26 results on '"Bethlehem Tekola"'
Search Results
2. Mapping Awareness-Raising and Capacity-Building Materials on Developmental Disabilities for Non-Specialists: a Review of the Academic and Grey Literature
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Elisa Genovesi, Yuan Ishtar Yao, Emily Mitchell, Michal Arad, Victoria Diamant, Areej Panju, Charlotte Hanlon, Bethlehem Tekola, and Rosa Hoekstra
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Most children with developmental disabilities (DD), such as intellectual disabilities and autism, live in low- and middle-income countries (LMICs), where services are usually limited. Various governmental, non-governmental and research organisations in LMICs have developed awareness-raising campaigns and training and education resources on DD in childhood relevant to LMICs. This study aimed to comprehensively search and review freely available materials in the academic and grey literature, aimed at awareness raising, training and education on DD among non-specialist professionals and community members in LMICs. We consulted 183 experts, conducted key-word searches in five academic databases, four grey-literature databases and seventeen customised Google search engines. Following initial screening we manually searched relevant systematic reviews, lists of resources and conducted forwards and backwards citation checks of included articles. We identified 7327 articles and resources after deduplication. We then used a rigorous multi-step screening process to select 78 training resources on DD relevant to LMICs, of which 43 aimed at informing and/or raising awareness DD, 16 highlighted specific strategies for staff in health settings and 19 in education settings. Our mapping analysis revealed that a wealth of materials is available for both global and local use, including comics, children’s books, flyers, posters, fact sheets, blogs, videos, websites pages, social media channels, handbooks and self-education guides, and training programmes or sessions. Twelve resources were developed for cross-continental or global use in LMICs, 19 were developed for and/or used in Africa, 23 in Asia, 24 in Latin America. Most resources were developed within the context where they were intended to be used. Identified gaps included a limited range of resources on intellectual disabilities, manuals for actively delivering training to staff in education settings and resources targeted at eastern European LMICs. Beyond identifying these gaps, the value of the review lies in the compilation of summary tables of information on all freely available resources found, to support their selection and use in wider contexts. Information on the resource content, country of original development and copyright is provided to facilitate resource sharing and uptake.
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- 2023
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3. The experiences of parents raising children with developmental disabilities in Ethiopia
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Bethlehem Tekola, Mersha Kinfe, Fikirte Girma Bayouh, Charlotte Hanlon, and Rosa A Hoekstra
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Children ,developmental disabilities ,Ethiopia ,parents ,qualitative ,Developmental and Educational Psychology - Abstract
The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. Parents’ lived experiences can provide insights into local conceptualizations of developmental disabilities, challenges children and their families face and their needs. This study explores the experiences of parents (14 mothers and 4 fathers) raising children with developmental disabilities in urban and rural Ethiopia using in-depth interviews. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple and intersecting struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed. Lay abstract The experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. We interviewed 14 mothers and 4 fathers in Addis Ababa and the rural town of Butajira to explore what life is like for parents caring for children with developmental disabilities in Ethiopia. Cultural and religious beliefs played a role in the types of delays or differences in their child’s development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed.
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- 2022
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4. The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities
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Zsofia Szlamka, Bethlehem Tekola, Rosa Hoekstra, and Charlotte Hanlon
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Internationality ,Caregivers ,Developmental Disabilities ,Public Health, Environmental and Occupational Health ,Humans ,Empowerment ,Family ,Patient Advocacy ,Focus Groups ,Child ,Child Advocacy ,Delivery of Health Care ,Qualitative Research - Abstract
Empowerment of families raising children with developmental disabilities (DDs) is essential to achieving rights-based service development.In this qualitative study, we investigated stakeholder perceptions on the role of advocacy and empowerment in developing caregiver interventions for families of children with DDs in a global context. Participants had experience with at least one intervention, namely the Caregiver Skills Training developed by the World Health Organization (WHO). Participants were clinicians, caregivers and researchers representing five continents, and representatives of WHO and Autism Speaks. Two focus group discussions and 25 individual interviews were conducted. Data were analysed thematically.Three themes were developed: empowerment as independence and as a right; the role and practices of advocacy; and using evidence to drive advocacy. Many professional participants defined empowerment within the realms of their expertise, focusing on caregivers' individual skills and self-confidence. Caregivers expressed that this expert-oriented view fails to acknowledge their intuitive knowledge and the need for community-level empowerment. Participants discussed the challenges of advocacy in light of competing health priorities. The gap between the rights of caregivers and the availability of services, for example, evidence-based interventions, was highlighted as problematic. Scientific evidence was identified as a key for advocacy.Rights-orientated empowerment of caregivers and advocacy may make vital contributions to service development for children with DDs in contexts worldwide.Research questions were revised based on views presented during focus group discussions. Participant feedback on preliminary themes informed the development of the interview guides.
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- 2022
5. Understandings of depression among community members and primary healthcare attendees in rural Ethiopia: A qualitative study
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Bethlehem Tekola, Rosie Mayston, Tigist Eshetu, Rahel Birhane, Barkot Milkias, Charlotte Hanlon, and Abebaw Fekadu
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Psychiatry and Mental health ,Health (social science) - Abstract
Available evidence in Africa suggests that the prevalence of depression in primary care settings is high but it often goes unrecognized. In this study, we explored how depression is conceptualized and communicated among community members and primary care attendees diagnosed with depression in rural Ethiopia with the view to informing the development of interventions to improve detection. We conducted individual interviews with purposively selected primary care attendees with depression (n = 28; 16 females and 12 males) and focus group discussions (FGDs) with males, females, and priests (n = 21) selected based on their knowledge of their community. Data were analyzed using thematic analysis. None of the community members identified depression as a mental illness. They considered depressive symptoms presented in a vignette as part of a normal reaction to the stresses of life. They considered medical intervention only when the woman's condition in the vignette deteriorated and “affected her mind.” In contrast, participants with depression talked about their condition as illness. Symptoms spontaneously reported by these participants only partially matched symptoms listed in the current diagnostic criteria for depressive disorders. In all participants’ accounts, spiritual explanations and traditional healing were prominent. The severity of symptoms mediates the decision to seek medical help. Improved detection may require an understanding of local conceptualizations in order to negotiate an intervention that is acceptable to affected people.
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- 2021
6. Adaptation and validation of two autism-related measures of skills and quality of life in Ethiopia
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Anton Borissov, Ioannis Bakolis, Bethlehem Tekola, Mersha Kinfe, Caterina Ceccarelli, Fikirte Girma, Rehana Abdurahman, Tigist Zerihun, Charlotte Hanlon, and Rosa A Hoekstra
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2. Zero hunger ,Autism Spectrum Disorder ,03 medical and health sciences ,0302 clinical medicine ,Caregivers ,Surveys and Questionnaires ,Developmental and Educational Psychology ,Quality of Life ,Humans ,030212 general & internal medicine ,Ethiopia ,Autistic Disorder ,Child ,030217 neurology & neurosurgery - Abstract
Although most children with autism and other neurodevelopmental disorders live in low- and middle-income countries, assessment tools are lacking in these settings. This study aims to culturally adapt and validate two questionnaires for use in Ethiopia: the Autism Treatment Evaluation Checklist and the Pediatric Quality of Life Inventory™ Family Impact Module. Both questionnaires were adapted to be suitable for administration in low-literate caregivers and translated using the backward translation procedure. The factor structure, reliability and validity were investigated using caregiver-reports on 300 children with neurodevelopmental disorders or physical health conditions. Confirmatory factor analysis of the Pediatric Quality of Life Inventory™ Family Impact Module data indicated an acceptable fit of the hypothesised eight-factor structure. Internal consistency was high for both measures. Test–retest reliability was excellent for the Autism Treatment Evaluation Checklist and moderate to excellent for the Pediatric Quality of Life Inventory™ Family Impact Module. Both questionnaires demonstrated adequate known-group validity, with moderate to very large effect size group differences between case and control groups. The questionnaires correlated moderately with each other. In conclusion, the Ethiopian adaptations of the Autism Treatment Evaluation Checklist and the Pediatric Quality of Life Inventory™ Family Impact Module are valid and reliable tools for use in parents of children with neurodevelopmental disorders including autism. These adapted measures may also be valuable for use in other low-income settings. Lay abstract Although most children with autism and other neurodevelopmental disorders live in low- and middle-income countries, reliable tools to assess these conditions are often not available in these settings. In this study, we adapted two questionnaires developed in Western high-income contexts for use in Ethiopia – the Autism Treatment Evaluation Checklist and the Pediatric Quality of Life Inventory™ Family Impact Module. Both measures are completed by a child’s caregiver and both are relatively short and easy to complete. The Autism Treatment Evaluation Checklist is used to monitor the developmental issues of the child, while the Pediatric Quality of Life Inventory™ Family Impact Module measures the impact of the child’s condition on the caregiver. We translated both tools into the Ethiopian language Amharic, and adapted them to the local cultural context. Three hundred caregivers, half of whom were parents of children with neurodevelopmental disorders, and half were parents of children with physical health problems, completed the questionnaires through a face-to face interview, so that non-literate caregivers could also take part. Both tools performed adequately, measured what we aimed to measure and were reliable. Both the Autism Treatment Evaluation Checklist and Pediatric Quality of Life Inventory™ are suitable tools to assess children with developmental and other health problems in Ethiopia and their caregivers. We believe that more similar tools should be developed or adapted for use in low-income countries like Ethiopia, to gain a better understanding of developmental problems in those settings, and allowing clinicians and service providers to use these tools in their practice. Moreover, these tools can be used in future studies to evaluate interventions to improve support for families.
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- 2021
7. Validation of the Communication Profile-Adapted in Ethiopian children with neurodevelopmental disorders
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Caterina Ceccarelli, Ioannis Bakolis, Bethlehem Tekola, Mersha Kinfe, Anton Borissov, Fikirte Girma, Rehana Abdurahman, Tigist Zerihun, Charlotte Hanlon, and Rosa A. Hoekstra
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Original Research Paper ,psychometrics ,sub-Saharan Africa ,03 medical and health sciences ,0302 clinical medicine ,neurodevelopmental disorders ,communication disorders ,030212 general & internal medicine ,Other ,Caregiver ,030217 neurology & neurosurgery - Abstract
Background Neurodevelopmental disorders (NDDs) are conditions affecting a child's cognitive, behavioural, and emotional development. Appropriate and validated outcome measures for use in children with NDDs in sub-Saharan Africa are scarce. The aim of this study was to validate the Communication Profile Adapted (CP-A), a measure developed in East Africa to assess caregivers' perception of communication among children with NDDs. Methods We adapted the CP-A for use in Ethiopia, focusing on the communicative mode (CP-A-mode) and function (CP-A-function) scales. The CP-A was administered to a representative sample of caregivers of children with NDDs and clinical controls. We performed an exploratory factor analysis and determined the internal consistency, test-retest reliability, within-scale, known-group, and convergent validity of the identified factors. Results Our analysis included N = 300 participants (N = 139 cases, N = 139 clinical controls, N = 22 who did not meet criteria for either cases or controls). Within the CP-A-mode, we identified two factors (i.e. verbal and physical communication); the CP-A-function scale was unidimensional. Combining both scales into one summary variable (the CP-A-total) resulted in a scale with excellent internal consistency and test-retest reliability (Cronbach's alpha = 0.97; Kappa = 0.60–0.95, p < 0.001; ICC = 0.97, p < 0.001). Testing known-group validity, the CP-A-total scores were significantly higher for controls than cases (Δ mean = 33.93, p < 0.001). Convergent validity assessment indicated that scores were negatively and moderately correlated with clinical severity (ρ = −0.25, p = 0.04). Conclusion The CP-A is a valid tool for the assessment of communication among children with NDDs in Ethiopia. It holds promise as a brief, quantitative, and culturally appropriate outcome measure for use in sub-Saharan Africa.
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- 2021
8. Exploring contextual adaptations in caregiver interventions for families raising children with developmental disabilities
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Zsofia, Szlamka, Charlotte, Hanlon, Bethlehem, Tekola, Laura, Pacione, Erica, Salomone, Chiara, Servili, Rosa A, Hoekstra, Szlamka, Z, Hanlon, C, Tekola, B, Pacione, L, Salomone, E, Servili, C, and Hoekstra, R
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Multidisciplinary ,Focus Group ,Caregivers ,Developmental Disabilities ,Humans ,Focus Groups ,Caregiver ,Child ,Poverty ,Human - Abstract
There are increasing efforts to scale up services globally for families raising children with developmental disabilities (DDs). Existing interventions, often developed in high income, Western settings, need substantial adaptation before they can be implemented in different contexts. The aim of this study was to explore perspectives on the role that context plays in the adaptation and implementation of interventions targeting caregivers of children with DDs across settings. The study question was applied to the Caregiver Skills Training (CST) programme of the World Health Organization specifically, as well as to stakeholder experiences with caregiver interventions more broadly. Two focus group discussions (FGDs; n = 15 participants) and 25 individual semi-structured interviews were conducted. Participants were caregivers of children with DDs and professionals involved in adapting or implementing the CST across five continents and different income settings. Data were analysed thematically. Four main themes were developed: 1) Setting the scene for adaptations; 2) Integrating an intervention into local public services; 3) Understanding the reality of caregivers; 4) Challenges of sustaining an intervention. Informants thought that contextual adaptations were key for the intervention to fit in locally, even more so than cultural factors. The socio-economic context of caregivers, including poverty, was highlighted as heavily affecting service access and engagement with the intervention. Competing health priorities other than DDs, financial constraints, and management of long-term collaborations were identified as barriers. This study validates the notion that attention to contextual factors is an essential part of the adaptation of caregiver interventions for children with DDs, by providing perspectives from different geographical regions. We recommend a stronger policy and research focus on contextual adaptations of interventions and addressing unmet socio-economic needs of caregivers.
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- 2021
9. Pathways into and out of homelessness among people with severe mental illness in rural Ethiopia: a qualitative study
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Kaleab Ketema, Bethlehem Tekola, Caroline Smartt, Charlotte Hanlon, Abebaw Fekadu, Rahel Birhane, Medhin Selamu, Tigist Eshetu, Souci Frissa, and Martin Prince
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Rural Population ,medicine.medical_specialty ,Family support ,Psychological intervention ,Substance use ,03 medical and health sciences ,Social support ,0302 clinical medicine ,Global mental health ,Health care ,Severe mental illness ,mental disorders ,medicine ,Humans ,030212 general & internal medicine ,Psychiatry ,Qualitative Research ,Low- and middle-income countries ,business.industry ,Mental Disorders ,Public health ,lcsh:Public aspects of medicine ,Public Health, Environmental and Occupational Health ,Homelessness ,lcsh:RA1-1270 ,Mental illness ,medicine.disease ,Psychosis ,030227 psychiatry ,Psychotic Disorders ,Ill-Housed Persons ,Ethiopia ,Thematic analysis ,business ,Research Article - Abstract
Background Little is known about the pathways followed into and out of homelessness among people with experience of severe mental illness (SMI) living in rural, low-income country settings. Understanding these pathways is essential for the development of effective interventions to address homelessness and promote recovery. The aim of this study was to explore pathways into and out of homelessness in people with SMI in rural Ethiopia. Methods In-depth interviews were conducted with 15 people with SMI who had experienced homelessness and 11 caregivers. Study participants were identified through their participation in the PRIME project, which implemented a multi-component district level plan to improve access to mental health care in primary care in Sodo district, Ethiopia. People enrolled in PRIME who were diagnosed with SMI (schizophrenia, schizoaffective disorder or bipolar disorder) and who had reported experiencing homelessness at recruitment formed the sampling frame for this qualitative study. We used OpenCode 4.0 and Microsoft Excel for data management. Thematic analysis was conducted using an inductive approach. Results Study participants reported different patterns of homelessness, with some having experienced chronic and others an intermittent course. Periods of homelessness occurred when family resources were overwhelmed or not meeting the needs of the person with SMI. The most important pathways into homelessness were reported to result from family conflict and the worsening of mental ill health, interplaying with substance use in many cases. Participants also mentioned escape and/or wanting a change in environment, financial problems, and discrimination from the community as contributing to them leaving the home. Pathways out of homelessness included contact with (mental and physical) health care as a catalyst to the mobilization of other supports, family and community intervention, and self-initiated return. Conclusions Homelessness in people with SMI in this rural setting reflected complex health and social needs that were not matched by adequate care and support. Our study findings indicate that interventions to prevent and tackle homelessness in this and similar settings ought to focus on increasing family support, and ensuring access to acceptable and suitable housing, mental health care and social support.
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- 2021
10. Additional file 1 of Pathways into and out of homelessness among people with severe mental illness in rural Ethiopia: a qualitative study
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Smartt, Caroline, Kaleab Ketema, Souci Frissa, Bethlehem Tekola, Birhane, Rahel, Tigist Eshetu, Medhin Selamu, Prince, Martin, Abebaw Fekadu, and Hanlon, Charlotte
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Additional file 1 Table S1. Living situations for study participants at the time of interview.
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- 2021
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11. Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study
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Mersha Kinfe, Charlotte Hanlon, Fikirte Girma, Bethlehem Tekola, and Rosa A. Hoekstra
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Male ,Parents ,Health (social science) ,Family support ,Developmental Disabilities ,Social Stigma ,Psychological intervention ,Article ,Developmental psychology ,03 medical and health sciences ,Social support ,0302 clinical medicine ,History and Philosophy of Science ,Humans ,030212 general & internal medicine ,Child ,Children ,Courtesy ,030503 health policy & services ,Developmental disorders ,Mental health ,Stigma (anatomy) ,Stigma ,Caregivers ,Female ,Perception ,Ethiopia ,Thematic analysis ,0305 other medical science ,Psychology ,Qualitative ,Qualitative research - Abstract
Although stigma related to developmental disorders (DD) has been associated with poor mental health among caregivers, an in-depth understanding of factors that influence internalisation of stigma by caregivers is missing. The aim of our study was to explore perceptions and experiences of stigma among parents of children with DD in Ethiopia and examine the contributing and protective factors for internalised stigma based on the perspectives of the parents themselves. We conducted in-depth interviews with eighteen parents (fourteen mothers, four fathers) in Addis Ababa (between December 25, 2017 and January 8, 2018) and the rural town of Butajira (between August 08, 2018 and August 16, 2018). We analysed the data using thematic analysis. Parents perceived and experienced different forms of stigma that were directed towards their child (public stigma) and themselves (courtesy stigma). Some parents also described how they isolated themselves and their child from social life (affiliate stigma). Parents perceived the negative consequence of stigma on the lives of their child with DD, siblings and themselves. Most parents also described examples of positive reactions and support from their own family and the community. Participants’ accounts suggested supportive contributions and positive responses from the general public came primarily from those who had better awareness of DD. Not all parents in our study internalised the stigma that was directed at them. Whilst perceived family support and acceptance and increased awareness about DD appeared to help some parents not to internalise stigma, the perceived lack of social support and acceptance made some parents vulnerable to internalised stigma. These findings can inform anti-stigma intervention priorities. Awareness-raising activities targeting the community as a whole as well as interventions targeting parents themselves are likely to be beneficial. Interventions should consider the wellbeing of the whole family unit rather than focus on individuals alone., Highlights • Parents of children with developmental disorders in Ethiopia report severe stigma. • Not all parents in this qualitative study internalised the stigma directed at them. • Parents also discussed positive reactions and support from others. • Perceived family support and acceptance helped parents not to internalise stigma. • Perceived lack of social support made parents vulnerable to internalised stigma.
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- 2020
12. Explanatory models of depression in sub-Saharan Africa:synthesis of qualitative evidence
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Martin Prince, Bethlehem Tekola, Rosie Mayston, Souci Frissa, Abebaw Fekadu, and Charlotte Hanlon
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medicine.medical_specialty ,Health (social science) ,Inclusion (disability rights) ,Health Personnel ,Psychological intervention ,Context (language use) ,Scientific literature ,Article ,03 medical and health sciences ,0302 clinical medicine ,Global mental health ,History and Philosophy of Science ,Health care ,medicine ,Humans ,Relevance (law) ,030212 general & internal medicine ,Psychiatry ,Africa South of the Sahara ,Depression (differential diagnoses) ,Sub-Saharan Africa ,business.industry ,Depression ,Explanatory models ,Mental Disorders ,030503 health policy & services ,Mental Health ,Qualitative synthesis ,0305 other medical science ,business ,Psychology - Abstract
Debate about the cross-cultural relevance of depression has been central to cross-cultural psychiatry and global mental health. Although there is now a wealth of evidence pertaining to symptoms across different cultural settings, the role of the health system in addressing these problems remains contentious. Depression is undetected among people attending health facilities. We carried out a thematic synthesis of qualitative evidence published in the scientific literature from sub-Saharan Africa to understand how depression is debated, deployed and described. No date limits were set for inclusion of articles. Our results included 23 studies carried out in communities, among people living with HIV, attendees of primary healthcare and with healthcare workers and traditional healers. Included studies were carried out between 1995 and 2018. In most cases, depression was differentiated from ‘madness’ and seen to have its roots in social adversity, predominantly economic and relationship problems, sometimes entangled with HIV. Participants described the alienation that resulted from depression and a range of self-help and community resources utilised to combat this isolation. Both spiritual and biomedical causes, and treatment, were considered when symptoms were very severe and/or other possibilities had been considered and discarded. Context shaped narratives: people already engaged with the health system for another illness such as HIV were more likely to describe their depression in biomedical terms. Resolution of depression focussed upon remaking the life world, bringing the individual back to familiar rhythms, whether this was through the mechanism of encouraging socialisation, prayer, spiritual healing or biomedical treatment. Our findings suggest that it is essential that practitioners and researchers are fluent in local conceptualisations and aware of local resources to address depression. Design of interventions offered within the health system that are attuned to this are likely to be welcomed as an option among other resources available to people living with depression., Highlights • Depression was perceived as problem with its roots in social adversity. • Context matters-those engaged with the health system adopted biomedical models. • Self-help and community resources were the first line in addressing depression. • Traditional and biomedical medicine were used when symptoms were chronic or severe. • Stepped care interventions should take into account local resources and models.
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- 2020
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13. Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
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Abebaw Fekadu, Mersha Kinfe, Rehana Abdurahman, Chiara Servili, Bethlehem Tekola, Zemi Yenus, Charlotte Hanlon, Markos Tesfaye, Laura Pacione, Who Cst Team, Fikirte Girma, Rosa A. Hoekstra, Erica Salomone, Tekola, B, Girma, F, Kinfe, M, Abdurahman, R, Tesfaye, M, Yenus, Z, Salomone, E, Pacione, L, Fekadu, A, Servili, C, Hanlon, C, and Hoekstra, R
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Male ,0302 clinical medicine ,Developmental and Educational Psychology ,030212 general & internal medicine ,Child ,caregiver ,developmental disorder ,media_common ,2. Zero hunger ,4. Education ,05 social sciences ,Stakeholder ,3. Good health ,developmental delay ,Feeling ,Evaluation Studies as Topic ,Child, Preschool ,Female ,Psychology ,050104 developmental & child psychology ,Adult ,caregivers ,parent-mediated ,media_common.quotation_subject ,education ,Stigma (botany) ,Qualitative property ,Context (language use) ,World Health Organization ,Interviews as Topic ,03 medical and health sciences ,M-PSI/04 - PSICOLOGIA DELLO SVILUPPO E PSICOLOGIA DELL'EDUCAZIONE ,medicine ,Humans ,0501 psychology and cognitive sciences ,developmental disorders ,Autistic Disorder ,Developing Countries ,Medical education ,Child rearing ,parenting skills programme ,Original Articles ,medicine.disease ,Child development ,qualitative ,Autism ,Feasibility Studies ,Ethiopia ,M-PSI/08 - PSICOLOGIA CLINICA ,Program Evaluation - Abstract
The World Health Organization’s Caregiver Skills Training programme for children with developmental disorders or delays teaches caregivers strategies to help them support their child’s development. Ethiopia has a severe lack of services for children with developmental disorders or delays. This study explored the perspectives of Ethiopian caregivers, professionals and other stakeholders to inform adaptation and implementation of the World Health Organization’s Caregiver Skills Training in Ethiopia. Data collection included (1) a consultation and review, comprising stakeholder meetings, review of draft Caregiver Skills Training materials and feedback from Ethiopian Master Trainees and (2) a pre-pilot including quantitative feasibility and acceptability measures and qualitative interviews with caregivers (n = 9) and programme facilitators/observers (n = 5). The consultation participants indicated that the Caregiver Skills Training addresses an urgent need and is relevant to the Ethiopian context. Several adaptations were proposed, including more emphasis on psycho-education, stigma, parental feelings of guilt and expectations of a cure. The adapted Caregiver Skills Training was pre-piloted with excellent participation (100%) and retention (90%) rates. Four themes were developed from the qualitative data: (1) Programme acceptability and relevance, (2) Perceived programme benefits, (3) Challenges and barriers and (4) Suggestions for improvement. The World Health Organization’s Caregiver Skills Training addresses a local need and, with careful adaptations, is feasible and acceptable to be implemented in Ethiopia. These findings may have relevance to low-resource settings worldwide.
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- 2020
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14. Scaling up integrated primary mental health in six low- and middle-income countries: obstacles, synergies and implications for systems reform
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Dristy Gurung, André Janse van Rensburg, Bethlehem Tekola, Graham Thornicroft, Crick Lund, Lola Kola, Ruwayda Petrus, James Mugisha, Maya Semrau, Shital Muke, Oye Gureje, Fred Kigozi, Jibril Abdulmalik, Rahul Shidhaye, Mark J. D. Jordans, Joshua Ssebunnya, Nawaraj Upadhaya, Charlotte Hanlon, Inge Petersen, Abebaw Fekadu, Vikram Patel, Ntokozo Mntambo, RS: CAPHRI - R4 - Health Inequities and Societal Participation, Metamedica, and Promovendi PHPC
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Knowledge management ,Service delivery framework ,Psychological intervention ,Context (language use) ,Health informatics ,03 medical and health sciences ,primary healthcare ,0302 clinical medicine ,Global mental health ,global mental health ,030212 general & internal medicine ,Emerald Series ,integrated care ,business.industry ,CARE ,Mental health ,030227 psychiatry ,3. Good health ,Integrated care ,low-and middle-income countries ,Psychiatry and Mental health ,Mental health services ,low -and middle-income countries ,Implementation research ,business - Abstract
Background There is a global drive to improve access to mental healthcare by scaling up integrated mental health into primary healthcare (PHC) systems in low- and middle-income countries (LMICs). Aims To investigate systems-level implications of efforts to scale-up integrated mental healthcare into PHC in districts in six LMICs. Method Semi-structured interviews were conducted with 121 managers and service providers. Transcribed interviews were analysed using framework analysis guided by the Consolidated Framework for Implementation Research and World Health Organization basic building blocks. Results Ensuring that interventions are synergistic with existing health system features and strengthening of the healthcare system building blocks to support integrated chronic care and task-sharing were identified as aiding integration efforts. The latter includes (a) strengthening governance to include technical support for integration efforts as well as multisectoral collaborations; (b) ring-fencing mental health budgets at district level; (c) a critical mass of mental health specialists to support task-sharing; (d) including key mental health indicators in the health information system; (e) psychotropic medication included on free essential drug lists and (f) enabling collaborative and community- oriented PHC-service delivery platforms and continuous quality improvement to aid service delivery challenges in implementation. Conclusions Scaling up integrated mental healthcare in PHC in LMICs is more complex than training general healthcare providers. Leveraging existing health system processes that are synergistic with chronic care services and strengthening healthcare system building blocks to provide a more enabling context for integration are important. Declaration of interest None.
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- 2019
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15. Ethiopian community health workers’ beliefs and attitudes towards children with autism: impact of a brief training intervention
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Charlotte Hanlon, Bethlehem Tekola, Ilona Roth, Basiro Davey, Abebaw Fekadu, Dejene Tilahun, Rosa A. Hoekstra, and Mesfin Araya
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Adult ,Gerontology ,Health Knowledge, Attitudes, Practice ,030506 rehabilitation ,Attitude of Health Personnel ,Care provision ,03 medical and health sciences ,Developmental and Educational Psychology ,medicine ,Humans ,0501 psychology and cognitive sciences ,Autistic Disorder ,Child ,Community Health Workers ,Rural health ,Social distance ,05 social sciences ,medicine.disease ,Mental health ,Autism spectrum disorder ,Community health ,Autism ,Female ,Health education ,Ethiopia ,0305 other medical science ,Psychology ,050104 developmental & child psychology ,Clinical psychology - Abstract
There is a severe shortage of services for children with autism in Ethiopia; access to services is further impeded by negative beliefs and stigmatising attitudes towards affected children and their families. To increase access to services, care provision is decentralised through task-shifted care by community health extension workers. This study aimed to examine the impact of a brief training (Health Education and Training; HEAT) for Ethiopian rural health extension workers and comprised three groups: (1) health extension workers who completed a basic mental health training module (HEAT group, N = 104); (2) health extension workers who received enhanced training, comprising basic HEAT as well as video-based training on developmental disorders and a mental health pocket guide (HEAT+ group, N = 97); and (3) health extension workers untrained in mental health (N = 108). All participants completed a questionnaire assessing beliefs and social distance towards children with autism. Both the HEAT and HEAT+ group showed fewer negative beliefs and decreased social distance towards children with autism compared to the untrained health extension worker group, with the HEAT+ group outperforming the HEAT group. However, HEAT+ trained health extension workers were less likely to have positive expectations about children with autism than untrained health extension workers. These findings have relevance for task-sharing and scale up of autism services in low-resource settings worldwide.
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- 2019
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16. Nothing about us without us:the importance of local collaboration and engagement in the global study of autism
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Bethlehem Tekola, Zemi Yenus, Rosa A. Hoekstra, and Fikirte Girma
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business.industry ,05 social sciences ,Psychological intervention ,Nothing About Us Without Us ,Context (language use) ,Public relations ,Research findings ,medicine.disease ,03 medical and health sciences ,Psychiatry and Mental health ,0302 clinical medicine ,Adage ,Order (exchange) ,Political science ,medicine ,Autism ,0501 psychology and cognitive sciences ,030212 general & internal medicine ,Special Paper ,business ,Culturally appropriate ,050104 developmental & child psychology - Abstract
Our current understanding of autism and other developmental disorders is primarily based on research conducted in high-income countries, predominantly in North America and Europe. Even within high-income countries, White participants are overrepresented in autism research. There is now increased recognition that a more global and diverse research representation is warranted. This paper argues that in order for global and diverse research efforts to be effective, it is essential to collaborate and engage with local experts and stakeholders, including local researchers, clinicians and representatives from governmental and non-governmental organisations. Such collaborations ensure that studies use culturally appropriate methods and materials, and that research findings are interpreted taking local context into account. Ultimately, these collaborations build local capacity and foster the development of culturally and contextually appropriate interventions that address locally perceived needs. The adage ‘nothing about us without us’ is vital to global autism research.
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- 2018
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17. Narratives of three prostitutes in Addis Ababa
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Bethlehem Tekola
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- 2017
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18. AUT730298_Lay_Abstract – Supplemental material for Ethiopian community health workers’ beliefs and attitudes towards children with autism: Impact of a brief training intervention
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Dejene Tilahun, Abebaw Fekadu, Bethlehem Tekola, Mesfin Araya, Roth, Ilona, Basiro Davey, Hanlon, Charlotte, and Hoekstra, Rosa A
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FOS: Psychology ,FOS: Clinical medicine ,170199 Psychology not elsewhere classified ,111799 Public Health and Health Services not elsewhere classified ,FOS: Educational sciences ,110319 Psychiatry (incl. Psychotherapy) ,FOS: Health sciences ,130312 Special Education and Disability ,Education - Abstract
Supplemental material, AUT730298_Lay_Abstract for Ethiopian community health workers’ beliefs and attitudes towards children with autism: Impact of a brief training intervention by Dejene Tilahun, Abebaw Fekadu, Bethlehem Tekola, Mesfin Araya, Ilona Roth, Basiro Davey, Charlotte Hanlon and Rosa A Hoekstra in Autism
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- 2017
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19. SEX-WORKERS IN DAYLIGHT: THE SOCIAL CONTEXT OF SEX-WORK IN ADDIS ABABA
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Bethlehem Tekola
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- 2017
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20. Additional file 1: Table S1. of Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey
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Dejene Tilahun, Hanlon, Charlotte, Abebaw Fekadu, Bethlehem Tekola, Yonas Baheretibeb, and Hoekstra, Rosa
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health care economics and organizations - Abstract
Type of treatment tried, unmet needs and coping mechanisms of caregivers of children with developmental disorders. (DOCX 13Â kb)
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- 2016
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21. Using Qualitative Methods with Poor Children in Urban Ethiopia: Opportunities & Challenges
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Bethlehem Tekola, Laura Camfield, and Christine Griffin
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medicine.medical_specialty ,Coping (psychology) ,Sociology and Political Science ,Poverty ,business.industry ,Public health ,General Social Sciences ,Participatory action research ,Public relations ,Arts and Humanities (miscellaneous) ,Human geography ,Pedagogy ,Well-being ,Developmental and Educational Psychology ,medicine ,Child poverty ,Sociology ,business ,Qualitative research - Abstract
This paper discusses the advantages and challenges of using qualitative methods to elicit poor children’s perspectives about threats and positive influences on their wellbeing. It draws on research carried out by the author on the subjective experiences of poor children in Addis Ababa, the capital of Ethiopia in terms of their understandings of wellbeing, threats to their wellbeing, coping strategies, and positive or resilient outcomes. After a brief introduction reviewing previous approaches to child poverty in general and research on Ethiopian children in particular, the second section describes the research setting and the ethical approach to the study, which influenced how consent was obtained and the data analysed. The paper then describes the use of qualitative methods such as semi-structured interviews, draw-and-tell, and diaries, the kinds of data they produced and the methodological and ethical dilemmas and tensions encountered in using them. It concludes that despite the challenges qualitative methods are invaluable in order to understand what poor children see as threats and positive influences on their wellbeing.
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- 2008
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22. AUT848532_Supplemental_material – Supplemental material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
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Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Abdurahman, Rehana, Tesfaye, Markos, Zemi Yenus, Salomone, Erica, Pacione, Laura, Abebaw Fekadu, Servili, Chiara, Hanlon, Charlotte, and Hoekstra, Rosa A
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FOS: Psychology ,4. Education ,FOS: Clinical medicine ,170199 Psychology not elsewhere classified ,111799 Public Health and Health Services not elsewhere classified ,FOS: Educational sciences ,110319 Psychiatry (incl. Psychotherapy) ,FOS: Health sciences ,130312 Special Education and Disability ,Education - Abstract
Supplemental material, AUT848532_Supplemental_material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia by Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Rehana Abdurahman, Markos Tesfaye, Zemi Yenus, Erica Salomone, Laura Pacione, Abebaw Fekadu, Chiara Servili, Charlotte Hanlon and Rosa A Hoekstra in Autism
23. AUT848532_Lay_Abstract – Supplemental material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
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Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Abdurahman, Rehana, Tesfaye, Markos, Zemi Yenus, Salomone, Erica, Pacione, Laura, Abebaw Fekadu, Servili, Chiara, Hanlon, Charlotte, and Hoekstra, Rosa A
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FOS: Psychology ,4. Education ,FOS: Clinical medicine ,170199 Psychology not elsewhere classified ,111799 Public Health and Health Services not elsewhere classified ,FOS: Educational sciences ,110319 Psychiatry (incl. Psychotherapy) ,FOS: Health sciences ,130312 Special Education and Disability ,Education - Abstract
Supplemental material, AUT848532_Lay_Abstract for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia by Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Rehana Abdurahman, Markos Tesfaye, Zemi Yenus, Erica Salomone, Laura Pacione, Abebaw Fekadu, Chiara Servili, Charlotte Hanlon and Rosa A Hoekstra in Autism
24. Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey
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Charlotte Hanlon, Yonas Baheretibeb, Bethlehem Tekola, Abebaw Fekadu, Dejene Tilahun, and Rosa A. Hoekstra
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Adult ,Male ,Health Knowledge, Attitudes, Practice ,030506 rehabilitation ,medicine.medical_specialty ,Social stigma ,Autism Spectrum Disorder ,Child Health Services ,Social Stigma ,Developmental disorder ,Intellectual disability ,Psychological intervention ,Poison control ,Suicide prevention ,03 medical and health sciences ,Developing countries, Africa ,Surveys and Questionnaires ,Adaptation, Psychological ,medicine ,Humans ,0501 psychology and cognitive sciences ,Child ,Psychiatry ,Medicine, African Traditional ,Poverty ,Family Characteristics ,business.industry ,Health Policy ,05 social sciences ,Patient Acceptance of Health Care ,medicine.disease ,Mental health ,Stigma ,Cross-Sectional Studies ,Caregivers ,Autism spectrum disorder ,Female ,Ethiopia ,0305 other medical science ,business ,Research Article ,050104 developmental & child psychology - Abstract
Background Understanding the perspectives of caregivers of children with developmental disorders living in low-income countries is important to inform intervention programmes. The purpose of this study was to examine the stigma experiences, explanatory models, unmet needs, preferred interventions and coping mechanisms of caregivers of children with developmental disorders in Ethiopia. Methods Participants comprised caregivers (n = 102) of children with developmental disorders attending two child mental health clinics in Addis Ababa. The majority (66.7 %; n = 68) had a diagnosis of intellectual disability (ID); 34 children (33.3 %) had autism spectrum disorder (ASD) as their primary diagnosis. All caregivers were administered a structured questionnaire via a face-to-face interview, which included an adaptation of the Family Interview Schedule, closed questions about socio-demographic characteristics, explanatory models of illness, type of interventions used or desired and coping strategies, and an open ended question regarding the family’s unmet needs. Results Most caregivers reported experience of stigma: 43.1 % worried about being treated differently, 45.1 % felt ashamed about their child’s condition and 26.7 % made an effort to keep their child’s condition secret. Stigma did not depend on the type of developmental disorder, the child’s age or gender, or on the age or level of education of the caregiver (all p > 0.05). Reported stigma was significantly higher in caregivers who had sought traditional help (p
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25. AUT848532_Lay_Abstract – Supplemental material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
- Author
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Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Abdurahman, Rehana, Tesfaye, Markos, Zemi Yenus, Salomone, Erica, Pacione, Laura, Abebaw Fekadu, Servili, Chiara, Hanlon, Charlotte, and Hoekstra, Rosa A
- Subjects
FOS: Psychology ,4. Education ,FOS: Clinical medicine ,170199 Psychology not elsewhere classified ,111799 Public Health and Health Services not elsewhere classified ,FOS: Educational sciences ,110319 Psychiatry (incl. Psychotherapy) ,FOS: Health sciences ,130312 Special Education and Disability ,Education - Abstract
Supplemental material, AUT848532_Lay_Abstract for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia by Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Rehana Abdurahman, Markos Tesfaye, Zemi Yenus, Erica Salomone, Laura Pacione, Abebaw Fekadu, Chiara Servili, Charlotte Hanlon and Rosa A Hoekstra in Autism
26. AUT848532_Supplemental_material – Supplemental material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia
- Author
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Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Abdurahman, Rehana, Tesfaye, Markos, Zemi Yenus, Salomone, Erica, Pacione, Laura, Abebaw Fekadu, Servili, Chiara, Hanlon, Charlotte, and Hoekstra, Rosa A
- Subjects
FOS: Psychology ,4. Education ,FOS: Clinical medicine ,170199 Psychology not elsewhere classified ,111799 Public Health and Health Services not elsewhere classified ,FOS: Educational sciences ,110319 Psychiatry (incl. Psychotherapy) ,FOS: Health sciences ,130312 Special Education and Disability ,Education - Abstract
Supplemental material, AUT848532_Supplemental_material for Adapting and pre-testing the World Health Organization’s Caregiver Skills Training programme for autism and other developmental disorders in a very low-resource setting: Findings from Ethiopia by Bethlehem Tekola, Fikirte Girma, Mersha Kinfe, Rehana Abdurahman, Markos Tesfaye, Zemi Yenus, Erica Salomone, Laura Pacione, Abebaw Fekadu, Chiara Servili, Charlotte Hanlon and Rosa A Hoekstra in Autism
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