1. Questionnaire-based screening for mental distress in epilepsy: Outline and feasibility of an outpatient screening and intervention pathway
- Author
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Gillespie, David C., Flewitt, Iona, Sacripante, Riccardo, Burns, Victoria, Young, Leslie, Chin, Richard, and Duncan, Susan
- Subjects
Behavioral Neuroscience ,Neurology ,Neurology (clinical) - Abstract
Objective: Mental distress is present in a significant proportion of people with epilepsy (PWE), with a negative impact across life domains. It is under-diagnosed and under-treated despite guidelines recommending screening for its presence (e.g. SIGN, 2015). We describe a tertiary-care epilepsy mental distress screening and treatment pathway, with a preliminary investigation of its feasibility. Methods: We selected psychometric screening instruments for depression, anxiety, quality of life (QOL) and suicidality, establishing treatment options matched to instrument scores on the Patient Health Questionnaire 9 (PHQ-9), along ‘traffic light’ lines. We determined feasibility outcomes including: recruitment and retention rates, resources required to run the pathway, and level of psychological need. We undertook a preliminary investigation of change in distress scores over a 9-month interval, and determined PWE engagement and perceived usefulness of pathway treatment options. Results: Two thirds of eligible PWE were included in the pathway with an 88% retention rate. At initial screen 45.8% of PWE required either an ‘Amber-2’ intervention (for moderate distress) or a ‘Red’ one (for severe distress). The equivalent figure at 9-month re-screen was 36.8%, reflective of improvement in depression and QOL scores. Online charity-delivered wellbeing sessions and neuropsychology were rated highly for engagement and perceived usefulness, but computerised cognitive behavioural therapy was not. The resources required to run the pathway were modest.Conclusion: Outpatient mental distress screening and intervention are feasible in PWE. The challenge is to optimise methods for screening in busy clinics and to determine the best (and most acceptable) interventions for screen positive PWE.
- Published
- 2023
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