1. Multidisciplinary Management of Tethered Spinal Cord Syndrome in Children: Operationalizing an Outpatient Patient-Centered Workflow
- Author
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Behbahani,Mandana, Shlobin,Nathan, Rosen,Colleen, Yerkes,Elizabeth, Swaroop,Vineeta, Lam,Sandi, Bowman,Robin, Behbahani,Mandana, Shlobin,Nathan, Rosen,Colleen, Yerkes,Elizabeth, Swaroop,Vineeta, Lam,Sandi, and Bowman,Robin
- Abstract
Mandana Behbahani,1,2 Nathan Shlobin,1,2 Colleen Rosen,1 Elizabeth Yerkes,3,4 Vineeta Swaroop,5,6 Sandi Lam,1,2 Robin Bowman1,2 1Division of Pediatric Neurosurgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 2Department of Neurosurgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USA; 3Division of Pediatric Urology, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 4Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, IL, USA; 5Division of Pediatric Orthopedic Surgery, Ann and Robert H Lurie Children’s Hospital of Chicago, Chicago, IL, USA; 6Department of Orthopedic Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USACorrespondence: Robin BowmanDivision of Pediatric Neurosurgery, Director of Spina Bifida Program, Lurie Children’s Hospital, 225 E. Chicago Ave., Chicago, IL 60611, USATel +1 312 227 4220Fax +1 312 227 9679Email rbowman@luriechildrens.orgIntroduction: Multidisciplinary care for patients with tethered spinal cord syndrome (TCS) is valuable in ensuring comprehensive evaluation, timely follow-up, optimal functional outcome, and patient-centered care. The family-centered focus aims to minimize patient and parental burdens associated with care coordination. We present our first-year institutional experience in operationalizing a multidisciplinary, patient-centered, pediatric tethered cord clinic (TCC) to manage routine, long-term surgical follow-up for children with non-myelomeningocele-related tethered spinal cords.Methods: TCC is composed of three surgical services: orthopedic surgery, neurosurgery, urology. A retrospective chart review of patients seen in the TCC from January 2019 to January 2020 was conducted. Patients enrolled in the clinic were intended for long-term follow-up. Demographic and outcome variables were collected.Results: Fifty-nine patients were seen in TCC. Types of t
- Published
- 2020