20 results on '"McCormack, Pauline"'
Search Results
2. From embodiment to evidence: The harmful intersection of poor regulation of medical implants and obstructed narratives in embodied experiences of failed metal-on-metal hips
3. The Data Quality Index: Improving Data Quality in Irish Healthcare Records
4. Correction: Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis
5. Delivering genomic medicine in the United Kingdom National Health Service: a systematic review and narrative synthesis
6. Erratum: International Charter of principles for sharing bio-specimens and data
7. ‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
8. Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
9. New Recommendation on Biological Materials Could Hamper Muscular Dystrophy Research
10. Precaution, governance and the failure of medical implants: the ASR(TM) hip in the UK
11. International Charter of principles for sharing bio-specimens and data
12. Setting up strategies: patient inclusion in biobank and genomics research in Europe
13. Guidance in Social and Ethical Issues Related to Clinical, Diagnostic Care and Novel Therapies for Hereditary Neuromuscular Rare Diseases: “Translating“ the Translational
14. Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research
15. DISPUTING THE ETHICS OF RESEARCH: THE CHALLENGE FROM BIOETHICS AND PATIENT ACTIVISM TO THE INTERPRETATION OF THE DECLARATION OF HELSINKI IN CLINICAL TRIALS
16. The therapeutic misconception, decision making and informed consent: The ethics of trial participation for neuromuscular disorders
17. Response
18. The risks of therapeutic misconception and individual patient (n=1) “trials” in rare diseases such as Duchenne dystrophy
19. Cell therapies for Duchenne muscular dystrophy: some ethical issues for personalised medicines
20. Trade and technological explanations for changes in sectoral labour demand in OECD economies
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