23 results
Search Results
2. Advancing education-based mental health in low-resource settings during health crises: the mental health initiative of the University of the Philippines during the COVID-19 pandemic
- Author
-
Richard Philip Gonzalo and Rowalt Alibudbud
- Subjects
school mental health ,mental health promotion ,student mental health ,Philippines ,mental health services ,university ,Education (General) ,L7-991 - Abstract
The COVID-19 pandemic exacerbated students’ mental health challenges worldwide, including in the Philippines. This paper explores the University of the Philippines’ response to this crisis, a crucial endeavor given the country’s limited mental health resources. This paper reviews the relevant documents to the mental health initiative, titled “Sandigan, Sandalan,” which sought to empower university stakeholders to advocate for mental and address mental health needs despite resource constraints and the university’s vastness. The authors also share their experiences and insights in the program. This program is one of the few university mental health programs that were documented in the Philippines after the legislation of the Philippine Mental Health Act and during the COVID-19 pandemic. Key recommendations arising from this experience include enhancing program visibility, fostering stakeholder collaboration toward a clear set of program objectives, leveraging mental health expertise, empowering stakeholders, and designing replicable program models for the different campuses of the university. The initiative underscores the vital role that educational institutions can play and provides valuable insights into supporting students’ mental well-being amid large scale challenges in low-resource settings.
- Published
- 2024
- Full Text
- View/download PDF
3. Mental Health and The City: A Tribute to Mariupol, the City that will be Reborn
- Author
-
Vitalii Klymchuk, Krystyna Vysotska, and Viktoria Gorbunova
- Subjects
mental health ,mental health services ,community engagement ,conflict-affected settings ,Psychology ,BF1-990 ,Mental healing ,RZ400-408 - Abstract
This paper aims to pay tribute to Mariupol and its inhabitants, the Ukrainian city which was entirely destroyed by the Russian army. Before the full-scale invasion, significant developments were happening in the field of mental health. The experience gained in that city, examples of good practices and active collaboration between the city administration, local professionals and the international development project “Mental Health for Ukraine”, formed the foundation of interventions that were transferred to other regions in Ukraine. This paper describes the key steps, actions undertaken in 2019 to 2021 and achievements of the programme. Personal reflections also describe the context and experiences.
- Published
- 2024
- Full Text
- View/download PDF
4. Service design for children and young people with common mental health problems: literature review, service mapping and collective case study
- Author
-
Steven Pryjmachuk, Susan Kirk, Claire Fraser, Nicola Evans, Rhiannon Lane, Liz Neill, Elizabeth Camacho, Peter Bower, Penny Bee, and Tim McDougall
- Subjects
service model ,health services ,camhs ,adolescent ,literature review ,scoping review ,integrative review ,service map ,case study research ,typology ,delivery of health care ,child health services ,adolescent health services ,mental health services ,school mental health services ,mental health ,mental disorders ,child ,systematic review ,organisational case studies ,Medicine (General) ,R5-920 ,Public aspects of medicine ,RA1-1270 - Abstract
Background The mental health of children/young people is a growing concern internationally. Numerous reports and reviews have consistently described United Kingdom children’s mental health services as fragmented, variable, inaccessible and lacking an evidence base. Little is known about the effectiveness of, and implementation complexities associated with, service models for children/young people experiencing ‘common’ mental health problems like anxiety, depression, attention deficit hyperactivity disorder and self-harm. Aim To develop a model for high-quality service design for children/young people experiencing common mental health problems by identifying available services, barriers and enablers to access, and the effectiveness, cost effectiveness and acceptability of such services. Design Evidence syntheses with primary research, using a sequential, mixed-methods design. Inter-related scoping and integrative reviews were conducted alongside a map of relevant services across England and Wales, followed by a collective case study of English and Welsh services. Setting Global (systematic reviews); England and Wales (service map; case study). Data sources Literature reviews: relevant bibliographic databases and grey literature. Service map: online survey and offline desk research. Case study: 108 participants (41 children/young people, 26 parents, 41 staff) across nine case study sites. Methods A single literature search informed both reviews. The service map was obtained from an online survey and internet searches. Case study sites were sampled from the service map; because of coronavirus disease 2019, case study data were collected remotely. ‘Young co-researchers’ assisted with case study data collection. The integrative review and case study data were synthesised using the ‘weaving’ approach of ‘integration through narrative’. Results A service model typology was derived from the scoping review. The integrative review found effectiveness evidence for collaborative care, outreach approaches, brief intervention services and the ‘availability, responsiveness and continuity’ framework. There was cost-effectiveness evidence only for collaborative care. No service model appeared to be more acceptable than others. The service map identified 154 English and Welsh services. Three themes emerged from the case study data: ‘pathways to support’; ‘service engagement’; and ‘learning and understanding’. The integrative review and case study data were synthesised into a coproduced model of high-quality service provision for children/young people experiencing common mental health problems. Limitations Defining ‘service model’ was a challenge. Some service initiatives were too new to have filtered through into the literature or service map. Coronavirus disease 2019 brought about a surge in remote/digital services which were under-represented in the literature. A dearth of relevant studies meant few cost-effectiveness conclusions could be drawn. Conclusions There was no strong evidence to suggest any existing service model was better than another. Instead, we developed a coproduced, evidence-based model that incorporates the fundamental components necessary for high-quality children’s mental health services and which has utility for policy, practice and research. Future work Future work should focus on: the potential of our model to assist in designing, delivering and auditing children’s mental health services; reasons for non-engagement in services; the cost effectiveness of different approaches in children’s mental health; the advantages/disadvantages of digital/remote platforms in delivering services; understanding how and what the statutory sector might learn from the non-statutory sector regarding choice, personalisation and flexibility. Study registration This study is registered as PROSPERO CRD42018106219. Funding This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: 17/09/08) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 13. See the NIHR Funding and Awards website for further award information. Plain language summary In this research study, we explored services for children and young people with ‘common’ mental health problems like depression, anxiety and self-harm. We aimed to find out what services exist, how children/young people and families find out about and access these services, what the services actually do, whether they are helpful and whether they offer value for money. We looked at the international literature (reports and research papers) to identify different approaches to providing support, and to find out whether certain approaches worked better than others and whether children/young people and families preferred some approaches over others. The literature provided very little information about the value for money of services. We also carried out a survey and used the internet to identify 154 relevant services in England and Wales. To explore services in more detail, and hear directly from those using them, we planned to visit 9 of the 154 services to interview children/young people, parents and staff. Unfortunately, coronavirus disease 2019 stopped us directly visiting the nine services and so we conducted phone and video interviews instead. We still managed to speak to, and hear the experiences of, more than 100 people (including children/young people and parents). We combined information from the literature with information from the interviews to create an evidence-based ‘model’ of what services should look like. This model considers some basic things like how quickly children/young people could access a service, what information was available, the importance of confidentiality and whether staff make the service fit with the child/young person’s needs and interests. It also considers whether the service helps children/young people learn skills to manage their mental health and whether staff at a service work well together. We hope our model will help existing and new services improve what they offer to children/young people and families. Scientific summary Background This study is a response to a National Institute for Health and Care Research (NIHR) commissioning call on research to improve services for children and young people (CYP) with common mental health problems (CMHPs). The mental health of CYP has been a growing public health concern both nationally and internationally. Estimates from 2021, covering the height of the coronavirus disease 2019 (COVID-19) pandemic, suggest that around one in six CYP in England may be experiencing significant mental health difficulties, including the likes of anxiety, depression, self-harm and behavioural difficulties. The tiers model has dominated UK service provision for at least two decades. However, it has become increasingly clear that this model has not met the needs of most CYP experiencing mental health problems. Numerous reports and reviews have consistently described UK children’s mental health services as fragmented, unco-ordinated, variable, inaccessible and lacking an evidence base. While there have been recent attempts to transform services using initiatives such as Choice and Partnership Approach (CAPA), Children and Young People-Improving Access to Psychological Therapies (CYP-IAPT) (a CYP’s version of adult IAPT) and THRIVE, little is known about the effectiveness of these initiatives nor the effectiveness of children’s mental health service models in general. Moreover, the disparate factors associated with accessing and navigating services for CYP experiencing CMHPs have not been synthesised into a coherent model of effective and acceptable service provision. Aims and objectives The study’s overarching aim was to develop a model of high-quality service design for CYP experiencing CMHPs by identifying available services, the barriers and enablers to access, and the effectiveness (including cost effectiveness) and acceptability of, those services. Six objectives were derived from this aim: Systematically search, appraise and synthesise the international literature on services for this population group in order to (1) build evidence of the effectiveness and acceptability of current service provision and (2) assist with objective 2. Develop a descriptive typology of services for this population group using the literature referred to in objective 1 and a survey of service provision in England and Wales. Through primary research, explore the barriers and enablers that CYP and their families experience in accessing and navigating services. Identify the key factors influencing effectiveness and acceptability in order to build an evidence-based model of high-quality service provision for this population group. Estimate provider and user costs/benefits associated with different service models. Make evidence-based recommendations to the NHS about future service provision. Methods The study coupled evidence syntheses with primary research, using a sequential, mixed-methods design. There were four work streams: (1) conducting a scoping review and an integrative review of the international literature; (2) mapping service provision across England and Wales; (3) conducting a collective case study of several services in England and Wales; and (4) building a model for high-quality service design for CYP experiencing CMHPs. Patient and public involvement We involved young people and parents/carers, as well as those who commission and provide mental health services throughout the study. Young people and parents/carers were members of the study’s advisory group and the director of a young people’s ‘lived experience’ consultancy was a coinvestigator. We also collaborated with a mental health charity to employ six young adults with lived experience of mental health issues as ‘young co-researchers’. Work Stream 1 (literature reviews) Data sources Relevant bibliographic databases and resources (including grey literature resources) were searched in May 2019. Study selection (inclusion criteria) Population Children and young people was defined as those aged under 18 (service users up to 25 years could be included if a service’s core provision was for under 18s). Common mental health problems were defined as anxiety and related disorders, depression, self-harm, post-traumatic stress disorder (PTSD), ‘emerging personality disorder’, adjustment disorder, attention deficit hyperactivity disorder (ADHD)/attention deficit disorder, conduct disorder, oppositional defiant disorder, substance misuse disorders and ‘at risk of psychosis’. The commissioning brief excluded psychosis, eating disorders and autism spectrum disorder. Interventions Any service provided for CYP experiencing CMHPs. Comparators Not applicable for the scoping review or the acceptability data in the integrative review. For the effectiveness and cost-effectiveness data in the integrative review, comparators were other service models, standard care/treatment as usual or inpatient/residential care. Outcomes Not applicable for the scoping review. Outcomes for the effectiveness data in the integrative review were relevant measures of CYP’s mental health, family functioning, educational attainment or quality of life; for the cost-effectiveness data, the incremental cost effectiveness of service model versus comparator; for the acceptability data, qualitative and quantitative data capturing stakeholder views. Study (document) types For the scoping review, any document containing a sufficiently detailed description of a service for CYP experiencing CMHPs. Effectiveness studies in the integrative review were peer-reviewed quantitative studies with at least one pre/post outcome measure; cost-effectiveness studies were peer-reviewed studies reporting costs, health outcomes and incremental cost-effectiveness analyses; acceptability studies were peer-reviewed qualitative or quantitative studies in which either participants’ views were expressed or in which participation data were available. Data extraction and quality assessment For both reviews, two independent assessors extracted data. Disputes were referred to a third reviewer. Quality assessment was conducted for the integrative review only, using the Mixed-Methods Appraisal Tool (MMAT). Data synthesis In the scoping review, descriptions of services for CYP experiencing CMHPs were mapped into a typology of service models. Synthesis in the integrative review was based on Evidence for Policy and Practice Information and Co-ordinating (EPPI)-Centre methods: the different data sources (effectiveness, cost effectiveness and acceptability) were analysed separately prior to being compared and contrasted. Work Stream 2 (service mapping) Data sources Services across England and Wales were identified via an online survey created in SelectSurvey and internet (desk-based) searches. English or Welsh services identified through the literature search and still in operation were also included. Service selection (inclusion criteria) The same population and intervention definitions as Work Stream 1 were used. Additional inclusion criteria were the service had to operate in England or Wales and be operational during the data collection period. Data analysis On closing the online survey, data were downloaded from SelectSurvey in Microsoft Excel format. Additional data (e-mail submissions and desk-derived information) were inputted into the same Excel spreadsheet by hand. A final Excel spreadsheet containing both survey and desk-derived data was imported into IBM SPSS Statistics for descriptive analysis of service characteristics. Work Stream 3 (case study) Design A collective case study involving nine services sampled from the service map. Services were purposively sampled to capture the spread of models in the typology and to reflect characteristics such as service sector, locality/setting, target age group and mode of delivery. Participants Ninety-six interviews involving 108 participants (41 CYP, 26 parents, 41 staff) from 9 case study sites. Research ethics Ethical and other approvals were granted by the NHS Health Research Authority (reference: 20/SC/0174) and by the organisations operating the services at the case study sites. Four substantial and two minor amendments, all relating to the COVID-19 pandemic, were subsequently approved. Data collection Original data collection plans included individual interviews, focus groups, documentary review and observation of relevant activities at sites. Coronavirus disease 2019 restrictions, however, prevented site visits and observation. Consequently, the primary data (apart from one interview) were collected remotely, either through individual semistructured telephone or video interviews or an online group interview. Twenty-two of the 96 interviews were jointly conducted with 1 of our 6 young co-researchers. Economic data were requested from sites regarding annual service delivery budgets, funding source, key areas of spending and resource use. Data analysis Data analysis was informed by framework, a matrix-based analytic method widely used in qualitative health service research. To familiarise themselves with the data, the research team read and discussed the interview transcripts in depth. The transcripts were then coded deductively in NVivo using a thematic framework based on the study’s aims and objectives, after which the data were ‘charted’ so that deductive codes for each theme could be examined within each case study site and comparatively across sites. The data were then analysed inductively and iteratively to identify cross-cutting themes. Cost data were descriptively summarised into a table. Work Stream 4 (model building) Data synthesis process The integrative review and case study findings were synthesised using the ‘weaving’ approach to integration through narrative. The two sets of findings were analysed, interpreted and reported together on a theme-by-theme or concept-by-concept basis using a set of mixed-methods matrices. Results Work Stream 1 (literature reviews) Overall, 310 documents met the inclusion criteria for the scoping or integrative review. Two hundred and ninety-six documents were included in the scoping review, 98 in the integrative review. To simplify the complexities associated with fragmented, variable and often unco-ordinated services, the 342 service descriptions in the 296 scoping review documents were mapped to produce a descriptive service model typology containing seven broad service model groupings. Across the international literature, the service models most described in the scoping review documents were outreach models, followed by community-embedded specialist CAMHS models. Service transformation frameworks were also relatively common. The integrative review found effectiveness evidence only for collaborative care, outreach approaches, brief intervention services and ‘availability, responsiveness and continuity (ARC)’, a service transformation framework from the USA. The strongest effectiveness evidence was for collaborative care. Cost-effectiveness evidence was very limited (just three papers met the inclusion criteria), with the only robust evidence also being for collaborative care. Since most of the collaborative care evidence was from the USA, its applicability to UK health systems is questionable. No service model appeared to be more acceptable than others. Integrative review findings suggest that effective and acceptable services tend to be underpinned by few barriers to access, interagency working, the use of consultation-liaison and consideration of the service’s culture. Brief intervention approaches may be helpful in managing waiting lists; their brief nature may also facilitate the acquisition of self-management skills. Work Stream 2 (service mapping) One hundred and fifty-four services across England and Wales, provided by 123 different providers, were included in the service map. Service provision across England and Wales is diverse, with providers from the statutory, private and third sectors operating in a range of settings, supporting CYP with a wide range of CMHPs. No single model from the typology was particularly dominant. Most services were provided in community, non-health settings, most focused on secondary school aged children and most offered support for the ‘most common’ of the CMHPs, namely general anxiety issues, depression and self-harm. Open access via self- or parent referral was relatively widespread, particularly in the third and private sectors. Work Stream 3 (case study) Three themes emerged from the case study data: pathways to support (relates to service access and exit); service engagement and learning and understanding. Regarding the enablers of and barriers to service access, self-referral, the timeliness and availability of support, physical accessibility and planning for support following discharge are important determinants of whether a service is seen as accessible by CYP and families. A single point of access (SPoA) to services may be beneficial if it does not result in multiple assessments or multiple waiting lists. The service engagement and learning and understanding themes highlighted the importance of personalised, holistic and flexible services that involve CYP and families, respect confidentiality, ensure continuity in therapeutic relationships, focus on strengths and engage CYP in creative ways. Staff expertise and professional competence are important but so are empathy and compassion. An organisational learning culture appears fundamental to service acceptability and effectiveness: it was important for staff to work in environments that emphasised staff learning and development, supported reflective practice and which valued service improvement especially when CYP and families were able to co-design services. Service effectiveness was also linked to opportunities for CYP to develop knowledge and skills that enabled them to both understand and manage their own mental health. Work Stream 4 (model building) With feedback from relevant stakeholders (including CYP, parents, service providers and academics from a range of relevant disciplines), the three narratives around pathways to support, service engagement and learning and understanding were integrated to create an alternative model of effective and acceptable services for CYP experiencing CMHPs. This evidence-based model outlines the fundamental components necessary for high-quality services for this population group. These fundamental components include information, confidentiality, aftercare, personalised approaches, engagement and organisational culture. Conclusions In a robust and transparent way, we have developed a comprehensible, evidence-based model of high-quality service design for CYP experiencing CMHPs that is transferable across services, sectors and geography. Our model has utility for policy, practice and research. Not only does it support previous research and reports about children’s mental health services, but it also adds significant depth to core issues surrounding mental health service provision for CYP. In terms of implications for policy, practice and education, our research suggests that: Using our model components to support the design and delivery of services – rather than the ‘top–down’ imposition of specific local or national models – could improve the consistency of services for CYP experiencing CMHPs. Our model still allows for tailoring to the local context. We also note that: Aftercare arrangements are often neglected (especially for those aged 16–17 years), not just in terms of transitions to adult services but also in terms of exiting and re-entering a service, longer-term ad hoc support and continuity of care. A learning culture strongly implies services need more than mere staff training. Workforce development requires strategies that incorporate reflexive learning opportunities, clinical supervision, reflective practice, freedom to innovate in practice and leadership. CYP and families need to be the arbiters of what compassion and competence in staff mean. Lived experience in service provision is valuable, but it may work better when delivered alongside professional support. More information about what services are available locally, how services might be accessed, what support is offered and what happens once the CYP leaves the service should be provided. CYP and their families want to be able to choose, ideally from a range of services, those best tailored to their needs. In terms of future research, there should be: research focusing on how to implement into practice the components in our model research determining whether using our model to design, deliver or audit services impacts on outcomes research exploring the advantages and disadvantages of digital/remote platforms in delivering services research around what the statutory sector could learn from the non-statutory sector regarding choice, personalisation and flexibility research with those who refuse and/or disengage from services and others whose voices are seldom heard further research on the cost effectiveness of different approaches in CYP’s mental health research to establish one or more standardised measures of health benefit in children’s mental health services. Study registration This study is registered as PROSPERO CRD42018106219. Funding This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: 17/09/08) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 13. See the NIHR Funding and Awards website for further award information.
- Published
- 2024
- Full Text
- View/download PDF
5. Underrepresentation of Indigenous mental health professionals in Bangladesh
- Author
-
Md. Omar Faruk, Miguel R. Ramos, and Umay Ching
- Subjects
Mental health services ,Indigenous people ,mental health professionals ,Bangladesh ,underrepresentation ,Psychiatry ,RC435-571 - Abstract
Indigenous people worldwide are at increased risk of mental health problems compared with non-Indigenous people. Longstanding impacts of colonisation, systematic exclusion from rights and subsequent discrimination, and lack of access to quality education and healthcare, including mental healthcare, have been identified as contributory factors to these disproportionate mental health problems. With limited access, Indigenous people are less likely to seek healthcare, owing to the insufficient number of healthcare professionals representing Indigenous communities. In the face of growing numbers of mental health problems in Indigenous people in Bangladesh, this paper sheds light on the inadequate number of mental health professionals, particularly from Indigenous communities, and the potential impacts of this on the well-being of Indigenous people, and considers ways to increase representation of Indigenous mental health professionals. The aim is to ensure that the mental health system in Bangladesh is inclusive and embraces the country's diversity.
- Published
- 2024
- Full Text
- View/download PDF
6. History and politics of mental health policy and care in South Africa
- Author
-
Sharon Kleintjes and Marguerite Schneider
- Subjects
History ,Colonialism ,Mental health policy ,Mental health services ,South Africa ,Mental healing ,RZ400-408 ,Public aspects of medicine ,RA1-1270 - Abstract
This paper starts with a broad historical overview of the influence of colonial rule on shaping the racialised and socio-economic environment which predated and persisted into the adoption of formal apartheid practices, and the mental health and wellbeing related impacts on the people of South Africa. This is followed by a review of policy and service developments within the past 25 years of post apartheid democratic rule in South Africa. Some of the successes and failures of the different policies provided in South Africa are explored. The paper concludes with some emerging trends in policy and practice that will need attention in the coming decades as we seek to improve the mental wellbeing of South Africans, including South Africans living with mental disorders. The paper extrapolates key points of relevance from the South African experience to other contexts experiencing the mental health related impact of colonialism and other current forms of oppression, including ableism, gender discrimination, and others.
- Published
- 2023
- Full Text
- View/download PDF
7. Peer support for discharge from inpatient to community mental health care: the ENRICH research programme
- Author
-
Steve Gillard, Rhiannon Foster, Sarah White, Andrew Healey, Stephen Bremner, Sarah Gibson, Lucy Goldsmith, Mike Lucock, Jacqueline Marks, Rosaleen Morshead, Akshaykumar Patel, Shalini Patel, Julie Repper, Miles Rinaldi, Alan Simpson, Michael Ussher, Jessica Worner, and Stefan Priebe
- Subjects
peer support ,peer worker ,mental health services ,hospital discharge ,hospital readmission ,randomised controlled trial ,Public aspects of medicine ,RA1-1270 - Abstract
Background Rates of readmission are high following discharge from psychiatric inpatient care. Evidence suggests that transitional interventions incorporating peer support might improve outcomes. Peer support is rapidly being introduced into mental health services, typically delivered by peer workers (people with experiences of mental health problems trained to support others with similar problems). Evidence for the effectiveness of peer support remains equivocal, and the quality of randomised controlled trials to date is often poor. There is an absence of formal cost-effectiveness studies of peer support in mental health services. Objectives This programme aimed to develop, pilot and trial a peer support intervention to reduce readmission to inpatient psychiatric care in the year post-discharge. The programme also developed a peer support fidelity index and evaluated the impact of peer support on peer workers. Design Linked work packages comprised: (1) systematic review and stakeholder consensus work to develop a peer support for discharge intervention; (2) development and psychometric testing of a peer support fidelity index; (3) pilot trial; (4) individually randomised controlled trial of the intervention, including mixed methods process evaluation and economic evaluation; (5) mixed method cohort study to evaluate the impact of peer support on peer workers. The research team included: two experienced service user researchers who oversaw patient and public involvement; service user researchers employed to develop and undertake data collection and analysis; a Lived Experience Advisory Group that informed all stages of the research. Setting The programme took place in inpatient and community mental health services in seven mental health National Health Service trusts in England. Participants Participants included 590 psychiatric inpatients who had had at least one previous admission in the preceding 2 years; 32 peer workers who delivered the intervention; and 8 peer workers’ supervisors. Intervention Participants randomised to peer support were offered at least one session of manualised peer support for discharge prior to discharge and then approximately weekly for 4 months post-discharge. Main outcome measures The primary outcome for the trial was readmission (formal or informal) to psychiatric inpatient care (readmitted or not) within 1 year of discharge from the index admission. Secondary outcomes included inpatient and emergency mental health service use at 1 year post discharge, plus standardised measures of psychiatric symptom severity and psychosocial outcomes, measured at end of intervention (4 months post discharge). Data sources Service use data were collected from electronic patient records, standardised measures of outcome and qualitative data were collected by interview. Review methods We produced two systematic reviews of one-to-one peer support for adults in mental health services. The first included studies of all designs and identified components of peer support interventions; the second was restricted to randomised controlled trials and pooled data from multiple studies to conduct meta-analyses of the effects of peer support. Results Our systematic review indicated that one-to-one peer support improved individual recovery and empowerment but did not reduce hospitalisation. The main trial demonstrated that one-to-one peer support did not have a significant effect on readmission. There was no significant reduction in secondary service use outcomes at 1-year, or improvement in clinical or psychosocial outcomes at 4 months. Participants who received a pre-defined minimal amount of peer support were less likely to be readmitted than patients in the control group who might also have received the minimal amount if offered. Compared to care as usual, black participants in the intervention group were significantly less likely to be readmitted than patients of any other ethnicity (odds ratio 0.40, 95% confidence interval 0.17 to 0.94; p = 0.0305). The economic evaluation indicated a likelihood that peer support offered a reduction in cost in excess of £2500 per participant compared to care as usual (95% confidence interval −£21,546 to £3845). The process evaluation indicated that length and quality of first session of peer support predicted ongoing engagement, and that peer support offered a unique relationship that enables social connection. The impact study indicated that peer workers found their work rewarding and offering opportunities for personal growth but could find the work emotionally and practically challenging while expressing a need for ongoing training and career development. Limitations In the trial, follow-up rates at 4 months were poor, reducing confidence in some of our analyses of secondary outcome and in a wider societal perspective on our health economic evaluation. Conclusions One-to-one peer support for discharge from inpatient psychiatric care, offered in addition to care as usual to participants at risk of readmission, is not superior to care as usual alone in the 12 months post-discharge. Future work Further research is needed to optimise engagement with peer support and better understand experiences and outcomes for people from black and other ethnic communities. Study registration The systematic review is registered as PROSPERO CRD42015025621. The trial is registered with the ISRCTN clinical trial register, number ISRCTN 10043328. Funding This award was funded by the National Institute for Health and Care Research (NIHR) Programme Grants for Applied Research programme (NIHR award ref: RP-PG-1212-20019) and is published in full in Programme Grants for Applied Research; Vol. 11, No. 8. See the NIHR Funding and Awards website for further award information. Plain language summary When people share similar experiences of mental health problems and provide each other with emotional or practical support this can be called peer support. In recent years peer support has been introduced into mental health services. The months after discharge from psychiatric hospital can be difficult for some people. There is research that suggests that peer support might be helpful for people at discharge. There is a lack of good quality trials of peer support in mental health services. There are no studies that tell us if peer support provides value for money. We developed new training for peer workers and a handbook guiding peer support for discharge. We tried this out in two mental health National Health Service trusts to check that we could deliver the peer support and collect the information we needed for our trial. We recruited 590 people from seven mental health National Health Service trusts while they were staying on psychiatric wards. Half of those people were randomly selected to receive peer support for discharge, and half to receive community mental health care only. We found that people offered peer support were just as likely to be readmitted to hospital in the year after they were discharged as people offered usual care only. We found that people who met their peer worker at least twice were less likely to be readmitted in the next year. Black people offered peer support were much less likely to be readmitted compared to people offered usual care than other people in the study (although numbers were small). Our results also suggested that cost of care could be slightly less for people receiving peer support. We interviewed some people who had been offered peer support who told us what they valued about peer support. We interviewed peer workers who told us the work was rewarding but could be challenging. Scientific summary Background Risk of self-harm, suicide and readmission is high in the months immediately following discharge from psychiatric inpatient care. There is some evidence that transitional interventions incorporating peer support improve outcomes, including reduced readmission rates. Peer support is rapidly being introduced into mental health services internationally, typically delivered by peer workers (PWs) (people with their own experiences of mental health problems trained to support others with similar problems). Evidence for the effectiveness of peer support in mental health services remains equivocal, and the quality of randomised controlled trials to date is often poor, with trials at risk of bias because of unclear randomisation and masking procedures and incomplete reporting of outcomes. Peer support interventions are often poorly described, including the support provided for PWs, and the mechanisms of peer support unclear. Health economic evaluations are absent from the literature. Objectives The aim of the programme is to manualise, pilot and trial a peer support intervention to enhance discharge from inpatient to community mental health care, significantly reducing readmissions and the associated cost of care. The detailed research objectives of the programme are: to refine an empirically and theoretically grounded model that explains how peer support impacts on outcomes for service users post-discharge to develop and manualise a peer support intervention to enhance discharge to develop an index to assess the fidelity of peer support interventions to conduct a high-quality randomised controlled trial of the intervention to establish the effectiveness and cost-effectiveness of a peer support intervention to enhance discharge to explore the impact on PWs of working in a peer support role. Methods A training manual for PWs and intervention handbook were developed in work package 1 (months 1–15). We produced two systematic reviews of one-to-one peer support for adults in mental health services. The first, until April 2015, included studies of all designs and was used to identify components of peer support interventions; the second, until June 2019, was restricted to randomised controlled trials and pooled data from multiple studies to conduct meta-analyses of the effects of peer support. In both searches we searched MEDLINE, PsycINFO, Embase, CINAHL and Cochrane databases (as well as grey literature for the review of components), using ‘peer’, ‘consumer’, ‘survivor’ or ‘prosumer’ adjacent to ‘support’, ‘supporter’, ‘provider’, ‘worker’, ‘specialist’, ‘consultant’, ‘tutor’, ‘educator’, ‘mentor’, ‘intervention’, ‘listener’, ‘mediator’, ‘counsellor’, ‘befriender’ or ‘therapist’ as search terms for peer support. Paper selection at both title and abstract, and full text stage was undertaken independently by two researchers, with data extracted to spreadsheets relevant to each review. Results for the first review were combined with consensus workshops with stakeholder panels to develop and refine the peer support for discharge intervention. We also developed and tested the appropriateness, inter-rated reliability and internal consistency of a peer support fidelity index (work package 2, months 7–24). The index was first tested in 20 peer support projects not involved in the trial, before being retested and then implemented at three timepoints in each trial site. We conducted an internal pilot of the intervention and trial procedures in two sites (work package 3, year 2 of the programme) before proceeding to full trial in seven sites (work package 4, years 3–5). Sites were inpatient and community mental health services in seven mental health National Health Service trusts in England. Participants were people admitted to psychiatric inpatient care who had at least one previous admission in the preceding 2 years (i.e. who were at increased risk of readmission), the PWs who were employed and trained at each site to deliver the intervention, and the PW co-ordinators (PWCs) who supervised PWs at each site. Participants randomised to peer support were offered a manualised peer support for discharge intervention and care as usual (CAU). Participants in the control group received CAU only (discharge summary sent to community or primary care mental health team who contacted participant within 1 week of discharge to plan ongoing care). The primary outcome for the trial was readmission (formal or informal) to psychiatric inpatient care (readmitted or not) within 1 year of discharge from the index admission. Secondary outcomes were number of voluntary admissions, involuntary admissions and total number of admissions, total number of days in hospital, time to first readmission, use of accident and emergency services for a psychiatric emergency (measured as number of episodes of liaison psychiatry contact) and number of contacts with crisis resolution and home treatment teams in the year post discharge, plus standardised measures of psychiatric symptom levels, subjective quality of life, social inclusion, hope for the future and strength of social network, measured at end of intervention (4 months post discharge). Analyses were conducted on an intention-to-treat (ITT) basis. We carried out a Complier Average Casual Effect (CACE) analysis of the primary outcome (where compliers were participants who had at least two PW meetings, at least one of which was in the community following discharge). The CACE was estimated with a two-stage estimation procedure. In the first stage, a logistic regression of treatment receipt regressed on randomisation was conducted. In the second stage, a Poisson regression of the outcome on treatment receipt was conducted. The analysis was adjusted for the same covariates as the ITT analysis. A bootstrap (1000 samples) was used to obtain bias corrected and accelerated confidence intervals (CIs). Subgroup analyses for the primary outcome were pre-specified: ethnicity (any black ethnicity, all other ethnicities); primary diagnosis at index admission (psychotic disorders, personality disorders, other eligible disorders); first language (English, other). Service use data were collected from electronic patient records (EPRs) at study site, standardised measures of outcome and qualitative data were collected by face-to-face interview by a member of the study team. Our primary economic analysis of total costs over 12 months (using EPR of mental health service use), allowing for cost of peer support, and the secondary cost-effectiveness analysis at 4 months [using self-reported quality of life to derive quality-adjusted life-years (QALYs)] were carried out from an NHS mental health service perspective. A wider ‘societal’ perspective was taken when analysing non-NHS mental health care costs over 4 months (using self-reported service use outside of mental health NHS care). All analyses were conducted on an ITT basis using generalised linear modelling (GLM) with a logarithmic link function. We conducted a mixed methods process evaluation as part of work package 4, alongside the trial. Quantitative analyses used regression models to explore pre- and post-randomisation predictors of engagement with the peer support intervention. In-depth qualitative interviews with a subsample of 39 trial participants and all 32 PWs who were involved in delivering the intervention explored their experiences of peer support and sought to elucidate and refine the change model underpinning the intervention. Interviews were undertaken by service user researchers and data analysed using a ‘co-production’ approach to integrate the full range of perspectives on the research team – clinical, academic and experiential – in interpretive workshops, producing an analytical framework that was then used to code the full set of qualitative interviews. Work package 5 was a mixed method, longitudinal cohort study which explored the impact of providing peer support on PWs (from month 31 until the end of year 5). PWs completed standardised measures of well-being and employment outcomes, and in-depth interviews at three timepoints. All data were collected by service user researchers, who played a key role in developing interview schedules, refining rating procedures for the fidelity index, and analysis and interpretation of qualitative interview data. Development of the intervention and all research procedures were informed by a Lived Experience Advisory Panel (LEAP), as well as the experiential knowledge brought by service user researchers and PWs on the research team. Results In the first (2015) systematic review we identified 97 studies (including 12 from grey literature) that contributed 44 potential components to the intervention development process. A total of 66 potential components were identified when combined with outputs of our stakeholder workshops. Through iterative rounds of consensus building and testing we developed and refined our peer support intervention, comprising a bespoke PW training programme and a detailed handbook guiding implementation. In the second (2019) review we identified 23 studies reporting 19 trials. We found that one-to-one peer support in mental health services has a small but statistically significant benefit for individual recovery [standardised mean difference (SMD) 0.22, 95% CI 0.01 to 0.42; p = 0.042] and empowerment (SMD 0.23, 95% CI 0.04 to 0.42; p = 0.020). There was no effect on clinical outcomes such as symptoms or hospitalisation; the risk of being hospitalised was reduced by 14% for those receiving peer support but was non-significant [risk ratio (RR) 0.86, 95% CI 0.66 to 1.13]. We developed a principles-based fidelity index that had good acceptability and psychometric properties. The index measures set-up, delivery and overall fidelity of peer support against four domains (principles): building trusting relationships based on shared lived experience; reciprocity and mutuality; leadership, choice and control; building strengths and making connections to community. In the trial, fidelity was good at set-up in all sites, while fidelity of delivery of peer support was lower in sites where PWs were employed in voluntary sector organisations outside of the NHS. The pilot trial indicated that progression criteria were met subject to a small number of actions to improve the rate of recruitment of participants. In the main trial we successfully recruited our target of 590 participants, and participant characteristics were well-balanced between groups. In the PW group, 136 (47.4%) participants were readmitted to psychiatric inpatient care within 12 months post-index admission, and 146 (50.2%) in the CAU group. The adjusted relative risk of readmission in the ITT analysis was 0.97 (95% CI 0.82 to 1.14; p = 0.6777), and the adjusted odds ratio (OR) was 0.93 (95% CI 0.66 to 1.30). In the CACE analysis, the relative risk of readmission according to the natural indirect effect (RR 0.88, 95% CI 0.76 to 0.99) was lower than from the ITT analysis and was significant. In subgroup analyses (see Table 6), for patients of any black ethnicity the adjusted OR of readmission was 0.40 (95% CI 0.17 to 0.94), while for any other ethnicity the OR was 1.12 (95% CI 0.77 to 1.63; interaction p = 0.0305). There were no statistically significant differences between the groups in any of the secondary outcomes assessed at 4 or 12 months. Adherence to the intervention was assessable in 268 (91.2%) participants with a mean of 1.8 [standard deviation (SD) = 2.9] face-to-face contacts with a PW in hospital, 4.4 (SD = 4.6) post discharge. There was a total of 67 serious adverse events (SAE) reported in the trial (34 in the peer support group, 33 in the CAU group) from 51 participants (26 in the peer support group, 25 in the CAU group). One SAE in the peer support group, an incident of self-harm, was reported as related to the intervention. Number and type of SAE included 12 deaths, none of which were reported as related to the study. A cost analysis of mental health service contacts over a 12-month period following discharge from inpatient care showed that, adjusting for baseline covariates, exposure to peer support was associated with a reduction in mean total costs of £2631 (95% CI −£21,546 to £3845): this amounted to a 10% reduction in mean total costs over 12-month post hospital discharge compared to usual care (95% CI −31% to 15%). Given sampling uncertainty there was an estimated 82% probability that peer support was associated with lower total costs over 12 months (or a 18% chance that usual care was the lower cost alternative). Most of the cost advantage over follow-up was due to reductions in the cost of bed day utilisation. Over 4 months, and considering patient quality of life outcomes as well as cost, peer support was also found to be cost-effective from an NHS mental health service perspective. The expected QALY gains associated with peer support were marginal: a 0.002 QALY improvement per participant, equivalent to less than a single day in full health. Participants who were heterosexual were less likely to engage with peer support than gay, lesbian or bisexual participants, OR 0.3 (95% CI 0.08 to 0.87; p = 0.029). We found that length of first contact (in minutes) was positively associated with engaging with peer support, OR 1.02 (95% CI 1.00 to 1.04; p = 0.010), and participants who went on to engage with peer support experienced more relationship building activity in that first contact. A shorter period between allocation to peer support and discharge (in days) was also associated with engagement in the intervention, OR 0.99 (95% CI 0.98 to 1.00; p = 0.002). Our qualitative process evaluation largely supports our original change model, further elucidating the distinctive nature of the peer-to-peer relationship while indicating the role that PWs played in enabling people to build relationships and make connection to community. Choice and control over how people engaged with peer support was identified as an important mediator of good experience and outcomes of peer support. Peer worker well-being, job satisfaction, team working and burn out scores were close to or better than scores for appropriate norm populations throughout the study. There were small but significant drops in well-being, personal satisfaction and satisfaction with workload after 4 months in post, and a similar small increase in burn out, but these changes were not maintained at 12 months. Satisfaction with training and job prospects were lower at 12 months. Qualitative data largely confirmed these findings with PWs indicating that they found that peer support work could be emotionally and practically challenging for the first few months but was rewarding and offered opportunities for personal growth. Conclusions We conclude that peer support for discharge, offered to participants at risk of readmission, was not superior to CAU. Peer support should not be commissioned with the expectation that it reduces readmissions for this group, although some cost-saving based on fewer days in hospital is likely. Our trial findings reflect those of our systematic review, suggesting that one-to-one peer support in mental health services is unlikely to improve clinical outcomes or reduce hospitalisation. Further research is needed to: improve implementation in order to optimise engagement with peer support establish the impact of peer support on psychosocial outcomes understand and evaluate the impacts of peer support for people from different ethnic communities (and especially to optimise benefits for black people using mental health services) understand and evaluate the impacts of peer support for people from different clinical populations establish the construct validity of our fidelity index through use with larger samples better understand the ongoing training and support needs, and career development pathway for PWs. Study registration The systematic review is registered as PROSPERO CRD42015025621. The trial is registered with the ISRCTN clinical trial register, number ISRCTN 10043328. Funding This award was funded by the UK National Institute for Health and Care Research (NIHR) Programme Grants for Applied Research programme (NIHR award ref: RP-PG-1212-20019) and is published in full in Programme Grants for Applied Research; Vol. 11, No. 8. See the NIHR Funding and Awards website for further award information. This paper presents independent research funded by NIHR. The views expressed are those of the authors and not necessarily those of the UK National Health Service (NHS), the NIHR or the Department of Health and Social Care.
- Published
- 2023
- Full Text
- View/download PDF
8. A protocol for the formative evaluation of the implementation of patient-reported outcome measures in child and adolescent mental health services as part of a learning health system
- Author
-
Erin McCabe, Michele Dyson, Deborah McNeil, Whitney Hindmarch, Iliana Ortega, Paul D. Arnold, Gina Dimitropoulos, Ryan Clements, Maria J. Santana, and Jennifer D. Zwicker
- Subjects
Learning health system ,Mental health services ,Measurement-based care ,Patient-reported outcome measures ,Mental illness ,Pediatric mental health ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Mental health conditions affect one in seven young people and research suggests that current mental health services are not meeting the needs of most children and youth. Learning health systems are an approach to enhancing services through rapid, routinized cycles of continuous learning and improvement. Patient-reported outcome measures provide a key data source for learning health systems. They have also been shown to improve outcomes for patients when integrated into routine clinical care. However, implementing these measures into health systems is a challenging process. This paper describes a protocol for a formative evaluation of the implementation of patient-reported measures in a newly operational child and adolescent mental health centre in Calgary, Canada. The purpose is to optimize the collection and use of patient-reported outcome measures. Our specific objectives are to assess the implementation progress, identify barriers and facilitators to implementation, and explore patient, caregivers and clinician experiences of using these measures in routine clinical care. Methods This study is a mixed-methods, formative evaluation using the Consolidated Framework for Implementation Research. Participants include patients and caregivers who have used the centre’s services, as well as leadership, clinical and support staff at the centre. Focus groups and semi-structured interviews will be conducted to assess barriers and facilitators to the implementation and sustainability of the use of patient-reported outcome measures, as well as individuals’ experiences with using these measures within clinical care. The data generated by the patient-reported measures over the first five months of the centre’s operation will be analyzed to understand implementation progress, as well as validity of the chosen measures for the centres’ population. Discussion The findings of this evaluation will help to identify and address the factors that are affecting the successful implementation of patient-reported measures at the centre. They will inform the co-design of strategies to improve implementation with key stakeholders, which include patients, clinical staff, and leadership at the centre. To our knowledge, this is the first study of the implementation of patient-reported outcome measures in child and adolescent mental health services and our findings can be used to enhance future implementation efforts in similar settings.
- Published
- 2024
- Full Text
- View/download PDF
9. Developing mental health services during and in the aftermath of the Ebola virus disease outbreak in armed conflict settings: a scoping review
- Author
-
Bives Mutume Nzanzu Vivalya, Martial Mumbere Vagheni, Germain Manzekele Bin Kitoko, Jeremie Muhindo Vutegha, Augustin Kensale Kalume, Astride Lina Piripiri, Yvonne Duagani Masika, and Jean-Bosco Kahindo Mbeva
- Subjects
Mental health ,Mental health services ,Ebola ,Democratic Republic of Congo ,Scoping review ,Armed conflict ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Mental health is mostly affected by numerous socioeconomic factors that need to be addressed through comprehensive strategies. The aftermath of armed conflict and natural disasters such as Ebola disease virus (EVD) outbreaks is frequently associated with poor access to mental healthcare. To design the basis of improving mental health services via the integration of mental health into primary health care in the Democratic Republic of Congo (DRC), we conducted a scoping review of available literature regarding mental illness in armed conflict and EVD outbreak settings. Methods This scoping review of studies conducted in armed conflict and EVD outbreak of DRC settings synthesize the findings and suggestions related to improve the provision of mental health services. We sued the extension of Preferred Reporting Items for Systematic Reviews and Meta-Analyses to scoping studies. A mapping of evidence related to mental disorders in the eastern part of DRC from studies identified through searches of electronic databases (MEDLINE, Scopus, Psych Info, Google Scholar, and CINAHL). Screening and extraction of data were conducted by two reviewers independently. Results This review identified seven papers and described the findings in a narrative approach. It reveals that the burden of mental illness is consistent, although mental healthcare is not integrated into primary health care. Access to mental healthcare requires the involvement of affected communities in their problem-solving process. This review highlights the basis of the implementation of a comprehensive mental health care, through the application of mental health Gap Action Program (mhGAP) at community level. Lastly, it calls for further implementation research perspectives on the integration of mental healthcare into the health system of areas affecting by civil instability and natural disasters. Conclusion This paper acknowledges poor implementation of community mental health services into primary health care in regions affected by armed conflict and natural disasters. All relevant stakeholders involved in the provision of mental health services should need to rethink to implementation of mhGAP into the emergency response against outbreaks and natural disasters.
- Published
- 2022
- Full Text
- View/download PDF
10. A collaboratively produced model of service design for children and young people with common mental health problems
- Author
-
Steven Pryjmachuk, Susan Kirk, Claire Fraser, Nicola Evans, Rhiannon Lane, Jodie Crooks, Rose McGowan, Georgia Naughton, Liz Neill, Elizabeth Camacho, Peter Bower, Penny Bee, and Tim McDougall
- Subjects
Children ,Young people ,Mental health services ,Organisational case studies ,Evidence synthesis ,Service design ,Public aspects of medicine ,RA1-1270 - Abstract
Abstract Background Little is known about the effectiveness of, and implementation complexities associated with, service delivery models for children and young people (CYP) experiencing ‘common’ mental health problems such as anxiety, depression, behavioural difficulties and self-harm. This paper outlines how a model for high-quality service design for this population group was developed by identifying available services, their effectiveness, cost-effectiveness and acceptability, and the barriers and enablers to access. Methods Sequential, mixed-methods design, combining evidence syntheses (scoping and integrative reviews of the international literature) with primary research (a collective case study in England and Wales). Data from these two elements were collaboratively synthesised in a subsequent model-building phase. Results The scoping review yielded a service model typology. The integrative review found effectiveness evidence only for four models: collaborative care (the only service model to also have cost-effectiveness evidence), outreach approaches, brief intervention services and an organisational framework called ‘Availability, Responsiveness and Continuity’. No service model seemed more acceptable than others. Three case study themes were identified: pathways to support; service engagement; and learning and understanding. The model-building phase identified rapid access, learning self-care skills, individualised support, clear information, compassionate and competent staff and aftercare planning as core characteristics of high-quality services. These characteristics were underpinned by four organisational qualities: values that respect confidentiality; engagement and involvement; collaborative relationships; and a learning culture. Conclusions A consistent organisational evidence-base for service design and delivery in CYP’s mental health spanning many years appears to have had little impact on service provision in England and Wales. Rather than impose – often inflexible and untested – specific local or national models or frameworks, those commissioning, designing and delivering mental health services for CYP should (re)focus on already known, fundamental components necessary for high-quality services. These fundamental components have been integrated into a collaboratively produced general model of service design for CYP with common mental health problems. While this general model is primarily focused on British service provision, it is broad enough to have utility for international audiences.
- Published
- 2024
- Full Text
- View/download PDF
11. Pathways to care for psychosis in Malawi
- Author
-
Demoubly Kokota, Robert C. Stewart, Chiwoza Bandawe, Genesis Chorwe-Sungani, Olive Liwimbi, Charles Masulani Mwale, Kazione Kulisewa, Michael Udedi, Saulos Gondwe, Anthony Sefasi, Richard Banda, Thandiwe Mkandawire, and Stephen M. Lawrie
- Subjects
Psychotic disorders/schizophrenia ,community mental health teams ,transcultural psychiatry ,traditional healers ,mental health services ,Psychiatry ,RC435-571 - Abstract
People with psychosis in Malawi have very limited access to timely assessment and evidence-based care, leading to a long duration of untreated psychosis and persistent disability. Most people with psychosis in the country consult traditional or religious healers. Stigmatising attitudes are common and services have limited capacity, particularly in rural areas. This paper, focusing on pathways to care for psychosis in Malawi, is based on the Wellcome Trust Psychosis Flagship Report on the Landscape of Mental Health Services for Psychosis in Malawi. Its purpose is to inform Psychosis Recovery Orientation in Malawi by Improving Services and Engagement (PROMISE), a longitudinal study that aims to build on existing services to develop sustainable psychosis detection systems and management pathways to promote recovery.
- Published
- 2023
- Full Text
- View/download PDF
12. Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review
- Author
-
Stephanie Tremblay, Shalini Lal, Lucille Xiang, Mark A. Ferro, and Dana Anaby
- Subjects
service organization ,rehabilitation ,co-occurring diagnoses ,mental health services ,service delivery ,Other systems of medicine ,RZ201-999 ,Medical technology ,R855-855.5 - Abstract
IntroductionYouth with childhood-onset physical disabilities receiving rehabilitation services often present with many complex needs. Emerging evidence confirms co-occurrence of mental health problems in this population is common, and mental health is often overlooked during rehabilitation for chronic physical conditions. For example, symptoms of depression and anxiety are frequently present in adolescents with physical disability such as spina bifida or Duchenne muscular dystrophy, and access to mental health services is often limited. Addressing mental health concerns for this age group is particularly critical as it encompasses a challenging transition to adulthood.ObjectivesBuilding upon findings from a recent scoping review on the co-occurrence of physical disabilities and mental health problems, this paper synthesizes scientific literature related to the organization and delivery of services for youth with co-occurring childhood-onset physical disabilities (e.g., cerebral palsy, spina bifida) and mental health problems (e.g., depression, anxiety).MethodsA scoping review protocol stemming from Arksey & O'Malley's framework and updated guidelines from the Joanna Briggs Institute was developed. Four databases (Medline, PsycINFO, CINAHL, Embase) were searched. The search was limited to French or English peer-reviewed articles published between 2000 and 2021. Articles included were primary papers addressing: 1) youth aged 15 to 24 with a childhood-onset physical disability, 2) mental health problems, and 3) healthcare service organization or delivery. They were screened by two reviewers and discussed with a third to establish consensus on the inclusion criteria and resolve disagreements.ResultsSixteen articles were retained from the 1,010 screened. Many (9/16) were from the United States. Two models were found: the Biopsychosocial, Collaborative, Agency-Based Service Integration Approach (including psychiatry in a pediatric rehabilitation hospital) and the Client Network Consultation (an interagency collaboration in mental health care for children with complex healthcare needs). Twelve key principles for service organization and delivery were identified and categorized into: collaboration and coordination, training and support, and delivery of care.ConclusionIdentified principles can guide improved service delivery for this population. Highlighted research gaps include the need for developing models of collaborative healthcare delivery and subsequently evaluating their effectiveness.
- Published
- 2023
- Full Text
- View/download PDF
13. A systematic review of midwives’ training needs in perinatal mental health and related interventions
- Author
-
Marine Dubreucq, Corinne Dupont, Mijke P. Lambregtse-Van den Berg, Wichor M. Bramer, Catherine Massoubre, and Julien Dubreucq
- Subjects
midwifery ,perinatal care ,mental health services ,education ,attitude of health personnel ,literature review ,Psychiatry ,RC435-571 - Abstract
BackgroundMidwives may be key stakeholders to improve perinatal mental healthcare (PMHC). Three systematic reviews considered midwives’ educational needs in perinatal mental health (PMH) or related interventions with a focus on depression or anxiety. This systematic review aims to review: 1) midwives’ educational/training needs in PMH; 2) the training programs in PMH and their effectiveness in improving PMHC.MethodsWe searched six electronic databases using a search strategy designed by a biomedical information specialist. Inclusion criteria were: (1) focus on midwives; (2) reporting on training needs in PMH, perinatal mental health problems or related conditions or training programs; (3) using quantitative, qualitative or mixed-methods design. We used the Mixed Methods Appraisal Tool for study quality.ResultsOf 4969 articles screened, 66 papers met eligibility criteria (47 on knowledge, skills or attitudes and 19 on training programs). Study quality was low to moderate in most studies. We found that midwives’ understanding of their role in PMHC (e.g. finding meaning in opening discussions about PMH; perception that screening, referral and support is part of their routine clinical duties) is determinant. Training programs had positive effects on proximal outcomes (e.g. knowledge) and contrasted effects on distal outcomes (e.g. number of referrals).ConclusionsThis review generated novel insights to inform initial and continuous education curriculums on PMH (e.g. focus on midwives’ understanding on their role in PMHC or content on person-centered care).Registration detailsThe protocol is registered on PROSPERO (CRD42021285926)
- Published
- 2024
- Full Text
- View/download PDF
14. Stakeholder engagement to develop a directory of COVID-19 related mental health services in Vietnam: reflections on a participatory approach [version 1; peer review: 2 approved]
- Author
-
William Le Craig, Jessica Ngoc Thai, Mary Chambers, and Jaom Fisher
- Subjects
Public engagement ,stakeholder engagement ,mental health ,mental health support ,mental health services ,Vietnam ,eng ,Medicine ,Science - Abstract
The COVID-19 pandemic led to a rise of mental health issues amongst Vietnamese communities in Vietnam and the diaspora. However, there were few resources and no directory of services available for people seeking mental health support in Vietnam. In response to this need, we initiated an engagement project to improve Vietnamese communities' access to mental health support. This project aimed to involve stakeholders in the development of a directory of resources in order to ensure that it met local needs. The phases of development included: (1) reviewing desk research findings; (2) reviewing the list of mental health support services that we could find; (3) verifying the first draft of the directory; (4) helping disseminate the directory; and (5) updating the directory. In February 2022 the first edition of the mental health directory for Vietnamese and foreigners living in Vietnam was published. In this paper we describe the iterative approach taken to developing a resource that would have maximum utility for the target communities. We describe the process of partnering with people with lived experience, community members and expert stakeholders in this process, and reflect on how this strengthened the outcomes in terms of the relevance of the output, the research uptake and the access for the wider community. We believe that it is important to publish examples of community engagement projects in order to demonstrate good practise and promote increased involvement of communities in research.
- Published
- 2024
- Full Text
- View/download PDF
15. Inequalities in care for Iranian women suffering from the comorbidity of substance use and mental illness: The need for integrated treatment
- Author
-
Mohammad Taghi Kheirkhah, Mehran Mokarrami, Maryam Kazemitabar, and Danilo Garcia
- Subjects
health inequities ,mental health services ,substancerelated disorders ,women’s health ,Nutrition. Foods and food supply ,TX341-641 ,Public aspects of medicine ,RA1-1270 - Abstract
This paper addresses the comorbidity of substance use and mental illness among women in Iran and the barriers they encounter in accessing treatment. Research has demonstrated a higher prevalence of comorbidity of substance use disorders and mental illness among women than men. It has been suggested that women in Iran may face numerous barriers to appropriate care, such as stigma and discrimination associated with substance use. Integrated treatment for co-occurring disorders (CODs) has been highly beneficial and effective; however, personal and structural limitations impede this treatment approach, which explains the need to develop a situation- and culture-specific program. Needs assessment is necessary to achieve an integrated treatment, and the Iranian government should take the lead in this endeavor. However, if this seems unlikely, non-governmental organizations could be called upon to promote it.
- Published
- 2023
- Full Text
- View/download PDF
16. Sleep problems and referral intentions in mental health services: service user self-report and staff proxy report surveys
- Author
-
Sophie M. Faulkner, Richard J. Drake, Emily Eisner, and Penny E. Bee
- Subjects
Sleep ,Circadian rhythm ,Insomnia ,Obstructive sleep apnoea ,Mental health services ,Psychosis ,Psychiatry ,RC435-571 - Abstract
Abstract Background Sleep problems are common in mental health service users, but few non-pharmacological therapies are offered. Therapies are being developed and tested, but there may be barriers to these therapies reaching those who need them. Methods Light-Dark and Activity Rhythm Therapy (L-DART), is a new sleep therapy delivered by an occupational therapist, which has been feasibility tested in people with schizophrenia spectrum diagnoses. This paper presents two surveys, conducted with mental health staff and service users, on sleep problems, treatment wishes; and barriers and facilitators to uptake of L-DART or similar therapies. Descriptive statistics, single-level and multi-level ordinal logistic regression were used to examine factors associated with sleep problems and referral intentions. Findings Sleep problems were commonly identified by staff and service users, there was demand for non-pharmacological intervention across diagnostic and demographic categories, but staff readiness to refer differed according to NHS Trust and service user diagnosis. Staff and service user reports differed in awareness of sleep disordered breathing and parasomnias, and wish for referral. Staff were more confident identifying sleep problems than addressing them, but more training was associated with greater confidence concerning both assessment and treatment. Conclusions A range of sleep problems are prevalent and recognised in mental health service users, and there is an unmet need for non-pharmacological sleep interventions. Improving suitable resources to support self-management in this group may help; Staff and service users also reported a high readiness to refer or be referred for sleep interventions. Staff training to improve identification of sleep problems, and differentiation between types of sleep problems, would support access to the most appropriate treatments.
- Published
- 2023
- Full Text
- View/download PDF
17. Your robot therapist is not your therapist: understanding the role of AI-powered mental health chatbots
- Author
-
Zoha Khawaja and Jean-Christophe Bélisle-Pipon
- Subjects
artificial intelligence ,chatbot ,mental health services ,therapeutic misconception ,AI ethics ,Medicine ,Public aspects of medicine ,RA1-1270 ,Electronic computers. Computer science ,QA75.5-76.95 - Abstract
Artificial intelligence (AI)-powered chatbots have the potential to substantially increase access to affordable and effective mental health services by supplementing the work of clinicians. Their 24/7 availability and accessibility through a mobile phone allow individuals to obtain help whenever and wherever needed, overcoming financial and logistical barriers. Although psychological AI chatbots have the ability to make significant improvements in providing mental health care services, they do not come without ethical and technical challenges. Some major concerns include providing inadequate or harmful support, exploiting vulnerable populations, and potentially producing discriminatory advice due to algorithmic bias. However, it is not always obvious for users to fully understand the nature of the relationship they have with chatbots. There can be significant misunderstandings about the exact purpose of the chatbot, particularly in terms of care expectations, ability to adapt to the particularities of users and responsiveness in terms of the needs and resources/treatments that can be offered. Hence, it is imperative that users are aware of the limited therapeutic relationship they can enjoy when interacting with mental health chatbots. Ignorance or misunderstanding of such limitations or of the role of psychological AI chatbots may lead to a therapeutic misconception (TM) where the user would underestimate the restrictions of such technologies and overestimate their ability to provide actual therapeutic support and guidance. TM raises major ethical concerns that can exacerbate one's mental health contributing to the global mental health crisis. This paper will explore the various ways in which TM can occur particularly through inaccurate marketing of these chatbots, forming a digital therapeutic alliance with them, receiving harmful advice due to bias in the design and algorithm, and the chatbots inability to foster autonomy with patients.
- Published
- 2023
- Full Text
- View/download PDF
18. Impact of the institutional model on psychiatric patients in Chile from the 19th to 21st centuries: a scoping review
- Author
-
Ennio Vivaldi Macho, Gustavo Gomez Barbieri, Hernán Lechuga, and Mauricio Soto-Suazo
- Subjects
mental health ,psychiatry ,mental health services ,Psychiatry/history ,mental disorders ,Biological therapy/history ,Psychiatry ,RC435-571 - Abstract
IntroductionVarious mental health hospital models have been tested in Chile since its foundation. The institutional model with the Asylum and the Madhouse prevailed during the nineteenth century and much of the twentieth. But is deinstitutionalizing all psychiatric patients the solution?Evidence acquisitionA PubMed, Epistemonikos, Lilacs, and Google Scholar Scoping Review was carried out in the last 5 years using the PRISMA-P method and the Scoping review search strategy. The MeSH terms (“Psychiatry/history” AND “Chile”) OR (“Mental disorders” AND “therapy”) were used during the search. Finally, papers focused on clinical trial therapy evaluation were excluded, and we emphasized the effects of historical evidence.Evidence synthesisWe identified 35 primary studies, and we counted the number of articles included in the review that potentially met our inclusion criteria and noted how many studies had been missed by our search. We analyzed 10 primary studies and 10 primary historical resources that were included in this study.ConclusionThe state must become a guarantor and be responsible for its psychiatric patients and provide professional and humanitarian support to its patients, be it through community psychiatry, day hospitals, devices such as mental health clinics, or psychiatric institutes dedicated to teaching and research. Patients should not be left to the free will of their direct relatives, but rather the state should strengthen the primary care system.
- Published
- 2023
- Full Text
- View/download PDF
19. Stressors and Resilience in Mental Health Social Workers
- Author
-
C. Marc and C. Bacter
- Subjects
social workers ,mental health services ,work-related stressors ,resilience ,professional practice ,Law ,Social Sciences ,Social sciences (General) ,H1-99 - Abstract
In their work, social workers in mental health services experience a high level of work-related stressors. The literature considers that resilience helps social workers to cope effectively with pressures, learn from their experience and develop personally and professionally. This paper presents the results of a qualitative study involving 16 social workers working with adults with mental and intellectual disabilities in different services in Bihor County. The results of the study highlight the importance of developing resilience as a factor coping with stress. The development of resilience is based on the relationship between social workers and the work environment. Organisations contribute by creating a suitable working environment, offering support, etc. Personal characteristics such as self-esteem, adaptability, hopefulness, sense of humour, coping based on problem approach and less focused on emotions, initiative, creativity, but also social skills and the development of supportive relationships and openness to new experiences, are key elements in this context.
- Published
- 2023
- Full Text
- View/download PDF
20. Mental health systems in six Caribbean small island developing states: a comparative situational analysis
- Author
-
Ian F. Walker, Laura Asher, Anees Pari, Jennifer Attride-Stirling, Ayoola O. Oyinloye, Chantelle Simmons, Irad Potter, Virginia Rubaine, June M. Samuel, Aisha Andrewin, Janett Flynn, Arline L. McGill, Sharra Greenaway-Duberry, Alicia B. Malcom, Gemma Mann, Ahmed Razavi, and Roger C. Gibson
- Subjects
Small island developing states ,Caribbean region ,Mental health systems ,Mental health services ,Neurosciences. Biological psychiatry. Neuropsychiatry ,RC321-571 - Abstract
Abstract Background Small island developing states (SIDS) have particular mental health system needs due to their remoteness and narrow resource base. We conducted situational analyses to support mental health system strengthening in six SIDS: Anguilla, Bermuda, British Virgin Islands, Cayman Islands, Montserrat and Turks and Caicos Islands. Methods The situational analyses covered five domains: 1. Socio-economic context and burden of mental disorders, 2. Leadership and governance for mental health 3. Mental health and social care services 4. Strategies for promotion and prevention in mental health and 5. Information systems, evidence and research for mental health. First, a desk-based exercise was conducted, in which data was drawn from the public domain. Second, a field visit was conducted at each site, comprising visits to facilities and consultation meetings with key stakeholders. Results Our key findings were 1. Despite most of these SIDS being high-income economies, social inequalities within states exist. There was no population-level data on mental health burden. 2. All SIDS have a mental health policy or plan, but implementation is typically limited due to lack of funds or staff shortages. There was minimal evidence of service user involvement in policy or service development. 3. All SIDS have a specialist, multi-disciplinary mental health workforce, however Montserrat and Anguilla rely on visiting psychiatrists. Child and adolescent and dedicated crisis intervention services were found in only two and one SIDS respectively. A recovery-oriented ethos was not identified in any SIDS. 4. Mental illness stigma was prevalent in all SIDS. Promotion and prevention were objectives of mental health strategies for all SIDS, however activities tended to be sporadic. No mental health non-Governmental organisations were identified in three SIDS. 5. Health information systems are generally underdeveloped, with paper-based systems in three SIDS. There has been no rigorous local mental health research. Conclusion Cross-cutting recommendations include: to develop mental health action plans that include clear implementation indicators; to facilitate community surveys to ascertain the prevalence of mental disorders; to explore task-sharing approaches to increase access to primary mental health care; and to develop programmes of mental health promotion and prevention.
- Published
- 2022
- Full Text
- View/download PDF
21. Schizophrenia, Recovery, and Culture: The Need for an Indian Perspective
- Author
-
Srinivasan Tirupati and Ramachandran Padmavati
- Subjects
culture ,india ,mental health recovery ,mental health services ,schizophrenia ,Psychiatry ,RC435-571 - Abstract
Recovery is a concept that defined a positive and empowering experience for people with Schizophrenia. Recovery is an innately personal phenomenon, but the cultural environment can influence the recovery process. The concept of recovery originated in the West. The Eastern cultures differ in various aspects from the Western cultures. Application of the Western model of recovery in an Eastern culture like India without considering the cultural differences would be misplaced. This paper discusses two cultural factors in Indian life, namely, the family and the doctrines of Karma and Fate, that can impact recovery from Schizophrenia. Understanding the impact of culture on schizophrenia recovery should also consider cultural variations between individuals and over time. Principles and practice of Recovery-oriented mental health care in India should consider the unique local cultural environment.
- Published
- 2022
- Full Text
- View/download PDF
22. Ethical Arguments for Providing Access to Mental Health Care through Longitudinal Relationships
- Author
-
Charlene Sathi and Lydia S. Dugdale
- Subjects
homelessness ,homeless ,mental health ,mental health services ,mental disorders ,psychiatric disorders ,public health ,supportive housing ,street medicine ,community health clinics ,Societies: secret, benevolent, etc. ,HS1-3371 ,Communities. Classes. Races ,HT51-1595 ,Sociology (General) ,HM401-1281 - Abstract
A focus on access to mental health care is critical for beneficent and just care of individuals experiencing homelessness. The delivery of this care is strengthened through building longitudinal relationships between clinicians and persons experiencing homelessness—relationships that are best understood, perhaps, through the lens of attachment theory. In this paper, we look at the prevalence of mental illness among individuals experiencing homelessness and the history of deinstitutionalization of the mentally ill. We then evaluate how three modern-day interventions—street medicine, community health clinics, and supportive housing programs—play integral roles in providing mental health care and constructing a trusting relationship. We conclude with a call for increased funding to support the expansion of these essential mental health care interventions, especially in the aftermath of COVID-19.
- Published
- 2021
- Full Text
- View/download PDF
23. Strategies to improve access to mental health services: Perspectives of African migrants and service providers in South Australia
- Author
-
Nelsensius Klau Fauk, Anna Ziersch, Hailay Gesesew, Paul Russell Ward, and Lillian Mwanri
- Subjects
Mental illness ,Mental health services ,Perspectives ,African migrants ,Services providers ,Australia ,Mental healing ,RZ400-408 ,Public aspects of medicine ,RA1-1270 - Abstract
Access to mental health services is essential to improving health and well-being of population groups including migrants. This paper describes views and perspectives of African migrants and service providers about how to improve access to mental healthcare services for African migrants in South Australia. The study employed a qualitative design using one-on-one interviews with 20 African migrants and 10 service providers through Zoom or WhatsApp video calls to collect the data. The access to healthcare framework was used to guide data conceptualisation, data analysis and discussion of the findings. Data analysis followed five steps of qualitative data analysis introduced by Ritchie and Spencer. The findings showed several areas that needed improvement to enhance access to services. These areas were grouped into four key themes as follows (1) education on mental illness; (2) understanding the influence of culture on understanding both mental illness and access to mental health services; (3) approachability of the services through dissemination of information within African communities about availability of and procedure to access the services; (4) acceptability of the services through culturally appropriate service delivery, taking into consideration African cultural and religious values in the services, involvement of Africans as services providers, and the use of non-stigmatising terms instead of “mental health problem”. The findings indicate the need for programs for African communities to enhance their knowledge of mental health issues and improve their access to mental healthcare services. Future studies investigating what needs to be done by government and non-governmental institutions to improve access to mental healthcare services among African migrants are recommended.
- Published
- 2022
- Full Text
- View/download PDF
Discovery Service for Jio Institute Digital Library
For full access to our library's resources, please sign in.