1. Mental Health Experiences of Adolescents and Young Adults with Inflammatory Bowel Disease During Transition to Adult Care: A Qualitative Descriptive Study.
- Author
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Allemang B, Browne M, Barwick M, Bollegala N, Fu N, Lee K, Miatello A, Dekker E, Nistor I, Ahola Kohut S, Keefer L, Micsinszki S, Walters TD, Griffiths AM, Mack DR, Lawrence S, Kroeker KI, de Guzman J, Tausif A, Maini P, Tersigni C, Anthony SJ, and Benchimol EI
- Subjects
- Humans, Adolescent, Female, Male, Young Adult, Transition to Adult Care, Inflammatory Bowel Diseases psychology, Inflammatory Bowel Diseases therapy, Qualitative Research, Mental Health
- Abstract
Objective: To explore the mental health experiences of adolescents and young adults (AYA) with inflammatory bowel disease (IBD) enrolled in a randomized controlled trial evaluating the impact of a multimodal transition intervention., Study Design: Virtual semistructured interviews were held with 21 AYA aged 16 through 18 years with IBD. Guided by qualitative description, interviews were digitally recorded, transcribed verbatim, and analyzed using an inductive approach to reflexive thematic analysis., Results: Three themes were generated from the data: (1) a continuum of integration between IBD and personal identity in adolescence and young adulthood; (2) manifestations of the mind-gut connection among AYA with IBD; and (3) hopes and priorities for addressing mental health in IBD care., Conclusions: AYA with IBD endorsed the criticality of incorporating mental health discussions into routine care during the transition to adult care, given the co-occurrence of psychosocial stressors throughout this period. A series of factors promoting and hindering the integration of IBD into one's identity were identified and could be explored in clinical encounters., Competing Interests: Declaration of Competing Interest This study was supported by a grant from the Leona M. and Harry B. Helmsley Charitable Trust and Crohn's and Colitis Canada. This study was also supported by The Canadian Children IBD Network (with funding provided by the CH.I.L.D. Foundation). The funding sources did not support the study design, collection, data analysis and interpretation, manuscript preparation, or the decision to submit the article for publication. David R. Mack is supported in part through a Distinguished Clinical Chair in Pediatric IBD through the Faculty of Medicine, University of Ottawa. Eric I. Benchimol holds the Northbridge Financial Corporation Chair in Inflammatory Bowel Disease, a joint Hospital-University Chair between the University of Toronto, The Hospital for Sick Children, and the SickKids Foundation. L.K. is an equity owner and scientific advisor to Trellus Health, and a consultant to Pfizer and Coprata Health. E.B. has acted as a consultant for McKesson Canada and the Dairy Farmers of Ontario for matters unrelated to medications used to treat inflammatory bowel disease. He has also acted as a consultant for the Canadian Agency for Drugs and Technology in Health (CADTH). The other authors declare no conflicts of interest., (Copyright © 2024 Elsevier Inc. All rights reserved.)
- Published
- 2024
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