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Background and purpose Rare diseases affect up to 29 million people in the European Union, and almost 50% of them affect the nervous system or muscles. Delays in diagnosis and treatment onset and insufficient treatment choices are common. Clinical practice guidelines (CPGs) may improve the diagnosis and treatment of patients and optimize care pathways, delivering the best scientific evidence to all clinicians treating these patients. Recommendations are set for developing and reporting high-quality CPGs on rare neurological diseases (RNDs) within the European Academy of Neurology (EAN), through a consensus procedure. Methods A group of 27 experts generated an initial list of items that were evaluated through a two-step Delphi consensus procedure and a face-to-face meeting. The final list of items was reviewed by an external review group of 58 members. Results The consensus procedure yielded 63 final items. Items are listed according to the domains of the AGREE instruments and concern scope and purpose, stakeholder involvement, rigour of development, and applicability. Additional items consider reporting and ethical issues. Recommendations are supported by practical examples derived from published guidelines and are presented in two tables: (1) items specific to RND CPGs, and general guideline items of special importance for RNDs, or often neglected; (2) items for guideline development within the EAN. Conclusions This guidance aims to provide solutions to the issues specific to RNDs. This consensus document, produced by many experts in various fields, is considered to serve as a starting point for further harmonization and for increasing the quality of CPGs in the field of RNDs.

The number of literature published is dwindling every year by leaps and bounds both in print and digital media with the increase in cost coupled with budget crunch, the institutions are forced to look for alternative sources for acquiring the costly publications mainly to serve their patrons to help them in their research and development activity and other academic needs. These factors are driving the Libraries in similar field into consortium arrangements and establishing networks to share the resource among participating libraries

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

The article aims to depict the typical features of the internationalization of small and medium-sized enterprises from the perspective of research conducted and available sources, from 1989, and their assessment in connection with the "born globals" phenomenon. The outcome of individual studies conducted in the Czech Republic suggests there is a certain set of typical features, referred to as a western pattern of globalization. The western pattern of globalization is characterized by gradual expansion to foreign markets. On the other hand, there is the phenomenon of „born globals", which offers an opportunity to examine this pattern of globalization of SMEs in the Czech Republic., Cílemčlánku je zachytit typické rysy internacionalizace malých a středních podniků z pohledu výzkumu a dostupných zdrojů, od roku 1989 a jejich hodnocení v souvislosti s fenoménem "born globals". Výsledky jednotlivých studií provedených v České republice naznačují existenci typických rysů označováných jako vzory expanze západní globalizace. Západní vzor globalizace je charakterizován postupnou expanzi na zahraniční trhy. Na druhé straně je zde fenomén "born globals", který nabízí příležitost zkoumat tento vzor globalizace malých a středních podniků v České republice.

This publication is with permission of the rights owner freely accessible due to an Alliance licence and a national licence (funded by the DFG, German Research Foundation) respectively., The International Network of Twin Registries (INTR) aims to foster scientific collaboration and promote twin research on a global scale by working to expand the resources of twin registries around the world and make them available to researchers who adhere to established guidelines for international collaboration. Our vision is to create an unprecedented scientific network of twin registries that will advance knowledge in ways that are impossible for individual registries, and includes the harmonization of data. INTR will also promote a broad range of activities, including the development of a website, formulation of data harmonization protocols, creation of a library of software tools for twin studies, design of a search engine to identify research partners, establishment of searchable inventories of data and biospecimens, development of templates for informed consent and data sharing, organization of symposia at International Society of Twin Studies conferences, support for scholar exchanges, and writing grant proposals., Peer Reviewed

In this paper, we present an international network of researchers from projects examining the human aging process and its consequences. It is both vital and urgent to include aging and a life course perspective on the public health agenda, particularly in low-income countries. By announcing the network in a publication, we wish not just to position the network but, more importantly, to attract the attention of other potential collaborators either at the project, institutional, decision making, or applied level.

Al-Motlaq, M., Neill, S., Foster, M. J., Coyne, I., Houghton, D., Angelhoff, C., ... Majamanda, M. (2021). Position statement of the international network for child and family centered care: Child and family centred care during the COVID19 pandemic. Journal of Pediatric Nursing, 61, 140-143. https://doi.org/10.1016/j.pedn.2021.05.002