pain medications, and advice for those living extended lives with treatable, but not curable, diseases. Written by a hospice nurse, Living at the End of Life reassures us that this difficult time also offers an opportunity to explore and rediscover a richer meaning in life. Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. For people in hospice, as well as their friends and families, this is an indispensable and trustworthy source of comfort and spiritual healing.

Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care.With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

Many people are facing life-threatening diseases, terminal illness, and the long-term care of elderly parents, but have few resources to rely on in these difficult times. They often keep their challenges private only to suffer in silence with no real support system. This book delivers practical solutions to the problems everyone must deal with when they are experiencing the degradation of the quality of their life or the potential loss of a loved one. Based on experiences derived from 25 years of prayer ministry, Bertram's Hidden Treasures provides insight and guidance to equip patients, family members, and friends to walk through these challenging times with foresight, looking for and expecting to see God at work in many miraculous ways. It offers sound advice grounded in the truths found in Scripture and the wisdom revealed through real-life stories and case studies. This book helps those who have ever wondered... If God is good, why are we going through this? What will our family do during this crisis? How do we fight the fear that is trying to consume us? How can we encourage reconciliation in our family? Where can we find peace in the journey? What happens when we die? Is there life after death? What is heaven like?Hidden Treasures will inspire, motivate, and encourage loved ones to begin to walk the road to heaven without the fear and anxiety associated with death and dying. They'll discover that the Word of God has answers to the questions that seem to have no answer; and that comfort awaits as they begin to view their situation from a heavenly perspective. Ultimately, it reveals that hope is available, death with dignity is possible, and there are hidden treasures to embrace along the way.

La vie et la mort se côtoient tout au long de l'existence humaine. Notre quête de sens ne s'achève jamais. L'être humain ne cesse d'apprendre et de s'adapter tout au long de sa vie. La retraite et le grand âge induisent un processus de gains et de pertes qui aboutira inexorablement à un rétrécissement de l'environnement physique, social et personnel. Selon le contexte, la société et ses institutions de santé perçoivent le vieillissement comme une dégradation de la valeur de la personne. Cette façon de penser influence les citoyens et les professionnels de la santé. Chaque matin, l'être humain entre dans sa vie avec un soi vivant, en transformation, pour s'adapter quotidiennement à de nouvelles réalités. Le réel apprentissage consiste à vivre chaque jour avec la conscience de soi, l'amour et la compassion, à se libérer de l'emprise de la peur, de la culpabilité de vivre. La fin de la vie? Un temps pour enfin naître à soi. Avec Valois Robichaud, demandons-nous quand nous cesserons de moraliser, d'infantiliser, de materner les personnes en fin de vie, et de faire de même avec celles qui ont la responsabilité des soins dits palliatifs. Pouvons-nous donner à la personne sa dernière chance de vivre dans la dignité en agissant selon ses besoins et sa réalité spirituelle? Ces questions nous concernent tous et toutes, n'est-ce-pas?

Menschen in ihrer letzten Lebensphase begleitenAlle beruflich Pflegenden und ehrenamtlich Begleitende finden in diesem Buch die notwendigen Kenntnisse für eine umfassende Betreuung von schwerstkranken und sterbenden Menschen und deren Angehörige zu: Prophylaxen, Therapien, Schmerzlinderung Kommunikation und Ethik Psychosoziale Betreuung Gesetzliche Grundlagen und Hinweise zur Finanzierung durch die Krankenkassen Besondere Situationen bei Kindern, Menschen im Wachkoma, mit geistigen Behinderungen und Demenz Neu in der 6. Auflage Psychosoziale Begleitung von Sterbenden und ihren AngehörigenPalliative Sedierung Besonderheiten im Sterben von Männern Palliative Care für Menschen am Rande der Gesellschaft Vom Wunsch zu Sterben und der Verantwortung der Betreuenden Sterbehilfe Existenzielle Verzweiflung Haltung im palliativen Kontext Akupressur, Hypnotherapie, Musiktherapie, Kunsttherapie Themenrelevante Gesetzestexte, zahlreiche Links und Adressen zu Patientenverfügung und Generalvollmacht sowie Musterschreiben für Betreuer und Ärzte finden Sie auf unserer Website.